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Addiction Health Evaluation and Disease (AHEAD) Management Study in Boston, Massachusetts, 2006-2010 (ICPSR 33581)

Released/updated on: 2017-03-31
Geographic coverage: United States, Massachusetts, Boston
Time period: 2006-09-01--2010-01-31

Substance dependence (SD) is a chronic disease that requires specialty drug and alcohol treatment, primary care (PC), and management of related problems. Although patients with SD may be linked with specialty care and PC, their health care often remains episodic and fragmented, rather than longitudinal, comprehensive, integrated, and coordinated. As a result, adults with SD often enter addiction treatment later and require acute medical care, rather than entering the system earlier when interventions of lower intensity but longer duration might prevent catastrophes. Chronic disease management (CDM) is a collaborative, longitudinal approach to treatment of certain chronic medical illnesses proven to be more effective than routine care. CDM addresses individual patient and health systems barriers to receipt of needed treatment. However, the effectiveness of CDM for SD has not been tested. The objective of this Addiction Health Evaluation and Disease management (AHEAD) study, was to test the effectiveness of CDM for SD in PC.

Subject identification and recruitment occurred primarily at a local detoxification center, as well as by self and physician referral from the Boston Medical Center primary and ambulatory care clinics, emergency department, urgent care center, inpatient settings, and the community. The study enrolled 320 adults with drug dependence and 320 adults with alcohol dependence who were not in SD treatment, and randomized them to a SD CDM program (the AHEAD Clinic) integrated into a real-world PC clinic or to referral to standard PC. All subjects were assessed regarding SD diagnosis, substance use and problems, readiness to change, health-related quality of life, and medical and drug treatment utilization. Subjects were evaluated 3, 6, and 12 months later, and health services utilization data were collected for 2 years from a statewide database. Additionally, in order to better understand and explain the implementation and fidelity of the AHEAD Clinic, the primary care providers (PCPs) of AHEAD Clinic patients were surveyed. Each PCP was presented with a letter from the Principal Investigator explaining the purpose of the survey, the reason why s/he was being asked to complete the survey, compensation for completing the survey, and details about confidentiality and anonymity. The survey itself consisted of questions asking providers about their satisfaction and their attitudes towards caring for patients with alcohol and drug problems, their knowledge of services that the AHEAD Clinic provides, and their experience working with the AHEAD Clinic.

Primary outcomes were illicit drug use, alcohol use, substance-related problems, emergency department visits, and hospitalizations. The proposal's hypothesis was that compared with standard care, a health services delivery intervention (CDM for SD integrated in PC) would decrease alcohol and illicit drug use and related problems, and improve health care utilization patterns. Improved outcomes using the AHEAD approach would support the adoption of a health services delivery strategy, CDM, to better care for patients with SD.

  • Dataset 1: 844 variables; 563 cases
  • Dataset 2: 607 variables; 500 cases
  • Dataset 3: 607 variables; 487 cases
  • Dataset 4: 713 variables; 532 cases
  • Dataset 5: 80 variables; 549 cases
  • Dataset 6: 59 variables; 1,435 cases
  • Dataset 7: 25 variables; 87 cases
  • Dataset 8: 25 variables; 87 cases
  • Dataset 9: 41 variables; 73 cases
  • Dataset 10: 9 variables; 11,018 cases
  • Dataset 11: 5 variables; 511 cases
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Adoption of Innovations in Private Alcohol and Drug Treatment Centers in the United States [Restricted-Use], 2009-2013 (ICPSR 37621)

Released/updated on: 2020-08-12
Geographic coverage: United States
Time period: 2009-01-01--2013-12-31

Adoption of Innovations in Private Alcohol and Drug Treatment Centers is a multi-wave longitudinal study conducted between 2009 and 2013. The study goal was to measure the adoption and implementation of evidence-based treatment practices in treatment centers that received more than 50 percent of their total operational funding from sources that were not guaranteed from year to year. This definition is based on the concept of entrepreneurship, namely the necessity for the treatment organization to respond to changing conditions in the external political and economic environment in order to obtain half or more of its funding. The innovations considered are of three types usually specific to organizations treating substance use disorders:

  • medication-assisted treatments
  • psychosocial treatments
  • managerial practices

This data set consists of one of the multiple "waves" of data collection. The data was collected at four points in time. The baseline data, collected from June 2009 through October 2011 from 327 treatment centers, were obtained through face-to-face onsite interviews ranging from 1 to 4 hours in duration. These interviews were conducted with administrators of the respective treatment centers. In 70 of the 327 treatment centers, an administrator of the overall center and the administrator of clinical operations separately completed administrative and clinical interviews. In the remaining 257 centers, all of the administrative and clinical data were collected from the administrator of the overall center since there was no specialized administrator of clinical operations. The baseline data available here merge the data collected through these two different procedures so that the variables measured are identical for all centers regardless of the procedure.

The collected data include detailed information on Medication Assisted Treatment (MAT) and other treatment strategies used by the center to treat opioid use disorder (OUD) and alcohol use disorder (AUD). In cases where medications were not used by a center questions were asked for reasons why available medications were not used in treatment. Other sections of the interviews covered data on the organizations, their management, and other clinical practices implemented for OUD, AUD, and substance use disorder (SUD).

Three follow-up interviews were conducted via telephone at six month intervals following the previous interview. These follow-up interviews were much shorter compared to the baseline interview. The interviews centered on key changes in the center's operation and on the adoption of key innovations. But a focus of the follow-up interviews still focused on medications provided for treatment.

Curated

Alcohol and Drug Services Study (ADSS), 1996-1999: [United States] (ICPSR 3088)

Released/updated on: 2009-04-01
Geographic coverage: United States
Time period: 1996-01-01--1999-12-31
The Alcohol and Drug Services Study (ADSS) was a national study of substance abuse treatment facilities and clients. The study was designed to develop estimates of the duration and costs of treatment and to describe the post-treatment status of substance abuse clients. ADSS continues and extends upon data collected in the Drug Services Research Survey, 1990: [United States] (ICPSR 3393) and the Services Research Outcome Study, 1995-1996: [United States] (ICPSR 2691) with a more complete sampling frame, an enhanced sampling design, and more detailed measures of treatment services provided, the costs of treatment, and clients in treatment. ADSS was implemented in three phases. In Phase I, a nationally representative sample of treatment facilities was surveyed to assess characteristics of treatment services and clients including treatment type, costs, program capacity, the number of clients served, waiting lists, and services provided to special populations. In Phase II, records were abstracted from a sample of clients in a subsample of Phase I facilities. This phase included four sub-components: (1) the Main Study, an analysis of abstracted records to assess the treatment process and characteristics of discharged clients, (2) the Incentive Study, which assessed the impact of varying financial payments on follow-up interview participation among non-methadone outpatient clients, (3) the In-Treatment Methadone Client study (ITMC), which assessed the treatment process of methadone maintenance, and (4) the comparison study of Early Dropout clients (EDO), which provided a proxy comparison group of records from substance abusers that went untreated. Phase III involved follow-up personal interviews with Phase II clients who could be located. This interview sought to determine post-treatment status in terms of substance use, economic condition, criminal justice involvement, and further substance abuse treatment episodes. Urine testing was conducted to validate self-reported drug use. Drugs included in the survey were alcohol, marijuana, cocaine, crack cocaine, heroin, barbiturates, benzodiazepines, amphetamines, non-prescribed use of prescription medications, abuse of over-the-counter medications, and other drugs. ADSS also included a cost study, which involved obtaining additional financial information from the Phase II facilities. A computerized desktop audit was used in the cost study to conduct consistency and accuracy checks on selected questionnaire data from Phases I and II. Variables were subsequently updated to represent the most accurate data available. Additional analysis variables were then created using combinations of the revised Phase I and II data.
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Alternative Sentencing Policies for Drug Offenders: Evaluating the Effectiveness of Kansas Senate Bill 123, 2001-2010 (ICPSR 30982)

Released/updated on: 2014-01-31
Geographic coverage: United States, Kansas
Time period: 2001-11-01--2010-08-31

The study examined the first five years of operation of Kansas senate bill 123 (November 2003-November 2008) examining individual-level and system-level outcomes over time and across community corrections districts and judicial actors. The study also assesses the impact of SB 123 on the work routines of criminal justice system actors, examining changes in sentencing and supervision practices and interactions across agencies following the implementation of SB 123.

Individual-level impacts of SB 123 on recidivism rates are assessed using sentencing and revocation data collected by the Kansas Sentencing Commission for drug possessors sentenced in Kansas between November 1, 2001 and October 31, 2008 (Dataset 1). Propensity score matching was used to compare the revocation and reconviction rates of drug possessors sentenced to SB 123 with the recidivism rates of similar individuals sentenced to regular probation (standard supervision by community corrections or court services) (Dataset 2). Supervision and program participation data provided by the Kansas Department of Corrections were used to assess the use of drug treatment services, education and employment services, and sanctions for individuals sentenced to SB 123 or standard community corrections (Dataset 3). These quantitative data were complemented by a set qualitative data derived from interviews with SB 123-eligible offenders (Dataset 4), community corrections managers, and courtroom actors (judges, prosecutors, public defenders) (Dataset 5).

