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The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups.

The Wave 7 dataset comprises the sixth follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas.

The public-use data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues.

During this 7th Wave (dataset 1), 2010-2011, re-interviews were conducted either in person or by proxy, with 659 of the original respondents. This Wave also includes 419 re-interviews from the additional sample of Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort who were added in Wave 5, increasing the total number of respondents to 1,078.

The Wave 7 Informant Interviews dataset (dataset 2) includes data which corresponds to the sixth follow-up of the baseline Hispanic EPESE Wave 7 and included re-interviews with 1,078 Mexican Americans aged 80 years and older. During these interviews, participants were asked to provide the name and contact information of the person they are "closer to" or they "depend on the most for help." These INFORMANTS were contacted and interviewed regarding the health, function, social situation, finances, and general well-being of the ongoing Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. This dataset includes information from 925 informants, more than two-thirds of whom were children of the respective respondents.

The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups.

The Wave 8 dataset comprises the seventh follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas.

The public-use data cover demographic characteristics (age, sex, marital status), height, weight, BMI, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of hospital and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues.

During this 8th Wave, 2012-2013, re-interviews were conducted either in person or by proxy, with 452 of the original respondents. This Wave also includes 292 re-interviews from the additional sample of Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort who were added in Wave 5, increasing the total number of respondents to 744.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data files, including studies 34315, 38681, 37105, 37106, 38670, 38674, are no longer available from ICPSR and NACDA at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized. Demographic and background variables include age, sex, marital status, household composition, education, and employment.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The second wave of TILDA interviews were undertaken between February 2012 and March 2013. Of the 8,504 interviewed in Wave 1, a second interview was obtained for 7,445 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 170 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The third wave of TILDA interviews were undertaken between March 2014 and October 2015. Of the 7,445 interviewed in Wave 2, a third interview was obtained for 6,874 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 28 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The fourth wave of TILDA interviews were undertaken between January and December 2016. A total of 5,713 participants completed the self-interview.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The fifth wave of TILDA interviews were undertaken between January and December 2018. A total of 4,978 participants completed the self-interview.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

The Mexican Health and Aging Study (MHAS) is a national longitudinal study of adults 50 years and older in Mexico. The study is a collaborative effort among researchers from the Universities of Pennsylvania, Maryland, and Wisconsin in the United States, and the Instituto Nacional de Estadistica, Geografia e Informatica (INEGI) in Mexico.

The baseline survey includes a nationally representative sample of Mexicans aged 50 and over and their spouse/partners regardless of their age. A direct interview was sought with each individual, and proxy interviews were obtained when poor health or temporary absence precluded a direct interview. Topics covered include: health behavior and health status, childhood and family background, migration history, sources and amounts of income, and housing environment.

The MHAS is partly supported by the National Institutes of Health/National Institute on Aging and the INEGI in Mexico. The MHAS was designed as a longitudinal study with protocols highly comparable to the Health and Retirement Study (HRS) of the United States.

These data are being released in BETA version to facilitate early access to the study for research purposes. This collection has not been fully processed by NACDA or ICPSR at this time; the original materials provided by the principal investigator were minimally processed and converted to other file types for ease of use. As the study is further processed and given enhanced features by ICPSR, users will be able to access the updated versions of the study. Please report any data errors or problems to user support and we will work with you to resolve any data related issues.

The National Health Interview Survey (NHIS) is conducted annually and sponsored by the National Center for Health Statistics (NCHS), which is part of the U.S. Public Health Service. The purpose of the NHIS is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive across the United States population through the collection and analysis of data on a broad range of health topics. The redesigned NHIS questionnaire introduced in 1997 (see National Health Interview Survey, 1997 [ICPSR 2954]) consists of a core that remains largely unchanged from year to year, plus an assortment of supplements varying from year to year.

The 2010 NHIS Core consists of three modules: Family, Sample Adult, and Sample Child. The datasets derived from these modules include Household Level, Family Level, Person Level, Injury/Poison Episode Level, Injury/Poison Verbatim Level, Sample Adult Level, and Sample Child level.

The 2010 NHIS supplements consist of stand alone datasets for Cancer Level and Quality of Life data derived from the Sample Adult core and Disability Questions Tests 2010 Level derived from the Family core questionnaire. Additional supplementary questions can be found in the Sample Child dataset on the topics of cancer, immunization, mental health, and mental health services and in the Sample Adult dataset on the topics of epilepsy, immunization, and occupational health.

Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Parts 2-5 are based on the Family Core questionnaire. Part 2, Family Level, provides information on all family members with respect to family size, family structure, health status, limitation of daily activities, cognitive impairment, health conditions, doctor visits, hospital stays, health care access and utilization, employment, income, participation in government assistance programs, and basic demographic information. Part 3, Person Level, includes information on sex, age, race, marital status, education, family income, major activities, health status, health care costs, activity limits, and employment status. Parts 4 and 5, Injury/Poisoning Episode Level and Injury/Poisoning Verbatim Level, consist of questions about injuries and poisonings that resulted in medical consultations for any family members and contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence.

A randomly-selected adult in each family was interviewed for Part 6, Sample Adult Level, regarding specific health issues, the relation between employment and health, health status, health care and doctor visits, limitation of daily activities, immunizations, and behaviors such as smoking, alcohol consumption, and physical activity. Demographic information, including occupation and industry, also was collected. The respondents to Part 6 also completed Part 7, Cancer Level, which consists of a set of supplemental questions about diet and nutrition, physical activity, tobacco, cancer screening, genetic testing, family history, and survivorship. Part 8, Sample Child Level, provides information from an adult in the household on medical conditions of one child in the household, such as developmental or intellectual disabilities, respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs.

Parts 9 through 13 comprise the additional Supplements and Paradata for the 2010 NHIS. Part 9, Disability Questions Tests 2010 Level, is a supplemental set of six questions asked at the end of the Family Core questionnaire about sensory, mobility, self-care, cognition, and independent living issues. Part 10, Paradata Level, does not contain health related information, but rather data which are related to the interview process, including measures of time, contact-ability, and cooperation. Please see the User Guide for additional information and details. Part 11, Quality of Life Level, was asked to a randomly selected subsection of the Sample Adult questionnaire. Respondents were asked about participation in society, degree of difficulty and functioning in activity domains including vision, hearing, mobility, upper body, learning, cognition, affect, pain, fatigue, and communication. Part 12, Special Sample Adult Disability Weights Level, contains weights for use with an analysis of the merged data from the Sample Adult Level and Disability Questions Tests 2010 Level. Part 13, Sample Child Birth Weights Level, contains corrected birth weight data for 2010. Please see the Survey Description files for additional information and details.

The National Long-Term Care Survey (NLTCS) has completed six waves, nominally at five-year intervals, 1982, 1984, 1989, 1994, 1999, and 2004. The NLTCS is a nationally-representative sample both of the community and of institutionalized populations and is longitudinal in that sample persons join the survey once they reach 65 years of age and stay in the survey until they either die or are lost to follow-up. At each wave, a screener questionnaire is administered to the sample which divides the sample into three parts: the non-disabled (frequently called screen-outs), the disabled but living in the community, and the disabled living in an institution. About 5,000 people die between waves and are replaced by a sample of about that size of people who have become age 65 since the prior wave. Because of budget considerations it usually has not been possible to continue the entire non-disabled sample into the next wave. Instead a sample of the non-disabled is drawn to keep the total sample size for a wave at about 20,000. One of the interesting and useful features of the NLTCS is that data are collected on help that the sample person receives from informal caregivers.

The NLTCS is a very data-rich resource with many components, including disability measures, medical conditions, attained education levels, and income. Numerous papers have used it as a source of data addressing a wide variety of topics related to aging and disability.

Ancillary surveys have been added to measure other characteristics of the 65 and older population, to include a Caregiver Survey to acquire data on informal caregivers themselves (done in 1989, 1999, and 2004) and Next-of-Kin (NOK) surveys administered to sample persons who had died between 1982 and 1984 and again between 1994 and 1999. The sample has been frequently supplemented to compensate for low representation in some survey components, in particular the 75 years and older and 95 years and older components. In 1999 physical specimens were drawn from a sample of persons who responded to the survey. These physical specimens (blood where possible, alternatively a buccal wash) are subject to a genetic analysis and, in the case of blood, to a panel of proteins believed to be particularly important to health.

NLTCS Survey Data

Survey data are available in ASCII and SAS format.

The Analytic Data File, a file of derived variables for all waves of the survey incorporates correction factors and consistency checking. The Analytic Data File covers all waves of the survey and is available in both ASCII and SAS formats. Final versions of data for all waves, up to and including 1999 and a beta version for 2004, have been released and are supported by documentation.

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.

Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.