Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)
The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).
Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.
ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.
Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
Assessment of Financial Judgment: Conceptual and Measurement Approaches, Metro Detroit, Michigan, 2014-2016 (ICPSR 37130)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
Drawing on the principles of Whole Person Dementia Assessment (Mast, 2011) and Appelbaum and Grisso's (1988) decision-making model, this project developed a tool, the Lichtenberg Financial Decision Rating Scale (LFDRS). The conceptual model for the LFDRS questionnaire integrates the measurement of contextual variables with financial capacity assessment. The purpose of the study was to establish reliability and validity of the LFDRS and to collect data on normative financial decision-making by older adults.
The researchers posited that as financial exploitation of older adults increases, investigation and prosecution of these cases remains difficult for criminal justice professionals who must balance protection of older adults with their right to autonomy; and that both under and over-protection of older adults can lead to damaging consequences. The project goal was to develop a set of new financial decision-making screening and comprehensive measures for criminal justice professionals and non-criminal justice professionals to aid in detecting and prosecuting financial exploitation of older adults. The LFDRS (described above) is meant to be used by mental health professionals, specially trained in assessment of older adults. In addition, the researchers developed a 10-item screening tool, the Lichtenberg Financial Decision Screening Scale or Short Scale (LFDSS), that was tested by multiple professionals working in diverse settings (e.g., APS workers, elder law attorneys, law enforcement personnel).
Family members are another group that are often aware of an older adult's vulnerability to financial exploitation and therefore, the researchers developed the Lichtenberg Financial Decision Rating Scale -- Family and Friends version (LFDRS - Family and Friends also known as the LFDRS Informant) to allow concerned professionals to interview confidantes of older adults to help measure financial capacity of a loved one. This tool may be particularly useful for Adult Protective Services to interview multiple people regarding their concerns about an older adult.
The collection contains 3 SPSS data files:
- LFDRS-Data-for-ICPSR.sav (200 cases, 109 variables)
- LFDRS_Informant-Data-for-ICPSR.sav (150 cases, 45 variables)
- LFDSS_Screener-Data-for-ICPSR.sav (213 cases, 24 variables)
Biodemographic Models of Reproductive Aging (BIMORA) Project, 1998-2002 [United States] (ICPSR 4452)
Black Rural and Urban Caregivers Mental Health/Functioning, Missouri, 1999-2002 (ICPSR 36349)
The Black Rural and Urban Caregivers Mental Health/Functioning data collection includes survey data collected in 2000-2002 from African American females age 65 and older, who provide unpaid care for older African American adults in the St. Louis Metropolitan area and seven rural Missouri counties (Butler, Dunklin, Mississippi, New Madrid, Pemiscot, Scott, and Stoddard).
Because of inadequate recruitment knowledge about rural African American caregivers and persistent reports of challenges when involving African Americans elders in research, this study focused on the involvement of African American rural elders and recruitment of their female informal caregivers in a study of caregivers' well-being and service use. African Americans comprise the largest group of ethnic and racial minority elders aged 65 and older in the U.S. population thus making up one half of all ethnic and racial minority elders. Numerical changes in population size and increasing longevity of older African Americans direct attention to African American informal female caregivers- persons most likely to assist African American elderly with daily living tasks, personal needs, and long-term care. More disabled and chronically ill African American elders portend continuing need from informal or unpaid caregivers for dependent care.
There are two datasets associated with this study, a public-use (da36349-0001) and restricted-use (da36349-0002) version of the same survey data. Both data files contain 521 cases and 1438 variables. However, the restricted file contains continuous as opposed to categorical values for age variables rounded to the nearest whole number.
Boston Rehabilitative Impairment Study of the Elderly (Boston RISE), 2009-2015 (ICPSR 37045)
Bruising as a Forensic Marker of Physical Elder Abuse in Orange County, California, 2006-2008 (ICPSR 28144)
Building Late-Life Resilience to Prevent Elder Abuse: A Randomized Controlled Pilot Study of the EMPOWER Program, Arizona, 2019-2021 (ICPSR 38332)
Over the past two decades, as the proportion of older Americans has increased, so too have instances of elder abuse, including physical, emotional, and sexual abuse; financial exploitation; and caregiver neglect. The most recent national survey estimates show at least 1 in 10 community-residing older adults experience elder abuse each year, which translates to over 7 million Americans annually. Rates of abuse are magnified for older adults with the least financial and social resources, including those with low incomes, living in isolated rural communities, and facing structural barriers such as systemic racism. Emerging research on the COVID-19 pandemic prompts even greater concern for elder abuse: the virus has disproportionately affected older adults, resulting in increased social isolation, physical health impairment, and exposure to COVID-related fraud.
