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Showing 1 – 50 of 52 results.
Curated

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)

Released/updated on: 2010-06-30
Geographic coverage: Indiana, United States, Massachusetts, Alabama, Florida, Maryland, Michigan
Time period: 1999-01-01--2001-01-01

The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

Curated

Aging, Status, and Sense of Control (ASOC), 1995, 1998, 2001 [United States] (ICPSR 3334)

Released/updated on: 2005-12-15
Geographic coverage: United States
The Aging, Status, and Sense of Control (ASOC) was conducted during 1995, 1998 and 2001 and examined the relationship between age and changes in the sense of control over one's life. Part I contains data for Waves I and II. Respondents were queried about their physical health, including activities of daily living such as shopping, walking, and doing housework, along with medical conditions such as heart disease, high blood pressure, lung disease, breast cancer, diabetes, arthritis or rheumatism, osteoporosis, and allergies or asthma. Questions regarding mental health investigated difficulties staying focused, feelings of sadness or anxiety, and enjoyment of life. Respondents were also asked about their health behaviors, including use of tobacco and alcohol, frequency of exercise, use of medical services including insurance coverage, and the number of prescription medications used. Also examined was respondents' sense of control over their lives, including social support and participation, and history of adversity, which covered such topics as home or apartment break-ins or assaults, major natural disasters, unemployment longer than six months, and times without enough money for clothes, food, rent, bills, or other necessities. Demographic questions included age, sex, marital status, education, work status, marital and family relations, and socioeconomic status. Wave III (Part 2) was collected in 2001 and contains data on the same questions such as physical health, mental health and health behaviors.
Curated

Alameda County [California] Health and Ways of Living Study, 1994 and 1995 Panels (ICPSR 3083)

Released/updated on: 2006-03-06
Geographic coverage: United States, California
This collection provides a 30-year follow-up with respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel (ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL [ICPSR 6838]), collected information from 4,864 of the original respondents. The third and fourth waves (1994 and 1995 panels, respectively), provided in this collection, explore some new topics. The third wave provides a follow-up of 2,729 original 1965 and 1974 respondents and examines health behaviors such as alcohol consumption and smoking habits, along with social activities. Also included is information on health conditions such as diabetes, osteoporosis, hormone replacement, and mental illness. Another central topic investigated is activities of daily living (including self-care such as dressing, eating, and shopping), along with use of free time and level of involvement in social, recreational, religious, and environmental groups. The fourth wave is a follow-up to the 1994 panel, and contains 2,569 cases. This wave examines changes in functional abilities such as self-care activities, employment, involvement in community activities, visiting friends/family, and use of free time since 1994.
Curated

Alameda County [California] Health and Ways of Living Study, 1999 Panel (ICPSR 4432)

Released/updated on: 2006-11-16
Geographic coverage: United States, California
This fifth wave of data, collected in 1999, provides follow-up with 2,123 respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. Part 2 of this collection contains mortality data including cause and year of death. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including 360 men and 530 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL (ICPSR 6838), collected information from 4,864 of the original respondents. The third and fourth waves, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1994 and 1995 PANELS (ICPSR 3083), provided a follow-up of 2,729 original 1965 and 1974 respondents. The fourth wave is a follow-up to the 1994 panel and contains 2,569 cases.
Curated

Center for Research on Social Reality [Spain] Survey, May 1995: Old Age (ICPSR 6969)

Released/updated on: 1998-01-13
Geographic coverage: Europe, Global, Spain
Time period: 1995-05-15--1995-05-20
This data collection is part of a series of nationwide surveys conducted from October 1990 to June 1996 in Spain. The questionnaires for each of these surveys consisted of three sections. The first section collected information on respondents' attitudes regarding personal, national, and international issues, and included questions on respondents' level of life satisfaction and frequency of visits with relatives, neighbors, and friends. The second section contained a topical module of questions that varied from survey to survey, with this survey's topic focusing on old age. The survey gauged attitudes regarding old age and the elderly, and investigated actual circumstances of elderly life in Spain, such as living arrangements, daily levels of physical activity, amount of health problems experienced during the past two weeks, consumption of tobacco and alcohol, frequency of sexual relations, retirement status and age at retirement, leisure activities, and use of social services. Questions in the third section of the questionnaire elicited socioeconomic information, such as respondent's sex, age, marital status, size of household, occupation, education, religion, religiosity, place of birth, and income.
Curated
Partially restricted

Charleston Heart Study, Charleston, South Carolina, 1960-2000 (ICPSR 4050)

Released/updated on: 2021-06-03
Geographic coverage: Charleston (South Carolina), United States, South Carolina
Time period: 1960-01-01--2000-01-01
The Charleston Heart Study (CHS) represents data collected over a 41-year period (1960-2000) in order to provide an understanding of the natural progression of aging in a community-based cohort. In 1960 the CHS began enrolling a random selection of community residents who were 35 years of age and older -- including men and women, Black and White. The primary hypothesis of the original study was to investigate racial differences in the manifestation and risk factors for coronary disease. Over the ensuing 40+ years, a variety of outcome measurements were incorporated into the re-examination of the participants, including psychosocial, behavioral, aging, and functional measures. As a longitudinal study, the CHS allows for the study of the risk factors, correlates, and consequences of aging, while simultaneously allowing for exploration of racial disparity in the manifestation of putative risk factors and outcomes. The CHS began with baseline data and added a special cohort of Black men. In subsequent years three separate follow-ups were conducted. The data include death information for respondents and background characteristics (age, race, sex, occupation, education, and marital status).
Curated

Cleveland Study of the Elderly: a Follow-Up, 1984-1988 (ICPSR 6985)

Released/updated on: 2006-03-30
Geographic coverage: United States, Ohio, Cleveland
Time period: 1984-01-01--1988-01-01
This follow-up survey, funded under two separate grants from the National Institute on Aging (NIA), reinterviewed survivors of STUDY OF THE WELL-BEING OF OLDER PEOPLE IN CLEVELAND, OHIO, 1975-1976 (ICPSR 7773). The first part of the project, "Cleveland GAO Study of the Elderly: A Follow-Up", was conducted from 1983 to 1986, and reinterviewed survivors (n = 647) of the original 1975 sample (n = 1,834) to determine the impact of gender on the quality of life for elders, along with stability and change in measures of mental health. During 1984, a subset of the interview subjects were visited at their homes to validate self-reported impairment and disability. These data are presented in Part 1, Cleveland GAO Study of the Elderly: A Follow-Up, 1984 Data for Survivors of 1975 Sample. The second phase of the project, "Cleveland Elderly 12 Years Later," describes changes in disease, disability, and mortality since 1975 and attempted to determine if differences were related to changes in social support, use of health services, or economic status. The study also sought to assess levels of social, economic, mental, and physical well-being reported by respondents, and examined daily activities, the use and quality of services, and the characteristics of service providers. The "Cleveland Elderly 12 Years Later" data were collected in 1987 and again in 1988. Data collected in 1987 consist of interviews with survivors of the original 1975 sample (Part 2) along with interviews from an additional sample drawn from the 1977 Medicare rolls (Part 3). During 1988, interviews were again conducted with survivors of the original 1975 sample (Part 4) and survivors of the Medicare sample (Part 5). Data collected in 1984, 1987, and 1988 for survivors of the 1975 sample may be merged with the original data collected in 1975-1976 using the ID number.
Curated
Simple Crosstabs

