Changing Lives of Older Couples (CLOC): A Study of Spousal Bereavement in the Detroit Area, 1987-1993 (ICPSR 3370)
CRELES-2: Costa Rican Longevity and Healthy Aging Study - Wave 2, 2006-2008 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable, Ronda 2) (ICPSR 31263)
The Costa Rican Longevity and Healthy Aging Study (CRELES, or Costa Rica Estudio de Longevidad y Envejecimiento Saludable) is a nationally representative longitudinal survey of health and lifecourse experiences of 2,827 Costa Ricans ages 60 and over in 2005, the baseline collection. CRELES-2 refers to the second wave of visits in this longitudinal study, and includes the results from these visits. The first wave of interviews, or baseline, of CRELES is also available at http://doi.org/10.3886/ICPSR26681. The second wave fieldwork was conducted from October 2006 to July 2008, with 2,364 surviving and contacted participants. The original sample was drawn from Costa Rican residents in the 2000 population census who were born in 1945 or before, with an over-sample of the oldest-old (ages 95 and over). Vital statistics indicate that Costa Rica has an unusually high life expectancy for a middle-income country, even higher than that of the United States, but CRELES is the first nationally representative survey to investigate adult health levels in Costa Rica. CRELES public use data files contain information on a broad range of topics including self-reported physical health, psychological health, living conditions, health behaviors, health care utilization, social support, and socioeconomic status. Objective health indicators include anthropometrics, observed mobility, and biomarkers from fasting blood samples (such as cholesterol, glycosylated hemoglobin, and C-reactive protein). Mortality events are tracked and conditions surrounding death are measured in a surviving family interview.
CRELES-3: Costa Rican Longevity and Healthy Aging Study - Wave 3, 2009 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable, Ronda 3) (ICPSR 35250)
CRELES: Costa Rican Longevity and Healthy Aging Study - Wave 1, 2005 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable) (ICPSR 26681)
Health and Retirement Study (HRS) (ICPSR 6854)
The University of Michigan Health and Retirement Study (HRS) is a longitudinal panel study that surveys a representative sample of approximately 20,000 people in America, supported by the National Institute on Aging and the Social Security Administration.
The HRS aims to provide multidisciplinary data that researchers can use to address important questions about the challenges and opportunities of aging. The HRS includes the "original" HRS and the Asset and Health Dynamics Among the Oldest-Old (AHEAD) study. These studies were merged in 1998 and now represent the United States population over age 50. Two new cohorts were added in 1998: the Children of the Depression (born 1924-1930) and the War Babies (1942-1947). A fourth cohort, the Early Baby Boomers (1948-1953), was added in 2004; a fifth cohort, the Mid Baby Boomers (1954-1959), was added in 2010; and in 2016, the Late Baby Boomers cohort (1960-1965) became the sixth.
Questionnaire topics include physical and cognitive functioning, retirement plans, family structure and transfers, demographic characteristics, housing, employment status, income, disability, health insurance, pension plans, job history, and attitudes, preferences, and expectations for the future. The survey data are linked with administrative records from the Employer Pension Study (1993 and 1999), National Death Index, Social Security Administration earnings and projected benefits data and W-2 self-employment data, and Medicare files.
Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 7, 2010-2011 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 36537)
The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups.
The Wave 7 dataset comprises the sixth follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas.
The public-use data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues.
During this 7th Wave (dataset 1), 2010-2011, re-interviews were conducted either in person or by proxy, with 659 of the original respondents. This Wave also includes 419 re-interviews from the additional sample of Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort who were added in Wave 5, increasing the total number of respondents to 1,078.
The Wave 7 Informant Interviews dataset (dataset 2) includes data which corresponds to the sixth follow-up of the baseline Hispanic EPESE Wave 7 and included re-interviews with 1,078 Mexican Americans aged 80 years and older. During these interviews, participants were asked to provide the name and contact information of the person they are "closer to" or they "depend on the most for help." These INFORMANTS were contacted and interviewed regarding the health, function, social situation, finances, and general well-being of the ongoing Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. This dataset includes information from 925 informants, more than two-thirds of whom were children of the respective respondents.
The Irish Longitudinal Study on Ageing (TILDA), COVID-19 Study, 2020 (ICPSR 38681)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) collects information on all aspects of health, economic and social circumstances from adults aged 50 years and over who reside in Ireland. Waves of data collection take place every two years. TILDA provides a comprehensive and accurate picture of the characteristics, needs and contributions of older persons in Ireland to inform and support improvements in policy and practice; advancements in technology and innovation; tailored education and training through an enhanced ageing research infrastructure; harmonisation with leading international research to ensure adoption of best policy and practice and comparability of results. TILDA is necessary to act as the foundation on which we can plan appropriate health, medical, social and economic policies for our older adults.
