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Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-12-31

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

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Generations: A Study of the Life and Health of LGB People in a Changing Society, United States, 2016-2019 (ICPSR 37166)

Released/updated on: 2023-01-05
Geographic coverage: United States
Time period: 2016-01-01--2017-12-31, 2017-01-01--2018-12-31, 2018-01-01--2019-12-31

The Generations study is a five-year study designed to examine health and well-being across three generations of lesbians, gay men, and bisexuals (LGB). The study explored identity, stress, health outcomes, and health care and services utilization among LGBs in three generations of adults who came of age during different historical contexts. This collection includes baseline, wave 1, and wave 2 data collected as part of the Generations study.

The study aimed to assess whether younger cohorts of LGBs differed from older cohorts in how they viewed their LGB identity and experienced stress related to prejudice and everyday forms of discrimination, as well as whether patterns of resilience differed between different LGB cohorts. Additionally, the study sought to examine how differences in stress experience affected mental health and well-being, including depressive and anxiety symptoms, substance and alcohol use, suicide ideation and behavior, and how younger LGBs utilized LGB-oriented social and health services, relative to older cohorts.

In wave 2, respondents were re-interviewed approximately one year after completion of the baseline (wave 1) survey. Only respondents who participated in the original sample of participants were surveyed at wave 2 (i.e., the enhancement oversample was not included in the longitudinal design of this study).

In wave 3, respondents were re-interviewed approximately one year after the completion of the wave 2 survey.

Demographic variables collected as part of this study include questions related to age, education, race, ethnicity, sexual identity, gender identity, income, employment, and religiosity.

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Health and Relationships Project, United States, 2014-2025 (ICPSR 37404)

Released/updated on: 2026-06-23
Geographic coverage: United States
Time period: 2014-10-01--2015-09-30, 2021-07-01--2023-01-31, 2024-09-01--2025-03-31

The Health and Relationship Project is a longitudinal study of both spouses in same-sex and different-sex marriages who were legally married and aged 35 to 65 at Time 1 of data collection (2014-2015). Time 2 data were collected in 2021-2022 and Time 3 data were collected in 2024-2025.

At each time, both spouses completed a baseline questionnaire and a daily diary questionnaire (which was completed for 10 consecutive days); both components were completed online and spouses were asked to complete the surveys separately. The baseline questionnaire asks participants about a number of topics related to marriage and health, including stress, health status and health behaviors, relationship quality, and how they have approached health problems in the past. The diary questionnaire asks participants a number of questions about the past 24 hours, including daily stress experiences, social interactions, and health behaviors.

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Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)

Released/updated on: 2023-01-25
Geographic coverage: United States
Time period: 1996-03-01--1997-03-31
The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the MacAuthur Foundation National Survey of Midlife in the United States (MIDUS). The purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. Although previous daily diary research has advanced understanding of daily stress processes, there are important limitations in these studies that are addressed in the NSDE. First, previous studies in this area have relied on small and often unrepresentative samples that limit the ability to generalize findings. For this reason, the NSDE uses a large national sample of adults in the United States. Second, previous studies of individual differences in exposure and reactivity to daily events have typically examined only one source of variability, such as personality, to the exclusion of others. The NSDE corrects this problem by utilizing the data collected in the larger MIDUS survey on a wide array of sociodemographic and psychosocial variables to study the determinants of exposure and reactivity to daily stress. Third, previous studies have failed to investigate the role of genetics in both exposure and reactivity to daily stressors. The NSDE has a subsample of identical and fraternal same-sex twin pairs in order to explore this issue. The twins were selected if twin pairs had high self-reported certainty of zygosity, had completed the MIDUS interview and questionnaires, and had mailed in their cheek cell samples. A wide range of information was obtained using the daily telephone interview. Conducting interviews for an entire year provided information about seasonal variation in daily experiences. Respondents completed an average of 7.2 of the 8 interviews resulting in a total of 10,397 days of interviews. Data collection consisted of 40 separate "flights" of interviews with each flight representing the eight-day sequence of interviews from approximately 33 respondents. The entire interview was CATI programmed, which enabled researchers to incorporate skip patterns and open ended probe questions as well as to keypunch data during the interview, allowing data cleaning throughout the data collection. Demographic information includes gender and age.
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Midlife in the United States (MIDUS 2): Daily Stress Project, 2004-2009 (ICPSR 26841)

