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Showing 1 – 44 of 44 results.
Curated

Aging, Status, and Sense of Control (ASOC), 1995, 1998, 2001 [United States] (ICPSR 3334)

Released/updated on: 2005-12-15
Geographic coverage: United States
The Aging, Status, and Sense of Control (ASOC) was conducted during 1995, 1998 and 2001 and examined the relationship between age and changes in the sense of control over one's life. Part I contains data for Waves I and II. Respondents were queried about their physical health, including activities of daily living such as shopping, walking, and doing housework, along with medical conditions such as heart disease, high blood pressure, lung disease, breast cancer, diabetes, arthritis or rheumatism, osteoporosis, and allergies or asthma. Questions regarding mental health investigated difficulties staying focused, feelings of sadness or anxiety, and enjoyment of life. Respondents were also asked about their health behaviors, including use of tobacco and alcohol, frequency of exercise, use of medical services including insurance coverage, and the number of prescription medications used. Also examined was respondents' sense of control over their lives, including social support and participation, and history of adversity, which covered such topics as home or apartment break-ins or assaults, major natural disasters, unemployment longer than six months, and times without enough money for clothes, food, rent, bills, or other necessities. Demographic questions included age, sex, marital status, education, work status, marital and family relations, and socioeconomic status. Wave III (Part 2) was collected in 2001 and contains data on the same questions such as physical health, mental health and health behaviors.
Curated

Alameda County [California] Health and Ways of Living Study, 1994 and 1995 Panels (ICPSR 3083)

Released/updated on: 2006-03-06
Geographic coverage: United States, California
This collection provides a 30-year follow-up with respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel (ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL [ICPSR 6838]), collected information from 4,864 of the original respondents. The third and fourth waves (1994 and 1995 panels, respectively), provided in this collection, explore some new topics. The third wave provides a follow-up of 2,729 original 1965 and 1974 respondents and examines health behaviors such as alcohol consumption and smoking habits, along with social activities. Also included is information on health conditions such as diabetes, osteoporosis, hormone replacement, and mental illness. Another central topic investigated is activities of daily living (including self-care such as dressing, eating, and shopping), along with use of free time and level of involvement in social, recreational, religious, and environmental groups. The fourth wave is a follow-up to the 1994 panel, and contains 2,569 cases. This wave examines changes in functional abilities such as self-care activities, employment, involvement in community activities, visiting friends/family, and use of free time since 1994.
Curated

Alameda County [California] Health and Ways of Living Study, 1999 Panel (ICPSR 4432)

Released/updated on: 2006-11-16
Geographic coverage: United States, California
This fifth wave of data, collected in 1999, provides follow-up with 2,123 respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. Part 2 of this collection contains mortality data including cause and year of death. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including 360 men and 530 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL (ICPSR 6838), collected information from 4,864 of the original respondents. The third and fourth waves, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1994 and 1995 PANELS (ICPSR 3083), provided a follow-up of 2,729 original 1965 and 1974 respondents. The fourth wave is a follow-up to the 1994 panel and contains 2,569 cases.
Curated
Partially restricted
Simple Crosstabs

Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-01-01

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

Curated

Center for Research on Social Reality [Spain] Survey, April 1991: Social inequalities Based on Sex and Age (ICPSR 9893)

Released/updated on: 1993-02-12
Geographic coverage: Europe, Global, Spain
This data collection is part of a continuing series of semi-monthly surveys of individuals in Spain. Each survey consists of three sections. The first section collects information on respondents' attitudes regarding personal and national issues. This section includes questions on level of life satisfaction and frequency of relationships, as well as a rating of the importance of national issues. The second section varies according to the monthly topic, with this survey's topic focusing on social inequalities based on sex and age. Among the issues investigated are the age at which old age is reached in the lives of men and women, perception of the most and least valued groups by sex and age, problematic situations caused by age, perception of parents' treatment of children according to their sex, and attitudes toward inequalities at work. The third section collects demographic data such as sex, age, religion, income, and place of residence.
Curated

Center for Research on Social Reality [Spain] Survey, March 1996: Savings, Family, and Aging (ICPSR 6973)

Released/updated on: 1998-01-13
Geographic coverage: Europe, Global, Spain
Time period: 1996-03-04--1996-03-09
This data collection is part of a series of nationwide surveys conducted from October 1990 to June 1996 in Spain. The questionnaires for each of these surveys consisted of three sections. The first section collected information on respondents' attitudes regarding personal, national, and international issues, and included questions on respondents' level of life satisfaction and frequency of visits with relatives, neighbors, and friends. The second section contained a topical module of questions that varied from survey to survey, with this month's module focusing on the family, savings, and aging. Among the topics investigated were household composition, employment status of household members, sources of household income, family saving capacity, attitudes toward saving, preferred investment options for savings, and attitudes regarding old age and the elderly. This section also gathered information on expected age of retirement, expected amount of retirement income, and the living arrangements, retirement status, and sources of income of the elderly. Questions in the third section of the questionnaire elicited socioeconomic information, such as respondent's sex, age, marital status, size of household, occupation, education, religion, religiosity, place of birth, and income.
Curated

Center for Research on Social Reality [Spain] Survey, May 1992: Old Age (ICPSR 9997)

Released/updated on: 2006-03-30
Geographic coverage: Europe, Global, Spain
This data collection is part of a continuing series of semi-monthly surveys of individuals in Spain. Each survey consists of three sections. The first section collects information on respondents' attitudes regarding personal and national issues. This section includes questions on level of life satisfaction and frequency of relationships, as well as a rating of the importance of national issues. The second section varies according to the monthly topic, with this survey's topic focusing on old age. Among the issues investigated are terms that better define the elderly, adults, and the young, living arrangements of the elderly, level of activity and health conditions of the elderly, work activity, leisure activities, social services used, evaluation of social services, and knowledge of public institutions serving the aged. The third section collects demographic data such as sex, age, religion, income, and place of residence.
Curated

Center for Research on Social Reality [Spain] Survey, May 1995: Old Age (ICPSR 6969)

Released/updated on: 1998-01-13
Geographic coverage: Europe, Global, Spain
Time period: 1995-05-15--1995-05-20
This data collection is part of a series of nationwide surveys conducted from October 1990 to June 1996 in Spain. The questionnaires for each of these surveys consisted of three sections. The first section collected information on respondents' attitudes regarding personal, national, and international issues, and included questions on respondents' level of life satisfaction and frequency of visits with relatives, neighbors, and friends. The second section contained a topical module of questions that varied from survey to survey, with this survey's topic focusing on old age. The survey gauged attitudes regarding old age and the elderly, and investigated actual circumstances of elderly life in Spain, such as living arrangements, daily levels of physical activity, amount of health problems experienced during the past two weeks, consumption of tobacco and alcohol, frequency of sexual relations, retirement status and age at retirement, leisure activities, and use of social services. Questions in the third section of the questionnaire elicited socioeconomic information, such as respondent's sex, age, marital status, size of household, occupation, education, religion, religiosity, place of birth, and income.
Curated

