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Showing 1 – 32 of 32 results.
Curated

Americans View Their Mental Health, 1957 (ICPSR 3503)

Released/updated on: 1992-02-16
Geographic coverage: United States
In 1957, the United States Congress established the Joint Commission on Mental Illness and Health to evaluate the nation's resources for coping with both the psychological and economic problems of mental illness. The Commission sponsored a nationwide survey, which was conducted by the Survey Research Center at the University of Michigan, to assess the subjective mental health of "normal" American adults and to determine in detail how they coped with problems of adjustment. During the spring of 1957, a sample of American adults was interviewed on various areas in which problems might arise, including marriage, parenthood, employment, and general social relationships. Information about leisure time, past and present physical and mental health, and motives for affiliation, achievement, and power were also sought. Three questionnaire forms were employed, each addressed to a randomly selected third of the sample.
Curated

Chicago Community Adult Health Study, 2001-2003 (ICPSR 31142)

Released/updated on: 2012-07-11
Geographic coverage: United States, Chicago, Illinois
Time period: 2001-01-01--2003-01-01

The Chicago Community Adult Health Study (CCAHS) consists of four interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop (Milgram et al. 1965) as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods (PHDCN) in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NCs). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. The CCAHS is the largest of five projects under the NIH-funded Michigan Interdisciplinary Center on Social Inequalities, Mind and Body Mind (#P50HD38986), one of five Mind-Body Centers funded by the National Institutes of Health in late 1999. This study will advance the understanding of socioeconomic and racial/ethnic disparities in health, a major priority of the Public Health Service and the National Institutes of Health.

The PI-supplied summary mentions that the study is comprised of four components. However, for the purposes of this data release there are three distinct datasets. Demographic variables include age, birth year, race, ethnicity, number of children in the household, number of children living elsewhere, number of times the respondent has been married, and relationship status, religious preference, and sex.

Curated
Partially restricted

Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-01, 1997-10-01--1998-08-01
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
Curated
Partially restricted

Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
Curated
Partially restricted

Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
Curated
Partially restricted

Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-01-01
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
Curated

Euro-Barometer 32: The Single European Market, Drugs, Alcohol, and Cancer, November 1989 (ICPSR 9519)

Released/updated on: 1996-12-10
Geographic coverage: United Kingdom, Portugal, Global, Spain, Greece, Netherlands, Belgium, Luxembourg, Ireland, Denmark, Italy, France, Germany
Time period: 1989-10-12--1989-11-22
This round of Euro-Barometer surveys had for its major focus issues involving drugs, alcohol, cancer, and the single European market. Respondents were asked to consider the influence of the environment, the anticipated effects of the Single Market of 1992, and the repercussions of an aging population on public health. Moreover, respondents were asked to identify and prioritize the most serious health problems facing the European Community, and also to evaluate the various efforts being made to combat these problems. Health topics addressed included drugs and drug addiction, cancer, smoking, alcoholism, AIDS, cardiovascular disease, education, diet, and vaccinations. Other major questions involved additional effects of the Single European Market of 1992, and whether certain issues of public policy should be decided by national governments or jointly within the European Community. Also, the survey gauged respondents' perceptions of the European Parliament and the Commission of the European Communities, along with categorizing opinions on the Soviet Union and President Gorbachev, the United States and President Bush, the role and relevance of NATO, U.S. military presence in Western Europe, and the possibility of economic cooperation with Poland and Hungary. Respondents were also asked to give examples of why they felt the United Nations was doing either a good or a poor job in solving the problems it had to face, to name various agencies and institutions that were part of the United Nations, and to identify the Secretary General of the United Nations. Respondents were queried regarding their source of information and education on the United Nations, and were asked to indicate their level of interest in receiving more information on pertinent United Nations issues. As in previous Euro-Barometers, questions on political party preference asked respondents which party they felt the closest to, how they voted in their country's last general election, how they would vote if a general election were held tomorrow, and, if not sure, which party they would be most inclined to vote for. Respondents were also asked to comment on the ideal number of children a family should have, factors influencing the number of children parents decide to have, the role of the family in society, and what government can do to improve life for families. Other items included life satisfaction, use of and attitudes toward dairy products, interest in politics, priority of national goals, political party membership, and union membership. Additional information was gathered on family income, number of people residing in the home, size of locality, region of residence, occupation of the head of household, and the respondent's age, sex, occupation, education, religion, religiosity, subjective social class standing, socio-professional status, and left-right political self-placement.
Curated

