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Adolescent Substance Abuse Prevention Study (ASAPS), 2001-2006 [Detroit, Houston, Los Angeles, Newark, New Orleans, St. Louis] (ICPSR 28641)

Released/updated on: 2012-02-29
Geographic coverage: Detroit, United States, New Orleans, Los Angeles, Newark, St. Louis, Houston
Time period: 2001-01-01--2006-01-01

The Adolescent Substance Abuse Prevention Study (ASAPS) was a randomized field trial designed to test the effectiveness of a new school-based substance abuse prevention program called Take Charge of Your Life (TCYL). The program consisted of two curricula, one for middle schools and the other for high schools, which were delivered through the Drug Abuse Resistance Education network of law enforcement officers (D.A.R.E.). TCYL was developed building on existing D.A.R.E. seventh/eighth grade and tenth/eleventh grade curricula and applied principles and strategies suggested by published literature on effective drug abuse prevention programming and effective middle and high school curricula design. ASAPS was conducted among a 2001-2002 multi-site cohort of seventh graders who were followed for five years until the 2005-2006 school year when they were in the eleventh grade. The first TCYL curriculum was delivered in the treatment schools when the students were in seventh grade and the second was delivered when they were in the ninth grade.

Over the five-year study period, the treatment and control students responded to seven self-administered surveys: (1) at baseline in the seventh grade, (2) post-intervention in the seventh grade, (3) in the eighth grade, (4) pre-intervention in the ninth grade, (5) post-intervention in the ninth grade, (6) in the tenth grade, and (7) in the eleventh grade. Topics covered by the surveys include normative beliefs, social skills, attitudes toward drug use, and self-reported use of alcohol, tobacco, marijuana, and other illicit drugs. The ASAPS data also include measures of implementation fidelity of the seventh and ninth grade TCYL curricula, which were obtained from trained observers who rated the D.A.R.E. officers' delivery in the classroom. The fidelity measures encompass content coverage and instructional strategy.

This data collection comprises two data files, both with public- and restricted-use versions. The first (the Main Data File) contains the students' survey responses and the seventh grade curriculum fidelity measures, while the second (the 9th Grade Officer Observations Data) contains the ninth grade curriculum fidelity measures.

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Advancing Virtual Reality-Based Attentional Bias as a Biomarker for Tobacco Use Disorder, San Diego, California, 2024-2025 (ICPSR 39816)

Released/updated on: 2026-04-13
Geographic coverage: San Diego, United States, California
Time period: 2024-11-20--2025-03-03
The Varenicline Virtual Reality Study includes daily cigarette users, ages 22+, from the San Diego community. Participants are assessed on the VR Nicotine Cue Exposure paradigm then pseudo-randomized (stratified on age and sex) to receive varenicline (target dose 1mg twice daily) or placebo (target n per group=100; target total N=200). Following eight days of titration, participants are assessed again on the VR Nicotine Cue Exposure paradigm.
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Alameda County [California] Health and Ways of Living Study, 1999 Panel (ICPSR 4432)

Released/updated on: 2006-11-16
Geographic coverage: United States, California
This fifth wave of data, collected in 1999, provides follow-up with 2,123 respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. Part 2 of this collection contains mortality data including cause and year of death. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including 360 men and 530 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL (ICPSR 6838), collected information from 4,864 of the original respondents. The third and fourth waves, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1994 and 1995 PANELS (ICPSR 3083), provided a follow-up of 2,729 original 1965 and 1974 respondents. The fourth wave is a follow-up to the 1994 panel and contains 2,569 cases.
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Athletic Involvement Study (of Students in a Northeastern University in the United States), 2006 (ICPSR 33661)

Released/updated on: 2013-04-30
The Athletic Involvement Study interviewed 795 students in a large public university in the Northeastern United States to explore how or if participation in sports affects people's health-risk behavior. About a quarter of the sample did not report any participation in a sport during high school or college and no primary sport designation. For those who did identify with a sport there were five predictor areas of interest: (1) scales measuring strength of jock identity; (2) strength of athlete identity; (3) goal orientation in sport; (4) primary sport ratings; and (5) conformity to masculine norms.
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Community Health Center: Core Data Project, 2001-2002 [United States] (ICPSR 21520)

Released/updated on: 2023-12-13
Geographic coverage: Vermont, Rhode Island, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2002-01-01
A survey was administered to any patient that presented for services at a health center between 2001 and 2002. Patients were asked to complete a brief survey with questions relating to demographic, relationship status, reason for choosing this health center, mental health status, and abuse history.
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Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Performance Indicators for Corrections (PIC), 2002-2006 [United States] (ICPSR 27942)

Released/updated on: 2013-05-08
Geographic coverage: United States
Time period: 2002-01-01--2006-01-01

In 2002, the National Institute on Drug Abuse (NIDA) funded the Criminal Justice Drug Abuse Treatment Studies (CJ-DATS) cooperative agreement. The Institute of Behavioral Research at Texas Christian University (TCU) was one of nine National Research Centers selected to study current drug treatment practices and outcomes in correctional settings and to examine strategies for improving treatment services for drug-involved offenders.

The specific aims of the PIC study were to:

  1. Cross sectionally test and adapt the TCU CJ-CEST, BOP, and NDRI CAI assessments for use in multiple correctional settings;
  2. To examine agency and program records of client progress relevant to treatment process; and to
  3. Revise the assessments as necessary for use in longitudinal assessment protocols and CJ Management Information Systems (MIS).

During the first data collection period, Wave 1, a total of 3,266 inmates were surveyed from research centers based out of Texas Christian University, the University of Delaware, the University of Kentucky, University of California, Los Angeles (UCLA), and the National Development and Research Institute (NDRI). After psychometrics were run and the forms revised slightly, a second administration took place but this time only at two centers (TCU and Delaware). During Wave 2 a total of 1,421 clients participated in the survey.