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Partially restricted
Simple Crosstabs

Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-12-31

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

Curated
Simple Crosstabs

Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)

Released/updated on: 2013-08-05
Geographic coverage: Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, Kansas, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland
Time period: 2003-01-01--2003-12-31
The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodologic assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies.
Curated
Simple Crosstabs

Behavioral Risk Factor Surveillance System (BRFSS), United States, 2017 (ICPSR 37989)

Released/updated on: 2023-07-10
Geographic coverage: District of Columbia, Puerto Rico, United States, Guam
Time period: 2017-01-01--2017-12-31

The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors, chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year.

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Center for Education and Drug Abuse Research (CEDAR): Etiological and Prospective Family Study in Southwestern Pennsylvania, Baseline and Follow-Up Data, 1990-2014 (ICPSR 33444)

Released/updated on: 2021-06-30
Geographic coverage: United States, Pennsylvania
Time period: 1990-01-01--2014-12-31
The Center for Education and Drug Abuse Research (CEDAR) conducted research on 775 families enrolled in the Center's prospective investigations into the etiology of substance use disorder (SUD). The pro-bands are men with lifetime presence/absence of SUD consequent to use of an illicit drug who have a 10-12 year old biological son or daughter. The biological children of SUD men are assigned to the high average risk (HAR) group whereas offspring of men without SUD, having neither axis 1 disorder ("normal") nor SUD psychiatric disorder, are assigned to the low average risk (LAR) group. A second control group (Psych control) was also collected, in whom the fathers had a lifetime DSM-III-R diagnosis of any psychiatric disorder not related to substance use. The sample sizes are as follows: HAR = 344, LAR = 350, and Psych = 81. The children had follow-up evaluations conducted at ages 12-14, 16, 19, and annually thereafter until age 30. CEDAR has already shown that they can predict in 10-12 year old youth cannabis use disorder by age 22 with approximately 70 percent accuracy, thereby substantiating the paradigm, subject recruitment strategy, and measurement protocols. Multidisciplinary research was conducted on family members (father, mother, children) with the objective of elucidating the genetic, bio-behavioral, and environmental factors on development of SUD consequent to use of illegal drugs. Research protocols are organized into three thematically connected research modules (Neurogenetics, Developmental Psychopathology, and Translation) linking etiology and prevention. The research components thus align with the NIH Roadmap model such that basic science informs clinical research leading to prevention guided by an understanding of etiology. In addition to module-level research, faculty also participate in three organizational aims: (1) Devise a practical scale to quantify the transmissible liability to SUD; (2) Empirically test a bio-psychological theory of SUD etiology focusing on off-time maturation leading to psychological dysregulation predisposing to SUD; and, (3) Delineate SUD liability variants within an ontogenetic framework.
Curated

Consequences of Recent Parental Divorce for Young Adults, 1990-1992 (ICPSR 24400)

Released/updated on: 2010-03-12
Geographic coverage: United States, Maryland
Time period: 1990-01-01--1992-12-31
This longitudinal study focused on examining the consequences of recent parental divorce for young adults (initially ages 18-23) whose parents had divorced within 15 months of the study's first wave (1990-91). The sample consisted of 257 White respondents with newly divorced parents and 228 White respondents who comprised an intact-family comparison group. A life course framework guided the study that focused heavily on young adult transition behaviors (entries and exits from home, work, school, cohabitation and marriage relationships, parenthood), family relationships (relationships with mother and father, siblings, grandparents), and well-being and adjustment (depression, coping). For respondents in the divorced-parents group, additional questions were asked about specific aspects of the divorce and their involvement in it. A follow-up telephone interview conducted two years later assessed life changes and subsequent adjustment over time for both groups of respondents. Specific questions addressed the sexual history of respondents and their most recent sexual partner, including the perceived risk of HIV/AIDS, history of sexual transmitted disease, the use of contraception, how much information they had shared with each other regarding their sexual attitudes and behaviors, and respondent's knowledge of the AIDS virus. Information was also collected on marital/cohabitation history, employment history, reproductive history, including the number and outcome of all pregnancies, physical and mental health, and tobacco, alcohol and drug use. Demographic variables include respondent's sex, age, occupation, employment status, marital/cohabitation status, number of children, current enrollment in school, past and present religious preferences, frequency of religious attendance, military service, and the number, sex, and age of siblings. Demographic information also includes the age, education level, employment status, and annual income of the respondent's parents, as well as the age, race, and education level of the respondent's most recent sexual partner. For those respondents whose parents were recently divorced, demographic information was collected on each parent's current marital status and the age of their new spouse or partner.
Curated

Current Population Survey, February 2002: Tobacco Use Supplement (TUS), 2001-2002 Wave (ICPSR 4031)

Released/updated on: 2012-10-26
Geographic coverage: United States
Time period: 2002-02-01--2002-02-28

This data collection is comprised of responses from two sets of survey questionnaires, the basic Current Population Survey (CPS) and a survey administered as a supplement to the February 2002 questionnaire on the topic of tobacco use in the United States. The Tobacco Use Supplement (TUS), sponsored by the National Cancer Institute and the Centers for Disease Control and Prevention, was also administered in June 2001 (ICPSR 4043) and November 2001 (ICPSR 4044). These three supplements comprise the 2001-2002 waves of TUS data.

The basic CPS, administered monthly, collects labor force data about the civilian noninstitutional population living in the United States. Moreover, the CPS provides current estimates of the economic status and activities of this population which includes estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage and salaried employees, and estimates of total unemployment. Data from the CPS are provided for the week prior to the administration of the survey.

All household members age 15 years and older who had completed the basic CPS monthly items were eligible for the TUS, which consisted of items PES32 through PES77. The TUS was mainly designed to be a proxy response survey, meaning a single respondent could provide answers for all eligible household members. Unique to the TUS design were also a set of self-respondent questions. Self-respondents were eligible for the entire supplement, whereas proxy respondents were only eligible for questions on the topics of smoking status (items PES32-PES34) and the use of other tobacco products; for example, pipes, cigars, chewing tobacco, and snuff (items PES62A-PES63B).

Additionally, self-respondents were asked various questions depending on their smoking status -- former, everyday, or occasional (items PES36-PES46 and PES55-PES61). Current everyday and occasional smokers were then asked whether the medical community had advised them to quit smoking or if they were planning to quit in the near future (items PES47-PES54). Self-respondents were further queried on smoking policies in their work place (items PES67-PES71), smoking rules in the home (item PES73) and questions on opinions about smoking (items PES72, PES75-PES77).

Administrative information was collected on who the proxy respondents were, the language in which the interview was conducted, and the survey method (telephone vs. personal-visit interviews; Computer Assisted Telephone Interviewing (CATI) vs. Computer Assisted Personal Interviewing (CAPI)). Demographic information collected includes age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, family relationship, occupation, and income.

Curated

Current Population Survey, February 2003: Tobacco Use Supplement (TUS), 2003 Wave (ICPSR 4526)

Released/updated on: 2012-10-26
Geographic coverage: United States
Time period: 2003-02-01--2003-02-28

This data collection is comprised of responses from two sets of survey questionnaires, the basic Current Population Survey (CPS) and a survey administered as a supplement to the February 2003 questionnaire on the topic of tobacco use in the United States. The Tobacco Use Supplement (TUS), sponsored by the National Cancer Institute and the Centers for Disease Control and Prevention, was also administered in June 2003 (ICPSR 4527) and November 2003 (ICPSR 4528). These three supplements comprise the 2003 wave of TUS data.

The basic CPS, administered monthly, collects labor force data about the civilian noninstitutional population living in the United States. Moreover, the CPS provides current estimates of the economic status and activities of this population which includes estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage and salaried employees, and estimates of total unemployment. Data from the CPS are provided for the week prior to the administration of the survey.

The TUS, like most CPS supplements, was designed to be a proxy response supplement, meaning a single respondent could provide answers for all eligible household members, provided the respondent was a household member 15 years of age or older. Unique to the TUS design were also a set of self-respondent supplement questions. All household members age 15 years and older who had completed the basic CPS core items were eligible for the February 2003 supplement items.

The TUS consisted of items PEA1 through PEK5. Self-respondents were eligible for the entire supplement, whereas proxy respondents were only eligible for certain items. Information was collected from proxies on topics such as smoking status (items PEA1-PEA3) and the use of other tobacco-related products, such as pipes, cigars, chewing tobacco, and snuff (items PEJ1a -PEJ2a).

In addition to these smoking status and other tobacco use questions, self-respondents were queried on the following topics depending on their smoking/tobacco use status (i.e., every day, some days, or former cigarette smokers and/or users of other non-cigarette tobacco products):

  • Smoking history

  • Current cigarette smoking prevalence and consumption

  • Type of cigarettes smoked

  • Price of last pack/carton of cigarettes purchased and state where purchased

  • Medical and dental advice to quit smoking

  • Attempts and intentions to quit smoking cigarettes and/or other forms of tobacco use

  • Workplace smoking policies and smoking rules in the home

  • Attitudes toward smoking in public places

Another generally unique feature to the 2003 TUS-CPS was the administration of questions to former smokers on their previous level of addiction, products/resources/methods used to quit smoking, and advice from health professionals. This feature enables comparisons between characteristics of former smokers (or successful quitters) and current smokers attempting to quit.

Administrative information was collected on who the proxy respondents were, the language in which the interview was conducted, and the survey method (telephone vs. personal-visit interviews; Computer Assisted Telephone Interviewing (CATI) vs. Computer Assisted Personal Interviewing (CAPI)). Demographic information collected include age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, family relationship, occupation, and income.

