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Cancer Surveillance and Epidemiology in the United States and Puerto Rico, 1973-1977 (ICPSR 8001)

Released/updated on: 1993-02-11
Geographic coverage: Puerto Rico, United States
Time period: 1973-01-01--1977-12-31
This dataset was produced as part of the Surveillance, Epidemiology, and End Results (SEER) Program to monitor the incidence of cancer and cancer survival rates in the United States, thus carrying out the mandates of the National Cancer Act. The SEER Program had several objectives: to estimate the annual cancer incidence in the United States, to examine trends in cancer patient survival, to identify cancer etiologic factors, and to monitor trends in the incidence of cancer in selected geographic areas with respect to demographic and social characteristics. Data collection began in 1973, and by 1977 had a population base of 11 geographic areas in the United States and Puerto Rico. SEER variables include patient demographic information (age, sex, race, birthplace, marital status, census tract) and information on cancer, which was gathered from hospitals, clinics, private laboratories, private practitioners, nursing/convalescent homes, autopsies, and death certificates. The medical data cover histologic type, anatomic site, laterality, multiplicity within primary site at first diagnosis, diagnostic procedures, diagnostic confirmation, sequence of the tumor, extent of the disease, treatment of the lesion, and outcome.
Curated
Simple Crosstabs

Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 10, 2020-2021 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 39219)

Released/updated on: 2025-02-18
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2020-01-01--2021-07-06

The Hispanic EPESE provides data on risk factors for mortality and morbidity in older Mexican Americans in order to contrast how these factors operate differently than in non-Hispanic Whites, African Americans, and other major ethnic groups.

The Wave 10 dataset comprises the ninth follow-up of the baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five Southwestern states of Arizona, California, Colorado, New Mexico, and Texas.

The public-use data covers demographic characteristics (age, sex, type of Hispanic ethnicity, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health behaviors, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups allow examination of the predictors of mortality, changes in health outcomes, institutionalization, changes in living arrangements, as well as changes in life situations and quality of life.

During this 10th Wave, 131 re-interviews were conducted either in person or by proxy, with 77 of the original respondents interviewed in 1993-1994. This Wave also includes 54 re-interviews from the 902 new respondents added at Wave 5 in 2004-2005. All respondents were aged 90 and over at Wave 10.

The wave 10, was conducted over 2020 and 2021 and consisted of two components, a pre-COVID in-person component and a post-COVID telephone component to the informant only. The pre-COVID in-person interviews were conducted from January 1, 2020 to March 17, 2020 (N=131 respondents; N=122 informants). In March 2020, the in-person interviews were suspended due to the COVID-19 pandemic. From April 1, 2021 to July 1, 2021, telephone interviews were conducted only with informants (n = 101). The study team collected information on health, function, social situation, finances, and general well-being of the older Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. In Wave 10, during the telephone interviews conducted with the informant, the study team collected information related to their experiences during the first year of the COVID-19 pandemic and their contemporary experiences around the time of widespread vaccine availability in the United States.

Curated

Historical Urban Ecological Data, 1830-1930 (ICPSR 35617)

Released/updated on: 2015-11-16
Geographic coverage: United States, Chicago, Cincinnati, Brooklyn, New York (state), Pennsylvania, New York City, Baltimore, Illinois, Massachusetts, Ohio, Manhattan (New York City), Maryland, Philadelphia, Boston, Pittsburgh
Time period: 1830-01-01--1930-12-31
The Historical Urban Ecological (HUE) data project was created for exploring and analyzing the urban health environments of seven major United States cities - Baltimore, Boston, Brooklyn, Chicago, Cincinnati, Manhattan, and Philidelphia - from 1830 through 1930. The data for each city includes ward boundary changes, street networks, and ward-level data on disease, mortality, crime, and other variables reported by municipal departments. The HUE data set was produced for the "Early Indicators of Later Work Levels, Disease and Death" project, funded by the National Institute of Aging. This collection represents the GIS data for each of the seven American cities, and in addition to ward boundary changes and street networks, includes in-street sewer and water sanitation systems coverage. All cities except Cincinnati include sanitation infrastructure data, and for Baltimore only water infrastructure is available. The city of Chicago includes supplemental GIS layers which reflect a reconstruction of two of Homer Hoyt's maps of average land value (1933 dollars) in the City of Chicago for 1873 and 1892. The square mile areas defined by Hoyt using Chicago's system of mile streets have been fit to the HUE street centerlines for Chicago. The Excel data tables include information about deaths in each ward broken down by cause of death, age, race, gender, as well as information about live births and deliveries.
Curated

Kaiser Permanente Study of the Oldest Old, 1971-1979 and 1980-1988: [California] (ICPSR 4219)

Released/updated on: 2011-02-07
Geographic coverage: United States, California
Time period: 1971-01-01--1988-12-31
This data collection is an epidemiological study of chronic disease in the oldest old. It is based on information collected from Kaiser Permanente facilities in Northern California. Members of Kaiser Permanente Medical Care programs who were aged 65 or older at the time the data were being collected and who had taken a multiphasic health checkup examination within four to six years of the baseline date were included in the study. There are several components to the dataset. Part 1, Master Records, includes information from the morbidity review, in which over 35 chronic conditions or diagnoses were abstracted from the member charts, as well as detailed diagnostic criteria for the major conditions. A prevalence review was done, which included the four years prior to the baseline date for these same conditions. Recurrent disease is included for the following conditions: cancers, myocardial infarction, and various forms of strokes. A detailed account of outpatient health services use, and data from the multiphasic health checkup, which was administered to each participant during the nine yearly follow-ups, are also included in the Master Records file. Part 2, Hospitalization, contains records of causes and dates of hospitalizations and discharges and nursing home admissions. There is also a section on incomplete reviews and the reasons for them. Demographic information and some lifestyle information from the multiphasic health checkup (e.g., smoking, alcohol, and Body Mass Index) are also in this file.
Curated

