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Army Study to Assess Risk and Resilience in Servicemembers (STARRS) (ICPSR 35197)

Released/updated on: 2025-10-01
Geographic coverage: United States
Time period: 2011-01-01--2024-01-01

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April 29, 2025: STARRS - Longitudinal Study Wave 4 (LSW4) data released

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The Army Study to Assess Risk and Resilience in Servicemembers (STARRS) is an extensive study of mental health risk and resilience among military personnel. Army STARRS consists of eight separate but integrated epidemiologic and neurobiologic studies. Survey data for three of the Army STARRS study components are available via Secure Dissemination or via the ICPSR Virtual Data Enclave: New Soldier Study (NSS); All Army Study (AAS) and Pre-Post Deployment Study (PPDS). Also available are data for the STARRS-Longitudinal Study (STARRS-LS), which are follow-up surveys conducted with Army STARRS participants from AAS, NSS and PPDS studies. Lastly, baseline administrative data from the Army/Department of Defense (DoD) and blood sample flags for Soldiers who had blood drawn as a part of their participation in NSS or PPDS are available.

The AAS component of Army STARRS assesses soldiers' psychological and physical health, events encountered during training, combat, and non-combat operations, and life and work experiences across all phases of Army service. The AAS data includes data on soldiers' psychological resilience, mental health, and risk for self-harm.

The NSS data are drawn from new soldiers who have just entered the Army. The data contain information on soldier health, personal characteristics, and prior experiences. Results from a series of neurocognitive tests are also included in the NSS data.

The PPDS data are drawn from active duty soldiers who were interviewed at four points in time: 3-4 months prior to deployment to Afghanistan; within 1-2 weeks after return from deployment; 1-3 months after return from deployment; and 9-12 months after return from deployment. The PPDS data contain information on soldiers' psychological resilience, mental health, deployment experiences, and risk for self-harm.

The STARRS-LS data are from multiple follow-up interviews with individuals who previously participated in the AAS, NSS and PPDS study components of Army STARRS. STARRS-LS data contain follow-up information on soldiers' and veterans' physical and mental health, resilience and risk for self-harm, military and employment status, deployment experience, and personal characteristics as they move through their Army careers and after they leave the Army.

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Center for Education and Drug Abuse Research (CEDAR): Etiological and Prospective Family Study in Southwestern Pennsylvania, Baseline and Follow-Up Data, 1990-2014 (ICPSR 33444)

Released/updated on: 2021-06-30
Geographic coverage: United States, Pennsylvania
Time period: 1990-01-01--2014-01-01
The Center for Education and Drug Abuse Research (CEDAR) conducted research on 775 families enrolled in the Center's prospective investigations into the etiology of substance use disorder (SUD). The pro-bands are men with lifetime presence/absence of SUD consequent to use of an illicit drug who have a 10-12 year old biological son or daughter. The biological children of SUD men are assigned to the high average risk (HAR) group whereas offspring of men without SUD, having neither axis 1 disorder ("normal") nor SUD psychiatric disorder, are assigned to the low average risk (LAR) group. A second control group (Psych control) was also collected, in whom the fathers had a lifetime DSM-III-R diagnosis of any psychiatric disorder not related to substance use. The sample sizes are as follows: HAR = 344, LAR = 350, and Psych = 81. The children had follow-up evaluations conducted at ages 12-14, 16, 19, and annually thereafter until age 30. CEDAR has already shown that they can predict in 10-12 year old youth cannabis use disorder by age 22 with approximately 70 percent accuracy, thereby substantiating the paradigm, subject recruitment strategy, and measurement protocols. Multidisciplinary research was conducted on family members (father, mother, children) with the objective of elucidating the genetic, bio-behavioral, and environmental factors on development of SUD consequent to use of illegal drugs. Research protocols are organized into three thematically connected research modules (Neurogenetics, Developmental Psychopathology, and Translation) linking etiology and prevention. The research components thus align with the NIH Roadmap model such that basic science informs clinical research leading to prevention guided by an understanding of etiology. In addition to module-level research, faculty also participate in three organizational aims: (1) Devise a practical scale to quantify the transmissible liability to SUD; (2) Empirically test a bio-psychological theory of SUD etiology focusing on off-time maturation leading to psychological dysregulation predisposing to SUD; and, (3) Delineate SUD liability variants within an ontogenetic framework.
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Computer Assisted Quality of Life and Symptom Assessment of Complex Patients from April 2011-August 2012: Chicago, Illinois (ICPSR 34543)

Released/updated on: 2013-03-21
Geographic coverage: United States, Chicago, Illinois
Time period: 2011-04-08--2012-08-31

The purpose of this study was to expand the research capacity for comparative effectiveness evaluations of patients with multiple chronic conditions. Researchers administered a generic Quality of Life (QOL) instrument, physical symptom assessment, patient health questionnaire, and a tobacco screen through audio computer-assisted self-interviews (ACASI) and linked the responses to their electronic medical records (EMR) data. Researchers also calculated two co-morbidity indices (Chronic Disease Score and Charlson Co-morbidity Index).

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Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Transitional Care Management (TCM), Increasing Aftercare Participation for Parolees, 2004-2008 [United States] (ICPSR 31621)

Released/updated on: 2014-03-14
Geographic coverage: New York City, United States, Connecticut, Kentucky, Los Angeles, Hartford, California, New York (state), Lexington
Time period: 2004-11-01--2008-05-01
In an effort to increase participation in community aftercare treatment for substance-abusing offenders who have paroled from prison, the Transitional Case Management (TCM) intervention tested a model of strengths-based case management consisting of (1) completion by the inmate of a strengths and goals assessment as part of discharge planning, (2) a telephone conference call that included the inmate and people central to the inmate's aftercare plan (including the parole officer), and (3) strengths case management for 12 weeks in the community to promote treatment participation and increase the client's access to needed services. (For a more detailed description, see Prendergast Law and Cartier, 2008). With four CJ-DATS Research Centers participating, the study randomized 812 prison treatment clients to the Transitional Case Management condition or to the Standard Referral condition. Detailed assessments occurred at baseline and at three and nine months following release to parole. Data from treatment and criminal justice records, including costs, were also collected. Treatment and criminal justice staff completed surveys on agency collaboration and cooperation. Respondents were asked questions regarding the barriers to treatment/recovery, education/job training, relationships, finance, living arrangement/housing, health and documentation. They were also asked question related to whether they needed or received certain services. Other variables included socio-demographic and family background, peer relation and criminal history, health and psychological status, drug and treatment history.
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Detroit [Michigan] Neighborhood Health Study, 2008-2013 (ICPSR 37038)

Released/updated on: 2021-10-07
Geographic coverage: Detroit, United States, Michigan
Time period: 2008-01-01--2009-01-01, 2009-01-01--2010-01-01, 2010-01-01--2011-01-01, 2011-01-01--2012-01-01

The Detroit Neighborhood Health Study (DNHS) is a prospective, representative longitudinal cohort study of predominantly African American adults living in Detroit, Michigan. The main purpose of the study was to determine the predictive effects of ecological stressors, such as income distribution and residential segregation, on the development of post-traumatic stress disorder (PTSD), substance use, and other psychological and behavioral outcomes. An additional purpose was to study the interrelationships between ecological stressors, exposure to potentially traumatic events (PTEs), PTSD, substance use, and immune function. The study team hypothesized that exposure to ecological stressors would influence the risk of PTE exposure, PTSD, substance use, other psychological outcomes, and the relationships between these factors.