Recognizing the urgent need to develop and rigorously evaluate programs aimed at preventing elder abuse, the US Department of Justice's National Institute of Justice funded a demonstration from 2017 to 2021 during which researchers from the Urban Institute and practitioners at the Phoenix-based Area Agency on Aging, Region One ("the Area Agency") co-developed an elder abuse prevention program in Maricopa County, Arizona, which Urban's team then evaluated through a randomized controlled pilot study. This multiphase demonstration included an initial planning phase and a subsequent pilot study, which is the focus of this report.
The EMPOWER: Building Late-Life Resilience program is a 12-week in-home intervention, with one-hour weekly visits designed to empower community-residing older adults with the resiliency and resources to lead safe and healthy lives throughout the aging process. EMPOWER provides one-on-one assessments, client-centered prevention education, and needs-responsive life skills training embedded in a series of cognitive reframing conversations with an experienced facilitator. The program has eight modules, each of which culminates in an action plan focused on strengthening a client's internal assets and identifying sources of positive social support. Caseworkers facilitate motivational discussions centered on clients' self-identified goals and action planning, with the aim of optimizing clients' home safety, physical health, social connectedness, and emotional and financial well-being.
Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)
Chicago Community Adult Health Study, 2001-2003 (ICPSR 31142)
The Chicago Community Adult Health Study (CCAHS) consists of four interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop (Milgram et al. 1965) as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods (PHDCN) in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NCs). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. The CCAHS is the largest of five projects under the NIH-funded Michigan Interdisciplinary Center on Social Inequalities, Mind and Body Mind (#P50HD38986), one of five Mind-Body Centers funded by the National Institutes of Health in late 1999. This study will advance the understanding of socioeconomic and racial/ethnic disparities in health, a major priority of the Public Health Service and the National Institutes of Health.
The PI-supplied summary mentions that the study is comprised of four components. However, for the purposes of this data release there are three distinct datasets. Demographic variables include age, birth year, race, ethnicity, number of children in the household, number of children living elsewhere, number of times the respondent has been married, and relationship status, religious preference, and sex.
China Multi-Generational Panel Dataset, Liaoning (CMGPD-LN), 1749-1909 (ICPSR 27063)
China Multi-Generational Panel Dataset, Shuangcheng (CMGPD-SC), 1866-1913 (ICPSR 35292)
Community Connections in Board and Care Homes Serving Chronically Ill Adults in Ten States, 1993-1994 (ICPSR 6783)
Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)
Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)
Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)
Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)
Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)
Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)
This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.
Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.
Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.
Community Tracking Study Physician Survey, 2000-2001: [United States] (ICPSR 3820)
Consumer Financial Exploitation of the Elderly in Arizona and Florida, 2010-2011 (ICPSR 34925)
These data are part of NACJD's Fast Track Release and are distributed as they there received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except of the removal of direct identifiers. Users should refer to the accompany readme file for a brief description of the files available with this collections and consult the investigator(s) if further information is needed.
The objectives of the study were: (1) To determine the nature, incidence, and prevalence of fraud victimization among elderly consumers in Arizona and Florida; (2) To identify risk and protective factors associated with fraud victimization in this population; and (3) To evaluate the elderly population's awareness and use of state-based programs, including reporting behavior to law enforcement.
The study is comprised of data from telephone surveys of 2,000 aged 60 years and older Arizona (n = 1,000) and Florida (n = 1,000). The survey was obtained via computer assisted telephone interviewing (CATI) administered by Precision Research in June and July of 2011. Data were collected seven days a week during specific times of the day that had the greatest probability of contacting a respondent. The interviews were primarily conducted in English but a Spanish survey instrument was constructed and used when necessary.
Coroner Investigations of Suspicious Elder Deaths; 2008-2011 [California] (ICPSR 33742)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
This was a two phase project designed to investigate the decision-making process of the coroner/medical examiner (CME) offices who are charged with investigating suspicious elder deaths and to pilot an intervention that augmented the decision-making process in three CME offices. In phase one, researchers collected case data from CME offices, public data on elder deaths, and interviews with CME investigators. Researchers then developed a brief screening tool, Elder Suspicious Death Field Screen (ESDFS), to be used by CME employees fielding reports of elder deaths. In phase two, the ESDFS was implemented in three counties for a six-month data collection period. An expert panel reviewed a subsample of cases to assess whether CME investigators made appropriate decisions to investigate or not.