Euro-barometer 34.1: Health Problems, Fall 1990 (ICPSR 9577)

Released/updated on: 2001-02-01
Geographic coverage: Europe, United Kingdom, Portugal, Global, Spain, Greece, Netherlands, Belgium, Luxembourg, Ireland, Denmark, Italy, France, Germany
Time period: 1990-10-16--1990-11-27
This round of Euro-Barometer surveys queried respondents on standard Euro-Barometer measures, such as how satisfied they were with their present life, whether they attempted to persuade others close to them to share their views on subjects they held strong opinions about, whether they discussed political matters, what their country's goals should be for the next ten or fifteen years, and how they viewed the need for societal change. The surveys also focused on health problems. Questions about smoking examined whether the respondent had heard of the European Code Against Cancer and whether the respondent smoked. Smokers were asked what tobacco products they used, how many cigarettes they smoked in a day, and whether they planned to cut down on their tobacco consumption. Queries focusing on other health issues included respondents' subjective ratings of their health and diet, the basis for their foodstuff selections, the extent and impact of alcohol consumption on their driving, the extent of the problem of drinking and driving, how the problem of drinking and driving would be best addressed, and respondents' own use of alcohol. Opinions on alcohol and drug abuse were elicited through questions such as what type of problem the respondent considered alcohol and drug use to be, whether current measures were enough to solve abuse, what measures should be taken to solve the problems, the respondent's knowledge of drugs and the use of drugs, drug use among acquaintances, and how drug testing should be implemented. AIDS-related items focused on how the respondent thought AIDS could be contracted and which manner of transmission the respondent most feared, which interventions should be used to eliminate or to slow the spread of AIDS, which interventions should be undertaken by the European Community, how best to handle those who had AIDS or were HIV-positive, whether the respondent personally knew anyone with AIDS/HIV+, how the emergence and spread of AIDS had changed the respondent's personal habits, and what precautions were effective against contracting AIDS. Questions concerning the respondent's work history asked whether there had been periods without work lasting more than a year. A series of items focused on the longest period without pay: how long the period was, the age of the respondent during this period, the main reason for leaving the previous job, what the previous occupation was and whether it was part-time, what the new occupation was and whether it was part-time, and how the level of the new occupation compared to the previous occupation. The interaction of raising children and pursuing a career was investigated through questions including how many children the respondent had, what effect changes in family life had on working life, whether the respondent worked full- or part-time while raising children, and whether the respondent would prefer to care for children full-time, care for children part-time and work part-time, or work full-time. A series of questions pertained to the period prior to the respondent's first three children attending school: whether the respondent worked during this period, what the respondent's occupation was, the attributes of the occupation that concerned the family, the attributes of the partner's occupation that concerned the family, who the primary caregivers were, whether the partner was the primary caregiver, and whether there were difficulties making last-minute arrangements for child care. Additional information was gathered on family income, number of people residing in the home, size of locality, home ownership, region of residence, occupation of the head of household, and the respondent's age, sex, occupation, education, religion, religiosity, subjective social class standing, political party and union membership, and left-right political self-placement.
Curated

Euro-barometer 37.1: Consumer Goods and Social Security, April-May 1992 (ICPSR 9957)

