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Research tools available to help advance knowledge of effective community-based elder mistreatment (EM) interventions are limited. The field lacks an understanding of what success means in EM response program (EMRP) interventions, which work directly with victims to reduce the risk of re-victimization. Without establishing indicators of EMRP success, it is not possible to develop valid intervention outcome measures to compare different EMRP models toward the development of evidence-based practice. Informed by the EMRP practice principle of older adult self-determination, this study developed a victim-centric taxonomy of case outcomes that indicate EMRP success.

This study drew on two sources of data, including interviews with EM victims and a scoping review to inform taxonomy development. Prioritizing the perspective of victims, this study conducted interviews with 27 victims involved in EMRP services who vary in EM subtype, gender, and race/ethnicity.

The taxonomy of successful EMRP outcomes will serve as important research infrastructure to support the development of EMRP intervention outcome measurement in future research.

The Family Exchanges Study Wave 1 (FESI) was conducted in 2008 by the Institute for Survey Research at Temple University. The original 634 "target" or core sample was recruited from African American and White respondents aged 40-60 living in Philadelphia and the surrounding counties--Bucks, Chester, Delaware, and Montgomery. To be eligible for the study, respondents had to have at least one living parent and one living offspring over 18 years of age. Temple University sought to recruit the parents, spouse, and up to three offspring over 18 years of age into the study. All target, parent, and spouse surveys were conducted by telephone. Offspring were given the option of completing the survey by telephone or web. A total of 337 parents, 511 offspring (with another 80 by web and 1 listed as other for a total of 592), and 197 spouses were successfully recruited into the first wave of the study.

This collection includes four data files, one for each type of participant: target, spouse, parent, and offspring. For each of these participants, there are data related to relationships with other family members, perceptions of family members, and views on key social issues. Demographic information includes gender, marital status, education level, religion, age, race, ethnicity, and employment status.

The Family Exchanges Study (FESI) began in 2008 conducted by the Institute for Survey Research at Temple University. The original "target" or core sample was recruited from African American and White respondents aged 40-60 living in Philadelphia and the surrounding counties--Bucks, Chester, Delaware, and Montgomery. To be eligible for the study, respondents had to have at least one living parent and one living offspring over 18 years of age. Temple University sought to recruit the parents, spouse, and up to three offspring over 18 years of age into the study. All target, parent, and spouse surveys were conducted by telephone. Offspring were given the option of completing the survey by telephone or web.

For the Wave 2 data collection, the Survey Research Center at Pennsylvania State University attempted to contact all FESI respondents again, as well as collect updated information for spouses/romantic partners, parents, and up to 4 age-eligible offspring. The survey instruments were drawn largely from the first wave of data collection. This collection includes eight data files. These data files include five main study datasets: target, spouse, spouse without target, parent, and offspring. This collection also includes three diary datasets: target diary, parent diary, offspring diary. For each participant, there are data related to relationships with other family members, perceptions of family members, and views on key social issues. Demographic information includes gender, marital status, education level, religion, age, race, ethnicity, and employment status.

The University of Michigan Health and Retirement Study (HRS) is a longitudinal panel study that surveys a representative sample of approximately 20,000 people in America, supported by the National Institute on Aging and the Social Security Administration.

The HRS aims to provide multidisciplinary data that researchers can use to address important questions about the challenges and opportunities of aging. The HRS includes the "original" HRS and the Asset and Health Dynamics Among the Oldest-Old (AHEAD) study. These studies were merged in 1998 and now represent the United States population over age 50. Two new cohorts were added in 1998: the Children of the Depression (born 1924-1930) and the War Babies (1942-1947). A fourth cohort, the Early Baby Boomers (1948-1953), was added in 2004; a fifth cohort, the Mid Baby Boomers (1954-1959), was added in 2010; and in 2016, the Late Baby Boomers cohort (1960-1965) became the sixth.

Questionnaire topics include physical and cognitive functioning, retirement plans, family structure and transfers, demographic characteristics, housing, employment status, income, disability, health insurance, pension plans, job history, and attitudes, preferences, and expectations for the future. The survey data are linked with administrative records from the Employer Pension Study (1993 and 1999), National Death Index, Social Security Administration earnings and projected benefits data and W-2 self-employment data, and Medicare files.

The National Long-Term Care Survey (NLTCS) has completed six waves, nominally at five-year intervals, 1982, 1984, 1989, 1994, 1999, and 2004. The NLTCS is a nationally-representative sample both of the community and of institutionalized populations and is longitudinal in that sample persons join the survey once they reach 65 years of age and stay in the survey until they either die or are lost to follow-up. At each wave, a screener questionnaire is administered to the sample which divides the sample into three parts: the non-disabled (frequently called screen-outs), the disabled but living in the community, and the disabled living in an institution. About 5,000 people die between waves and are replaced by a sample of about that size of people who have become age 65 since the prior wave. Because of budget considerations it usually has not been possible to continue the entire non-disabled sample into the next wave. Instead a sample of the non-disabled is drawn to keep the total sample size for a wave at about 20,000. One of the interesting and useful features of the NLTCS is that data are collected on help that the sample person receives from informal caregivers.

The NLTCS is a very data-rich resource with many components, including disability measures, medical conditions, attained education levels, and income. Numerous papers have used it as a source of data addressing a wide variety of topics related to aging and disability.

Ancillary surveys have been added to measure other characteristics of the 65 and older population, to include a Caregiver Survey to acquire data on informal caregivers themselves (done in 1989, 1999, and 2004) and Next-of-Kin (NOK) surveys administered to sample persons who had died between 1982 and 1984 and again between 1994 and 1999. The sample has been frequently supplemented to compensate for low representation in some survey components, in particular the 75 years and older and 95 years and older components. In 1999 physical specimens were drawn from a sample of persons who responded to the survey. These physical specimens (blood where possible, alternatively a buccal wash) are subject to a genetic analysis and, in the case of blood, to a panel of proteins believed to be particularly important to health.

NLTCS Survey Data

Survey data are available in ASCII and SAS format.

The Analytic Data File, a file of derived variables for all waves of the survey incorporates correction factors and consistency checking. The Analytic Data File covers all waves of the survey and is available in both ASCII and SAS formats. Final versions of data for all waves, up to and including 1999 and a beta version for 2004, have been released and are supported by documentation.