Alameda County [California] Health and Ways of Living Study, 1974 Panel (ICPSR 6838)
Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)
The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).
Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.
ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.
Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
Americans View Their Mental Health, 1957 (ICPSR 3503)
Americans View Their Mental Health, 1957 and 1976: Selected Variables (ICPSR 7949)
Americans View Their Mental Health, 1976 (ICPSR 7948)
Changing Lives of Older Couples (CLOC): A Study of Spousal Bereavement in the Detroit Area, 1987-1993 (ICPSR 3370)
Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)
CRELES-3: Costa Rican Longevity and Healthy Aging Study - Wave 3, 2009 (Costa Rica Estudio de Longevidad y Envejecimiento Saludable, Ronda 3) (ICPSR 35250)
Health and Ways of Living Study, 1965 Panel: [Alameda County, California] (ICPSR 6688)
Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Disabling Process Study: 2001-2002 (ICPSR 36203)
Human Aging: A Biological and Behavioral Longitudinal Study of Healthy Aged Males, 1957-1968 (ICPSR 7678)
The Longitudinal Study of Older People in Anhui Province, China, 2001-2003 (ICPSR 36388)
The Longitudinal Study of Older People in Anhui Province, China, 2001-2003 examined the physical and psychological well-being of older adults (aged 60 and above) living in rural Anhui Province, China. The original purpose of the study was to study the impact of rural-to-urban migration on the physical and psychological well-being of older adults left behind in rural villages by their adult children.
This collection contains two parts; Part 1: 2001 Survey and Part 2: 2003 Follow-up Survey. Similar Questions were asked in the two surveys to assess intergenerational transfers and relations of the respondents, including social support, caregiving, emotional cohesion, remittances, grandchild care, and filial piety. Respondents were also asked about their health status (physical, emotional, and cognitive). Demographic information includes age, sex, marriage status, and education.
Midlife in the United States (MIDUS 1), 1995-1996 (ICPSR 2760)
The Midlife in the United States (MIDUS) is a collaborative, interdisciplinary investigation of patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. A description of the study and findings from it are available at http://www.midus.wisc.edu.
The first wave of the MIDUS study (MIDUS 1 or M1) collected survey data from a total of 7,108 participants. The baseline sample was comprised of individuals from four subsamples: (1) a national RDD (random digit dialing) sample (n=3,487); (2) oversamples from five metropolitan areas in the U.S. (n=757); (3) siblings of individuals from the RDD sample (n=950); and (4) a national RDD sample of twin pairs (n=1,914). All eligible participants were non-institutionalized, English-speaking adults in the coterminous United States, aged 25 to 74.
Data from the samples were collected primarily in 1995/96. The survey (Project 1) dataset contains responses from a 30-minute Phone interview and two 50-page Self-Administered Questionnaire (SAQ) instruments. Of the 7,108 respondents who completed the Phone interview, 6,325 also completed the SAQ.
This updated version of the study is comprised of three primary datasets:
Dataset 1, Main, Siblings, and Twin Data, contains responses from the main survey of 7,108 respondents. Respondents were asked to provide extensive information on their physical and mental health throughout their adult lives, and to assess the ways in which their lifestyles, including relationships and work-related demands, contributed to the conditions experienced. Those queried were asked to describe their histories of physical ailments, including heart-related conditions and cancer, as well as the treatment and/or lifestyle changes they went through as a result. A series of questions addressed alcohol, tobacco, and illegal drug use, and focused on history of use, regularity of use, attempts to quit, and how the use of those substances affected respondents' physical and mental well-being. Additional questions addressed respondents' sense of control over their health, their awareness of changes in their medical conditions, commitment to regular exercise and a healthy diet, experience with menopause, the decision-making process used to deal with health concerns, experiences with nontraditional remedies or therapies, and history of attending support groups. Respondents were asked to compare their overall well-being with that of their peers and to describe social, physical, and emotional characteristics typical of adults in their 20's, 40's, and 60's. Information on the work histories of respondents and their significant others was also elicited, with items covering the nature of their occupations, work-related physical and emotional demands, and how their personal health had correlated to their jobs. An additional series of questions focusing on childhood queried respondents regarding the presence/absence of their parents, religion, rules/punishments, love/affection, physical/verbal abuse, and the quality of their relationships with their parents and siblings. Respondents were also asked to consider their personal feelings of accomplishment, desire to learn, sense of control over their lives, interests, and hopes for the future.
