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Addiction Health Evaluation and Disease (AHEAD) Management Study in Boston, Massachusetts, 2006-2010 (ICPSR 33581)

Released/updated on: 2017-03-31
Geographic coverage: United States, Massachusetts, Boston
Time period: 2006-09-01--2010-01-01

Substance dependence (SD) is a chronic disease that requires specialty drug and alcohol treatment, primary care (PC), and management of related problems. Although patients with SD may be linked with specialty care and PC, their health care often remains episodic and fragmented, rather than longitudinal, comprehensive, integrated, and coordinated. As a result, adults with SD often enter addiction treatment later and require acute medical care, rather than entering the system earlier when interventions of lower intensity but longer duration might prevent catastrophes. Chronic disease management (CDM) is a collaborative, longitudinal approach to treatment of certain chronic medical illnesses proven to be more effective than routine care. CDM addresses individual patient and health systems barriers to receipt of needed treatment. However, the effectiveness of CDM for SD has not been tested. The objective of this Addiction Health Evaluation and Disease management (AHEAD) study, was to test the effectiveness of CDM for SD in PC.

Subject identification and recruitment occurred primarily at a local detoxification center, as well as by self and physician referral from the Boston Medical Center primary and ambulatory care clinics, emergency department, urgent care center, inpatient settings, and the community. The study enrolled 320 adults with drug dependence and 320 adults with alcohol dependence who were not in SD treatment, and randomized them to a SD CDM program (the AHEAD Clinic) integrated into a real-world PC clinic or to referral to standard PC. All subjects were assessed regarding SD diagnosis, substance use and problems, readiness to change, health-related quality of life, and medical and drug treatment utilization. Subjects were evaluated 3, 6, and 12 months later, and health services utilization data were collected for 2 years from a statewide database. Additionally, in order to better understand and explain the implementation and fidelity of the AHEAD Clinic, the primary care providers (PCPs) of AHEAD Clinic patients were surveyed. Each PCP was presented with a letter from the Principal Investigator explaining the purpose of the survey, the reason why s/he was being asked to complete the survey, compensation for completing the survey, and details about confidentiality and anonymity. The survey itself consisted of questions asking providers about their satisfaction and their attitudes towards caring for patients with alcohol and drug problems, their knowledge of services that the AHEAD Clinic provides, and their experience working with the AHEAD Clinic.

Primary outcomes were illicit drug use, alcohol use, substance-related problems, emergency department visits, and hospitalizations. The proposal's hypothesis was that compared with standard care, a health services delivery intervention (CDM for SD integrated in PC) would decrease alcohol and illicit drug use and related problems, and improve health care utilization patterns. Improved outcomes using the AHEAD approach would support the adoption of a health services delivery strategy, CDM, to better care for patients with SD.

  • Dataset 1: 844 variables; 563 cases
  • Dataset 2: 607 variables; 500 cases
  • Dataset 3: 607 variables; 487 cases
  • Dataset 4: 713 variables; 532 cases
  • Dataset 5: 80 variables; 549 cases
  • Dataset 6: 59 variables; 1,435 cases
  • Dataset 7: 25 variables; 87 cases
  • Dataset 8: 25 variables; 87 cases
  • Dataset 9: 41 variables; 73 cases
  • Dataset 10: 9 variables; 11,018 cases
  • Dataset 11: 5 variables; 511 cases
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Arrestee Drug Abuse Monitoring (ADAM) Program in the United States, 2003 (ICPSR 4020)