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Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Step 'N Out, 2002-2006 [United States] (ICPSR 30221)

Released/updated on: 2011-07-27
Geographic coverage: Oregon, Rhode Island, United States, Connecticut, Delaware, Virginia
Time period: 2002-01-01--2006-01-01
Step 'N Out is a research study designed to examine the potential of a new approach to address the re-entry needs of offenders who have substance abuse issues, one which integrates the systems of supervision and treatment. The study is a randomized clinical trial which enrolls subjects who are new to supervision. Those who are in the treatment arm of the study meet with their probation officer weekly for 12 weeks, with every other meeting including a treatment counselor. The PO and counselor have been trained to use motivational interviewing and collaborative behavioral techniques to explore the client's personal issues and triggers that may hamper his/her successful re-entry into the community. The probation officer and counselor work with the client to establish weekly recovery and social goals in the form of a written contract that enables the client to take responsibility for their own actions and decisions. In addition, the variables in this study generally cover topics on drug use and testing; demographics and criminal background; treatment programs and sessions; and finally, relationships between clients and their parole/probation officers.
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Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Targeted Intervention Components (TIC) for Correctional Re-Entry Programs, 2002-2008 [United States] (ICPSR 27961)

Released/updated on: 2010-09-29
Geographic coverage: United States
Time period: 2002-01-01--2008-01-01
Targeted Intervention Components (TIC) for Correctional Re-Entry Programs is three-year study with the established guidelines and resources for an evidence-based library of targeted treatment intervention components for outpatient (e.g., crimes of moderate severity) re-entry correctional programs. It involves no-fee, user-friendly, and manual-guided techniques that can be integrated with programmatic assessments of client needs and progress. The TIC study, under Texas Christian University's (TCU) leadership, involved developing and testing a series of brief (4-session), flexible, evidence-based treatment interventions targeting specific offender problems. These interventions employed a user-friendly modular format that does not require extensive staff training, and the modules themselves are intended to serve either as stand-alone interventions or as components of a comprehensive treatment program. The initial modules are currently being developed and tested in prison-based treatment settings. A series of field trials test and validate each of these specialized therapeutic modules for use with community-based correctional populations. The TCU developed a treatment model which provided conceptual and scientific foundations for the use of targeted interventions that addressed discretely client problems. Study questionnaires assessed client responses that were related to such topics as: treatment readiness and motivation, anger and hostility, criminal thinking, risky behaviors for HIV/AIDS/Hepatitis C, communication, and other social skill deficits. The TCU's Criminal Justice Client Evaluation of Self and Treatment (CJ-CEST) was implemented as the core "needs and engagement" assessment instrument.
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Flint [Michigan] Adolescent Study (FAS): A Longitudinal Follow-Up Study of Substance Use on Adult Transitional Events, 2000-2003 (ICPSR 37032)

Released/updated on: 2018-07-30
Geographic coverage: Flint, United States, Michigan
Time period: 2000-01-01--2003-01-01

The Flint [Michigan] Adolescent Study (FAS): A Longitudinal Follow-Up Study of Substance Use on Adult Transitional Events, 2000-2003 collection includes data collected as part of four follow-up waves conducted for the Flint Adolescent Study (FAS). These data are waves five through eight, the original four waves can be found in ICPSR study 34598 (Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997.)

The Flint Adolescent Study (FAS) originally interviewed 850 ninth graders in the four public high schools of Flint, MI, between 1994 and 1997. Follow-up wave interviews were conducted four years after high school, between 2000 and 2003, as participants transitioned to young adulthood. The study was conducted in collaboration with the projects of Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994 to gather the first four waves of the study. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.

Interviews were conducted face-to-face with each participant in a community location. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire containing questions about their drug use and sexual behavior by themselves.

Information obtained from the participants include: participation in church and community organizations; social support and influence of family and friends; self-esteem and psychological wellbeing; delinquent and violent behaviors; alcohol and substance use; sexual behavior and child bearing; school attitudes and performance; and family structure and relationships. Many items included in the follow-up waves repeat those present in the original surveys. Questions were also asked about driving behavior, stress, and racial identity. Data was also collected about participant education and occupation.

Demographic variables in this collection include age, sex, race, education, occupation, employment history, residence type, household composition, height and weight, marital status, and number of children.

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Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997 (ICPSR 34598)

Released/updated on: 2014-11-07
Geographic coverage: Flint, United States, Michigan
Time period: 1994-01-01--1997-01-01

The Flint Adolescent Study (FAS) interviewed 850 ninth graders in the four public high schools of Flint, MI. The study was conducted in collaboration with the Projects for Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.

Interviews were conducted face-to-face with each student at the school or in a community location for students who were out of school. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire by themselves which contains questions about their drug use and sexual behavior.

Information obtained from the youths includes: participation in church, school, and community organizations; social support and influence of family and friends; self esteem and psychological well being; delinquent and violent behaviors; alcohol and substance use; sex behavior and child bearing; school attitudes and performance; and family structure and relationships. The Youths were asked to complete a brief questionnaire at the end of the interview about their alcohol and substance use, and sexual behavior. In years 3 and 4 questions also asked about driving behavior, attachment style, stress, mentoring, and racial identity. Data was also collected about parental education and occupation.

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Los Angeles Metropolitan Area Surveys [LAMAS] 10, 1976 (ICPSR 36617)

Released/updated on: 2017-09-05
Geographic coverage: United States, Los Angeles, California

The Los Angeles Metropolitan Area Surveys [LAMAS] 10, 1976 collection reflects data gathered in 1976 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: child abuse, parent-child relationships, right to privacy, and political participation. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: accidents and emergencies, crime, and health care/relationship to doctors.

Demographic variables included in this dataset include age, marital status, religion, sex, education, occupation, income, geographic origin, and race.