Curated

Current Population Survey, June 2001: Tobacco Use Supplement (TUS), 2001-2002 Wave (ICPSR 4043)

Released/updated on: 2012-10-26
Geographic coverage: United States
Time period: 2001-06-01--2001-06-30

This data collection is comprised of responses from two sets of survey questionnaires, the basic Current Population Survey (CPS) and a survey administered as a supplement to the June 2001 questionnaire on the topic of tobacco use in the United States. The Tobacco Use Supplement (TUS), sponsored by the National Cancer Institute and the Centers for Disease Control and Prevention, was also administered in November 2001 (ICPSR 4044) and February 2002 (ICPSR 4031). These three supplements comprise the 2001-2002 waves of TUS data.

The basic CPS, administered monthly, collects labor force data about the civilian noninstitutional population living in the United States. Moreover, the CPS provides current estimates of the economic status and activities of this population which includes estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage and salaried employees, and estimates of total unemployment. Data from the CPS are provided for the week prior to the administration of the survey.

All household members age 15 years and older who had completed the basic CPS monthly items were eligible for the TUS, which consisted of items PES32 through PES77. The TUS was mainly designed to be a proxy response survey, meaning a single respondent could provide answers for all eligible household members. Unique to the TUS design were also a set of self-respondent questions. Self-respondents were eligible for the entire supplement, whereas proxy respondents were only eligible for questions on the topics of smoking status (items PES32-PES34) and the use of other tobacco products; for example, pipes, cigars, chewing tobacco, and snuff (items PES62A-PES63B).

Additionally, self-respondents were asked various questions depending on their smoking status -- former, everyday, or occasional (items PES36-PES46 and PES55-PES61). Current everyday and occasional smokers were then asked whether the medical community had advised them to quit smoking or if they were planning to quit in the near future (items PES47-PES54). Self-respondents were further queried on smoking policies in their work place (items PES67-PES71), smoking rules in the home (item PES73) and questions on opinions about smoking (items PES72, PES75-PES77).

Administrative information was collected on who the proxy respondents were, the language in which the interview was conducted, and the survey method (telephone vs. personal-visit interviews; Computer Assisted Telephone Interviewing (CATI) vs. Computer Assisted Personal Interviewing (CAPI)). Demographic information collected includes age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, family relationship, occupation, and income.

Curated

Current Population Survey, June 2003: Tobacco Use Supplement (TUS), 2003 Wave (ICPSR 4527)

Released/updated on: 2012-10-26
Geographic coverage: United States
Time period: 2003-06-01--2003-06-30

This data collection is comprised of responses from two sets of survey questionnaires, the basic Current Population Survey (CPS) and a survey administered as a supplement to the June 2003 questionnaire on the topic of tobacco use in the United States. The Tobacco Use Supplement (TUS), sponsored by the National Cancer Institute and the Centers for Disease Control and Prevention, was also administered in February 2003 (ICPSR 4526) and November 2003 (ICPSR 4528). These three supplements comprise the 2003 wave of TUS data.

The basic CPS, administered monthly, collects labor force data about the civilian noninstitutional population living in the United States. Moreover, the CPS provides current estimates of the economic status and activities of this population which includes estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage and salaried employees, and estimates of total unemployment. Data from the CPS are provided for the week prior to the administration of the survey.

The TUS, like most CPS supplements, was designed to be a proxy response supplement, meaning a single respondent could provide answers for all eligible household members, provided the respondent was a household member 15 years of age or older. Unique to the TUS design were also a set of self-respondent supplement questions. All household members age 15 years and older who had completed the basic CPS core items were eligible for the June 2003 supplement items.

The TUS consisted of items PEA1 through PEK5. Self-respondents were eligible for the entire supplement, whereas proxy respondents were only eligible for certain items. Information was collected from proxies on topics such as smoking status (items PEA1-PEA3) and the use of other tobacco-related products, such as pipes, cigars, chewing tobacco, and snuff (items PEJ1a -PEJ2a).

In addition to these smoking status and other tobacco use questions, self-respondents were queried on the following topics depending on their smoking/tobacco use status (i.e., every day, some days, or former cigarette smokers and/or users of other non-cigarette tobacco products):

  • Smoking history

  • Current cigarette smoking prevalence and consumption

  • Type of cigarettes smoked

  • Price of last pack/carton of cigarettes purchased and state where purchased

  • Medical and dental advice to quit smoking

  • Attempts and intentions to quit smoking cigarettes and/or other forms of tobacco use

  • Workplace smoking policies and smoking rules in the home

  • Attitudes toward smoking in public places

Another generally unique feature to the 2003 TUS-CPS was the administration of questions to former smokers on their previous level of addiction, products/resources/methods used to quit smoking, and advice from health professionals. This feature enables comparisons between characteristics of former smokers (or successful quitters) and current smokers attempting to quit.

Administrative information was collected on who the proxy respondents were, the language in which the interview was conducted, and the survey method (telephone vs. personal-visit interviews; Computer Assisted Telephone Interviewing (CATI) vs. Computer Assisted Personal Interviewing (CAPI)). Demographic information collected include age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, family relationship, occupation, and income.

Curated

Current Population Survey, November 2001: Tobacco Use Supplement (TUS), 2001-2002 Wave (ICPSR 4044)

Released/updated on: 2012-10-26
Geographic coverage: United States
Time period: 2001-11-01--2001-11-30

This data collection is comprised of responses from two sets of survey questionnaires, the basic Current Population Survey (CPS) and a survey administered as a supplement to the November 2001 questionnaire on the topic of tobacco use in the United States. The Tobacco Use Supplement (TUS), sponsored by the National Cancer Institute and the Centers for Disease Control and Prevention, was also administered in June 2001 (ICPSR 4043) and February 2002 (ICPSR 4031). These three supplements comprise the 2001-2002 waves of TUS data.

The basic CPS, administered monthly, collects labor force data about the civilian noninstitutional population living in the United States. Moreover, the CPS provides current estimates of the economic status and activities of this population which includes estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage and salaried employees, and estimates of total unemployment. Data from the CPS are provided for the week prior to the administration of the survey.

All household members age 15 years and older who had completed the basic CPS monthly items were eligible for the TUS, which consisted of items PES32 through PES77. The TUS was mainly designed to be a proxy response survey, meaning a single respondent could provide answers for all eligible household members. Unique to the TUS design were also a set of self-respondent questions. Self-respondents were eligible for the entire supplement, whereas proxy respondents were only eligible for questions on the topics of smoking status (items PES32-PES34) and the use of other tobacco products; for example, pipes, cigars, chewing tobacco, and snuff (items PES62A-PES63B).

Additionally, self-respondents were asked various questions depending on their smoking status -- former, everyday, or occasional (items PES36-PES46 and PES55-PES61). Current everyday and occasional smokers were then asked whether the medical community had advised them to quit smoking or if they were planning to quit in the near future (items PES47-PES54). Self-respondents were further queried on smoking policies in their work place (items PES67-PES71), smoking rules in the home (item PES73) and questions on opinions about smoking (items PES72, PES75-PES77).

Administrative information was collected on who the proxy respondents were, the language in which the interview was conducted, and the survey method (telephone vs. personal-visit interviews; Computer Assisted Telephone Interviewing (CATI) vs. Computer Assisted Personal Interviewing (CAPI)). Demographic information collected includes age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, family relationship, occupation, and income.

Curated

Current Population Survey, November 2003: Tobacco Use Supplement (TUS), 2003 Wave (ICPSR 4528)

Released/updated on: 2012-10-26
Geographic coverage: United States
Time period: 2003-11-01--2003-11-30

This data collection is comprised of responses from two sets of survey questionnaires, the basic Current Population Survey (CPS) and a survey administered as a supplement to the November 2003 questionnaire on the topic of tobacco use in the United States. The Tobacco Use Supplement (TUS), sponsored by the National Cancer Institute and the Centers for Disease Control and Prevention, was also administered in February 2003 (ICPSR 4526) and June 2003 (ICPSR 4527). These three supplements comprise the 2003 wave of TUS data.

The basic CPS, administered monthly, collects labor force data about the civilian noninstitutional population living in the United States. Moreover, the CPS provides current estimates of the economic status and activities of this population which includes estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage and salaried employees, and estimates of total unemployment. Data from the CPS are provided for the week prior to the administration of the survey.

The TUS, like most CPS supplements, was designed to be a proxy response supplement, meaning a single respondent could provide answers for all eligible household members, provided the respondent was a household member 15 years of age or older. Unique to the TUS design were also a set of self-respondent supplement questions. All household members age 15 years and older who had completed the basic CPS core items were eligible for the November 2003 supplement items.

The TUS consisted of items PEA1 through PEK5. Self-respondents were eligible for the entire supplement, whereas proxy respondents were only eligible for certain items. Information was collected from proxies on topics such as smoking status (items PEA1-PEA3) and the use of other tobacco-related products, such as pipes, cigars, chewing tobacco, and snuff (items PEJ1a-PEJ2a).

