Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)
The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.
ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.
Development of a Brief Elder Abuse and Neglect Screening Tool for Emergency Medical Services: Detection of Elder Abuse Through Emergency Care Technicians (DETECT), Texas, 2015 (ICPSR 37245)
Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2008 (ICPSR 36036)
The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.
ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2008 was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study. This collection includes the data from the tenth year of the study as well as a comprehensive analytical dataset, incorporating data from the previous collections (data from previous waves of the study as well as participant demographic data can be found in ICPSR 4248). A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.
CRELES-3: Costa Rican Longevity and Healthy Aging Study - Wave 3, 2009 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable, Ronda 3) (ICPSR 35250)
Quality of American Life, 1971 (ICPSR 3508)
Food Service Delivery Systems Used in Providing Nutrition Services to the Elderly (ICPSR 8347)
WHO Study on Global AGEing and Adult Health (SAGE): Wave 1, 2007-2010 (ICPSR 31381)
The World Health Organization (WHO)'s Study on Global Ageing and Adult Health (SAGE) is a longitudinal follow-up of a cohort of ageing and older adults. SAGE has been built on the experience and standardized instruments of WHO's 2000/2001 Multi-country Survey Study (MCSS) and the 2002/2004 World Health Surveys (WHS).
These surveys focused on health and health-related outcomes and their determinants and impacts in nationally representative samples. These data will address data gaps on ageing, adult health and well-being in lower and middle income countries, whilst being comparable to surveys conducted in higher income countries (such as the United States' Health and Retirement Study (HRS), English Longitudinal Study of Ageing (ELSA), and the Survey of Health, Ageing and Retirement in Europe (SHARE)). One of the major drivers of this effort has been the lack of comparability of self-reported health status in international health surveys due to systematic biases in reporting, despite using similar instruments and attempts at making questions conceptually equivalent in translation. SAGE uses standard instruments developed over the last decade, a common design and training approach with explicit strategies for making data comparable to cover a wide range of issues that directly and indirectly impact health and well-being.
The survey methodology and research design has included a number of methods to address methods for detecting and correcting for systematic reporting biases in health interview surveys, including vignette methodologies, objective performance tests and biomarkers. A number of techniques have also been employed to improve data comparability, including using common definitions of concepts, common methods of data collection and translations, rigorous sample design and post hoc harmonization. The 2007-2010 SAGE Wave 1 data from six countries (China, Ghana, India, Mexico, Russia, and South Africa) is the follow-up survey project to the 2002-2004 WHO data, which constitutes Wave 0 of WHO's Study on Global Ageing and Adult Health (SAGE). A sample of these respondents from SAGE Wave 0 are included in this follow-up 2007-2010 SAGE Wave 1 in the six countries, with new respondents added to ensure a nationally representative sample.
WHO Study on Global AGEing and Adult Health (SAGE): Wave 0, 2002-2004 (ICPSR 28502)
Daily In-Home Activity Metrics from the Intelligent Systems for Assessing Aging Changes (ISAAC), Portland, Oregon, 2011 (ICPSR 35063)
Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Disabling Process Study: 2001-2002 (ICPSR 36203)
Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Frailty Study: 2006-2009 (ICPSR 36321)
Stroke Recovery in Underserved Populations 2005-2006 [United States] (ICPSR 36422)
The Stroke Recovery in Underserved Populations 2005-2006 study was created to address the National Institute on Aging (NIA) Request For Application entitled "Research on Mind-Body Interactions and Health" (RFA OD-03-008). It addressed the NIA interest in "the impact of optimism, happiness, or a positive attitude on well-being and health; and social functioning and health." The study examined how positive emotion (e.g., joy, gratitude, love, contentment) and social networks independently and interactively contribute to recovery of functional status after stroke within two underserved groups. The specific study aims were to:
- Examine recovery of functional status (motor and cognitive function), for White, African American and Hispanic persons with stroke discharged from rehabilitation facilities
- Examine the contributions of positive emotion and social networks on recovery of functional status (motor and cognitive function), for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities; and
- Examine the interaction between positive emotion and social networks on recovery of functional status (motor and cognitive function) for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities.
The data were collected by the IT Health Track at four time points: at admission and discharge from rehabilitation facility, and 80-180 days and 365-425 days after discharge. These data emphasize recovery of motor and cognitive functional status, positive emotion, and social networks
The dataset contains 226 variables and 1219 cases from 11 rehabilitation facilities across the United States.