Released/updated on: 2000-09-25
Geographic coverage: United Kingdom, Portugal, Global, Spain, Greece, Netherlands, Belgium, Luxembourg, Ireland, Denmark, Italy, France, Germany
Time period: 1992-04-20--1992-05-24
This round of Euro-Barometer surveys queried respondents on standard Euro-Barometer measures such as public awareness of and attitudes toward the Common Market and the European Community (EC), and also focused on consumer goods, Social Security, health care and health care benefits, the elderly, retirement, and alcohol and drug use. Questions concerning consumer goods asked whether respondents read product information before purchasing, what additional product information they would like to see, what three things other than price were most important in deciding whether to purchase an item, and whether it was necessary to have the same type of product information available for all members of the European Community (EC). Respondents' attitudes and opinions on Social Security were probed with questions that asked whether they agreed that Social Security properly protects the unemployed, the elderly, the sick or disabled, those with work-related injuries or illness, and the poor. Respondents were also asked whether policies on pensions, minimum income, and unemployment should be decided by national governments or by the EC, and whether foreigners should have the same Social Security benefits as citizens. The general health of respondents and their health care benefits were assessed through questions that asked whether they had a long-standing illness, disability, or infirmity, whether they had cut down their activity due to illness or injury, and whether they had taken medicine or talked to a doctor within the last 30 days. Respondents were also queried about which conditions they would see a doctor for and what type of examinations they had had in the past three years. Respondents were asked to rate what they paid for various medical services, the general quality of their health care, and the nature and availability of health insurance. The main problems facing the elderly and the role the elderly play in society were also topics of investigation in this survey. Questions elicited respondents' views toward possible changes in pension terms, whether retirement should occur at a fixed age, what types of discrimination affect the elderly who are working, whether the government should introduce laws to try to stop age discrimination, whether a minimum level of income should be provided to the elderly, and whether the elderly needing personal care should go into residential/nursing homes or should have social services help them remain in their homes for as long as possible. Respondents were also asked whether they provided long-term care to anyone either living with them or not living with them, who was in the best position to decide which services are most important for the elderly, what the best method of financing long-term care for the elderly was, and whether the EC was doing enough with regard to the elderly. Questions on retirement dealt with what ages respondents retired/planned to retire, whether the retired felt their pensions to be adequate, whether working people looked forward to retiring, whether pensions should be extended to widows and dependent children, whether pensions should be reduced for those who work for earned income beyond retirement, and whether pensions should be provided through government taxation, employer/employee contributions, or private contracts between workers and pension companies. Queries about alcohol and drug usage probed the use of beer, wine, spirits, and other forms of alcohol, age at which the respondent began drinking, familiarity with major forms of drugs, age at which drugs were first offered, how difficult it was to get drugs, and the means available for getting drugs. Additional questions focused on how the respondent viewed the drug problem, the top priority in eliminating the drug problem, diminishing the effects of drug use, whether drug use leads to AIDS, prostitution, health problems, social problems, violence, suicide, personality breakdowns, and problems with the law, and the major reasons for alcohol and drug use. Demographic and other background information was gathered on life satisfaction, number of people residing in the home, size of locality, home ownership, trade union membership, region of residence, and occupation of the head of household, as well as the respondent's age, sex, marital status, education, occupation, work sector, religiosity, subjective social class, use of media, left-right political self-placement, and opinion leadership.
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Simple Crosstabs

Health and Ways of Living Study, 1965 Panel: [Alameda County, California] (ICPSR 6688)

Released/updated on: 2013-12-04
Geographic coverage: United States, California
The purpose of this survey was to explore the influence of health practices and social relationships on the physical and mental health of a typical sample of the population in Alameda County, California. The information obtained for the 6,928 respondents (including approximately 500 women aged 65 years and older) covers chronic health conditions, health behaviors, social involvements, and psychological characteristics. Questions were asked about marital and life satisfaction, parenting, physical activities, employment, and childhood experiences. Demographic variables include data on respondetns' age, race, height, weight, education, income, and religion.
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Simple Crosstabs

National Poll on Healthy Aging (NPHA), [United States], April 2017 (ICPSR 37305)

Released/updated on: 2019-05-29
Geographic coverage: United States

By tapping into the perspectives of older adults and their caregivers, the University of Michigan National Poll on Healthy Aging (NPHA) helps inform the public, health care providers, policymakers, and advocates on issues related to health, health care and health policy affecting Americans 50 years of age and older.