The current collection includes data from all 5 waves of the study. Cohort participants were initially recruited in 2008 with a dual-frame probability design, using telephone numbers obtained from the U.S. Postal Service Delivery Sequence Files as well as a listed-assisted random-digit-dial frame. Individuals without listed landlines or telephones and individuals with only a cell phone listed were invited to participate through a postal mail effort. Participants completed a 40 minute, structured telephone interview annually between 2008-2012 to assess perceptions of participants' neighborhoods, mental and physical health status, social support, exposure to traumatic events, and alcohol and tobacco use. In addition, the study team completed a structured assessment of Detroit's 54 neighborhoods in order to describe the characteristics of respondents' neighborhoods. The assessment included information about the quality of housing exteriors; presence of graffiti, abandoned cars, alcohol and tobacco advertisements, and security warning signs; presence of vacant buildings; and street and traffic noise levels.

All survey participants were offered the opportunity to provide a blood specimen (venipuncture, blood spot, or saliva) for immune and inflammatory marker testing as well as genetic testing of DNA. Participants received an additional $25USD if they elected to give a sample. Informed consent was obtained at the beginning of each interview and again at specimen collection. However, these specimens are not included as part of this data collection.

For more information about the study, please visit the Detroit Neighborhood Health Study website.

Genotypic data from DNHS are available on the NIH database of Genotypes and Phenotypes (dbGaP).

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Drug Abuse Treatment Outcome Study--Adolescent (DATOS-A), 1993-1995: [United States] (ICPSR 3404)

Released/updated on: 2008-10-07
Geographic coverage: United States
Time period: 1993-01-01--1995-01-01
Drug Abuse Treatment Outcome Study - Adolescent (DATOS-A) was a multisite, prospective, community-based, longitudinal study of adolescents entering treatment. It was designed to evaluate the effectiveness of adolescent drug treatment by investigating the characteristics of the adolescent population, the structure and process of drug abuse treatment in adolescent programs, and the relationship of these factors with outcomes. Three major types or modalities of programs included in the study were chemical dependency or short-term inpatient (STI), therapeutic community or residential (RES), and outpatient drug-free (ODF). The adolescent battery of instruments included intake, intreatment, and follow-up questionnaires based largely on the DATOS adult study DRUG ABUSE TREATMENT OUTCOME STUDY (DATOS), 1991-1994: [UNITED STATES] (ICPSR 2258) instrument format, with considerable tailoring to the adolescent population. Clients entering treatment completed two comprehensive intake interviews (Intake 1 and Intake 2), approximately one week apart. This information is provided in Parts 1 and 2 of the data collection. These interviews were designed to obtain baseline data on drug use and other behaviors, such as illegal involvement, as well as information on background and demographic characteristics, education and training, mental health status, employment, income and expenditures, drug and alcohol dependence, health, religiosity and self-concept, and motivation and readiness for treatment. The one-, three-, and six-month intreatment interviews (Parts 3, 4, and 7) included items on treatment access, intreatment experience, and psychological functioning, as well as questions replicated from some of the domains in the Intake 1 and 2 questionnaires. The 12-month post-treatment follow-up interview (Part 5) included questions replicated from the previous interviews, and also included post-treatment status. Part 6 includes variables for time in treatment and interview availability indicators. The Measures Data (Part 8) were generated by using the Diagnostic and Statistical Manual of Mental Disorders (Rev. 3rd ed., DSM-III-R) (American Psychiatric Association, 1987). The variables in Part 8 give either the DSM-III-R level of dependence to a drug category or they describe whether the subject meets the DSM-III-R standard for a particular disorder. The 12-Month Follow-up Urine Result data (Part 9) provide the results from urine sample tests that were given to a sample of subjects at the time of the 12-Month Follow-up Interview. The urine test was used to ascertain the nature and extent of bias in the self-reports of the respondents. Urine specimens were tested for eight categories of drugs (amphetamines, barbiturates, benzodiazepines, cannabinoids, cocaine metabolite, methaqualone, opiates, and phencyclidine). The drugs covered in the study were alcohol, tobacco, marijuana (hashish, THC), cocaine (including crack), heroin, narcotics or opiates such as morphine, codeine, Demerol, Dilaudid, and Talwin, illegal methadone, sedatives and tranquilizers such as barbiturates and depressants, amphetamines or other stimulants such as speed or diet pills, methamphetamines, LSD, PCP, and other hallucinogens or psychedelics, and inhalants such as glue, gasoline, paint thinner, and aerosol sprays. The study also included drug of choice, frequency, and route of administration.
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EVarQuit: Extinguishing Cigarette Smoking via Extended Pre-Quit Varenicline, Buffalo, New York, 2017-2020 (ICPSR 39157)

Released/updated on: 2025-06-18
Geographic coverage: United States, New York (state), Buffalo
Time period: 2017-10-02--2020-12-09

Learning theory and previous human and animal research support the hypothesis that a longer period of varenicline treatment prior to the target quit date (TQD) will lead to greater reductions in smoking before quitting, and higher long-term cessation rates, compared to standard varenicline treatment.

Building on promising preliminary clinical data, this study tested these hypotheses with a full-scale randomized clinical trial (RCT). 320 treatment-seeking adults reporting smoking at least 5 cigarettes per day (CPD) were randomized to a standard run-in group (3 weeks of placebo, followed by the standard 1 week of pre-TQD varenicline) or an extended run-in group (4 weeks of pre-TQD varenicline). Both groups received brief individual cessation counseling and 11 weeks of post-TQD varenicline.

The primary outcome consisted of cotinine-verified (at end of treatment [EOT]) self-reported continuous abstinence from smoking (in CPD) during the last 4 weeks of treatment. Secondary outcomes included bioverified self-report of continuous abstinence at the 6-month follow-up and percentage of reduction in self-reported smoking rate during the pre-quit period (week 1 vs week 4). Supplemental measures included repeated assessments of craving, withdrawal, medication adherence, and adverse events.

