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Community Health Center: Core Data Project, 2001-2002 [United States] (ICPSR 21520)
Released/updated on: 2023-12-13
Geographic coverage: Vermont, Rhode Island, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2002-01-01
A survey was administered to any patient that presented for services at a health center between 2001 and 2002. Patients were asked to complete a brief survey with questions relating to demographic, relationship status, reason for choosing this health center, mental health status, and abuse history.
Curated
Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States] (ICPSR 22482)
Released/updated on: 2010-06-16
Geographic coverage: United States, New England
Time period: 2004-01-01--2006-01-01
The research study Positive Connections tested the Health Systems Navigation (HSN) model, an intervention linking near-peer interventionists with underserved HIV-infected individuals to assist them to become engaged and retained in HIV medical care through supportive services and facilitated referrals. Working with a core group of local AIDS service organizations to identify unstable and out-of-care HIV-positive individuals, the HSN will enroll and provide health system navigation to participants. The principal goal was to enhance the probability that individuals from historically underserved populations would become engaged and retained in high quality, culturally competent HIV care. The theoretical basis for this intervention included individual behavior change models, social and community networks, and provider cultural competence. This project also sought to improve the understanding and the measurement of health care access problems by seeking to determine which problems have indicators and which do not, and to identify steps that can be taken to develop a reliable access monitoring system. The concept of Health Systems Navigator has been developed by the Multicultural AIDS Coalition.
Curated
Retention Challenges for HIV-Infected Primary Care Patients 2001-2004 [United States] (ICPSR 22220)
Released/updated on: 2010-08-30
Geographic coverage: Vermont, Rhode Island, United States, Massachusetts, Maine, Connecticut, New Hampshire
Time period: 2001-01-01--2004-01-01
This project examined HIV-infected patients who were lost to follow-up during calendar years 2001-2004 in order to identify reasons patients were leaving care. Sustaining and retaining HIV-infected patients in care has been a consistent challenge to primary care health systems. Continuity, enhancing wellness, and patient engagement are long-term goals in primary care. Factors that influence clients to disengage from care frequently result in patterns of episodic utilization that may compromise the patient's health status and increase their psychosocial vulnerability. The standard of care suggests that HIV-infected patients return for medical follow-up primary care visits four times a year. Since 2001, there have been over 495 patients that have been determined inactive. The project administered telephone and mail surveys to HIV-infected patients that no longer receive care at Fenway Health Center. The survey includes demographic questions, insurance questions, potential reasons for stopping care, and whether the participant is receiving care at another facility. Subsequently, the project connected interviewees into the Health System Navigation (HSN) Project to assist them with seeking HIV medical care. This was accomplished by including prescreener questions in the survey. If a patient is determined to be eligible, they will be invited to participate in the HSN Project.