Americans View Their Mental Health, 1957 (ICPSR 3503)
Chicago Community Adult Health Study, 2001-2003 (ICPSR 31142)
The Chicago Community Adult Health Study (CCAHS) consists of four interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop (Milgram et al. 1965) as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods (PHDCN) in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NCs). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. The CCAHS is the largest of five projects under the NIH-funded Michigan Interdisciplinary Center on Social Inequalities, Mind and Body Mind (#P50HD38986), one of five Mind-Body Centers funded by the National Institutes of Health in late 1999. This study will advance the understanding of socioeconomic and racial/ethnic disparities in health, a major priority of the Public Health Service and the National Institutes of Health.
The PI-supplied summary mentions that the study is comprised of four components. However, for the purposes of this data release there are three distinct datasets. Demographic variables include age, birth year, race, ethnicity, number of children in the household, number of children living elsewhere, number of times the respondent has been married, and relationship status, religious preference, and sex.
Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)
Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)
Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)
Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)
Euro-Barometer 32: The Single European Market, Drugs, Alcohol, and Cancer, November 1989 (ICPSR 9519)
Euro-barometer 34.1: Health Problems, Fall 1990 (ICPSR 9577)
Euro-barometer 37.1: Consumer Goods and Social Security, April-May 1992 (ICPSR 9957)
Health and Ways of Living Study, 1965 Panel: [Alameda County, California] (ICPSR 6688)
National Poll on Healthy Aging (NPHA), [United States], April 2017 (ICPSR 37305)
By tapping into the perspectives of older adults and their caregivers, the University of Michigan National Poll on Healthy Aging (NPHA) helps inform the public, health care providers, policymakers, and advocates on issues related to health, health care and health policy affecting Americans 50 years of age and older.
The poll is designed as a recurring, nationally representative household survey of U.S. adults, which allows assessment of issues in a timely fashion.
Launched in spring 2017, the NPHA is modeled after the highly successful University of Michigan C.S. Mott Children's Hospital National Poll on Children's Health. The NPHA grew out of a strong interest in aging-related issues among many members of the University of Michigan Institute for Healthcare Policy and Innovation (IHPI), which brings together more than 600 faculty who study health, health care and the impacts of health policy. IHPI directs the poll which is sponsored by AARP and Michigan Medicine, the University of Michigan academic medical center.
More waves of the NPHA data can be found on the NACDA-OAR site:
- National Poll on Healthy Aging (NPHA), [United States], October 2017
- National Poll on Healthy Aging (NPHA), [United States], March 2018
- National Poll on Healthy Aging (NPHA), [United States], October 2018
- National Poll on Healthy Aging (NPHA), [United States], May 2019
The various waves of NPHA represent separate samples of participants and cannot be joined or merged.
National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)
The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.
Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.
The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.
National Social Life, Health, and Aging Project (NSHAP): Round 4, [United States], 2021-2023 (ICPSR 39511)
The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The study team collected data for Round 4 of this study from 2021 through 2023 and covered the following subjects: bereavement, caregiving, elder mistreatment, employment, functional health, health behaviors, mental and physical health, cognitive function, neighborhood information, sexual interest and activity, social activity, and familial and friend support.
Puerto Rican Elder: Health Conditions (PREHCO) Project, 2021-2024 (ICPSR 39091)
These are the third and fourth waves of the PREHCO project (Puerto Rican Elder Health Conditions study) and have been developed between 2021 and 2024 as a collaboration between the University of Alabama at Birmingham and the University of Puerto Rico. The project began as a cross-sectional study of the non-institutionalized population aged 60 years or older in Puerto Rico. These waves followed the survivors of the original participants at the beginning of the fieldwork and aimed to examine the predictors of cognitive decline, disability, and mortality. The fourth wave of this study extends the follow-up of PREHCO to between 21 and 22 years after the initial data collection and aims to examine the predictors of cognitive decline, disability, and mortality.
