Adolescent and Family Development Project, Erie County, New York, 2007-2017 (ICPSR 37620)
The University of Buffalo Adolescent and Family Development Project (AFDP) includes a community sample of adolescents assessed in a 9-wave longitudinal study between 2007 and 2017. The 387 adolescents were 11-12 year old children at recruitment and were assessed annually. The data provide an opportunity to examine risk and protective factors from multiple levels of influences (individual differences, family, peers, community) that might contribute to adolescent substance use in order to inform the development of comprehensive preventive interventions for at-risk youth. The project was largely focused on understanding the development of an internalizing pathway to initiation and escalation of substance use, and eventual development of use-related problems. This was done by examining: 1) the intersection of externalizing and internalizing problems, 2) peer context and use-related motives as a potential mediating mechanism, and 3) whether motivational aspects of personality moderated the proposed mediational paths. Also of interest was whether risk for an internalizing pathway to substance use varied by chronological age or stage of use.
This collection is organized into 13 data parts. Waves 1 through 3 and Waves 7 through 9 each contain 2 datasets pertaining to either a child (DS1, DS3, DS5, DS8, DS10, DS12) or caretaker (DS2, DS4, DS6, DS9, DS11, DS13) interview. All child interview data from Waves 4 through 6 are contained in DS7. Various demographic information, such as age, gender, race, and ethnicity, is also included in the data.
Contextualizing and Responding to HIV Risk Behaviors among Black Drug Offenders, New York, 2016 (ICPSR 37590)
The purpose of this study was to pilot test the potential for improvement in antiretroviral medication adherence of an adapted group-based, multi-session, community-based Antiretroviral Therapy (ART) adherence and risk reduction intervention, Project ADHerence Education and Risk Evaluation (ADHERE). Project ADHERE was compared to a single-session group-based medication adherence intervention, Medication Adherence and Care Engagement (MACE). A secondary aim was to examine the impact of Project ADHERE on HIV risk behaviors (i.e., illicit drug use and unprotected sexual behavior).
Formerly incarcerated Black drug offenders are at an elevated risk for HIV infection. Despite substantial research expressing the need for HIV prevention services for ex-offenders postrelease, this population has limited access to quality programming and services related to HIV risk reduction. This study seeks to inform and adapt an HIV risk reduction intervention to address the needs of formerly incarcerated Black drug offenders who are being released from prisons in the New York City metropolitan area. The study utilizes qualitative and quantitative methods to inform and adapt an HIV prevention intervention for this study population.
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): HIV/HEPATITIS Prevention for Re-Entering Drug Offenders (ICPSR 29061)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Inmate Pre-Release Assessment (IPASS), 2001 [United States] (ICPSR 29201)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): National Criminal Justice Treatment Program (NCJTP) Survey in the United States, 2002-2008 (ICPSR 27382)
Criminal Justice Drug Abuse Treatment Studies (CJ-DATS): Step 'N Out, 2002-2006 [United States] (ICPSR 30221)
Drug Use Trajectories: Ethnic/Racial Comparisons, 1998-2002 [United-States] (ICPSR 30862)
Dynamics of Retail Methamphetamine Markets in New York City, 2007-2009 (ICPSR 29821)
Flint [Michigan] Adolescent Study (FAS): A Longitudinal Follow-Up Study of Substance Use on Adult Transitional Events, 2000-2003 (ICPSR 37032)
The Flint [Michigan] Adolescent Study (FAS): A Longitudinal Follow-Up Study of Substance Use on Adult Transitional Events, 2000-2003 collection includes data collected as part of four follow-up waves conducted for the Flint Adolescent Study (FAS). These data are waves five through eight, the original four waves can be found in ICPSR study 34598 (Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997.)
The Flint Adolescent Study (FAS) originally interviewed 850 ninth graders in the four public high schools of Flint, MI, between 1994 and 1997. Follow-up wave interviews were conducted four years after high school, between 2000 and 2003, as participants transitioned to young adulthood. The study was conducted in collaboration with the projects of Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994 to gather the first four waves of the study. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.