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Midlife in the United States (MIDUS 1), 1995-1996 (ICPSR 2760)

Released/updated on: 2020-09-28
Geographic coverage: United States
Time period: 1995-01-01--1996-01-01

The Midlife in the United States (MIDUS) is a collaborative, interdisciplinary investigation of patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. A description of the study and findings from it are available at http://www.midus.wisc.edu.

The first wave of the MIDUS study (MIDUS 1 or M1) collected survey data from a total of 7,108 participants. The baseline sample was comprised of individuals from four subsamples: (1) a national RDD (random digit dialing) sample (n=3,487); (2) oversamples from five metropolitan areas in the U.S. (n=757); (3) siblings of individuals from the RDD sample (n=950); and (4) a national RDD sample of twin pairs (n=1,914). All eligible participants were non-institutionalized, English-speaking adults in the coterminous United States, aged 25 to 74.

Data from the samples were collected primarily in 1995/96. The survey (Project 1) dataset contains responses from a 30-minute Phone interview and two 50-page Self-Administered Questionnaire (SAQ) instruments. Of the 7,108 respondents who completed the Phone interview, 6,325 also completed the SAQ.

This updated version of the study is comprised of three primary datasets:

Dataset 1, Main, Siblings, and Twin Data, contains responses from the main survey of 7,108 respondents. Respondents were asked to provide extensive information on their physical and mental health throughout their adult lives, and to assess the ways in which their lifestyles, including relationships and work-related demands, contributed to the conditions experienced. Those queried were asked to describe their histories of physical ailments, including heart-related conditions and cancer, as well as the treatment and/or lifestyle changes they went through as a result. A series of questions addressed alcohol, tobacco, and illegal drug use, and focused on history of use, regularity of use, attempts to quit, and how the use of those substances affected respondents' physical and mental well-being. Additional questions addressed respondents' sense of control over their health, their awareness of changes in their medical conditions, commitment to regular exercise and a healthy diet, experience with menopause, the decision-making process used to deal with health concerns, experiences with nontraditional remedies or therapies, and history of attending support groups. Respondents were asked to compare their overall well-being with that of their peers and to describe social, physical, and emotional characteristics typical of adults in their 20's, 40's, and 60's. Information on the work histories of respondents and their significant others was also elicited, with items covering the nature of their occupations, work-related physical and emotional demands, and how their personal health had correlated to their jobs. An additional series of questions focusing on childhood queried respondents regarding the presence/absence of their parents, religion, rules/punishments, love/affection, physical/verbal abuse, and the quality of their relationships with their parents and siblings. Respondents were also asked to consider their personal feelings of accomplishment, desire to learn, sense of control over their lives, interests, and hopes for the future.

The Datasets previously numbered 2 and 3 have been removed to avoid redundancies, and all datasets have been renumbered. Please refer to the readme file.

Dataset 2, Twin Screener Data, provides the first national sample of twin pairs ascertained randomly via the telephone.

Dataset 3, Coded Text Responses, describes how open-ended textual responses in the MIDUS 1 Computer-Assisted Telephone Interview (CATI) and Self-Administered Questionnaire (SAQ) were transformed into categorical numeric codes. These codes are included in a stand-alone dataset containing only those cases (N=3,950) that contained text data in their responses.

Online Analysis Only: Datasets 1, 2, and 3 were merged together by the SU_ID variable to form "Merged Data with Weights (Online Analysis Only)" (Dataset 4) for online analysis capabilities.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

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Midlife in the United States (MIDUS Refresher 1), 2011-2014 (ICPSR 36532)

Released/updated on: 2025-09-17
Geographic coverage: United States
Time period: 2008-01-01--2009-01-01, 2011-01-01--2014-01-01

In 2011-2014, the MIDUS Refresher study recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey [ICPSR 2760]. The MIDUS Refresher survey employed the same comprehensive assessments as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09.

The MIDUS Refresher collection is split into two datasets: Aggregate Data and Coded Text Data. The Coded Text Dataset provides coded responses to open-ended question items in the Aggregate Dataset. The survey data collection (Project 1) [MIDUS, ICPSR 2760] consisted of a 30-minute phone interview followed by two 50-page mailed self-administered questionnaires. Survey data were collected on demographic, psycho-social, and physical and mental health information. This new crosssectional MIDUS sample allows the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. A further objective of the MIDUS Refresher sample was to strengthen cross-project analyses in MIDUS by increasing the sample sizes available for testing hypotheses dealing with the interplay of key factors (e.g., socioeconomic status, gender, psychosocial factors, biological factors) in mid- and laterlife health. To that end, the MIDUS Refresher sample followed the same multi-disciplinary protocol established in the main MIDUS sample, in that after completing the survey protocol respondents were asked to complete a cognitive assessment by phone (Project 3) [MIDUS 3, ICPSR 36346] and later became eligible to participate in daily diary assessments (Project 2) [MIDUS 2, ICPSR 4652] biomarker assessments (Project 4) [MIDUS 2: Biomarker Project, ICPSR 29282] and neuroscience assessments (Project 5) [MIDUS 2: Neuroscience Project, ICPSR 28683].

The MIDUS Refresher was funded by the National Institute on Aging as two separate but related efforts: The MIDUS Refresher younger decades (MRY), was fielded in November, 2011, and recruited over 2,100 new participants aged 25 to 54; Funding was later added for the MIDUS Refresher older decades (MRO), which was fielded in June, 2013 and recruited over 1,400 new participants aged 55 to 74.

Demographic variables include age, sex, gender, race, religion, and marital status.