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The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)

Released/updated on: 2026-04-06
Geographic coverage: United States
Time period: 1998-01-01--2024-01-01

The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:

  1. What are the conditions and capabilities of unmarried parents, especially fathers?
  2. What is the nature of the relationships between unmarried parents?
  3. How do children born into these families fare?
  4. How do policies and environmental conditions affect families and children?

The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.

A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.

Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).

An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.

The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).

In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.

Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.

Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.

Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.

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General Social Survey, 1972-2012 [Cumulative File] (ICPSR 34802)

Released/updated on: 2013-09-11
Geographic coverage: United States
Time period: 1972-01-01--2012-01-01
The General Social Surveys (GSS) were designed as part of a data diffusion project in 1972. The GSS replicated questionnaire items and wording in order to facilitate time-trend studies. The latest survey, GSS 2012, includes a cumulative file that merges all 29 General Social Surveys into a single file containing data from 1972 to 2012. The items appearing in the surveys are one of three types: Permanent questions that occur on each survey, rotating questions that appear on two out of every three surveys (1973, 1974, and 1976, or 1973, 1975, and 1976), and a few occasional questions such as split ballot experiments that occur in a single survey. The 2012 surveys included seven topic modules: Jewish identity, generosity, workplace violence, science, skin tone, and modules for experimental and miscellaneous questions. The International Social Survey Program (ISSP) module included in the 2012 survey was gender. The data also contain several variables describing the demographic characteristics of the respondents.
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General Social Survey, 1972-2014 [Cumulative File] (ICPSR 36319)

Released/updated on: 2016-03-14
Geographic coverage: United States
Time period: 1972-01-01--2014-01-01
Since 1972, the General Social Survey (GSS) has been monitoring societal change and studying the growing complexity of American society. The GSS aims to gather data on contemporary American society in order to monitor and explain trends and constants in attitudes, behaviors, and attributes; to examine the structure and functioning of society in general as well as the role played by relevant subgroups; to compare the United States to other societies in order to place American society in comparative perspective and develop cross-national models of human society; and to make high-quality data easily accessible to scholars, students, policy makers, and others, with minimal cost and waiting. GSS questions include such items as national spending priorities, marijuana use, crime and punishment, race relations, quality of life, and confidence in institutions. Since 1988, the GSS has also collected data on sexual behavior including number of sex partners, frequency of intercourse, extramarital relationships, and sex with prostitutes. The 2014 GSS has modules on quality of working life, shared capitalism, wealth, work and family balance, social identity, social isolation, and civic participation. In 1985 the GSS co-founded the International Social Survey Program (ISSP). The ISSP has conducted an annual cross-national survey each year since then and has involved 58 countries and interviewed over one million respondents. The ISSP asks an identical battery of questions in all countries; the U.S. version of these questions is incorporated into the GSS. The 2014 ISSP topics are National Identity and Citizenship. Demographic variables include age, gender, race, ethnicity, education, marital status, religion, employment status, income, household structure, and whether respondents were born in the United States.
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General Social Survey, 1972-2016 [Cumulative File] (ICPSR 36797)

Released/updated on: 2017-11-14
Geographic coverage: United States
Time period: 1972-01-01--2016-01-01
Since 1972, the General Social Survey (GSS) has been monitoring societal change and studying the growing complexity of American society. The GSS aims to gather data on contemporary American society in order to monitor and explain trends and constants in attitudes, behaviors, and attributes; to examine the structure and functioning of society in general as well as the role played by relevant subgroups; to compare the United States to other societies in order to place American society in comparative perspective and develop cross-national models of human society; and to make high-quality data easily accessible to scholars, students, policy makers, and others, with minimal cost and waiting. GSS questions include such items as national spending priorities, marijuana use, crime and punishment, race relations, quality of life, and confidence in institutions. Since 1988, the GSS has also collected data on sexual behavior including number of sex partners, frequency of intercourse, extramarital relationships, and sex with prostitutes. In 1985 the GSS co-founded the International Social Survey Program (ISSP). The ISSP has conducted an annual cross-national survey each year since then and has involved 58 countries and interviewed over one million respondents. The ISSP asks an identical battery of questions in all countries; the U.S. version of these questions is incorporated into the GSS. The 2016 GSS added in new variables covering information regarding social media use, suicide, hope and optimism, arts and culture, racial/ethnic identity, flexibility of work, spouses work and occupation, home cohabitation, and health.
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Hawaii Aging with HIV Cardiovascular Study, 2009-2014 (ICPSR 36389)

Released/updated on: 2016-03-10
Geographic coverage: United States, Hawaii
Time period: 2009-01-01--2014-09-01

This collection has not been processed by NACDA or ICPSR, and data are released in the format provided by the principal investigators. Please report any data errors or problems to user support, and we will work with you to resolve any data-related issues.

Hawaii Aging with HIV Cardiovascular Study (HAHCS) enrolled HIV-infected volunteer adults age 40 and over, recruited from the state of Hawaii. A natural history longitudinal study, HAHCS followed a cohort of 150 HIV positive subjects for five years. The study is based on observations that, while HIV-infected individuals now live longer because of the availability of highly active antiretroviral therapy, these individuals may be at increased risk of cardiovascular (CV) morbidity and mortality. Rates of well-accepted traditional CV risk factors such as diabetes/hyperglycemia, body morphology changes and smoking are high in the HIV population. Furthermore, there is growing concern that HIV per se may also contribute to CV risk.

HAHCS evaluated the cross-sectional and longitudinal impact of oxidative stress and inflammation on the development of subclinical atherosclerosis. Researchers assessed subclinical atherosclerosis functionally by brachial artery flow mediated vasodilatation (FMD) and structurally by intima-media thickness (IMT) as well as coronary artery calcium score obtained by dual source CT. Data include behavioral health indicators, medical history information, and medical test results. Demographic data include age, sex, and race.

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Health and Ways of Living Study, 1965 Panel: [Alameda County, California] (ICPSR 6688)

Released/updated on: 2013-12-04
Geographic coverage: United States, California
The purpose of this survey was to explore the influence of health practices and social relationships on the physical and mental health of a typical sample of the population in Alameda County, California. The information obtained for the 6,928 respondents (including approximately 500 women aged 65 years and older) covers chronic health conditions, health behaviors, social involvements, and psychological characteristics. Questions were asked about marital and life satisfaction, parenting, physical activities, employment, and childhood experiences. Demographic variables include data on respondetns' age, race, height, weight, education, income, and religion.
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Health Consequences of Long-Term Injection Heroin Use Among Aging Mexican American Men in Houston, Texas, 2008 - 2011 [Restricted-use Files] (ICPSR 34896)

Released/updated on: 2015-01-21
Geographic coverage: United States, Texas
Time period: 2008-01-01--2011-01-01

The study is comprised of interviews from 227 Hispanic males aged 45 or older living in the area of Houston, Texas to address the gaps in knowledge on the social factors and health consequences of injection heroin use among aging Mexican American males. Specifically, the study investigated how the life course transitions of incarceration and drug treatment and drug abuse and family trajectories affect both the heroin career status and health consequences of these aging Mexican American men.