Changing Lives of Older Couples (CLOC): A Study of Spousal Bereavement in the Detroit Area, 1987-1993 (ICPSR 3370)

Released/updated on: 2006-01-18
Geographic coverage: Detroit, United States, Michigan
Time period: 1987-01-01--1993-01-01
Changing Lives of Older Couples (CLOC) is a large multi-wave prospective study of spousal bereavement. Face-to-face baseline interviews with married older adults in the Detroit, Michigan standardized metropolitan statistical area (SMSA) were conducted between June 1987 and April 1988, and follow-up interviews were conducted at six months (Wave 1), 18 months (Wave 2), and 48 months (Wave 3) after a spouse's death. Each widowed person was assigned a same-age, same-sex, same-race matched control from the baseline sample. Controls were interviewed again at each of the three follow-ups as well. Spousal loss was monitored using state-provided monthly death records and through daily obituaries from local area newspapers. The National Death Index (NDI) and direct ascertainment of death certificates were used to confirm all deaths. The primary strength of the CLOC study is its ability to measure spousal bereavement quantitatively. For this purpose a global grief scale and six grief subscales, unique to the CLOC study, were prepared. Depression was measured for all respondents with conceptualizations of depression at each wave, as well as major depressive episodes according to DSM-III-R criteria. Other survey questions focused on the social, psychological, and physical functioning of older adults (e.g., demographic, financial, housing, life events, social support, work and activities, marriage and family, religion, health and well-being). For a portion of the respondents (n = 432) in what was referred to as the MacBat study, various biomedical indicators (motor and cognitive, physiological, endocrinological and biochemical) were measured as well. The CLOC study has been subset into four primary datasets. The core, or Complete, dataset (Part 1) contains all available variables from all four waves of the study (Baseline, W1, W2, W3) for the entire sample of 1,532 persons (excluding clones, the 13 individuals who initially participated in a follow-up interview as control subjects, but who subsequently experienced spousal loss, and then entered the study as bereaved subjects). The Baseline Only dataset (Part 2) contains all variables collected at the baseline interview (V1-V957) for the entire sample of 1,532 persons (excluding clones). It also contains the baseline physiological variables (V20001-V20991) from the subsample of 432 persons who also participated in the baseline MacBat portion of the study. The Widowed-Controls Only datasets (Parts 3 and 4) contain all available data from anyone who participated as either a widowed person or a control subject in at least one of the three CLOC follow-up surveys (W1, W2, W3). This dataset is available with or without clones (n = 558 subjects including clones, and n= 545 excluding clones). The Couples Only dataset (Part 5) contains data collected from both the husband and the wife of 423 couples (n = 846) and includes all available data from all four waves of data collection (baseline, W1, W2, W3). Each record contains data for the wife (the "V" variables) and data for the husband (the "S" variables). A Clones Only dataset (Part 6) is also included for the advanced user and contains data for the 13 individuals identified as clones. A case-control matched design is recommended for analysis of the Clones Only data.
Curated
Simple Crosstabs

CRELES-2: Costa Rican Longevity and Healthy Aging Study - Wave 2, 2006-2008 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable, Ronda 2) (ICPSR 31263)

Released/updated on: 2025-01-14
Geographic coverage: Global, Costa Rica
Time period: 2006-10-01--2008-07-01

The Costa Rican Longevity and Healthy Aging Study (CRELES, or Costa Rica Estudio de Longevidad y Envejecimiento Saludable) is a nationally representative longitudinal survey of health and lifecourse experiences of 2,827 Costa Ricans ages 60 and over in 2005, the baseline collection. CRELES-2 refers to the second wave of visits in this longitudinal study, and includes the results from these visits. The first wave of interviews, or baseline, of CRELES is also available at http://doi.org/10.3886/ICPSR26681. The second wave fieldwork was conducted from October 2006 to July 2008, with 2,364 surviving and contacted participants. The original sample was drawn from Costa Rican residents in the 2000 population census who were born in 1945 or before, with an over-sample of the oldest-old (ages 95 and over). Vital statistics indicate that Costa Rica has an unusually high life expectancy for a middle-income country, even higher than that of the United States, but CRELES is the first nationally representative survey to investigate adult health levels in Costa Rica. CRELES public use data files contain information on a broad range of topics including self-reported physical health, psychological health, living conditions, health behaviors, health care utilization, social support, and socioeconomic status. Objective health indicators include anthropometrics, observed mobility, and biomarkers from fasting blood samples (such as cholesterol, glycosylated hemoglobin, and C-reactive protein). Mortality events are tracked and conditions surrounding death are measured in a surviving family interview.

Curated
Simple Crosstabs

CRELES-3: Costa Rican Longevity and Healthy Aging Study - Wave 3, 2009 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable, Ronda 3) (ICPSR 35250)

Released/updated on: 2025-04-29
Geographic coverage: Central America, Global, Costa Rica, Latin America
Time period: 2009-02-01--2010-01-01
The Costa Rican Longevity and Healthy Aging Study (CRELES, or Costa Rica Estudio de Longevidad y Envejecimiento Saludable) is a nationally representative longitudinal survey of health and lifecourse experiences. CRELES-3 refers to the third wave of visits in this longitudinal study. The first two waves are available as ICPSR 26681 and ICPSR 31263. The original sample (Wave 1) was drawn from Costa Rican residents in the 2000 population census who were born in 1945 or before, with an over-sample of the oldest age range (ages 95 and over). A total of 2,827 Costa Ricans ages 60 and over participated in 2005. The second wave revisited the same participant group. The data presented here represent the third wave of fieldwork that was conducted from February 2009 to January 2010, with 1,855 surviving and contacted participants. CRELES data include factors contributing to older adults' length and quality of life. Among these data are self-reported physical health, psychological health, living conditions, health behaviors, health care utilization, social support, and socioeconomic status. Objective health indicators typically included in this series are anthropometrics, observed mobility, and biomarkers from fasting blood (such as cholesterol, glycosylated hemoglobin, and C-reactive protein). However, the third wave did not collect blood. Data regarding participants' deaths and conditions surrounding death were collected from interviews of surviving family members and are included in Wave 2 and Wave 3 data files. The collection includes a tracking file (Dataset 13) which links participants across the three waves and includes sampling weights. Demographic data included in the study include age during each wave, sex, marital status, education, number of children, type of housing, and geographic region in Costa Rica. Some elements of the demographic data are found only in Wave 1 and require linking the CRELES-3 data files with ICPSR 26681.
Curated

CRELES: Costa Rican Longevity and Healthy Aging Study - Wave 1, 2005 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable) (ICPSR 26681)