Course of Domestic Abuse Among Chicago's Elderly: Risk Factors, Protective Behaviors, and Police Intervention, 2006-2009 (ICPSR 29041)
Danish 1905 Cohort Study, 1998 (ICPSR 3960)
Developing and Testing a Culturally Relevant Model to Understand Financial Maltreatment of Chinese American Elders, Phoenix, Arizona, 2015 (ICPSR 36270)
Developing a Taxonomy To Understand and Measure Outcomes of Success in Community-Based Elder Mistreatment Interventions, New York City, New York, 2018-2019 (ICPSR 37955)
Research tools available to help advance knowledge of effective community-based elder mistreatment (EM) interventions are limited. The field lacks an understanding of what success means in EM response program (EMRP) interventions, which work directly with victims to reduce the risk of re-victimization. Without establishing indicators of EMRP success, it is not possible to develop valid intervention outcome measures to compare different EMRP models toward the development of evidence-based practice. Informed by the EMRP practice principle of older adult self-determination, this study developed a victim-centric taxonomy of case outcomes that indicate EMRP success.
This study drew on two sources of data, including interviews with EM victims and a scoping review to inform taxonomy development. Prioritizing the perspective of victims, this study conducted interviews with 27 victims involved in EMRP services who vary in EM subtype, gender, and race/ethnicity.
The taxonomy of successful EMRP outcomes will serve as important research infrastructure to support the development of EMRP intervention outcome measurement in future research.
Development of a Brief Elder Abuse and Neglect Screening Tool for Emergency Medical Services: Detection of Elder Abuse Through Emergency Care Technicians (DETECT), Texas, 2015 (ICPSR 37245)
Documentation of Resident to Resident Elder Mistreatment in Residential Care Facilities, New York City, 2009-2013 (ICPSR 35649)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
The purpose of this study was to investigate violence and aggression committed by nursing home residents that is directed toward other residents, referred to here as resident-to-resident elder mistreatment (R-REM). Resident-to-resident mistreatment (R-REM) was defined as: negative and aggressive physical, sexual, or verbal interactions between long term care residents, that in a community setting would likely be construed as unwelcome and have high potential to cause physical or psychological distress in the recipient.
The goals of this project were to: enhance institutional recognition of R-REM; examine the convergence of R-REM reports across different methodologies; identify the most accurate mechanism for detecting and reporting R-REM; develop profiles of persons involved with R-REM by reporting source; investigate existing R-REM policies, and; develop institutional guidelines for reporting R-REM episodes. Also, the project team sought to answer the following research questions: (1) Will the reporting of R-REM differ by source? (2) Which reporting methods will show the highest level of convergence and accuracy in reporting? (3) What resident characteristics or profiles will predict R-REM across the differing reporting sources? (4) What are the existing guidelines and/or institutional policies for reporting R-REM? To achieve these goals, the researcher conducted this study over a two week period in five urban and five suburban New York City facilities. Resident-to-resident abuse information was derived from five sources: (1) resident interviews (2) staff informants (3) observational data (behavior sheets) (4) resident chart reviews (5) incident and accident reports.
Evaluating the Cost Effectiveness of the Elder Abuse Forensic Center Model in Los Angeles County, California, 2007-2013 (ICPSR 35484)
These data are part of NACJD's Fast Track Release and are distributed as they there received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except of the removal of direct identifiers. Users should refer to the accompany readme file for a brief description of the files available with this collections and consult the investigator(s) if further information is needed.
This study evaluated the cost effectiveness of the Los Angeles Elder Abuse Forensic Center (EAFC) by examining costs associated elder abuse cases processed under a multidisciplinary team approach. Using data collected in Evaluating the Elder Abuse Forensic Center Model in Los Angeles County, California, 2007-2009 (ICPSR 34979) researchers focused on the key components, participants, and processes necessary to operate the Los Angeles EAFC and identified the costs required to process an elder abuse case as well as the outcomes attained by the EAFC. This study also carried out a survey of Adult Protective Service (APS) social workers on time spent on different case process activity and their perception on efficiency of the Los Angeles EAFC, and collected associated costs estimates.
Evaluating the Elder Abuse Forensic Center Model in Los Angeles County, California, 2007-2009 (ICPSR 34979)
These data are part of NACJD's Fast Track Release and are distributed as they there received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except of the removal of direct identifiers. Users should refer to the accompany readme file for a brief description of the files available with this collections and consult the investigator(s) if further information is needed.