The Datasets previously numbered 2 and 3 have been removed to avoid redundancies, and all datasets have been renumbered. Please refer to the readme file.
Dataset 2, Twin Screener Data, provides the first national sample of twin pairs ascertained randomly via the telephone.
Dataset 3, Coded Text Responses, describes how open-ended textual responses in the MIDUS 1 Computer-Assisted Telephone Interview (CATI) and Self-Administered Questionnaire (SAQ) were transformed into categorical numeric codes. These codes are included in a stand-alone dataset containing only those cases (N=3,950) that contained text data in their responses.
Online Analysis Only: Datasets 1, 2, and 3 were merged together by the SU_ID variable to form "Merged Data with Weights (Online Analysis Only)" (Dataset 4) for online analysis capabilities.
MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.
Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)
Midlife in the United States (MIDUS 2), 2004-2006 (ICPSR 4652)
In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of 7,108 Americans aged 25 to 74 (MIDLIFE IN THE UNITED STATES (MIDUS), 1995-1996 [ICPSR 2760]). The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included twins and the siblings of main sample respondents), and its creative use of in-depth assessments in key areas (e.g., daily stress and cognitive functioning). A description of the study and findings from it are available at http://www.midus.wisc.edu. With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples: core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 925 complete pairs), and siblings (N = 950), was conducted in 2004-2006. Guiding hypotheses for it, at the most general level, were that behavioral and psychosocial factors are consequential for physical and mental health. MIDUS 2 respondents were aged 35 to 86. Data collection largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., cognitive functioning, optimism and coping, stressful life events, and caregiving). To add refinements to MIDUS 2, an African American sample (N = 592) was recruited from Milwaukee, Wisconsin, who participated in a personal interview and completed a questionnaire paralleling the above assessments. Survey data for the Milwaukee sample are available in a separate project [ICPSR 22840]. Also administered was a modified form of the mail questionnaire, via telephone, to respondents who did not complete a self-administered questionnaire.
Midlife in the United States (MIDUS 2): Biomarker Project, 2004-2009 (ICPSR 29282)
The Biomarker study is Project 4 of the Midlife in the United States (MIDUS) longitudinal study, a national survey of more than 7,000 Americans (aged 25 to 74) begun in 1994. The purpose of the larger study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. With support from the National Institute on Aging (NIA), a longitudinal follow-up of the original MIDUS samples [core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)] was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). A description of the study and findings from it are available on the MIDUS website.
The Biomarker Project (Project 4) of MIDUS 2 contains data from 1,255 respondents. These respondents include two distinct subsamples, all of whom completed the Project 1 Survey: (1) longitudinal survey sample (n = 1,054) and (2) Milwaukee sample (n = 201). The Milwaukee group contained individuals who participated in the baseline MIDUS Milwaukee study, initiated in 2005. The purpose of the Biomarker Project (Project 4) was to add comprehensive biological assessments on a subsample of MIDUS respondents, thus facilitating analyses that integrate behavioral and psychosocial factors with biology. The broad aim is to identify biopsychosocial pathways that contribute to diverse health outcomes. A further theme is to investigate protective roles that behavioral and psychosocial factors have in delaying morbidity and mortality, or in fostering resilience and recovery from health challenges once they occur. The research was not disease-specific, given that psychosocial factors have relevance across multiple health endpoints.