Interviews were conducted face-to-face with each participant in a community location. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire containing questions about their drug use and sexual behavior by themselves.
Information obtained from the participants include: participation in church and community organizations; social support and influence of family and friends; self-esteem and psychological wellbeing; delinquent and violent behaviors; alcohol and substance use; sexual behavior and child bearing; school attitudes and performance; and family structure and relationships. Many items included in the follow-up waves repeat those present in the original surveys. Questions were also asked about driving behavior, stress, and racial identity. Data was also collected about participant education and occupation.
Demographic variables in this collection include age, sex, race, education, occupation, employment history, residence type, household composition, height and weight, marital status, and number of children.
The Future of Families and Child Wellbeing Study (FFCWS), Public Use, United States, 1998-2024 (ICPSR 31622)
The Future of Families and Child Wellbeing Study (FFCWS, formerly known as the Fragile Families and Child Wellbeing Study) follows a cohort of nearly 5,000 children born in large, U.S. cities between 1998 and 2000. The study oversampled births to unmarried couples; and, when weighted, the data are representative of births in large U.S. cities at the turn of the century. The FFCWS was originally designed to address four questions of great interest to researchers and policy makers:
- What are the conditions and capabilities of unmarried parents, especially fathers?
- What is the nature of the relationships between unmarried parents?
- How do children born into these families fare?
- How do policies and environmental conditions affect families and children?
The FFCWS consists of interviews with mothers, fathers, and/or primary caregivers at birth and again when children are ages 1, 3, 5, 9, 15, and 22. The parent interviews collected information on attitudes, relationships, parenting behavior, demographic characteristics, health (mental and physical), economic and employment status, neighborhood characteristics, and program participation. Beginning at age 9, children were interviewed directly (either during the home visit or on the telephone). The direct child interviews collected data on family relationships, home routines, schools, peers, and physical and mental health, as well as health behaviors.
A collaborative study of the FFCWS, the In-Home Longitudinal Study of Pre-School Aged Children (In-Home Study) collected data from a subset of the FFCWS Core respondents at the Year 3 and 5 follow-ups to ask how parental resources in the form of parental presence or absence, time, and money influence children under the age of 5. The In-Home Study collected information on a variety of domains of the child's environment, including: the physical environment (quality of housing, nutrition and food security, health care, adequacy of clothing and supervision) and parenting (parental discipline, parental attachment, and cognitive stimulation). In addition, the In-Home Study also collected information on several important child outcomes, including anthropometrics, child behaviors, and cognitive ability. This information was collected through interviews with the child's primary caregiver, and direct observation of the child's home environment and the child's interactions with his or her caregiver.
Similar activities were conducted during the Year 9 follow-up. At the Year 15 follow-up, a condensed set of home visit activities were conducted with a subsample of approximately 1,000 teens. Teens who participated in the In-Home Study were also invited to participate in a Sleep Study and were asked to wear an accelerometer on their non-dominant wrist for seven consecutive days to track their sleep (Sleep Actigraphy Data) and that day's behaviors and mood (Daily Sleep Actigraphy and Diary Survey Data).
An additional collaborative study collected data from the child care provider (Year 3) and teacher (Years 9 and 15) through mail-based surveys. Saliva samples were collected at Year 9 and 15 (Biomarker file and Polygenic Scores). The Study of Adolescent Neural Development (SAND) COVID Study began data collection in May 2020 following the onset of the COVID-19 pandemic. It included online surveys with the young adult and their primary caregiver.
The FFCWS began its seventh wave of data collection in October 2020, around the focal child's 22nd birthday. Data collection and interviews continued through January 2024. The Year 22 wave included a young adult (YA) survey with the original focal child and a primary caregiver (PCG) survey. Data were also collected on the children of the original focal child (referred to as Generation 3, or G3).