Released/updated on: 2017-11-20
Geographic coverage: United States
Time period: 2004-01-01--2009-12-31
The Daily Stress Project of MIDUS II contains data from 2,022 respondents. These respondents include three distinct groups, all of whom completed the Project 1 Survey: (1) longitudinal (n = 794), (2) expanded (n = 1,048), and (3) Milwaukee (n = 180). The longitudinal group included individuals who participated in the Daily Stress Project at Time 1, the expanded group consisted of Time 2 participants from all MIDUS subsamples (RDD, twins, siblings) who did not participate in the Daily Stress Project at Time 1, and the Milwaukee group contained individuals who participated in the baseline MIDUS Milwaukee study, initiated in 2005. The purpose of the Daily Stress Project was to examine how sociodemographic factors, health status, personality characteristics, and genetic endowment modify patterns of change in exposure to day-to-day life stressors as well as physical and emotional reactivity to these stressors. The primary aims were to: (1) describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood; (2) examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors; (3) investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and (4) explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood. Respondents in the NSDE are a representative subsample of the MIDUS (Midlife in the United States) survey. The Daily Stress study is Project 2 of the MIDUS longitudinal study, a national survey of more than 7,000 Americans (aged 25 to 74) began in 1994. The purpose of the larger study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples [core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)] was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). A description of the study and findings from it are available on the MIDUS Web site.
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Midlife in the United States (MIDUS 3): Daily Diary Project, 2017-2019 (ICPSR 38529)

Released/updated on: 2022-09-22
Geographic coverage: United States
Time period: 2017-01-01--2019-12-31
The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the Midlife in the United States (MIDUS) longitudinal study of health and well-being. Known within the MIDUS study as the Daily Diary Project (2), the purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. The primary aims of the MIDUS 3 Daily Diary project were to: (1) describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood; (2) examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors; (3) investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and (4) explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood. During 2017-2019, the Daily Diary project collected data on a subsample of the MIDUS 3 survey sample, including cases from the MIDUS Milwaukee sample. A total of 1,236 respondents completed Daily Diary interviews. A subset of these respondents provided 4-days worth of saliva samples that provided data on cortisol and alpha amylase.
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Midlife in the United States (MIDUS): Boston Longitudinal Study (BOLOS) of Cognition in Midlife, 1995-2008 (ICPSR 3596)

Released/updated on: 2017-10-13
Geographic coverage: United States, Massachusetts, Boston
Time period: 1995-10-01--1997-07-31, 2004-12-01--2008-07-31

This survey of adult management tasks began in 1995 as part of a larger national project (MIDUS) to investigate the patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Conducted in Boston, the survey was designed to examine how adults manage tasks in three domains of life -- work, family, and health. Further goals were to describe the subjective experience of goal attainment in midlife and to link it with objective measures of short-term longitudinal changes and cognitive functioning. During the national study, the Boston area was intentionally oversampled in order to create a subset to be used for in-depth study of management processes in midlife.

The Boston study began six months after the national study, and consisted of three interviews: a 30-minute phone interview followed by a 20-minute mail questionnaire (Time 1), a 90-minute in-person combination of cognitive tests, cortisol testing, photograph taking, and interview (Time 2), and a 30-minute phone interview (Time 3), conducted at six-month intervals. The focus was on projects related to family, work, and health that participants were working on during the period of the study. Each successive interview investigated participants' assessments of their progress in the present, recollection of six months in the past, and prediction six months into the future. Two waves of data collection were completed for this study. There were 151 respondents who participated in the first wave, 151 respondents who participated in both waves, and 26 additional respondents who participated in the second wave of data collection.

At Time 1, participants generated a list of two important family, work, and health tasks, then chose one of each as the most important in that domain. For each of the most important tasks, questions were asked about deadlines, whether participants were doing tasks because they had to do them, felt that they should do them, or chose to do them, and whether participants were doing tasks for themselves, others, or both. All six projects were ranked according to importance, and participants divided all their time into percentages spent on family, work, and health. The majority of questions on the mail questionnaire at Time 1 were taken from the Midlife Development Inventory (MIDI), the instrument created for the national study.

