Showing 1 – 50 of 55 results.
Curated
Australian [Adelaide] Longitudinal Study of Aging, Wave 6: [1999-2000] (ICPSR 3679)
Released/updated on: 2006-01-18
Geographic coverage: Australia, Global
Time period: 1999-01-01--2000-12-31
The general purpose of the Australian [Adelaide] Longitudinal Study of Aging (ALSA) is to gain further understanding of how social, biomedical, and environmental factors are associated with age-related changes in the health and well-being of persons aged 70 years and older. Emphasis is given to the effects of social and economic factors on morbidity, disability, acute and long-term care service use, and mortality. The aim is to analyze the complex relationships between individual and social factors and changes in health status, health care needs, and service utilization dimensions. Components of Wave 6 (1999-2000) (Part 1) include a comprehensive personal interview conducted via the Computer-Assisted Personal Interview (CAPI) system, a home-based assessment of physiological functions, self-completed questionnaires, and additional clinical studies. In Part 2, Wave 6 Clinical Data, information about the health histories of the respondents was elicited, including information on medication, blood pressure, and physical and mental disabilities.
Curated
Australian [Adelaide] Longitudinal Study of Aging, Waves 1-5 [1992-1997] (ICPSR 6707)
Released/updated on: 2005-11-04
Geographic coverage: Australia, Global
Time period: 1992-01-01--1997-12-31
The general purpose of the Australian Longitudinal Study of
Aging (ALSA) is to gain further understanding of how social,
biomedical, and environmental factors are associated with age-related
changes in the health and well-being of persons aged 70 years and
older. Emphasis is given to the effects of social and economic factors
on morbidity, disability, acute and long-term care service use, and
mortality. The aim is to analyze the complex relationships between
individual and social factors and changes in health status, health
care needs, and service utilization dimensions. Components of Wave 1
(1992-1993) (Part 1) included a comprehensive personal interview
conducted via the Computer-Assisted Personal Interview (CAPI) system,
a home-based assessment of physiological functions, self-completed
questionnaires, and additional clinical studies. Wave 2 (1993-1994),
Wave 3 (1994-1995), Wave 4 (1995-1996), and Wave 5 (1996-1997) (Parts
2, 7, 8, and 10, respectively) included questions regarding changes
in domicile, current health and functional status, new morbidity
conditions, changes in medication, major life events, general life
satisfaction, and changes in economic circumstances. For Wave 3
Clinical Data (Part 9) information about the health histories of the
respondents was elicited, including information on medication, blood
pressure, and physical and mental disabilities.
Curated
Chronic Illness and Caregiving, 2000: [United States] (ICPSR 3402)
Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31
The objective of this survey, which interviewed individuals from the general public, chronically ill persons, and informal caregivers, was threefold: (1) to assess public awareness of chronic care issues and the level of support for chronic care policy initiatives, (2) to examine experiences and needs of chronically ill Americans concerning health care and other assistance, and (3) to evaluate experiences and needs of informal caregivers. Questions to the general public addressed awareness of the availability of supportive and housing services for the chronically ill, knowledge about coverage for long-term care, concerns about the future of the chronic care delivery system, support for policy initiatives such as tax credits for the chronically ill and caregivers, and support for a policy that would ensure pharmaceutical coverage in Medicare. Chronically ill interviewees responded to questions about access to and experience with chronic care and other health care services, experiences with and needs for clinical services coordination, experiences with and needs for social supports and interventions, and adjustment skills and knowledge (e.g., what were their needs for learning how to live with chronic conditions). Questions for informal caregivers focused on experiences with caregiving (e.g., for whom they provided care, how many hours they devoted to caregiving per week, and living arrangements), balance between caregiving and other areas of their lives, experiences with and needs for respite care, and availability of social supports for caregivers.
Curated
Established Populations for Epidemiologic Studies of the Elderly, 1981-1993: [East Boston, Massachusetts, Iowa and Washington Counties, Iowa, New Haven, Connecticut, and North Central North Carolina] (ICPSR 9915)
Released/updated on: 2006-01-18
Geographic coverage: North Carolina, Iowa, New Haven, United States, Massachusetts, Connecticut, Boston
Time period: 1981-01-01--1993-12-31
The goals of the Established Populations for Epidemiologic Studies of the Elderly (EPESE) project were to describe and identify predictors of mortality, hospitalization, and placement in long-term care facilities and to investigate risk factors for chronic diseases and loss of functioning. The survey elicited information from persons 65 years of age and older in four geographic locations: East Boston, Massachusetts, New Haven, Connecticut, Iowa and Washington Counties, Iowa, and five counties in north central North Carolina. The public use baseline data (Part 1) cover demographic characteristics (age, sex, race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Data from six follow-up surveys conducted in all four of the sites are also provided (Parts 2-4 and 6-8), along with information from death certificates for deaths occurring in the first six years of follow-up for all four sites (Part 5).
