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Cancer Surveillance and Epidemiology in the United States and Puerto Rico, 1973-1977 (ICPSR 8001)

Released/updated on: 1993-02-11
Geographic coverage: Puerto Rico, United States
Time period: 1973-01-01--1977-01-01
This dataset was produced as part of the Surveillance, Epidemiology, and End Results (SEER) Program to monitor the incidence of cancer and cancer survival rates in the United States, thus carrying out the mandates of the National Cancer Act. The SEER Program had several objectives: to estimate the annual cancer incidence in the United States, to examine trends in cancer patient survival, to identify cancer etiologic factors, and to monitor trends in the incidence of cancer in selected geographic areas with respect to demographic and social characteristics. Data collection began in 1973, and by 1977 had a population base of 11 geographic areas in the United States and Puerto Rico. SEER variables include patient demographic information (age, sex, race, birthplace, marital status, census tract) and information on cancer, which was gathered from hospitals, clinics, private laboratories, private practitioners, nursing/convalescent homes, autopsies, and death certificates. The medical data cover histologic type, anatomic site, laterality, multiplicity within primary site at first diagnosis, diagnostic procedures, diagnostic confirmation, sequence of the tumor, extent of the disease, treatment of the lesion, and outcome.
Curated

Epidemiologic Catchment Area Study, 1980-1985: [United States] (ICPSR 6153)

Released/updated on: 1994-05-20
Geographic coverage: United States
Time period: 1980-01-01--1985-01-01
The Epidemiologic Catchment Area (ECA) program of research was initiated in response to the 1977 report of the President's Commission on Mental Health. The purpose was to collect data on the prevalence and incidence of mental disorders and on the use of and need for services by the mentally ill. Independent research teams at five universities (Yale University, Johns Hopkins University, Washington University, Duke University, and University of California at Los Angeles), in collaboration with the National Institute for Mental Health, conducted the studies with a core of common questions and sample characteristics. The sites were areas that had previously been designated as Community Mental Health Center catchment areas: New Haven, Connecticut, Baltimore, Maryland, St. Louis, Missouri, Durham, North Carolina, and Los Angeles, California. Each site sampled over 3,000 community residents and 500 residents of institutions, yielding 20,861 respondents overall. The longitudinal ECA design incorporated two waves of personal interviews administered one year apart and a brief telephone interview in between (for the household sample). The diagnostic interview used in the ECA was the NIMH Diagnostic Interview Schedule (DIS), Version III (with the exception of the Yale Wave I survey, which used Version II). Diagnoses were categorized according to the DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS, 3rd Edition (DSM-III). Diagnoses derived from the DIS include manic episode, dysthymia, bipolar disorder, single episode major depression, recurrent major depression, atypical bipolar disorder, alcohol abuse or dependence, drug abuse or dependence, schizophrenia, schizophreniform, obsessive compulsive disorder, phobia, somatization, panic, antisocial personality, and anorexia nervosa. The DIS uses the Mini-Mental State Examination (MMSE), which measures cognitive functioning, as an indirect measure of the DSM-III Organic Mental Disorders. In the ECA survey, this diagnosis is called cognitive impairment.
Curated
Simple Crosstabs

Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) Wave 10, 2020-2021 [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 39219)

Released/updated on: 2025-02-18
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2020-01-01--2021-07-06

The Hispanic EPESE provides data on risk factors for mortality and morbidity in older Mexican Americans in order to contrast how these factors operate differently than in non-Hispanic Whites, African Americans, and other major ethnic groups.

The Wave 10 dataset comprises the ninth follow-up of the baseline Hispanic Established Populations for the Epidemiologic Studies of the Elderly, 1993-1994: [Arizona, California, Colorado, New Mexico, and Texas] (ICPSR 2851). The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in the five Southwestern states of Arizona, California, Colorado, New Mexico, and Texas.

The public-use data covers demographic characteristics (age, sex, type of Hispanic ethnicity, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health behaviors, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups allow examination of the predictors of mortality, changes in health outcomes, institutionalization, changes in living arrangements, as well as changes in life situations and quality of life.

During this 10th Wave, 131 re-interviews were conducted either in person or by proxy, with 77 of the original respondents interviewed in 1993-1994. This Wave also includes 54 re-interviews from the 902 new respondents added at Wave 5 in 2004-2005. All respondents were aged 90 and over at Wave 10.

The wave 10, was conducted over 2020 and 2021 and consisted of two components, a pre-COVID in-person component and a post-COVID telephone component to the informant only. The pre-COVID in-person interviews were conducted from January 1, 2020 to March 17, 2020 (N=131 respondents; N=122 informants). In March 2020, the in-person interviews were suspended due to the COVID-19 pandemic. From April 1, 2021 to July 1, 2021, telephone interviews were conducted only with informants (n = 101). The study team collected information on health, function, social situation, finances, and general well-being of the older Hispanic EPESE respondents. Information was also collected on the informant's health, function, and caregiver responsibilities and burden. In Wave 10, during the telephone interviews conducted with the informant, the study team collected information related to their experiences during the first year of the COVID-19 pandemic and their contemporary experiences around the time of widespread vaccine availability in the United States.

Curated

National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry), 1958-2013 [RESTRICTED] (ICPSR 36234)

Released/updated on: 2020-11-16
Geographic coverage: United States
Time period: 1958-01-01--2013-01-01

In 1958, the Medical Follow-up Agency (MFUA) of the Institute of Medicine began a project to identify twins who had jointly entered military service during World War II. In the end, MFUA identified nearly 16,000 White male twin pairs born 1917-1927 in which both members had served in the military. These twins comprise the National Academy of Sciences-National Research Council World War II Twin Registry (NAS-NRC Twin Registry). This collection represents data from service records, a mailed questionnaire assessing zygosity, and repeating health surveys, including information on education, employment history, and earnings.

There are nine datasets associated with this restricted-use collection:

1) The Administrative dataset includes demographic, zygosity, service history, mortality, and questionnaire participation data;

2) The Service and Other Records dataset contains information collected from service records, physical exam data, cognitive test data, and dental records;

3) The Questionnaire 2 dataset consists of data collected in the first mailed questionnaire sent in 1965 about pain, illnesses, smoking habits, alcohol consumption, and employment;

4) The Questionnaire 3 dataset includes data from the baseline epidemiological questionnaire sent in 1974 about number and sex of children, religious attendance, education, income, and occupation;

5) Questionnaire 7, mailed in 1985, contains similar topics as in Questionnaire 2, and includes data about health conditions such as diabetes, as well as feelings about work and retirement;

6) Questionnaire 8 was mailed in 1998 was the third epidemiologic questionnaire. This dataset is comprised of overlapping topics with Q2 and Q7, and has additional data about feelings, prescription medications, activity levels, the Geriatric Depression Scale, and parental death status;

7) The NEO Personality Inventory dataset includes responses to the NEO Five-Factor Personality Inventory mailed in 2005-2006;

8) The Service and Death Records dataset (VDE access only) contains information about date and place of birth, state at induction, disciplinary measures during service, decorations received during service, indicator for those known to have been POWs, reason for separation from the military, age at death if died over age 90, and cause of death. Some of this information was obtained from the re-read of service records and is thus available only for a subset of 6357 men;

9) Diagnoses dataset (VDE access only) contains data about medical conditions diagnosed between 1935 and 1985 that were abstracted from a variety of medical records over the course of the study. The diagnoses were coded using the International Classification of Disease system (WHO, 2015).

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