Respondents were asked to rate their control over health, to make assessments about present, past, and future health, to list any serious illnesses, and to indicate their physical health status. Study participants also rated their mental health, and discussed stressful life events in the last six months for self, spouse/significant other, parents, and children. Other questions focused on depression, mastery and constraints, community involvement, family, work, and life satisfaction. Scales used included the Ryff Well-Being Scales, the Eysenck Personality Inventory, the Staudinger and Baltes Wisdom Scale (1995), and the Ways of Coping Scale.

Time 2 was done in-person, and included a 50-minute series of cognitive tests followed by a 40-minute interview. The cognitive testing consisted of nine measures of cognitive ability completed in the following order: WAIS Forward Digit Span, WAIS Backward Digit Span, WAIS Vocabulary, counting backwards test, letter comparison test, dual-task test involving the counting backwards and letter comparison tests, WAIS Digit Symbol, Schaie-Thurston Letter Series, and Raven's Advanced Progressive Ma Matrices.

The Time 2 interview began with a series of questions asking about each of the family, work, and health tasks elicited from the participants in Time 1. Many questions were repeated from the MIDI including rating physical health, family life, work situation, and life overall, rating physical and mental health from poor to excellent, and a measure of stressful life events in the last six months for self, spouse/significant other, parents, and children. Participants were asked to rate how old they felt and how old they looked and to indicate their total yearly household income. Lastly, a series of open-ended questions asked about best and worst aspects of family, work, and health, how participants managed their daily life, the most challenging aspect of life and how it was managed, and what participants found most helpful in carrying out their daily life. Photographs were taken of participants at the conclusion of the interview.

Time 3 asked again about each of the most important family, work, and health tasks elicited from the participants in Time 1. Newly developed questions asked participants about ideas related to middle age, including when the participant believed middle age begins and ends, whether the participant was younger than, in, or older than middle age, the biggest changes in middle age, the best and worst aspects of middle age, whether the participant knew anyone who had had a "midlife crisis," and whether he or she would have or had had a midlife crisis. Participants were asked to rate how often they had problems and how often things went well with respect to a list of 26 domains, and how much stress and how much control they had in these domains. Lastly, participants were asked whether they had ever returned to a degree-oriented educational program after being out of school for five or more years, whether they were presently taking classes to further their education, and whether being a participant in the study had influenced the ways they thought about their family, work, and health projects.

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Midlife in the United States (MIDUS Refresher 1): Daily Diary Project, 2012-2014 (ICPSR 37083)

Released/updated on: 2020-12-14
Geographic coverage: United States
Time period: 2012-10-01--2014-11-30

The MIDUS Refresher Daily Diary Project (aka National Study of Daily Experiences or NSDE) contains data from 782 respondents. The purpose of the Daily Stress Project was to examine how sociodemographic factors, health status, personality characteristics, and genetic endowment modify patterns of change in exposure to day-to-day life stressors as well as physical and emotional reactivity to these stressors.

The primary aims were:

  1. To describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood;
  2. To examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors;
  3. To investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and
  4. To explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood.

The Daily Diary study is comprised of a subsample of the MIDUS (Midlife in the United States) Refresher, a national survey of nearly 3,600 Americans (aged 25 to 75) conducted during 2011-2014. The MIDUS Refresher survey was designed to replenish the original MIDUS 1 baseline cohort and allow the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental).

Demographic variables in this collection include sex and age.

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National Health Interview Survey, 1985 (ICPSR 8668)

Released/updated on: 2011-05-25
Geographic coverage: United States
Time period: 1985-01-01--1985-12-31
The basic purpose of the National Health Interview Survey is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. There are five types of records in the core survey, each in a separate data file. The variables in the Household File (Part 1) include type of living quarters, size of family, number of families in household, and geographic region. The variables in the Person File (Part 2) include sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. These variables are found in the Condition, Doctor Visit, and Hospital Episode Files as well. The Person File also supplies data on height, weight, bed days, doctor visits, hospital stays, years at residence, and region variables. The Condition (Part 3), Doctor Visit (Part 4), and the Hospital Episode (Part 5) Files contain information on each reported condition, two-week doctor visit, or hospitalization (twelve-month recall), respectively. A sixth, seventh, and eighth file have been added along with the five core files. The Health Promotions and Disease Prevention Supplement is separated into three categories as follows: Child Safety/Infant Feeding (Part 6), Sample Person (Part 7), and Smoking (Part 8). These data files include questions on health and fitness awareness, general health habits, injury control, child safety and health, high blood pressure, stress, exercise, smoking, alcohol use, dental care, and occupational safety and health.
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National Health Interview Survey, 1989: Mental Health Supplement (ICPSR 9403)