The study used a cross-sectional, field-intensive outreach methodology augmented with respondent-driven sampling. Recruitment was focused in two Houston neighborhoods that are predominantly Mexican American areas with high rates of crime, poverty, and psychosocial challenges. Trained Outreach Specialists familiar with these communities identified community gatekeepers and gained their trust through continued presence in the community and ongoing dialogue about the study. These gatekeepers then helped identify individuals meeting the inclusion criteria: Mexican American men aged 45 years or older with a history of injection drug use for at least 3 years. The men were then classified into one of three groups: current injectors (current group), former injectors not in treatment (former group), or former injectors currently enrolled in methadone maintenance treatment programs (MMTP group).

The second part is a second survey asking questions about social networks the respondent participates in. Questions ask the respondent to answer on one individual in their network and answer questions about that person and their interaction with them. Questions include basic demographics, history injecting drugs and sexual contact with the person.

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Health Information National Trends Survey (HINTS), 2003 (ICPSR 24382)

Released/updated on: 2009-03-27
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. This data collection consists of the 2003 survey which focused on the changing patterns, needs, and behavior in seeking and supplying cancer information, and explored how cancer risks are perceived. A series of questions specifically addressed colon and breast cancer and respondents' familiarity with cancer screening procedures such as mammogram, colonoscopy, and the PSA test. Information was also gathered on physical and mental health status, smoking history, how often respondents ate fruits and vegetables, and whether they had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, type of residential area (e.g., urban or rural), and whether respondents had children under the age of 18.
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Health Information National Trends Survey (HINTS), 2005 (ICPSR 24383)

Released/updated on: 2009-04-13
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2005 HINTS survey is the second in an ongoing biannual series and provided information on the changing patterns, needs, and behavior in seeking and supplying cancer information, and explored how cancer risks are perceived. A series of questions addressed colon, lung, cervical, and breast cancer, the Human Papillomavirus (HPV), and respondents' familiarity with cancer screening procedures such as mammogram, colonoscopy, and the PSA test. Specific questions were also posed about the relationship between cancer, diet, and exercise. Information was also gathered on physical and mental health status, participation in community organizations, smoking history, how often respondents ate fruits and vegetables, and whether they had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, frequency of religious attendance, number of people in the household, ownership of residence, type of residential area (e.g., urban or rural), and whether respondents were born in the United States.
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Health Information National Trends Survey (HINTS), 2007 (ICPSR 25262)

Released/updated on: 2009-06-23
Geographic coverage: United States
The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2007 HINTS survey is the third in an ongoing biannual series and provides information on the changing patterns, needs, and behavior in seeking and supplying cancer information and explores how cancer risks are perceived. Respondents were asked about the ways in which they obtained health information, their use of health care services, their views about medical information and research, and their beliefs about cancer. A series of questions specifically addressed cervical cancer, colon cancer, and the Human Papillomavirus (HPV). Information was also collected on physical and mental health status, diet, physical activity, sun exposure, history of cancer, tobacco use, and whether respondents had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, number of people living in the household, ownership of residence, and whether respondents were born in the United States.
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Iowa Youth and Families Project, 1989-1992 (ICPSR 26721)

Released/updated on: 2011-11-03
Geographic coverage: Iowa, United States
Time period: 1989-01-01--1992-01-01

This data collection contains the first four waves of the Iowa Youth and Families Project (IYFP), conducted in 1989, 1990, 1991, and 1992. The Iowa Youth and Families Project was developed from an initial sample of 451 7th graders from two-parent families in rural Iowa. The study was merged with the Iowa Single Parent Project (ISPP) to form the Iowa Family Transitions Project in 1994, when the target youth were seniors in high school. Survey data were collected from the target child (7th grader), a sibling within four years of age of the target child, and both parents. Field interviewers visited families at their homes on several occasions to administer questionnaires and videotape interaction tasks including family discussion tasks, family problem-solving tasks, sibling interaction tasks, and marital interaction tasks.

The Household Data files contain information about the family's financial situation, involvement in farming, and demographic information about household members.

The Parent and the Child Survey Data files contain responses to survey questions about the quality and stability of family relationships, emotional, physical, and behavioral problems of individual family members, parent-child conflict, family problem-solving skills, social and financial support from outside the home, traumatic life experiences, alcohol, drug, and tobacco use, and opinions on topics such as abortion, parenting, and gender roles. In addition, the Child Survey Data files include responses collected from the target child and his or her sibling in the study about experiences with puberty, dating, sexual activity, and risk-taking behavior.

The Problem-Solving Data files contain survey data collected from respondents about the family interactions tasks.

The Observational Data files contain the interviewers' observations collected during these tasks.

Demographic variables include sex, age, employment status, occupation, income, home ownership, religious preference, frequency of religious attendance, as well as the ages and sex of all household members and their relationship to the head of household. Demographic information collected on the parents also includes their birth order within their family, the ages and political philosophy of their parents, the sex, age, education level, and occupation of their siblings, and the country of origin of their ancestors.

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Johns Hopkins University Prevention Research Center - Risks for Transitions in Drug Use Among Urban Adults, Baltimore City, 2008-2011 (ICPSR 36622)

Released/updated on: 2017-10-13
Geographic coverage: Baltimore, United States, Maryland

The Johns Hopkins University Prevention Research center - Risks for Transitions, Baltimore city, 2008-2011 study (JHU PRC Risks for Transition in Drug Use among Urban Adults) represents data collected for a 25 years follow-up from the original JHU PRC study. At the start of the data collection, a cohort of 2,311 youth were randomly assigned to two classroom-based universal preventive interventions implemented in 43 classrooms of 19 public schools located in 5 socio-demographically distinct areas in Eastern Baltimore. This collection includes data from 1,434 respondents from the original cohort collected in 2008-2012. The mean age of the respondents was 30-32 years old.