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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 1997 (ICPSR 2477)

Released/updated on: 2006-05-15
Geographic coverage: United States
This is the 23nd annual survey in this series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), quaaludes, barbiturates (tranquilizers), cocaine, crack, and heroin. Other items include attitudes toward religion, parental influences, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime -- both in and out of school.
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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 1998 (ICPSR 2751)

Released/updated on: 2006-05-15
Geographic coverage: United States
This is the 24th annual survey in this series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), quaaludes, barbiturates (tranquilizers), cocaine, crack, and heroin. Other items include attitudes toward religion, parental influences, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime -- both in and out of school.
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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 1999 (ICPSR 2939)

Released/updated on: 2007-09-18
Geographic coverage: United States
This is the 25th annual survey in this series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), quaaludes, barbiturates (tranquilizers), cocaine, crack, and heroin. Other items include attitudes toward religion, parental influences, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime -- both in and out of school.
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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 2000 (ICPSR 3184)

Released/updated on: 2006-05-15
Geographic coverage: United States
This is the 26th annual survey in this series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions, but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), quaaludes, barbiturates (tranquilizers), cocaine, crack, GHB, and heroin. Other items include attitudes toward religion, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime -- both in and out of school.
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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 2002 (ICPSR 3753)

Released/updated on: 2006-05-15
Geographic coverage: United States
This is the 28th annual survey in this series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions, but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), Quaaludes (methaqualone), barbiturates (tranquilizers), cocaine, crack cocaine, GHB (gamma hydroxy butyrate), and heroin. Other items include attitudes toward religion, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime (both in and out of school).
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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 2003 (ICPSR 4019)

Released/updated on: 2006-05-15
Geographic coverage: United States
This is the 29th annual survey in this series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions, but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), Quaaludes (methaqualone), barbiturates (tranquilizers), cocaine, crack cocaine, GHB (gamma hydroxy butyrate), and heroin. Other items include attitudes toward religion, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime (both in and out of school).
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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 2004 (ICPSR 4264)

Released/updated on: 2005-12-15
Geographic coverage: United States
This is the 30th annual survey in this series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions, but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), Quaaludes (methaqualone), barbiturates (tranquilizers), cocaine, crack cocaine, GHB (gamma hydroxy butyrate), ecstasy, methamphetamine, and heroin. Other items include attitudes toward religion, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime (both in and out of school).
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Monitoring the Future: A Continuing Study of American Youth (12th-Grade Survey), 2005 (ICPSR 4536)

Released/updated on: 2007-07-18
Geographic coverage: United States
This survey of 12th-grade students is part of a series that explores changes in important values, behaviors, and lifestyle orientations of contemporary American youth. Students are randomly assigned to complete one of six questionnaires, each with a different subset of topical questions, but all containing a set of "core" questions on demographics and drug use. There are about 1,400 variables across the questionnaires. Drugs covered by this survey include tobacco, alcohol, marijuana, hashish, LSD, hallucinogens, amphetamines (stimulants), Ritalin (methylphenidate), Quaaludes (methaqualone), barbiturates (tranquilizers), cocaine, crack cocaine, GHB (gamma hydroxy butyrate), ecstasy, methamphetamine, and heroin. Other items include attitudes toward religion, changing roles for women, educational aspirations, self-esteem, exposure to drug education, and violence and crime (both in and out of school).
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Monitoring the Future: A Continuing Study of the Lifestyles and Values of Youth, 1993 (ICPSR 6367)

Released/updated on: 2006-08-21
Geographic coverage: United States
This is the nineteenth annual survey in this series that explores in important values, behaviors, and lifestyle orientations of contemporary American youth. The students are randomly assigned one of six questionnaires, each with a different subset of topical questions but all containing a set of "core" questions on demographics and drug use. There are about 1,300 variables across the questionnaires. Full details on the research design and procedures, sampling methodology, content areas, and questionnaire design, as well as percentage distributions by respondent's sex, race, region, college plans, and drug use, appear in the annual ISR volumes MONITORING THE FUTURE: QUESTIONNAIRE RESPONSES FROM THE NATION'S HIGH SCHOOL SENIORS.
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National Household Survey on Drug Abuse, 1998 (ICPSR 2934)

Released/updated on: 2013-05-06
Geographic coverage: United States
The National Household Survey on Drug Abuse (NHSDA) series measures the prevalence and correlates of drug use in the United States. The surveys are designed to provide quarterly, as well as annual, estimates. Information is provided on the use of illicit drugs, alcohol, and tobacco among members of United States households aged 12 and older. Questions include age at first use as well as lifetime, annual, and past-month usage for the following drug classes: marijuana, cocaine (and crack), hallucinogens, heroin, inhalants, alcohol, tobacco, and nonmedical use of prescription drugs, including psychotherapeutics. Respondents were also asked about personal and family income sources and amounts, substance abuse treatment history, illegal activities, problems resulting from the use of drugs, need for treatment for drug or alcohol use, criminal record, and needle-sharing. Questions on mental health and access to care, which were introduced in the 1994-B questionnaire (see NATIONAL HOUSEHOLD SURVEY ON DRUG ABUSE, 1994 [ICPSR 6949]), were retained in this administration of the survey. Also retained was the section on risk/availability of drugs that was reintroduced in 1996, and sections on driving behavior and personal behavior were added (see NATIONAL HOUSEHOLD SURVEY ON DRUG ABUSE, 1996 [ICPSR 2391]). The 1997 questionnaire (NATIONAL HOUSEHOLD SURVEY ON DRUG ABUSE, 1997 [ICPSR 2755]) introduced new items that the 1998 NHSDA continued on cigar smoking, people who were present when respondents used marijuana or cocaine for the first time (if applicable), reasons for using these two drugs the first time, reasons for using these two drugs in the past year, reasons for discontinuing use of these two drugs (for lifetime but not past-year users), and reasons respondents never used these two drugs. Both the 1997 and 1998 NHSDAs had a series of questions that were asked only of respondents aged 12 to 17. These items covered a variety of topics that may be associated with substance use and related behaviors, such as exposure to substance abuse prevention and education programs, gang involvement, relationship with parents, and substance use by friends. Demographic data include gender, race, age, ethnicity, marital status, educational level, job status, income level, veteran status, and current household composition.
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National Social Life, Health, and Aging Project (NSHAP): Round 1, [United States], 2005-2006 (ICPSR 20541)

Released/updated on: 2023-01-30
Geographic coverage: United States
Time period: 2005-07-01--2006-03-01

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.

Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

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National Social Life, Health, and Aging Project (NSHAP): Round 2 and Partner Data Collection, [United States], 2010-2011 (ICPSR 34921)

Released/updated on: 2023-05-24
Geographic coverage: United States
Time period: 2010-01-01--2011-01-01

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 2 interviews were conducted from August 2010 through May 2011, during which Round 1 Respondents were re-interviewed. An attempt was also made to interview individuals who were sampled in Round 1 but declined to participate. In addition, spouses or co-resident partners were also interviewed using the same instruments as the main respondents. This process resulted in 3,377 total respondents. The following files constitute Round 2: Core Data, Disposition of Round 1 Partner Data, Social Networks Data, Social Networks Update Data, Partner History Data, Partner History Update Data, Medications Data, Proxy Data, and Sleep Statistics Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships, and patient-physician communication, in addition to bereavement items. Data were also collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function, and a panel of biomeasures, including weight, waist circumference, height, blood pressure, smell, saliva collection, and taste.

The Disposition of Round 1 Partner files (Datasets 3 and 4) detail information derived from Section 6A items regarding the partner from Round 1 within the questionnaire. This provides a complete history for respondent partners across both rounds.

The Social Networks files (Datasets 5 and 6) contain one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file.

The Social Networks Update files (Datasets 7 and 8) detail respondents' current relationship status with each person identified on the network roster.

The Partner History file (Dataset 9) contains one record for each marriage, cohabitation, or romantic relationship identified in Section 6A of the questionnaire, including a current partner in Round 2 but excluding the partner from Round 1.

The Partner History Update file (Dataset 10) details respondents' current sexual partner information, as well as marital and cohabiting status.

The Medications Data file (Dataset 11) contains records for items listed in the medications log.

The Proxy Data files (Datasets 12 and 13) contain information from proxy interviews administered for Round 1 Respondents who were either deceased or whose health was too poor to participate in Round 2.

The Sleep Statistics Data files (Dataset 14 and 15) provide information on actigraphy sleep variables.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

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National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)

Released/updated on: 2024-09-09
Geographic coverage: United States
Time period: 2015-01-01--2016-01-01, 2020-01-01--2021-01-01

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.

The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.

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NICHD Study of Early Child Care and Youth Development: Phase I, 1991-1994 [United States] (ICPSR 21940)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 1991-01-01--1994-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

309 data files were compiled for this study and are organized into 3 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables, along with site differences, were examined. A set of variables that were psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-42 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Datasets. These data files comprise Parts 43-55 of the study data material.

  3. Raw Data Sets -- The raw data were made available and comprise Parts 56-309 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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NICHD Study of Early Child Care and Youth Development: Phase II, 1995-1999 [United States] (ICPSR 21941)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 1995-01-01--1999-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

193 data files were compiled for this study and are organized into 3 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-24 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 25-27 of the study data material.

  3. Raw Data Sets -- The raw data were made available and comprise Parts 28-193 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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NICHD Study of Early Child Care and Youth Development: Phase III, 2000-2004 [United States] (ICPSR 21942)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 2000-01-01--2004-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

504 data files were compiled for this study and are organized into 4 main groups:

  1. Analytical Data Sets (ADS) -- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-49 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as a supplement to the original Analytical Data Sets. These data files comprise Parts 50-55 of the study data material.

  3. Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 56-58 of the study data material.

  4. Raw Data Sets -- The raw data were made available and comprise Parts 59-505 of the study data material.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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NICHD Study of Early Child Care and Youth Development: Phase IV, 2005-2007 [United States] (ICPSR 22361)

Released/updated on: 2018-06-25
Geographic coverage: North Carolina, United States, Massachusetts, California, Kansas, Virginia, Arkansas, Wisconsin, Washington, Pennsylvania
Time period: 2005-01-01--2007-01-01

The overall purpose of this study was to examine the influence of variations in early childcare histories on the psychological development of infants and toddlers from a variety of family backgrounds. This general objective was addressed through a prospective, longitudinal study of the experiences of 1,364 children and their families, which took into account the complex interactions among child characteristics and those of the human and physical environments in which the children were reared.

Research Goals

The specific research aims were as follows:

  • Examining the relationship between infants' childcare arrangements (defined in terms of hours, type, quality, and stability of care and the age at which the child entered care) and children's concurrent and long-term development. Specifically, the study investigated the association between children's experiences in childcare and their social, emotional, language, and cognitive development. The social-emotional assessments included measures of attachment, independence, compliance, behavior problems, prosocial and antisocial behavior, and general competence in interacting with peers. Cognitive variables include general developmental level and problem solving skills. Language assessments incorporated measures of children's expressive and receptive communicative competence.

  • Examining whether the social ecology of the home moderates the effects of childcare, i.e., whether children from different home environments are differentially affected by similar childcare experiences. The study examined the moderating effects of parents' values and attitudes, psychological adjustment and mental health, stress and social support, child-rearing practices, time use, interactions with the child, the marital relationship, and family demographics.

  • Examining whether individual differences among children moderate the effects of infant care on child development. The study examined the moderating effects of such child characteristics as age, sex, health, birth order, and temperament.

  • Identify demographic and family characteristics associated with families' childcare decisions. The study examined whether specific childcare arrangements are related to the parents' social class, marital status, psychological adjustment and personality, child-rearing values and attitudes, parenting practices, stress, social support, marital relationship, and the availability of childcare in the community.