In addition to these smoking status and other tobacco use questions, self-respondents were queried on the following topics depending on their smoking/tobacco use status (i.e., every day, some days, or former cigarette smokers and/or users of other non-cigarette tobacco products):

  • Smoking history

  • Current cigarette smoking prevalence and consumption

  • Type of cigarettes smoked

  • Price of last pack/carton of cigarettes purchased and state where purchased

  • Medical and dental advice to quit smoking

  • Attempts and intentions to quit smoking cigarettes and/or other forms of tobacco use

  • Workplace smoking policies and smoking rules in the home

  • Attitudes toward smoking in public places

Another generally unique feature to the 2003 TUS-CPS was the administration of questions to former smokers on their previous level of addiction, products/resources/methods used to quit smoking, and advice from health professionals. This feature enables comparisons between characteristics of former smokers (or successful quitters) and current smokers attempting to quit.

Administrative information was collected on who the proxy respondents were, the language in which the interview was conducted, and the survey method (telephone vs. personal-visit interviews; Computer Assisted Telephone Interviewing (CATI) vs. Computer Assisted Personal Interviewing (CAPI)). Demographic information collected include age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, family relationship, occupation, and income.

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Denver Youth Survey Waves 1-5, (1988-1992) [Denver, Colorado] (ICPSR 36473)

Released/updated on: 2017-01-04
Geographic coverage: United States, Colorado, Denver
Time period: 1988-01-01--1992-12-31

The Denver Youth Survey (DYS) is part of the larger "Program of Research on the Causes and Correlates of Delinquency" initiated by the Office of Juvenile Justice and Delinquency Prevention in 1986. The DYS is a longitudinal study of problem and successful behavior over the life course that focuses on delinquency, drug use, victimization, and mental health. The DYS is based on a probability sample of households in "high-risk" neighborhoods of Denver, Colorado. These neighborhoods were selected on the basis of their social ecology in terms of population and housing characteristics. Only socially disorganized neighborhoods with high official crime rates (top one-third) were included. The survey respondents include 1,528 children and youth who were 7, 9, 11, 13, or 15 years old in 1987, and one of their parents, who lived in one of the more than 20,000 randomly selected households.

The survey respondents include 807 boys and 721 girls and include White (10 percent), Latino (45 percent), and African American (33 percent) youth, as well as 12 percent from other racial/ethnic backgrounds. The child and youth respondents, along with one caretaker, were interviewed annually from 1988 until 1992, and annually from 1995 until 1999. The age range covered by the study is from age 7 through age 26.

The dataset contains 1,528 cases and 22,081 variables.

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Denver Youth Survey Waves 6-11 (1993-2003) [Denver, Colorado] (ICPSR 36474)

Released/updated on: 2016-12-30
Geographic coverage: United States, Colorado, Denver
Time period: 1993-01-01--2003-12-31

The Denver Youth Survey (DYS) is part of the larger "Program of Research on the Causes and Correlates of Delinquency" initiated by the Office of Juvenile Justice and Delinquency Prevention in 1986. It is a longitudinal study of problem and successful behavior over the life course that focuses on delinquency, drug use, victimization, and mental health. DYS variables also address family demographics, neighborhood characteristics, parenting, and involvement in social roles.

The DYS is based on a probability sample of households in "high-risk" neighborhoods of Denver, Colorado. These neighborhoods were selected on the basis of their social ecology in terms of population and housing characteristics. Only socially disorganized neighborhoods with high (top one-third) official crime rates were included. The survey respondents include 1,528 children and youth who were 7, 9, 11, 13, or 15 years old in 1987, and one of their parents, who lived in one of the more than 20,000 randomly selected households.

The survey respondents include 807 boys and 721 girls and include White (10%), Latino (45%), and African American (33%) youth, as well as 12% from other racial/ethnic backgrounds. The child and youth respondents, along with one caretaker, were interviewed annually from 1988 until 1992 (waves 1-5), annually from 1995 until 1999 (waves 6-10), and in 2003 (wave 11). The study covers an age range of 7 through 26.

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Detroit [Michigan] Neighborhood Health Study, 2008-2013 (ICPSR 37038)

Released/updated on: 2021-10-07
Geographic coverage: Detroit, United States, Michigan
Time period: 2008-01-01--2009-12-31, 2009-01-01--2010-12-31, 2010-01-01--2011-12-31, 2011-01-01--2012-12-31, 2013-01-01--2013-12-31

The Detroit Neighborhood Health Study (DNHS) is a prospective, representative longitudinal cohort study of predominantly African American adults living in Detroit, Michigan. The main purpose of the study was to determine the predictive effects of ecological stressors, such as income distribution and residential segregation, on the development of post-traumatic stress disorder (PTSD), substance use, and other psychological and behavioral outcomes. An additional purpose was to study the interrelationships between ecological stressors, exposure to potentially traumatic events (PTEs), PTSD, substance use, and immune function. The study team hypothesized that exposure to ecological stressors would influence the risk of PTE exposure, PTSD, substance use, other psychological outcomes, and the relationships between these factors.

The current collection includes data from all 5 waves of the study. Cohort participants were initially recruited in 2008 with a dual-frame probability design, using telephone numbers obtained from the U.S. Postal Service Delivery Sequence Files as well as a listed-assisted random-digit-dial frame. Individuals without listed landlines or telephones and individuals with only a cell phone listed were invited to participate through a postal mail effort. Participants completed a 40 minute, structured telephone interview annually between 2008-2012 to assess perceptions of participants' neighborhoods, mental and physical health status, social support, exposure to traumatic events, and alcohol and tobacco use. In addition, the study team completed a structured assessment of Detroit's 54 neighborhoods in order to describe the characteristics of respondents' neighborhoods. The assessment included information about the quality of housing exteriors; presence of graffiti, abandoned cars, alcohol and tobacco advertisements, and security warning signs; presence of vacant buildings; and street and traffic noise levels.

All survey participants were offered the opportunity to provide a blood specimen (venipuncture, blood spot, or saliva) for immune and inflammatory marker testing as well as genetic testing of DNA. Participants received an additional $25USD if they elected to give a sample. Informed consent was obtained at the beginning of each interview and again at specimen collection. However, these specimens are not included as part of this data collection.

For more information about the study, please visit the Detroit Neighborhood Health Study website.

Genotypic data from DNHS are available on the NIH database of Genotypes and Phenotypes (dbGaP).

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Drug Use and Cultural Factors Among Hispanic Adolescents and Emerging Adults, Los Angeles, 2006-2016 (ICPSR 36765)

Released/updated on: 2018-10-03
Geographic coverage: United States, Los Angeles, California
Time period: 2006-01-01--2016-12-31

The Drug Use and Cultural Factors Among Hispanic Adolescents and Emerging Adults - Los Angeles, 2006-2016 collection examines the cultural risk and protective factors for substance use among Hispanic adolescents and emerging adults in Southern California. Adolescents were recruited in 9th grade and completed annual surveys about their substance use, acculturation, ethnic identity, cultural stressors, peer and family relationships, and cultural values. They were re-contacted to complete surveys in their early 20s; this survey also included measures of sexual behavior and interpersonal violence.

Demographic variables present in this collection include age, gender, grade in school, ethnicity, country of origin, education level, language spoken, socioeconomic status, marital status, sexual orientation, ZIP code, and place of residence.

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Epidemiologic Catchment Area Program Sites 1-4, 1979-1983 with National Death Index Data through 2007 (ICPSR 36621)

Released/updated on: 2017-10-17
Geographic coverage: North Carolina, Baltimore, New Haven, United States, Connecticut, Missouri, St. Louis, Durham, Maryland
Time period: 1979-01-01--1982-12-31, 1980-01-01--1983-12-31, 1979-01-01--2007-12-31

The Epidemiologic Catchment Area (ECA) program of research was initiated in response to the 1977 report of the President's Commission on Mental Health. The purpose was to collect data on the prevalence and incidence of mental disorders and on the use of and need for services by the mentally ill. Independent research teams at five universities (Yale University, Johns Hopkins University, Washington University, Duke University, and University of California at Los Angeles), in collaboration with the National Institute for Mental Health, conducted the studies with a core of common questions and sample characteristics. The sites were areas that had previously been designated as Community Mental Health Center catchment areas: New Haven, Connecticut, Baltimore, Maryland, St. Louis, Missouri, Durham, North Carolina, and Los Angeles, California. Each site sampled over 3,000 community residents and 500 residents of institutions, yielding 20,861 respondents overall. The longitudinal ECA design incorporated two waves of personal interviews administered one year apart and a brief telephone interview in between (for the household sample). The diagnostic interview used in the ECA was the NIMH Diagnostic Interview Schedule (DIS), Version III (with the exception of the Yale Wave I survey, which used Version II). Diagnoses were categorized according to the DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS, 3rd Edition (DSM-III). Diagnoses derived from the DIS include manic episode, dysthymia, bipolar disorder, single episode major depression, recurrent major depression, atypical bipolar disorder, alcohol abuse or dependence, drug abuse or dependence, schizophrenia, schizophreniform, obsessive compulsive disorder, phobia, somatization, panic, antisocial personality, and anorexia nervosa. The DIS uses the Mini-Mental State Examination (MMSE), which measures cognitive functioning, as an indirect measure of the DSM-III Organic Mental Disorders. In the ECA survey, this diagnosis is called cognitive impairment.

This collection features data from 17,327 participants across 2,005 variables. Data from the Los Angeles, California, Catchment (UCLA) are not included. Baseline data (Wave 1) and Wave 2 data were linked to the National Death Index through 2007, which includes primary and contributing causes of death, International Classification of Disease (ICD) codes, and nature of injury variables.

