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Australian [Adelaide] Longitudinal Study of Aging, Wave 6: [1999-2000] (ICPSR 3679)

Released/updated on: 2006-01-18
Geographic coverage: Australia, Global
Time period: 1999-01-01--2000-01-01
The general purpose of the Australian [Adelaide] Longitudinal Study of Aging (ALSA) is to gain further understanding of how social, biomedical, and environmental factors are associated with age-related changes in the health and well-being of persons aged 70 years and older. Emphasis is given to the effects of social and economic factors on morbidity, disability, acute and long-term care service use, and mortality. The aim is to analyze the complex relationships between individual and social factors and changes in health status, health care needs, and service utilization dimensions. Components of Wave 6 (1999-2000) (Part 1) include a comprehensive personal interview conducted via the Computer-Assisted Personal Interview (CAPI) system, a home-based assessment of physiological functions, self-completed questionnaires, and additional clinical studies. In Part 2, Wave 6 Clinical Data, information about the health histories of the respondents was elicited, including information on medication, blood pressure, and physical and mental disabilities.
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Restricted

Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-01, 1997-10-01--1998-08-01
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
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Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-01-01
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
Curated

Epidemiologic Catchment Area Study, 1980-1985: [United States] (ICPSR 6153)

Released/updated on: 1994-05-20
Geographic coverage: United States
Time period: 1980-01-01--1985-01-01
The Epidemiologic Catchment Area (ECA) program of research was initiated in response to the 1977 report of the President's Commission on Mental Health. The purpose was to collect data on the prevalence and incidence of mental disorders and on the use of and need for services by the mentally ill. Independent research teams at five universities (Yale University, Johns Hopkins University, Washington University, Duke University, and University of California at Los Angeles), in collaboration with the National Institute for Mental Health, conducted the studies with a core of common questions and sample characteristics. The sites were areas that had previously been designated as Community Mental Health Center catchment areas: New Haven, Connecticut, Baltimore, Maryland, St. Louis, Missouri, Durham, North Carolina, and Los Angeles, California. Each site sampled over 3,000 community residents and 500 residents of institutions, yielding 20,861 respondents overall. The longitudinal ECA design incorporated two waves of personal interviews administered one year apart and a brief telephone interview in between (for the household sample). The diagnostic interview used in the ECA was the NIMH Diagnostic Interview Schedule (DIS), Version III (with the exception of the Yale Wave I survey, which used Version II). Diagnoses were categorized according to the DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS, 3rd Edition (DSM-III). Diagnoses derived from the DIS include manic episode, dysthymia, bipolar disorder, single episode major depression, recurrent major depression, atypical bipolar disorder, alcohol abuse or dependence, drug abuse or dependence, schizophrenia, schizophreniform, obsessive compulsive disorder, phobia, somatization, panic, antisocial personality, and anorexia nervosa. The DIS uses the Mini-Mental State Examination (MMSE), which measures cognitive functioning, as an indirect measure of the DSM-III Organic Mental Disorders. In the ECA survey, this diagnosis is called cognitive impairment.
Curated
Simple Crosstabs

National Health Interview Survey, 2010 (ICPSR 36144)

Released/updated on: 2017-06-29
Geographic coverage: United States

These data are being released in BETA version to facilitate early access to the study for research purposes. This collection has not been fully processed by NACDA or ICPSR at this time; the original materials provided by the principal investigator were minimally processed and converted to other file types for ease of use. As the study is further processed and given enhanced features by ICPSR, users will be able to access the updated versions of the study. Please report any data errors or problems to user support and we will work with you to resolve any data related issues.

The National Health Interview Survey (NHIS) is conducted annually and sponsored by the National Center for Health Statistics (NCHS), which is part of the U.S. Public Health Service. The purpose of the NHIS is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive across the United States population through the collection and analysis of data on a broad range of health topics. The redesigned NHIS questionnaire introduced in 1997 (see National Health Interview Survey, 1997 [ICPSR 2954]) consists of a core that remains largely unchanged from year to year, plus an assortment of supplements varying from year to year.

The 2010 NHIS Core consists of three modules: Family, Sample Adult, and Sample Child. The datasets derived from these modules include Household Level, Family Level, Person Level, Injury/Poison Episode Level, Injury/Poison Verbatim Level, Sample Adult Level, and Sample Child level.

The 2010 NHIS supplements consist of stand alone datasets for Cancer Level and Quality of Life data derived from the Sample Adult core and Disability Questions Tests 2010 Level derived from the Family core questionnaire. Additional supplementary questions can be found in the Sample Child dataset on the topics of cancer, immunization, mental health, and mental health services and in the Sample Adult dataset on the topics of epilepsy, immunization, and occupational health.

Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Parts 2-5 are based on the Family Core questionnaire. Part 2, Family Level, provides information on all family members with respect to family size, family structure, health status, limitation of daily activities, cognitive impairment, health conditions, doctor visits, hospital stays, health care access and utilization, employment, income, participation in government assistance programs, and basic demographic information. Part 3, Person Level, includes information on sex, age, race, marital status, education, family income, major activities, health status, health care costs, activity limits, and employment status. Parts 4 and 5, Injury/Poisoning Episode Level and Injury/Poisoning Verbatim Level, consist of questions about injuries and poisonings that resulted in medical consultations for any family members and contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence.

A randomly-selected adult in each family was interviewed for Part 6, Sample Adult Level, regarding specific health issues, the relation between employment and health, health status, health care and doctor visits, limitation of daily activities, immunizations, and behaviors such as smoking, alcohol consumption, and physical activity. Demographic information, including occupation and industry, also was collected. The respondents to Part 6 also completed Part 7, Cancer Level, which consists of a set of supplemental questions about diet and nutrition, physical activity, tobacco, cancer screening, genetic testing, family history, and survivorship. Part 8, Sample Child Level, provides information from an adult in the household on medical conditions of one child in the household, such as developmental or intellectual disabilities, respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs.

Parts 9 through 13 comprise the additional Supplements and Paradata for the 2010 NHIS. Part 9, Disability Questions Tests 2010 Level, is a supplemental set of six questions asked at the end of the Family Core questionnaire about sensory, mobility, self-care, cognition, and independent living issues. Part 10, Paradata Level, does not contain health related information, but rather data which are related to the interview process, including measures of time, contact-ability, and cooperation. Please see the User Guide for additional information and details. Part 11, Quality of Life Level, was asked to a randomly selected subsection of the Sample Adult questionnaire. Respondents were asked about participation in society, degree of difficulty and functioning in activity domains including vision, hearing, mobility, upper body, learning, cognition, affect, pain, fatigue, and communication. Part 12, Special Sample Adult Disability Weights Level, contains weights for use with an analysis of the merged data from the Sample Adult Level and Disability Questions Tests 2010 Level. Part 13, Sample Child Birth Weights Level, contains corrected birth weight data for 2010. Please see the Survey Description files for additional information and details.

Curated

National Survey of Institutionalized Persons, 1976 (ICPSR 7866)

Released/updated on: 1992-02-16
Geographic coverage: United States
This data collection was designed to obtain information about the services and resources of the various types of long-term care facilities in the United States, i.e., chronic care institutions (providing care for people with chronic conditions, diseases, and handicaps), institutions that provide care for the mentally ill and mentally handicapped, nursing homes, homes for the aged, and residential schools and treatments centers. Six major areas of concern were examined in this study: (1) the appropriateness of placement/admission and discharge, plus possible alternatives, (2) the quality of life within the institutional environment, (3) the residents' rights and legal status, (4) the medical and non-medical services provided and needed, (5) the sources of financing such care, and (6) the impact of government programs and policies upon the costs and provision of certain types of service. This information was collected from 9,090 residents of 851 institutions and from 3,289 of their family members. Administrative staff at each resident's facility also provided information about that facility as well as the sampled resident. Data about the resident's institution include its basic characteristics, e.g., type of care provided, ownership, number of beds, occupancy rate, and services and programs offered. Resident data include basic social and demographic characteristics, reason for institutionalization, cost of care, current activities, type of treatment, and the physical limitations of the institutional population. Family data examine the next of kin's relationship to the resident, e.g., relative's proximity to the institution, frequency of visits, and monetary contributions to the resident, as well as the next of kin's demographic characteristics and views of the resident and his or her institutionalization.
Curated

Survey of Health Services Utilization and Expenditures, 1970 (ICPSR 7740)

Released/updated on: 1992-02-16
Geographic coverage: United States
This national survey was conducted to compare health services utilization and expenditures in 1970 with results of similar studies done in 1953, 1958, and 1964. In the survey, respondents from 3,763 families plus additional older individuals -- a total of 11,619 persons -- were interviewed in 1971. One or more persons in each family provided information regarding use of health services, the cost of such services, and how these costs were met for the calendar year 1970. Information was also collected on perceptions of illness and health, attitudes and opinions about medical care in the United States, and health beliefs. An attempt was made to verify all hospital admissions, physician visits, and insurance reports and claims. These verifications had two purposes: first, to determine if the reported care was, in fact, provided during the survey year, and second, to elicit more precise information than the families were likely to give on diagnoses, costs, kinds of treatment, and sources of payment for services. Verification data were obtained for over 90 percent of the hospital admissions and for two-thirds of the physician visits. Demographic data were also collected, including age, sex, race, education, occupation, income, and place of residence.