Biomarker data collection was carried out at three General Clinical Research Centers (at UCLA, University of Wisconsin, and Georgetown University). The biomarkers reflect functioning of the hypothalamic-pituitary-adrenal axis, the autonomic nervous system, the immune system, cardiovascular system, musculoskeletal system, antioxidants, and metabolic processes. Our specimens (fasting blood draw, 12-hour urine, saliva) allow for assessment of multiple indicators within these major systems. The protocol also included assessments by clinicians or trained staff, including vital signs, morphology, functional capacities, bone densitometry, medication usage, and a physical exam. Project staff obtained indicators of heart-rate variability, beat to beat blood pressure, respiration, and salivary cortisol assessments during an experimental protocol that included both a cognitive and orthostatic challenge. Finally, to augment the self-reported data collected in Project 1, participants completed a medical history, self-administered questionnaire, and self-reported sleep assessments. For respondents at one site (UW-Madison), objective sleep assessments were also obtained with an Actiwatch(R) activity monitor.
Midlife in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840)
Midlife in the United States (MIDUS 3), 2013-2014 (ICPSR 36346)
In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu
With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.
In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.
MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.
Midlife in the United States (MIDUS 3): Biomarker Project, 2017-2022 (ICPSR 38837)
The Biomarker Project is one of multiple projects that comprise the MIDUS 3 (M3) "Integrative Pathways to Health and Illness" study. For the past two decades, the overarching objective of MIDUS has been to investigate linkages between sociodemographic, psychosocial, behavioral, and neurobiological variables to account for unfolding profiles of morbidity and mortality across the decades of adult life as well as the maintenance of good health and functional capacities. The study has facilitated analyses that pay attention simultaneously to age, gender, race, and socioeconomic variation in how psychosocial and neurobiological variables are linked. In addition, the M3 data permit longitudinal assessment of the impact of ongoing historical events, such as the 2008 economic recession, on the health of diverse-aged adults, which was also included in the MIDUS Refresher 1 (MR1) assessments. M3 included recruitment of additional twins to facilitate genomic analysis.
The M3 Biomarker Project (P4) includes assessment of multiple indicators of physiological regulation/dysregulation and health according to the basic protocol implemented in the MR1 study, which repeated and expanded the M2 biomarker protocol. The M3 protocol included bone density and body composition assessments at all sites and expansion of Actigraphy, Ankle Brachial Index (ABI) and Gait assessments to all three sites. Data were collected during a 24-hour stay at one of three Clinical Research Units (CRU).
Midlife in the United States (MIDUS 3): Daily Diary Project, 2017-2019 (ICPSR 38529)
Midlife in the United States (MIDUS 3): Milwaukee African American Sample, 2016-2017 (ICPSR 37120)
In 2005, 592 African Americans from Milwaukee were added to the MIDUS sample to examine health issues in minority populations (for more details, see Midlife in the United States (MIDUS 2): Milwaukee African American Sample [ICPSR #22840]). Respondents were interviewed in their homes using a Computer Assisted Personal Interview (CAPI) survey protocol and asked to complete and return a Self-Administered Questionnaire (SAQ). Afterwards these individuals were eligible for participation in the same research protocol as the national MIDUS 2 sample, including cognitive, daily stress, biomarker, and neuroscience projects.
With support from the National Institute on Aging, a second wave of survey data collection on the Milwaukee sample was begun in 2016. The survey consisted of a 2.5 hour CAPI interview followed by a 45-page mailed SAQ. CAPI survey data was collected for 389 individuals, realizing a 78 percent response rate, adjusted for mortality and other eligibility criteria. Data collection for this follow-up wave largely repeated baseline assessments, with additional questions in selected areas (e.g., economic recession experiences, childhood experience with race, etc.). Following successful completion of the CAPI and SAQ protocols, individuals were eligible for participation in cognitive, daily stress, biomarker, and neuroscience projects.