Psychopathology (major depressive episode, phobia and anxiety disorders) was assessed using modules from the Composite International Diagnostic Interview-University of Michigan Version, CIDI- UM (WHO, 1997). An antisocial symptom scale adapted from the National Epidemiologic Survey of Alcohol and Related Conditions (NESARC) was administered which consisted of 30 questions that assessed behaviors experienced since turning 18 years of age. The alcohol, tobacco and drug modules of the interview were modeled after NESARC Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV. Types of information in these modules collected include age of onset, use in past year and prior past year, frequency and recency of use, and DSM-IV abuse and dependence criteria. Socioeconomic status indicators, variables on education, employment, marital status, parenthood, social supports, family history of mental health and drug problems, general health, treatment utilization, and life events are included in this dataset.

This dataset includes 3,140 variables.

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Linking Infectious and Narcology Care (LINC), Russia, 2012-2014 (ICPSR 39788)

Released/updated on: 2026-04-21
Geographic coverage: St. Petersburg, Russia
Time period: 2012-07-01--2014-05-01

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

Linking Infectious and Narcology Care (LINC) involved coordination between the narcology and HIV systems of care utilizing HIV strengths-based case management delivered via five one-on-one sessions by a peer case manager (i.e., HIV-infected men and women in recovery from addiction) to help motivate and reduce barriers to HIV care. The initial session was designed to be delivered in the narcology hospital and included provision of CD4 test results by the case manager (CM) in a timely fashion, to increase engagement in HIV medical care. Subsequent sessions were conducted upon discharge from the narcology hospital over a 6-month period in community (e.g., parks, coffee shops) or clinic locations, agreed upon by the case manager and participant.

The LINC intervention was developed via adaptation of the Antiretroviral Treatment Access Study (ARTAS) intervention for use in the Russian setting and specifically with people who inject drugs (PWID).

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Los Angeles Metropolitan Area Surveys [LAMAS] 3, 1971 (ICPSR 36611)

Released/updated on: 2017-01-31
Geographic coverage: Los Angeles, California

The Los Angeles Metropolitan Area Surveys [LAMAS] 3, 1971 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: the concept of a model neighborhood, air pollution, medical problems and health care services in the community, local government politics, police relations, crime, the Mexican-American protests, and public transportation. A sub-sample of households in the San Fernando Area were asked questions about the 1970 earthquake, rating the effectiveness of local government response and the respondents' feelings about possible future disasters.

Demographic variables included in this dataset include age, marital status, religion, sex, education, income, geographic origin, and race.

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Los Angeles Metropolitan Area Surveys [LAMAS] 8, 1974 (ICPSR 36614)

Released/updated on: 2017-09-14
Geographic coverage: Los Angeles, California

The Los Angeles Metropolitan Area Surveys [LAMAS] 8, 1974 collection reflects data gathered in 1974 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: commute times, means of transportation, and trust in government. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional topics include: mental health and psychological factors, access to medical care, alcoholism, the energy crisis, and attitudes towards black-owned businesses.

Demographic variables in this dataset include age, sex, marital status, ethnicity, education, income, occupation, political party affiliation, and language.

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Midlife in the United States (MIDUS 2): Biomarker Project, 2004-2009 (ICPSR 29282)

Released/updated on: 2025-06-18
Geographic coverage: United States
Time period: 2004-07-30--2009-05-31

The Biomarker study is Project 4 of the Midlife in the United States (MIDUS) longitudinal study, a national survey of more than 7,000 Americans (aged 25 to 74) begun in 1994. The purpose of the larger study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. With support from the National Institute on Aging (NIA), a longitudinal follow-up of the original MIDUS samples [core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)] was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). A description of the study and findings from it are available on the MIDUS website.

The Biomarker Project (Project 4) of MIDUS 2 contains data from 1,255 respondents. These respondents include two distinct subsamples, all of whom completed the Project 1 Survey: (1) longitudinal survey sample (n = 1,054) and (2) Milwaukee sample (n = 201). The Milwaukee group contained individuals who participated in the baseline MIDUS Milwaukee study, initiated in 2005. The purpose of the Biomarker Project (Project 4) was to add comprehensive biological assessments on a subsample of MIDUS respondents, thus facilitating analyses that integrate behavioral and psychosocial factors with biology. The broad aim is to identify biopsychosocial pathways that contribute to diverse health outcomes. A further theme is to investigate protective roles that behavioral and psychosocial factors have in delaying morbidity and mortality, or in fostering resilience and recovery from health challenges once they occur. The research was not disease-specific, given that psychosocial factors have relevance across multiple health endpoints.

Biomarker data collection was carried out at three General Clinical Research Centers (at UCLA, University of Wisconsin, and Georgetown University). The biomarkers reflect functioning of the hypothalamic-pituitary-adrenal axis, the autonomic nervous system, the immune system, cardiovascular system, musculoskeletal system, antioxidants, and metabolic processes. Our specimens (fasting blood draw, 12-hour urine, saliva) allow for assessment of multiple indicators within these major systems. The protocol also included assessments by clinicians or trained staff, including vital signs, morphology, functional capacities, bone densitometry, medication usage, and a physical exam. Project staff obtained indicators of heart-rate variability, beat to beat blood pressure, respiration, and salivary cortisol assessments during an experimental protocol that included both a cognitive and orthostatic challenge. Finally, to augment the self-reported data collected in Project 1, participants completed a medical history, self-administered questionnaire, and self-reported sleep assessments. For respondents at one site (UW-Madison), objective sleep assessments were also obtained with an Actiwatch(R) activity monitor.

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Midlife in the United States (MIDUS 3), 2013-2014 (ICPSR 36346)

Released/updated on: 2019-04-30
Geographic coverage: Contiguous United States
Time period: 2013-05-01--2014-11-01

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

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Midlife in the United States (MIDUS Refresher 1): Biomarker Project, 2012-2016 (ICPSR 36901)

Released/updated on: 2019-11-18
Geographic coverage: United States
Time period: 2012-10-01--2016-08-01

The MIDUS Refresher study Survey (2011-2014 ICPSR 36532) recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey (ICPSR 2760). The MIDUS Refresher survey employed the same comprehensive assessments as those assembled on the core longitudinal MIDUS sample, but with additional questions about impacts of the economic recession of 2008-09. The MIDUS Refresher Biomarker study (2012-2016) obtained data from 863 respondents (n=746 Main sample, n=117 African Americans from Milwaukee) who completed the MIDUS Refresher Survey.

The purpose of the Refresher Biomarker Project (Project 4) parallels that of the MIDUS 2 Biomarker project (ICPSR 29282), which collected comprehensive biological assessments on a subsample of MIDUS respondents, thus facilitating analyses that integrate behavioral and psychosocial factors with biological regulation/dysregulation, broadly defined. The aim was to use such data to explicate biopsychosocial pathways that contributed to diverse health outcomes. A further theme was to examine period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS sample with the post-recession MIDUS Refresher sample. A further objective of the MIDUS Refresher sample was to strengthen cross-project analyses by increasing the sample sizes available for testing hypotheses regarding the interplay of key factors (e.g., socioeconomic status, gender, psychosocial factors, biological factors) in mid- and later-life health.