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Evaluation of CASAWORKS for Families -- Phase I, 1999-2001 [United States] (ICPSR 21681)

Released/updated on: 2009-12-16
Geographic coverage: United States
Time period: 1999-01-01--2001-12-31

These data were collected to evaluate the effectiveness of CASAWORKS for Families (CWF), a multiservice intervention designed to move substance abusing women on welfare to sobriety and self-sufficiency by addressing their substance abuse, domestic violence, employment, and basic needs. Conducted at 11 sites across the country, the evaluation was designed as a repeated measures, pre-during-post field evaluation with no pre-specified control or comparison groups. The results of this evaluation were primarily intended to guide a proposed second-stage experimental study of the effectiveness of an enhanced and refined CWF model.

When the potential participant presented herself at the CWF site, a research technician administered a specially modified version of the Addiction Severity Index (ASI), referred to as the Welfare to Work ASI (WTW-ASI). This version retained the ASI 5th edition as the core instrument but added questions in an addendum. The baseline WTW-ASI measured the severity of problems in nine areas: employment, medical status, alcohol use, drug use, legal status, family and social relationships, children and child care, basic needs, and psychiatric symptoms. In addition, the four-item Center for Epidemiologic Studies Depression Scale (CES-D), the Parenting Dimensions Inventory (PDI), and the Posttraumatic Stress Diagnostic Scale (PDS) were used to assess depression, parenting style, and posttraumatic stress disorder, respectively. The PDI, CES-D, and a follow-up version of WTW-ASI were also administered 6 and 12 months after intake.

Two instruments were used at baseline and at 1, 3, 6, and 12 months postbaseline to record the services provided by CWF: Welfare to Work version of the Treatment Services Review (TSR-WTW) and Case Management Review (CMR). The former mostly collected data on the number of treatment services received, such as doctor visits, therapy sessions, and days of inpatient treatment in the prior 30 days, while the latter collected data on the activities of the case management sessions and topics covered with the case managers. Activities recorded by the CMR included working on self-sufficiency plans, arrangement of follow-up services, skills development, crisis response, and advocating for the client. Topics covered included employment, substance abuse, mental health, domestic violence, parenting and child care, basic needs, life skills, and social support.

In order to compare the characteristics of the CWF clients with the general population of women who received Temporary Assistance for Needy Families (TANF), the study also collected WTW-ASI data from women in the general TANF population in the CWF locales regardless of their substance-use status.

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Evaluation of the Adolescent Portable Therapy (APT) Program [New York City], 2001-2004 (ICPSR 4299)

Released/updated on: 2005-11-04
Geographic coverage: New York City, United States, New York (state)
Time period: 2001-01-01--2004-12-31
This study contains data collected for an evaluation of the Adolescent Portable Therapy (APT) Program, which provided family-based drug treatment services to adolescents involved with the New York City juvenile justice system on charges of Persons In Need of Supervision (PINS) or delinquency. The program aimed to improve five core areas of the young peoples' lives: substance use, mental health, schooling, family functioning, and recidivism. Recruitment for the study occurred at juvenile detention facilities in New York City. Intake staff conducted screening interviews with the detainees. Those who reported using substances at least 30 times in the previous 30 days, or who met Diagnostic and Statistical Manual of Mental Disorders - Fourth Edition (DSM IV) criteria for substance abuse or dependence were eligible for selection. After the respondents and their families consented to participate, the respondents were randomly assigned to treatment and control groups. The treatment group went on to receive services from APT, while control group subjects received no APT services but had access to all other standard facilities and community based services. The evaluation participants were interviewed at four time points: at intake into the study in the juvenile detention facilities (baseline), three months after release from detention (T1), nine months after release from detention (T2), and 15 months after release from detention (T3). Whenever subjects were interviewed outside of a detention facility for T1, T2, and T3, study staff attempted to collect urine samples which were tested for marijuana, cocaine, amphetamines, phencyclidine (PCP), and opiates. Topics covered by the interviews included substance use and treatment, physical health, risk behaviors and disease prevention, mental and emotional health, living situation and environment, crime and legal issues, school, work, income, and demographic characteristics.
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EVarQuit: Extinguishing Cigarette Smoking via Extended Pre-Quit Varenicline, Buffalo, New York, 2017-2020 (ICPSR 39157)

Released/updated on: 2025-06-18
Geographic coverage: United States, New York (state), Buffalo
Time period: 2017-10-02--2020-12-09

Learning theory and previous human and animal research support the hypothesis that a longer period of varenicline treatment prior to the target quit date (TQD) will lead to greater reductions in smoking before quitting, and higher long-term cessation rates, compared to standard varenicline treatment.

Building on promising preliminary clinical data, this study tested these hypotheses with a full-scale randomized clinical trial (RCT). 320 treatment-seeking adults reporting smoking at least 5 cigarettes per day (CPD) were randomized to a standard run-in group (3 weeks of placebo, followed by the standard 1 week of pre-TQD varenicline) or an extended run-in group (4 weeks of pre-TQD varenicline). Both groups received brief individual cessation counseling and 11 weeks of post-TQD varenicline.

The primary outcome consisted of cotinine-verified (at end of treatment [EOT]) self-reported continuous abstinence from smoking (in CPD) during the last 4 weeks of treatment. Secondary outcomes included bioverified self-report of continuous abstinence at the 6-month follow-up and percentage of reduction in self-reported smoking rate during the pre-quit period (week 1 vs week 4). Supplemental measures included repeated assessments of craving, withdrawal, medication adherence, and adverse events.

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The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)

Released/updated on: 2026-04-06
Geographic coverage: United States
Time period: 1998-01-01--2024-12-31

The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:

  1. What are the conditions and capabilities of unmarried parents, especially fathers?
  2. What is the nature of the relationships between unmarried parents?
  3. How do children born into these families fare?
  4. How do policies and environmental conditions affect families and children?

The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.

A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.

Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).

An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.

The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).

In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.

Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.

Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.

Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.

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General Social Survey, 1972-2012 [Cumulative File] (ICPSR 34802)

Released/updated on: 2013-09-11
Geographic coverage: United States
Time period: 1972-01-01--2012-12-31
The General Social Surveys (GSS) were designed as part of a data diffusion project in 1972. The GSS replicated questionnaire items and wording in order to facilitate time-trend studies. The latest survey, GSS 2012, includes a cumulative file that merges all 29 General Social Surveys into a single file containing data from 1972 to 2012. The items appearing in the surveys are one of three types: Permanent questions that occur on each survey, rotating questions that appear on two out of every three surveys (1973, 1974, and 1976, or 1973, 1975, and 1976), and a few occasional questions such as split ballot experiments that occur in a single survey. The 2012 surveys included seven topic modules: Jewish identity, generosity, workplace violence, science, skin tone, and modules for experimental and miscellaneous questions. The International Social Survey Program (ISSP) module included in the 2012 survey was gender. The data also contain several variables describing the demographic characteristics of the respondents.
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General Social Survey, 1972-2014 [Cumulative File] (ICPSR 36319)

Released/updated on: 2016-03-14
Geographic coverage: United States
Time period: 1972-01-01--2014-12-31
Since 1972, the General Social Survey (GSS) has been monitoring societal change and studying the growing complexity of American society. The GSS aims to gather data on contemporary American society in order to monitor and explain trends and constants in attitudes, behaviors, and attributes; to examine the structure and functioning of society in general as well as the role played by relevant subgroups; to compare the United States to other societies in order to place American society in comparative perspective and develop cross-national models of human society; and to make high-quality data easily accessible to scholars, students, policy makers, and others, with minimal cost and waiting. GSS questions include such items as national spending priorities, marijuana use, crime and punishment, race relations, quality of life, and confidence in institutions. Since 1988, the GSS has also collected data on sexual behavior including number of sex partners, frequency of intercourse, extramarital relationships, and sex with prostitutes. The 2014 GSS has modules on quality of working life, shared capitalism, wealth, work and family balance, social identity, social isolation, and civic participation. In 1985 the GSS co-founded the International Social Survey Program (ISSP). The ISSP has conducted an annual cross-national survey each year since then and has involved 58 countries and interviewed over one million respondents. The ISSP asks an identical battery of questions in all countries; the U.S. version of these questions is incorporated into the GSS. The 2014 ISSP topics are National Identity and Citizenship. Demographic variables include age, gender, race, ethnicity, education, marital status, religion, employment status, income, household structure, and whether respondents were born in the United States.
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General Social Survey, 1972-2016 [Cumulative File] (ICPSR 36797)

Released/updated on: 2017-11-14
Geographic coverage: United States
Time period: 1972-01-01--2016-12-31
Since 1972, the General Social Survey (GSS) has been monitoring societal change and studying the growing complexity of American society. The GSS aims to gather data on contemporary American society in order to monitor and explain trends and constants in attitudes, behaviors, and attributes; to examine the structure and functioning of society in general as well as the role played by relevant subgroups; to compare the United States to other societies in order to place American society in comparative perspective and develop cross-national models of human society; and to make high-quality data easily accessible to scholars, students, policy makers, and others, with minimal cost and waiting. GSS questions include such items as national spending priorities, marijuana use, crime and punishment, race relations, quality of life, and confidence in institutions. Since 1988, the GSS has also collected data on sexual behavior including number of sex partners, frequency of intercourse, extramarital relationships, and sex with prostitutes. In 1985 the GSS co-founded the International Social Survey Program (ISSP). The ISSP has conducted an annual cross-national survey each year since then and has involved 58 countries and interviewed over one million respondents. The ISSP asks an identical battery of questions in all countries; the U.S. version of these questions is incorporated into the GSS. The 2016 GSS added in new variables covering information regarding social media use, suicide, hope and optimism, arts and culture, racial/ethnic identity, flexibility of work, spouses work and occupation, home cohabitation, and health.
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The Great Smoky Mountains Study (GSMS): Alcohol, Cannabis, Depression Disorders, North Carolina, 1992-2003 (ICPSR 37221)

Released/updated on: 2018-12-12
Geographic coverage: North Carolina, United States
Time period: 1992-01-01--2003-12-31

The Great Smoky Mountain Study (GSMS) is a longitudinal epidemiological study of 1,420 children begun in 1992 in 11 rural counties in western North Carolina. Originally, the study had three aims: 1) to estimate the prevalence of common psychiatric disorders; 2) to study their development over time; and 3) to determine the level of mental health service use. The study expanded over time to include correlates and predictors of substance abuse and psychiatric problems. The study continued for over 20 years, with the original participants assessed up to 11 times from ages 9 to 30 (over 11,000 assessments total).