Released/updated on: 2024-04-15
Geographic coverage: Central America, Global, Costa Rica
The Costa Rican Longevity and Healthy Aging Study (CRELES, or Costa Rica Estudio de Longevidad y Envejecimiento Saludable) is a nationally representative longitudinal survey of health and lifecourse experiences of 2,827 Costa Ricans ages 60 and over in 2005. Baseline household interviews were conducted between November 2004 and September 2006, with two-year follow-up interviews. The sample was drawn from Costa Rican residents in the 2000 population census who were born in 1945 or before, with an over-sample of the oldest-old (ages 95 and over). The main study objective was to determine the length and quality of life, and its contributing factors in the elderly of Costa Rica. Vital statistics indicate that Costa Rica has an unusually high life expectancy for a middle-income country, even higher than that of the United States, but CRELES is the first nationally representative survey to investigate adult health levels in Costa Rica. CRELES public use data files contain information on a broad range of topics including self-reported physical health, psychological health, living conditions, health behaviors, health care utilization, social support, and socioeconomic status. Objective health indicators include anthropometrics, observed mobility, and biomarkers from fasting blood and overnight urine collection (such as cholesterol, glycosylated hemoglobin, C-reactive protein, cortisol, and other components of integrative allostatic load measures). Mortality events are tracked and conditions surrounding death are measured in a surviving family interview (longitudinal follow-up data are not yet publicly available).
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Danish 1905 Cohort Study, 1998 (ICPSR 3960)

Released/updated on: 2016-08-22
Geographic coverage: Denmark, Global
Time period: 1905-01-01--1998-01-01
This data collection provides information on individuals born in Denmark in 1905 and who were still living in Denmark in 1998. The overall goal of the study was to establish a genetic-epidemiological database to shed light on the aging process among the extremely old. The data focus on their physical and cognitive functioning. Respondents were asked if they had been previously diagnosed with diseases such as diabetes, arthritis, asthma, migraine, cancer, stroke, heart attack, or depression, and if they were experiencing such ailments as cough, body pains, and bone fracture and were taking medication for them. Questions probed respondents' feelings about their health, life, and future. To assess respondents' general health and functioning, they were asked if they needed assistance with toileting, bathing, dressing, and mobility around the house; how often they needed to use the bathroom during the night; and if they used physical aids such as wheelchairs, eyeglasses, crutches, catheters, or diapers. They were also tested for memory and cognition, mobility, vision, speech, hearing, and lung functioning. Information was also elicited on respondents' mental state and awareness, energy level, menopause, frequency of visits with children and family, visits from a nurse, use of home care services, sleeping patterns, smoking and drinking habits, weight gain or loss, exercises, social activities, hobbies, reading habits, television viewing, and recent deaths in the family. Demographic information includes age, education, and marital status.
Curated

Detroit Area Study, 1993: Health and Aging (ICPSR 2839)

Released/updated on: 2001-03-26
Geographic coverage: Detroit, United States, Michigan

The 1993 Detroit Area Study explored a variety of issues related to health, the effects of aging, living conditions, and participation in civic life in the Michigan tri-county area of Wayne, Oakland, and Macomb counties. A battery of questions probed respondents' perceptions of their health and mental state and those of their spouse, their ability to perform certain physical and mental activities, and the effect of their emotional state on their appetite and sleeping patterns. Other explored their feelings about neighborhood safety, means of transportation, relationships, accommodation, the portrayal of older people on television programs, and the treatment of older people by employers. The survey also sought respondents' opinions about government, their personal financial situation and problems, money management, savings and investments, and their life as a whole. Additional items questioned respondents about the frequency of their visits to the doctor, overnight hospitalization, chronic health conditions, smoking and drinking habits, and medical coverage, as well as electoral participation, political party preference, ideological leanings, class self-identification, assistance received from community organizations, family, and friends, personal regrets, and time spent watching television and engaging in pleasurable activities. Other questions gauged respondents' memory, vision, and motor skills. Respondents also provided demographic information on sex, age, marital status, race, ethnicity, religion, and education.

Curated

English Longitudinal Study of Ageing (ELSA) (ICPSR 139)

Released/updated on: 2006-06-19
Geographic coverage: Great Britain, Global

The English Longitudinal Study of Ageing is a study of aging and quality of life for people over the age of 50. Established in 2002, the original sample was drawn from households that had previously responded to the Health Survey for England (HSE) between 1998 and 2001. The same group of respondents are surveyed every two years to see how their health, economic, and social circumstances may change over time. One of the study's aims is to determine the relationships between functioning and health, social networks, resources, and economic position as people plan for, move into, and progress beyond retirement. It is patterned after the Health and Retirement Study, a similar study based in the United States.

Although new topics can be introduced at different waves, every module has been reviewed to ensure that it will provide data that can measure change over time. This is achieved by repeating some measures exactly, by asking directly about change, and by adopting questions to allow people to update or amend past responses.

The information collected provides data about: Household and individual demographics; Health - physical and psychosocial; Social care (from Wave 6); Work and pensions; Income and assets; Housing; Cognitive function; Social participation; Effort and Reward (voluntary work and caring); Expectations; Walking speed; Weight.

Curated
Simple Crosstabs

Family Exchanges Study Wave 1, Philadelphia, Pennsylvania, 2008 (ICPSR 36360)

Released/updated on: 2016-04-14
Geographic coverage: United States, Philadelphia, Pennsylvania
Time period: 2008-01-01--2008-10-01

The Family Exchanges Study Wave 1 (FESI) was conducted in 2008 by the Institute for Survey Research at Temple University. The original 634 "target" or core sample was recruited from African American and White respondents aged 40-60 living in Philadelphia and the surrounding counties--Bucks, Chester, Delaware, and Montgomery. To be eligible for the study, respondents had to have at least one living parent and one living offspring over 18 years of age. Temple University sought to recruit the parents, spouse, and up to three offspring over 18 years of age into the study. All target, parent, and spouse surveys were conducted by telephone. Offspring were given the option of completing the survey by telephone or web. A total of 337 parents, 511 offspring (with another 80 by web and 1 listed as other for a total of 592), and 197 spouses were successfully recruited into the first wave of the study.

This collection includes four data files, one for each type of participant: target, spouse, parent, and offspring. For each of these participants, there are data related to relationships with other family members, perceptions of family members, and views on key social issues. Demographic information includes gender, marital status, education level, religion, age, race, ethnicity, and employment status.

Curated
Simple Crosstabs

Family Exchanges Study Wave 2, Philadelphia, Pennsylvania, 2013 (ICPSR 37317)

Released/updated on: 2019-07-31
Geographic coverage: United States, Philadelphia, Pennsylvania

The Family Exchanges Study (FESI) began in 2008 conducted by the Institute for Survey Research at Temple University. The original "target" or core sample was recruited from African American and White respondents aged 40-60 living in Philadelphia and the surrounding counties--Bucks, Chester, Delaware, and Montgomery. To be eligible for the study, respondents had to have at least one living parent and one living offspring over 18 years of age. Temple University sought to recruit the parents, spouse, and up to three offspring over 18 years of age into the study. All target, parent, and spouse surveys were conducted by telephone. Offspring were given the option of completing the survey by telephone or web.

For the Wave 2 data collection, the Survey Research Center at Pennsylvania State University attempted to contact all FESI respondents again, as well as collect updated information for spouses/romantic partners, parents, and up to 4 age-eligible offspring. The survey instruments were drawn largely from the first wave of data collection. This collection includes eight data files. These data files include five main study datasets: target, spouse, spouse without target, parent, and offspring. This collection also includes three diary datasets: target diary, parent diary, offspring diary. For each participant, there are data related to relationships with other family members, perceptions of family members, and views on key social issues. Demographic information includes gender, marital status, education level, religion, age, race, ethnicity, and employment status.