In 2017, the FFCWS team announced the Fragile Families (FF) Challenge, a collaborative effort in which participants were tasked with using machine learning methods and FFCWS data (Baseline to Year 9) to build a model that would predict six key outcomes at Year 15. Materials used in the FF Challenge have been archived in this collection.
Documentation for these files is available on the FFCWS website under Data and Documentation. For details of updates made to the FFCWS data files, please see the project's Data Alerts page.
Data collection for the Future of Families and Child Wellbeing Study was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) of the National Institutes of Health under award numbers R01HD36916, R01HD39135, and R01HD40421, as well as a consortium of private foundations.
Below is the citation for use of the FFCWS data accessed through ICPSR. For information on additional citation requirements when using FFCWS in publications, please refer to this FAQ on the FFCWS project site.
Johns Hopkins University Prevention Research Center - Risks for Transitions in Drug Use Among Urban Adults, Baltimore City, 2008-2011 (ICPSR 36622)
The Johns Hopkins University Prevention Research center - Risks for Transitions, Baltimore city, 2008-2011 study (JHU PRC Risks for Transition in Drug Use among Urban Adults) represents data collected for a 25 years follow-up from the original JHU PRC study. At the start of the data collection, a cohort of 2,311 youth were randomly assigned to two classroom-based universal preventive interventions implemented in 43 classrooms of 19 public schools located in 5 socio-demographically distinct areas in Eastern Baltimore. This collection includes data from 1,434 respondents from the original cohort collected in 2008-2012. The mean age of the respondents was 30-32 years old.
Psychopathology (major depressive episode, phobia and anxiety disorders) was assessed using modules from the Composite International Diagnostic Interview-University of Michigan Version, CIDI- UM (WHO, 1997). An antisocial symptom scale adapted from the National Epidemiologic Survey of Alcohol and Related Conditions (NESARC) was administered which consisted of 30 questions that assessed behaviors experienced since turning 18 years of age. The alcohol, tobacco and drug modules of the interview were modeled after NESARC Alcohol Use Disorder and Associated Disabilities Interview Schedule-IV. Types of information in these modules collected include age of onset, use in past year and prior past year, frequency and recency of use, and DSM-IV abuse and dependence criteria. Socioeconomic status indicators, variables on education, employment, marital status, parenthood, social supports, family history of mental health and drug problems, general health, treatment utilization, and life events are included in this dataset.
This dataset includes 3,140 variables.
Los Angeles Metropolitan Area Surveys [LAMAS] 10, 1976 (ICPSR 36617)
The Los Angeles Metropolitan Area Surveys [LAMAS] 10, 1976 collection reflects data gathered in 1976 as part of the Los Angeles Metropolitan Area Surveys (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.
The LAMAS instruments, indexes, and scales were used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this survey cover respondents' attitudes toward the following topics: child abuse, parent-child relationships, right to privacy, and political participation. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: accidents and emergencies, crime, and health care/relationship to doctors.
Demographic variables included in this dataset include age, marital status, religion, sex, education, occupation, income, geographic origin, and race.
Midlife in the United States (MIDUS 2): Biomarker Project, 2004-2009 (ICPSR 29282)
The Biomarker study is Project 4 of the Midlife in the United States (MIDUS) longitudinal study, a national survey of more than 7,000 Americans (aged 25 to 74) begun in 1994. The purpose of the larger study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. With support from the National Institute on Aging (NIA), a longitudinal follow-up of the original MIDUS samples [core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)] was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). A description of the study and findings from it are available on the MIDUS website.