Midlife in the United States (MIDUS 3): Neuroscience Project, 2017-2022 (ICPSR 38862)
From 2004-2009, an initial follow-up of the original Midlife Development in the United States samples (MIDUS 2) was conducted with expansion of the protocol to include Neuroscience Project data collection and a sample of Black Americans from Milwaukee, WI. The MIDUS Neuroscience Project performed a second follow-up from 2017-2022 of the MIDUS Main and Milwaukee samples (MIDUS 3) on a subsample of those who completed the MIDUS 3 Survey and Biomarker Projects.
The goal was to examine indices of brain aging, function, and structure with a focus on the brain circuitry associated with individual differences in affective style, and to characterize the peripheral consequences of these central profiles for biological systems that may be relevant to health. The primary aims were to: (1) characterize individual differences in emotional reactivity, recovery, and sustaining processes using corrugator and zygomatic electromyography and eyeblink startle magnitude, (2) characterize individual differences in brain morphology and connectivity using structural magnetic resonance imaging (MRI) and diffusion weighted imaging (DWI) (3) characterize individual differences in functional activity within the neural circuitry of emotion using task and resting state fMRI, (4) calculate brain age, and (5) test the ability of these indices to predict the comprehensive array of health, wellbeing, cognitive, psychological, social, and life challenge factors assessed in other MIDUS projects. To probe individual differences in emotional processes, psychophysiological and fMRI measures of emotional responses to the presentation of negative, positive, and neutral pictures, and these same measures during a post-picture period were examined.
Emotion-influenced memory was assessed at both the psychophysiological and imaging sessions: (1) Free recall of the presented affective pictures at the end of the psychophysiological session. (2) Memory and likeability ratings for neutral faces paired with the affective pictures in the imaging task. Finally, selected tasks from the CANTAB assessed affective biases and cognitive processes important for emotion regulation.
Midlife in the United States (MIDUS): Boston Longitudinal Study (BOLOS) of Cognition in Midlife, 1995-2008 (ICPSR 3596)
This survey of adult management tasks began in 1995 as part of a larger national project (MIDUS) to investigate the patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Conducted in Boston, the survey was designed to examine how adults manage tasks in three domains of life -- work, family, and health. Further goals were to describe the subjective experience of goal attainment in midlife and to link it with objective measures of short-term longitudinal changes and cognitive functioning. During the national study, the Boston area was intentionally oversampled in order to create a subset to be used for in-depth study of management processes in midlife.
The Boston study began six months after the national study, and consisted of three interviews: a 30-minute phone interview followed by a 20-minute mail questionnaire (Time 1), a 90-minute in-person combination of cognitive tests, cortisol testing, photograph taking, and interview (Time 2), and a 30-minute phone interview (Time 3), conducted at six-month intervals. The focus was on projects related to family, work, and health that participants were working on during the period of the study. Each successive interview investigated participants' assessments of their progress in the present, recollection of six months in the past, and prediction six months into the future. Two waves of data collection were completed for this study. There were 151 respondents who participated in the first wave, 151 respondents who participated in both waves, and 26 additional respondents who participated in the second wave of data collection.
At Time 1, participants generated a list of two important family, work, and health tasks, then chose one of each as the most important in that domain. For each of the most important tasks, questions were asked about deadlines, whether participants were doing tasks because they had to do them, felt that they should do them, or chose to do them, and whether participants were doing tasks for themselves, others, or both. All six projects were ranked according to importance, and participants divided all their time into percentages spent on family, work, and health. The majority of questions on the mail questionnaire at Time 1 were taken from the Midlife Development Inventory (MIDI), the instrument created for the national study.
Respondents were asked to rate their control over health, to make assessments about present, past, and future health, to list any serious illnesses, and to indicate their physical health status. Study participants also rated their mental health, and discussed stressful life events in the last six months for self, spouse/significant other, parents, and children. Other questions focused on depression, mastery and constraints, community involvement, family, work, and life satisfaction. Scales used included the Ryff Well-Being Scales, the Eysenck Personality Inventory, the Staudinger and Baltes Wisdom Scale (1995), and the Ways of Coping Scale.