Biomarker data collection was carried out at hypothalamic-pituitary-adrenal axis, the autonomic nervous system, the immune system, cardiovascular system, musculoskeletal system, antioxidants, and three General Clinical Research Centers (at UCLA, University of Wisconsin, and Georgetown University). The biomarkers reflect functioning of the metabolic processes. Our specimens (fasting blood draw, 12-hour urine, saliva) allowed for assessment of multiple indicators within these major systems. The protocol also included assessments by clinicians or trained staff, including vital signs, morphology, functional capacities including 3 dimensional gait analysis, bone densitometry, body composition, ankle brachial index, medication usage, and a physical exam. Project staff obtained indicators of heart-rate variability, beat to beat blood pressure, respiration, and salivary cortisol assessments during an experimental protocol that included both a cognitive and orthostatic challenge. Finally, to augment the self-reported data collected in Survey (Project 1), participants completed a medical history, self-administered questionnaire, and self-reported sleep assessments. For respondents at one site (UW-Madison), objective sleep assessments were also obtained with an Actiwatch(R) activity monitor.

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National Health Interview Survey, 1987: AIDS Supplement (ICPSR 9271)

Released/updated on: 1992-02-17
Geographic coverage: United States
The basic purpose of the Health Interview Survey (HIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Person variables include sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. This AIDS Supplement also features information on knowledge of and attitudes towards the disease. Variables include questions on the effects of the disease, how AIDS is spread, where to obtain information on AIDS, blood tests for AIDS, how to avoid getting the disease, and personal knowledge of anyone who had the test for AIDS or had the virus or AIDS disease.
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National Health Interview Survey, 1991: Pregnancy and Smoking Supplement (ICPSR 6138)

Released/updated on: 1994-02-18
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. This supplement includes variables from the core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1991 [ICPSR 6049]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The variables unique to this supplement, which surveyed women aged 18-49, cover two major areas: pregnancy and smoking. Each respondent was asked about whether she had had a live birth in the last five years, and the month and year of the child's birth. Questions were also asked on breast-feeding, including length of time the child was breast-fed, period when breast milk was the child's only food, and age of the child when breast-feeding stopped. With respect to smoking, respondents were asked about the number of cigarettes they had smoked during their lifetime, whether they smoked last year, whether they currently smoked, and whether they smoked daily. In addition, respondents were queried about whether they had ever quit smoking for one day or more, whether they had quit smoking during the last 12 months, the number of times they had quit smoking during the last 12 months, and why they had stopped smoking.
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National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 2, 1997 (ICPSR 3526)

Released/updated on: 2007-03-01
Geographic coverage: United States
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (ICPSR 2563), serves as the baseline for this study. LSOA II Wave 2 interviews were conducted with a total of 7,998 respondents who were interviewed at baseline and consists of 7,060 survivor interviews and 998 decedent interviews. LSOA II Wave 2 is comprised of two data files, the Survivor Data (Part 1) and the Decedent Data (Part 2). The Survivor Data contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including NATIONAL HEALTH INTERVIEW SURVEY, 1994 (ICPSR 6724) core questionnaire, NATIONAL HEALTH INTERVIEW SURVEY, 1994: FAMILY RESOURCES INCOME AND ASSETS SUPPLEMENT (ICPSR 2656), and NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, DISABILITY OUTCOME SUPPLEMENT (ICPSR 2539). Wave 2 questions examined migration, convalescent home utilization, persistent symptomatic conditions such as pain in legs, swelling in feet, etc., nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins and aspirin, and detailed questions on home health care utilization. In addition a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent Data (Part 2) information was gathered from a family member or close relative regarding sample persons (N = 938) who were deceased at the time of Wave 2 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, and health care use and health insurance.
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National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 3, 2000 (ICPSR 3807)

Released/updated on: 2008-02-05
Geographic coverage: United States
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (SOA II) (ICPSR 2563) serves as the baseline for this study. LSOA II, Wave 3 consists of 7,936 survivor interviews and 906 decedent interviews in two data files: the Survivor File (Part 1) and the Decedent File (Part 2). The Survivor File contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including the 1994 National Health Interview Survey (ICPSR 6724) core questionnaire, the 1994 National Health Interview Survey: Family Resources Supplement (ICPSR 2656), Phase I of the 1994 National Health Interview Survey on Disability (ICPSR 2539), and the SOA II baseline interview (ICPSR 2563). Wave 3 questions (beginning at variable SF3664) examined migration, convalescent home utilization, nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins, aspirin, calcium supplements, and antioxidants, and detailed questions on home health care utilization. In addition, a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent File (Part 2), information was gathered from a family member or close relative regarding sample persons (N = 906) who were deceased at the time of Wave 3 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, health care use, and health insurance.
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National Health Interview Survey, 1999 (ICPSR 3397)

Released/updated on: 2006-03-30
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 1999 NHIS contains the household, family, person, sample adult, sample child, and immunization data files from the basic module. Included in the 1999 NHIS are periodic questions that provide additional detail on topics such as Adult Conditions (ACN), Adult Access and Utilization (AAU), Child Conditions, Limitation of Activity and Health Status (CHS), and Child Access and Utilization (CAU). Each record in the Household-Level File (Part 1) of the basic module contains data on the type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. The Family-Level File (Part 2) is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, the Person-Level File (Part 3) provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for the Sample Adult File (Part 4) regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. The Sample Child File (Part 5) provides information from a knowledgeable adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment such as hearing aids, braces, or wheelchairs. Also included are questions regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD). The Child Immunization File (Part 6) presents information from shot records and supplies vaccination status, along with the number and dates of shots, and information about the chicken pox vaccine. Episode-based information is found in the Injury Episode File (Part 7), while information in the Injury Verbatim File (Part 8) is comprised of narrative text describing injuries, including type of injury, how the injury occurred, and the body part injured. The Poison Episode File (Part 9) examines the cause and date of injury or poisoning, loss of time from work or school, and whether the poisoning resulted in hospitalization.
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National Health Interview Survey, 2000 (ICPSR 3381)