PREHCO was designed as a study comparable to the Multicenter Project on Health and Well-being of Older Adults in Latin America and the Caribbean (SABE) developed by the Pan American Health Organization (PAHO) in several cities in Latin America, and with some studies carried out in the United States, mainly the Health and Retirement Study (HRS).
For this purpose, a questionnaire was designed that included sections on health conditions, physical and mental disability, functionality, use of medicines, health needs and social services, access to and use of health services, abuse, migration, housing conditions, patterns of help from family, community and public and government agencies, and others.
Since its inception, PREHCO has been funded with federal funds from the National Institute on Aging (NIA). Initially it was a project between the University of Wisconsin-Madison and the University of Puerto Rico from 2000-2009.
Puerto Rican Elderly: Health Conditions (PREHCO) Project, 2002-2003, 2006-2007 (ICPSR 34596)
Religion, Aging, and Health Survey, 2001, 2004 [United States] (ICPSR 3255)
Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04 (ICPSR 30181)
Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)
Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)
Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)
Study of Women's Health Across the Nation (SWAN), 2004-2006: Visit 08 Dataset (ICPSR 32122)
Study of Women's Health Across the Nation (SWAN), 2005-2007: Visit 09 Dataset (ICPSR 32721)
Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)
Study of Women's Health Across the Nation (SWAN): Baseline Dataset, [United States], 1996-1997 (ICPSR 28762)
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.
The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1996 and 1997, 3,302 participants joined SWAN through 7 designated research centers. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. This is the next phase of data collection after the original collection of the screening data (ICPSR 4368).
Study of Women's Health Across the Nation (SWAN): Cross-Sectional Screener Dataset, [United States], 1995-1997 (ICPSR 4368)
This collection includes screener data collected as part of the Study of Women's Health Across the Nation (SWAN), which is a multi-site longitudinal, epidemiologic study which began in 1994 and was designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. This data includes questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).
The SWAN study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The screener dataset contains information from 16,142 women who responded to the SWAN cross-sectional screening interview during the period from 11/1/1995 through 12/1/1997 from the 7 clinical sites participating in the SWAN longitudinal study. The sites include Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.
The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
Study of Women's Health Across the Nation (SWAN): Visit 02 Dataset, [United States], 1998-2000 (ICPSR 29401)
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).
The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1998 and 2000, 2,748 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.
The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
Study of Women's Health Across the Nation (SWAN): Visit 04 Dataset, [United States], 2000-2002 (ICPSR 30142)
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.
The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 2000 and 2002, 2,679 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
Survey of Health Services Utilization and Expenditures, 1963 (ICPSR 7741)
Survey of Health Services Utilization and Expenditures, 1970 (ICPSR 7740)
Survey of Long-Term Care Awareness and Planning, 2014 [United States] (ICPSR 36969)
The Survey of Long-Term Care Awareness and Planning was designed to measure the attitudes of Americans ages 40-70 towards long-term care (LTC), retirement planning, and insurance policy preferences. Few people have private LTC insurance, and Medicare does not cover LTC. Many older adults pay for LTC out of their income and personal savings until they are poor enough to qualify for Medicaid. Others, to avoid exhausting their financial resources and relying on Medicaid, depend on unpaid family support or go without needed services. The Survey of Long-Term Care Awareness and Planning collected data on LTC in order to help inform federal policy in this area.
The survey collected respondents' current health information, willingness to take risks, plans for disability care, retirement preparation, and insurance coverage. Part of the survey was a discrete choice experiment (DCE) or conjoint analysis designed to elicit respondent preferences on specific features of LTC insurance. This section included choices on daily benefit, benefit period, deductible period, health requirements, type of insurer, monthly premium, and voluntary or universal. Respondents were also asked about the types of investments they had, where they received health information, opinions on the US healthcare system, whether they had been diagnosed with specific health conditions, willingness to make lifestyle changes due to a disability, concerns about long-term disability care, and opinions on who should be responsible for the costs of LTC. Demographic information collected includes age, education, household size, race, gender, income, marital status, and region.