Time 2 was done in-person, and included a 50-minute series of cognitive tests followed by a 40-minute interview. The cognitive testing consisted of nine measures of cognitive ability completed in the following order: WAIS Forward Digit Span, WAIS Backward Digit Span, WAIS Vocabulary, counting backwards test, letter comparison test, dual-task test involving the counting backwards and letter comparison tests, WAIS Digit Symbol, Schaie-Thurston Letter Series, and Raven's Advanced Progressive Ma Matrices.
The Time 2 interview began with a series of questions asking about each of the family, work, and health tasks elicited from the participants in Time 1. Many questions were repeated from the MIDI including rating physical health, family life, work situation, and life overall, rating physical and mental health from poor to excellent, and a measure of stressful life events in the last six months for self, spouse/significant other, parents, and children. Participants were asked to rate how old they felt and how old they looked and to indicate their total yearly household income. Lastly, a series of open-ended questions asked about best and worst aspects of family, work, and health, how participants managed their daily life, the most challenging aspect of life and how it was managed, and what participants found most helpful in carrying out their daily life. Photographs were taken of participants at the conclusion of the interview.
Time 3 asked again about each of the most important family, work, and health tasks elicited from the participants in Time 1. Newly developed questions asked participants about ideas related to middle age, including when the participant believed middle age begins and ends, whether the participant was younger than, in, or older than middle age, the biggest changes in middle age, the best and worst aspects of middle age, whether the participant knew anyone who had had a "midlife crisis," and whether he or she would have or had had a midlife crisis. Participants were asked to rate how often they had problems and how often things went well with respect to a list of 26 domains, and how much stress and how much control they had in these domains. Lastly, participants were asked whether they had ever returned to a degree-oriented educational program after being out of school for five or more years, whether they were presently taking classes to further their education, and whether being a participant in the study had influenced the ways they thought about their family, work, and health projects.
Midlife in the United States (MIDUS): Psychological Experiences Follow-Up Study, 1998 (ICPSR 2911)
Midlife in the United States (MIDUS Refresher 1), 2011-2014 (ICPSR 36532)
In 2011-2014, the MIDUS Refresher study recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey [ICPSR 2760]. The MIDUS Refresher survey employed the same comprehensive assessments as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09.
The MIDUS Refresher collection is split into two datasets: Aggregate Data and Coded Text Data. The Coded Text Dataset provides coded responses to open-ended question items in the Aggregate Dataset. The survey data collection (Project 1) [MIDUS, ICPSR 2760] consisted of a 30-minute phone interview followed by two 50-page mailed self-administered questionnaires. Survey data were collected on demographic, psycho-social, and physical and mental health information. This new crosssectional MIDUS sample allows the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. A further objective of the MIDUS Refresher sample was to strengthen cross-project analyses in MIDUS by increasing the sample sizes available for testing hypotheses dealing with the interplay of key factors (e.g., socioeconomic status, gender, psychosocial factors, biological factors) in mid- and laterlife health. To that end, the MIDUS Refresher sample followed the same multi-disciplinary protocol established in the main MIDUS sample, in that after completing the survey protocol respondents were asked to complete a cognitive assessment by phone (Project 3) [MIDUS 3, ICPSR 36346] and later became eligible to participate in daily diary assessments (Project 2) [MIDUS 2, ICPSR 4652] biomarker assessments (Project 4) [MIDUS 2: Biomarker Project, ICPSR 29282] and neuroscience assessments (Project 5) [MIDUS 2: Neuroscience Project, ICPSR 28683].