Participants were invited to complete the COVID Self Completion Questionnaire to capture their experiences during the COVID-19 pandemic. This data collection was planned in response to the pandemic and took place during the time when Wave 6 fieldwork was originally scheduled to take place.
The TILDA COVID-19 Study covers a range of aspects of the lives of adults aged 60 years and older during the first few months of the pandemic. As well as information on changes to normal day activities due to social-distancing and other restrictions on social interactions, we examine how these alterations to peoples' lives have impacted on their physical and mental wellbeing. The study also records peoples' exposure to the virus as well as that of their families and friends.
The Longitudinal Study of Older People in Anhui Province, China, 2001-2003 (ICPSR 36388)
The Longitudinal Study of Older People in Anhui Province, China, 2001-2003 examined the physical and psychological well-being of older adults (aged 60 and above) living in rural Anhui Province, China. The original purpose of the study was to study the impact of rural-to-urban migration on the physical and psychological well-being of older adults left behind in rural villages by their adult children.
This collection contains two parts; Part 1: 2001 Survey and Part 2: 2003 Follow-up Survey. Similar Questions were asked in the two surveys to assess intergenerational transfers and relations of the respondents, including social support, caregiving, emotional cohesion, remittances, grandchild care, and filial piety. Respondents were also asked about their health status (physical, emotional, and cognitive). Demographic information includes age, sex, marriage status, and education.
Medicare Current Beneficiary Survey, Access to Care, Calendar Year 1992: [United States] (ICPSR 6332)
Medicare Current Beneficiary Survey, Access to Care, Calendar Year 1993: [United States] (ICPSR 6637)
Medicare Current Beneficiary Survey, Calendar Year 1991: [United States] (ICPSR 6118)
National Elder Mistreatment Study, 2008 [United States] (ICPSR 28561)
National Elder Mistreatment Study: 8-Year Follow-up of Victims and Matched Non-Victims, United States, 2015-2018 (ICPSR 37275)
The purpose of the completed project was to follow the first National Elder Mistreatment Study (NEMS), which provided prevalence estimates, with a second study of a subset of the same participants to measure the effects of elder abuse in terms of (1) health and mental health outcomes and (2) criminal justice system participation and satisfaction, as well as to specify additional predictors of these effects. Data were collected from 774 older adults 8 years following their participation in Wave I of the NEMS. This represented the results of contacting every locatable participant who reported psychological, physical, or sexual (but not financial) abuse at Wave I (achieved subsample n = 183 of the original 753 Wave I victims) and a comparison sample of 591 randomly selected Wave I non-victims from the remaining 2,149 working phone numbers of the original 5,024 non-victims (at Wave I). As mentioned, financial abuse classification at Wave I was not used to identify the victim subgroup prior to sampling, however retrospective analysis indicated that the two aforementioned sampling groups (every working phone number of Wave I victims of psychological, physical, and sexual abuse AND every working phone number of the 2,149 comparison Wave I participants) accounted for all but 7 financial abuse victims identified as such at Wave I (i.e., no other financial abuse victims at Wave I could have possibly been re-contacted). The cooperation rate (upon contact), for Wave I victims of psychological, physical, or sexual abuse was 66 percent; the cooperation rate of comparison Wave I participants was 57 percent. (Note: it had originally been proposed to conduct propensity matching once the sample of Wave I victims was re-contacted, however by conserving funds during this first phase, the study was able to expand from propensity matching to random selection of a much larger group of over 2,149, for a final derived sample of 774.)
National Health and Nutrition Examination Survey (NHANES), 1999-2000 (ICPSR 25501)
National Health and Nutrition Examination Survey (NHANES), 2001-2002 (ICPSR 25502)
National Health and Nutrition Examination Survey (NHANES), 2003-2004 (ICPSR 25503)
The National Health and Nutrition Examination Surveys (NHANES) is a program of studies designed to assess the health and nutritional status of adults and children in the United States. The NHANES combines personal interviews and physical examinations, which focus on different population groups or health topics. These surveys have been conducted by the National Center for Health Statistics (NCHS) on a periodic basis from 1971 to 1994. In 1999 the NHANES became a continuous program with a changing focus on a variety of health and nutrition measurements which were designed to meet current and emerging concerns. The surveys examine a nationally representative sample of approximately 5,000 persons each year. These persons are located in counties across the United States, 15 of which are visited each year.