National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 3, 2000 (ICPSR 3807)

Released/updated on: 2008-02-05
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (SOA II) (ICPSR 2563) serves as the baseline for this study. LSOA II, Wave 3 consists of 7,936 survivor interviews and 906 decedent interviews in two data files: the Survivor File (Part 1) and the Decedent File (Part 2). The Survivor File contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including the 1994 National Health Interview Survey (ICPSR 6724) core questionnaire, the 1994 National Health Interview Survey: Family Resources Supplement (ICPSR 2656), Phase I of the 1994 National Health Interview Survey on Disability (ICPSR 2539), and the SOA II baseline interview (ICPSR 2563). Wave 3 questions (beginning at variable SF3664) examined migration, convalescent home utilization, nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins, aspirin, calcium supplements, and antioxidants, and detailed questions on home health care utilization. In addition, a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent File (Part 2), information was gathered from a family member or close relative regarding sample persons (N = 906) who were deceased at the time of Wave 3 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, health care use, and health insurance.
Curated
Partially restricted
Simple Crosstabs

National Social Life, Health, and Aging Project (NSHAP): Round 1, [United States], 2005-2006 (ICPSR 20541)

Released/updated on: 2023-01-30
Geographic coverage: United States
Time period: 2005-07-01--2006-03-31

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. The following files constitute Round 1: Core Data, Marital/Cohabiting History Data, Social Networks Data, Medications Data, and Sexual Partners Data.

Included in the Core file (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, medications and alternative therapies, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data was collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function and a panel of biomeasures including, weight, waist circumference, height, blood pressure, smell, saliva collection, taste, and a self-administered vaginal swab for female respondents. The Core file also contains a count of the total number of drugs taken, and a variable for each observed therapeutic category, indicating whether the respondent reported taking one or more medications in that category. These variables are derived from the information in the medications file, and thus are guaranteed to be consistent with it. The Marital/Cohabiting History file (Dataset 3) contains one record for each marriage or cohabitation identified in Section 3A of the questionnaire. The Social Networks file (Datasets 4 and 5) contains one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file. The Medications file (Dataset 6) contains one record for each item listed in the medications log (including alternative medicines and nutritional products). Respondents who did not report taking any medications or who refused to participate in this module are not represented in this file. Lastly, the Sexual Partners file (Dataset 7) contains one record for each sexual partner identified in Section 3A of the questionnaire.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

Curated
Partially restricted
Simple Crosstabs

National Social Life, Health, and Aging Project (NSHAP): Round 2 and Partner Data Collection, [United States], 2010-2011 (ICPSR 34921)

Released/updated on: 2023-05-24
Geographic coverage: United States
Time period: 2010-01-01--2011-12-31

The National Social Life, Health and Aging Project (NSHAP) is the first population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 2 interviews were conducted from August 2010 through May 2011, during which Round 1 Respondents were re-interviewed. An attempt was also made to interview individuals who were sampled in Round 1 but declined to participate. In addition, spouses or co-resident partners were also interviewed using the same instruments as the main respondents. This process resulted in 3,377 total respondents. The following files constitute Round 2: Core Data, Disposition of Round 1 Partner Data, Social Networks Data, Social Networks Update Data, Partner History Data, Partner History Update Data, Medications Data, Proxy Data, and Sleep Statistics Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships, and patient-physician communication, in addition to bereavement items. Data were also collected from respondents on the following items and modules: social activity items, physical contact module, sexual interest module, get up and go assessment of physical function, and a panel of biomeasures, including weight, waist circumference, height, blood pressure, smell, saliva collection, and taste.

The Disposition of Round 1 Partner files (Datasets 3 and 4) detail information derived from Section 6A items regarding the partner from Round 1 within the questionnaire. This provides a complete history for respondent partners across both rounds.

The Social Networks files (Datasets 5 and 6) contain one record for each person identified on the network roster. Respondents who refused to participate in the roster or who did not identify anyone are not represented in this file.

The Social Networks Update files (Datasets 7 and 8) detail respondents' current relationship status with each person identified on the network roster.

The Partner History file (Dataset 9) contains one record for each marriage, cohabitation, or romantic relationship identified in Section 6A of the questionnaire, including a current partner in Round 2 but excluding the partner from Round 1.

The Partner History Update file (Dataset 10) details respondents' current sexual partner information, as well as marital and cohabiting status.

The Medications Data file (Dataset 11) contains records for items listed in the medications log.

The Proxy Data files (Datasets 12 and 13) contain information from proxy interviews administered for Round 1 Respondents who were either deceased or whose health was too poor to participate in Round 2.

The Sleep Statistics Data files (Dataset 14 and 15) provide information on actigraphy sleep variables.

NACDA also maintains a Colectica portal with the NSHAP Core data across rounds 1-3, which allows users to interact with variables across rounds and create customized subsets. Registration is required.

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