Daily In-Home Activity Metrics from the Intelligent Systems for Assessing Aging Changes (ISAAC), Portland, Oregon, 2011 (ICPSR 35063)

Released/updated on: 2014-06-18
Geographic coverage: Oregon, United States, Portland (Oregon)
The ISAAC study developed methods of continuously assessing behaviors of seniors living independently in the community, with the ultimate goal of identifying trends in behavior and activity measures that would be predictive of a later transition to Mild Cognitive Impairment. Homes of participants were instrumented with wireless motion and door sensors, which captured movements throughout the home as they occurred. Participants were monitored continuously for about three years. Participants were also evaluated annually with a full clinical and neuropsychological battery of tests. Algorithms were developed to derive measures of motor activity (median walking speed, number of walks along a chosen path in the home, time spent out of the home, number of room transitions), measures of computer use (number of computer sessions and total time spent on the computer), and measures of nighttime activity (sleep latency, total time in bed, number of bathroom visits at night, motion in bed at night, etc.).
Curated
Partially restricted

Danish 1905 Cohort Study, 1998 (ICPSR 3960)

Released/updated on: 2016-08-22
Geographic coverage: Denmark, Global
Time period: 1905-01-01--1998-01-01
This data collection provides information on individuals born in Denmark in 1905 and who were still living in Denmark in 1998. The overall goal of the study was to establish a genetic-epidemiological database to shed light on the aging process among the extremely old. The data focus on their physical and cognitive functioning. Respondents were asked if they had been previously diagnosed with diseases such as diabetes, arthritis, asthma, migraine, cancer, stroke, heart attack, or depression, and if they were experiencing such ailments as cough, body pains, and bone fracture and were taking medication for them. Questions probed respondents' feelings about their health, life, and future. To assess respondents' general health and functioning, they were asked if they needed assistance with toileting, bathing, dressing, and mobility around the house; how often they needed to use the bathroom during the night; and if they used physical aids such as wheelchairs, eyeglasses, crutches, catheters, or diapers. They were also tested for memory and cognition, mobility, vision, speech, hearing, and lung functioning. Information was also elicited on respondents' mental state and awareness, energy level, menopause, frequency of visits with children and family, visits from a nurse, use of home care services, sleeping patterns, smoking and drinking habits, weight gain or loss, exercises, social activities, hobbies, reading habits, television viewing, and recent deaths in the family. Demographic information includes age, education, and marital status.
Curated
Partially restricted

Documentation of Resident to Resident Elder Mistreatment in Residential Care Facilities, New York City, 2009-2013 (ICPSR 35649)

Released/updated on: 2017-06-29
Geographic coverage: New York City, United States, New York (state)
Time period: 2009-07-01--2013-03-01

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

The purpose of this study was to investigate violence and aggression committed by nursing home residents that is directed toward other residents, referred to here as resident-to-resident elder mistreatment (R-REM). Resident-to-resident mistreatment (R-REM) was defined as: negative and aggressive physical, sexual, or verbal interactions between long term care residents, that in a community setting would likely be construed as unwelcome and have high potential to cause physical or psychological distress in the recipient.

The goals of this project were to: enhance institutional recognition of R-REM; examine the convergence of R-REM reports across different methodologies; identify the most accurate mechanism for detecting and reporting R-REM; develop profiles of persons involved with R-REM by reporting source; investigate existing R-REM policies, and; develop institutional guidelines for reporting R-REM episodes. Also, the project team sought to answer the following research questions: (1) Will the reporting of R-REM differ by source? (2) Which reporting methods will show the highest level of convergence and accuracy in reporting? (3) What resident characteristics or profiles will predict R-REM across the differing reporting sources? (4) What are the existing guidelines and/or institutional policies for reporting R-REM? To achieve these goals, the researcher conducted this study over a two week period in five urban and five suburban New York City facilities. Resident-to-resident abuse information was derived from five sources: (1) resident interviews (2) staff informants (3) observational data (behavior sheets) (4) resident chart reviews (5) incident and accident reports.

Curated

End-Stage Renal Disease (ESRD): Transplantation, Dialysis, and Quality of Life in Michigan, 1984-1988 (ICPSR 9393)

Released/updated on: 1992-02-17
Geographic coverage: United States, Michigan
Time period: 1984-01-01--1988-01-01
This study investigated survival rates, quality of life, and costs of four major treatments for end-stage renal disease (ESRD) patients in Michigan. The project began in 1984 and continued through 1988. The four treatments studied were in-center hemodialysis, continuous ambulatory peritoneal dialysis (CAPD), transplantation from nonrelated, nonliving donors (cadaver transplants), and transplantation from related living donors (related transplants). A major advantage for the project in relation to other large-scale research studies on ESRD patients was access to comprehensive data bases maintained by the Michigan Kidney Registry (MKR) and the Organ Procurement Agency of Michigan (OPAM) to identify the sample and provide treatment and survival data. Records on medical expenditures for treatment were obtained from the United States' Health Care Financing Administration. Data on the quality of life during treatment were collected by personal interviews with patients over the four-year span needed to accumulate the desired number of cases. The personal interview schedule included measures of subjective well-being, such as mood states, satisfaction with various aspects of life, and other widely-used scales such as Activities of Daily Living, Sickness Impact Profile, and Bradburn Affect Balance Scale. Items on standard demographics, the clinical and symptomatic picture of the disease, and the respondents' social support systems were also included in the interview.
Curated
Partially restricted

Florida Elder Abuse Survey in Seven Sites, 2007-2008 [United States] (ICPSR 25941)

Released/updated on: 2010-10-27
Geographic coverage: Gainesville, United States, Orlando, Fort Lauderdale, St. Petersburg, Florida, Tampa, Jacksonville, Miami
Time period: 2007-01-01--2008-01-01
The purpose of this project was to develop and pilot test an interviewer-administered self-report questionnaire that might be used in a subsequent national survey to scientifically establish the prevalence of second-party elder abuse or neglect. The project focused only on those living in the communities who were capable of accurately self-reporting their knowledge, attitudes, and practices. Through focus groups of adult protective services and abuse hot-line staff, questionnaire items were generated and later tested through interviews of clients of aging services in Florida. Aging services case managers screened and recruited 95 clients, aged 65 and older, with 25 clients who had reports of mistreatment within the hotline database, and 70 comparison clients (no reports of mistreatment). Groups were matched by gender and age within 10 years. The interviews were conducted over an 18-month period, of which 3 interviews were conducted in-person and 92 interviews were conducted by telephone. All interviews were conducted by trained interviewers of the research team. Twenty-six interviews were conducted in Spanish. Interviews focused on demographics; activities of daily living; 19 possible types of elder abuse or neglect within the previous year, and, for each positive response, questions about the perpetrators and their relationship to the older adult; a description of when the mistreatment happened, how often, what the respondent did, and whether it was related to the perpetrator's anger, neglect, or carelessness.
Curated
Simple Crosstabs

Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Disabling Process Study: 2001-2002 (ICPSR 36203)

Released/updated on: 2015-11-13
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2001-01-01--2002-01-01
This collection sought to examine relationships among components of the Enabling-Disabling Model as presented in the 1997 Institute of Medicine report, Enabling America: Assessing the Role of Rehabilitation Sciences. The Enabling-Disabling Model includes the following primary components: pathology, impairment, functional limitation, disability, and quality of life. In this model, disability is proposed to be influenced by pathology, impairment, and functional limitation. Disability is also seen as a function of the interaction between the person and the environment. This investigation examined relationships within the Enabling-Disabling Model in a random sample of Mexican American older adults. The specific aims were to: (1) examine the interrelationships among the components of the Enabling-Disabling Model over time in older Mexican-American adults, and (2) use components of the Enabling-Disabling Model to expand our understanding of the natural history of aging and to predict health related quality of life in older Mexican American adults. Data were collected from 621 older adults who were participating in the Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE). Only subjects who were physically capable of safely completing the muscle strength measures were included in the study. Baseline interviews were collected on this subsample in 2001 during Wave 4 (ICPSR 4314) of the larger Hispanic EPESE study. Follow-up data were collected in 2002 from 551 participants. Data were collected on information such as respondents' health status, activities of daily living and ability to perform tasks. Demographic and background information include age, relationship status, gender, marital status and household composition.
Curated
Simple Crosstabs

Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Frailty Study: 2006-2009 (ICPSR 36321)

Released/updated on: 2016-03-29
Geographic coverage: United States, New Mexico, Texas, Colorado, California, Arizona
Time period: 2006-01-01--2009-01-01
The Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Frailty Study sought to apply a standard definition of frailty in a well-defined sample of Mexican American older adults and to examine the impact of frailty on disability, health related quality of life, institutionalization, and mortality in this population over time. This project is a continuation of a prior study (the Hispanic EPESE) examining the enabling-disabling process in this same population of aging Mexican Americans; data were collected from 1,031 older adults who were participating in the Hispanic EPESE. Only subjects who were physically capable of safely completing the muscle strength measures were included. Baseline interviews were collected for this subsample in 2006/2007 during Wave 6 (ICPSR 29654) of the Hispanic EPESE study. This collection includes data about respondents' health status, activities of daily living and their ability to perform tasks. Two-year follow-up data were collected in 2008/2009 from 731 participants in Wave 1. Demographic and background information include age, relationship status, gender, marital status and household composition.
Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 1, 2009-2011 (ICPSR 34315)

Released/updated on: 2025-05-07
Geographic coverage: Ireland
Time period: 2009-01-01--2011-01-01

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data files, including studies 34315, 38681, 37105, 37106, 38670, 38674, are no longer available from ICPSR and NACDA at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized. Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 2, 2012-2013 (ICPSR 37105)

Released/updated on: 2025-05-08
Geographic coverage: Ireland
Time period: 2012-01-01--2013-01-01

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The second wave of TILDA interviews were undertaken between February 2012 and March 2013. Of the 8,504 interviewed in Wave 1, a second interview was obtained for 7,445 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 170 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 3, 2014-2015 (ICPSR 37106)

Released/updated on: 2025-05-12
Geographic coverage: Ireland
Time period: 2014-01-01--2015-01-01

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The third wave of TILDA interviews were undertaken between March 2014 and October 2015. Of the 7,445 interviewed in Wave 2, a third interview was obtained for 6,874 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 28 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 4, 2016 (ICPSR 38670)

Released/updated on: 2025-05-12
Geographic coverage: Ireland

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The fourth wave of TILDA interviews were undertaken between January and December 2016. A total of 5,713 participants completed the self-interview.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Simple Crosstabs

The Irish Longitudinal Study on Ageing (TILDA), Wave 5, 2018 (ICPSR 38674)

Released/updated on: 2025-05-12
Geographic coverage: Ireland

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The fifth wave of TILDA interviews were undertaken between January and December 2018. A total of 4,978 participants completed the self-interview.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

Curated
Partially restricted

Longitudinal Study of Aging Danish Twins, 1995 (ICPSR 21041)

Released/updated on: 2009-06-09
Geographic coverage: Denmark, Global
Time period: 1995-02-01--1995-04-01
The focus of the "Longitudinal Study of Aging Danish Twins (LSADT)" was on elucidating the causes of variation in survival, health, diseases, loss of abilities, and cognitive functions among the elderly and oldest-old. The LSADT was conducted every two years between 1995 and 2005 and consists of six waves. The study is comprised of interviews of elderly Danish twins aged 75 years and older (later 70 years and older). At each interview wave, the interview assessment was based on the interview used in the previous waves, which covers health, physical functioning, cognitive functioning, depression symptomatology, social factors, lifestyle characteristics, and quality of life. The self-report interview assessments were supplemented with objective indicators of physical strength and agility, behavioral speed, and pulmonary peak-flow. Biological material was also collected from the participants for future DNA analysis.
Curated

Longitudinal Study of Generations, 1971, 1985, 1988, 1991, 1994, 1997: [California] (ICPSR 4076)

Released/updated on: 2005-02-25
Geographic coverage: United States, Los Angeles, California
The Longitudinal Study of Generations (LSOG), initiated in 1971, began as a survey of intergenerational relations among 300 three-generation California families: grandparents (then in their sixties), middle-aged parents (then in their early forties), and grandchildren (then aged 15 to 26). The study broadened in 1991 and now includes a fourth generation, the great-grandchildren of these same families. The LSOG, with a fully elaborated generation-sequential design, allows comparisons of sets of aging parents and children at the same stage of life but during different historical periods. These comparisons make possible the investigation of the effects of social change on inter-generational solidarity or conflict across 35 years and four generations, as well as effects of social change on the ability of families to buffer stressful life transitions (aging, divorce and remarriage, higher female labor force participation, changes in work and the economy, and possible weakening of family norms of obligation), and the effects of social change on the transmission of values, resources, and behaviors across generations. The study also examines how intergenerational relationships influence individuals' well-being as they transition across the life course from early, to middle, to late adulthood. The LSOG contains information on family structure, household composition, affectual solidarity and conflict, values, attitudes, behaviors, role importance, marital relationships, health and fitness, mental health and well-being, caregiving, leisure activities, and life events and concerns. Demographic variables include age, sex, income, employment status, marital status, socioeconomic history, education, religion, ethnicity, and military service.
Curated
Simple Crosstabs

Medicare Health Outcomes Survey (HOS), 1998-2014 (ICPSR 23380)