Released/updated on: 2006-03-30
Geographic coverage: North Carolina, Oklahoma City, Charlotte, Indiana, Tucson, Albuquerque, Spokane, Utah, San Jose, New York City, San Diego, Arizona, Las Vegas, Boston, Sacramento, Seattle, California, Florida, Pennsylvania, Tulsa, Iowa, Illinois, Texas, Portland (Oregon), Georgia, Tampa, Indianapolis, Oregon, United States, Oklahoma, Rio Arriba, Alabama, Cleveland, Washington, Nebraska, Albany (New York), Omaha, Minneapolis, Woodbury, Atlanta, Massachusetts, Colorado, Honolulu, New Orleans, Alaska, Phoenix, Denver, Salt Lake City, Dallas, Nevada, Des Moines, District of Columbia, San Antonio, Chicago, Hawaii, Minnesota, New York (state), Birmingham, Miami, New Mexico, Louisiana, Anchorage, Ohio, Los Angeles, Philadelphia, Houston
Time period: 2003-01-01--2003-12-31
The goal of the Arrestee Drug Abuse Monitoring (ADAM) Program is to determine the extent and correlates of illicit drug use in the population of booked arrestees in local areas. Data were collected in 2003 up to four separate times (quarterly) during the year in 39 metropolitan areas in the United States. The ADAM program adopted a new instrument in 2000 in adult booking facilities for male (Part 1) and female (Part 2) arrestees. The ADAM program in 2003 also continued the use of probability-based sampling for male arrestees in adult facilities, which was initiated in 2000. Therefore, the male adult sample includes weights, generated through post-sampling stratification of the data. For the adult male and female files, variables fell into one of eight categories: (1) demographic data on each arrestee, (2) ADAM facesheet (records-based) data, (3) data on disposition of the case, including accession to a verbal consent script, (4) calendar of admissions to substance abuse and mental health treatment programs, (5) data on alcohol and drug use, abuse, and dependence, (6) drug acquisition data covering the five most commonly used illicit drugs, (7) urine test results, and (8) for males, weights.
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Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)

Released/updated on: 2013-08-05
Geographic coverage: Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, Kansas, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland
The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodologic assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies.
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Census of Juveniles in Residential Placement and Juvenile Residential Facility Census, 1997-2010 -- Concatenated Matched Data [United States] (ICPSR 27543)

Released/updated on: 2013-03-08
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
This collection includes data from the CENSUS OF JUVENILES IN RESIDENTIAL PLACEMENT (CJRP), 1997-2010 -- CONCATENATED DATA [UNITED STATES] (ICPSR 27541) and the JUVENILE RESIDENTIAL FACILITY CENSUS (JRFC), 2000-2010 -- CONCATENATED DATA [UNITED STATES] (ICPSR 27542) that were matched on the facility identifier to create one data file. The CJRP asked juvenile residential custody facilities in the United States to describe each youth assigned a bed in the facility on a specified reference date. For 1997, the reference date was the fifth Wednesday in October. For 1999-2003 and 2007, the reference date was the fourth Wednesday in October. For 2006 and 2010, the reference date was the fourth Wednesday in February. Characteristics of the facility, treatment services, and facility population were also collected in the CJRP. The JRFC collected information on facility characteristics, including size, structure, security arrangements, ownership, and use of bed space in the facility. The JRFC used four modules to collect information on the physical health services, educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. These four modules were not always collected each year. The JRFC also identified the type of facility, which was complemented with a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. The JRFC has been administered biennially since 2000, in even-numbered years. The JRFC census reference date is the fourth Wednesday in October. Each record in the concatenated matched data file provides information about the juvenile and also includes the characteristics of the facility in which the juvenile was held from both the CJRP and JRFC collections. Therefore, these data can be analyzed at the juvenile or facility level. Only facilities that held at least one juvenile for an offense on the CJRP census reference date are included in this file, i.e., all facilities in the biennial JRFC data may not be included in this concatenated matched file. Data were harmonized so that variables present across years are identically named to facilitate analysis.
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Census of Juveniles in Residential Placement and Juvenile Residential Facility Census, 1997-2010 -- Concatenated Matched Facility-Level Data [United States] (ICPSR 27544)

Released/updated on: 2013-03-08
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
This collection includes data from the CENSUS OF JUVENILES IN RESIDENTIAL PLACEMENT (CJRP) AND JUVENILE RESIDENTIAL FACILITY CENSUS (JRFC), 1997-2010 -- CONCATENATED MATCHED DATA [UNITED STATES] (ICPSR 27543) that were aggregated to the facility level. The CJRP asked juvenile residential custody facilities in the United States to describe each youth assigned a bed in the facility on a specified reference date. For 1997, the reference date was the fifth Wednesday in October. For 1999-2003 and 2007, the reference date was the fourth Wednesday in October. For 2006 and 2010, the reference date was the fourth Wednesday in February. Characteristics of the facility, treatment services, and facility population were also collected in the CJRP. The JRFC collected information on facility characteristics, including size, structure, security arrangements, ownership, and use of bed space in the facility. The JRFC used four modules to collect information on the physical health services, educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. These four modules were not always collected each year. The JRFC also identified the type of facility, which was complemented with a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. The JRFC has been administered biennially since 2000, in even-numbered years. The JRFC census reference date is the fourth Wednesday in October. Records in the concatenated matched data file (ICPSR 27543) were aggregated to the facility level. Therefore, the CJRP/JRFC concatenated matched facility-level data provide information about the characteristics of the facility from both the CJRP and JRFC collections and the juvenile population held in that facility from the CJRP collection. Only facilities that held at least one juvenile for an offense on the CJRP census reference date are included in this file, i.e., all facilities in the biennial JRFC data may not be included in this concatenated matched facility-level file. Data were harmonized so that variables present across years are identically named to facilitate analysis.
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Census of Juveniles in Residential Placement and Juvenile Residential Facility Census, 1997-2010 -- Concatenated Matched State-Level Data [United States] (ICPSR 27545)