The purpose of the study was to examine the effectiveness of a multidisciplinary team (MDT) intervention - the Los Angeles County Elder Abuse Forensic Center to: 1) prosecute elder abuse, 2) protect vulnerable older adults through conservatorship, and 3) reduce or prevent recurring cases of abuse. The study used a quasi-experimental design and focused on elder abuse cases involving victims aged 65 or older reviewed at the Los Angeles County Elder Abuse Forensic Center (the Center) between April 1, 2007 and December 31, 2009. These Center cases were compared to a propensity score match sample of Los Angeles County Adult Protective Services (APS) cases. Data were collected from Adult Protective Services case files, District Attorney filings, and Office of the Public Guardian conservatorship records.
Evaluation of the Elder Abuse Decision Support System (EADSS) in Illinois, 2011-2014 (ICPSR 36097)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
These data were collected as part of a larger effort to evaluate the implementation and effectiveness of a new computerized decision support system (Elder Abuse Decision Support System, EADSS) in elder abuse investigation and intervention programs in Illinois. Information on individuals with substantiated allegations of abuse includes basic demographics, physical, mental, and financial condition, and available resources. Variables describing the allegation cover the nature and severity of the abuse. Where possible, the alleged abuser(s) is(are) also evaluated physically, mentally, and financially, in addition to having basic demographics noted.
Examination of Resident Abuse in Assisted Living Facilities in the United States, 2011 (ICPSR 34575)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
The purpose of the study was to:
- Examine resident abuse from staff report by direct care workers in a nationally representative sample of assisted living settings;
- Expand the scope of our understanding of resident abuse by including medication abuse in assisted living settings; and
- Use the data collected to examine: a. rates of abuse; b. the association of external organizational, and internal factors with resident abuse; c. direct care worker characteristics associated with abuse; d. resident characteristics associated with abuse; e. leadership characteristics associated with abuse; f. the inter-correlations of different types of abuse; and, g. resident-to-resident abuse.
For the purposes of this research, an assisted living facility is defined as a long term care setting that typically provides residents for activities of daily living and instrumental activities of daily living. Using state listings from websites, researchers identified approximately 21,000 of assisting living facilities. A random sample of approximately seven percent (n=1,500) of these eligible assisted living facilities were selected from all 50 states. Administrators of assisted living facilities were asked if they were willing to complete the questionnaire (n=1,376). Administrators were also asked if they would be willing to distribute the questionnaire to direct care workers (n=12,555). Researchers requested that they distribute the survey to all full-time and part-time direct care workers on all shifts. Follow up reminder mailings and emails were used for the administrators.
Financial Abuse of Elderly People vs. Other Forms of Elder Abuse in Virginia, 2003-2008 (ICPSR 29301)
This study examined financial exploitation of elderly people compared to other forms of elder maltreatment (physical abuse, neglect, and hybrid, i.e., financial exploitation and physical abuse and/or neglect) that occurred in a domestic setting. The cases were explored by obtaining information from a variety of sources including:
- Three different individuals about a given case including (1) the caseworker from APS that managed the reported case, (2) the person who had been reported to have experienced elder abuse and, (3) where they were available, a non-offending third party who knew the elder at the time of the APS response to the report of elder abuse (e.g., the elder's domestic partner, care provider, friend, or family member).
- Data derived from the Virginia Department of Social Services' Adult Services Adult Protective Services (ASAPS) Database which contains information drawn from several sources.
- Prosecutors in four states that were interviewed about their experience prosecuting elder abuse, barriers and facilitators associating with prosecuting such cases, and possible reforms.
The specific goals of this research were to (1) Determine unique aspects of financial exploitation as compared to other forms of elder maltreatment, including risk factors, reporting, investigation, and case outcomes; (2) Determine the degree of congruence between the perceptions of victims of elder maltreatment and APS caseworkers regarding these cases; and (3) Develop recommendations based on these findings for addressing the financial abuse of the elderly.