The poll is designed as a recurring, nationally representative household survey of U.S. adults, which allows assessment of issues in a timely fashion.

Launched in spring 2017, the NPHA is modeled after the highly successful University of Michigan C.S. Mott Children's Hospital National Poll on Children's Health. The NPHA grew out of a strong interest in aging-related issues among many members of the University of Michigan Institute for Healthcare Policy and Innovation (IHPI), which brings together more than 600 faculty who study health, health care and the impacts of health policy. IHPI directs the poll which is sponsored by AARP and Michigan Medicine, the University of Michigan academic medical center.

More waves of the NPHA data can be found on the NACDA-OAR site:

  • National Poll on Healthy Aging (NPHA), [United States], October 2017
  • National Poll on Healthy Aging (NPHA), [United States], March 2018
  • National Poll on Healthy Aging (NPHA), [United States], October 2018
  • National Poll on Healthy Aging (NPHA), [United States], May 2019

The various waves of NPHA represent separate samples of participants and cannot be joined or merged.

Curated
Partially restricted
Simple Crosstabs

National Social Life, Health, and Aging Project (NSHAP): Round 3 and COVID-19 Study, [United States], 2015-2016, 2020-2021 (ICPSR 36873)

Released/updated on: 2024-09-09
Geographic coverage: United States
Time period: 2015-01-01--2016-01-01, 2020-01-01--2021-01-01

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The National Opinion Research Center (NORC), along with Principal Investigators at the University of Chicago, conducted more than 3,000 interviews during 2005 and 2006 with a nationally representative sample of adults aged 57 to 85. Face-to-face interviews and biomeasure collection took place in respondents' homes. Round 3 was conducted from September 2015 through November 2016, where 2,409 surviving Round 2 respondents were re-interviewed, and a New Cohort consisting of adults born between 1948 and 1965 together with their spouses or co-resident partners was added. All together, 4,777 respondents were interviewed in Round 3. The following files constitute Round 3: Core Data, Social Networks Data, Disposition of Returning Respondent Partner Data, and Proxy Data.

Included in the Core files (Datasets 1 and 2) are demographic characteristics, such as gender, age, education, race, and ethnicity. Other topics covered respondents' social networks, social and cultural activity, physical and mental health including cognition, well-being, illness, history of sexual and intimate partnerships and patient-physician communication, in addition to bereavement items. In addition data on a panel of biomeasures including, weight, waist circumference, height, and blood pressure was collected. The Social Networks (Datasets 3 and 4) files detail respondents' current relationship status with each person identified on the network roster. The Disposition of Returning Respondent Partner (Datasets 5 and 6) files detail information derived from Section 6A items regarding the partner from Rounds 1 and 2 within the questionnaire. This provides a complete history for respondent partners across both rounds. The Proxy (Datasets 7 and 8) files contain final health data for Round 1 and Round 2 respondents who could not participate in NSHAP due to disability or death.

The COVID-19 sub-study, administered to NSHAP R3 respondents in the Fall of 2020, was a brief self-report questionnaire that probed how the coronavirus pandemic changed older adults' lives. The COVID-19 sub-study questionnaire was limited to assessing specific domains in which respondents may have been affected by the coronavirus pandemic, including: (1) COVID experiences, (2) health and health care, (3) job and finances, (4) social support, (5) marital status and relationship quality, (6) social activity and engagement, (7) living arrangements, (8) household composition and size, (9) mental health, (10) elder mistreatment, (11) health behaviors, and (12) positive impacts of the coronavirus pandemic. Questions about engagement in racial justice issues since the death of George Floyd in police custody were also added to facilitate analysis of the independent and compounding effects of both the COVID-19 pandemic and reckoning with longstanding racial injustice in America.

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National Social Life, Health, and Aging Project (NSHAP): Round 4, [United States], 2021-2023 (ICPSR 39511)

Released/updated on: 2025-10-08
Geographic coverage: United States

The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.