Released/updated on: 2016-05-26
Geographic coverage: Puerto Rico, United States, Guam, Virgin Islands of the United States
Time period: 1998-01-01--2014-01-01
The Medicare Health Outcomes Survey (HOS) is the first patient reported health outcomes measure for the Medicare population in managed care settings. It is a continuous study that measures the physical and mental health and well-being of Medicare beneficiaries over a two-year period. Starting in 1998, a baseline survey was administered to a new cohort of respondents each year in the spring and a follow-up survey was conducted of those same respondents two years later. Cohorts 1-5 include the Baseline Data, the Follow-Up Data, and the Analytic Data file, which contains the merged Baseline and Follow-Up files along with supplemental variables. Beginning with Cohort 6, the Follow-Up Data were included only in the Analytic file. The HOS consists of the SF-36 Health Survey, which yields physical and mental health summary measures, as well as questions on topics such as chronic medical conditions, activities of daily living (ADLs), depression, smoking, physical health symptoms, weight and height, and additional questions corresponding to HEDIS (Health Care Employer Data and Information Set) measures such as urinary incontinence in older adults, osteoporosis testing in older women, and fall risk management. In 2006, CMS implemented the Medicare HOS 2.0 for Medicare Advantage Organizations (MAOs) which evaluates physical and mental health status using the Veteran RAND 12-Item Health Survey (VR-12). The revised instrument contains questions that gather information for case-mix and risk-adjustment variables, and collects information on respondents' physical functioning, bodily pain, social functioning, mental health, vitality, general health, and how respondents' physical and emotional health affects their lives. The survey includes case-mix adjustment variables which may be used to adjust the survey response data for beneficiary characteristics that are known to be related to systematic biases in the way people respond to survey questions. Demographic information includes respondent's age, gender, race, education level, marital status, annual household income, and geographic region.
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Simple Crosstabs

Midlife in the United States (MIDUS 3), 2013-2014 (ICPSR 36346)

Released/updated on: 2019-04-30
Geographic coverage: Contiguous United States
Time period: 2013-05-01--2014-11-01

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

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National Health and Aging Trends Study (NHATS): Round 10 COVID-19 Supplement, [United States], 2020-2021 (ICPSR 39070)

Released/updated on: 2024-03-18
Geographic coverage: United States
Time period: 2020-01-01--2021-01-01
The National Health and Aging Trends Study (NHATS) began in 2011 and fosters research to guide efforts to reduce disability, maximize health and independent functioning, and enhance quality of life at older ages. NHATS aims to provide the basis for understanding trends in late-life functioning, how these differ for various population subgroups, and the economic and social consequences of aging and disability for individuals, families, and society. Between June 2020 and March 2021, NHATS conducted a supplemental mail study about participants' experiences during the COVID-19 pandemic. Adult family members and friends who helped NHATS participants were also surveyed about their experiences. The NHATS COVID-19 supplements covered topics such as symptoms of COVID-19, measures to limit spread of the virus, changes in living situations, contact with family and friends, other activities, grocery shopping, health care, finances, wellbeing, and help with daily activities. The ICPSR provides variable-level metadata for the data associated with this study. Users should consult the NHATS website for details on obtaining these resources.
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National Health and Aging Trends Study (NHATS), [United States] (ICPSR 37107)

Released/updated on: 2018-06-29
Geographic coverage: United States
Time period: 2011-01-01--2024-01-01

The National Health and Aging Trends Study (NHATS) began in 2011 and fosters research to guide efforts to reduce disability, maximize health and independent functioning, and enhance quality of life at older ages. NHATS aims to provide the basis for understanding trends in late-life functioning, how these differ for various population subgroups, and the economic and social consequences of aging and disability for individuals, families, and society.

NHATS gathers information on a nationally representative sample of Medicare beneficiaries ages 65 and older. The sample is refreshed periodically so that researchers may study national-level disability trends as well as individual trajectories. Annual, in-person interviews collect detailed information on the disablement process and its consequences.

The NHATS interview is guided by a conceptual framework that recognizes physical and cognitive capacity is distinct from the environment in which activities take place. Among the specific content areas included are: the physical, social, technological and service environment, physical and cognitive capacity, use of assistive devices and rehabilitation, help received with daily activities (self-care, household, and medical), participation in valued activities, and wellbeing. A last month of life interview focuses on quality of end of life care. Periodically caregivers of NHATS respondents are interviewed in the supplemental National Study of Caregiving (NSOC). Linkages to Medicare records are also available.

Content was developed by a multidisciplinary team of researchers from the fields of demography, geriatric medicine, epidemiology, health services research, economics, and gerontology. NHATS is being led by the Johns Hopkins University Bloomberg School of Public Health in collaboration with the University of Michigan, with data collection by Westat, and support from the National Institute on Aging.

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National Health Interview Survey, 1986 (ICPSR 8976)

Released/updated on: 2011-06-02
Geographic coverage: United States
The basic purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. There are five types of records in the core survey, each in a separate data file. The variables in the Household File (Part 1) include type of living quarters, size of family, number of families in household, and geographic region. The variables in the Person File (Part 2) include sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. These variables are found in the Condition, Doctor Visit, and Hospital Episode Files as well. The Person File also supplies data on height, weight, bed days, doctor visits, hospital stays, years at residence, and region variables. The Condition (Part 3), Doctor Visit (Part 4), and Hospital Episode (Part 5) Files contain information on each reported condition, two-week doctor visit, or hospitalization (twelve-month recall), respectively. A sixth, seventh, eighth, ninth, and tenth file have been added along with the five core files. The Dental Health Supplement (Part 6) includes variables that report on dental care and dental health, as well as dental visits, length of hospital stay, reasons for visits to the dentist, use of fluorides, and other oral health practices. Respondents for the Functional Limitations Supplement (Part 7) were persons age 65 and older. Questions concerned degree of difficulty in performing activities of daily living. The Health Insurance Supplement (Part 8) contains questions pertaining to job stability and layoff as well as type of insurance held, such as Medicare or other types of health insurance coverage. For the Longest Job Worked Supplement (Part 9) respondents were persons age 25 or older who had worked. Information obtained in this supplement determines the effects of a person's job on his or her health. Respondents for the Vitamin/Mineral Intake Supplement (Part 10) were sampled from those age 2-6 and those 18 or older. Proxies for the children and the adults themselves were asked questions to determine individual consumption of these nutrients and their effects on health.
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National Health Interview Survey, 1989: Mental Health Supplement (ICPSR 9403)

Released/updated on: 1993-02-12
Geographic coverage: United States
The basic purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The 1989 Mental Health Supplement provides 93 variables from the core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1989 [ICPSR 9583]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The 131 variables unique to this supplement offer information on manic depression, major depression, personality disorder, senility, substance abuse, mental retardation, and other mental disorders. Questions were asked about the effect of the disorder on the respondent's ability to work, attend school, handle routine matters such as managing money, perform everyday household chores, shop, and get around outside the home. In addition, respondents were questioned about difficulties resulting from the disorder such as forming and keeping friendships, maintaining concentration, and coping with daily stress. Questions about the length of time the respondent had the disorder and interaction with health professionals concerning the disorder were also asked.
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National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 2, 1997 (ICPSR 3526)