Released/updated on: 2013-03-08
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
This collection includes data from the CENSUS OF JUVENILES IN RESIDENTIAL PLACEMENT (CJRP) AND JUVENILE RESIDENTIAL FACILITY CENSUS (JRFC), 1997-2010 -- CONCATENATED MATCHED DATA [UNITED STATES] (ICPSR 27543) that were aggregated to the state level. The CJRP asked juvenile residential custody facilities in the United States to describe each youth assigned a bed in the facility on a specified reference date. For 1997, the reference date was the fifth Wednesday in October. For 1999-2003 and 2007, the reference date was the fourth Wednesday in October. For 2006 and 2010, the reference date was the fourth Wednesday in February. Characteristics of the facility, treatment services, and facility population were also collected in the CJRP. The JRFC collected information on facility characteristics, including size, structure, security arrangements, ownership, and use of bed space in the facility. The JRFC used four modules to collect information on the physical health services, educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. These four modules were not always collected each year. The JRFC also identified the type of facility, which was complemented with a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. The JRFC has been administered biennially since 2000, in even-numbered years. The JRFC census reference date is the fourth Wednesday in October. Records in the concatenated matched data file (ICPSR 27543) were aggregated to the state level. Therefore, the CJRP/JRFC concatenated matched state-level data provide information about the characteristics of juvenile residential facilities in the state from both the CJRP and JRFC collections and the juvenile population held in these facilities from the CJRP collection. Only facilities that held at least one juvenile for an offense on the CJRP census reference date were included in the concatenated matched file, i.e., all facilities in the biennial JRFC data may not have been included in the file used for the aggregation. Variables providing United States Census population data and upper age of juvenile court jurisdiction were also added. Data were harmonized so that variables present across years are identically named to facilitate analysis.
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Community Health Center: Core Data Project, 2001-2002 [United States] (ICPSR 21520)

Released/updated on: 2023-12-13
Geographic coverage: Vermont, Rhode Island, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2002-01-01
A survey was administered to any patient that presented for services at a health center between 2001 and 2002. Patients were asked to complete a brief survey with questions relating to demographic, relationship status, reason for choosing this health center, mental health status, and abuse history.
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The Community Vulnerability and Responses to Drug-User-Related HIV/AIDS, 1990-2013 [96 Metropolitan Statistical Areas, United States] (ICPSR 36575)