Financial Exploitation and Psychological Abuse of Older Adults in the Chicago Metropolitan Area, 2007-2008 [United States] (ICPSR 26881)
Florida Elder Abuse Survey in Seven Sites, 2007-2008 [United States] (ICPSR 25941)
Forensic Markers of Physical Elder Abuse, Los Angeles, California, 2014-2017 (ICPSR 37050)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
This study sought to: (1) document the spectrum of injuries and injury characteristics observed among physically-abused older adults reported to Adult Protective Services (APS) and compare those findings to injuries found among non-abused older adults, (2) identify observable injury characteristics and abuse circumstances that healthcare providers, law enforcement and prosecutors consider to be key forensic markers of physical abuse, (3) document information and evidence integral for achieving successful criminal prosecution, and (4) describe approaches that community-based frontline workers can employ to better document evidence of physical abuse.
The data included in this collection were collected under a National Institute of Justice-funded project that sought to document the spectrum and characteristics of injuries observed among physically abused, community-dwelling APS clients.
The collection includes two SAS datasets: injury.sas7bdat (with 47 variables and 403 cases) and subjectleveldata.sas7bdat (with 122 variables and 165 cases); and three SAS System Program Files: analysis-code-v1.sas, cleaned-injury-datasets-v1.sas, and formats.sas. Demographic variables in the collection are in the subjectleveldata.sas7bdat dataset, and include age, year of birth, gender, race, language, and level of education.
Generations: A Study of the Life and Health of LGB People in a Changing Society, United States, 2016-2019 (ICPSR 37166)
The Generations study is a five-year study designed to examine health and well-being across three generations of lesbians, gay men, and bisexuals (LGB). The study explored identity, stress, health outcomes, and health care and services utilization among LGBs in three generations of adults who came of age during different historical contexts. This collection includes baseline, wave 1, and wave 2 data collected as part of the Generations study.
The study aimed to assess whether younger cohorts of LGBs differed from older cohorts in how they viewed their LGB identity and experienced stress related to prejudice and everyday forms of discrimination, as well as whether patterns of resilience differed between different LGB cohorts. Additionally, the study sought to examine how differences in stress experience affected mental health and well-being, including depressive and anxiety symptoms, substance and alcohol use, suicide ideation and behavior, and how younger LGBs utilized LGB-oriented social and health services, relative to older cohorts.
In wave 2, respondents were re-interviewed approximately one year after completion of the baseline (wave 1) survey. Only respondents who participated in the original sample of participants were surveyed at wave 2 (i.e., the enhancement oversample was not included in the longitudinal design of this study).
In wave 3, respondents were re-interviewed approximately one year after the completion of the wave 2 survey.
Demographic variables collected as part of this study include questions related to age, education, race, ethnicity, sexual identity, gender identity, income, employment, and religiosity.
The Hawaii Personality and Health Cohort, 1959-1967: Childhood Personality Data (ICPSR 36737)
The Hawaii Personality and Health Cohort consists of teacher ratings of their students' personalities. John M. (Jack) Digman orchestrated the collection of the child personality data between 1959 and 1967, during his tenure as a professor at the University of Hawaii. Childhood data was collected on 2418 children in classrooms on the islands of Oahu and Kauai. Six waves of data collection were completed, and eighty-eight teachers provided assessments of their students. Children ranged in age from 5 to 14, and were in grades 1,2,3,5 or 6.
The initial goal of this work was to generate ratings using a broad set of items to allow for research on the structure of personality in childhood. The data collection predated the acceptance of the Big Five model of personality. Items were selected to capture the entire range of observable personality, which at the time was thought to be characterized by 10 or more domains. Subsequent analysis by Dr. Digman, and later by Lewis R. (Lew) Goldberg, demonstrated a consistent five factor structure in the child personality data. In the early days of the emergence of the Big Five model of personality structure, the Hawaii child data provided initial evidence to support the acceptance of Big Five model of personality.
Subsequent follow-up of the sample in adulthood has included multiple questionnaires, and assessments of objective markers of health. These follow-up data allowed for the first ever assessment of the stability in the Big Five over a span of 40 years. At average age 50, participants were recruited for a half day clinic visit. Objective markers of health collected at this time have supported work testing childhood personality as a predictor of physical health, and also research testing lifespan pathways linking childhood personality to physical health in adulthood.
This initial release includes the full childhood cohort data. Also included are a set of Big Five scores that have been used in published research on the Hawaii Personality Cohort, and a number of different sets of personality scales derived from these data. Basic demographic information is also provided. Subsequent data releases will include questionnaire and clinic data collected in adulthood.
For additional information about the correspondence between these datasets, please see the accompanying Excel file, which provides a table of overlapping variables across the datasets. Further information about this crosswalk file can be found in the "Item Overlap" section of the accompanying Study Description document.