Released/updated on: 2007-03-01
Geographic coverage: United States
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (ICPSR 2563), serves as the baseline for this study. LSOA II Wave 2 interviews were conducted with a total of 7,998 respondents who were interviewed at baseline and consists of 7,060 survivor interviews and 998 decedent interviews. LSOA II Wave 2 is comprised of two data files, the Survivor Data (Part 1) and the Decedent Data (Part 2). The Survivor Data contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including NATIONAL HEALTH INTERVIEW SURVEY, 1994 (ICPSR 6724) core questionnaire, NATIONAL HEALTH INTERVIEW SURVEY, 1994: FAMILY RESOURCES INCOME AND ASSETS SUPPLEMENT (ICPSR 2656), and NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, DISABILITY OUTCOME SUPPLEMENT (ICPSR 2539). Wave 2 questions examined migration, convalescent home utilization, persistent symptomatic conditions such as pain in legs, swelling in feet, etc., nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins and aspirin, and detailed questions on home health care utilization. In addition a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent Data (Part 2) information was gathered from a family member or close relative regarding sample persons (N = 938) who were deceased at the time of Wave 2 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, and health care use and health insurance.
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National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 3, 2000 (ICPSR 3807)

Released/updated on: 2008-02-05
Geographic coverage: United States
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (SOA II) (ICPSR 2563) serves as the baseline for this study. LSOA II, Wave 3 consists of 7,936 survivor interviews and 906 decedent interviews in two data files: the Survivor File (Part 1) and the Decedent File (Part 2). The Survivor File contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including the 1994 National Health Interview Survey (ICPSR 6724) core questionnaire, the 1994 National Health Interview Survey: Family Resources Supplement (ICPSR 2656), Phase I of the 1994 National Health Interview Survey on Disability (ICPSR 2539), and the SOA II baseline interview (ICPSR 2563). Wave 3 questions (beginning at variable SF3664) examined migration, convalescent home utilization, nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins, aspirin, calcium supplements, and antioxidants, and detailed questions on home health care utilization. In addition, a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent File (Part 2), information was gathered from a family member or close relative regarding sample persons (N = 906) who were deceased at the time of Wave 3 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, health care use, and health insurance.
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National Health Interview Survey, 1999 (ICPSR 3397)

Released/updated on: 2006-03-30
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 1999 NHIS contains the household, family, person, sample adult, sample child, and immunization data files from the basic module. Included in the 1999 NHIS are periodic questions that provide additional detail on topics such as Adult Conditions (ACN), Adult Access and Utilization (AAU), Child Conditions, Limitation of Activity and Health Status (CHS), and Child Access and Utilization (CAU). Each record in the Household-Level File (Part 1) of the basic module contains data on the type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. The Family-Level File (Part 2) is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, the Person-Level File (Part 3) provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for the Sample Adult File (Part 4) regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. The Sample Child File (Part 5) provides information from a knowledgeable adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment such as hearing aids, braces, or wheelchairs. Also included are questions regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD). The Child Immunization File (Part 6) presents information from shot records and supplies vaccination status, along with the number and dates of shots, and information about the chicken pox vaccine. Episode-based information is found in the Injury Episode File (Part 7), while information in the Injury Verbatim File (Part 8) is comprised of narrative text describing injuries, including type of injury, how the injury occurred, and the body part injured. The Poison Episode File (Part 9) examines the cause and date of injury or poisoning, loss of time from work or school, and whether the poisoning resulted in hospitalization.
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National Health Interview Survey, 2000 (ICPSR 3381)

Released/updated on: 2006-03-30
Geographic coverage: United States
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (See NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). This final release of the 2000 NHIS contains the Household, Family, Person, Sample Adult, Sample Child, and Immunization, and Injury and Poison data files from the basic module. The 2000 NHIS also contains the Cancer Control Module (included in the Sample Adult File, Part 4), which corresponds to the Cancer Supplements of 1987 and 1992 and examines such items as diet and nutrition, use of herbal supplements, Hispanic acculturation, genetic testing, and family history. Each record in the Household-Level File (Part 1) of the basic module contains data on the type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each eligible sampling unit. The Family-Level File (Part 2) is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, the Person-Level File (Part 3) provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for the Sample Adult File (Part 4) regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. The Sample Child File (Part 5) provides information from a knowledgeable adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment such as hearing aids, braces, or wheelchairs. Also included are questions regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD). The Child Immunization File (Part 6) presents information from shot records and supplies vaccination status, along with the number and dates of shots, and information about the chicken pox vaccine. The Injury and Poison Data File (Part 7) contains episode-level data for injuries and poisonings and the Injury and Poison Verbatim File (Part 8) contains verbatim comments for both injuries and poisonings.
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Partially restricted

National Long-Term Care Survey: 1982, 1984, 1989, 1994, 1999, and 2004 (ICPSR 9681)

Released/updated on: 2010-06-21
Geographic coverage: United States

The National Long-Term Care Survey (NLTCS) has completed six waves, nominally at five-year intervals, 1982, 1984, 1989, 1994, 1999, and 2004. The NLTCS is a nationally-representative sample both of the community and of institutionalized populations and is longitudinal in that sample persons join the survey once they reach 65 years of age and stay in the survey until they either die or are lost to follow-up. At each wave, a screener questionnaire is administered to the sample which divides the sample into three parts: the non-disabled (frequently called screen-outs), the disabled but living in the community, and the disabled living in an institution. About 5,000 people die between waves and are replaced by a sample of about that size of people who have become age 65 since the prior wave. Because of budget considerations it usually has not been possible to continue the entire non-disabled sample into the next wave. Instead a sample of the non-disabled is drawn to keep the total sample size for a wave at about 20,000. One of the interesting and useful features of the NLTCS is that data are collected on help that the sample person receives from informal caregivers.

The NLTCS is a very data-rich resource with many components, including disability measures, medical conditions, attained education levels, and income. Numerous papers have used it as a source of data addressing a wide variety of topics related to aging and disability.

Ancillary surveys have been added to measure other characteristics of the 65 and older population, to include a Caregiver Survey to acquire data on informal caregivers themselves (done in 1989, 1999, and 2004) and Next-of-Kin (NOK) surveys administered to sample persons who had died between 1982 and 1984 and again between 1994 and 1999. The sample has been frequently supplemented to compensate for low representation in some survey components, in particular the 75 years and older and 95 years and older components. In 1999 physical specimens were drawn from a sample of persons who responded to the survey. These physical specimens (blood where possible, alternatively a buccal wash) are subject to a genetic analysis and, in the case of blood, to a panel of proteins believed to be particularly important to health.

NLTCS Survey Data

Survey data are available in ASCII and SAS format.

The Analytic Data File, a file of derived variables for all waves of the survey incorporates correction factors and consistency checking. The Analytic Data File covers all waves of the survey and is available in both ASCII and SAS formats. Final versions of data for all waves, up to and including 1999 and a beta version for 2004, have been released and are supported by documentation.