For NHANES 2003-2004, there were 12,761 persons selected for the sample, 10,122 of those were interviewed (79.3 percent) and 9,643 (75.6 percent) were examined in the mobile examination centers (MEC). Many of the NHANES 2003-2004 questions were also asked in NHANES II 1976-1980, Hispanic HANES 1982-1984, NHANES III 1988-1994, and NHANES 1999-2002. New questions were added to the survey based on recommendations from survey collaborators, NCHS staff, and other interagency work groups. As in past health examination surveys, data were collected on the prevalence of chronic conditions in the population. Estimates for previously undiagnosed conditions, as well as those known to and reported by survey respondents, are produced through the survey. Risk factors, those aspects of a person's lifestyle, constitution, heredity, or environment that may increase the chances of developing a certain disease or condition, were examined. Data on smoking, alcohol consumption, sexual practices, drug use, physical fitness and activity, weight, and dietary intake were collected. Information on certain aspects of reproductive health, such as use of oral contraceptives and breastfeeding practices, were also collected. The diseases, medical conditions, and health indicators that were studied include: anemia, cardiovascular disease, diabetes and lower extremity disease, environmental exposures, equilibrium, hearing loss, infectious diseases and immunization, kidney disease, mental health and cognitive functioning, nutrition, obesity, oral health, osteoporosis, physical fitness and physical functioning, reproductive history and sexual behavior, respiratory disease (asthma, chronic bronchitis, emphysema), sexually transmitted diseases, skin diseases, and vision. The sample for the survey was selected to represent the United States population of all ages. Special emphasis in the 2003-2004 NHANES was on adolescent health and the health of older Americans. To produce reliable statistics for these groups, adolescents aged 15-19 years and persons aged 60 years and older were over-sampled for the survey. African Americans and Mexican Americans were also over-sampled to enable accurate estimates for these groups. Several important areas in adolescent health, including nutrition and fitness and other aspects of growth and development, were addressed. Since the United States has experienced dramatic growth in the number of older people during the twentieth century, the aging population has major implications for health care needs, public policy, and research priorities. NCHS is working with public health agencies to increase the knowledge of the health status of older Americans. NHANES has a primary role in this endeavor. In the examination, all participants visit the physician who takes their pulse or blood pressure. Dietary interviews and body measurements are included for everyone. All but the very young have a blood sample taken and see the dentist. Depending upon the age of the participant, the rest of the examination includes tests and procedures to assess the various aspects of health listed above. Usually, the older the individual, the more extensive the examination. Some persons who are unable or unwilling to come to the examination center may be given a less extensive examination in their homes.
Demographic data file variables are grouped into three broad categories: (1) Status Variables: provide core information on the survey participant. Examples of the core variables include interview status, examination status, and sequence number. (Sequence number is a unique ID assigned to each sample person and is required to match the information on this demographic file to the rest of the NHANES 2003-2004 data). (2) Recoded Demographic Variables: these variables include age (age in months for persons through age 19 years, 11 months; age in years for 1- to 84-year-olds, and a top-coded age group of 85 years of age and older), gender, a race/ethnicity variable, current or highest grade of education completed, (less than high school, high school, and more than high school education), country of birth (United States, Mexico, or other foreign born), Poverty Income Ratio (PIR), income, and a pregnancy status variable (adjudicated from various pregnancy related variables). Some of the groupings were made due to limited sample sizes for the two-year data set. (3) Interview and Examination Sample Weight Variables: sample weights are available for analyzing NHANES 2003-2004 data. For a complete listing of survey contents for all years of the NHANES see the document -- Survey Content -- NHANES 1999-2010.
National Health and Nutrition Examination Survey (NHANES), 2005-2006 (ICPSR 25504)
National Health and Nutrition Examination Survey (NHANES), 2007-2008 (ICPSR 25505)
National Longitudinal Study of Adolescent to Adult Health (Add Health) Parent Study: Public Use, [United States], 2015-2017 (ICPSR 37375)
The National Longitudinal Study of Adolescent to Adult Health (Add Health) Parent Study Public Use collection includes data gathered as part of the Add Health longitudinal survey of adolescents. The original Add Health survey is a longitudinal study of a nationally representative sample of adolescents in grades 7-12 in the United States during the 1994-1995 school year. In Wave 1 of the Add Health Study (1994-1995), a parent of each Add Health Sample Member (AHSM) was interviewed. The Add Health Parent Study gathered social, behavioral, and health survey data in 2015-2017 from the parents of Add Health Sample members who were originally interviewed at Wave 1 (1994-1995). Wave 1 Parents were asked about their adolescent children, their relationships with them, and their own health.