Curated
Euro-barometer 37.1: Consumer Goods and Social Security, April-May 1992 (ICPSR 9957)
Released/updated on: 2000-09-25
Geographic coverage: United Kingdom, Portugal, Global, Spain, Greece, Netherlands, Belgium, Luxembourg, Ireland, Denmark, Italy, France, Germany
Time period: 1992-04-20--1992-05-24
This round of Euro-Barometer surveys queried respondents on standard Euro-Barometer measures such as public awareness of and attitudes toward the Common Market and the European Community (EC), and also focused on consumer goods, Social Security, health care and health care benefits, the elderly, retirement, and alcohol and drug use. Questions concerning consumer goods asked whether respondents read product information before purchasing, what additional product information they would like to see, what three things other than price were most important in deciding whether to purchase an item, and whether it was necessary to have the same type of product information available for all members of the European Community (EC). Respondents' attitudes and opinions on Social Security were probed with questions that asked whether they agreed that Social Security properly protects the unemployed, the elderly, the sick or disabled, those with work-related injuries or illness, and the poor. Respondents were also asked whether policies on pensions, minimum income, and unemployment should be decided by national governments or by the EC, and whether foreigners should have the same Social Security benefits as citizens. The general health of respondents and their health care benefits were assessed through questions that asked whether they had a long-standing illness, disability, or infirmity, whether they had cut down their activity due to illness or injury, and whether they had taken medicine or talked to a doctor within the last 30 days. Respondents were also queried about which conditions they would see a doctor for and what type of examinations they had had in the past three years. Respondents were asked to rate what they paid for various medical services, the general quality of their health care, and the nature and availability of health insurance. The main problems facing the elderly and the role the elderly play in society were also topics of investigation in this survey. Questions elicited respondents' views toward possible changes in pension terms, whether retirement should occur at a fixed age, what types of discrimination affect the elderly who are working, whether the government should introduce laws to try to stop age discrimination, whether a minimum level of income should be provided to the elderly, and whether the elderly needing personal care should go into residential/nursing homes or should have social services help them remain in their homes for as long as possible. Respondents were also asked whether they provided long-term care to anyone either living with them or not living with them, who was in the best position to decide which services are most important for the elderly, what the best method of financing long-term care for the elderly was, and whether the EC was doing enough with regard to the elderly. Questions on retirement dealt with what ages respondents retired/planned to retire, whether the retired felt their pensions to be adequate, whether working people looked forward to retiring, whether pensions should be extended to widows and dependent children, whether pensions should be reduced for those who work for earned income beyond retirement, and whether pensions should be provided through government taxation, employer/employee contributions, or private contracts between workers and pension companies. Queries about alcohol and drug usage probed the use of beer, wine, spirits, and other forms of alcohol, age at which the respondent began drinking, familiarity with major forms of drugs, age at which drugs were first offered, how difficult it was to get drugs, and the means available for getting drugs. Additional questions focused on how the respondent viewed the drug problem, the top priority in eliminating the drug problem, diminishing the effects of drug use, whether drug use leads to AIDS, prostitution, health problems, social problems, violence, suicide, personality breakdowns, and problems with the law, and the major reasons for alcohol and drug use. Demographic and other background information was gathered on life satisfaction, number of people residing in the home, size of locality, home ownership, trade union membership, region of residence, and occupation of the head of household, as well as the respondent's age, sex, marital status, education, occupation, work sector, religiosity, subjective social class, use of media, left-right political self-placement, and opinion leadership.
Curated
Eurobarometer 51.0: The Elderly and Domestic Violence, March-May 1999 (ICPSR 2864)
Released/updated on: 2007-01-26
Geographic coverage: Europe, United Kingdom, Portugal, Global, Spain, Greece, Netherlands, Sweden, Austria, Belgium, Luxembourg, Ireland, Finland, Denmark, Italy, France, Germany
Time period: 1999-03-01--1999-05-31
This round of Eurobarometer surveys queried respondents on standard Eurobarometer measures, such as whether they attempted to persuade others close to them to share their views on subjects they held strong opinions about, whether they discussed political matters, and what the goals of the European Union (EU) should be. Additional questions focused on the respondents' knowledge of and opinions on the EU, including how well-informed they felt about the EU, what sources of information about the EU they used, and whether their country had benefited from being an EU member. Another major focus of the surveys was elderly people and domestic violence. Respondents were asked whether retired people should be permitted to take paid employment and whether the government should introduce laws to try to stop age discrimination. Respondents were also queried as to whether they had extra family responsibilities involving looking after someone with a long-term illness or someone who was handicapped or elderly, and who respondents thought was in the best position to decide on the most appropriate services for elderly people needing long-term aid. The survey also explored violence against children and young people under age 18 as well as against women. Those queried were asked if they had heard of violence against women and children and what they believed constituted domestic violence against women and children. Given a situation in which a woman or child was a victim of violence, respondents were asked who might be the most likely perpetrator and what might be a general cause of violence against women and children. Respondents also commented on whether certain institutions and organizations should help victimized women and children, and ways that violence against women and children can be combatted. Demographic and other background information provided includes the respondent's age, gender, marital status, and left-right political self-placement, as well as household income, number of people residing in the home, occupation, religion, and region of residence.
Curated
Geriatric Home Care Utilization: San Francisco, 1968-1975 (ICPSR 7853)
Released/updated on: 2006-03-30
Geographic coverage: San Francisco, United States, California
Time period: 1968-01-01--1975-12-31
This data collection reported on geriatric clients served by San Francisco Home Health Services, Inc. (SFHHS) between 1968 and 1975. The study was designed to document and analyze the natural history of home care service use from entry to exit, noting what types of users were in a home care agency's program and how intensively services were utilized. The study also identified outcome categories useful for response to public policy questions on the effectiveness of various service types in meeting geriatric needs. Also examined was the relationship of home care use to nursing home entry, and to the need for other services. In Part 1, data for 2,435 clients were gathered from case records at SFHHS. Variables used in the analysis include entry characteristics (e.g, age, sex, condition, living arrangement, and contextual variables such as referral source, prior source of care, and payment type), duration, intensity, and type of service utilization, as well as discharge or exit status. Some of these are calculated variables derived from each case's accumulated monthly service records (found in their raw form in Part 2). Part 2 contains 35,729 client monthly service records, which are distributed as raw data as received from SFHHS. Variables include billing date, pay plan, and frequency and intensity of assistance.
Curated
Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851)
Released/updated on: 2009-12-14
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 1993-01-01--1994-12-31
The Hispanic Established Populations for the Epidemiologic Studies of the Elderly (Hispanic EPESE) was modeled after the design of the ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1981-1993: [EAST BOSTON, MASSACHUSETTS, IOWA AND WASHINGTON COUNTIES, IOWA, NEW HAVEN, CONNECTICUT, AND NORTH CENTRAL NORTH CAROLINA] (ICPSR 9915) and ESTABLISHED POPULATIONS FOR EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1996-1997: PIEDMONT HEALTH SURVEY OF THE ELDERLY, FOURTH IN-PERSON SURVEY [DURHAM, WARREN, VANCE, GRANVILLE, AND FRANKLIN COUNTIES, NORTH CAROLINA] (ICPSR 2744). The Hispanic EPESE collected baseline data beginning in September 1993 through June 1994 on a representative sample of community-dwelling Mexican-American elderly, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the study was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. The Hispanic EPESE attempted to determine whether certain risk factors for mortality and morbidity operate differently in Mexican Americans than in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public use baseline data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression.