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National Medical Expenditure Survey, 1987: Household Survey, Care Giver and Care Receiver Supplements [Research File 31R] (ICPSR 6649)

Released/updated on: 2006-03-30
Geographic coverage: United States
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Household Survey was fielded over four rounds of personal and telephone interviews at four-month intervals. Baseline data on household composition, employment, and insurance characteristics were updated each quarter, and information on all uses of and expenditures for health care services and sources of payment was obtained. Research File 31R provides information collected from two supplements administered as part of the Household Survey: the Care Receiver Supplement and the Care Giver Supplement. The Care Receiver Supplement (Part 2) was given to those Round 2 persons who answered positively to receiving help in at least one of three areas: assistance with Activities of Daily Living (ADL), assistance with Instrumental ADL (IADL), or financial assistance. This supplement asked for information on the care receiver's living situation, and amounts and types of assistance. The Care Giver Supplement (Parts 3 and 4) was administered in Rounds 2 and 5 to persons identified in the Long-Term Care Supplement (see ICPSR 9675) as being the main care-givers for other members of the dwelling unit who had difficulty with one or more ADLs or IADLs. This supplement obtained information on the impact of a caregiver's responsibilities on his or her employment, income, and physical and mental health, as well as the extent of the impaired person's psychological and social disabilities. Part 1, Person-Level Summary Data, supplies information such as age, sex, race, marital status, and education of the respondents.
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National Medical Expenditure Survey, 1987: Household Survey I, Population and Home Health Providers (ICPSR 9339)

Released/updated on: 2006-01-18
Geographic coverage: United States
This data collection contains two data files derived from information gathered in the initial screening and Round 1 interviews of the Household Survey component of the 1987 NATIONAL MEDICAL EXPENDITURE SURVEY (NMES). The Person File contains data on each person sampled in the first round of the Household Survey. Data are included on each sampled person's self-reported coverage under private health insurance and public programs such as Medicaid, Medicare, and CAMPUS/CAMPVA. In addition, data describe difficulties and help with activities of daily living such as bathing, dressing, eating, toileting, handling money, walking, shopping, preparation of meals, light housekeeping, and the use of telephones and transportation. For persons with difficulties in activities of daily living, there is also information on prior nursing home institutionalization and the use of special equipment, adult day care, senior centers, home-delivered and congregate meals, special transportation, and telephone assurance. The Person File covers a broad range of personal background variables: age, sex, race, ethnicity, Hispanic ancestry, marital status, family relationships, educational status, employment status, occupation, industry, wages and salary, length of time at work, characteristics of the workplace, union membership, and military service. The Home Health Provider File contains data (as reported by the Household Survey respondents) on each provider of formal or informal services who came to the home of a person in the Household Survey sample within a month of the Round 1 interview. Information in the Home Health Provider File includes date of the provider's last visit, length of stay in the home, type of services rendered, provider's place of work, provider's medical specialty, if any, and whether or not the provider was a relative of the person receiving help.
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National Medical Expenditure Survey, 1987: Household Survey, Long-Term Care Supplement [Public Use Tape 10] (ICPSR 9675)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1987-01-01--1988-01-01
The Long-Term Care (LTC) Supplement contains data on the functional status of persons responding to Rounds 1 and 4 of the Household Survey of the 1987 National Medical Expenditure Survey (NMES). The series of questions on functional status includes items on Activities of Daily Living (ADL) and instrumental ADL (IADL), continence, and use of special equipment. For those persons having at least one ADL or IADL difficulty, questions were asked about use of community services such as adult day care, senior centers, home-delivered and congregate meals, special transportation, and telephone assurance. Information was also sought on prior nursing home stays, and financial help from someone outside of the household. The Demographics and Sampling Weights file contains person-level data for individuals who responded for their entire period of NMES eligibility (Rounds 1, 2, 3, and 4). Each record contains person identifiers, selected characteristics including age, sex, race/ethnicity, and census region, dates of interview, a response-per-round indicator for the LTC Supplements, imputation flags for ADL/IADL, and sampling weight variables. The LTC Supplement population represented in File 2 is a subset of persons in File 1. File 2 is composed of separate records for LTC data collected during Round 1 (N=33,971) and during Round 4 (N=33,986).
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National Medical Expenditure Survey, 1987: Institutional Population Component, Personal History Questionnaire for Residents of Nursing and Personal Care Homes and End-of-Year Questionnaire for Residents of Nursing and Personal Care Homes and Facilities for Persons With Mental Retardation [Research File 19r] (ICPSR 6632)

Released/updated on: 2006-03-30
Geographic coverage: United States
The National Medical Expenditure Survey (NMES) series provides information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services. The Institutional Population Component (IPC) is a survey of nursing and personal care homes and facilities for the mentally retarded and residents admitted to those facilities. Information was collected on facilities and their residents at several points during 1987. Use and expenditure estimates for institutionalized persons can be combined with those from the Household Component for composite estimates covering most of the civilian population. Information on facilities and residents was collected from facility administrators and caregivers, with additional information collected from next-of-kin or other knowledgeable respondents. These data were supplemented by Medicare claims information for covered sample persons. Research File 19R provides information collected from two IPC questionnaires, the Personal History Questionnaire (PHQ) and the End-of-Year Questionnaire (EYQ). The PHQ was administered once as part of the surveys of next-of-kin. These data are primarily concerned with the characteristics of the sample person just prior to admission. The EYQ was administered once in either the surveys of next-of-kin or the surveys of institutions and focuses on health status. Research File 19R also includes items from the Baseline Questionnaire and the Baseline Questionnaire Supplement. Data from these questionnaires were released on NMES Public Use Tapes 8, 17, and 22R (ICPSR 9677, 6158, and 6467). Part 1 of this collection, Summary Data, includes demographic characteristics such as age, race, sex, date of admission to sampled facility, and vital status. Part 2, 1987 Personal History Questionnaire (PHQ) Data, supplies information on condition prior to admission to facility, chronic disease history, whether respondent needed help with activities of daily living (ADLs) and/or instrumental activities of daily living (IADLs), usage of assistive technology, and behavioral history. Part 3, End-of-Year Questionnaire (EYQ) Data, includes characteristics of the sample person, limitations and help with ADLs and IADLs, health and behavioral history, and condition codes reported by either the respondent or the facility medical records.
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National Survey of Hispanic Elderly People, 1988 (ICPSR 9289)