The study team collected data for Round 4 of this study from 2021 through 2023 and covered the following subjects: bereavement, caregiving, elder mistreatment, employment, functional health, health behaviors, mental and physical health, cognitive function, neighborhood information, sexual interest and activity, social activity, and familial and friend support.

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Simple Crosstabs

Puerto Rican Elder: Health Conditions (PREHCO) Project, 2021-2024 (ICPSR 39091)

Released/updated on: 2026-03-31
Geographic coverage: Puerto Rico, United States
Time period: 2021-03-01--2024-07-31

These are the third and fourth waves of the PREHCO project (Puerto Rican Elder Health Conditions study) and have been developed between 2021 and 2024 as a collaboration between the University of Alabama at Birmingham and the University of Puerto Rico. The project began as a cross-sectional study of the non-institutionalized population aged 60 years or older in Puerto Rico. These waves followed the survivors of the original participants at the beginning of the fieldwork and aimed to examine the predictors of cognitive decline, disability, and mortality. The fourth wave of this study extends the follow-up of PREHCO to between 21 and 22 years after the initial data collection and aims to examine the predictors of cognitive decline, disability, and mortality.

PREHCO was designed as a study comparable to the Multicenter Project on Health and Well-being of Older Adults in Latin America and the Caribbean (SABE) developed by the Pan American Health Organization (PAHO) in several cities in Latin America, and with some studies carried out in the United States, mainly the Health and Retirement Study (HRS).

For this purpose, a questionnaire was designed that included sections on health conditions, physical and mental disability, functionality, use of medicines, health needs and social services, access to and use of health services, abuse, migration, housing conditions, patterns of help from family, community and public and government agencies, and others.

Since its inception, PREHCO has been funded with federal funds from the National Institute on Aging (NIA). Initially it was a project between the University of Wisconsin-Madison and the University of Puerto Rico from 2000-2009.

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Simple Crosstabs

Puerto Rican Elderly: Health Conditions (PREHCO) Project, 2002-2003, 2006-2007 (ICPSR 34596)

Released/updated on: 2013-09-13
Geographic coverage: Puerto Rico, United States
Time period: 2002-01-01--2007-01-01
The Puerto Rican Elderly: Health Conditions (PREHCO) study investigates issues affecting the elderly (individuals over 60 years of age) population in Puerto Rico: health status, housing arrangements, functional status, transfers, labor history, migration, income, childhood characteristics, health insurance, use of health services, marital history, mistreat, sexuality, etc. It is an island-wide, longitudinal sample survey of target individuals and their spouses with two waves of data collection: 2002-2003 and 2006-2007.
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Religion, Aging, and Health Survey, 2001, 2004 [United States] (ICPSR 3255)

Released/updated on: 2006-04-17
Geographic coverage: United States
This data collection looks at religion, self-rated health, depression, and psychological well-being in a sample of older Blacks and older Whites (aged 65 and over) within the United States. Questions were asked regarding religious status, activities, and beliefs among those who currently practice the Christian faith, those who used to be Christian but are not now, and those who have never been associated with any religion during their lifetimes. Demographic variables include age, race, sex, education, and income. Wave II was collected in 2004 and reinterviewed 1,024 respondents. There were 75 respondents who refused to participate, 112 who could not be located, 70 that were too ill for participation, 11 who had moved to nursing homes and 208 were deceased.
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Study of Women's Health Across the Nation (SWAN), 1998-2001: Family Medical History From Visits 02, 03, and 04 (ICPSR 30181)

Released/updated on: 2014-02-13
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 1998-02-15--2001-06-01
The Study of Women's Health Across the Nation (SWAN) is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The study is co-sponsored by the National Institute on Aging (NIA) and the National Institute of Health (NIH), Office of Research on Women's Health. The study began in 1994. Between 1998 and 2001, 2,829 of the 3,302 women that joined SWAN participated in a collection of family history data. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Almeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente); Los Angeles, CA (University of California, Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)