The MIDUS Refresher was funded by the National Institute on Aging as two separate but related efforts: The MIDUS Refresher younger decades (MRY), was fielded in November, 2011, and recruited over 2,100 new participants aged 25 to 54; Funding was later added for the MIDUS Refresher older decades (MRO), which was fielded in June, 2013 and recruited over 1,400 new participants aged 55 to 74.
Demographic variables include age, sex, gender, race, religion, and marital status.
Midlife in the United States (MIDUS Refresher 1): Cognitive Project, 2011-2014 (ICPSR 37081)
The Midlife in the United States (MIDUS Refresher): Cognitive Project, 2011-2014 collection includes data collected as part of the MIDUS Refresher study. The MIDUS Refresher study (2011-2014, ICPSR 36532) recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey (ICPSR 2760). Participants in the MIDUS Refresher survey were recruited for the Brief Test of Adult Cognition via Telephone (BTACT) interview. All recruited participants who completed the initial telephone interview were invited to complete the questionnaires, and, whether or not they returned the questionnaires, were invited to participate in the Cognitive Interview. In addition to the national MIDUS Refresher sample, respondents to the MIDUS Milwaukee Refresher sample (see ICPSR 36722) were also eligible to participate in the BTACT interview. From February, 2012, through September, 2014, respondents completed the cognitive interview. For the Cognitive Project MIDUS Refresher BTACT data were collected from 2,763 MIDUS Refresher participants.
The BTACT is the first comprehensive cognitive battery--including measures of speed and reaction time--to be administered by telephone to a national sample across the adult years and into later life. It includes seven subtests: word list recall immediate, word list recall delayed, backward digit span, number series, counting backward speed task, category fluency, and an attention switching reaction time task. The Refresher cognitive project provides a rich data set to examine individual differences in cognitive functioning with a diverse national sample in terms of age, sex, socioeconomic status (income, education) and geographical region.
Demographic variables in this collection include sex and age
Midlife in the United States (MIDUS Refresher 1): Daily Diary Project, 2012-2014 (ICPSR 37083)
The MIDUS Refresher Daily Diary Project (aka National Study of Daily Experiences or NSDE) contains data from 782 respondents. The purpose of the Daily Stress Project was to examine how sociodemographic factors, health status, personality characteristics, and genetic endowment modify patterns of change in exposure to day-to-day life stressors as well as physical and emotional reactivity to these stressors.
The primary aims were:
- To describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood;
- To examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors;
- To investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and
- To explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood.
The Daily Diary study is comprised of a subsample of the MIDUS (Midlife in the United States) Refresher, a national survey of nearly 3,600 Americans (aged 25 to 75) conducted during 2011-2014. The MIDUS Refresher survey was designed to replenish the original MIDUS 1 baseline cohort and allow the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental).
Demographic variables in this collection include sex and age.
Midlife in the United States (MIDUS Refresher 1): Milwaukee African American Sample, 2012-2013 (ICPSR 36722)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the Midlife Development in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840). This sample was also designed to increase the number of racial minorities included in the broader MIDUS study. The MIDUS Milwaukee Refresher survey employed the same assessments (demographic, psycho-social, and physical and mental health) as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09. A sample of African Americans from Milwaukee County, Wisconsin, was stratified by age, gender, and income.
Area probability sampling methods were used to identify potential respondents. Field interviewers screened households to determine if they contained any African American adults. There was additional screening to achieve an appropriate age/gender distribution in a manner similar to what was done for the original MIDUS sample (Midlife in the United States (MIDUS 1), 1995-1996 [ICPSR 2760]). Milwaukee respondents were interviewed in their homes using a 2.5-hour Computer Assisted Personal Interview (CAPI) protocol and afterwards asked to complete a self-administered questionnaire (SAQ). All measures paralleled those used in the larger MIDUS samples. In addition to successful completion of the survey, participants were asked to complete a cognitive assessment by phone. Some respondents were eligible to participate in additional MIDUS projects: daily diary assessments, biomarker assessments, and neuroscience assessments.