Demographic variables included in this study include gender, cultural identity, and year of birth.
HIV Stigma in a Population of Adults Age 50 and Over in the Pacific Northwest, 2003-2005 (ICPSR 33242)
Older adults are increasingly becoming impacted by HIV disease, both as newly infected individuals and as long-term survivors of HIV/AIDS living into older age. HIV-related stigma impacts the quality of life of all persons with HIV/AIDS. However, little is known about HIV-related stigma in older adults because many studies do not include older subjects or ignore age as a variable. This mixed methods study examined the experiences of HIV-related stigma in a sample of 25 older adults with HIV/AIDS from the Pacific Northwest. Quantitative methods measured HIV stigma and depression, while in-depth qualitative interviews captured the lived experiences of these individuals. Stigma was positively and significantly correlated with depression and stigma was found to be significantly higher in African American, as compared to White informants. Qualitative interviews yielded 11 themes that correspond to the four categories constructed in the stigma instrument. Rejection, disclosure concerns, stereotyping, protective silence and feeling "other", were all common experiences of these individuals.
Hospitalized Older Persons Evaluation (HOPE) Study, 1991-1993: [California] (ICPSR 6560)
Identification of Risk and Preventive Factors for Elder Financial Exploitation, Los Angeles, 2014-2015 (ICPSR 36415)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
Financial elder exploitation (FE) is an increasing problem for vulnerable elders exploited by opportunists and for the social service and criminal justice system designed to protect them. This study systematically investigated both objective and subjective measures of social support and isolation, along with common risk factors mentioned in FE theories, including dependency, physical health, depression, cognition, and demographic characteristics. Researchers collected data on individual difference variables with an emphasis on cognitive factors and data on contextual factors using an individually administered survey approach. The framework for this project was derived from known factors for FE, predicted protective factors for FE, and conceptual approaches from the child mistreatment literature on risk and resilience.
The study includes 1 SPSS data file with 216 cases and 297 variables.
The Impact of a Forensic Collaborative for Older Adults on Criminal Justice and Victim Outcomes: A Randomized-Control, Longitudinal Design, Denver, Colorado, 2014-2018 (ICPSR 37167)
Initially funded in 2013 by the National Institute of Justice, the primary purpose of this project was to conduct a randomized-control test of the impact of a victim-focused, forensic collaborative relative to usual care (UC) on older adult victims' health, mental health, and criminal justice outcomes. During the course of the project, researchers responded to enrollment and consent challenges by implementing Arm 2 that focused on collecting caseworker and victim advocate perceptions of cases as well as administrative data from Adult Protective Services (APS).
This collection contains 6 datasets:
- Arm 1 (DS1) contains survey results from victim-focused interviews of 40 older adults who were reported to be victims of abuse, neglect, and/or financial exploitation over 4 time points. Variables describe victim and case characteristics, service use/needs, risk factors for abuse, consequences of abuse and exploitation, and criminal justice process and outcomes.
- Arm 2 (DS2) includes a survey of APS caseworkers reporting on a case of older adult abuse, such as client (older adult victim) and perpetrator demographics, mistreatment details (verbal abuse, physical abuse, sexual abuse, neglect, financial exploitation, and/or housing exploitation), and service use.
- Collateral assessments (DS3) surveyed a trusted individual related to the older adult respondent in Arm 1. This included data on the perceptions of the older adult's functioning and use of services; and the quality of decision-making procedures, desired treatment, and outcomes in the criminal justice system. Of the 40 Arm 1 participants interviewed, 33 gave collateral contact information. Of those 33, 16 could not be reached, one failed the consent quiz, and two declined to participate. Of the 14 who participated in an initial interview, only three participated at the follow-up nine months later.
- Revictimization and Prosecutorial Outcome Data (DS5) includes information on new incidents reported to law enforcement over the nine months following the original incident report and prosecution outcomes, gathered from publicly-accessible police reports and court information for Arm 1 and Arm 2 cases.
- APS administrative data (DS6), such as the demographics of the older adult victim and the primary perpetrator, assessment scores for risk and safety, the alleged mistreatment type, whether mistreatment was substantiated, and APS case status. The data included overall risk/safety scores and summary scores for the domains of physical functioning, environmental context, financial resources, mental health, cognition, medical issues, and mistreatment.
Arm 1 demographic variables includes age, gender, education, employment status, marital status, household size, ethnic minority, and income source. Arm 2 surveys reported ethnicity, gender, age, education, marital status, and employment status; APS data reported age and gender.