  • Provide a natural history of infant care in the 1990s, and help establish a baseline of data pertaining to the kinds of care being used by families. Whereas other national databases, such as those provided by the United States Census Bureau, provide static estimates of the number of children in different types of childcare, this network study supplements that knowledge with longitudinal data on successive enrollments into day care at various ages, patterns of arrangements used concurrently and over time, and the stability of arrangements during the first three years of life. One of the most valuable aspects of the collaborative study is the opportunity it provides to obtain a more complete and accurate picture of patterns of infant care used by families today. Census surveys use only gross categories of care (e.g., center vs. in-home). In this study, more fine-grained information regarding the types of centers and home-care facilities was gathered.

  • Examine the consequences for families of maternal employment and childcare choices. Family relationships, parental mental health, family stress, and so on, are not just inputs to child development or moderators of childcare effects, they are also outcomes. High-quality childcare may alleviate family stress and enhance parental adjustment. Low-quality childcare may add to the stress parents experience. Although the main focus in the study was on the effect of childcare on the child, the study also examined the effect of childcare on the family.

  • Identify demographic characteristics of childcare associated with childcare quality. Of interest to policy makers is another aspect of the study, the investigation of those regulatory characteristics that predict care of higher quality. These characteristics included the level and type of caregiver training, the size of the childcare group, the auspices of the childcare program (public/private, profit/nonprofit, independent/chain, employer-sponsored/church-based), whether the facility was licensed or unlicensed, the level of payment and fees, and whether the caregiver was a relative of the family.

Data File Organization

158 data files were compiled for this study and are organized into 4 main groups:

  1. Analytical Data Sets (ADS)-- The raw data were examined and composites defined by small groups of individual principal investigators according to the demographic, family, childcare, and child outcome content of the data. The psychometric and distributional qualities of the variables along with site differences were examined. A set of variables that was psychometrically and distributionally acceptable to be used in analytic analyses was designed to test the study hypotheses. These data files comprise Parts 1-19 of the study data material.

  2. Supplemental Data Sets -- New and revised analysis variables as well as across-time mean scores and primary composites were produced as supplements to the original Analytical Data Sets. These data files are Parts 20-26 of the study data material.

  3. Raw Census-Related Data Sets -- Files were produced using geocoded addresses for survey respondents to match block group-level data from the 1990 and 2000 Censuses for investigators to create additional measures of interest from the geocoded addresses. These data files comprise Parts 27-30 of the study data material.

  4. Raw Data Sets -- The raw data were made available and comprise Parts 31-158 of the study data material.

Included in this phase of the study are the output of several third-party software programs that were used during Phases II, III and IV to collect data for specific tasks or activities. These programs produced one output data file per subject, which were combined to produce some of the raw data files for those studies. The original program output is included as expanded documentation in this phase of the study.

Training Workshop

A three-day summer training workshop on the SECCYD was put on by NICHD at the Inter-University Consortium for Political and Social Research in Ann Arbor, Michigan in 2010. The binder from that workshop, which includes the Powerpoint slides used during presentations, are freely available to the public as part of the study documentation.

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PACARDO: Data on Drug Use and Behavior in School-Aged Children and Teenagers in Panama, Central America, and the Dominican Republic, 1999-2000 (ICPSR 34829)

Released/updated on: 2014-08-05
Geographic coverage: Central America, Nicaragua, El Salvador, Panama, Dominican Republic, Guatemala, Honduras, Costa Rica
Time period: 1999-01-01--2000-01-01
The PACARDO study, concatenated to combine Panamá (PA), Centroamérica (CA), and República Dominicana (RDO), was a multi-national collaborative epidemiological research study whose primary objective was to record and describe self-reported drug use and behavior patterns among school-aged youths in Latin America. During 1999-2000, anonymous self-administered questionnaires on drug involvement and related behaviors were administered to a cross-sectional, nationally representative sample that included a total of 12,797 students in the following seven countries: Costa Rica (n = 1,702), the Dominican Republic (n = 2,023), El Salvador (n = 1,628), Guatemala (n = 2,530), Honduras (n = 1,752), Nicaragua (n = 1,419), and Panama (n = 1,743). Estimates for exposure opportunity and actual use of alcohol, tobacco, inhalants, marijuana, cocaine (crack / cocoa paste), amphetamines and methamphetamines, tranquilizers, ecstasy, and heroin were assessed via responses about questions on age of first chance to try each drug, and first use.
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Pittsburgh Youth Study Middle Sample (1987 - 1991) [Pittsburgh, Pennsylvania] (ICPSR 36454)

Released/updated on: 2017-01-06
Geographic coverage: United States, Pennsylvania, Pittsburgh
Time period: 1987-01-01--1991-01-01

The Pittsburgh Youth Study (PYS) is part of the larger "Program of Research on the Causes and Correlates of Delinquency" initiated by the Office of Juvenile Justice and Delinquency Prevention in 1986. PYS aims to document the development of antisocial and delinquent behavior from childhood to early adulthood, the risk factors that impinge on that development, and help seeking and service provision of boys' behavior problems. The study also focuses on boys' development of alcohol and drug use, and internalizing problems.

PYS consists of three samples of boys who were in the first, fourth, and seventh grades in Pittsburgh, Pennsylvania public schools during the 1987-1988 academic year (called the youngest, middle, and oldest sample, respectively). Using a screening risk score that measured each boy's antisocial behavior, boys identified at the top 30 percent within each grade sample on the screening risk measure (n=~250), as well as an equal number of boys randomly selected from the remainder (n=~250), were selected for follow-up. Consequently, the final sample for the study consisted of 1,517 total students selected for follow-up. 506 of these students were in the oldest sample, 508 were in the middle sample, and 503 were in the youngest sample.