UC Berkeley Social Networks Study (UCNets), San Francisco Bay Area, 2015-2018 (ICPSR 36975)
Understanding How Personal Networks Change: Wave 1 (UCNets) is the University of California Berkeley Social Networks Study, a longitudinal study with the objective of understanding how network composition changes over time as a result of life course transitions - e.g., graduation, marriage, retirement or widowhood - and how these changes are related to health status and outcomes. Using mostly addressed-based sampling from six San Francisco Bay Area counties, the study recruited participants in two age groups (cohorts) - 21-30 year-olds and 50-70 year-olds -- to maximize the possibility of experiencing a life transition. There are 3 waves of interviewing. The first interview, Wave 1, was May 2015 through January 2016. The re-interview for Wave 2 was conducted in Feb-June 2017, and Wave 3 was during Feb-May 2018. In Wave 1, the majority of respondents completed a face-to-face (FTF) survey, with the rest filling out a comparable web survey. In Wave 2 about half completed the FTF survey, and in Wave 3, about one-quarter. The survey contains items regarding households, personal networks, family milestones, employment, health status and behavior, personality and demographic characteristics.
Assessment of Financial Judgment: Conceptual and Measurement Approaches, Metro Detroit, Michigan, 2014-2016 (ICPSR 37130)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
Drawing on the principles of Whole Person Dementia Assessment (Mast, 2011) and Appelbaum and Grisso's (1988) decision-making model, this project developed a tool, the Lichtenberg Financial Decision Rating Scale (LFDRS). The conceptual model for the LFDRS questionnaire integrates the measurement of contextual variables with financial capacity assessment. The purpose of the study was to establish reliability and validity of the LFDRS and to collect data on normative financial decision-making by older adults.
The researchers posited that as financial exploitation of older adults increases, investigation and prosecution of these cases remains difficult for criminal justice professionals who must balance protection of older adults with their right to autonomy; and that both under and over-protection of older adults can lead to damaging consequences. The project goal was to develop a set of new financial decision-making screening and comprehensive measures for criminal justice professionals and non-criminal justice professionals to aid in detecting and prosecuting financial exploitation of older adults. The LFDRS (described above) is meant to be used by mental health professionals, specially trained in assessment of older adults. In addition, the researchers developed a 10-item screening tool, the Lichtenberg Financial Decision Screening Scale or Short Scale (LFDSS), that was tested by multiple professionals working in diverse settings (e.g., APS workers, elder law attorneys, law enforcement personnel).
Family members are another group that are often aware of an older adult's vulnerability to financial exploitation and therefore, the researchers developed the Lichtenberg Financial Decision Rating Scale -- Family and Friends version (LFDRS - Family and Friends also known as the LFDRS Informant) to allow concerned professionals to interview confidantes of older adults to help measure financial capacity of a loved one. This tool may be particularly useful for Adult Protective Services to interview multiple people regarding their concerns about an older adult.
The collection contains 3 SPSS data files:
- LFDRS-Data-for-ICPSR.sav (200 cases, 109 variables)
- LFDRS_Informant-Data-for-ICPSR.sav (150 cases, 45 variables)
- LFDSS_Screener-Data-for-ICPSR.sav (213 cases, 24 variables)
Sacramento Area Latino Study on Aging (SALSA Study), 1996-2008: Demographic Data (ICPSR 34483)
This study contains demographic variables for the the Sacramento Area Latino Study on Aging (SALSA) Series and can be used with ICPSR studies 22760, 29321, 29322, 29323. Demographic variables include gender, primary language, country of origin, state of birth, cause of death, 2000 census tract codes, birth date, date of death, and age given at follow-up visits.
About SALSA: The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical, and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social, and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status.
Sacramento Area Latino Study on Aging (SALSA Study), 1996-2008 (ICPSR 22760)
The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status. Demographic information includes age given at follow-up visits, country of birth, language, religion, marital status, educational level, occupation, household income, and size of household.
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 7, 2010-2011 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 36537)
The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups.
The Wave 7 dataset comprises the sixth follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas.
The public-use data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues.