Released/updated on: 2017-08-08
Geographic coverage: North Carolina, Milwaukee, Indiana, Ocean (New Jersey), Fort Worth, Cincinnati, Austin, Monmouth (New Jersey), Utah, San Jose, Rock Hill, Gastonia, San Diego, Columbus (Ohio), Syracuse, Springfield (Massachusetts), North Little Rock (Arkansas), Arizona, Las Vegas, Arlington, Springfield (Ohio), Boston, San Bernardino, Providence, Seattle, Kentucky, St. Petersburg, Bethlehem, Niagara Falls (New York), Nashville, California, Florida, Delaware, Hunterdon (New Jersey), Boca Raton (Florida), Troy, Knoxville, Mississippi, Fresno, New Haven, Sarasota, Illinois, Newark, Georgia, Little Rock, Virginia, Maryland, Norfolk, Virginia Beach, Suffolk County (New York), United States, Oklahoma, Grand Rapids, Louisville, Waukesha (Wisconsin), Arkansas, Washington, South Carolina, Albany (New York), Wichita, Mesa (Arizona), Carlisle (Pennsylvania), Fall River, Massachusetts, Missouri, Winston-Salem, Holland (Michigan), New Orleans, Scranton, Denver, Salt Lake City, Harrisburg, Dallas, St. Louis, Nevada, Schenectady, Allentown, Raleigh, San Antonio, Muskegon, St. Paul, Clearwater, Hawaii, Rochester (New York), Passaic, Ventura (California), Birmingham, Michigan, Lebanon, Baltimore, New Mexico, Orlando, Louisiana, Toledo, Middlesex (New Jersey), Philadelphia, Riverside, Oklahoma City, Akron, Greensboro, Detroit, Charlotte, High Point, Tucson, Albuquerque, Everett, Oakland, Bakersfield, New York City, Somerset (New Jersey), Petersburg, Memphis, Ogden, Jacksonville, Buffalo, Pittsburgh, Nassau (New York), Orange County (California), Sacramento, El Paso, Greenville, Kansas, Meriden, Pennsylvania, Tulsa, Chapel Hill (North Carolina), West Palm Beach, Iowa, Texas, Lorain, Portland (Oregon), Hazleton, Tampa, Durham, San Marcos (Texas), Indianapolis, Richmond, Oregon, Warwick, Bergen (New Jersey), Newport News, Ann Arbor, Alabama, Cleveland, Dayton, Nebraska, Omaha, Warren, West Virginia, Elyria, Tacoma, Minneapolis, Youngstown, Atlanta, Honolulu, Phoenix, Bradenton, Wilmington (Delaware), Gary, District of Columbia, Rhode Island, Vancouver (Washington), Lodi (California), Chicago, Fort Lauderdale, Wilkes-Barre, Minnesota, Kansas City (Missouri), Bellevue, New York (state), Anderson, New Jersey, Miami, San Francisco, Charleston (South Carolina), Jersey City, Long Beach, Spartanburg (South Carolina), New Hampshire, Easton, Ohio, Los Angeles, Hartford, Stockton, Houston
Time period: 1990-01-01--2013-01-01

The Community Vulnerability and Responses to Drug-User-Related HIV/AIDS, 1990-2013 [96 Metropolitan Statistical Areas, United States] study (CVAR) was a research study of why large United States Metropolitan Statistical Areas (MSAs) vary over time in their vulnerability to HIV/AIDS among drug users and in MSA responses to HIV/AIDS. This collection contains estimates of HIV prevalence among people who injected drugs (PWID) and among sub-populations of PWID. This collection is comprised of ten datasets with differing amounts of variables and provides trend data that describe the following:

  • Epidemiologic outcomes including population prevalence of PWIDs and Non-injecting drug users (NIDUs), and particularly their prevalence among youth; and, among PWIDs, HIV prevalence, late-diagnosis HIV cases, and AIDS incidence and mortality.
  • Implementation of evidence-based drug-related interventions including drug abuse treatment, syringe exchange, HIV counseling and testing.
  • Implementation of non-evidence-based drug-related interventions including incarceration and arrests of drug users.

The collection contains data on the MSA sub-populations including Black, Hispanic, White and "other" race categories. In addition, some statistics are presented in age range categories such as ages 15-29, 30-64 and 15-64.

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EMBED: A Pragmatic Trial of User Centered Clinical Decision Support for EMergency Department Initiated BuprenorphinE for Opioid Use Disorder, 5 U.S. states, 2019-2021 (ICPSR 38568)

Released/updated on: 2022-11-03
Geographic coverage: North Carolina, United States, Massachusetts, Colorado, Connecticut, Alabama
Time period: 2019-10-15--2021-05-31
Buprenorphine (BUP) is a highly efficacious drug for treatment of addiction for Opioid Use Disorder (OUD) patients. Although it is safe and effective to initiate this treatment in the emergency departments (ED) where a lot of OUD patients seek care, due to challenges related to lack of knowledge, etc. this practice has not been widely adopted. The goal of this trial was to test the efficacy of a user centered clinical decision support (CDS) tool (EMBED) that was developed to facilitate ED clinicians to administer/prescribe BUP for OUD patients presenting to the ED. This was an 18-month long, pragmatic, parallel, group randomized trial implemented across 18 ED clusters (21 sites) in 5 healthcare systems randomly allocated in 1:1 ratio to intervention versus usual care arm. For the intervention, CDS was to support diagnosis and withdrawal assessment and automate electronic health record (EHR) documentation. The primary outcome was the initiation of BUP in ED at patient level.
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Juvenile Residential Facility Census, 2000-2010 -- Concatenated Data [United States] (ICPSR 27542)

