Aging of Veterans of the Union Army: Military, Pension, and Medical Records, 1820-1940 (ICPSR 6837)
End-Stage Renal Disease (ESRD): Transplantation, Dialysis, and Quality of Life in Michigan, 1984-1988 (ICPSR 9393)
National Hospital Ambulatory Medical Care Survey, 2007 (ICPSR 28442)
National Medical Expenditure Survey, 1987: Household Survey, Disability Days and Medical Conditions [Public Use Tape 29] (ICPSR 6473)
National Hospital Ambulatory Medical Care Survey, 2006 (ICPSR 28321)
National Home and Hospice Care Survey, 2007 (ICPSR 28961)
The National Home and Hospice Care Survey (NHHCS) was reintroduced into the field in 2007 after a 7-year break. During that time, the survey was redesigned and expanded to include a computer-assisted personal interviewing (CAPI) system, many new data items, and larger sample sizes of current home health patients and hospice discharges. All agencies that participated in the survey were either certified by Medicare and/or Medicaid or were licensed by a state to provide home health and/or hospice services and currently or recently served home health and/or hospice patients. Agencies that provided only homemaker services or housekeeping services, assistance with instrumental activities of daily living (IADLs), or durable medical equipment and supplies were excluded from the survey. The 2007 NHHCS included a supplemental survey of home health aides employed by home health and/or hospice agencies, called the National Home Health Aide Survey (NHHAS). The 2007 NHHCS data were collected through in-person interviews with agency directors and their designated staffs; no interviews were conducted directly with patients or their families and/or friends. Agency data collected, available in agency administrative records, included information on the year an agency was established, the types of services an agency provided, referral sources, specialty programs, and staffing characteristics. Data collected on home health patients and hospice discharges, available in medical records, included age, sex, race and ethnicity, services received, length of time since admission, diagnoses, medications taken, advance directives, and many other items.
The National Home Health Aide Survey (NHHAS), the first national probability survey of home health aides, was designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. The NHHAS survey instrument included sections on recruitment, training, job history, family life, management and supervision, client relations, organizational commitment and job satisfaction, workplace environment, work-related injuries, and demographics.
National Hospital Discharge Survey, 1978 (ICPSR 9191)
National Hospital Discharge Survey, 1984 (ICPSR 9171)
National Hospital Discharge Survey, 1982 (ICPSR 9172)
National Hospital Discharge Survey, 1983 (ICPSR 9173)
National Hospital Discharge Survey, 1970 (ICPSR 9189)
National Hospital Discharge Survey, 1974 (ICPSR 9190)
National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry), 1958-2013 [RESTRICTED] (ICPSR 36234)
In 1958, the Medical Follow-up Agency (MFUA) of the Institute of Medicine began a project to identify twins who had jointly entered military service during World War II. In the end, MFUA identified nearly 16,000 White male twin pairs born 1917-1927 in which both members had served in the military. These twins comprise the National Academy of Sciences-National Research Council World War II Twin Registry (NAS-NRC Twin Registry). This collection represents data from service records, a mailed questionnaire assessing zygosity, and repeating health surveys, including information on education, employment history, and earnings.
There are nine datasets associated with this restricted-use collection:
1) The Administrative dataset includes demographic, zygosity, service history, mortality, and questionnaire participation data;
2) The Service and Other Records dataset contains information collected from service records, physical exam data, cognitive test data, and dental records;
3) The Questionnaire 2 dataset consists of data collected in the first mailed questionnaire sent in 1965 about pain, illnesses, smoking habits, alcohol consumption, and employment;
4) The Questionnaire 3 dataset includes data from the baseline epidemiological questionnaire sent in 1974 about number and sex of children, religious attendance, education, income, and occupation;
5) Questionnaire 7, mailed in 1985, contains similar topics as in Questionnaire 2, and includes data about health conditions such as diabetes, as well as feelings about work and retirement;
6) Questionnaire 8 was mailed in 1998 was the third epidemiologic questionnaire. This dataset is comprised of overlapping topics with Q2 and Q7, and has additional data about feelings, prescription medications, activity levels, the Geriatric Depression Scale, and parental death status;
7) The NEO Personality Inventory dataset includes responses to the NEO Five-Factor Personality Inventory mailed in 2005-2006;
8) The Service and Death Records dataset (VDE access only) contains information about date and place of birth, state at induction, disciplinary measures during service, decorations received during service, indicator for those known to have been POWs, reason for separation from the military, age at death if died over age 90, and cause of death. Some of this information was obtained from the re-read of service records and is thus available only for a subset of 6357 men;
9) Diagnoses dataset (VDE access only) contains data about medical conditions diagnosed between 1935 and 1985 that were abstracted from a variety of medical records over the course of the study. The diagnoses were coded using the International Classification of Disease system (WHO, 2015).