Local Health Department Infrastructure Study, 1999-2000: [United States] (ICPSR 3185)
Longitudinal Study of Aging Danish Twins, 1995 (ICPSR 21041)
Mass Marketing Elder Fraud Intervention, United States, 1999-2023 (ICPSR 39001)
Estimates suggest that up to 16% of American adults--approximately 40 million people--fall victim to mass marketing scams each year. Mass marketing scams include any attempts to fraudulently solicit money from consumers through mass communication methods, such as the internet, telephone, and mail. Complaints to consumer protection agencies have risen 240% in the past 10 years (Federal Trade Commission [FTC], 2013, 2023). According to conservative estimates from the most recent Consumer Sentinel Network Report (FTC, 2023), Americans reported more than $2.7 billion in direct losses from fraud in 2022. In addition to financial costs, consequences to victims include feelings of shame and embarrassment, loss of trust, depression, and, in the most severe cases, suicidal ideation. These consequences of fraud are particularly impactful for older adults who suffer higher losses per incident, on average (FTC, 2022) and face greater challenges recovering from losses after retirement. Research on elder mistreatment in general has shown that older victims consume 30% more mental health and substance abuse services and are hospitalized more often than non-victims.
These scams convince susceptible targets that they have won bogus sweepstakes, merchandise, free vacations, or lotteries, but they first need to pay money to claim their winnings. Based on data from one major investigation from 2011 to 2016, the United States Postal Inspection Service (USPIS) found that Americans sent $558 million in checks, credit card payments, and money orders through the mail in response to such scams (USPIS internal data). Overall, the USPIS estimates that 3% of U.S. adults--7.5 million Americans--have mailed a payment in response to mass marketing fraud and that 60%-70% of these individuals are revictimized by a similar solicitation or an entirely different offer. Given these figures, reducing the incidence of mass marketing fraud could save millions of dollars annually.
Although the FTC, the National Council on Aging, the Consumer Financial Protection Bureau, the Better Business Bureau, American Association of Retired Persons (AARP), and other agencies and organizations routinely disseminate fraud education and awareness materials, it is unclear how much of these materials reach the most vulnerable populations. Much of the content is available online, yet according to the Pew Research Center, only 75% of adults older than age 65 use the internet, and only 64% have home broadband. Printed materials are also disseminated at senior centers, libraries, legal service offices, and outreach events, but older adults who are socially isolated and most susceptible to fraud are unlikely to be reached through these venues.
To address gaps in intervention research, Research Triangle Institute (RTI) International and the University of Minnesota conducted the Mass Marketing Elder Fraud Intervention (MMEFI) Study with collaboration and support from the USPIS. This multiphase research project included a secondary analysis of USPIS administrative data on prior scams and a randomized controlled trial test of the efficacy of two variations of a mailed intervention for preventing revictimization by mail fraud. The overall objective was to provide specific policy recommendations to the USPIS and other consumer protection agencies regarding the effectiveness of a mailed intervention. The MMEFI Study had the following specific goals:
- Enhance knowledge and understanding of repeat victimization among older victims of mass marketing scams.
- Engage in rigorous testing of the efficacy of two versions of a fraud intervention strategy geared toward preventing repeat victimization among older victims of mass marketing scams.
- Assess victims' perceptions of the intervention and collect self-report data on experiences with other types of fraud by surveying individuals in the intervention study.
Midlife in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840)
Midlife in the United States (MIDUS 3): Milwaukee African American Sample, 2016-2017 (ICPSR 37120)
In 2005, 592 African Americans from Milwaukee were added to the MIDUS sample to examine health issues in minority populations (for more details, see Midlife in the United States (MIDUS 2): Milwaukee African American Sample [ICPSR #22840]). Respondents were interviewed in their homes using a Computer Assisted Personal Interview (CAPI) survey protocol and asked to complete and return a Self-Administered Questionnaire (SAQ). Afterwards these individuals were eligible for participation in the same research protocol as the national MIDUS 2 sample, including cognitive, daily stress, biomarker, and neuroscience projects.
With support from the National Institute on Aging, a second wave of survey data collection on the Milwaukee sample was begun in 2016. The survey consisted of a 2.5 hour CAPI interview followed by a 45-page mailed SAQ. CAPI survey data was collected for 389 individuals, realizing a 78 percent response rate, adjusted for mortality and other eligibility criteria. Data collection for this follow-up wave largely repeated baseline assessments, with additional questions in selected areas (e.g., economic recession experiences, childhood experience with race, etc.). Following successful completion of the CAPI and SAQ protocols, individuals were eligible for participation in cognitive, daily stress, biomarker, and neuroscience projects.