Released/updated on: 1993-02-12
Geographic coverage: United States
Time period: 1989-01-01--1989-12-31
The basic purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The 1989 Mental Health Supplement provides 93 variables from the core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1989 [ICPSR 9583]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The 131 variables unique to this supplement offer information on manic depression, major depression, personality disorder, senility, substance abuse, mental retardation, and other mental disorders. Questions were asked about the effect of the disorder on the respondent's ability to work, attend school, handle routine matters such as managing money, perform everyday household chores, shop, and get around outside the home. In addition, respondents were questioned about difficulties resulting from the disorder such as forming and keeping friendships, maintaining concentration, and coping with daily stress. Questions about the length of time the respondent had the disorder and interaction with health professionals concerning the disorder were also asked.
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National Health interview Survey, 1993: Year 2000 Objectives Supplement (ICPSR 6533)

Released/updated on: 1995-10-12
Geographic coverage: United States
Time period: 1993-01-01--1993-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. This supplement includes variables from the NHIS core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1993 [ICPSR 6534]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The Year 2000 Supplement also contains items on nine selected topics that relate to the Department of Health and Human Services (HHS) Year 2000 Health Objectives: environmental health, tobacco use, nutrition, occupational safety and health, heart disease, other chronic and disabling conditions, clinical and preventive services, mental health, and oral health. Among the variables included in this supplement are type of residence, whether the home was built before 1950, whether household air was tested for radon, current smoking status, current activities to control weight, employer-sponsored exercise programs, amount of stress in the past year, and the effect of stress on health in the past year. Variables included in the sections on mental health and oral health include the amount of stress in the past two weeks and in the past year, total number of dental visits in the past 12 months, loss of teeth, and general health status.
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National Health Interview Survey, 1995: Year 2000 Objectives Supplement (ICPSR 2528)

Released/updated on: 1998-08-28
Geographic coverage: United States
Time period: 1995-01-01--1995-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. This supplement includes variables from the NHIS core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1995 [ICPSR 2533]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The Year 2000 Supplement contains items on five selected topics that relate to the Department of Health and Human Services (HHS) Year 2000 Health Objectives: tobacco, nutrition, clinical preventive services, mental health, and physical activity and fitness. Variables relating to smoking include respondent's current smoking status and tobacco use. Items on nutrition cover participation in activities to control weight, exercise, salt intake, and fat intake. Variables in the clinical preventive services section provide information on whether the respondent had a flu shot in the last year, a tetanus shot in the last 10 years, or the pneumonia vaccination, whether the respondent had diabetes, asthma, emphysema, chronic bronchitis, TB, or chronic kidney and liver disease in the past year, whether the respondent experienced extreme fatigue, and whether he or she was treated for cancer. The mental health section includes items on the levels of stress the respondent experienced, the effects of stress on health, steps taken to control stress, emotional/personal problems in the past year, and whether any treatment for these problems had been sought. Variables on physical activity and fitness include types of exercise (walking, gardening, stretching, weight- lifting, jogging, aerobics or aerobic dancing, bicycle riding, stair climbing, swimming, tennis, golf, baseball, handball/raquetball or squash, downhill skiing, cross-country skiing, water skiing, basketball, volleyball, soccer, football, and other sports), how often the respondent performed the activity, number of minutes spent doing the activity, and change in heart rate during the activity. Additionally, respondents were asked about the length of time since their last check-up and whether the doctor had recommended that exercise be started or continued.
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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001 (ICPSR 3253)

Released/updated on: 2006-03-30
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-28
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Data were collected through randomized clinical trials at six sites: University of Alabama--Birmingham, the Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee--Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions studied included psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services. Although interventions varied by site, all sites collected the same data at the same time intervals. The impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization was assessed. Parts 1 through 5 contain screening data and a short mental status questionnaire. Parts 6 through 24 contain baseline data and cover activities of daily living, anxiety, and caregiver health and behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 25 and 26 contain tracking data and also include an examination of interventions.
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Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)