Assessments were conducted semiannually and then annually using multiple informants (i.e., boys, parents, teachers) between 1987 and 2010. The youngest sample was assessed from ages 6-19 and again at ages 25 and 28. The middle sample was assessed from ages 9-13 and again at age 23. The oldest sample was assessed from ages 13-25, with an additional assessment at age 35. Information has been collected on a broad range of risk and protective factors across multiple domains (e.g., individual, family, peer, school, neighborhood). Measures of conduct problems, substance use/abuse, criminal behavior, mental health problems have been collected.

This study collection contains only the middle sample respondents.

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Restricted

Pittsburgh Youth Study Youngest Sample (1987 - 2001) [Pittsburgh, Pennsylvania] (ICPSR 36453)

Released/updated on: 2017-01-06
Geographic coverage: United States, Pennsylvania, Pittsburgh
Time period: 1987-01-01--1991-01-01, 1991-01-01--2001-01-01, 2006-01-01--2007-01-01, 2009-01-01--2010-01-01

The Pittsburgh Youth Study (PYS) is part of the larger "Program of Research on the Causes and Correlates of Delinquency" initiated by the Office of Juvenile Justice and Delinquency Prevention in 1986. PYS aims to document the development of antisocial and delinquent behavior from childhood to early adulthood, the risk factors that impinge on that development, and help seeking and service provision of boys' behavior problems. The study also focuses on boys' development of alcohol and drug use, and internalizing problems.

PYS consists of three samples of boys who were in the first, fourth, and seventh grades in Pittsburgh, Pennsylvania public schools during the 1987-1988 academic year (called the youngest, middle, and oldest sample, respectively). Using a screening risk score that measured each boy's antisocial behavior, boys identified at the top 30 percent within each grade sample on the screening risk measure (n=~250), as well as an equal number of boys randomly selected from the remainder (n=~250), were selected for follow-up. Consequently, the final sample for the study consisted of 1,517 total students selected for follow-up. 506 of these students were in the oldest sample, 508 were in the middle sample, and 503 were in the youngest sample.

Assessments were conducted semiannually and then annually using multiple informants (i.e., boys, parents, teachers) between 1987 and 2010. The youngest sample was assessed from ages 6-19 and again at ages 25 and 28. The middle sample was assessed from ages 9-13 and again at age 23. The oldest sample was assessed from ages 13-25, with an additional assessment at age 35. Information has been collected on a broad range of risk and protective factors across multiple domains (e.g., individual, family, peer, school, neighborhood). Measures of conduct problems, substance use/abuse, criminal behavior, mental health problems have been collected.

This study collection contains only the youngest sample respondents.

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Partially restricted
Simple Crosstabs

Raising Healthy Children, Seattle Metropolitan Area, 2004-2011 (ICPSR 37584)

Released/updated on: 2020-03-31
Geographic coverage: Seattle, United States, Washington
Time period: 2004-01-01--2011-01-01
Raising Healthy Children, initially funded in 1993, is an etiologic study of the development of substance use, with a randomized test of a social development intervention to prevent drug misuse and promote positive youth development nested within it. The study originally included 1,040 individuals who were recruited from 10 schools in a suburban school district in the Northwest United States in 1993, when they were in first or second grade. This dataset is an extension of the original study and includes data collected when participants were ages 18, 21, and 24/25. These data focused on age 18 environmental risk and protective factors for substance misuse and addiction from family, school, peer, community, and individual domains, as well as tobacco, alcohol, and marijuana use frequency at ages 18, 21, and 24. Of the 1,040 participants in the study, 494 consented to have their data archived. Demographic information collected includes race, sex, household income, and parent education level.
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Simple Crosstabs

Recidivism in the National Longitudinal Survey of Youth 1997 - Standalone Data (Rounds 1 to 13) (ICPSR 34562)

Released/updated on: 2014-02-06
Geographic coverage: United States
Time period: 1997-01-01--2009-01-01

The NLSY97 standalone data files are intended to be used by crime researchers for analyses without requiring supplementation from the main NLSY97 data set. The data contain age-based calendar year variables on arrests and incarcerations, self-reported criminal activity, substance use, demographic variables and relevant variables from other domains which are created using the NLSY97 data. The main NLSY97 data are available for public use and can be accessed online at the NLS Investigator Web site and at the NACJD Web site (as ICPSR 3959). Questionnaires, user guides and other documentation are available at the same links. The National Longitudinal Survey of Youth 1997 (NLSY97) was designed by the United States Department of Labor, comprising the National Longitudinal Survey (NLS) Series. Created to be representative of United States residents in 1997 who were born between the years of 1980 and 1984, the NLSY97 documents the transition from school to work experienced by today's youths through data collection from 1997. The majority of the oldest cohort members (age 16 as of December 31, 1996) were still in school during the first survey round and the youngest respondents (age 12) had not yet entered the labor market.

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SABE - Survey on Health, Well-Being, and Aging in Latin America and the Caribbean, 2000 (ICPSR 3546)