During this 7th Wave (dataset 1), 2010-2011, re-interviews were conducted either in person or by proxy, with 659 of the original respondents. This Wave also includes 419 re-interviews from the additional sample of Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort who were added in Wave 5, increasing the total number of respondents to 1,078.
The Wave 7 Informant Interviews dataset (dataset 2) includes data which corresponds to the sixth follow-up of the baseline Hispanic EPESE Wave 7 and included re-interviews with 1,078 Mexican Americans aged 80 years and older. During these interviews, participants were asked to provide the name and contact information of the person they are "closer to" or they "depend on the most for help." These INFORMANTS were contacted and interviewed regarding the health, function, social situation, finances, and general well-being of the ongoing Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. This dataset includes information from 925 informants, more than two-thirds of whom were children of the respective respondents.
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 8, 2012-2013 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 36578)
The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups.
The Wave 8 dataset comprises the seventh follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas.
The public-use data cover demographic characteristics (age, sex, marital status), height, weight, BMI, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of hospital and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues.
During this 8th Wave, 2012-2013, re-interviews were conducted either in person or by proxy, with 452 of the original respondents. This Wave also includes 292 re-interviews from the additional sample of Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort who were added in Wave 5, increasing the total number of respondents to 744.
Census of Population and Housing, 1970 [United States]: Summary Statistic File 4A -- Housing [Fourth Count] (ICPSR 8126)
Documentation of Resident to Resident Elder Mistreatment in Residential Care Facilities, New York City, 2009-2013 (ICPSR 35649)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
The purpose of this study was to investigate violence and aggression committed by nursing home residents that is directed toward other residents, referred to here as resident-to-resident elder mistreatment (R-REM). Resident-to-resident mistreatment (R-REM) was defined as: negative and aggressive physical, sexual, or verbal interactions between long term care residents, that in a community setting would likely be construed as unwelcome and have high potential to cause physical or psychological distress in the recipient.
The goals of this project were to: enhance institutional recognition of R-REM; examine the convergence of R-REM reports across different methodologies; identify the most accurate mechanism for detecting and reporting R-REM; develop profiles of persons involved with R-REM by reporting source; investigate existing R-REM policies, and; develop institutional guidelines for reporting R-REM episodes. Also, the project team sought to answer the following research questions: (1) Will the reporting of R-REM differ by source? (2) Which reporting methods will show the highest level of convergence and accuracy in reporting? (3) What resident characteristics or profiles will predict R-REM across the differing reporting sources? (4) What are the existing guidelines and/or institutional policies for reporting R-REM? To achieve these goals, the researcher conducted this study over a two week period in five urban and five suburban New York City facilities. Resident-to-resident abuse information was derived from five sources: (1) resident interviews (2) staff informants (3) observational data (behavior sheets) (4) resident chart reviews (5) incident and accident reports.
National Survey of the Aged [United States], 1962 (ICPSR 7687)
National Social Life, Health, and Aging Project (NSHAP): Round 1, [United States], 2005-2006 (ICPSR 20541)
The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.
Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.
NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.
Bruising as a Forensic Marker of Physical Elder Abuse in Orange County, California, 2006-2008 (ICPSR 28144)
Vietnam Era Twin Study of Aging (VETSA), United States, 2002-2019 (ICPSR 38836)
The Vietnam Era Twin Study of Aging (VETSA) projects began in 2002 with the goal of understanding risk and protective factors, including genetics, for cognitive and brain aging starting in midlife. This NIH funded longitudinal study has completed three waves of data collection (2002-2008; 2008-2014, 2015-2020) following the same group of non-patient, community dwelling male veteran twins from when they were average age 56 to average age 68. A fourth wave of data collection began in October 2021. Although the men are American veterans, this is not a VA sample. This is a nation-wide sample with participants flown into sister data collection sites at either University of California San Diego or Boston University.
The VETSA study encompasses multiple linked grants and data collections with two studies funded continuously since 2002--The VETSA Longitudinal Twin Study of Cognition and Aging and The VETSA Longitudinal MRI Twin Study of Aging. Because of the broad interests of the investigators, while study data focus most heavily on in-person cognitive testing, a wide array of psychosocial, demographic, medical history, physical functioning, and personality measures were also collected. While some measures were only collected at baseline, the majority are repeated at every data collection.