Midlife in the United States (MIDUS): Psychological Experiences Follow-Up Study, 1998 (ICPSR 2911)
Midlife in the United States (MIDUS Refresher 1): Milwaukee African American Sample, 2012-2013 (ICPSR 36722)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the Midlife Development in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840). This sample was also designed to increase the number of racial minorities included in the broader MIDUS study. The MIDUS Milwaukee Refresher survey employed the same assessments (demographic, psycho-social, and physical and mental health) as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09. A sample of African Americans from Milwaukee County, Wisconsin, was stratified by age, gender, and income.
Area probability sampling methods were used to identify potential respondents. Field interviewers screened households to determine if they contained any African American adults. There was additional screening to achieve an appropriate age/gender distribution in a manner similar to what was done for the original MIDUS sample (Midlife in the United States (MIDUS 1), 1995-1996 [ICPSR 2760]). Milwaukee respondents were interviewed in their homes using a 2.5-hour Computer Assisted Personal Interview (CAPI) protocol and afterwards asked to complete a self-administered questionnaire (SAQ). All measures paralleled those used in the larger MIDUS samples. In addition to successful completion of the survey, participants were asked to complete a cognitive assessment by phone. Some respondents were eligible to participate in additional MIDUS projects: daily diary assessments, biomarker assessments, and neuroscience assessments.
Midlife in the United States (MIDUS Refresher 2): Milwaukee African American Sample, 2023-2024 (ICPSR 39583)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the original MIDUS Milwaukee 1 survey that was designed to increase the number of racial minorities in 2005. The MIDUS Milwaukee Refresher survey employed the same comprehensive assessments (demographic, psycho-social, and physical and mental health) as those on the existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09.
In 2023-2024, the second wave of survey data was collected from 327 longitudinal Refresher Milwaukee participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS Refresher Milwaukee data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher Milwaukee 1 data with the post-pandemic MIDUS Refresher Milwaukee 2 data. Further, the longitudinal MIDUS Refresher datasets (wave 1 and wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being.
National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry), 1958-2013 [RESTRICTED] (ICPSR 36234)
In 1958, the Medical Follow-up Agency (MFUA) of the Institute of Medicine began a project to identify twins who had jointly entered military service during World War II. In the end, MFUA identified nearly 16,000 White male twin pairs born 1917-1927 in which both members had served in the military. These twins comprise the National Academy of Sciences-National Research Council World War II Twin Registry (NAS-NRC Twin Registry). This collection represents data from service records, a mailed questionnaire assessing zygosity, and repeating health surveys, including information on education, employment history, and earnings.
There are nine datasets associated with this restricted-use collection:
1) The Administrative dataset includes demographic, zygosity, service history, mortality, and questionnaire participation data;
2) The Service and Other Records dataset contains information collected from service records, physical exam data, cognitive test data, and dental records;
3) The Questionnaire 2 dataset consists of data collected in the first mailed questionnaire sent in 1965 about pain, illnesses, smoking habits, alcohol consumption, and employment;
4) The Questionnaire 3 dataset includes data from the baseline epidemiological questionnaire sent in 1974 about number and sex of children, religious attendance, education, income, and occupation;
5) Questionnaire 7, mailed in 1985, contains similar topics as in Questionnaire 2, and includes data about health conditions such as diabetes, as well as feelings about work and retirement;
6) Questionnaire 8 was mailed in 1998 was the third epidemiologic questionnaire. This dataset is comprised of overlapping topics with Q2 and Q7, and has additional data about feelings, prescription medications, activity levels, the Geriatric Depression Scale, and parental death status;
7) The NEO Personality Inventory dataset includes responses to the NEO Five-Factor Personality Inventory mailed in 2005-2006;
8) The Service and Death Records dataset (VDE access only) contains information about date and place of birth, state at induction, disciplinary measures during service, decorations received during service, indicator for those known to have been POWs, reason for separation from the military, age at death if died over age 90, and cause of death. Some of this information was obtained from the re-read of service records and is thus available only for a subset of 6357 men;
9) Diagnoses dataset (VDE access only) contains data about medical conditions diagnosed between 1935 and 1985 that were abstracted from a variety of medical records over the course of the study. The diagnoses were coded using the International Classification of Disease system (WHO, 2015).