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The Hispanic EPESE provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups.

The Wave 8 dataset comprises the seventh follow-up of the baseline Hispanic EPESE (HISPANIC ESTABLISHED POPULATIONS FOR THE EPIDEMIOLOGIC STUDIES OF THE ELDERLY, 1993-1994: [ARIZONA, CALIFORNIA, COLORADO, NEW MEXICO, AND TEXAS] [ICPSR 2851]). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five southwestern states of Arizona, California, Colorado, New Mexico, and Texas.

The public-use data cover demographic characteristics (age, sex, marital status), height, weight, BMI, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of hospital and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues.

During this 8th Wave, 2012-2013, re-interviews were conducted either in person or by proxy, with 452 of the original respondents. This Wave also includes 292 re-interviews from the additional sample of Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort who were added in Wave 5, increasing the total number of respondents to 744.

The Mexican Health and Aging Study (MHAS) is a national longitudinal study of adults 50 years and older in Mexico. The study is a collaborative effort among researchers from the Universities of Pennsylvania, Maryland, and Wisconsin in the United States, and the Instituto Nacional de Estadistica, Geografia e Informatica (INEGI) in Mexico.

The baseline survey includes a nationally representative sample of Mexicans aged 50 and over and their spouse/partners regardless of their age. A direct interview was sought with each individual, and proxy interviews were obtained when poor health or temporary absence precluded a direct interview. Topics covered include: health behavior and health status, childhood and family background, migration history, sources and amounts of income, and housing environment.

The MHAS is partly supported by the National Institutes of Health/National Institute on Aging and the INEGI in Mexico. The MHAS was designed as a longitudinal study with protocols highly comparable to the Health and Retirement Study (HRS) of the United States.

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.

The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.

Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.

Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.

From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.

Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).

Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.

The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.

The National Long-Term Care Survey (NLTCS) has completed six waves, nominally at five-year intervals, 1982, 1984, 1989, 1994, 1999, and 2004. The NLTCS is a nationally-representative sample both of the community and of institutionalized populations and is longitudinal in that sample persons join the survey once they reach 65 years of age and stay in the survey until they either die or are lost to follow-up. At each wave, a screener questionnaire is administered to the sample which divides the sample into three parts: the non-disabled (frequently called screen-outs), the disabled but living in the community, and the disabled living in an institution. About 5,000 people die between waves and are replaced by a sample of about that size of people who have become age 65 since the prior wave. Because of budget considerations it usually has not been possible to continue the entire non-disabled sample into the next wave. Instead a sample of the non-disabled is drawn to keep the total sample size for a wave at about 20,000. One of the interesting and useful features of the NLTCS is that data are collected on help that the sample person receives from informal caregivers.

The NLTCS is a very data-rich resource with many components, including disability measures, medical conditions, attained education levels, and income. Numerous papers have used it as a source of data addressing a wide variety of topics related to aging and disability.

Ancillary surveys have been added to measure other characteristics of the 65 and older population, to include a Caregiver Survey to acquire data on informal caregivers themselves (done in 1989, 1999, and 2004) and Next-of-Kin (NOK) surveys administered to sample persons who had died between 1982 and 1984 and again between 1994 and 1999. The sample has been frequently supplemented to compensate for low representation in some survey components, in particular the 75 years and older and 95 years and older components. In 1999 physical specimens were drawn from a sample of persons who responded to the survey. These physical specimens (blood where possible, alternatively a buccal wash) are subject to a genetic analysis and, in the case of blood, to a panel of proteins believed to be particularly important to health.

NLTCS Survey Data

Survey data are available in ASCII and SAS format.

The Analytic Data File, a file of derived variables for all waves of the survey incorporates correction factors and consistency checking. The Analytic Data File covers all waves of the survey and is available in both ASCII and SAS formats. Final versions of data for all waves, up to and including 1999 and a beta version for 2004, have been released and are supported by documentation.

The National Survey of Families and Households (NSFH), Wave 2 1992-1994, a longitudinal population-based survey of families and households in the United States, investigates the causes and consequences of changes in American family and household structure. This is the second wave of a three part survey. The current study, NSFH Wave 2, is the second follow up and was conducted in 1992-1994. The sample included all NSFH Wave 1 main respondents and spouse/partner with focal children and all other NSFH Wave 1 main respondents ages 45 and over in 2000, as well as their NSFH Wave 1 spouse/partner.

The Wave 2 survey included the following components: (1) an interview of all surviving members of the original sample via face-to-face personal interview, (2) a personal interview with the current spouse or cohabiting partner almost identical to the interview with the main respondent, (3) a personal interview with the original spouse or partner of the primary respondent in cases where this relationship had ended, (4) a telephone interview with "focal children" who were originally aged 13-18 in Wave 1, (5) a short telephone interview with "focal children" who were originally aged 5-12 in Wave 1, (6) short proxy interviews with a surviving spouse or other relative in cases where the original respondent had died or was too ill to interview, and (7) a telephone interview with a randomly-selected parent of the main respondent. Demographic information collected includes sex, age, marital status, education, and employment

This data collection is part of a longitudinal survey designed to provide detailed information on the economic situation of households and persons in the United States. These data examine the distribution of income, wealth, and poverty in American society and gauge the effects of federal and state programs on the well-being of families and individuals.

There are three basic elements contained in the survey. The first is a control card that records basic social and demographic characteristics for each person in a household, as well as changes in such characteristics over the course of the interviewing period. The second element is the core portion of the questionnaire, with questions repeated at each interview on labor force activity, types and amounts of income, participation in various cash and noncash benefit programs, attendance in post-secondary schools, private health insurance coverage, public or subsidized rental housing, low-income energy assistance, and school breakfast and lunch participation. The third element consists of topical modules, which are a series of supplemental questions asked during selected household visits.

Topical modules include some core data to help link individuals to the core files.

A topical module was not created for the first wave of the 1991 Panel. The Wave 2 Topical Module (Part 5) covers employment, work disability, education and training, marital status, migration, fertility history, and receipt of benefits from government programs. The Wave 3 Topical Module (Part 9) includes data concerning work schedule, child care, child support agreements, support for nonhousehold members, functional limitations and disability, and utilization of health care services. Data in the Wave 4 Topical Module (Part 13) include selected financial assets, medical expenses and work disability, real estate, shelter costs, dependent care, and vehicles. The Wave 5 Topical Module (Part 17) covers annual income and retirement accounts, taxes, and school enrollment and financing. The Wave 6 Topical Module (Part 20) includes information on consumer durables, living conditions, and basic needs. The Wave 7 Topical Module (Part 22) focuses on assets and liabilities, retirement expectations and pension plan coverage, and real estate property and vehicles. The Wave 8 Topical Module (Part 24) covers school enrollment and financing. Part 26 of this study is the Wave 5 Topical Module Microdata Research File, an unedited version of Part 17. This research file has not been edited nor imputed but has been topcoded or bottomcoded and recoded if necessary by the Census Bureau to avoid disclosure of individual respondents' identities.