Curated
Inventory of Long-Term Care Places, 1986 (ICPSR 9169)
Released/updated on: 2009-12-22
Geographic coverage: United States
Time period: 1986-01-01--1986-12-31
The purpose of this data collection was to provide a current sampling frame for two portions--nursing and related-care homes and facilities for the mentally retarded--of the Institutional Population Component of the 1987 National Medical Expenditure Survey. Data include type of ownership of facility, number of beds, age group served, types of persons served, and descriptions of facilities (i.e., skilled nursing home, intermediate care facility, licensed but not certified nursing home, long-term care wing/unit of a licensed hospital, related care facility, and foster home).
Curated
Master Facility Inventory: Nursing Homes and Other Health Care Facilities, 1976 (ICPSR 7631)
Released/updated on: 1992-02-16
Time period: 1976-01-01--1976-12-31
The Master Facility Inventory data collection provides a comprehensive list of nursing, personal care, and domiciliary care facilities in the United States in 1976. The criteria for inclusion were that a facility provided medical, nursing, personal, or custodial care to groups of unrelated persons on an inpatient basis. The survey was conducted by the National Center for Health Statistics in order to update its Master Facility Inventory on the number and kinds of such facilities in the United States and the changes to the list since the last MFI survey. Information gathered is for the previous calendar year and includes facility identification information, ownership and type of facility, capacity and type of beds (i.e., total beds set up and staffed for use and number of beds certified by Medicare or Medicaid as skilled and intermediate), acceptance criteria, and total number of male and female residents (or patients) for 26,748 institutions.
Curated
National Health and Aging Trends Study (NHATS): Round 10 COVID-19 Supplement, [United States], 2020-2021 (ICPSR 39070)
Released/updated on: 2024-03-18
Geographic coverage: United States
Time period: 2020-01-01--2021-12-31
The National Health and Aging Trends Study (NHATS) began in 2011 and fosters research to guide efforts to reduce disability, maximize health and independent functioning, and enhance quality of life at older ages. NHATS aims to provide the basis for understanding trends in late-life functioning, how these differ for various population subgroups, and the economic and social consequences of aging and disability for individuals, families, and society. Between June 2020 and March 2021, NHATS conducted a supplemental mail study about participants' experiences during the COVID-19 pandemic. Adult family members and friends who helped NHATS participants were also surveyed about their experiences. The NHATS COVID-19 supplements covered topics such as symptoms of COVID-19, measures to limit spread of the virus, changes in living situations, contact with family and friends, other activities, grocery shopping, health care, finances, wellbeing, and help with daily activities. The ICPSR provides variable-level metadata for the data associated with this study. Users should consult the NHATS website for details on obtaining these resources.
External data
National Health and Aging Trends Study (NHATS), [United States] (ICPSR 37107)
Released/updated on: 2018-06-29
Geographic coverage: United States
Time period: 2011-01-01--2024-12-31
The National Health and Aging Trends Study (NHATS) began in 2011 and fosters research to guide efforts to reduce disability, maximize health and independent functioning, and enhance quality of life at older ages. NHATS aims to provide the basis for understanding trends in late-life functioning, how these differ for various population subgroups, and the economic and social consequences of aging and disability for individuals, families, and society.
NHATS gathers information on a nationally representative sample of Medicare beneficiaries ages 65 and older. The sample is refreshed periodically so that researchers may study national-level disability trends as well as individual trajectories. Annual, in-person interviews collect detailed information on the disablement process and its consequences.
The NHATS interview is guided by a conceptual framework that recognizes physical and cognitive capacity is distinct from the environment in which activities take place. Among the specific content areas included are: the physical, social, technological and service environment, physical and cognitive capacity, use of assistive devices and rehabilitation, help received with daily activities (self-care, household, and medical), participation in valued activities, and wellbeing. A last month of life interview focuses on quality of end of life care. Periodically caregivers of NHATS respondents are interviewed in the supplemental National Study of Caregiving (NSOC). Linkages to Medicare records are also available.
Content was developed by a multidisciplinary team of researchers from the fields of demography, geriatric medicine, epidemiology, health services research, economics, and gerontology. NHATS is being led by the Johns Hopkins University Bloomberg School of Public Health in collaboration with the University of Michigan, with data collection by Westat, and support from the National Institute on Aging.
Curated
National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 2, 1997 (ICPSR 3526)
Released/updated on: 2007-03-01
Geographic coverage: United States
Time period: 1997-01-01--1997-12-31
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (ICPSR 2563), serves as the baseline for this study. LSOA II Wave 2 interviews were conducted with a total of 7,998 respondents who were interviewed at baseline and consists of 7,060 survivor interviews and 998 decedent interviews. LSOA II Wave 2 is comprised of two data files, the Survivor Data (Part 1) and the Decedent Data (Part 2). The Survivor Data contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including NATIONAL HEALTH INTERVIEW SURVEY, 1994 (ICPSR 6724) core questionnaire, NATIONAL HEALTH INTERVIEW SURVEY, 1994: FAMILY RESOURCES INCOME AND ASSETS SUPPLEMENT (ICPSR 2656), and NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, DISABILITY OUTCOME SUPPLEMENT (ICPSR 2539). Wave 2 questions examined migration, convalescent home utilization, persistent symptomatic conditions such as pain in legs, swelling in feet, etc., nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins and aspirin, and detailed questions on home health care utilization. In addition a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent Data (Part 2) information was gathered from a family member or close relative regarding sample persons (N = 938) who were deceased at the time of Wave 2 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, and health care use and health insurance.