Released/updated on: 2005-11-04
Geographic coverage: United States
Time period: 1987-01-01--1988-01-01
This survey, conducted as an extension of the NATIONAL SURVEY OF PROBLEMS FACING ELDERLY AMERICANS LIVING ALONE, 1986 (ICPSR 9379) (NSPFEALA), was designed to investigate specific problems of the elderly in order to gain a better understanding of the economic, health, and social status of this group. The survey focused on many of the same issues investigated by the NSPFEALA to allow comparisons between Hispanic elderly and the elderly population as a whole. Respondents were given their choice of English or Spanish as the interview language. Elderly Hispanics were asked if they had serious problems with family relationships, loneliness, anxiety, care of a sick spouse or relative, paying for medical bills, having enough money to live on, or dependence on others. In the same vein, respondents were asked if they had disabilities that affected their daily activities such as bathing, dressing, walking, eating, and shopping, and who, if anyone, helped them to perform these functions. Respondents were also asked if they were generally satisfied with their lives and if they felt excited, restless, proud, pleased, bored, depressed, optimistic, or upset during the few weeks preceding the interview. In addition, the survey inquired about willingness to accept various changes in Social Security benefits and taxation and also queried respondents about their living arrangements (actual and preferred), social networks, general health, doctor visits and hospital stays during the last 12 months, coverage by and utilization of social programs and services, income and sources of income, fluency in English and Spanish, current and past employment, usual means of transportation, home ownership, ancestry, country of birth, year of immigration, religion, education, number of living children, age, sex, and marital status.
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National Survey of Self-Care and Aging: Baseline, 1990-1991 (ICPSR 6718)

Released/updated on: 2006-06-22
Geographic coverage: United States
Time period: 1990-09-16--1991-01-25
The National Survey of Self-Care and Aging (NSSCA) was conducted during 1990 and 1991 to create a baseline database on the prevalence of self-care behaviors by noninstitutionalized older adults. Personal interviews were conducted with 3,485 individuals 65 years of age and older. Oversampling of the oldest old was employed to assure representation of those who were frail or difficult to reach. A proxy was substituted if the subject was hospitalized, too ill, or cognitively not able to respond. Questions were asked about the type and extent of self-care behaviors for activities of daily living, management of chronic conditions (through self-care activities, equipment use, and environmental modifications), medical self-care for acute conditions, and health promotion/disease preventions. Social support, health service utilization, and socio-demographic/economic variables were also included. A follow-up study was conducted in 1994 (see NATIONAL SURVEY OF SELF-CARE AND AGING: FOLLOW-UP, 1994 [ICPSR 2592]).
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National Survey of Self-Care and Aging: Follow-Up, 1994 (ICPSR 2592)

Released/updated on: 2006-03-30
Geographic coverage: United States
This follow-up to the NATIONAL SURVEY OF SELF-CARE AND AGING: BASELINE, 1990-1991 (ICPSR 6718) was conducted in 1994 to continue examination of the health status and self-care practices of individuals aged 65 or older who were interviewed at baseline during 1991. Telephone interviews (Part 1) were conducted with individuals who were interviewed at baseline. A proxy was interviewed if the subject was too ill or cognitively unable to respond. Included were questions about the type and extent of self-care behaviors for activities of daily living, management of chronic conditions (through self-care activities, equipment use, and environmental modifications), and medical self-care for acute conditions, along with questions regarding change in health status since baseline, health service utilization, nursing home visits, and sociodemographic/economic status. For subjects who had been institutionalized since baseline (Part 2), interviews were conducted with proxies. Information was gathered regarding demographic status, living arrangements prior to institutionalization, and reasons for institutionalization. For subjects who had died since baseline (Part 3), information was again gathered through interviews with proxies. Questions covered nursing home admissions and date and place of death. Part 4 consists of data from interviews conducted at baseline (ICPSR 6718) merged with interviews conducted at this follow-up.
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National Survey of the Aged [United States], 1962 (ICPSR 7687)

Released/updated on: 1992-02-16
Geographic coverage: United States
This data collection contains the results of a survey of the aged in the United States in 1962. The study gathered information on the health, economic status, living arrangements, and family relationships of persons aged 65 years and older. The emphasis of the survey was on the general physical capacity of older people, the relationship of physical capacity to economic conditions, employment and retirement patterns, housing, and family and social relationships. The survey was designed to produce national estimates of the needs of older persons. In particular, the services that facilitate continued independent living arrangements were examined. The survey was conducted by the National Opinion Research Center and was part of a three-nation study in Denmark, Great Britain, and the United States (see NATIONAL SURVEY OF THE AGED [UNITED STATES], 1957 [ICPSR 7686] and NATIONAL SURVEY OF THE AGED, 1975 [ICPSR 7945]). In personal interviews respondents who were currently employed (and those who were retired or housewives) were asked for employment details and occupational history, their attitudes about work and retirement, and descriptions of their physical health, with specific questions asked of both nonambulatory and housebound persons, (e.g., if they needed and/or received help with various personal care tasks, what specific illness kept them indoors, and who provided their in-home care). Respondents were also asked for information about their children and relatives (e.g., the amount of financial help received from them, the number of times each sibling and child visited, and the amount of time it would take each to make the trip to the respondent's dwelling) and their finances (e.g., living expenses, life insurance, value of property, amount of mortgage payment or rent, and amount and sources of income). Other questions concerned attitudes about aging (e.g., if respondents were satisfied with their life accomplishments, if they believed in an afterlife, and how often they experienced feelings of loneliness and isolation). The interviewers provided observational data about respondents (e.g., level of cooperation and alertness and ability to hear and see). Demographic data gathered include age, sex, marital status, relationship to head of household, number of persons in household, type of household, country of origin, age when arrived in the United States, last grade or year of school completed, religious preference, and if living on a farm.
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Nihon University Japanese Longitudinal Study of Aging (NUJLSOA) (ICPSR 156)

Released/updated on: 2006-06-19
Geographic coverage: Japan, Global
The NUJLSOA is a longitudinal survey of a nationally representative sample of the population aged 65 and over in Japan. The first wave of data was collected in November 1999, the second in November 2001, and a third wave in November 2003. The study was designed primarily to investigate health status of the Japanese elderly and changes in health status over time. An additional aim was to investigate the impact of long-term care insurance system on the use of services by the Japanese elderly and to investigate the relationship between co-residence and the use of long term care. While the focus of the survey is health and health service utilization, other topics relevant to the aging experience are included such as intergenerational exchange, living arrangements, caregiving, and labor force participation.
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SABE - Survey on Health, Well-Being, and Aging in Latin America and the Caribbean, 2000 (ICPSR 3546)