At each wave of data collection, participants completed a lengthy psychosocial questionnaire at home then came to the testing site for a full day (~8 hrs) of in-person testing. Participants were housed for either 2 nights if only part of VETSA aging or 3 nights if they qualified for the MRI data collection.
Boston Rehabilitative Impairment Study of the Elderly (Boston RISE), 2009-2015 (ICPSR 37045)
National Social Life, Health, and Aging Project (NSHAP): Round 2 and Partner Data Collection, [United States], 2010-2011 (ICPSR 34921)
The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 2 interviews were conducted from August 2010 through May 2011, during which Round 1 Respondents were re-interviewed. An attempt was also made to interview individuals who were sampled in Round 1 but declined to participate. In addition, spouses or co-resident partners were also interviewed using the same instruments as the main respondents. This process resulted in 3,377 total respondents. The following files constitute Round 2: Core Data, Disposition of Round 1 Partner Data, Social Networks Data, Social Networks Update Data, Partner History Data, Partner History Update Data, Medications Data, Proxy Data, and Sleep Statistics Data.
Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships, and patient-physician communication, in addition to bereavement items. Data were also collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function, and a panel of biomeasures, including weight, waist circumference, height, blood pressure, smell, saliva collection, and taste.
The Disposition of Round 1 Partner files (Datasets 3 and 4) detail information derived from Section 6A items regarding the partner from Round 1 within the questionnaire. This provides a complete history for respondent partners across both rounds.
The Social Networks files (Datasets 5 and 6) contain one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file.
The Social Networks Update files (Datasets 7 and 8) detail respondents' current relationship status with each person identified on the network roster.
The Partner History file (Dataset 9) contains one record for each marriage, cohabitation, or romantic relationship identified in Section 6A of the questionnaire, including a current partner in Round 2 but excluding the partner from Round 1.
The Partner History Update file (Dataset 10) details respondents' current sexual partner information, as well as marital and cohabiting status.
The Medications Data file (Dataset 11) contains records for items listed in the medications log.
The Proxy Data files (Datasets 12 and 13) contain information from proxy interviews administered for Round 1 Respondents who were either deceased or whose health was too poor to participate in Round 2.
The Sleep Statistics Data files (Dataset 14 and 15) provide information on actigraphy sleep variables.
NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 9, 2016 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 39038)
The Hispanic EPESE provides data on risk factors for mortality and morbidity in older Mexican Americans in order to contrast how these factors operate differently than in non-Hispanic Whites, African Americans, and other major ethnic groups.
The Wave 9 dataset comprises the eighth follow-up of the baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five Southwestern states of Arizona, California, Colorado, New Mexico, and Texas.
The public-use data covers demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health behaviors, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups allow examination of the predictors of mortality, changes in health outcomes, institutionalization, changes in living arrangements, as well as changes in life situations and quality of life.
During this 9th Wave (Dataset 1), 2016, 480 re-interviews were conducted either in person or by proxy, with 283 of the original respondents interviewed in 1993-1994. This Wave also includes 197 re-interviews from the 902 new respondents added at Wave 5 in 2004-2005. All respondents were aged 85 and over at Wave 9.
The Wave 9 Informant Interviews dataset (Dataset 2) includes data from interviews with 460 respondents who provided information on themselves as well as the older respondents. The older respondents were asked to provide the name and contact information of the person they are "closer to" or they "depend on the most for help." These INFORMANTS, many of whom provide caregiving support to the older respondents, were contacted, and interviewed regarding the health, function, social situation, finances, and general well-being of the older Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. This dataset includes information from the 460 informants, more than two-thirds of whom were children of the respective respondents. Thus, there are 460 respondent-informant dyads that provide opportunities for caregiving research.
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 10, 2020-2021 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 39219)
The Hispanic EPESE provides data on risk factors for mortality and morbidity in older Mexican Americans in order to contrast how these factors operate differently than in non-Hispanic Whites, African Americans, and other major ethnic groups.
The Wave 10 dataset comprises the ninth follow-up of the baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five Southwestern states of Arizona, California, Colorado, New Mexico, and Texas.
The public-use data covers demographic characteristics (age, sex, type of Hispanic ethnicity, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health behaviors, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups allow examination of the predictors of mortality, changes in health outcomes, institutionalization, changes in living arrangements, as well as changes in life situations and quality of life.
