Showing 1 – 5 of 5 results.
Curated
Chronic Illness and Caregiving, 2000: [United States] (ICPSR 3402)
Released/updated on: 2024-02-14
Geographic coverage: United States
The objective of this survey, which interviewed individuals from the general public, chronically ill persons, and informal caregivers, was threefold: (1) to assess public awareness of chronic care issues and the level of support for chronic care policy initiatives, (2) to examine experiences and needs of chronically ill Americans concerning health care and other assistance, and (3) to evaluate experiences and needs of informal caregivers. Questions to the general public addressed awareness of the availability of supportive and housing services for the chronically ill, knowledge about coverage for long-term care, concerns about the future of the chronic care delivery system, support for policy initiatives such as tax credits for the chronically ill and caregivers, and support for a policy that would ensure pharmaceutical coverage in Medicare. Chronically ill interviewees responded to questions about access to and experience with chronic care and other health care services, experiences with and needs for clinical services coordination, experiences with and needs for social supports and interventions, and adjustment skills and knowledge (e.g., what were their needs for learning how to live with chronic conditions). Questions for informal caregivers focused on experiences with caregiving (e.g., for whom they provided care, how many hours they devoted to caregiving per week, and living arrangements), balance between caregiving and other areas of their lives, experiences with and needs for respite care, and availability of social supports for caregivers.
Curated
Epidemiologic Catchment Area Study, 1980-1985: [United States] (ICPSR 6153)
Released/updated on: 1994-05-20
Geographic coverage: United States
Time period: 1980-01-01--1985-01-01
The Epidemiologic Catchment Area (ECA) program of research was initiated in response to the 1977 report of the President's Commission on Mental Health. The purpose was to collect data on the prevalence and incidence of mental disorders and on the use of and need for services by the mentally ill. Independent research teams at five universities (Yale University, Johns Hopkins University, Washington University, Duke University, and University of California at Los Angeles), in collaboration with the National Institute for Mental Health, conducted the studies with a core of common questions and sample characteristics. The sites were areas that had previously been designated as Community Mental Health Center catchment areas: New Haven, Connecticut, Baltimore, Maryland, St. Louis, Missouri, Durham, North Carolina, and Los Angeles, California. Each site sampled over 3,000 community residents and 500 residents of institutions, yielding 20,861 respondents overall. The longitudinal ECA design incorporated two waves of personal interviews administered one year apart and a brief telephone interview in between (for the household sample). The diagnostic interview used in the ECA was the NIMH Diagnostic Interview Schedule (DIS), Version III (with the exception of the Yale Wave I survey, which used Version II). Diagnoses were categorized according to the DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS, 3rd Edition (DSM-III). Diagnoses derived from the DIS include manic episode, dysthymia, bipolar disorder, single episode major depression, recurrent major depression, atypical bipolar disorder, alcohol abuse or dependence, drug abuse or dependence, schizophrenia, schizophreniform, obsessive compulsive disorder, phobia, somatization, panic, antisocial personality, and anorexia nervosa. The DIS uses the Mini-Mental State Examination (MMSE), which measures cognitive functioning, as an indirect measure of the DSM-III Organic Mental Disorders. In the ECA survey, this diagnosis is called cognitive impairment.
Curated
National Survey of Institutionalized Persons, 1976 (ICPSR 7866)
Released/updated on: 1992-02-16
Geographic coverage: United States
This data collection was designed to obtain information about the services and resources of the various types of long-term care facilities in the United States, i.e., chronic care institutions (providing care for people with chronic conditions, diseases, and handicaps), institutions that provide care for the mentally ill and mentally handicapped, nursing homes, homes for the aged, and residential schools and treatments centers. Six major areas of concern were examined in this study: (1) the appropriateness of placement/admission and discharge, plus possible alternatives, (2) the quality of life within the institutional environment, (3) the residents' rights and legal status, (4) the medical and non-medical services provided and needed, (5) the sources of financing such care, and (6) the impact of government programs and policies upon the costs and provision of certain types of service. This information was collected from 9,090 residents of 851 institutions and from 3,289 of their family members. Administrative staff at each resident's facility also provided information about that facility as well as the sampled resident. Data about the resident's institution include its basic characteristics, e.g., type of care provided, ownership, number of beds, occupancy rate, and services and programs offered. Resident data include basic social and demographic characteristics, reason for institutionalization, cost of care, current activities, type of treatment, and the physical limitations of the institutional population. Family data examine the next of kin's relationship to the resident, e.g., relative's proximity to the institution, frequency of visits, and monetary contributions to the resident, as well as the next of kin's demographic characteristics and views of the resident and his or her institutionalization.
Curated
National Survey of Problems Facing Elderly Americans Living Alone, 1986 (ICPSR 9379)
Released/updated on: 1992-03-05
Geographic coverage: United States
Time period: 1986-06-01--1986-07-01
This survey was designed to obtain a clear picture of the resources, problems, needs, and preferences of the eight million elderly Americans who live alone. The questions cover not only living arrangements and demographic information, but also economic well-being, health, health care, health insurance, difficulties and fears, need for help, obtaining help, and opinions on policies that have been proposed on the behalf of the elderly. The living arrangements of those in the sample fell into three categories: approximately 30 percent lived alone, 54 percent lived with spouses, and 16 percent lived with children or others. The sample included 903 widowed women over age 65. Comparable data on a Hispanic American sample, who were interviewed with the same questionnaire, are available in NATIONAL SURVEY OF HISPANIC ELDERLY LIVING ALONE, 1988 (ICPSR 9289).
Curated
Restricted
Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997 (ICPSR 2623)
Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts, Springfield
This two-wave longitudinal survey of persons with disabilities in Springfield, Massachusetts, had four research objectives: (1) to determine levels of formal and informal service use among people with disabilities in Springfield, (2) to determine the prevalence and consequences of unmet needs for assistance with activities of daily living (ADLs) and instrumental activities of daily living (IADLs), (3) to test the hypothesis that residents reporting unmet needs for assistance with daily living activities at baseline would have higher levels of emergency room use and hospitalization over the follow-up period than respondents not reporting such needs, and (4) to assess respondents' satisfaction with access to and quality of their health care and health care providers. Conducted in 1993-1994 and 1996-1997, the survey gathered information on health, health service utilization, satisfaction with health services, assistance with ADLs (eating, dressing, bathing, toileting, transferring in and out of bed/chair, and moving around indoors) and IADLs (preparing meals, shopping for groceries and household supplies, housekeeping, transportation, and financial management), social and physical activity, social support, health care coverage, and sociodemographic characteristics such as income, year of birth, marital status, race, Hispanic origin, religion, education, and employment.