Released/updated on: 2006-02-17
Geographic coverage: Cuba, Argentina, Barbados, Uruguay, Brazil, Mexico, Chile, Global
Time period: 1999-01-01--2000-01-01
The Survey on Health, Well-Being, and Aging in Latin America and the Caribbean (Project SABE) was conducted during 1999 and 2000 to examine health conditions and functional limitations of persons aged 60 and older in the countries of Argentina, Barbados, Brazil, Chile, Cuba, Mexico, and Uruguay, with special focus on persons over 80 years of age. Project SABE was administered in the official language of each country: Spanish in Buenos Aires (Argentina), Mexico City (Mexico), Santiago (Chile), Havana (Cuba), and Montevideo (Uruguay), English in Bridgetown (Barbados), and Portuguese in Sao Paulo (Brazil). Goals of the project were to (a) describe the health conditions of older adults (aged 60 and older with special focus on persons over 80) with regard to chronic and acute diseases, disability, and physical and mental impairment, (b) evaluate the extent to which older adults used and had access to health care services, including services that are outside the formal system (local healers, traditional medicine), (c) evaluate the proportional contribution by principal sources of support -- relatives and family networks, public assistance, and private resources (income, assets) -- towards meeting the health-related needs of older adults, (d) evaluate access to health insurance offered by private organizations, governmental institutions, and mixed systems, as well as the extent to which that insurance was actually used, (e) analyze the differentials in the self-evaluation of health conditions, access to health care, and sources of support with regard to socioeconomic group, gender, and birth cohort, (f) evaluate the relationships between strategic factors -- health-related behavior, occupational background, socioeconomic status, gender, and cohort -- and health conditions, according to the health evaluation at the time of the survey, and (g) carry out comparative analyses in countries that share similar characteristics but that differ with regard to such factors as the role of family support, public assistance, access to health services, and health-related behavior and exposure to risk. Demographic variables include age, sex, race, level of education, birthplace, religion, ethnic group, marital status, and income. Also examined were cognitive status, health status, functional status, nutritional status, and use and accessibility of services
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Simple Crosstabs

Strengthening Washington DC Families (SWFP) Project, 1998 - 2004 (ICPSR 34425)

Released/updated on: 2012-12-10
Geographic coverage: District of Columbia, United States, Maryland
Time period: 1998-11-01--2004-04-01

The Strengthening Washington DC Families (SWFP) Project examined the effectiveness of an evidence-based prevention program implemented on a sample of 715 families across mulitple settings in an urban area. The study area also included suburban Maryland. SWFP was set up as a true experimental design with families being randomly placed into one of four treatment conditions:

  • child skills training only
  • parent skills training only
  • parent and child skills training plus family skills training
  • minimal treatment controls

Entire families were assigned to one of the four treatment conditions. Data were collected from all family members who participated in the program. Thus the individual data files contain more than 715 records. The parent file contains 796 cases and the child file contains 961 cases.

The Strengthening Families Program is based on cognitive-behavioral social learning theory and family systems theory targeting elementary school-aged children. In this program parents receive training in parenting skills, children receive training primarily in social skills, and families receive family skills training. The aim of the program is to effectively reduce parent, child, and family risk factors for substance use and delinquency.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)

Released/updated on: 2025-08-05
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2001-03-01--2003-02-15
The Study of Women's Health Across the Nation (SWAN), is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2001 and 2003, 2,617 of the 3,302 women that joined SWAN were seen for their fifth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis, and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)

Released/updated on: 2025-06-30
Geographic coverage: Inkster, Hackensack, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2002-03-15--2004-02-15
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2002 and 2004, 2,448 of the 3,302 women that joined SWAN were seen for their sixth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2004-2006: Visit 08 Dataset (ICPSR 32122)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2004-03-15--2006-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2004 and 2006, 2,278 of the 3,302 women that joined SWAN were seen for their eighth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the eighth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2005-2007: Visit 09 Dataset (ICPSR 32721)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2005-02-15--2007-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2005 and 2007, 2,255 of the 3,302 women that joined SWAN were seen for their ninth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the ninth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)

Released/updated on: 2018-11-15
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2006-02-15--2008-01-31
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2006 and 2008, 2,245 of the 3,302 women that joined SWAN were seen for their tenth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan), Boston, MA (Massachusetts General Hospital), Chicago, IL (Rush Presbyterian-St. Luke's Medical Center), Almaeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente), Los Angeles, CA (University of California, Los Angeles), Hackensack, NJ (Hackensack University Medical Center) and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the tenth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Baseline Dataset, [United States], 1996-1997 (ICPSR 28762)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1996-01-01--1997-11-30

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1996 and 1997, 3,302 participants joined SWAN through 7 designated research centers. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. This is the next phase of data collection after the original collection of the screening data (ICPSR 4368).

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)

Released/updated on: 2019-05-29
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1999-02-01--2001-01-31

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 04 Dataset, [United States], 2000-2002 (ICPSR 30142)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 2000-03-01--2002-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 2000 and 2002, 2,679 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated

Survey and Assessment of Vietnamese Youth (SAVY), 2003 (ICPSR 24387)

Released/updated on: 2009-01-13
Geographic coverage: Vietnam (Socialist Republic)
Time period: 2003-10-01--2004-01-01
The Survey and Assessment of Vietnamese Youth (SAVY) is the first national survey on adolescents and youth to evaluate health status and other important development issues of the group of married and unmarried young people aged 14-25 from ethnic, rural, and urban areas of 42 provinces across Vietnam. The study provides detailed analysis and disaggregation of data for comparison purposes of specific groups including young men and women, rural and urban youth, married and unmarried young people, and young people of differing education levels. The survey was designed to assess education, employment, health and reproductive behavior and other development issues of adolescent and young people including HIV/AIDS, substance use, injuries, and violence. SAVY also explored young people's perceptions and attitudes as well as their future expectations.
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Test and Linkage to Care (TLC_IDU), Kenya, 2012-2017 (ICPSR 39800)

Released/updated on: 2026-05-28
Geographic coverage: Nairobi Province, Kenya, Mombasa
Time period: 2012-01-01--2017-01-01

This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.

The Testing & Linkage to Care 'TLC_IDU' study aimed to integrate STTR elements to the base Government of Kenya (GoK) program, including rapid CD4 cell count testing, ART treatment support using peer case support, and evaluation of community viral load. TLC_IDU addressed a most at-risk population (MARP) by focusing on Nairobi and coastal Mombasa (including Malindi), where most injecting drug users (IDU) in Kenya reside. Data was collected at baseline and at five semi-annual follow-ups.