Released/updated on: 2006-03-30
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (See NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). This final release of the 2000 NHIS contains the Household, Family, Person, Sample Adult, Sample Child, and Immunization, and Injury and Poison data files from the basic module. The 2000 NHIS also contains the Cancer Control Module (included in the Sample Adult File, Part 4), which corresponds to the Cancer Supplements of 1987 and 1992 and examines such items as diet and nutrition, use of herbal supplements, Hispanic acculturation, genetic testing, and family history. Each record in the Household-Level File (Part 1) of the basic module contains data on the type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each eligible sampling unit. The Family-Level File (Part 2) is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, the Person-Level File (Part 3) provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for the Sample Adult File (Part 4) regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. The Sample Child File (Part 5) provides information from a knowledgeable adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment such as hearing aids, braces, or wheelchairs. Also included are questions regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD). The Child Immunization File (Part 6) presents information from shot records and supplies vaccination status, along with the number and dates of shots, and information about the chicken pox vaccine. The Injury and Poison Data File (Part 7) contains episode-level data for injuries and poisonings and the Injury and Poison Verbatim File (Part 8) contains verbatim comments for both injuries and poisonings.
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National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)

Released/updated on: 2026-03-03
Geographic coverage: United States
Time period: 1994-01-01--2025-01-01

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

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National Wellbeing Survey, United States, 2021 (ICPSR 38879)

Released/updated on: 2025-10-09
Geographic coverage: United States
The National Wellbeing Survey (NWS) is a population-based survey on the wellbeing of adults aged 18 to 64 in the United States. Specific survey domains include psychological well-being, social relationships and support, physical health, mental health, health behaviors, COVID-19 experiences and impacts, socioeconomic measures, political orientation, and demographic measures.
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National Wellbeing Survey, United States, 2022 (ICPSR 38964)

Released/updated on: 2025-10-21
Geographic coverage: United States
The National Wellbeing Survey (NWS) is an annual population-based cross-sectional survey of adults aged 18 to 64 in the United States first collected in 2021. Survey topics include psychosocial wellbeing, social relationships and support, participation in social activities, physical health, mental health, health behaviors, health care use, employment quality and experiences, COVID-19 experiences, socioeconomic measures, political orientation, and demographic measures.
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National Wellbeing Survey, United States, 2024 (ICPSR 39493)

Released/updated on: 2026-01-06
Geographic coverage: United States
The National Wellbeing Survey (NWS) is an annual population-based cross-sectional survey of adults aged 18 to 64 in the United States first collected in 2021. Survey topics include psychosocial wellbeing, social relationships and support, participation in social activities, physical health, mental health, health behaviors, health care use, COVID-19, incarceration history, employment quality and experiences, socioeconomic measures, political orientation, and demographic measures.
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New Family Structures Study (ICPSR 34392)

Released/updated on: 2012-11-28
Geographic coverage: United States
Time period: 2011-08-01--2012-02-01
The New Family Structure Study (NFSS) is a comparative, social-science data-collection project, which focused on American young adults (ages 18-39) who were raised in different types of family arrangements with varying household experiences. The sample included respondents that had lived in biologically-intact households, lived with cohabiting parents, adoptive, step, or single parents, with parents who had same-sex relationships, or with parents who remarried after divorce. Respondents were asked about a range of topics, including social behaviors: such as educational attainment and performance, work history, risk-taking, and religiosity; health behaviors: such as substance abuse, sexually transmitted infections, and emotional states (depression, anger, and stress), and relationships: including the quality and stability of romantic relationships, marital history, fertility, sexual orientation, and family connectedness. Additional questions asked whether respondents voted in the 2008 presidential election, how much time they spent on various activities; watching TV, gaming, and on social networking sites, and how many Facebook "friends" they had. Demographic information includes age, education level, race, gender, income, marital status, employment status, and household size.
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Project STRIDE: Stress, Identity, and Mental Health, New York City, 2004-2005 (ICPSR 35525)

Released/updated on: 2018-11-28
Geographic coverage: New York City
Time period: 2004-01-01--2005-01-01

Project STRIDE is a three-year research project that examines the effect of stress and minority identity related to sexual orientation, race/ethnicity and gender on mental health. The research describes social stressors that affect minority populations, explores the coping and social support resources that they utilize as they confront these social stressors, and assesses the associations of stress and coping with mental health outcomes including mental disorders and wellbeing. The study also explores the impact of various identity characteristics, such as whether an identity is viewed positively or negatively, or whether it is prominent or not to the relationship of stress and mental health outcomes.

The study, using extensive quantitative and some qualitative measures, is a longitudinal survey of 525 men and women between the ages 18 and 59 who are residents of New York City. Socio-demographic information collected about respondents included age, education, race and Hispanic ethnicity, adopting the measures developed and used by the United States Census Bureau in the United States population survey of 2000. In addition to these items, racial/ethnic identity was also assessed with the question "What is the country of origin related to your or your family's ethnic or national background, if any?" Respondents were allowed to select up to two nations from a comprehensive listing. For the purposes of the study, the instrument also assessed whether or not participants were natives of New York City or migrated as adults. Additional demographic variables include employment status, religion, relationship status, and sexual orientation.

Curated
Simple Crosstabs

Recidivism in the National Longitudinal Survey of Youth 1997 - Standalone Data (Rounds 1 to 13) (ICPSR 34562)

Released/updated on: 2014-02-06
Geographic coverage: United States
Time period: 1997-01-01--2009-01-01

The NLSY97 standalone data files are intended to be used by crime researchers for analyses without requiring supplementation from the main NLSY97 data set. The data contain age-based calendar year variables on arrests and incarcerations, self-reported criminal activity, substance use, demographic variables and relevant variables from other domains which are created using the NLSY97 data. The main NLSY97 data are available for public use and can be accessed online at the NLS Investigator Web site and at the NACJD Web site (as ICPSR 3959). Questionnaires, user guides and other documentation are available at the same links. The National Longitudinal Survey of Youth 1997 (NLSY97) was designed by the United States Department of Labor, comprising the National Longitudinal Survey (NLS) Series. Created to be representative of United States residents in 1997 who were born between the years of 1980 and 1984, the NLSY97 documents the transition from school to work experienced by today's youths through data collection from 1997. The majority of the oldest cohort members (age 16 as of December 31, 1996) were still in school during the first survey round and the youngest respondents (age 12) had not yet entered the labor market.

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Partially restricted
Simple Crosstabs

Research on Pathways to Desistance [Maricopa County, AZ and Philadelphia County, PA]: Collateral Measures - Scales, 2000-2010 (ICPSR 36867)

Released/updated on: 2017-12-06
Geographic coverage: United States, Phoenix, Arizona, Philadelphia, Pennsylvania
Time period: 2000-01-01--2003-01-01, 2001-01-01--2006-01-01

The Pathways to Desistance study was a multi-site study that followed 1,354 serious juvenile offenders from adolescence to young adulthood in two locales between the years 2000 and 2010. Enrolled into the study were adjudicated youths from the juvenile and adult court systems in Maricopa County (Phoenix), Arizona (N=654) and Philadelphia County, Pennsylvania (N=700).