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First Malaysian Family Life Survey, 1976-1977 (ICPSR 6170)

Released/updated on: 1998-12-23
Geographic coverage: Malaysia, Global
The First Malaysian Family Life Survey, 1976-1977 (MFLS-1), was conducted in Peninsular Malaysia as a retrospective life history survey of 1,262 households containing an ever-married woman aged 50 or younger. Full life histories were collected through personal interviews with these women and their husbands regarding fertility-related events, marriage, employment, migration, income and wealth, attitudes and expectations with respect to family size and composition, community characteristics, time allocation, and transfers of goods, help, and money between the respondents and others. The survey collected data in three separate rounds held at four-month intervals. The majority of the survey was administered in Round 1, while the second and third rounds collected data on new questions not asked in Round 1 and also updated some of the Round 1 data, most notably the work and pregnancy histories. In October 1981, the individual-level dataset (Part 142) was created, consisting of one fixed-length record per individual per household. Variables included at both the individual and household levels provide information on demographics, time allocation, and income and wealth. Due to processing constraints, most of the retrospective data have been omitted from the individual-level dataset.
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Guatemalan Survey of Family Health (EGSF), 1995 (ICPSR 2344)

Released/updated on: 2025-11-06
Geographic coverage: Guatemala, Global
Time period: 1995-05-01--1995-10-01

The Guatemalan Survey of Family Health (EGSF) was undertaken to investigate the health of children under the age of five and women during pregnancy and childbirth residing in 60 communities within the departments (geopolitical units) of Chimaltenango, Suchitepequez, Totonicapan, and Jalapa in Guatemala. Data were collected at the household, individual, and community levels to gain an in-depth understanding of the way residents in these rural populations think about their health, treatment, and family relations.

Data at the household level (Parts 1-5, 90-92) provide information on household members, relation to household head, age, education, and language used.

The individual-level data (Parts 6-37) describe the respondent's background, marital/relationship history, social ties and social support, and economic status, along with health beliefs, a complete birth history, knowledge and use of contraception, health problems and treatment during the last two pregnancies, and anthropometry on mothers and children. Extensive data were gathered regarding the health problems and treatment for each of the two youngest children born since January 1990, with particular focus on diarrhea and respiratory infections.

The community data (Parts 41-60) supply information gathered from three knowledgeable individuals called "key informants" about occupations in the community, crops grown, wages, utilities and community services, and the history of the community. Parts 61-89 contain information regarding Health Posts (health care centers) through interviews conducted with key informants, doctors (Parts 72-80), and other health service providers (Parts 81-89), including traditional providers such as curers, midwives, and bone setters, regarding their practices, patients, referrals, fees, payment, and the use of specific treatments.

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Simple Crosstabs

Health and Aging in Africa: A Longitudinal Study of an INDEPTH Community in South Africa [HAALSI]: Agincourt, South Africa, 2015-2022 (ICPSR 36633)

Released/updated on: 2023-03-13
Geographic coverage: Africa, South Africa, Global
Time period: 2014-01-01--2015-01-01, 2018-01-01--2019-01-01, 2021-01-01--2022-01-01

The Health and Aging in Africa: A Longitudinal Study of an INDEPTH Community in South Africa (HAALSI) study is a population-based survey that aims to examine and characterize a population of older men and women in rural South Africa with respect to health, physical and cognitive function, aging, and well-being, in harmonization with other Health and Retirement Studies.

The baseline survey was conducted among 5,059 men and women aged 40 years or older, who were sampled from within the existing framework of the Agincourt health and socio-demographic surveillance system (AHDSS), in rural Mpumalanga province, South Africa. Survey data were collected on cognitive and physical functioning, social networks, cardiometabolic disease and risk factors, HIV and HIV risk, and economic well-being. The survey also included anthropometric measures and point-of-care blood tests for hemoglobin, glucose and lipids. Dried bloodspots (DBS) were collected at the survey and later tested for HIV, HIV viral load, glucose and CRP. A sub-sample had more extensive laboratory follow-up testing, which will be available in future data releases. A second wave of the survey was administered in 2018 through 2019, and a third wave of the survey was administered in 2021 through 2022.

Demographic information includes age, sex, income, education, marital status, number of children, and employment.

Harvard dataverse hosts an additional restricted-use dataset which compliments this collection, the HAALSI Baseline HIV Biomarker Data; users interested in obtaining these data must request access based on the terms outlined in the data use agreement.

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Restricted

Identification of Risk and Preventive Factors for Elder Financial Exploitation, Los Angeles, 2014-2015 (ICPSR 36415)

Released/updated on: 2018-01-05
Geographic coverage: United States, Los Angeles
Time period: 2014-01-01--2015-12-31

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

Financial elder exploitation (FE) is an increasing problem for vulnerable elders exploited by opportunists and for the social service and criminal justice system designed to protect them. This study systematically investigated both objective and subjective measures of social support and isolation, along with common risk factors mentioned in FE theories, including dependency, physical health, depression, cognition, and demographic characteristics. Researchers collected data on individual difference variables with an emphasis on cognitive factors and data on contextual factors using an individually administered survey approach. The framework for this project was derived from known factors for FE, predicted protective factors for FE, and conceptual approaches from the child mistreatment literature on risk and resilience.

The study includes 1 SPSS data file with 216 cases and 297 variables.

Curated

Indonesian Family Life Survey, 1993 (ICPSR 6706)

Released/updated on: 2006-01-12
Geographic coverage: Kalimantan, Java, Bali, Sumatra, West Nusa Tenggara, Global, Indonesia, Sulawesi

This release of the 1993 Indonesian Family Life Survey (IFLS-1-PR) is a revised and restructured version of the Wave 1 data. This data collection provides a broad range of economic, demographic, and health information at both the household and community levels across 13 provinces on the islands of Java, Sumatra, Bali, West Nusa Tenggara, Kalimantan, and Sulawesi. A sample of 7,224 households was interviewed during August 1993 through January 1994. Household-level data cover topics such as household characteristics, income, education of both adults and children, marriage histories, inter-household transfers, pregnancy history, and knowledge and use of contraceptives. At the community-facility level, information was gathered from village leaders and heads of village women's groups in each of the 321 enumeration areas (EAs) where the households were located. Questions were asked regarding community characteristics (transportation, water and sanitation, history of schools, and availability of health facilities), nurses, midwives, and paramedics (facility management and family planning history, vignettes on types of care), and traditional health practitioners (buying or making herbal medicines or using services of traditional practitioners, rituals, and incantations). When the household data are combined with the community-facility data, the 1993 Indonesian Family Life Survey provides a unique look at areas of fertility, family planning, infant and child health, education, migration, employment, and the social, economic, and health status of over 7,000 households in a diverse setting during a period of rapid demographic and socioeconomic change.