The Biomarker Project (Project 4) of MIDUS 2 contains data from 1,255 respondents. These respondents include two distinct subsamples, all of whom completed the Project 1 Survey: (1) longitudinal survey sample (n = 1,054) and (2) Milwaukee sample (n = 201). The Milwaukee group contained individuals who participated in the baseline MIDUS Milwaukee study, initiated in 2005. The purpose of the Biomarker Project (Project 4) was to add comprehensive biological assessments on a subsample of MIDUS respondents, thus facilitating analyses that integrate behavioral and psychosocial factors with biology. The broad aim is to identify biopsychosocial pathways that contribute to diverse health outcomes. A further theme is to investigate protective roles that behavioral and psychosocial factors have in delaying morbidity and mortality, or in fostering resilience and recovery from health challenges once they occur. The research was not disease-specific, given that psychosocial factors have relevance across multiple health endpoints.
Biomarker data collection was carried out at three General Clinical Research Centers (at UCLA, University of Wisconsin, and Georgetown University). The biomarkers reflect functioning of the hypothalamic-pituitary-adrenal axis, the autonomic nervous system, the immune system, cardiovascular system, musculoskeletal system, antioxidants, and metabolic processes. Our specimens (fasting blood draw, 12-hour urine, saliva) allow for assessment of multiple indicators within these major systems. The protocol also included assessments by clinicians or trained staff, including vital signs, morphology, functional capacities, bone densitometry, medication usage, and a physical exam. Project staff obtained indicators of heart-rate variability, beat to beat blood pressure, respiration, and salivary cortisol assessments during an experimental protocol that included both a cognitive and orthostatic challenge. Finally, to augment the self-reported data collected in Project 1, participants completed a medical history, self-administered questionnaire, and self-reported sleep assessments. For respondents at one site (UW-Madison), objective sleep assessments were also obtained with an Actiwatch(R) activity monitor.
Mindful Body Awareness Training for Medication for Opioid Use Disorder (MOUD), Pacific Northwest, 2019-2024 (ICPSR 39235)
Multi-Site Evaluation of Reduced Probation Caseload Size in an Evidence-Based Practice Setting in Oklahoma City, Oklahoma, Polk County, Iowa, and Colorado, 1997-2010 (ICPSR 31961)
National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)
Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.
The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.
Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.
Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.
From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.
Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).
Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.
The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.
National Social Life, Health, and Aging Project (NSHAP): Round 1, [United States], 2005-2006 (ICPSR 20541)
The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.
Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.
NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.
National Social Life, Health, and Aging Project (NSHAP): Round 2 and Partner Data Collection, [United States], 2010-2011 (ICPSR 34921)
The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 2 interviews were conducted from August 2010 through May 2011, during which Round 1 Respondents were re-interviewed. An attempt was also made to interview individuals who were sampled in Round 1 but declined to participate. In addition, spouses or co-resident partners were also interviewed using the same instruments as the main respondents. This process resulted in 3,377 total respondents. The following files constitute Round 2: Core Data, Disposition of Round 1 Partner Data, Social Networks Data, Social Networks Update Data, Partner History Data, Partner History Update Data, Medications Data, Proxy Data, and Sleep Statistics Data.
Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships, and patient-physician communication, in addition to bereavement items. Data were also collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function, and a panel of biomeasures, including weight, waist circumference, height, blood pressure, smell, saliva collection, and taste.
The Disposition of Round 1 Partner files (Datasets 3 and 4) detail information derived from Section 6A items regarding the partner from Round 1 within the questionnaire. This provides a complete history for respondent partners across both rounds.
The Social Networks files (Datasets 5 and 6) contain one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file.
The Social Networks Update files (Datasets 7 and 8) detail respondents' current relationship status with each person identified on the network roster.
The Partner History file (Dataset 9) contains one record for each marriage, cohabitation, or romantic relationship identified in Section 6A of the questionnaire, including a current partner in Round 2 but excluding the partner from Round 1.
The Partner History Update file (Dataset 10) details respondents' current sexual partner information, as well as marital and cohabiting status.
The Medications Data file (Dataset 11) contains records for items listed in the medications log.
The Proxy Data files (Datasets 12 and 13) contain information from proxy interviews administered for Round 1 Respondents who were either deceased or whose health was too poor to participate in Round 2.
The Sleep Statistics Data files (Dataset 14 and 15) provide information on actigraphy sleep variables.
NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.
National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)
The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.
Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.
The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.
Northwestern Juvenile Project (Cook County, IL): Baseline, 1995-1998 [Restricted] (ICPSR 32603)
Established in 1995, the Northwestern Juvenile Project assessed alcohol, drug, or mental (ADM) service needs of juvenile detainees. The study took place between the years of 1995 and 1998, sampling 1,829 male and female juvenile detainees within Cook County, Illinois. This study had two specific aims:
- To assess the juvenile detainees ADM service needs (including psychiatric disorder, comorbidity and functional impairment); and,
- To determine the extent that juvenile detainees who need ADM services received them while in the custody of the criminal justice system.
This study has four methodological advantages over prior research:
- Stratified random sampling;
- Sufficiently large N (approximately 600 females and 1200 males);
- Reliable instruments; and
- Comorbidity data.
Questions for respondents generally pertain to demographics, medical and sexual history, criminal history, aptitude and mental health assessment, familial and social relations, drug abuse, and education.
Northwestern Juvenile Project, (Cook County, Illinois): Follow-up 1, 1998-2001 (ICPSR 34931)
This study contains data from the first follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. This initial follow-up occurred approximately three years after the baseline interview and focused on studying the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risk behaviors.
The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Changes in disorders over time were studied (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. This study addressed patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors were interrelated.
The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1005 African Americans, 524 Hispanics, 296 non-Hispanic white respondents. Participants were tracked from the time they left detention. Re-interviews were conducted regardless of where respondents were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.
Northwestern Juvenile Project (Cook County, Illinois): Follow-up 2, 1999 - 2005 (ICPSR 36629)
This study contains data from the second follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. This second follow-up occurred approximately 3.5 years after the baseline interview and focused on the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risky behaviors.
The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Researchers studied changes in disorders over time (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. The NJP addressed the patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors are interrelated.
The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1,005 African Americans, 524 Hispanics, 296 non-Hispanic white respondents. A random subsample of 997 of the baseline participants were chosen for second follow-up interviews. Researchers tracked participants from the time they left detention and re-interviewed them regardless of where they were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.
The study was funded by OJJDP, several institutes at the National Institutes of Health, and other federal agencies and private foundations. The National Institutes of Health funded an additional component on HIV/AIDS risk behaviors.
Northwestern Juvenile Project (Cook County, Illinois), Follow-up 3, 1999-2007 (ICPSR 36651)
This study contains data from the third follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. The third follow-up occurred approximately four years after the baseline interview and focused on studying the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risk behaviors.
The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Changes in disorders over time were studied (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. This study addressed patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors were interrelated.
The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1005 African Americans, 524 Hispanics, 296 non-Hispanic white respondents. Participants were tracked from the time they left detention. A random subsample of 997 of the baseline participants were chosen for third follow-up interviews. Re-interviews were conducted regardless of where respondents were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.
Northwestern Juvenile Project (Cook County, Illinois), Follow-up 4, 2000-2006 (ICPSR 36686)
This study contains data from the fourth follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. The fourth follow-up occurred approximately 4.5 years after the baseline interview and focused on studying the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risk behaviors.
The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Changes in disorders over time were studied (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. This study addressed patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors were interrelated.
The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1005 African Americans, 524 Hispanics, 296 non-Hispanic white respondents. Participants were tracked from the time they left detention. All participants were eligible for fourth follow-up interviews. Re-interviews were conducted regardless of where respondents were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.
Northwestern Juvenile Project (Cook County, Illinois), Follow-up 5, 2002-2006 (ICPSR 36949)
This study contains data from the fifth follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. The fifth follow-up occurred approximately 6 years after the baseline interview and focused on studying the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risk behaviors.
The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Changes in disorders over time were studied (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. This study addressed patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors were interrelated.