This collection includes data from study modules related to alcohol, cannabis, and depressive disorders in addition to core data on participants. This core data includes demographic variables related to age, sex, socioeconomic status, and race.

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Helping Young Smokers Quit: Identifying Best Practices for Tobacco Cessation, Phase II National Program Evaluation, 2003-2006 (ICPSR 33161)

Released/updated on: 2024-02-14
Geographic coverage: Oregon, New York, United States, Kentucky, Minnesota, California, Utah, Washington, Michigan, Iowa, Illinois, Texas, Colorado, Missouri, Louisiana, Ohio, Maryland, Wisconsin, Nevada
Time period: 2003-01-01--2006-12-31

The Helping Young Smokers Quit (HYSQ) initiative was a multi-phase project that addressed the critical need to disseminate effective, developmentally appropriate cessation programs for young smokers. Phase I identified and described tobacco treatment programs available for youth in the United States, Phase II evaluated smoking secession programs tailored for youth to help understand what works, and Phase III identified factors associated with program sustainability. Phase II collected data from five sources: (1) program participants, (2) program providers, (3) program curricula, (4) organizational leaders, and (5) community leaders and community ordinances.

Program participants were interviewed at baseline, end-of program, 6-month follow-up, and 12-month follow-up. Topics covered by the interviews include age, gender, race, Hispanic origin, language spoken at home, employment, income, religiosity, school enrollment, education level, school grades, height, weight, extracurricular activities, recreation, sports, exercise, aspirations after high school, psychological well-being, alcohol consumption, cigarette use and use of other tobacco products, attitudes about smoking, plans to stop/continue smoking, attempts to quit smoking, reasons for participating in the program, topics/issues covered by the program, opinions about the program, and smoking experience since the beginning of the program. In addition, for each follow-up survey, the participants provided a breath sample for carbon monoxide analysis to validate self-reported quit status.

After the last session of each program delivery, the program providers, such as program leaders and cessation counselors, were interviewed about the content and delivery of the program and the reactions of the participants and themselves to the program as delivered. The program providers also kept attendance records.

Curriculum content was abstracted from program manuals and other materials used in each program.

Organizational leaders of the organizations that offered the programs were surveyed about various aspects of each organization, including the organization's smoking cessation program and the organization's mission, general operations, and smoking-related policies and practices.

Community-level information was collected in two ways: (1) interviews of community leaders representing local health departments, school boards, and juvenile justice offices, and (2) archival research of public ordinances relevant to tobacco and control policies.

Nine data files/datasets constitute the data. Datasets 1-4 contain the participant questionnaire data, carbon monoxide measurement data, and program attendance data. Dataset 5 comprises information about each program and its curriculum, some information about the community in which the program was located, and summary data about enforcement of tobacco-related ordinances. Dataset 6 contains information about about the program providers and each program delivery, including recruitment, logistics, content, and the reactions of providers and participants. Dataset 7 covers administrative aspects of the smoking cessation programs and each offering organization's mission, general operations, and smoking-related policies and norms. Dataset 8 contains information about local and state-level tobacco-related ordinances for every state and local jurisdiction where each program was located, and Dataset 9 condenses the information in Dataset 8 into one summary record for each community. The unit of observation for Datasets 1-4 is the participant, for Datasets 5 and 7 the smoking cessation program/offering organization, for Dataset 6 the program delivery/program cohort, for Dataset 8 the ordinance, and for Dataset 9 the community.

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Impact Evaluation of a Special Session Domestic Violence Intervention Program in Connecticut, 2001-2004 (ICPSR 20361)

Released/updated on: 2012-08-01
Geographic coverage: United States, Connecticut
Time period: 2001-01-01--2004-12-31
This study focused on an evaluation of EVOLVE, a newly developed 26-week, 52-session skill building, culturally competent, psycho-educational curriculum-based intervention for male domestic violence offenders with female victims. The curriculum was implemented in three large urban courts that have specialized domestic violence court sessions, judicial monitoring, specialized court staff throughout the judicial process, enhanced advocacy for victims, a collaborative team approach to case processing, and collaboration with networks of involved community service providers. The comparison site (called Explore), also a large urban court, had some specialized court staff and enhanced victim advocacy, as well. It was selected as the comparison because of these court features, the use of a more traditional 26-week intervention (that met just once each week), its high volume, and the high rate of involvement of men of color, which was similar to rates found at the EVOLVE sites at the time the evaluation was proposed. The data file contains 545 cases and 872 variables.
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Improving Health and Employment Outcomes Through Workplace Opioid Policies, United States, 2020 (ICPSR 38448)

Released/updated on: 2022-06-13
Geographic coverage: United States
Time period: 2019-01-01--2020-12-31
The overall goal of this study was to develop and test the feasibility of implementing best evidence workplace policy guidelines to reduce opioid use and misuse among working age people, the population primarily affected by the opioid crisis. Researchers developed workplace opioid guidelines to reduce prescription opioid use, decrease opioid misuse and opioid use disorder (OUD), and improve health-related employment outcomes. Researchers then tested the feasibility of implementing these guidelines among construction workers, an occupational group at uniquely high risk of opioid use and fatal overdose. Researchers conducted worker surveys and interviews with leaders of construction unions, employers and health funds. These data helped researchers better describe opioid use in the construction industry and informed an advisory panel of addiction and human resources specialists, construction employers, union officials, and labor-management health fund leaders.
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The Iowa Adoption Studies, 1975-2008 (ICPSR 34369)

Released/updated on: 2020-11-09
Geographic coverage: Iowa, United States
Time period: 1975-01-01--2008-12-31

The Iowa Adoption Studies were conducted between 1975 and 2008. The group of studies consist of 5 independent waves of data collection each of which examined genetic (biological) and environmental influences on psychopathology. The adoption paradigm allowed separation of genetic and environmental influences on behavior, as well as joint influences due to gene x environment interaction. Adoptees were interviewed about lifetime psychopathology including substance abuse and dependence, antisocial personality, and mood disorders. A follow-up study was conducted from 2000-2004 that recruited all previous participants and natural offspring of the adoptive parents when available. Standardized psychiatric assessments were administered along with measures of personality disorders and traits, retrospective reports on childhood experiences with adoptive parents, and current symptomatology. An extensive neurocognitive assessment was conducted on a subset of participants who had standardized school achievement scores. The goal of this last wave of assessment was to evaluate the influence of substance use on mid-life cognition and health.

The respondents were assessed using a number of different surveys over the study period. The following describes the notable variables as well as descriptions of the surveys included in the dataset.

The first variables in the dataset identify sibling pairs and provides data on whether the respondents' biological parents suffered from mental health or substance abuse issues. Next birth records are provided that give basic information about the health of the person when he or she was born. This information is followed by the survey results of "The Schedule for Nonadaptive and Adaptive Personality" (SNAP) as well as variables that reflect the diagnosis of personality disorders and nonadaptive personality traits based on the SNAP survey responses.

The next section includes responses from "The Iowa Personality Disorder Screen," a quick personality disorder screen developed in 1999 intended for use in clinical and research settings.

Next, responses to Pearson Assessments "Brief symptoms inventory" are included as well as the scores calculated based on these survey responses. The results of this survey assess the mental state of the patient including scales on Somatization, Obsessive-Compulsive, Interpersonal Sensitivity, Depression, Anxiety, Hostility, Phobic Anxiety, Paranoid Ideation and Psychoticism.

The respondents also completed the "Buss-Durkee Hostility Questionnaire" and were assessed on measure regarding the following hostility traits: negativism, resentment, indirect hostility, assault, suspicion, irritability and verbal hostility.

Reponses to the "The Social Provisions Scale" survey are also included. The purpose of this survey is to assess the relationship the respondents have to other people. The 6 social provisions assessed include: guidance, reliable alliance, reassurance of worth, attachment, social integration, and opportunity for nurturance.

"The Parental Bonding Instrument" instrument was utilized to assess the respondents' relationships to their mothers and fathers.