As of June 2015, there are four waves of data for the IFLS. However, a fifth wave of data collection has begun. Please see the IFLS Web site for more information on how to obtain these data.

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Informal and Formal Supports in Aging in Albany, Rensselaer, and Schenectady Counties, New York, 1989 (ICPSR 6899)

Released/updated on: 1998-01-16
Geographic coverage: United States, New York (state)
Time period: 1988-09-01--1989-02-01
These data explore the family relationships and social support networks of middle-aged and older persons. Information on respondents' relationships with individual family members is supplied, along with measures of many kinds of routine help given and received, and summary measures of the amount of time that others spent helping the respondent and that the respondent spent helping others. Variables cover respondent's employment status and history, employment status and history of respondent's spouse, respondent's income, number and sex of children, family composition (biological parents, step-parents, in-laws), household chores performed (cooking, cleaning, washing, shopping, driving), and assistance received with chores. Additional items relate to whether respondents helped anyone else with daily activities, and whether they were involved in church, civic, and/or other activities. Demographic information about respondents and their spouses (age, sex, education, ethnicity) is also provided.
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Midlife in the United States (MIDUS): Survey of Minority Groups [Chicago and New York City], 1995-1996 (ICPSR 2856)

Released/updated on: 2018-03-21
Geographic coverage: New York City, United States, Chicago, Illinois, New York (state)
Time period: 1995-01-01--1996-01-01
This survey of minority groups was part of a larger project to investigate the patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Conducted in Chicago and New York City, the survey was designed to assess the well-being of middle-aged, urban, ethnic minority adults living in both hyper-segregated neighborhoods and in areas with lower concentrations of minorities. Respondents' views were sought on issues relevant to quality of life, including health, childhood and family background, religion, race and ethnicity, personal beliefs, work experiences, marital and close relationships, financial situation, children, community involvement, and neighborhood characteristics. Questions on health explored the respondents' physical and emotional well-being, past and future attitudes toward health, physical limitations, energy level and appetite, amount of time spent worrying about health, and physical reactions to those worries. Questions about childhood and family background elicited information on family structure, the role of the parents with regard to child rearing, parental education, employment status, and supervisory responsibilities at work, the family financial situation including experiences with the welfare system, relationships with siblings, and whether as a child the respondent slept in the same bed as a parent or adult relative. Questions on religion covered religious preference, whether it is good to explore different religious teachings, and the role of religion in daily decision-making. Questions about race and ethnicity investigated respondents' backgrounds and experiences as minorities, including whether respondents preferred to be with people of the same racial group, how important they thought it was to marry within one's racial or ethnic group, citizenship, reasons for moving to the United States and the challenges faced since their arrival, their native language, how they would rate the work ethic of certain ethnic groups, their views on race relations, and their experiences with discrimination. Questions on personal beliefs probed for respondents' satisfaction with life and confidence in their opinions. Respondents were asked whether they had control over changing their life or their personality, and what age they viewed as the ideal age. They also rated people in their late 20s in the areas of physical health, contribution to the welfare and well-being of others, marriage and close relationships, relationships with their children, work situation, and financial situation. Questions on work experiences covered respondents' employment status, employment history, future employment goals, number of hours worked weekly, number of nights away from home due to work, exposure to the risk of accident or injury, relationships with coworkers and supervisors, work-related stress, and experience with discrimination in the workplace. A series of questions was posed on marriage and close relationships, including marital status, quality and length of relationships, whether the respondent had control over his or her relationships, and spouse/partner's education, physical and mental health, employment status, and work schedule. Questions on finance explored respondents' financial situation, financial planning, household income, retirement plans, insurance coverage, and whether the household had enough money. Questions on children included the number of children in the household, quality of respondents' relationships with their children, prospects for their children's future, child care coverage, and whether respondents had changed their work schedules to accommodate a child's illness. Additional topics focused on children's identification with their culture, their relationships with friends of different backgrounds, and their experiences with racism. Community involvement was another area of investigation, with items on respondents' role in child-rearing, participation on a jury, voting behavior, involvement in charitable organizations, volunteer experiences, whether they made monetary or clothing donations, and experiences living in an institutional setting or being homeless. Respondents were also queried about their neighborhoods, with items on neighborhood problems including racism, vandalism, crime, drugs, poor schools, teenage pregnancy, the existence of social networks, the frequency of contact with family members, social interaction with neighbors, sense of community, whether the respondent owned or rented their home, and the financial, legal, and medical problems of family members. A final set of questions sought respondents' assessments of their life and their expectations for the future. Additional background information on respondents includes age, ethnicity, and gender.
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National Health and Aging Trends Study (NHATS): Round 10 COVID-19 Supplement, [United States], 2020-2021 (ICPSR 39070)

Released/updated on: 2024-03-18
Geographic coverage: United States
Time period: 2020-01-01--2021-01-01
The National Health and Aging Trends Study (NHATS) began in 2011 and fosters research to guide efforts to reduce disability, maximize health and independent functioning, and enhance quality of life at older ages. NHATS aims to provide the basis for understanding trends in late-life functioning, how these differ for various population subgroups, and the economic and social consequences of aging and disability for individuals, families, and society. Between June 2020 and March 2021, NHATS conducted a supplemental mail study about participants' experiences during the COVID-19 pandemic. Adult family members and friends who helped NHATS participants were also surveyed about their experiences. The NHATS COVID-19 supplements covered topics such as symptoms of COVID-19, measures to limit spread of the virus, changes in living situations, contact with family and friends, other activities, grocery shopping, health care, finances, wellbeing, and help with daily activities. The ICPSR provides variable-level metadata for the data associated with this study. Users should consult the NHATS website for details on obtaining these resources.
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National Health and Aging Trends Study (NHATS), [United States] (ICPSR 37107)

Released/updated on: 2018-06-29
Geographic coverage: United States
Time period: 2011-01-01--2024-01-01

The National Health and Aging Trends Study (NHATS) began in 2011 and fosters research to guide efforts to reduce disability, maximize health and independent functioning, and enhance quality of life at older ages. NHATS aims to provide the basis for understanding trends in late-life functioning, how these differ for various population subgroups, and the economic and social consequences of aging and disability for individuals, families, and society.

NHATS gathers information on a nationally representative sample of Medicare beneficiaries ages 65 and older. The sample is refreshed periodically so that researchers may study national-level disability trends as well as individual trajectories. Annual, in-person interviews collect detailed information on the disablement process and its consequences.

The NHATS interview is guided by a conceptual framework that recognizes physical and cognitive capacity is distinct from the environment in which activities take place. Among the specific content areas included are: the physical, social, technological and service environment, physical and cognitive capacity, use of assistive devices and rehabilitation, help received with daily activities (self-care, household, and medical), participation in valued activities, and wellbeing. A last month of life interview focuses on quality of end of life care. Periodically caregivers of NHATS respondents are interviewed in the supplemental National Study of Caregiving (NSOC). Linkages to Medicare records are also available.