Curated
National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 3, 2000 (ICPSR 3807)
Released/updated on: 2008-02-05
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (SOA II) (ICPSR 2563) serves as the baseline for this study. LSOA II, Wave 3 consists of 7,936 survivor interviews and 906 decedent interviews in two data files: the Survivor File (Part 1) and the Decedent File (Part 2). The Survivor File contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including the 1994 National Health Interview Survey (ICPSR 6724) core questionnaire, the 1994 National Health Interview Survey: Family Resources Supplement (ICPSR 2656), Phase I of the 1994 National Health Interview Survey on Disability (ICPSR 2539), and the SOA II baseline interview (ICPSR 2563). Wave 3 questions (beginning at variable SF3664) examined migration, convalescent home utilization, nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins, aspirin, calcium supplements, and antioxidants, and detailed questions on home health care utilization. In addition, a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent File (Part 2), information was gathered from a family member or close relative regarding sample persons (N = 906) who were deceased at the time of Wave 3 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, health care use, and health insurance.
Curated
National Health Interview Survey on Disability, 1994: Phase II, Adult Followback (ICPSR 2568)
Released/updated on: 1998-12-07
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1994 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1994 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Adult Followback file includes questions on housing and long-term care services, transportation, social activity, work history/employment, vocational rehabilitation, assistive devices and technologies, health insurance, assistance with key activities, other services, self-direction, family structure, relationships, living arrangements, conditions and impairments, health opinions and behaviors, community services, and proxy status. This file can be linked to the 1994 NHIS core data (ICPSR 6724). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1994: ACCESS TO CARE SUPPLEMENT (ICPSR 6874), and NATIONAL HEALTH INTERVIEW SURVEY, 1994: HEALTH INSURANCE SUPPLEMENT (ICPSR 6873).
Curated
National Health Interview Survey on Disability, 1994: Phase II, Child Followback (ICPSR 2567)
Released/updated on: 1998-12-10
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance between medical, administrative, and social issues involved in disability measurement. The 1994 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1994 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Child Followback file includes questions on services needed by the child, the impact of the child's disability on the family, child care, and emotional and psychological adjustment. This file can be linked to the 1994 NHIS core data (ICPSR 6724). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1994: ACCESS TO CARE SUPPLEMENT (ICPSR 6874), and NATIONAL HEALTH INTERVIEW SURVEY, 1994: HEALTH INSURANCE SUPPLEMENT (ICPSR 6873).
Curated
National Health Interview Survey on Disability, 1995: Phase II, Adult Followback (ICPSR 2578)
Released/updated on: 1999-04-26
Geographic coverage: United States
Time period: 1995-01-01--1995-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1995 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1995 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Adult Followback file includes questions on housing and long-term care services, transportation, social activity, work history/employment, vocational rehabilitation, assistive devices and technologies, health insurance, assistance with key activities, self-direction, family structure, relationships, living arrangements, conditions and impairments, health opinions and behaviors, community services, and proxy status. This file can be linked to the 1995 NHIS core data (ICPSR 2533). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1995: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1995: ACCESS TO CARE SUPPLEMENT (ICPSR 2525), and NATIONAL HEALTH INTERVIEW SURVEY, 1995: HEALTH INSURANCE SUPPLEMENT (ICPSR 2530).
Curated
National Health Interview Survey On Disability, 1995: Phase II, Child Followback (ICPSR 2577)
Released/updated on: 1999-04-30
Geographic coverage: United States
Time period: 1995-01-01--1995-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1995 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1995 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Child Followback file includes questions on services needed by the child, the impact of the child's disability on the family, child care, and emotional and psychological adjustment. This file can be linked to the 1995 NHIS core data (ICPSR 2533). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1995: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1995: ACCESS TO CARE SUPPLEMENT (ICPSR 2525), and NATIONAL HEALTH INTERVIEW SURVEY, 1995: HEALTH INSURANCE SUPPLEMENT (ICPSR 2530).
Curated
National Health Provider Inventory, 1991 (ICPSR 6342)
Released/updated on: 1994-10-19
Geographic coverage: United States
Time period: 1990-01-01--1991-12-31
The National Health Provider Inventory (NHPI) was conducted to provide national data on the number, type, and geographic distribution of providers of long-term care in the United States and to provide a sampling frame for future surveys. The 1991 NHPI was a two-part survey with two separate questionnaires. One questionnaire was sent to nursing homes and board and care homes (Facility File), while the other was sent to home health agencies and hospices (Agency File). Data on services provided to individuals at their residences (also included in the Agency File) were gathered as well, and thus the NHPI represents an expansion over earlier versions of the study (the Inventory of Long-Term Care Places, conducted in 1986, and the National Master Facility Inventory, conducted eight times between 1967 and 1982). Variables in the Facility File include name and address of facility, age group primarily served, disability group primarily served, ownership type, total beds, and number of residents by age and sex. Variables in the Agency File include name and address, ownership, types of services provided, number of clients served, and total number of visits provided.
Curated
National Home and Hospice Care Survey, 1992 (ICPSR 6536)
Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1992-01-01--1992-12-31
The National Home and Hospice Care Survey (NHHCS) for 1992 is the first annual survey of home health agencies and hospices and their patients and discharges. The survey was designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff people most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes service provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
Curated
National Home and Hospice Care Survey, 1993 (ICPSR 6664)
Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1993-01-01--1993-12-31
The National Home and Hospice Care Survey (NHHCS) for 1993 is the second annual survey of home health agencies and hospices and their current patients and discharges. This survey was designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes service provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, Hispanic origin, race, and marital status.
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National Home and Hospice Care Survey, 1994 (ICPSR 6733)
Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31
The National Home and Hospice Care Survey (NHHCS) for 1994 is the third annual survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
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National Home and Hospice Care Survey, 1996 (ICPSR 2707)
Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1996-01-01--1996-12-31
The National Home and Hospice Care Survey (NHHCS) for 1996 is the fourth survey of home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff personnel, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
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National Home and Hospice Care Survey, 1998 (ICPSR 3763)
Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1998-01-01--1998-12-31
The National Home and Hospice Care Survey (NHHCS) for 1998 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
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National Home and Hospice Care Survey, 2000 (ICPSR 3791)
Released/updated on: 2006-06-22
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31
The National Home and Hospice Care Survey (NHHCS) for 2000 examines home health agencies and hospices and their current patients and discharges. These surveys were designed to provide information for those who establish standards for, plan, provide, and assess long-term care services, both in the home and in inpatient settings. Data on agency characteristics were obtained through personal interviews with the agency administrators and include the number of home health and hospice patients served in the last 12 months, type of facility ownership (i.e., profit, nonprofit, government, other), Medicare and Medicaid certification, number and type of staff, and the hours they worked. Data on a sample of patients currently receiving home health and hospice care as well as a sample of discharges were obtained by interviewing staff persons most familiar with the care provided to these patients. Respondents were requested to refer to medical or other records whenever necessary. No patient was interviewed directly. Information for patients currently receiving services and discharged patients includes services provided and provider type, type of residence, referral source, medical diagnosis, type of care (home health or hospice), type of aids used (eyeglasses, dentures, walker, cane, oxygen, hospital bed, etc.), daily living activities that required assistance, and billing charges and expected payment source(s). The discharge diagnosis for discharged patients was also recorded. Demographic variables for both types of patients include sex, age, race, Hispanic origin, and marital status.