Released/updated on: 2006-09-26
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-28
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
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Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354)

Released/updated on: 2006-10-27
Geographic coverage: Palo Alto, United States, Tennessee, Memphis, California, Alabama, Florida, Birmingham, Philadelphia, Pennsylvania, Miami
Time period: 2001-01-01--2004-12-31
Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimer's disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimer's Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to corresponding intervention components. These components included education, skills to manage troublesome care-recipient behaviors, social support, cognitive strategies for reframing negative emotional responses, and strategies for enhancing healthy behaviors and managing stress. Consistent with this approach, the primary outcome was a multivariate quality of life indicator that assessed caregiver depression, burden, self-care, social support, and patient problem behaviors. Two hallmarks of caregiver intervention studies--caregiver clinical depression and patient institutionalization--were assessed as secondary outcomes. The dataset names listed in this collection include the shortened name of the form administered.
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Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006 (ICPSR 3792)

Released/updated on: 2014-06-17
Geographic coverage: Taiwan
Time period: 2000-01-01--2000-12-31, 2006-01-01--2006-12-31

The Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006, provides information regarding the health and well-being of older persons in Taiwan. Taiwan has undergone rapid demographic, social, and economic changes, becoming a highly urbanized and industrial society with a growing population of persons age 65 or older. SEBAS explores the relationship between life challenges and mental and physical health, the impact of social environment on the health and well-being of the elderly, as well as biological markers of health and stress. The study collected self-reports of physical, psychological, and social well-being, plus extensive clinical data based on medical examinations and laboratory analyses. Examination of health outcomes included chronic illnesses, functional status, psychological well-being, and cognitive function. Questions regarding life challenges focused on perceived stress, economic difficulties, security and safety, and the consequences of a major earthquake. Biological markers were used to identify cardiovascular risk factors, metabolic process measures, immune-system activity, the hypothalamic-pituitary adrenal axis, and sympathetic nervous system activity. Two rounds of biomarker data collected in 2000 and 2006 were complemented by face-to-face interviews with the participants. Demographic and background variables included age, sex, education, ethnicity, occupation, and residency.

Additional information about the Social Environment and Biomarkers of Aging Study can be found at the Georgetown University Center for Populations and Health Web site.

A Webinar describing the Social Environment and Biomarkers of Aging Study (SEBAS) was presented June 20, 2016. All interested users can access the webinar here.

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Stress in America, United States, 2007-2024 (ICPSR 37288)

Released/updated on: 2026-06-16
Geographic coverage: United States
Time period: 2007-01-01--2018-12-31, 2007-01-01--2007-12-31, 2008-01-01--2008-12-31, 2009-01-01--2009-12-31, 2010-01-01--2010-12-31, 2011-01-01--2011-12-31, 2012-01-01--2012-12-31, 2013-01-01--2013-12-31, 2014-01-01--2014-12-31, 2015-01-01--2015-12-31, 2016-01-01--2016-12-31, 2016-01-01--2016-12-31, 2017-01-01--2017-12-31, 2018-01-01--2018-12-31, 2019-01-01--2024-12-31, 2019-01-01--2019-12-31, 2020-01-01--2020-12-31, 2020-01-01--2020-12-31, 2020-01-01--2020-12-31, 2020-01-01--2020-12-31, 2021-01-01--2021-12-31, 2021-01-01--2021-12-31, 2022-01-01--2022-12-31, 2022-01-01--2022-12-31, 2023-01-01--2023-12-31, 2024-01-01--2024-12-31

Since 2007, the American Psychological Association (APA) has commissioned an annual nationwide survey as part of its Mind/Body Health campaign to examine the state of stress across the country and understand its impact. The Stress in America survey measures attitudes and perceptions of stress among the general public and identifies leading sources of stress, common behaviors used to manage stress and the impact of stress on our lives. The results of the survey draw attention to the serious physical and emotional implications of stress and the inextricable link between the mind and body.

From 2007 to 2024, the research has documented this connection among the general public as well as various sub-segments of the public. Each year, the Stress in America surveys aims to uncover different aspects of the stress/health connection via focusing on a particular topic and/or subgroup of the population. Below is a list of the focus of each of the Stress in America surveys.