Released/updated on: 2013-03-08
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
The Juvenile Residential Facility Census (JRFC) collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bedspace in the facility to indicate whether the facility was experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. JRFC used four modules to collect information on the physical health services, educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. These four modules were not always collected each year. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. The JRFC has been administered biennially since 2000, in even-numbered years. The census reference date is the fourth Wednesday in October.
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Juvenile Residential Facility Census, 2000-2010 -- Concatenated State-Level Data [United States] (ICPSR 27546)

Released/updated on: 2013-03-08
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
This collection includes data from the JUVENILE RESIDENTIAL FACILITY CENSUS (JRFC), 2000-2010 -- CONCATENATED DATA [UNITED STATES] (ICPSR 27542) that were aggregated to the state level. The JRFC collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bed space in the facility to indicate whether the facility is experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. JRFC used four modules to collect information on the physical health services, educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. These four modules were not always collected each year. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. The JRFC has been administered biennially since 2000, in even-numbered years. The census reference date is the fourth Wednesday in October. Records in the JRFC concatenated data file (ICPSR 27542) were aggregated to the state level and variables providing United States Census population data and upper age of juvenile court jurisdiction were added. Data were harmonized so that variables present across years are identically named to facilitate analysis.
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Juvenile Residential Facility Census, 2000 [United States] (ICPSR 4672)

Released/updated on: 2016-08-10
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
The Juvenile Residential Facility Census (JRFC) collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bedspace in the facility to indicate whether the facility was experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. In 2000, the JRFC used four modules to collect information on the physical health services, educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; JRFC collected information on such deaths for the one-year period just prior to the census reference date. The census reference date was the fourth Wednesday in October.
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Juvenile Residential Facility Census, 2002 [United States] (ICPSR 23520)

Released/updated on: 2016-08-10
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2002-10-31--2003-04-15
The Juvenile Residential Facility Census (JRFC) collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bedspace in the facility to indicate whether the facility was experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. In 2002, the JRFC used two modules to collect information on the substance abuse treatment and mental health treatment provided to youth in these facilities. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; JRFC collected information on such deaths for the one-year period just prior to the census reference date. The census reference date was the fourth Wednesday in October.
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Juvenile Residential Facility Census, 2004 [United States] (ICPSR 25282)

Released/updated on: 2016-08-10
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2005-02-06--2005-06-29
The Juvenile Residential Facility Census (JRFC) collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bedspace in the facility to indicate whether the facility was experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. In 2004, the JRFC used two modules to collect information on the physical health and educational services provided to youth in these facilities. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; JRFC collected information on such deaths for the one-year period just prior to the census reference date. The census reference date was the fourth Wednesday in October.
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Juvenile Residential Facility Census, 2006 [United States] (ICPSR 25981)

Released/updated on: 2016-08-11
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2007-03-02--2007-11-30
The Juvenile Residential Facility Census (JRFC) collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bedspace in the facility to indicate whether the facility was experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. In 2006, the JRFC used four modules to collect information on the physical health services, educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; JRFC collected information on such deaths for the one-year period just prior to the census reference date. The census reference date was the fourth Wednesday in October.
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Juvenile Residential Facility Census, 2008 [United States] (ICPSR 34402)

Released/updated on: 2016-08-11
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2008-10-26--2009-06-24
The Juvenile Residential Facility Census (JRFC) collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bedspace in the facility to indicate whether the facility was experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; JRFC collected information on such deaths for the one-year period just prior to the census reference date. The census reference date was the fourth Wednesday in October.
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Juvenile Residential Facility Census, 2010 [United States] (ICPSR 34449)