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National Home and Hospice Care Survey, 2007 (ICPSR 28961)
Released/updated on: 2010-09-01
Geographic coverage: United States
Time period: 2007-08-01--2008-02-29, 2007-09-01--2008-04-30
The National Home and Hospice Care Survey (NHHCS) was reintroduced into the field in 2007 after a 7-year break. During that time, the survey was redesigned and expanded to include a computer-assisted personal interviewing (CAPI) system, many new data items, and larger sample sizes of current home health patients and hospice discharges. All agencies that participated in the survey were either certified by Medicare and/or Medicaid or were licensed by a state to provide home health and/or hospice services and currently or recently served home health and/or hospice patients. Agencies that provided only homemaker services or housekeeping services, assistance with instrumental activities of daily living (IADLs), or durable medical equipment and supplies were excluded from the survey. The 2007 NHHCS included a supplemental survey of home health aides employed by home health and/or hospice agencies, called the National Home Health Aide Survey (NHHAS). The 2007 NHHCS data were collected through in-person interviews with agency directors and their designated staffs; no interviews were conducted directly with patients or their families and/or friends. Agency data collected, available in agency administrative records, included information on the year an agency was established, the types of services an agency provided, referral sources, specialty programs, and staffing characteristics. Data collected on home health patients and hospice discharges, available in medical records, included age, sex, race and ethnicity, services received, length of time since admission, diagnoses, medications taken, advance directives, and many other items.
The National Home Health Aide Survey (NHHAS), the first national probability survey of home health aides, was designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. The NHHAS survey instrument included sections on recruitment, training, job history, family life, management and supervision, client relations, organizational commitment and job satisfaction, workplace environment, work-related injuries, and demographics.
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National Long Term Care Channeling Evaluation, 1982-1984 (ICPSR 8683)
Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1982-01-01--1984-12-31
The United States Department of Health and Human Services initiated this survey to demonstrate and evaluate the cost savings and effectiveness of applying a case management approach to community-based long term care services for the frail elderly. The goal of case management is to coordinate and direct community, medical, and informal long term care services to the frail elderly as an alternative to institutionalization. The four main areas of evaluation are: 1) the use of hospitals, nursing homes, and other formal medical services, 2) public and private expenditures on formal community services including case-management, housing, and income transfers, 3) informal care by family and friends, and 4) individual outcomes, including quality of life, physical functioning, unmet service needs, and mortality of the elderly sample members.
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National Medical Expenditure Survey, 1987: Household Survey, Long-Term Care Supplement [Public Use Tape 10] (ICPSR 9675)
Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1987-01-01--1988-12-31
The Long-Term Care (LTC) Supplement contains data on the functional status of persons responding to Rounds 1 and 4 of the Household Survey of the 1987 National Medical Expenditure Survey (NMES). The series of questions on functional status includes items on Activities of Daily Living (ADL) and instrumental ADL (IADL), continence, and use of special equipment. For those persons having at least one ADL or IADL difficulty, questions were asked about use of community services such as adult day care, senior centers, home-delivered and congregate meals, special transportation, and telephone assurance. Information was also sought on prior nursing home stays, and financial help from someone outside of the household. The Demographics and Sampling Weights file contains person-level data for individuals who responded for their entire period of NMES eligibility (Rounds 1, 2, 3, and 4). Each record contains person identifiers, selected characteristics including age, sex, race/ethnicity, and census region, dates of interview, a response-per-round indicator for the LTC Supplements, imputation flags for ADL/IADL, and sampling weight variables. The LTC Supplement population represented in File 2 is a subset of persons in File 1. File 2 is composed of separate records for LTC data collected during Round 1 (N=33,971) and during Round 4 (N=33,986).
