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Chicago Community Adult Health Study, 2001-2003 (ICPSR 31142)

Released/updated on: 2012-07-11

Geographic coverage: United States, Chicago, Illinois

Time period: 2001-01-01--2003-01-01

The Chicago Community Adult Health Study (CCAHS) consists of four interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop (Milgram et al. 1965) as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods (PHDCN) in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NCs). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. The CCAHS is the largest of five projects under the NIH-funded Michigan Interdisciplinary Center on Social Inequalities, Mind and Body Mind (#P50HD38986), one of five Mind-Body Centers funded by the National Institutes of Health in late 1999. This study will advance the understanding of socioeconomic and racial/ethnic disparities in health, a major priority of the Public Health Service and the National Institutes of Health.

The PI-supplied summary mentions that the study is comprised of four components. However, for the purposes of this data release there are three distinct datasets. Demographic variables include age, birth year, race, ethnicity, number of children in the household, number of children living elsewhere, number of times the respondent has been married, and relationship status, religious preference, and sex.

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Midlife in the United States (MIDUS): Survey of Minority Groups [Chicago and New York City], 1995-1996 (ICPSR 2856)

Released/updated on: 2018-03-21

Geographic coverage: New York City, United States, Chicago, Illinois, New York (state)

Time period: 1995-01-01--1996-01-01

This survey of minority groups was part of a larger project to investigate the patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Conducted in Chicago and New York City, the survey was designed to assess the well-being of middle-aged, urban, ethnic minority adults living in both hyper-segregated neighborhoods and in areas with lower concentrations of minorities. Respondents' views were sought on issues relevant to quality of life, including health, childhood and family background, religion, race and ethnicity, personal beliefs, work experiences, marital and close relationships, financial situation, children, community involvement, and neighborhood characteristics. Questions on health explored the respondents' physical and emotional well-being, past and future attitudes toward health, physical limitations, energy level and appetite, amount of time spent worrying about health, and physical reactions to those worries. Questions about childhood and family background elicited information on family structure, the role of the parents with regard to child rearing, parental education, employment status, and supervisory responsibilities at work, the family financial situation including experiences with the welfare system, relationships with siblings, and whether as a child the respondent slept in the same bed as a parent or adult relative. Questions on religion covered religious preference, whether it is good to explore different religious teachings, and the role of religion in daily decision-making. Questions about race and ethnicity investigated respondents' backgrounds and experiences as minorities, including whether respondents preferred to be with people of the same racial group, how important they thought it was to marry within one's racial or ethnic group, citizenship, reasons for moving to the United States and the challenges faced since their arrival, their native language, how they would rate the work ethic of certain ethnic groups, their views on race relations, and their experiences with discrimination. Questions on personal beliefs probed for respondents' satisfaction with life and confidence in their opinions. Respondents were asked whether they had control over changing their life or their personality, and what age they viewed as the ideal age. They also rated people in their late 20s in the areas of physical health, contribution to the welfare and well-being of others, marriage and close relationships, relationships with their children, work situation, and financial situation. Questions on work experiences covered respondents' employment status, employment history, future employment goals, number of hours worked weekly, number of nights away from home due to work, exposure to the risk of accident or injury, relationships with coworkers and supervisors, work-related stress, and experience with discrimination in the workplace. A series of questions was posed on marriage and close relationships, including marital status, quality and length of relationships, whether the respondent had control over his or her relationships, and spouse/partner's education, physical and mental health, employment status, and work schedule. Questions on finance explored respondents' financial situation, financial planning, household income, retirement plans, insurance coverage, and whether the household had enough money. Questions on children included the number of children in the household, quality of respondents' relationships with their children, prospects for their children's future, child care coverage, and whether respondents had changed their work schedules to accommodate a child's illness. Additional topics focused on children's identification with their culture, their relationships with friends of different backgrounds, and their experiences with racism. Community involvement was another area of investigation, with items on respondents' role in child-rearing, participation on a jury, voting behavior, involvement in charitable organizations, volunteer experiences, whether they made monetary or clothing donations, and experiences living in an institutional setting or being homeless. Respondents were also queried about their neighborhoods, with items on neighborhood problems including racism, vandalism, crime, drugs, poor schools, teenage pregnancy, the existence of social networks, the frequency of contact with family members, social interaction with neighbors, sense of community, whether the respondent owned or rented their home, and the financial, legal, and medical problems of family members. A final set of questions sought respondents' assessments of their life and their expectations for the future. Additional background information on respondents includes age, ethnicity, and gender.