Released/updated on: 2025-08-05
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2001-03-01--2003-02-15
The Study of Women's Health Across the Nation (SWAN), is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2001 and 2003, 2,617 of the 3,302 women that joined SWAN were seen for their fifth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis, and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)

Released/updated on: 2025-06-30
Geographic coverage: Inkster, Hackensack, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2002-03-15--2004-02-15
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2002 and 2004, 2,448 of the 3,302 women that joined SWAN were seen for their sixth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)

Released/updated on: 2025-07-10
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2003-05-15--2005-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2003 and 2005, 2,327 of the 3,302 women that joined SWAN were seen for their seventh follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the seventh visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2004-2006: Visit 08 Dataset (ICPSR 32122)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2004-03-15--2006-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2004 and 2006, 2,278 of the 3,302 women that joined SWAN were seen for their eighth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the eighth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2005-2007: Visit 09 Dataset (ICPSR 32721)

Released/updated on: 2018-11-20
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2005-02-15--2007-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2005 and 2007, 2,255 of the 3,302 women that joined SWAN were seen for their ninth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the ninth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN), 2006-2008: Visit 10 Dataset (ICPSR 32961)

Released/updated on: 2018-11-15
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2006-02-15--2008-01-31
The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2006 and 2008, 2,245 of the 3,302 women that joined SWAN were seen for their tenth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan), Boston, MA (Massachusetts General Hospital), Chicago, IL (Rush Presbyterian-St. Luke's Medical Center), Almaeda and Contra Costa County, CA (University of California, Davis and Kaiser Permanente), Los Angeles, CA (University of California, Los Angeles), Hackensack, NJ (Hackensack University Medical Center) and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the tenth visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Baseline Dataset, [United States], 1996-1997 (ICPSR 28762)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1996-01-01--1997-11-30

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1996 and 1997, 3,302 participants joined SWAN through 7 designated research centers. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. This is the next phase of data collection after the original collection of the screening data (ICPSR 4368).

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Cross-Sectional Screener Dataset, [United States], 1995-1997 (ICPSR 4368)

Released/updated on: 2019-03-11
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1995-01-01--1997-01-01

This collection includes screener data collected as part of the Study of Women's Health Across the Nation (SWAN), which is a multi-site longitudinal, epidemiologic study which began in 1994 and was designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. This data includes questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).

The SWAN study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The screener dataset contains information from 16,142 women who responded to the SWAN cross-sectional screening interview during the period from 11/1/1995 through 12/1/1997 from the 7 clinical sites participating in the SWAN longitudinal study. The sites include Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 01 Dataset, [United States], 1997-1999 (ICPSR 29221)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1997-02-01--1999-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1997 and 1999, 2,881 of the 3,302 women that joined SWAN were seen for their first follow-up visit. The research centers are located in the following communities: Detroit, MI; Boston, MA; Chicago, IL; Oakland and Los Angeles, CA; Newark, NJ; and Pittsburgh, PA. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 02 Dataset, [United States], 1998-2000 (ICPSR 29401)

Released/updated on: 2019-05-02
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1998-02-01--2000-01-01

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included in the data are background characteristics (age, race, occupation, education, marital status, and family size).

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1998 and 2000, 2,748 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

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Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 03 Dataset, [United States], 1999-2001 (ICPSR 29701)

Released/updated on: 2019-05-29
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 1999-02-01--2001-01-31

The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 1999 and 2001, 2,710 of the 3,302 women that joined SWAN were seen for their third follow-up visit. The research centers are located in the following communities: Detroit, Michigan; Boston, Massachusetts; Chicago, Illinois; Oakland and Los Angeles, California; Newark, New Jersey; and Pittsburgh, Pennsylvania. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated
Simple Crosstabs

Study of Women's Health Across the Nation (SWAN): Visit 04 Dataset, [United States], 2000-2002 (ICPSR 30142)

Released/updated on: 2019-05-15
Geographic coverage: Detroit, United States, Chicago, California, Oakland, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Newark, Boston, Pittsburgh
Time period: 2000-03-01--2002-01-31

The Study of Women's Health Across the Nation (SWAN) is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause.