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National Medical Expenditure Survey, 1987: Institutional Population Component (ICPSR 9280)
Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
This survey was designed to yield national estimates of the use of and expenditures for care during 1987 by persons who resided in nursing homes or facilities for the mentally retarded. The Facility Questionnaire was completed by administrators of 1,501 participating facilities (810 nursing homes and 691 facilities for the mentally retarded). Data records contain bed size, type of ownership, facility certification, services routinely provided, average cost, and other information. Weights, which must be used to generate nationally representative facility-level estimates, are provided. The Baseline Questionnaire file contains data collected from institutional caregivers and next of kin of 6,965 randomly sampled persons who were living in the sampled facilities on January 1, 1987. Data include sociodemographic information such as age, race, and sex. Information on residences prior to admission, measures of functional limitations and chronic conditions, and the work history of persons in facilities for the mentally retarded is also provided. Person level records can be linked to facility records and include person weights for obtaining national estimates. The documentation file includes an overview of the entire 1987 National Medical Expenditure Survey (NMES), which is expected to produce 15 files of data. The documentation provides frequencies, questionnaires, and technical information on sample design, weights, and variance estimation.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Baseline Questionnaire Data [Public Use Tape 8] (ICPSR 9677)
Released/updated on: 1992-02-17
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The 1987 National Medical Expenditure Survey (NMES) Public Use Tape 8 contains full-year data from the Baseline Questionnaire of the Institutional Population Component. It updates data in the January 1, 1987, Resident File of Public Use Tape 2, NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT (ICPSR 9280), with the addition of data on admissions to the facilities throughout 1987, as well as a revised sampling weight that adjusts for sampling frame duplication between the two kinds of facilities. The Baseline Questionnaire was administered to the sample residents' primary caregiver(s) in the facility. Other information on the sample residents' health and living experiences was gathered from next-of-kin, case managers, or other staff members. The items covered include residence history for up to five previous admissions, demographic characteristics and family composition of the sampled residents, health and functional status, medical conditions from the medical records, information on facility respondents, and, for the mentally retarded aged 18 and over, employment and training history.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Questionnaire Supplement [Public Use Tape 5] (ICPSR 9678)
Released/updated on: 1992-02-17
Geographic coverage: United States
Time period: 1988-01-01--1988-12-31
The 1987 National Medical Expenditure Survey (NMES) Public Use Tape 5 contains data from the Facility Questionnaire Supplement, which was administered during Phase 3 (early 1988) of the Survey in Institutions, a major part of the Institutional Population Component of the NMES. The Facility Questionnaire Supplement (FQS) included questions on the existence of any special Alzheimer's units in nursing homes and characteristics of these units, such as their capacity and plans for future expansion. The FQS also included some questions on nursing homes that had been asked previously only of facilities for the mentally retarded. These questions included accreditation status of the facility and provision of training for residents.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Questionnaire Weight Update [Public Use Tape 6] (ICPSR 9676)
Released/updated on: 1992-02-17
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The 1987 National Medical Expenditure Survey (NMES) Public Use Tape 6 contains data from a survey of two kinds of long-term care facilities: those for the mentally retarded, and nursing and personal care homes. The Facility Questionnaire was completed by administrators or designated staff of the participating facilities. The items include number of beds, type of ownership, facility certification, services routinely provided, staffing, average cost, sources of payment for residents, and levels of basic costs. Additional variables were collected on the facilities for the mentally retarded: education and habilitation services, licensure and accreditation, and sources of revenue in addition to direct client fees. Public Use Tape 6 differs from the data in the Facility Questionnaire file of Public Use Tape 2, National Medical Expenditure Survey, 1987: Institutional Population Component (ICPSR 9280) only in the provision of a revised sampling weight variable. The new sampling weight includes adjustment not only for different probabilities of a facility being selected, nonresponse, and stratification measures, but also for duplication in the sampling frame.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Use and Expenditure Data for Nursing and Personal Care Home Residents [Public Use Tape 17] (ICPSR 6158)
Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next of kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Public Use Tape 17 is the first release of expenditure and use data from the IPC. It provides demographic information such as race, age, sex, education, veteran status, medical history, income, family, date of admission, vital status, residence history, use of long-term care, insurance coverage, and home ownership. Additional information covers the respondent's institutional stays in 1987, dates and lengths of stays, and characteristics of the institution, including size, type, ownership, and certification status. Also provided are data on expenses and sources of payments for services rendered in nursing and personal care homes.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Use and Expenditure Data for Residents of Facilities for Persons with Mental Retardation [Research File 22r] (ICPSR 6467)
Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The NMES Research File 22R contains use and expenditure data on a nationally representative sample of persons who spent any time in facilities for persons with mental retardation during 1987. These data are from the NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT (ICPSR 9280), which is a survey of nursing/personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Variables from the person-level data include demographic characteristics (age, race, sex), admission dates, vital status during 1987 (living or deceased), residence history, spouse characteristics (age, health), insurance coverage, income, and medical conditions (epilepsy, mental retardation, schizophrenia). The institutional stay data contain one record per stay for stays associated with a formal admission and/or discharge. Variables include information on episodes of institutional care, dates of stays (beginning date and ending date), and institutional characteristics such as size, ownership, and certification status. The expenditures and sources of payment billing data contain one record per bill for each eligible facility.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Health Care Provider Utilization Data from the Institutional Use and Expenditure Questionnaire for Residents of Nursing and Personal Care Homes and Facilities for Persons with Mental Retardation [Research File 28R] (ICPSR 6732)
Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next of kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Research File 28R provides information collected in the Institutional Use and Expenditure Questionnaire (IUEQ) regarding health care providers, including Medicaid providers. The IUEQ was administered during each round of the IPC to eligible facilities in which sample persons had one or more stays. Part 1, Summary Data, includes demographic characteristics such as age, race, sex, date of admission to sampled facility, and vital status. Part 2, IUEQ Administration and Medical Provider Probes Data, supplies information on what types of medical providers were seen, frequency of any private duty nursing or attendant care services received, and whether the provider of that service was an employee or contractor of the facility, as well as frequency of emergency room and outpatient department visits. Part 3, Medical Provider Utilization Data, includes information about the type of provider, the number of times the provider was seen in total and the number of times in the facility, the number of times the sample person was seen by a provider paid by the facility, and whether that provider was an employee or a contractor of the facility.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Linked MADRS Data for Medicare Beneficiaries Sampled in Nursing and Personal Care Homes and Facilities for Persons With Mental Retardation [Research File 36R] (ICPSR 6586)
Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household Component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next-of-kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Research File 36 provides information from the Medicare Automated Data Retrieval System (MADRS) for a subset of persons from File 1 of NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT, FACILITY USE AND EXPENDITURE DATA FOR NURSING AND PERSONAL CARE HOME RESIDENTS [PUBLIC USE TAPE 17] (ICPSR 6158) and a subset of persons from File 1 of NATIONAL MEDICAL EXPENDITURE SURVEY, 1987: INSTITUTIONAL POPULATION COMPONENT, FACILITY USE AND EXPENDITURE DATA FOR RESIDENTS OF FACILITIES FOR PERSONS WITH MENTAL RETARDATION [RESEARCH FILE 22R] (ICPSR 6467). Six data files are provided for Research File 36R, all of which contain demographic data such as age, sex, and race. Other variables common to all parts are facility type, person number, sample person identifier, reimbursement amount by Medicare, and total charges reported by provider. Parts 1-6 cover, respectively, Part B Payment Records, Part B Outpatient Bill Records, Part B Home Health Bill Records, Part A Inpatient/Skilled Nursing Facilities Bill Records, Part A Home Health Bill Records, and Part A Hospice Bill Records.