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National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)

Released/updated on: 2026-03-03

Geographic coverage: United States

Time period: 1994-01-01--2025-01-01

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

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Pathways to Adulthood: A Three-Generation Urban Study, 1960-1994: [Baltimore, Maryland] (ICPSR 2420)

Released/updated on: 2019-11-26

Geographic coverage: Baltimore, United States, Maryland

Time period: 1960-01-01--1994-01-01

This collection incorporates both prospective and retrospective data on three generations of families initially living in inner-city Baltimore, Maryland. The prospective data were selected from data collected as part of the Johns Hopkins Collaborative Perinatal Study (JHCPS), a survey of pregnant women seeking prenatal care and delivery at Johns Hopkins Hospital during 1960-1964. JHCPS studied these women (the first-generation mothers, abbreviated as G1) and the children born to them during 1960-1965 (the second-generation children, abbreviated as G2) until the children were 8 years old. The retrospective data come from a follow-up study, conducted in 1992-1994, of G1, G2, and the children born to G2 (the third-generation children, abbreviated as G3). Data from JHCPS on G1 include obstetrical and reproductive history at registration for prenatal care, sociological/family history variables at or around delivery of G2, observations of mother with child when G2 was 4 months old and 8 months old, and family history, demographic, and sociological variables when G2 was age 7. For G2, the data from JHCPS include delivery room observations at birth, pediatric examination data at age 4 months, developmental evaluation data at age 8 months, pediatric-neurological examination data at age 12 months, language, hearing, and speech evaluation summary data at age 36 months, psychological, behavior profile, physical growth, and other tests at age 48 months, psychological, motor, behavior, neurological, vision, physical, and other tests at age 7-1/2 years, and language, hearing, and speech evaluations, physical growth, interval medical history, and other tests at age 8 years. Retrospective data from the follow-up study on G1 include variables on education, employment, family composition, health and health care usage, housing conditions, income and income sources, marital status, partnerships and changes, neighborhood characteristics at registration to JHCPS and current, and reproductive history. For G2, data from the follow-up include information on aspirations, education, schooling, employment, family composition, health and health care usage, housing conditions, income and income sources, legal problems, living arrangements, marriage, partnership and changes, neighborhood characteristics at birth, at ages 11/12 and 16/17, and current, reproductive history, social relationships, smoking, and substance abuse. Data for the assessed third-generation children, i.e., G3s who were 7-8 years old during the follow-up period, include information on cognitive development, academic achievement and behavior, prenatal care, health, day care, and parental aspirations.

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Survey of Community, Crime, and Health, 1995, 1998 [United States] (ICPSR 4381)

Released/updated on: 2010-09-21

Geographic coverage: United States, Illinois

The Survey of Community, Crime, and Health (CCH) was conducted in 1995 and 1998 in Illinois to examine the relationship between neighborhood disadvantage and physical and mental health, (over and above individual socio-economic characteristics), in order to develop a measure of perceived neighborhood disorder and to explore its role in explaining that relationship. Interviews were conducted with 2,482 respondents and covered topics such as physical health, mental health, health behaviors, use of services, and sense of control. Also examined were social support, perceived neighborhood characteristics, neighborhood social support, and personal and household demographics. In addition to individual-level variables, Wave I of the CCH contains a number of community-level variables that were created from the 1990 STF Census data. Variable names starting with T are tract-level, variables starting with C are county-level, and variables starting with P are city-level.