Released/updated on: 2016-08-11
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Virgin Islands of the United States, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2011-01-21--2011-05-12
The Juvenile Residential Facility Census (JRFC) collected basic information on facility characteristics, including size, structure, security arrangements, and ownership. It also collected information on the use of bedspace in the facility to indicate whether the facility was experiencing crowding. The JRFC included questions about the type of facility, such as detention center, training school, ranch, or group home. This information was complemented by a series of questions about other residential services provided by the facility, such as independent living, foster care, or other arrangements. In 2010, the JRFC used three modules to collect information on the educational services, substance abuse treatment, and mental health treatment provided to youth in these facilities. While not evaluating the effectiveness or quality of these services, the JRFC gathered important information about the youth the services were directed toward and how the services were provided. The census indicated the use of screenings or tests conducted to determine counseling, education, health, or substance abuse needs, and also examined prominent issues about conditions of confinement, including the restraint of youth and improper absences from the facility. Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; JRFC collected information on such deaths for the one-year period just prior to the census reference date. The census reference date was the fourth Wednesday in October.
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Naltrexone for Extended-Release Injectable Suspension (XR-NTX) for Opioid Dependent Released HIV-Positive Criminal Justice Populations (Project NEW HOPE), Connecticut and Massachusetts, 2011-2015 (ICPSR 39790)

Released/updated on: 2026-04-21
Geographic coverage: United States, Massachusetts, Connecticut
Time period: 2011-09-01--2015-08-01

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

The specific aim for this study was to conduct a placebo-controlled, RCT of VIVITROL or (extended-release naltrexone) (XR-NTX 380mg) among HIV+ persons in jails and prisons meeting DSM-IV criteria for opioid dependence who are transitioning to the community. HIV treatment outcomes (HIV-1 RNA levels, CD4 count, HAART adherence, retention in care), substance abuse (time to relapse to opioid use, % opioid negative urines, opioid craving), adverse side effects and HIV risk behavior (sexual and drug-related risks) outcomes were compared in 150 recruited prisoners and jail detainees in CT and MA who were randomized 2:1 to either XR-NTX 380mg or XR-NTX-placebo. The primary outcome of interest was the proportion with a HIV-RNA less than 400 copies/mL at 6 months. Secondary outcomes included mean CD4 count, antiretroviral adherence, retention on HAART and in HIV care, HIV risk behaviors, time-to-relapse to opioid use, percent opioid negative urines, retention on XR-NTX 380mg and HIV quality of life. Primary and secondary outcomes were assessed for an additional 6 months after completion of the intervention.

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NICHD Study of Early Child Care and Youth Development: Phase I, 1991-1994 [United States] (ICPSR 21940)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 1991-01-01--1994-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

309 data files were compiled for this study and are organized into 3 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables, along with site differences, were examined. A set of variables that were psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-42 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Datasets. These data files comprise Parts 43-55 of the study data material.

  3. Raw Data Sets -- The raw data were made available and comprise Parts 56-309 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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NICHD Study of Early Child Care and Youth Development: Phase II, 1995-1999 [United States] (ICPSR 21941)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 1995-01-01--1999-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

193 data files were compiled for this study and are organized into 3 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-24 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 25-27 of the study data material.

  3. Raw Data Sets -- The raw data were made available and comprise Parts 28-193 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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NICHD Study of Early Child Care and Youth Development: Phase III, 2000-2004 [United States] (ICPSR 21942)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 2000-01-01--2004-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

504 data files were compiled for this study and are organized into 4 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-49 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 50-55 of the study data material.

  3. Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 56-58 of the study data material.

  4. Raw Data Sets -- The raw data were made available and comprise Parts 59-505 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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NICHD Study of Early Child Care and Youth Development: Phase IV, 2005-2007 [United States] (ICPSR 22361)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 2005-01-01--2007-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

158 data files were compiled for this study and are organized into 4 main groups:

  1. Analytical Data Sets (ADS)-- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-19 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as supplements to the original Analytical Data Sets. These data files are Parts 20-26 of the study data material.

  3. Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group-level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 27-30 of the study data material.