The study is co-sponsored by the National Institute on Aging (NIA), the National Institute of Nursing Research (NINR), the National Institutes of Health (NIH), and the NIH Office of Research on Women's Health. The study began in 1994. Between 2000 and 2002, 2,679 of the 3,302 women that joined SWAN were seen for their second follow-up visit. The research centers are located in the following communities: Boston, Massachusetts, Pittsburgh, Pennsylvania, Oakland and Los Angeles, California, Detroit, Michigan, Newark, New Jersey and Chicago, Illinois. SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures.

Curated
Simple Crosstabs

Survey of Health Services Utilization and Expenditures, 1963 (ICPSR 7741)

Released/updated on: 2015-05-27
Geographic coverage: United States
This survey is concerned with trends in the use of health services and the expenditures made for these services. One or more members of selected families provided information regarding use of health services, the cost of these services, and how this cost was met for the calendar year 1963. Information on health attitudes and beliefs was also collected for the head of each household (or spouse). In addition, data were gathered from hospitals, employers, and insuring organizations concerning hospitalizations and insurance coverage reported in the family interviews. These data were then combined with family reports to achieve the best possible estimates for hospitalization and health insurance coverage variables. Data are supplied at the individual level and are broken down by age, income, race and residence.
Curated

Survey of Health Services Utilization and Expenditures, 1970 (ICPSR 7740)

Released/updated on: 1992-02-16
Geographic coverage: United States
This national survey was conducted to compare health services utilization and expenditures in 1970 with results of similar studies done in 1953, 1958, and 1964. In the survey, respondents from 3,763 families plus additional older individuals -- a total of 11,619 persons -- were interviewed in 1971. One or more persons in each family provided information regarding use of health services, the cost of such services, and how these costs were met for the calendar year 1970. Information was also collected on perceptions of illness and health, attitudes and opinions about medical care in the United States, and health beliefs. An attempt was made to verify all hospital admissions, physician visits, and insurance reports and claims. These verifications had two purposes: first, to determine if the reported care was, in fact, provided during the survey year, and second, to elicit more precise information than the families were likely to give on diagnoses, costs, kinds of treatment, and sources of payment for services. Verification data were obtained for over 90 percent of the hospital admissions and for two-thirds of the physician visits. Demographic data were also collected, including age, sex, race, education, occupation, income, and place of residence.
Curated
Simple Crosstabs

Survey of Long-Term Care Awareness and Planning, 2014 [United States] (ICPSR 36969)

Released/updated on: 2017-12-21
Geographic coverage: United States

The Survey of Long-Term Care Awareness and Planning was designed to measure the attitudes of Americans ages 40-70 towards long-term care (LTC), retirement planning, and insurance policy preferences. Few people have private LTC insurance, and Medicare does not cover LTC. Many older adults pay for LTC out of their income and personal savings until they are poor enough to qualify for Medicaid. Others, to avoid exhausting their financial resources and relying on Medicaid, depend on unpaid family support or go without needed services. The Survey of Long-Term Care Awareness and Planning collected data on LTC in order to help inform federal policy in this area.

The survey collected respondents' current health information, willingness to take risks, plans for disability care, retirement preparation, and insurance coverage. Part of the survey was a discrete choice experiment (DCE) or conjoint analysis designed to elicit respondent preferences on specific features of LTC insurance. This section included choices on daily benefit, benefit period, deductible period, health requirements, type of insurer, monthly premium, and voluntary or universal. Respondents were also asked about the types of investments they had, where they received health information, opinions on the US healthcare system, whether they had been diagnosed with specific health conditions, willingness to make lifestyle changes due to a disability, concerns about long-term disability care, and opinions on who should be responsible for the costs of LTC. Demographic information collected includes age, education, household size, race, gender, income, marital status, and region.