Midlife in the United States (MIDUS Refresher 2), 2022-2024 (ICPSR 39670)
In 2011-2014, the MIDUS Refresher study recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the age groups of the MIDUS 1 baseline survey in 1995. The MIDUS Refresher survey employed the same comprehensive assessments as existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09. Survey data were collected on demographic, psychosocial, and health and well-being information.
In 2022-2024, the second wave of survey data (MIDUS Refresher 2) was collected on longitudinal participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher 1 data with the post-pandemic MIDUS Refresher 2 data. Further, the longitudinal MIDUS Refresher datasets (Wave 1 and Wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being across various population groups in the U.S.
Midlife in the United States (MIDUS Refresher 2): Milwaukee African American Sample, 2023-2024 (ICPSR 39583)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the original MIDUS Milwaukee 1 survey that was designed to increase the number of racial minorities in 2005. The MIDUS Milwaukee Refresher survey employed the same comprehensive assessments (demographic, psycho-social, and physical and mental health) as those on the existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09.
In 2023-2024, the second wave of survey data was collected from 327 longitudinal Refresher Milwaukee participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS Refresher Milwaukee data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher Milwaukee 1 data with the post-pandemic MIDUS Refresher Milwaukee 2 data. Further, the longitudinal MIDUS Refresher datasets (wave 1 and wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being.
Midlife in the United States (MIDUS): Survey of Minority Groups [Chicago and New York City], 1995-1996 (ICPSR 2856)
National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2008 [Restricted Use] (ICPSR 35249)
National Survey of Black Americans, 1979-1980 (ICPSR 8512)
National Survey of Black Americans, Waves 1-4, 1979-1980, 1987-1988, 1988-1989, 1992 (ICPSR 6668)
National Survey of Families and Households, Wave 2: 1992-1994, [United States] (ICPSR 6906)
The National Survey of Families and Households (NSFH), Wave 2 1992-1994, a longitudinal population-based survey of families and households in the United States, investigates the causes and consequences of changes in American family and household structure. This is the second wave of a three part survey. The current study, NSFH Wave 2, is the second follow up and was conducted in 1992-1994. The sample included all NSFH Wave 1 main respondents and spouse/partner with focal children and all other NSFH Wave 1 main respondents ages 45 and over in 2000, as well as their NSFH Wave 1 spouse/partner.
The Wave 2 survey included the following components: (1) an interview of all surviving members of the original sample via face-to-face personal interview, (2) a personal interview with the current spouse or cohabiting partner almost identical to the interview with the main respondent, (3) a personal interview with the original spouse or partner of the primary respondent in cases where this relationship had ended, (4) a telephone interview with "focal children" who were originally aged 13-18 in Wave 1, (5) a short telephone interview with "focal children" who were originally aged 5-12 in Wave 1, (6) short proxy interviews with a surviving spouse or other relative in cases where the original respondent had died or was too ill to interview, and (7) a telephone interview with a randomly-selected parent of the main respondent. Demographic information collected includes sex, age, marital status, education, and employment
National Survey of Families and Households, Wave 3: 2001-2003, [United States] (ICPSR 171)
National Survey of the Japanese Elderly, 1987 (ICPSR 6842)
National Survey of the Japanese Elderly, 1990 (ICPSR 3407)
National Survey of the Japanese Elderly, 1993 (ICPSR 4145)
National Survey of the Japanese Elderly, 1996 (ICPSR 26621)
Quality of American Life, 1971 (ICPSR 3508)
RAND Survey of Compensation for Accidental Injuries in the United States, August 1987-August 1988 (ICPSR 3084)
Religion, Aging, and Health Survey, 2001, 2004 [United States] (ICPSR 3255)
Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001 (ICPSR 3253)
Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)
Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354)
Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006 (ICPSR 3792)
The Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, 2000 and 2006, provides information regarding the health and well-being of older persons in Taiwan. Taiwan has undergone rapid demographic, social, and economic changes, becoming a highly urbanized and industrial society with a growing population of persons age 65 or older. SEBAS explores the relationship between life challenges and mental and physical health, the impact of social environment on the health and well-being of the elderly, as well as biological markers of health and stress. The study collected self-reports of physical, psychological, and social well-being, plus extensive clinical data based on medical examinations and laboratory analyses. Examination of health outcomes included chronic illnesses, functional status, psychological well-being, and cognitive function. Questions regarding life challenges focused on perceived stress, economic difficulties, security and safety, and the consequences of a major earthquake. Biological markers were used to identify cardiovascular risk factors, metabolic process measures, immune-system activity, the hypothalamic-pituitary adrenal axis, and sympathetic nervous system activity. Two rounds of biomarker data collected in 2000 and 2006 were complemented by face-to-face interviews with the participants. Demographic and background variables included age, sex, education, ethnicity, occupation, and residency.