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National Medical Expenditure Survey, 1987: Institutional Population Component, Personal History Questionnaire for Residents of Nursing and Personal Care Homes and End-of-Year Questionnaire for Residents of Nursing and Personal Care Homes and Facilities for Persons With Mental Retardation [Research File 19r] (ICPSR 6632)
Released/updated on: 2006-03-30
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household Component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next-of-kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Research File 19R provides information collected from two IPC questionnaires, the Personal History Questionnaire (PHQ) and the End-of-Year Questionnaire (EYQ). The PHQ was administered once as part of the surveys of next-of-kin. These data are primarily concerned with the characteristics of the sample person just prior to admission. The EYQ was administered once in either the surveys of next-of-kin or the surveys of institutions and focuses on health status. Research File 19R also includes items from the Baseline Questionnaire and the Baseline Questionnaire Supplement. Data from these questionnaires were released on NMES Public Use Tapes 8, 17, and 22R (ICPSR 9677, 6158, and 6467). Part 1 of this collection, Summary Data, includes demographic characteristics such as age, race, sex, date of admission to sampled facility, and vital status. Part 2, 1987 Personal History Questionnaire (PHQ) Data, supplies information on condition prior to admission to facility, chronic disease history, whether respondent needed help with activities of daily living (ADLs) and/or instrumental activities of daily living (IADLs), usage of assistive technology, and behavioral history. Part 3, End-of-Year Questionnaire (EYQ) Data, includes characteristics of the sample person, limitations and help with ADLs and IADLs, health and behavioral history, and condition codes reported by either the respondent or the facility medical records.
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National Nursing Home Survey, 1969 (ICPSR 9780)
Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1969-01-01--1969-12-31
This data collection is one of the earlier "resident places" surveys in the National Nursing Home Survey series. Basic information about nursing homes and their residents and discharges is included in this survey. The Facility Questionnaire contains variables on number of patients, number receiving nursing care, inpatient days of care, admissions, live discharges, place of discharge, deceased discharges, number of beds, total number of employees, and services provided. The Resident Questionnaire includes information about the resident's age, sex, race, marital status, date of admission, diagnoses, services received, aids used, mobility, hearing, vision, charges for care, and sources of payment.
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National Nursing Home Survey, 1973-1974 (ICPSR 9725)
Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1973-01-01--1974-12-31
This dataset provides information gathered in 1973 from facilities providing nursing care to their residents. Nursing homes, their staff, and residents were surveyed. Data from the facility questionnaire include services offered, type of ownership, total number of beds, total number of residents, whether facility participated in Medicare and Medicaid, 1972 admissions, discharges, and deaths, number of patients receiving specific services and treatments, number of physicians, staff hours and payroll, and expenses. The resident questionnaire generated information on each resident's age, race, marital status, date of admission, prior living arrangements, reason for admission, diagnosis, chronic conditions, services received, medication, assistance with daily activities, frequency of doctor visits, and source of payment. The staff questionnaire data include sex, race, occupation, hours worked per week, salary, and education.
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National Nursing Home Survey, 1977 (ICPSR 7946)
Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1977-01-01--1977-12-31
Data for the 1977 National Nursing Home Survey were collected in a nationwide sample of nursing homes, personal care homes (with or without nursing), and domicilary care homes. Information on staff, residents, and discharges was collected via a combination of personal interviews and self-enumerated forms. Four files are contained within this data collection. Part 1, Facility-Expense File, contains information on type of facility, certification, bed size, services and therapy routinely provided to residents or non-residents, regular and temporary admissions, vacant staff positions, facility income, and expenditures. Parts 2 and 3, Current and Discharged Resident Files, supply data on residents regarding admissions, impairments, conditions, behavioral problems, visits to a physician, services, therapy or treatments received, use of aids or need of assistance, level of care received, total charges for care, and sources and amount of payments. Part 4, Staff File, contains information on employees' job experience, services performed, hours worked, educational background, non-degree training, salaries, and benefits.
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National Nursing Home Survey, 1985 (ICPSR 8914)
Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1984-08-01--1986-01-31
The 1985 National Nursing Home Survey was designed to gather a variety of data on all types of nursing homes providing nursing care in the United States. In this collection data are available on nursing and related care facilities, services provided by the facilities, residents of the nursing homes, and discharges. Nursing home care is examined from the perspectives of both the recipients and the providers of services. Information about patients, both current and discharged, includes basic demographic characteristics, marital status, place of residence prior to admission, health status, services received, and, for discharges, the outcomes of care. A family member of both current and discharged patients was contacted by telephone to obtain data on socioeconomic status and prior episodes of health care. Facility-level data include basic characteristics such as size, ownership, Medicare/Medicaid certification, occupancy rate, and days of care provided.
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National Nursing Home Survey, 1995 (ICPSR 6998)
Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1995-07-01--1995-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1995, information regarding facility and financial characteristics was gathered from 1,409 facilities, along with current resident information for 8,056 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Through interviews with staff persons, current residents provided information on their age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. These data are contained in Part 2, Current Resident Questionnaire Data. Financial data for facilities in Part 3, Expense Questionnaire Data, were supplied by accountants and bookkeepers using self-enumerated questionnaires pertaining to payroll expenses, drug costs, total revenues, and Medicare/Medicaid payments.
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National Nursing Home Survey, 1997 (ICPSR 2855)
Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1997-07-01--1997-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1997, information regarding facility and financial characteristics was gathered from 1,406 facilities, along with current resident information for 8,138 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Part 2, Current Resident Questionnaire Data, provides information on age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Part 3, Discharged Resident Questionnaire Data, includes date of admission, reason for discharge, admission diagnosis, discharge diagnosis, assistive devices used, help needed with daily activities, services provided (health, mental health, transportation, social, educational), and payment sources.
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National Nursing Home Survey, 1999 (ICPSR 3268)
Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1999-07-01--1999-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. Between July and December 1999, information regarding facility and financial characteristics was gathered from 1,423 facilities, along with current resident information for 8,215 residents. For Part 1, Facility Questionnaire Data, personal interviews with facility administrators provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Part 2, Current Resident Questionnaire Data, provides information on age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Part 3, Discharged Resident Questionnaire Data, includes date of admission, reason for discharge, admission diagnosis, discharge diagnosis, assistive devices used, help needed with daily activities, services provided (health, mental health, transportation, social, educational), and payment sources.