Content was developed by a multidisciplinary team of researchers from the fields of demography, geriatric medicine, epidemiology, health services research, economics, and gerontology. NHATS is being led by the Johns Hopkins University Bloomberg School of Public Health in collaboration with the University of Michigan, with data collection by Westat, and support from the National Institute on Aging.

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National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)

Released/updated on: 2026-03-03
Geographic coverage: United States
Time period: 1994-01-01--2025-01-01

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

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National Social Life, Health, and Aging Project (NSHAP): Round 1, [United States], 2005-2006 (ICPSR 20541)

Released/updated on: 2023-01-30
Geographic coverage: United States
Time period: 2005-07-01--2006-03-01

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.

Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

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National Social Life, Health, and Aging Project (NSHAP): Round 2 and Partner Data Collection, [United States], 2010-2011 (ICPSR 34921)

Released/updated on: 2023-05-24
Geographic coverage: United States
Time period: 2010-01-01--2011-01-01

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 2 interviews were conducted from August 2010 through May 2011, during which Round 1 Respondents were re-interviewed. An attempt was also made to interview individuals who were sampled in Round 1 but declined to participate. In addition, spouses or co-resident partners were also interviewed using the same instruments as the main respondents. This process resulted in 3,377 total respondents. The following files constitute Round 2: Core Data, Disposition of Round 1 Partner Data, Social Networks Data, Social Networks Update Data, Partner History Data, Partner History Update Data, Medications Data, Proxy Data, and Sleep Statistics Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships, and patient-physician communication, in addition to bereavement items. Data were also collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function, and a panel of biomeasures, including weight, waist circumference, height, blood pressure, smell, saliva collection, and taste.

The Disposition of Round 1 Partner files (Datasets 3 and 4) detail information derived from Section 6A items regarding the partner from Round 1 within the questionnaire. This provides a complete history for respondent partners across both rounds.

The Social Networks files (Datasets 5 and 6) contain one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file.

The Social Networks Update files (Datasets 7 and 8) detail respondents' current relationship status with each person identified on the network roster.

The Partner History file (Dataset 9) contains one record for each marriage, cohabitation, or romantic relationship identified in Section 6A of the questionnaire, including a current partner in Round 2 but excluding the partner from Round 1.

The Partner History Update file (Dataset 10) details respondents' current sexual partner information, as well as marital and cohabiting status.

The Medications Data file (Dataset 11) contains records for items listed in the medications log.

The Proxy Data files (Datasets 12 and 13) contain information from proxy interviews administered for Round 1 Respondents who were either deceased or whose health was too poor to participate in Round 2.

The Sleep Statistics Data files (Dataset 14 and 15) provide information on actigraphy sleep variables.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

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National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)

Released/updated on: 2024-09-09
Geographic coverage: United States
Time period: 2015-01-01--2016-01-01, 2020-01-01--2021-01-01

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.

The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.

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National Social Life, Health, and Aging Project (NSHAP): Round 4, [United States], 2021-2023 (ICPSR 39511)

Released/updated on: 2025-10-08
Geographic coverage: United States

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The study team collected data for Round 4 of this study from 2021 through 2023 and covered the following subjects: bereavement, caregiving, elder mistreatment, employment, functional health, health behaviors, mental and physical health, cognitive function, neighborhood information, sexual interest and activity, social activity, and familial and friend support.

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National Survey of Black Americans, 1979-1980 (ICPSR 8512)

Released/updated on: 2005-11-04
Geographic coverage: United States
Time period: 1979-01-01--1980-01-01
The purpose of this data collection is to provide an appropriate theoretical and empirical approach to concepts, measures, and methods in the study of Black Americans. The questionnaire was developed over two years, with input from social scientists, students, and a national advisory panel of Black scholars. The final instrument encompasses several broad areas related to Black American life. The study explores neighborhood-community integration, services, crime and community contact, the role of religion and the church, physical and mental health, and self-esteem. It also examines employment, the effects of chronic unemployment, the effects of race on the job, and interaction with family and friends. In addition, the survey provides information on racial attitudes, race identity, group stereotypes, and race ideology. Demographic variables include education, income, occupation, and political behavior and affiliation.
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National Survey of Black Americans, Waves 1-4, 1979-1980, 1987-1988, 1988-1989, 1992 (ICPSR 6668)

Released/updated on: 2005-11-04
Geographic coverage: United States
The purpose of this data collection was to provide an appropriate theoretical and empirical approach to concepts, measures, and methods in the study of Black Americans. Developed with input from social scientists, students, and a national advisory panel of Black scholars, the survey investigates neighborhood-community integration, services, crime and community contact, the role of religion and the church, physical and mental health, self-esteem, life satisfaction, employment, the effects of chronic unemployment, the effects of race on the job, interaction with family and friends, racial attitudes, race identity, group stereotypes, and race ideology. Demographic variables include education, marital status, income, employment status, occupation, and political behavior and affiliation.
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National Survey of Hispanic Elderly People, 1988 (ICPSR 9289)

Released/updated on: 2005-11-04
Geographic coverage: United States
Time period: 1987-01-01--1988-01-01
This survey, conducted as an extension of the NATIONAL SURVEY OF PROBLEMS FACING ELDERLY AMERICANS LIVING ALONE, 1986 (ICPSR 9379) (NSPFEALA), was designed to investigate specific problems of the elderly in order to gain a better understanding of the economic, health, and social status of this group. The survey focused on many of the same issues investigated by the NSPFEALA to allow comparisons between Hispanic elderly and the elderly population as a whole. Respondents were given their choice of English or Spanish as the interview language. Elderly Hispanics were asked if they had serious problems with family relationships, loneliness, anxiety, care of a sick spouse or relative, paying for medical bills, having enough money to live on, or dependence on others. In the same vein, respondents were asked if they had disabilities that affected their daily activities such as bathing, dressing, walking, eating, and shopping, and who, if anyone, helped them to perform these functions. Respondents were also asked if they were generally satisfied with their lives and if they felt excited, restless, proud, pleased, bored, depressed, optimistic, or upset during the few weeks preceding the interview. In addition, the survey inquired about willingness to accept various changes in Social Security benefits and taxation and also queried respondents about their living arrangements (actual and preferred), social networks, general health, doctor visits and hospital stays during the last 12 months, coverage by and utilization of social programs and services, income and sources of income, fluency in English and Spanish, current and past employment, usual means of transportation, home ownership, ancestry, country of birth, year of immigration, religion, education, number of living children, age, sex, and marital status.
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National Survey of Personal Health Practices and Consequences [United States], 1979-1980 (ICPSR 8220)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1979-01-01--1980-01-01
This data collection is a telephone survey of a national probability sample. It was designed to provide data for examining the relationships between health practices and physical health status. The survey was conducted in two waves of interviews among a panel of noninstitutionalized civilian adults aged 20-64 years in the coterminous United States. Wave I was conducted in the spring of 1979 and comprises data for 3,025 respondents. Wave II was conducted one year later and contains data for 2,436 respondents . The file contains data from both waves. Included are questions on diet, exercise, sleeping, smoking, drinking of alcoholic beverages, weight status, dental hygiene, use of seat belts, changes in preventive health behavior due to illness, perceived health status and energy level, use of preventive health services, use of medical and hospital care, behavior with respect to high blood pressure, work status, conditions of work with respect to hazards, stress, physical demands, and sick leave, participation in social groups and religious services, enjoyment of free time, number and closeness of friends and relatives, general psychological well-being, recent stressful life events, and socio-demographic information, such as age, sex, marital status, educational level, race and family income.
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Quality of American Life, 1971 (ICPSR 3508)