The Add Health Parent Study interview is a comprehensive survey of Add Health parents' family relations, education, religious beliefs, physical and mental health, social support, and community involvement experiences. In addition, survey data contains cognitive assessments, a medications log linked to a medications database lookup table, and household financial information collection. The survey also includes permission for administrative data linkages and includes data from a Family Health History Leave-Behind questionnaire. Interviews were conducted with parents' spouse/partner when available.
Research domains targeted in the survey and research questions that may be addressed using the Add Health Parent Study data include:
- Health Behaviors and Risks Many health conditions and behaviors run in families; for example, cardiovascular disease, obesity and substance abuse. How are health risks and behaviors transmitted across generations or clustered within families? How can we use information on the parents' health and health behavior to better understand the determinants of their (adult) children's health trajectories?
- Cognitive Functioning and Non-Cognitive Personality Traits What role does the intergenerational transmission of personality and locus of control play in generating intergenerational persistence in education, family status, income and health? How do the personality traits of parents and children, and how they interact, influence the extent and quality of intergenerational relationships and the prevalence of assistance across generations?
- Decision-Making, Expectations, and Risk Preferences Do intergenerational correlations in risk preferences represent intergenerational transmission of preferences? If so, are the transmission mechanisms a factor in biological and environmental vulnerabilities? Does the extent of genetic liability vary in response to both family-specific and generation-specific environmental pressures?
- Family Support, Relationship Quality and Ties of Obligation How does family complexity affect intergenerational obligations and the strength of relationship ties? As parents near retirement: What roles do they play in their children's lives and their children in their lives? What assistance are they providing to their adult children and grandchildren? What do they receive in return? And how do these ties vary with divorce, remarriage and familial estrangement?
- Economic Status and Capacities What are the economic capacities of the parents' generation as they reach their retirement years? How have fared through the wealth and employment shocks of the Great Recession? Are parents able to provide for their own financial need? And, do they have the time and financial resources to help support their children and grandchildren and are they prepared to do so?
National Social Life, Health, and Aging Project (NSHAP): Round 1, [United States], 2005-2006 (ICPSR 20541)
The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.
Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.
NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.
National Social Life, Health, and Aging Project (NSHAP): Round 2 and Partner Data Collection, [United States], 2010-2011 (ICPSR 34921)
The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 2 interviews were conducted from August 2010 through May 2011, during which Round 1 Respondents were re-interviewed. An attempt was also made to interview individuals who were sampled in Round 1 but declined to participate. In addition, spouses or co-resident partners were also interviewed using the same instruments as the main respondents. This process resulted in 3,377 total respondents. The following files constitute Round 2: Core Data, Disposition of Round 1 Partner Data, Social Networks Data, Social Networks Update Data, Partner History Data, Partner History Update Data, Medications Data, Proxy Data, and Sleep Statistics Data.
Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships, and patient-physician communication, in addition to bereavement items. Data were also collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function, and a panel of biomeasures, including weight, waist circumference, height, blood pressure, smell, saliva collection, and taste.
The Disposition of Round 1 Partner files (Datasets 3 and 4) detail information derived from Section 6A items regarding the partner from Round 1 within the questionnaire. This provides a complete history for respondent partners across both rounds.
The Social Networks files (Datasets 5 and 6) contain one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file.
The Social Networks Update files (Datasets 7 and 8) detail respondents' current relationship status with each person identified on the network roster.
The Partner History file (Dataset 9) contains one record for each marriage, cohabitation, or romantic relationship identified in Section 6A of the questionnaire, including a current partner in Round 2 but excluding the partner from Round 1.
The Partner History Update file (Dataset 10) details respondents' current sexual partner information, as well as marital and cohabiting status.
The Medications Data file (Dataset 11) contains records for items listed in the medications log.
The Proxy Data files (Datasets 12 and 13) contain information from proxy interviews administered for Round 1 Respondents who were either deceased or whose health was too poor to participate in Round 2.
The Sleep Statistics Data files (Dataset 14 and 15) provide information on actigraphy sleep variables.
NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.
National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)
The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.
Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.
The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.