A series of cognitive tests were administered to respondents. ICPSR is unable to provide the survey instruments used in the cognitive test due to copy write issues. These tests include:

Controlled Oral Word Association Test (COWAT)

North American Adult Reading Test (NAART)

Rey Figure and Rey Complex Figure Test and Recognition Trial (RCFT)

Shipley Institute of Living Scale (SILS)

Stroop Color and Word Test (SCWT)

Tower of Hanoi (TofH)

Comprehensive Trailmaking Test (CTMT)

Weschler Adult Intelligence Test (WAIS)

Weschler Memory Test (WMS)

The dataset also includes respondents' results of the Comprehensive Performance Test (CPT) and the Iowa Gambling Task (IGT)

Scores from the "Iowa Test of Basic Skills," a test of academic achievement that evaluates students knowledge in subjects including, mathematics, reading comprehension, and science, are included in the dataset. Respondents are evaluated in grades 4, 8 and 11.

The final section of the dataset includes two waves of the "Semi Structured Assessment for the Genetics of Alcoholism," a survey intended to assess the physical, psychological, and social manifestations of alcohol abuse. These survey responses make up the bulk of the dataset and include variables on a variety of topics including: demographics, medical history, substance use, eating disorders, depression, dysthymia, mania, ASP, suicide, PTSD, generalized anxiety disorder, OCD, social phobia, agoraphobia, panic disorder, home environment, gambling, and ADHD. Substances use investigated includes alcohol, tobacco, marijuana, sedatives, stimulants, cocaine, opiates, solvents, hallucinogens, and other drugs.

This dataset includes 934 cases and 9,370 variables.

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Mental and Substance Use Disorders Prevalence Study (MDPS), United States, 2020-2022 (ICPSR 38953)

Released/updated on: 2024-02-12
Geographic coverage: United States
Time period: 2019-10-01--2022-10-31
The Mental and Substance Use Disorders Prevalence Study (MDPS) is a pilot program designed to estimate the prevalence of specific mental and substance use disorders among U.S. adults 18-65 years of age. The MDPS is also designed to estimate the percentage of individuals with these specific mental and substance use disorders who receive treatment. The study is funded by SAMHSA. To estimate the prevalence of specific mental and substance use disorders, the MDPS design addresses two gaps in prior general population survey efforts: (1) the exclusion of institutionalized populations at high risk for disorders, and (2) the reliance on nonclinical or screening scales to estimate mental and substance use disorders. The specific disorders of interest measured in the MDPS are past 12-month and lifetime schizophrenia spectrum disorders (defined as including schizophrenia, schizoaffective disorder, or schizophreniform), past 12-month bipolar I disorder, major depressive disorder (MDD), generalized anxiety disorder (GAD), posttraumatic stress disorder (PTSD), obsessive-compulsive disorder, anorexia nervosa, and past 12-month alcohol, opioid, cannabis, stimulant, and sedative/hypnotic/anxiolytic use disorders. The MDPS sample included individuals residing in the residential household population and in three non-household populations: state/federal prisons, state psychiatric hospitals, and homeless shelters. The MDPS also utilizes the Structured Clinical Interview for DSM-5 (SCID-5; First et al., 2015), delivered by trained mental health clinicians, which is the gold standard for mental and substance use disorder diagnostic assessment. The MDPS was a cooperative agreement between RTI International and Substance Abuse and Mental Health Services Administration (SAMHSA).
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Midlife in the United States (MIDUS 2), 2004-2006 (ICPSR 4652)

Released/updated on: 2021-09-15
Geographic coverage: United States
Time period: 2004-01-01--2006-12-31

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of 7,108 Americans aged 25 to 74 (MIDLIFE IN THE UNITED STATES (MIDUS), 1995-1996 [ICPSR 2760]). The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included twins and the siblings of main sample respondents), and its creative use of in-depth assessments in key areas (e.g., daily stress and cognitive functioning). A description of the study and findings from it are available at http://www.midus.wisc.edu. With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples: core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 925 complete pairs), and siblings (N = 950), was conducted in 2004-2006. Guiding hypotheses for it, at the most general level, were that behavioral and psychosocial factors are consequential for physical and mental health. MIDUS 2 respondents were aged 35 to 86. Data collection largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., cognitive functioning, optimism and coping, stressful life events, and caregiving). To add refinements to MIDUS 2, an African American sample (N = 592) was recruited from Milwaukee, Wisconsin, who participated in a personal interview and completed a questionnaire paralleling the above assessments. Survey data for the Milwaukee sample are available in a separate project [ICPSR 22840]. Also administered was a modified form of the mail questionnaire, via telephone, to respondents who did not complete a self-administered questionnaire.

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Midlife in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840)

Released/updated on: 2024-02-26
Geographic coverage: Milwaukee, United States, Wisconsin
Time period: 2005-01-01--2006-12-31
As a refinement to Midlife in the United States (MIDUS 2), 2004-2006 (ICPSR 4652), a sample of African Americans from Milwaukee was included to examine health issues in minority populations. Areas of the city of Milwaukee, Wisconsin, were stratified according to the proportion of the population that were African American. Those areas with high concentrations were sampled at higher rates than areas with lower concentrations. Area probability sampling methods were used along with population counts from the 2000 United States Census to identify potential respondents. Field interviewers screened households to determine if they contained any African American adults. There was additional screening to achieve an appropriate age/gender distribution in a manner similar to what was done for the original MIDUS sample Midlife in the United States (MIDUS 1), 1995-1996 (ICPSR 2760). Milwaukee respondents were interviewed in their homes using a Computer Assisted Personal Interview (CAPI) protocol and afterwards asked to complete a Self-Administered Questionnaire (SAQ). All measures paralleled those used in the larger MIDUS 1 and 2 samples. After successful completion of the Project 1 survey, some participants were eligible to participate in other MIDUS projects (2 through 5). Survey data was collected for 592 individuals.
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National Comorbidity Survey: Adolescent Supplement (NCS-A), [United States], 2001-2004 (ICPSR 28581)

Released/updated on: 2023-11-16
Geographic coverage: United States
Time period: 2001-02-01--2004-01-31

The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.

The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).

In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.

Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.

The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.

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National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (ICPSR 6693)

Released/updated on: 2008-09-12
Geographic coverage: United States
Time period: 1990-01-01--1992-12-31
The National Comorbidity Survey: Baseline (NCS-1) was a collaborative epidemiologic investigation designed to study the prevalence and correlates of DSM III-R disorders and patterns and correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample. The survey was carried out in the early 1990s with a household sample of over 8,000 respondents. Subsamples of the original respondents completed the NCS-1 Part II survey and Tobacco Use Supplement. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. Drugs covered by this survey include alcohol, tobacco, sedatives, stimulants, tranquilizers, analgesics, inhalants, marijuana/hashish, cocaine, hallucinogens, heroin, nonmedical use of prescription drugs, and polysubstance use. Other items include demographic characteristics, personal and family history of substance use and abuse, substance abuse treatment, data on drug use including recency, frequency, and age at first use, problems resulting from the use of drugs, personal and family history of psychiatric problems, mental health treatment, symptoms of psychiatric disorders, mental health status, HIV risk behaviors, and physical health status.
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National Comorbidity Survey: Baseline (NCS-1), 1990-1992 (Restricted Version) (ICPSR 25381)

Released/updated on: 2023-11-06
Geographic coverage: United States
Time period: 1990-01-01--1992-12-31
The National Comorbidity Survey: Baseline (NCS-1) is a collaborative epidemiologic investigation designed to study the prevalence and patterns of disorders in the third and revised edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM III-R) as well as correlates of service utilization for these disorders. The NCS-1 was the first survey to administer a structured psychiatric interview to a nationally representative sample and was carried out in the early 1990s with a household sample of over 8,000 respondents. Diagnoses were based on a modified version of the Composite International Diagnostic Interview (the UM-CIDI), which was developed at the University of Michigan for the NCS-1. This restricted-use data collection contains the following geographic variables that can be linked to the public-use version of the data using the CASEID variable: Census State FIPS codes, Census County FIPS codes, Census 5-Digit County-State FIPS codes, and Census 11-Digit State-County-Tract FIPS codes. However, in order to help preserve the confidentiality of the data the frequency tables in the codebook have been suppressed.
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National Crime Victimization Survey: School Crime Supplement, 2015 (ICPSR 36354)

Released/updated on: 2016-12-20
Geographic coverage: United States
Time period: 2015-01-01--2015-12-31
The primary purpose of the School Crime Supplement (SCS) is to obtain additional information about school-related victimizations so that policymakers; academic researchers; practitioners at the federal, state, and local levels; and special interest groups who are concerned with crime in schools can make informed decisions concerning policies and programs. The SCS asks questions related to students' experiences with, and perceptions of crime and safety at school, including preventive measures employed by schools; students' participation in after school activities; students' perception of school rules and enforcement of these rules; the presence of weapons, drugs, alcohol, and gangs in school; student bullying; hate-related incidents; and attitudinal questions relating to the fear of victimization at school. These responses are linked to the National Crime Victimization Survey (NCVS) survey instrument responses for a more complete understanding of the individual student's circumstances.
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National Crime Victimization Survey: School Crime Supplement, [United States], 2017 (ICPSR 36982)