Released/updated on: 1992-02-16
Geographic coverage: United States
The purpose of this study was to survey Americans about perceived quality of life by measuring perceptions of their socio-psychological condition, their needs and expectations from life, and the degree to which those needs were satisfied. The data were collected via personal interviews from a nationwide probability sample of 2,164 persons 18 years of age and older during the summer of 1971. Closed and open-ended questions were used to probe respondents' satisfactions, dissatisfactions, aspirations, and disappointments in a variety of life domains, such as dwelling/neighborhood, local services (e.g., police, roads, and schools), public transportation, present personal life, life in the United States, education, occupation, job history/expectation, work life, housework, leisure activities, organizational affiliations, religious affiliation, health problems, financial situation, marriage (including widowhood, divorce, and separation), children/family life, and relationships with family and friends. In addition to broad questions about satisfaction with each of these domains and their importance to the respondents, specific sources of gratification and frustration are explored. Other questions focused on life as a whole and the extent to which respondents felt they had control over their lives (e.g., rating of various aspects of life, (dis)satisfaction with life, personal efficacy, and social desirability measures). Personal data include sex, age, race, ethnic background, childhood family stability, military service, and father's occupation and education. Observational data are included on housing and neighborhood characteristics as well as respondents' appearance, intelligence, and sincerity. An instructional subset of this study is also available (see ICPSR INSTRUCTIONAL SUBSET: QUALITY OF AMERICAN LIFE, 1971 [ICPSR 7516], also prepared by Campbell, Converse, and Rodgers.) It includes questions representative of the major areas covered in the original, longer survey. A related dataset, QUALITY OF AMERICAN LIFE, 1978 (ICPSR 7762), continues the survey conducted in 1971.
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Second Malaysian Family Life Survey: 1988 Interviews (ICPSR 9805)

Released/updated on: 2005-11-04
Geographic coverage: Malaysia, Global
This collection, the second wave of a panel survey, provides household-level retrospective and current data for Peninsular Malaysian women and their husbands and covers traditional topics of demographic research such as fertility, nuptiality, migration, and mortality as well as social and economic factors affecting family decision-making. The overall purpose of the data collection was to study household behavior in diverse settings during a period of rapid demographic and socioeconomic change. Eight survey instruments were used in this study. The tracking instrument, MFLS-2, was used for all households where an interview was attempted, and recorded information such as disposition of survey and questionnaires, number of eligibles, and respondent identifiers. The MF20 instrument, Household Members, was administered to all Panel sample households that were located. It solicited information on the status of the household members and included items such as location, marital status, education, and birthdate. The MF21 form, Household Roster, was used on all households interviewed in the survey. This form collected demographic information on current and very recent household members. The MF22 form, Female Life History, surveyed the Panel women and their selected daughters and daughters-in-law, and the New Sample women. Information collected by this form included pregnancy history and related events, marital, work, and migration histories, family background, and education. The MF23 form, Male Life History, collected data from husbands of the Panel women, selected sons and sons-in-law, and husbands of New Sample women. Data on marital, work, and migration histories, education, and family background were recorded. The MF24 form, Senior Life History, was administered to selected persons aged 50 or more and contained questions on marriages, children living elsewhere, literacy, work experience, migration history, health, and family background. The MF25 form, Household Economy, collected data on household economy from all households interviewed in this wave. Forms MF26 and MF27 were used to generate community-level data subfiles for this collection. Part 97 (MF26DIST--District-Level Data) contains one record for each of the 78 districts of Peninsular Malaysia. This file provides information (most of which pertains to 1988, but some of which dates back to 1970) on health services (e.g., number of hospitals, health centers, and doctors), family planning services (e.g., number of family planning clinics, contraceptive use), birth, death, and fertility rates, number of primary and secondary schools, ethnic distributions, and industrial and occupational distributions. Part 98 (MF26EB--Community-Level Data) contains one record for each of the 398 Enumeration Blocks selected for MFLS-2 and the 52 Primary Sampling Units used in MFLS-1. This file gives the current status of family planning services, general health services, schools, water and sanitation, housing costs, agriculture, transportation, population, urban/rural status, and government programs. Part 99 (MF27COMM--Community-Level Data) offers data for the same units as Part 98 and contains similar information, along with retrospective data on family planning services, health services, schools, and water treatment. Merged files (Parts 106-112) that contain one record per respondent were created by ICPSR using the variables CASE SPLIT PERSON for MF22, MF23, MF24, and MF25 on the New and Senior samples and the Panel and Children samples.
Curated

Social Networks in Adult Life, 1980: [United States] (ICPSR 9254)

Released/updated on: 1993-04-09
Geographic coverage: United States
These data were gathered to provide information on Kahn and Antonucci's life-span developmental model, "convoys of social support," which explores interpersonal relationships over time. Older adults (aged 50+) were interviewed on their health status, labor force status, and other demographic characteristics, and on the composition and degree of closeness of members of their current support network (e.g., spouses, children, friends). Three concentric circles of closeness were defined, varying in terms of transcendence of the relationship beyond role requirements, stability over the life span, and exchange of many different types of support (confiding, reassurance, respect, care when ill, discussion when upset, and talk about health). The principal respondents named a total of 6,341 network members, ranging in age from 18 to 96 years. Detailed structural and functional characteristics were collected from the principal respondents on the first ten named members of each support network. Similar interviews were then conducted with one to three network members of those 259 principal respondents who were 70+ years old. Two data files are provided: Part 1 contains merged data from the interviews of both the principal respondents aged 70+ and their network members, and Part 2 contains data from the principal respondents aged 50+.
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Stroke Recovery in Underserved Populations 2005-2006 [United States] (ICPSR 36422)

Released/updated on: 2016-05-03
Geographic coverage: United States
Time period: 2005-01-01--2006-01-01

The Stroke Recovery in Underserved Populations 2005-2006 study was created to address the National Institute on Aging (NIA) Request For Application entitled "Research on Mind-Body Interactions and Health" (RFA OD-03-008). It addressed the NIA interest in "the impact of optimism, happiness, or a positive attitude on well-being and health; and social functioning and health." The study examined how positive emotion (e.g., joy, gratitude, love, contentment) and social networks independently and interactively contribute to recovery of functional status after stroke within two underserved groups. The specific study aims were to:

  1. Examine recovery of functional status (motor and cognitive function), for White, African American and Hispanic persons with stroke discharged from rehabilitation facilities
  2. Examine the contributions of positive emotion and social networks on recovery of functional status (motor and cognitive function), for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities; and
  3. Examine the interaction between positive emotion and social networks on recovery of functional status (motor and cognitive function) for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities.