During this 10th Wave, 131 re-interviews were conducted either in person or by proxy, with 77 of the original respondents interviewed in 1993-1994. This Wave also includes 54 re-interviews from the 902 new respondents added at Wave 5 in 2004-2005. All respondents were aged 90 and over at Wave 10.
The wave 10, was conducted over 2020 and 2021 and consisted of two components, a pre-COVID in-person component and a post-COVID telephone component to the informant only. The pre-COVID in-person interviews were conducted from January 1, 2020 to March 17, 2020 (N=131 respondents; N=122 informants). In March 2020, the in-person interviews were suspended due to the COVID-19 pandemic. From April 1, 2021 to July 1, 2021, telephone interviews were conducted only with informants (n = 101). The study team collected information on health, function, social situation, finances, and general well-being of the older Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. In Wave 10, during the telephone interviews conducted with the informant, the study team collected information related to their experiences during the first year of the COVID-19 pandemic and their contemporary experiences around the time of widespread vaccine availability in the United States.
National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)
The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.
Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.
The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.
National Social Life, Health, and Aging Project (NSHAP): Round 4, [United States], 2021-2023 (ICPSR 39511)
The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The study team collected data for Round 4 of this study from 2021 through 2023 and covered the following subjects: bereavement, caregiving, elder mistreatment, employment, functional health, health behaviors, mental and physical health, cognitive function, neighborhood information, sexual interest and activity, social activity, and familial and friend support.
Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2019 (ICPSR 38821)
ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly) was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study.
This collection integrates data from two previous collections (ICPSR 4248 and ICPSR 36036) and fills in gaps that existed in these two collections. In addition, this collection features composite scores for constructs like memory, reasoning speed, Short Form Health Survey (SF-36), Social Determinants of Health (SDOH), as well as data from the National Death Index and state driving records.
Please read the collection notes for important analysis details.
Social Indicators Time Series Archive for the United States, 1946-1980 (ICPSR 7932)
Faculty Retirement in the Arts and Sciences: Source Data for 33 United States Colleges and Universities, 1985-1990 (ICPSR 9818)
Evaluation of the Elder Abuse Decision Support System (EADSS) in Illinois, 2011-2014 (ICPSR 36097)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
These data were collected as part of a larger effort to evaluate the implementation and effectiveness of a new computerized decision support system (Elder Abuse Decision Support System, EADSS) in elder abuse investigation and intervention programs in Illinois. Information on individuals with substantiated allegations of abuse includes basic demographics, physical, mental, and financial condition, and available resources. Variables describing the allegation cover the nature and severity of the abuse. Where possible, the alleged abuser(s) is(are) also evaluated physically, mentally, and financially, in addition to having basic demographics noted.
Pathways to Adulthood: A Three-Generation Urban Study, 1960-1994: [Baltimore, Maryland] (ICPSR 2420)
People With Dementia as Witnesses to Emotional Events in Southern California, 2008-2009 (ICPSR 29042)
Physician Responses to Medicare Payment Reductions: Impacts on the Public and Private Sectors, 1988-1991 (ICPSR 6563)
Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)
Forensic Markers of Physical Elder Abuse, Los Angeles, California, 2014-2017 (ICPSR 37050)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
This study sought to: (1) document the spectrum of injuries and injury characteristics observed among physically-abused older adults reported to Adult Protective Services (APS) and compare those findings to injuries found among non-abused older adults, (2) identify observable injury characteristics and abuse circumstances that healthcare providers, law enforcement and prosecutors consider to be key forensic markers of physical abuse, (3) document information and evidence integral for achieving successful criminal prosecution, and (4) describe approaches that community-based frontline workers can employ to better document evidence of physical abuse.
The data included in this collection were collected under a National Institute of Justice-funded project that sought to document the spectrum and characteristics of injuries observed among physically abused, community-dwelling APS clients.
The collection includes two SAS datasets: injury.sas7bdat (with 47 variables and 403 cases) and subjectleveldata.sas7bdat (with 122 variables and 165 cases); and three SAS System Program Files: analysis-code-v1.sas, cleaned-injury-datasets-v1.sas, and formats.sas. Demographic variables in the collection are in the subjectleveldata.sas7bdat dataset, and include age, year of birth, gender, race, language, and level of education.