This study looks at interviews conducted with the collateral informants who participated in the study. The collateral informants were nominated by the main study participant and represented individuals who "knew the study participant well". At the interview baseline the collateral informant was usually a biological parent. During the three follow-up interviews the majority of collaterals were a friend. Collateral informants could also be a sibling, significant other, or relative. Collaterals were asked questions in regards to the main study participant's life, allowing for comparison between responses provided by two sources. A baseline interview was conducted with the collateral after the baseline interview took place with the main participant. Additional waves of follow-up with collaterals took place at 12, 24, and 36 months. A collateral report is not present for all of the main study participant interviews across waves (see response rate below).

The current Collateral Measures study primarily consists of the calculated scores from constructs asked about during the interview, but the individual scale items were withheld at that time. These additional datasets contain those individual items plus the calculated scores. These variables are typically consistent across the waves that the scale was asked about during the course of the entire project. Most of the files contain variables from all four waves of data collection. The table in the front of the User Guide will list which waves are present in each data file.

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Partially restricted

Research on Pathways to Desistance [Maricopa County, AZ and Philadelphia County, PA]: Release Measures - Scales, 2000-2010 [Restricted] (ICPSR 36868)

Released/updated on: 2017-12-11
Geographic coverage: United States, Phoenix, Arizona, Philadelphia, Pennsylvania
Time period: 2000-01-01--2010-01-01

The Pathways to Desistance study was a multi-site study that followed 1,354 serious juvenile offenders from adolescence to young adulthood in two locales between the years 2000 and 2010. Enrolled into the study were adjudicated youths from the juvenile and adult court systems in Maricopa County (Phoenix), Arizona (N=654) and Philadelphia County, Pennsylvania (N=700).

The Release data portion of the Pathways study contains information from 1,130 interviews ("release interviews") reflecting the youths' perceptions regarding various aspects of the residential experience and institutional environment (e.g., accounts of program operations and services provided, ratings regarding the participant's feelings of his or her safety in the facility). The release interview was conducted within 30 days prior to or after release from a facility and in a separate session apart from the time point interview. This was done to minimize the burden on the research participant and to ensure adequate attention to institutional ratings. The restricted time period within which to conduct the release interview reduced the likelihood that intervening events and experiences would skew the participant's recall of the stay.

Study participants could contribute more than one release interview, depending upon the number of institutional placements he/she had over the seven-year follow-up period. The current release data reflects ratings from 686 unique individuals. It should be recognized that not every institutional stay for every youth produced a release interview. On the basis of the number of reported institutional stays in the sample, it is estimated that a release interview was obtained for approximately 54 percent of the total number of residential stays experienced by study participants. Release interviews were missed if the research interviewer was not aware of the institutional stay (e.g. it occurred between time point interviews) or if the interviewer only became aware of the institutional stay at a point that was too late to schedule a release interview within the required window surrounding the release date.

The 686 individuals reflected in the release data represent 51 percent of the Pathway study participants (n=1,354) and 56 percent of Pathways participants who had a least one institutional stay (n=1,234; 120 Pathways youths had no institutional stays). On average, these 686 youths had 1.6 interviews. The number of interviews per unique person ranges from one to eight.

The current Release Measures study primarily consists of the calculated scores from constructs asked about during the interviews, but the individual scale items were withheld at that time. This study contains those individual items plus the calculated scores.

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Partially restricted
Simple Crosstabs

Research on Pathways to Desistance [Maricopa County, AZ and Philadelphia County, PA]: Subject Measures - Scales, 2000-2010 (ICPSR 36800)

Released/updated on: 2017-12-14
Geographic coverage: United States, Phoenix, Arizona, Philadelphia, Pennsylvania
Time period: 2000-01-01--2010-01-01

The Pathways to Desistance study was a multi-site study that followed 1,354 serious juvenile offenders from adolescence to young adulthood in two locales between the years 2000 and 2010. Enrolled into the study were adjudicated youths from the juvenile and adult court systems in Maricopa County (Phoenix), Arizona (N=654) and Philadelphia County, Pennsylvania (N=700).

Respondents were enrolled and baseline interviews conducted from November 2000 to January 2003. Follow-up interviews were then scheduled with the respondents at 6, 12, 18, 24, 30, 36, 48, 60, 72 and 84 months past their baseline interview.

The enrolled youth were at least 14 years old and under 18 years old at the time of their committing offense and were found guilty of a serious offense (predominantly felonies, with a few exceptions for some misdemeanor property offenses, sexual assault, or weapons offenses).

Each wave of data collection covered six domains: (1) background characteristics (e.g., demographics, academic achievement, psychiatric diagnoses, offense history, neurological functioning, psychopathy, personality), (2) indicators of individual functioning (e.g., work and school status and performance, substance abuse, mental disorder, antisocial behavior), (3) psychosocial development and attitudes (e.g., impulse control, susceptibility to peer influence, perceptions of opportunity, perceptions of procedural justice, moral disengagement), (4) family context (e.g., household composition, quality of family relationships), (5) personal relationships (e.g., quality of romantic relationships and friendships, peer delinquency, contacts with caring adults), and (6) community context (e.g., neighborhood conditions, personal capital, and community involvement). Information about the measures used to capture this information can be found on the Pathways to Desistance website.

The current Subject Measures study primarily consists of the calculated scores from constructs asked about during the interview, but the individual scale items were withheld at that time. These variables are typically consistent across the waves that the scale was asked about during the course of the entire study. Most of the files contain variables from all 11 waves of data collection. The table in the front of the User Guide will list which waves are present in each data file.

Curated

Survey and Assessment of Vietnamese Youth (SAVY), 2003 (ICPSR 24387)

Released/updated on: 2009-01-13
Geographic coverage: Vietnam (Socialist Republic)
Time period: 2003-10-01--2004-01-01
The Survey and Assessment of Vietnamese Youth (SAVY) is the first national survey on adolescents and youth to evaluate health status and other important development issues of the group of married and unmarried young people aged 14-25 from ethnic, rural, and urban areas of 42 provinces across Vietnam. The study provides detailed analysis and disaggregation of data for comparison purposes of specific groups including young men and women, rural and urban youth, married and unmarried young people, and young people of differing education levels. The survey was designed to assess education, employment, health and reproductive behavior and other development issues of adolescent and young people including HIV/AIDS, substance use, injuries, and violence. SAVY also explored young people's perceptions and attitudes as well as their future expectations.