New York City Health and Nutrition Examination Survey (NYC HANES), 2004 (ICPSR 31421)
Stroke Recovery in Underserved Populations 2005-2006 [United States] (ICPSR 36422)
The Stroke Recovery in Underserved Populations 2005-2006 study was created to address the National Institute on Aging (NIA) Request For Application entitled "Research on Mind-Body Interactions and Health" (RFA OD-03-008). It addressed the NIA interest in "the impact of optimism, happiness, or a positive attitude on well-being and health; and social functioning and health." The study examined how positive emotion (e.g., joy, gratitude, love, contentment) and social networks independently and interactively contribute to recovery of functional status after stroke within two underserved groups. The specific study aims were to:
- Examine recovery of functional status (motor and cognitive function), for White, African American and Hispanic persons with stroke discharged from rehabilitation facilities
- Examine the contributions of positive emotion and social networks on recovery of functional status (motor and cognitive function), for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities; and
- Examine the interaction between positive emotion and social networks on recovery of functional status (motor and cognitive function) for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities.
The data were collected by the IT Health Track at four time points: at admission and discharge from rehabilitation facility, and 80-180 days and 365-425 days after discharge. These data emphasize recovery of motor and cognitive functional status, positive emotion, and social networks
The dataset contains 226 variables and 1219 cases from 11 rehabilitation facilities across the United States.
Survey of Community, Crime, and Health, 1995, 1998 [United States] (ICPSR 4381)
Survey of Health, Ageing and Retirement in Europe (SHARE) (ICPSR 24981)
The Survey on Health, Ageing and Retirement in Europe (SHARE) is a multidisciplinary and cross-national panel database of micro data on the health, socio-economic status, and social and family networks of older adults (aged 50 years and over) throughout Europe. Designed to provide a full picture of the aging process, SHARE collects data on a range of topics including health conditions, physical and cognitive functioning, mental health, life satisfaction, employment, income, education, social networks, and social support mechanisms. The first wave of SHARE data collection occurred in 2004-2005, the second wave in 2006-2007, and the third wave in 2008-2009.
SHARE has been harmonized with the United States HEALTH AND RETIREMENT STUDY (HRS) [ICPSR6854], and the ENGLISH LONGITUDINAL STUDY OF AGEING (ELSA) [ICPSR0139].
Survey of Midlife in Japan (MIDJA 2), May-October 2012 (ICPSR 36427)
In 2008, with funding from the National Institute on Aging (NIA), baseline survey data for the Survey of Midlife in Japan (MIDJA), April-September 2008 were collected from a probability sample of Japanese adults (N=1,027) aged 30 to 79 from the Tokyo metropolitan area (ICPSR 30822). In 2009-2010 biomarker data was obtained from a subset of these cases (ICPSR 34969).
The survey and biomarker measures obtained parallel those in a national longitudinal sample of Americans known as Midlife in the United States or MIDUS (ICPSR 2760: MIDUS 1 and ICPSR 4652: MIDUS 2). The central objective was to compare the Japanese sample (MIDJA) with the United States sample (MIDUS) to test hypotheses about the role of psychosocial factors in the health (broadly defined) of mid- and later-life adults in Japan and the United States.
In 2012, with additional support from NIA, a longitudinal follow-up of the MIDJA sample was completed. The data collection for this second wave (N=657) largely repeated the baseline assessments. The goal of the follow-up wave was to conduct comparisons of longitudinal data available from the Japanese sample (MIDJA) and the United States sample (MIDUS) to test the hypothesis about the role of psychosocial factors in predicting health changes (including biomarkers) in both cultural contexts. Cultural influences on age differences in health and well-being were also of interest.
Demographic and background information included gender, age, education, marital status, household composition, and income.
UC Berkeley Social Networks Study (UCNets), San Francisco Bay Area, 2015-2018 (ICPSR 36975)
Understanding How Personal Networks Change: Wave 1 (UCNets) is the University of California Berkeley Social Networks Study, a longitudinal study with the objective of understanding how network composition changes over time as a result of life course transitions - e.g., graduation, marriage, retirement or widowhood - and how these changes are related to health status and outcomes. Using mostly addressed-based sampling from six San Francisco Bay Area counties, the study recruited participants in two age groups (cohorts) - 21-30 year-olds and 50-70 year-olds -- to maximize the possibility of experiencing a life transition. There are 3 waves of interviewing. The first interview, Wave 1, was May 2015 through January 2016. The re-interview for Wave 2 was conducted in Feb-June 2017, and Wave 3 was during Feb-May 2018. In Wave 1, the majority of respondents completed a face-to-face (FTF) survey, with the rest filling out a comparable web survey. In Wave 2 about half completed the FTF survey, and in Wave 3, about one-quarter. The survey contains items regarding households, personal networks, family milestones, employment, health status and behavior, personality and demographic characteristics.