Additional information about the Social Environment and Biomarkers of Aging Study can be found at the Georgetown University Center for Populations and Health Web site.
A Webinar describing the Social Environment and Biomarkers of Aging Study (SEBAS) was presented June 20, 2016. All interested users can access the webinar here.
Stroke Recovery in Underserved Populations 2005-2006 [United States] (ICPSR 36422)
The Stroke Recovery in Underserved Populations 2005-2006 study was created to address the National Institute on Aging (NIA) Request For Application entitled "Research on Mind-Body Interactions and Health" (RFA OD-03-008). It addressed the NIA interest in "the impact of optimism, happiness, or a positive attitude on well-being and health; and social functioning and health." The study examined how positive emotion (e.g., joy, gratitude, love, contentment) and social networks independently and interactively contribute to recovery of functional status after stroke within two underserved groups. The specific study aims were to:
- Examine recovery of functional status (motor and cognitive function), for White, African American and Hispanic persons with stroke discharged from rehabilitation facilities
- Examine the contributions of positive emotion and social networks on recovery of functional status (motor and cognitive function), for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities; and
- Examine the interaction between positive emotion and social networks on recovery of functional status (motor and cognitive function) for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities.
The data were collected by the IT Health Track at four time points: at admission and discharge from rehabilitation facility, and 80-180 days and 365-425 days after discharge. These data emphasize recovery of motor and cognitive functional status, positive emotion, and social networks
The dataset contains 226 variables and 1219 cases from 11 rehabilitation facilities across the United States.
Survey of Midlife in Japan (MIDJA 2), May-October 2012 (ICPSR 36427)
In 2008, with funding from the National Institute on Aging (NIA), baseline survey data for the Survey of Midlife in Japan (MIDJA), April-September 2008 were collected from a probability sample of Japanese adults (N=1,027) aged 30 to 79 from the Tokyo metropolitan area (ICPSR 30822). In 2009-2010 biomarker data was obtained from a subset of these cases (ICPSR 34969).
The survey and biomarker measures obtained parallel those in a national longitudinal sample of Americans known as Midlife in the United States or MIDUS (ICPSR 2760: MIDUS 1 and ICPSR 4652: MIDUS 2). The central objective was to compare the Japanese sample (MIDJA) with the United States sample (MIDUS) to test hypotheses about the role of psychosocial factors in the health (broadly defined) of mid- and later-life adults in Japan and the United States.
In 2012, with additional support from NIA, a longitudinal follow-up of the MIDJA sample was completed. The data collection for this second wave (N=657) largely repeated the baseline assessments. The goal of the follow-up wave was to conduct comparisons of longitudinal data available from the Japanese sample (MIDJA) and the United States sample (MIDUS) to test the hypothesis about the role of psychosocial factors in predicting health changes (including biomarkers) in both cultural contexts. Cultural influences on age differences in health and well-being were also of interest.
Demographic and background information included gender, age, education, marital status, household composition, and income.