  4. Raw Data Sets -- The raw data were made available and comprise Parts 31-158 of the study data material.

Included in this phase of the study are the output of several third-party software programs that were used during Phases II, III and IV to collect data for specific tasks or activities. These programs produced one output data file per subject, which were combined to produce some of the raw data files for those studies. The original program output is included as expanded documentation in this phase of the study.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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Outcome Evaluation of the Residential Substance Abuse Treatment (RSAT) Program for State Prisoners in Massachusetts, 1999-2002 (ICPSR 3794)

Released/updated on: 2003-10-01
Geographic coverage: United States, Massachusetts
Time period: 1999-01-01--2002-03-01
This study was an outcome evaluation of the Residential Substance Abuse Treatment (RSAT) program at the Barnstable House of Corrections in Massachusetts. The study is based on the 188 inmates referred to the RSAT program at Barnstable between January 1, 1999, and June 6, 2001. Data on participants' criminal histories were gathered from the Criminal History Systems Board through March 2002. Data on offender age, entry, and discharge dates were supplied by the Barnstable County House of Corrections. Data from offender scores on psychological inventories and offender outcomes in the RSAT program were supplied by AdCare Criminal Justice Services.
Curated

Retention Challenges for HIV-Infected Primary Care Patients 2001-2004 [United States] (ICPSR 22220)

Released/updated on: 2010-08-30
Geographic coverage: Vermont, Rhode Island, United States, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2004-01-01
This project examined HIV-infected patients who were lost to follow-up during calendar years 2001-2004 in order to identify reasons patients were leaving care. Sustaining and retaining HIV-infected patients in care has been a consistent challenge to primary care health systems. Continuity, enhancing wellness, and patient engagement are long-term goals in primary care. Factors that influence clients to disengage from care frequently result in patterns of episodic utilization that may compromise the patient's health status and increase their psychosocial vulnerability. The standard of care suggests that HIV-infected patients return for medical follow-up primary care visits four times a year. Since 2001, there have been over 495 patients that have been determined inactive. The project administered telephone and mail surveys to HIV-infected patients that no longer receive care at Fenway Health Center. The survey includes demographic questions, insurance questions, potential reasons for stopping care, and whether the participant is receiving care at another facility. Subsequently, the project connected interviewees into the Health System Navigation (HSN) Project to assist them with seeking HIV medical care. This was accomplished by including prescreener questions in the survey. If a patient is determined to be eligible, they will be invited to participate in the HSN Project.
Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)

Released/updated on: 2025-08-05
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2001-03-01--2003-02-15
The Study of Women's Health Across the Nation (SWAN), is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2001 and 2003, 2,617 of the 3,302 women that joined SWAN were seen for their fifth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis, and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)

Released/updated on: 2025-06-30
Geographic coverage: Inkster, Hackensack, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2002-03-15--2004-02-15
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2002 and 2004, 2,448 of the 3,302 women that joined SWAN were seen for their sixth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2004-2006: Visit 08 Dataset (ICPSR 32122)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2004-03-15--2006-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2004 and 2006, 2,278 of the 3,302 women that joined SWAN were seen for their eighth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the eighth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2005-2007: Visit 09 Dataset (ICPSR 32721)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2005-02-15--2007-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2005 and 2007, 2,255 of the 3,302 women that joined SWAN were seen for their ninth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the ninth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)

Released/updated on: 2018-11-15
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2006-02-15--2008-01-31
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2006 and 2008, 2,245 of the 3,302 women that joined SWAN were seen for their tenth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan), Boston, MA (Massachusetts General Hospital), Chicago, IL (Rush Presbyterian-St. Luke's Medical Center), Almaeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente), Los Angeles, CA (University of California, Los Angeles), Hackensack, NJ (Hackensack University Medical Center) and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the tenth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Baseline Dataset, [United States], 1996-1997 (ICPSR 28762)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1996-01-01--1997-11-30

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1996 and 1997, 3,302 participants joined SWAN through 7 designated research centers. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. This is the next phase of data collection after the original collection of the screening data (ICPSR 4368).

Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Cross-Sectional Screener Dataset, [United States], 1995-1997 (ICPSR 4368)

Released/updated on: 2019-03-11
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1995-01-01--1997-01-01

This collection includes screener data collected as part of the Study of Women's Health Across the Nation (SWAN), which is a multi-site longitudinal, epidemiologic study which began in 1994 and was designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. This data includes questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).

The SWAN study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The screener dataset contains information from 16,142 women who responded to the SWAN cross-sectional screening interview during the period from 11/1/1995 through 12/1/1997 from the 7 clinical sites participating in the SWAN longitudinal study. The sites include Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)

Released/updated on: 2019-05-29
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1999-02-01--2001-01-31

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 04 Dataset, [United States], 2000-2002 (ICPSR 30142)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 2000-03-01--2002-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 2000 and 2002, 2,679 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.