  • 2007-2018 Cumulative Dataset
  • 2007 General Population
  • 2008 Gender and Stress
  • 2009 Parent Perceptions of Children's Stress
  • 2010 Health Impact of Stress on Children and Families
  • 2011 Our Health Risk
  • 2012 Missing the Health Care Connection
  • 2013 Are Teens Adopting Adults' Stress Habits
  • 2014 Paying With Our Health
  • 2015 The Impact of Discrimination
  • 2016 Coping with Change, Part 1
  • 2016 Coping with Change, Part 2: Technology and Social Media
  • 2017 The State of Our Nation
  • 2018 Stress and Generation Z
  • 2019-2024 Cumulative Dataset
  • 2019 Stress and Current Events
  • 2020 COVID Tracker Wave 1
  • 2020 COVID Tracker Wave 2
  • 2020 COVID Tracker Wave 3
  • 2020 A National Mental Health Crisis
  • 2021 Pandemic Anniversary Survey
  • 2021 Stress and Decision-Making During the Pandemic
  • 2022 Pandemic Anniversary Survey
  • 2022 Concerned for the Future, Beset by Inflation
  • 2023 A Nation Recovering From Collective Trauma
  • 2024 A Nation in Political Turmoil
Curated

Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04 (ICPSR 30181)

Released/updated on: 2014-02-13
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 1998-02-15--2001-06-01
The Study of Women's Health Across the Nation (SWAN) is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The study is co-sponsored by the National Institute on Aging (NIA) and the National Institute of Health (NIH), Office of Research on Women's Health. The study began in 1994. Between 1998 and 2001, 2,829 of the 3,302 women that joined SWAN participated in a collection of family history data. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Almeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente); Los Angeles, CA (University of California, Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)

Released/updated on: 2025-08-05
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2001-03-01--2003-02-15
The Study of Women's Health Across the Nation (SWAN), is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2001 and 2003, 2,617 of the 3,302 women that joined SWAN were seen for their fifth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis, and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)

Released/updated on: 2025-06-30
Geographic coverage: Inkster, Hackensack, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2002-03-15--2004-02-15
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2002 and 2004, 2,448 of the 3,302 women that joined SWAN were seen for their sixth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)

Released/updated on: 2025-07-10
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2003-05-15--2005-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2003 and 2005, 2,327 of the 3,302 women that joined SWAN were seen for their seventh follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the seventh visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)

Released/updated on: 2018-11-15
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2006-02-15--2008-01-31
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2006 and 2008, 2,245 of the 3,302 women that joined SWAN were seen for their tenth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan), Boston, MA (Massachusetts General Hospital), Chicago, IL (Rush Presbyterian-St. Luke's Medical Center), Almaeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente), Los Angeles, CA (University of California, Los Angeles), Hackensack, NJ (Hackensack University Medical Center) and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the tenth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)

Released/updated on: 2019-05-29
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1999-02-01--2001-01-31

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated

Teenage Attitudes and Practices Survey, 1989: [United States] (ICPSR 9786)

Released/updated on: 1994-02-18
Geographic coverage: United States
Time period: 1988-01-01--1989-12-31
In this follow-up to the National Health Interview Survey (NHIS), teenagers were interviewed to obtain information on tobacco use, including measures of prevalence, knowledge and attitudes, and predictors of taking up smoking. Respondents were asked if they smoked or used chewing tobacco or snuff, or had in the past. If so, they were questioned as to when they started, how much they smoked, chewed, or snuffed during the last month, where they bought cigarettes, which brand of cigarettes, chewing tobacco, or snuff they usually bought, how many times they tried to stop these habits, and what was the longest time they stopped smoking cigarettes since they started smoking regularly. Nonsmokers were asked if they thought they might start smoking, if they had experimented with cigarette smoking, if they had ever been offered a cigarette, and how difficult it would be to obtain tobacco if they wanted to. The survey asked respondents if any of their household members, teachers, or friends smoked, if they had heard anything about the health risks of tobacco use on television, radio, or in newspapers or magazines, and if they believed that chewing tobacco or using snuff causes cancer. Attitudes toward tobacco use were also probed with questions such as whether respondents disliked being around people who smoked, whether they believed it was safe to smoke for only a year or two, if they preferred to date people who didn't smoke, if they thought they could stop smoking any time they wanted to, whether they thought their friends approved or disapproved of their smoking, chewing, or snuffing, and if they thought their parents would mind if they smoked when they were older. Respondents were also asked if they believed there was any harm in having an occasional cigarette, and if they believed smoking helps people to relax, to keep down their weight, and to reduce boredom and stress. In addition to questions about tobacco use, the survey queried respondents about their attitudes regarding seat belts, fitness, alcohol, marijuana, drugs in general, school, and diet. They were also asked whether, during the last year, they had been in an accident or physical fight, had been in a car with a drunk driver, or had ridden on a motorcycle, and how often they had trouble going to sleep, felt unhappy or depressed, felt hopeless about the future, felt nervous or tense, or worried too much. Demographic and socioeconomic information provided in the data file includes respondents' race, education, and geographic region, reference persons' race, education, occupation, and marital status, presence of parent(s) or other adult relative in household, family income, and education of the adult.
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Simple Crosstabs