Released/updated on: 2020-02-27
Geographic coverage: United States
Time period: 2017-01-01--2017-12-31
The primary purpose of the School Crime Supplement (SCS) is to obtain additional information about school-related victimizations so that policymakers; academic researchers; practitioners at the federal, state, and local levels; and special interest groups who are concerned with crime in schools can make informed decisions concerning policies and programs. The SCS asks questions related to students' experiences with, and perceptions of crime and safety at school, including preventive measures employed by schools; students' participation in after school activities; students' perception of school rules and enforcement of these rules; the presence of weapons, drugs, alcohol, and gangs in school; student bullying; hate-related incidents; and attitudinal questions relating to the fear of victimization at school. These responses are linked to the National Crime Victimization Survey (NCVS) survey instrument responses for a more complete understanding of the individual student's circumstances.
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National Crime Victimization Survey: School Crime Supplement, [United States], 2019 (ICPSR 37816)

Released/updated on: 2021-06-08
Geographic coverage: United States
Time period: 2019-01-01--2019-12-31
The primary purpose of the School Crime Supplement (SCS) is to obtain additional information about school-related victimizations so that policymakers; academic researchers; practitioners at the federal, state, and local levels; and special interest groups who are concerned with crime in schools can make informed decisions concerning policies and programs. The SCS asks questions related to students' experiences with, and perceptions of crime and safety at school, including preventive measures employed by schools; students' participation in after school activities; students' perception of school rules and enforcement of these rules; the presence of weapons, drugs, alcohol, and gangs in school; student bullying; hate-related incidents; and attitudinal questions relating to the fear of victimization at school. These responses are linked to the National Crime Victimization Survey (NCVS) survey instrument responses for a more complete understanding of the individual student's circumstances.
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National Crime Victimization Survey: School Crime Supplement, [United States], 2022 (ICPSR 38666)

Released/updated on: 2024-02-28
Geographic coverage: United States
Time period: 2022-01-01--2022-12-31
The primary purpose of the School Crime Supplement (SCS) is to obtain additional information about school-related victimizations so that policymakers; academic researchers; practitioners at the federal, state, and local levels; and special interest groups who are concerned with crime in schools can make informed decisions concerning policies and programs. The SCS asks questions related to students' experiences with, and perceptions of crime and safety at school, including preventive measures employed by schools; students' participation in after school activities; students' perception of school rules and enforcement of these rules; the presence of weapons, drugs, alcohol, and gangs in school; student bullying; hate-related incidents; and attitudinal questions relating to the fear of victimization at school. These responses are linked to the National Crime Victimization Survey (NCVS) survey instrument responses for a more complete understanding of the individual student's circumstances.
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National Drug Abuse Treatment System Survey, Waves II-IV (ICPSR 4146)

Released/updated on: 2009-07-30
Geographic coverage: United States
Time period: 1988-01-01--1988-12-31, 1990-01-01--1990-12-31, 1995-01-01--1995-12-31
The National Drug Abuse Treatment System Survey (NDATSS) is a longitudinal program of research into organizational structures, operating characteristics, and treatment modalities of outpatient drug treatment programs in the United States. This is done through interviews with program directors and clinical supervisors. In some publications, this research is referred to as the Outpatient Drug Abuse Treatment Studies (ODATS). Data being released include Wave II (1988), Wave III (1990), and Wave IV (1995).
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National Drug Abuse Treatment System Survey, Waves V-IX, [United States], 2000-2017 (ICPSR 38420)

Released/updated on: 2023-03-22
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31, 2005-01-01--2005-12-31, 2011-01-01--2011-12-31, 2014-01-01--2014-12-31, 2017-01-01--2017-12-31

The National Drug Abuse Treatment System Survey (NDATSS) is a longitudinal program of research into organizational structures, operating characteristics, and treatment practices of outpatient drug treatment programs in the United States. This is done through interviews with program directors and clinical supervisors. In some publications, this research is referred to as the Outpatient Drug Abuse Treatment Studies (ODATS). Data in this collection include Wave V, Wave VI, Wave VII, Wave VIII, and Wave IX.

NDATSS includes four prior waves of data collection from substance abuse treatment programs surveyed in 1984, 1988, 1990, and 1995. Waves II through IV can be found at ICPSR here.

Wave I is not planned for public release because it had a significantly different sample design than the other waves.

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National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)

Released/updated on: 2026-03-03
Geographic coverage: United States
Time period: 1994-01-01--2025-12-31

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

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National Mental Health Services Survey (N-MHSS), 2010 (ICPSR 34945)

Released/updated on: 2015-11-23
Geographic coverage: United States
Time period: 2010-01-01--2010-12-31

The National Mental Health Services Survey (N-MHSS) is an annual survey designed to collect statistical information on the numbers and characteristics of all known mental health treatment facilities within the 50 States, the District of Columbia, and the U.S. territories. In every other year, beginning in 2014, the survey also collects statistical information on the numbers and demographic characteristics of persons served in these treatment facilities as of a specified survey reference date.

The N-MHSS is the only source of national and State-level data on the mental health service delivery system reported by both publicly-operated and privately-operated specialty mental health treatment facilities, including: public psychiatric hospitals; private psychiatric hospitals, non-federal general hospitals with separate psychiatric units; U.S. Department of Veterans Affairs medical centers; residential treatment centers for children; residential treatment centers for adults; outpatient or day treatment or partial hospitalization mental health facilities; and multi-setting (non-hospital) mental health facilities.

The N-MHSS complements the information collected through SAMHSA's survey of substance abuse treatment facilities, the National Survey of Substance Abuse Treatment Services (N-SSATS). Treatment facility Information from the N-MHSS is used to populate the mental health component of SAMHSA's online Behavioral Health Treatment Services Locator.

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National Social Life, Health, and Aging Project (NSHAP): Round 1, [United States], 2005-2006 (ICPSR 20541)

Released/updated on: 2023-01-30
Geographic coverage: United States
Time period: 2005-07-01--2006-03-31

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.

Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

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National Social Life, Health, and Aging Project (NSHAP): Round 2 and Partner Data Collection, [United States], 2010-2011 (ICPSR 34921)

Released/updated on: 2023-05-24
Geographic coverage: United States
Time period: 2010-01-01--2011-12-31

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 2 interviews were conducted from August 2010 through May 2011, during which Round 1 Respondents were re-interviewed. An attempt was also made to interview individuals who were sampled in Round 1 but declined to participate. In addition, spouses or co-resident partners were also interviewed using the same instruments as the main respondents. This process resulted in 3,377 total respondents. The following files constitute Round 2: Core Data, Disposition of Round 1 Partner Data, Social Networks Data, Social Networks Update Data, Partner History Data, Partner History Update Data, Medications Data, Proxy Data, and Sleep Statistics Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships, and patient-physician communication, in addition to bereavement items. Data were also collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function, and a panel of biomeasures, including weight, waist circumference, height, blood pressure, smell, saliva collection, and taste.

The Disposition of Round 1 Partner files (Datasets 3 and 4) detail information derived from Section 6A items regarding the partner from Round 1 within the questionnaire. This provides a complete history for respondent partners across both rounds.

The Social Networks files (Datasets 5 and 6) contain one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file.

The Social Networks Update files (Datasets 7 and 8) detail respondents' current relationship status with each person identified on the network roster.

The Partner History file (Dataset 9) contains one record for each marriage, cohabitation, or romantic relationship identified in Section 6A of the questionnaire, including a current partner in Round 2 but excluding the partner from Round 1.

The Partner History Update file (Dataset 10) details respondents' current sexual partner information, as well as marital and cohabiting status.

The Medications Data file (Dataset 11) contains records for items listed in the medications log.

The Proxy Data files (Datasets 12 and 13) contain information from proxy interviews administered for Round 1 Respondents who were either deceased or whose health was too poor to participate in Round 2.

The Sleep Statistics Data files (Dataset 14 and 15) provide information on actigraphy sleep variables.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

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National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)

Released/updated on: 2024-09-09
Geographic coverage: United States
Time period: 2015-01-01--2016-12-31, 2020-01-01--2021-12-31

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.

The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.

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National Survey of Substance Abuse Treatment Services (N-SSATS), 2000 (ICPSR 3436)

Released/updated on: 2015-11-23
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31

The National Survey of Substance Abuse Treatment Services (N-SSATS) is designed to collect information from all facilities in the United States, both public and private, that provide substance abuse treatment. N-SSATS provides the mechanism for quantifying the dynamic character and composition of the United States substance abuse treatment delivery system. The objectives of N-SSATS are to collect multipurpose data that can be used to assist the Substance Abuse and Mental Health Services Administration (SAMHSA) and state and local governments in assessing the nature and extent of services provided and in forecasting treatment resource requirements, update SAMHSA's Inventory of Substance Abuse Treatment Services (I-SATS), analyze general treatment services trends, and generate the National Directory of Drug and Alcohol Abuse Treatment Programs and its online equivalent, the Substance Abuse Treatment Facility Locator.

Data are collected on topics including facility operation, services offered (assessment, substance abuse therapy and counseling, testing, transitional, and ancillary), primary focus (substance abuse, mental health, both, general health, other), hotline operation, Opioid Treatment Programs and medication dispensed, languages in which treatment is provided, type of treatment provided, number of clients (total and under age 18), number of beds, types of payment accepted, sliding fee scale, special programs offered, facility accreditation and licensure/certification, and managed care agreements.

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