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National Nursing Home Survey, 2004 (ICPSR 4651)
Released/updated on: 2007-03-23
Geographic coverage: United States
Time period: 2004-08-01--2004-12-31
The National Nursing Home Survey (NNHS) is a survey of nursing homes and related care facilities in the United States. During 2004, information regarding facility and financial characteristics was gathered from 1,174 facilities, along with current resident information for 13,507 residents, with additional information from 3,017 Nursing Assistants. The 2004 NNHS, conducted between August and December of 2004, was reintroduced into the field after a five-year break, during which time the survey was redesigned and expanded to collect many new data items using the National Nursing Assistant Survey (NNAS), which was sponsored by the Office of the Assistant Secretary for Planning and Evaluation (APSE) and is the first national study of nursing assistants working in nursing facilities in the United States. Facilities (DS 1) information was gathered through personal interviews with facility administrators and provided information on topics such as certification, availability of beds, and kinds of services provided, including dental, hospice, and nutrition. Current Residents (DS 2) information includes questions regarding age, race, marital status, level of care, and use of aids such as walkers, hearing aids, and crutches. Nursing Assistants (Part 3) information looked at the important role of nursing assistants in providing long-term care services for the growing population of the elderly and chronically ill. The NNAS gathered information regarding recruitment, education, training and licensure, job history, and family life, along with client relations, job satisfaction, and workplace environment.
Curated
National Nursing Home Survey Follow-up: Mortality Data, 1984-1990 (ICPSR 6435)
Released/updated on: 1996-01-16
Geographic coverage: United States
Time period: 1984-01-01--1990-12-31
The NATIONAL NURSING HOME SURVEY FOLLOW-UP (NNHSF) (WAVE I, 1987 [ICPSR 9813], WAVE II, 1988 [ICPSR 9838], and WAVE III, 1990 [ICPSR 6142]) is a longitudinal study that followed the cohort of current and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (NNHS) (ICPSR 8914). To generate the mortality data for this collection, 12,348 NNHSF records were matched to the National Death Index (NDI) to determine whether the NNHSF subjects who were alive at the last contact had died or if dates of death obtained during the follow-up waves were accurate. Of the 12,348 records sent to NDI for matching, 6,507 matches were found to be true or highly probable matches based on a scoring algorithm developed to determine the quality of the NDI match. These 6,507 records were then matched to the National Center for Health Statistics' Multiple Cause of Death files. Mortality data variables include the residence, marital status, education, race, and age of the decedent and the place and date of death, as well as the underlying cause of death and multiple conditions of death.
Curated
National Nursing Home Survey Follow-Up: Wave I, 1987 (ICPSR 9813)
Released/updated on: 1993-02-12
Geographic coverage: United States
Time period: 1984-01-01--1987-12-31
The National Nursing Home Survey Follow-Up (NNHSF) is a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I was administered between August and December 1987, Wave II between July and November 1988 (ICPSR 9838), and Wave III between February and April 1990. Data are available on the subject's vital status, living arrangements, nursing home stays, hospital stays, and source of payment for hospital and nursing home stays.
Curated
National Nursing Home Survey Follow-Up: Wave II, 1988 (ICPSR 9838)
Released/updated on: 1993-02-12
Geographic coverage: United States
Time period: 1987-01-01--1988-12-31
The National Nursing Home Survey Follow-Up (NNHSF) is a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I was administered between August and December 1987 (ICPSR 9813), Wave II between July and November 1988, and Wave III between February and April 1990. Data are available on the subject's vital status, living arrangements, nursing home stays, hospital stays, and source of payment for hospital and nursing home stays occurring between the Wave I and Wave II interviews.
Curated
National Nursing Home Survey Follow-Up: Wave III, 1990 (ICPSR 6142)
Released/updated on: 1993-10-11
Geographic coverage: United States
Time period: 1990-01-01--1990-12-31
The 1990 National Nursing Home Survey Follow-Up (NNHSF) is part of a longitudinal study that followed the cohort of current residents and discharged residents sampled in the NATIONAL NURSING HOME SURVEY, 1985 (ICPSR 8914). The NNHSF extends the period of observation of these utilization patterns by approximately five years after the baseline nursing home interview. The primary purpose is to provide data on the flow of persons in and out of long-term care facilities and hospitals. The NNHSF was conducted in three waves. Wave I (ICPSR 9813) was conducted between August and December 1987, Wave II (ICPSR 9838) between July and November 1988, and Wave III between January and April 1990. For Wave III, information was collected on vital status, nursing home and hospital utilization since the last contact, current living arrangements, Medicare number, and source of payment. Information concerning the disposition of the subject's home was collected in Section J. Since these questions were only asked in Wave III, the information is not available for subjects who were known to be deceased at the time of the facility contact, the Next Of Kin survey, or Wave I or II of the follow-up. Those eligible for Section J represent a very select subgroup of the original cohort. In addition, 187 residents who were eligible for Section J did not receive the questionnaire because an appropriate respondent could not be identified.
Curated
National Senior Citizens Survey, 1968 (ICPSR 7626)
Released/updated on: 2005-11-04
Geographic coverage: United States
Time period: 1968-01-01--1968-12-31
This data collection contains the responses to a 1968 National Senior Citizens Survey of 3,996 noninstitutionalized persons 65 years of age and older in a national sample of the continental United States. The primary emphasis of the survey was to determine the impact of environmental attributes on some aspects of aging, primarily life satisfaction, social relationships, and knowledge and use of services. Also of interest were the interrelationships among environment, social relationships, and morale. Administered with personal interviews, the survey focused on characteristics of the respondent's residential environment (e.g., physical characteristics of home and neighborhood, value of property, and work/retirement status), social relationships (e.g., organization memberships, family relationships, and number of activities involved in), morale (e.g., self-concept, stated happiest time of life, attitudes about the state of the world), and health (e.g., number of doctor visits in past year, number of times health status interfered with activities, and self rating of physical health). General demographic characteristics are also included.