The data were collected by the IT Health Track at four time points: at admission and discharge from rehabilitation facility, and 80-180 days and 365-425 days after discharge. These data emphasize recovery of motor and cognitive functional status, positive emotion, and social networks

The dataset contains 226 variables and 1219 cases from 11 rehabilitation facilities across the United States.

Curated

Survey of Community, Crime, and Health, 1995, 1998 [United States] (ICPSR 4381)

Released/updated on: 2010-09-21
Geographic coverage: United States, Illinois
The Survey of Community, Crime, and Health (CCH) was conducted in 1995 and 1998 in Illinois to examine the relationship between neighborhood disadvantage and physical and mental health, (over and above individual socio-economic characteristics), in order to develop a measure of perceived neighborhood disorder and to explore its role in explaining that relationship. Interviews were conducted with 2,482 respondents and covered topics such as physical health, mental health, health behaviors, use of services, and sense of control. Also examined were social support, perceived neighborhood characteristics, neighborhood social support, and personal and household demographics. In addition to individual-level variables, Wave I of the CCH contains a number of community-level variables that were created from the 1990 STF Census data. Variable names starting with T are tract-level, variables starting with C are county-level, and variables starting with P are city-level.
Curated

Survey of Health, Ageing and Retirement in Europe (SHARE) (ICPSR 24981)

Released/updated on: 2009-02-26
Geographic coverage: Europe, Switzerland, Global, Spain, Greece, Netherlands, Sweden, Austria, Czech Republic, Belgium, Ireland, Denmark, Poland, Italy, Israel, Slovenia, France, Germany

The Survey on Health, Ageing and Retirement in Europe (SHARE) is a multidisciplinary and cross-national panel database of micro data on the health, socio-economic status, and social and family networks of older adults (aged 50 years and over) throughout Europe. Designed to provide a full picture of the aging process, SHARE collects data on a range of topics including health conditions, physical and cognitive functioning, mental health, life satisfaction, employment, income, education, social networks, and social support mechanisms. The first wave of SHARE data collection occurred in 2004-2005, the second wave in 2006-2007, and the third wave in 2008-2009.

SHARE has been harmonized with the United States HEALTH AND RETIREMENT STUDY (HRS) [ICPSR6854], and the ENGLISH LONGITUDINAL STUDY OF AGEING (ELSA) [ICPSR0139].

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Survey of Midlife in Japan (MIDJA 2), May-October 2012 (ICPSR 36427)

Released/updated on: 2018-02-19
Geographic coverage: Tokyo, Japan, Global
Time period: 2012-05-01--2012-10-01

In 2008, with funding from the National Institute on Aging (NIA), baseline survey data for the Survey of Midlife in Japan (MIDJA), April-September 2008 were collected from a probability sample of Japanese adults (N=1,027) aged 30 to 79 from the Tokyo metropolitan area (ICPSR 30822). In 2009-2010 biomarker data was obtained from a subset of these cases (ICPSR 34969).

The survey and biomarker measures obtained parallel those in a national longitudinal sample of Americans known as Midlife in the United States or MIDUS (ICPSR 2760: MIDUS 1 and ICPSR 4652: MIDUS 2). The central objective was to compare the Japanese sample (MIDJA) with the United States sample (MIDUS) to test hypotheses about the role of psychosocial factors in the health (broadly defined) of mid- and later-life adults in Japan and the United States.

In 2012, with additional support from NIA, a longitudinal follow-up of the MIDJA sample was completed. The data collection for this second wave (N=657) largely repeated the baseline assessments. The goal of the follow-up wave was to conduct comparisons of longitudinal data available from the Japanese sample (MIDJA) and the United States sample (MIDUS) to test the hypothesis about the role of psychosocial factors in predicting health changes (including biomarkers) in both cultural contexts. Cultural influences on age differences in health and well-being were also of interest.

Demographic and background information included gender, age, education, marital status, household composition, and income.

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Simple Crosstabs

UC Berkeley Social Networks Study (UCNets), San Francisco Bay Area, 2015-2018 (ICPSR 36975)

Released/updated on: 2020-07-22
Geographic coverage: San Francisco Bay Area
Time period: 2015-01-01--2016-01-01

Understanding How Personal Networks Change: Wave 1 (UCNets) is the University of California Berkeley Social Networks Study, a longitudinal study with the objective of understanding how network composition changes over time as a result of life course transitions - e.g., graduation, marriage, retirement or widowhood - and how these changes are related to health status and outcomes. Using mostly addressed-based sampling from six San Francisco Bay Area counties, the study recruited participants in two age groups (cohorts) - 21-30 year-olds and 50-70 year-olds -- to maximize the possibility of experiencing a life transition. There are 3 waves of interviewing. The first interview, Wave 1, was May 2015 through January 2016. The re-interview for Wave 2 was conducted in Feb-June 2017, and Wave 3 was during Feb-May 2018. In Wave 1, the majority of respondents completed a face-to-face (FTF) survey, with the rest filling out a comparable web survey. In Wave 2 about half completed the FTF survey, and in Wave 3, about one-quarter. The survey contains items regarding households, personal networks, family milestones, employment, health status and behavior, personality and demographic characteristics.

Curated

Well Elderly 2, Los Angeles, California, 2004-2008 (ICPSR 33641)

Released/updated on: 2013-05-28
Geographic coverage: United States, Los Angeles, California
Time period: 2004-11-01--2008-10-01
Older people are at risk for health decline and loss of independence. Lifestyle interventions offer potential for reducing such negative outcomes. The Well Elderly study attempts to determine the effectiveness and cost-effectiveness of a preventive lifestyle-based occupational therapy intervention, administered in a variety of community-based sites, in improving mental and physical well-being and cognitive functioning in ethnically diverse older people. Participants included 460 men and women aged 60 - 95 years recruited from 21 sites in the greater Los Angeles metropolitan area. For six months elders in one group received the Well Elderly Intervention, while elders in the other group remained untreated for the first six months and received the intervention during the second six-month phase. Following receipt of the intervention, subjects in both groups remained untreated for respective twelve month spans. The manualized intervention consisted of small group and individual sessions led by a licensed occupational therapist. Typically, each group had six to eight members, all recruited from the same site and treated by the same intervener. Monthly community outings were scheduled to facilitate direct experience with intervention content such as the use of public transportation. An assessment battery (including questionnaires, cognitive tests, and biomarker samples) measured potential mediating variables as well as outcome variables and was administered at study baseline and at subsequent six-month intervals. In addition, at baseline a set of background and control variables were measured. At the end of each assessment session (questionnaires and cognitive tests), subjects provided salivary samples. The Samples were assayed for cortisol, dehydroepiandrosterone, and alpha amylase. Assessment of health-related quality of life, life satisfaction, and depression was based on self-rated questionnaires. Cognitive tests were conducted individually. Perceived physical health and aspects of mental well-being were measured, as were depressive symptoms, and life satisfaction. Variable categories include, health survey, stressful events, feelings, connections, attitudes, supports, beliefs, issues, activities, and demographics i.e. respondents age, sex, race, education level, employment, and income.
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