The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1005 African Americans, 524 Hispanics, and 296 non-Hispanic white respondents. Participants were tracked from the time they left detention. All participants were eligible for the fifth follow-up interview. Re-interviews were conducted regardless of where respondents were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.
Northwestern Juvenile Project (Cook County, Illinois), Follow-up 6, 2004-2008 (ICPSR 36983)
This study contains data from the sixth follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. The sixth follow-up occurred approximately 8 years after the baseline interview and focused on studying the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risk behaviors.
The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Changes in disorders over time were studied (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. This study addressed patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors were interrelated.
The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1005 African Americans, 524 Hispanics, and 296 non-Hispanic white respondents. Participants were tracked from the time they left detention. All participants were eligible for the sixth follow-up interview. Re-interviews were conducted regardless of where respondents were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.
Older Drug Users: A Life Course Study of Turning Points in Drug Use [in a large Southeastern Metropolitan Area], 2009-2010 (ICPSR 34296)
The Older Drug Users study was a mixed method, retrospective longitudinal study that interviewed 92 respondents in a large southeastern metropolitan area from January 2009 to August 2010. The goal of the study was to provide in-depth life history on the drug use trajectories of older drug users, specific turning points in drug use patterns, and drug-related health risks over a person's life course.
Quantitiave and qualititative data was collected from each respondent. Two questionnaires were used to collect the quantitative data. The first questionnaire asked about the person's basic demographic information (gender, race, age, and education), health history (has the person been diagnosed with HIV, AIDS, or Hepatitis C), and drug use (route and frequency) and treatment in the past 30 days across ten different substances (tobacco, alcohol, marijuana, hallucinogens/LSD/Ecstasy/club drugs, prescription pills, cocaine, crack, heroin, amphetamines, and methamphetamine).
A second questionnaire was used to serve as a retrospective life history of the person. The questionnaire asked about the same drug use and treatment of the same ten drugs but this time looking at the entire year. Questions were also asked concerning the person's living arrangement, employment, family roles, drug roles, and sexual activity over the course of the year. The questions were repeated for every year of the person's life from birth up to the time the person was interviewed.
Research on Adaptive Interests, Skills, and Environments (RAISE) Study, North Carolina, 2015-2019 (ICPSR 36850)
Social Influence Strategies during a Web-based Smoking Prevention Intervention for Adolescents, Florida, 2020 (ICPSR 39290)
Testing an Occupational Stress Intervention for Harm Reduction Workers in Substance Misuse Settings, Texas, 2024-2025 (ICPSR 39277)
This multi-method study seeks to understand both the factors that contribute to harm reduction workers' occupational stress and those that mitigate it by pursuing the following aims:
Aim 1:
- Understanding occupational stressors and resilience strategies among this population by using semi-structured qualitative focus groups with leaders and workers in harm reduction organizations within Texas.
Aim 2:
- Stress First Aid (SFA) consultants utilized the feedback from the Aim 1 Qualitative Focus Groups to adapt the SFA content for harm reduction. The second aim of the study was to hold a 3-day in person train-the-trainer training on the SFA adapted materials for leaders and workers in harm reduction in Texas. The training was facilitated by SFA consultants. The goal of this initial SFA train-the-trainer session was to test the feasibility and acceptability of adapted SFA/HRW materials and develop cadre of team support champions.
Aim 3:
- A 4-month Field testing of the feasibility, acceptability, and appropriateness of the adapted SFA for leaders and workers in harm reduction. The Field Test included a 2-hour in-person training to introduce SFA concepts and how to use SFA on a day-to-day basis in participant's work life and with coworkers, facilitated by participants in Aim 2 who chose to be champions for the Aim 3 Field Test. Additionally, four virtual monthly learning collaboratives were held as part of the Field Test, designed as monthly touch points to refresh and reinforce the SFA principles and get coaching and feedback around any challenges around using SFA, facilitated by the research study team.
- Evaluating the adapted SFA materials and intervention. Reaction interviews were conducted with 13 participants to supplement the surveys.