Vietnam Era Twin Study of Aging (VETSA), United States, 2002-2019 (ICPSR 38836)

Released/updated on: 2025-09-25
Geographic coverage: United States
Time period: 2002-01-01--2019-12-31

The Vietnam Era Twin Study of Aging (VETSA) projects began in 2002 with the goal of understanding risk and protective factors, including genetics, for cognitive and brain aging starting in midlife. This NIH funded longitudinal study has completed three waves of data collection (2002-2008; 2008-2014, 2015-2020) following the same group of non-patient, community dwelling male veteran twins from when they were average age 56 to average age 68. A fourth wave of data collection began in October 2021. Although the men are American veterans, this is not a VA sample. This is a nation-wide sample with participants flown into sister data collection sites at either University of California San Diego or Boston University.

The VETSA study encompasses multiple linked grants and data collections with two studies funded continuously since 2002--The VETSA Longitudinal Twin Study of Cognition and Aging and The VETSA Longitudinal MRI Twin Study of Aging. Because of the broad interests of the investigators, while study data focus most heavily on in-person cognitive testing, a wide array of psychosocial, demographic, medical history, physical functioning, and personality measures were also collected. While some measures were only collected at baseline, the majority are repeated at every data collection.

At each wave of data collection, participants completed a lengthy psychosocial questionnaire at home then came to the testing site for a full day (~8 hrs) of in-person testing. Participants were housed for either 2 nights if only part of VETSA aging or 3 nights if they qualified for the MRI data collection.

Curated

Well Elderly 2, Los Angeles, California, 2004-2008 (ICPSR 33641)

Released/updated on: 2013-05-28
Geographic coverage: United States, Los Angeles, California
Time period: 2004-11-01--2008-10-31
Older people are at risk for health decline and loss of independence. Lifestyle interventions offer potential for reducing such negative outcomes. The Well Elderly study attempts to determine the effectiveness and cost-effectiveness of a preventive lifestyle-based occupational therapy intervention, administered in a variety of community-based sites, in improving mental and physical well-being and cognitive functioning in ethnically diverse older people. Participants included 460 men and women aged 60 - 95 years recruited from 21 sites in the greater Los Angeles metropolitan area. For six months elders in one group received the Well Elderly Intervention, while elders in the other group remained untreated for the first six months and received the intervention during the second six-month phase. Following receipt of the intervention, subjects in both groups remained untreated for respective twelve month spans. The manualized intervention consisted of small group and individual sessions led by a licensed occupational therapist. Typically, each group had six to eight members, all recruited from the same site and treated by the same intervener. Monthly community outings were scheduled to facilitate direct experience with intervention content such as the use of public transportation. An assessment battery (including questionnaires, cognitive tests, and biomarker samples) measured potential mediating variables as well as outcome variables and was administered at study baseline and at subsequent six-month intervals. In addition, at baseline a set of background and control variables were measured. At the end of each assessment session (questionnaires and cognitive tests), subjects provided salivary samples. The Samples were assayed for cortisol, dehydroepiandrosterone, and alpha amylase. Assessment of health-related quality of life, life satisfaction, and depression was based on self-rated questionnaires. Cognitive tests were conducted individually. Perceived physical health and aspects of mental well-being were measured, as were depressive symptoms, and life satisfaction. Variable categories include, health survey, stressful events, feelings, connections, attitudes, supports, beliefs, issues, activities, and demographics i.e. respondents age, sex, race, education level, employment, and income.
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