Released/updated on: 2006-02-17
Geographic coverage: Cuba, Argentina, Barbados, Uruguay, Brazil, Mexico, Chile, Global
Time period: 1999-01-01--2000-01-01
The Survey on Health, Well-Being, and Aging in Latin America and the Caribbean (Project SABE) was conducted during 1999 and 2000 to examine health conditions and functional limitations of persons aged 60 and older in the countries of Argentina, Barbados, Brazil, Chile, Cuba, Mexico, and Uruguay, with special focus on persons over 80 years of age. Project SABE was administered in the official language of each country: Spanish in Buenos Aires (Argentina), Mexico City (Mexico), Santiago (Chile), Havana (Cuba), and Montevideo (Uruguay), English in Bridgetown (Barbados), and Portuguese in Sao Paulo (Brazil). Goals of the project were to (a) describe the health conditions of older adults (aged 60 and older with special focus on persons over 80) with regard to chronic and acute diseases, disability, and physical and mental impairment, (b) evaluate the extent to which older adults used and had access to health care services, including services that are outside the formal system (local healers, traditional medicine), (c) evaluate the proportional contribution by principal sources of support -- relatives and family networks, public assistance, and private resources (income, assets) -- towards meeting the health-related needs of older adults, (d) evaluate access to health insurance offered by private organizations, governmental institutions, and mixed systems, as well as the extent to which that insurance was actually used, (e) analyze the differentials in the self-evaluation of health conditions, access to health care, and sources of support with regard to socioeconomic group, gender, and birth cohort, (f) evaluate the relationships between strategic factors -- health-related behavior, occupational background, socioeconomic status, gender, and cohort -- and health conditions, according to the health evaluation at the time of the survey, and (g) carry out comparative analyses in countries that share similar characteristics but that differ with regard to such factors as the role of family support, public assistance, access to health services, and health-related behavior and exposure to risk. Demographic variables include age, sex, race, level of education, birthplace, religion, ethnic group, marital status, and income. Also examined were cognitive status, health status, functional status, nutritional status, and use and accessibility of services
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Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997 (ICPSR 2623)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts, Springfield
This two-wave longitudinal survey of persons with disabilities in Springfield, Massachusetts, had four research objectives: (1) to determine levels of formal and informal service use among people with disabilities in Springfield, (2) to determine the prevalence and consequences of unmet needs for assistance with activities of daily living (ADLs) and instrumental activities of daily living (IADLs), (3) to test the hypothesis that residents reporting unmet needs for assistance with daily living activities at baseline would have higher levels of emergency room use and hospitalization over the follow-up period than respondents not reporting such needs, and (4) to assess respondents' satisfaction with access to and quality of their health care and health care providers. Conducted in 1993-1994 and 1996-1997, the survey gathered information on health, health service utilization, satisfaction with health services, assistance with ADLs (eating, dressing, bathing, toileting, transferring in and out of bed/chair, and moving around indoors) and IADLs (preparing meals, shopping for groceries and household supplies, housekeeping, transportation, and financial management), social and physical activity, social support, health care coverage, and sociodemographic characteristics such as income, year of birth, marital status, race, Hispanic origin, religion, education, and employment.
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The Survey of Health, Ageing and Retirement in Europe (SHARE) -- Israel, 2005-2006 (ICPSR 22160)

Released/updated on: 2008-11-21
Geographic coverage: Israel, Global
Time period: 2005-01-01--2006-01-01

The Survey of Health, Ageing and Retirement in Europe (SHARE) is a multidisciplinary and cross-national database of micro data on health, socio-economic status and social and family networks of individuals aged 50 or over which was designed after the role models of the United States Health and Retirement Study (HRS) and the English Longitudinal Study of Ageing (ELSA).

SHARE-Israel was added to the collection during 2005 and 2006 and required a complex adaptation of the SHARE survey instruments for implementation in Israel. In order to access the three major population groups that make up Israeli society, veteran Jewish-Israelis, Arab-Israelis and new immigrants from the former Soviet Union after 1989, it was necessary to translate the CAPI questionnaire and the drop off questionnaire into Hebrew, Arabic and Russian.

Data collected include health variables (e.g., self-reported health, physical functioning, cognitive functioning, health behavior, use of health care facilities), psychological variables (e.g., psychological health, well-being, life satisfaction), economic variables such as (current work activity, job characteristics, opportunities to work past retirement age, sources and composition of current income, wealth and consumption, housing, education), and social support variables (e.g., assistance within families, transfers of income and assets, social networks, volunteer activities).

Two physical performance measures were also employed. The first was grip strength, the respondent's maximum handgrip strength measured by means of a dynamometer. The second physical performance measure was walking speed, which was asked only of persons aged 75 and older. This physical measurement involved asking the respondent to walk a certain distance and measuring the time it took for the respondent to complete the task.

Unique to SHARE-Israel were questions in the drop-off questionnaire regarding trauma. Respondents were asked about difficult life events that they had experienced and the degree to which they were affected by them. The events were drawn from the following areas (1) having personally suffered injury in war, in a terrorist attack, a grave illness or accident, (2) having witnessed injury or death in war, in a terrorist attack, and/or in an accident or crime, (3) having been a victim of crime, abuse, sexual harassment and/or severe economic adversity, (4) having had a close person injured or lost due to war, a terrorist attack, accident or grave illness, (5) loss of spouse and/or offspring, and (6) having provided or received long term care due to functional disability. A separate inventory chronicled respondents' exposure to the Holocaust.

Also included in the drop-off questionnaire were questions regarding pension reform: which addressed respondents' awareness of the legislated delay in the age of eligibility for retirement pension in Israel, (for men, age 67 and for women, age 64). It also inquired about implications of the change in pension age, information regarding personal plans for employment or retirement in light of the change, and sources of income that would be used to bridge the period between retirement and receipt of pension, if early retirement was contemplated. Full details regarding SHARE can be located at the SHARE Web site.

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Simple Crosstabs

Survey of Low Income Aged and Disabled, United States, 1973-1974 (ICPSR 7661)

Released/updated on: 2018-11-19
Geographic coverage: United States
Time period: 1973-01-01--1974-01-01
This data collection contains the results of the Survey of Low Income Aged and Disabled (SLIAD), conducted in 1973-1974 in order to collect demographic and socioeconomic data necessary for assessing the effect of the Supplemental Security Income (SSI) program on potential recipients. After January 1, 1974, SSI replaced the state-administered welfare programs of Old Age Assistance (OAA), Aid to the Blind (AB), and Aid to the Permanently and Totally Disabled (APTD) and was meant to improve the economic well-being of the adult poor. A national sample of about 18,000 low-income aged, blind, and/or disabled adults was interviewed in 1973, and reinterviewed in 1974, after SSI was implemented. The 1974 re-interviews were conducted only with persons successfully interviewed in 1973. No new cases were added to replace first-year losses, nor were cases dropped because they no longer met SSI eligibility. Part 1 contains data gathered from a sample made up of aged and disabled persons who received OAA, AB, and/or APTD payments in 1973. Part 2 contains data gathered from a sample of low-income aged and disabled people in the general population (generated from Current Population Survey samples). The United States Census Bureau conducted the interviews and collected the data. The 1973 survey placed great emphasis on financial matters. Each respondent was asked to report income received in the preceding month and year by each of three general classes of persons in the household. The questionnaire listed more than 15 income sources including payments and awards from almost every transfer program possible, earnings from jobs and businesses, gifts, and dividends. The financial section of the questionnaire also included items aimed at establishing the value of owned property, savings and investments, the amount of indebtedness, and the amount spent for food, shelter, and other recurring household expenditures. For the most part, the remainder of the questionnaire concerned (1) household composition, (2) personal history, (3) health, health care, and the capacity for self-maintenance, (4) standard of living, as represented by housing, diet, travel, and recreation, (5) factors that might affect the relation between income and standard of living (e.g., personal preference, physical capacity, and access), and (6) attitudinal response to these conditions, circumstances, and types of status. The 1974 survey was similar in that it asked almost all of the earlier income and asset questions, but added a section on SSI payments. It also collected more detail on household living expenses. It did not repeat the biographical section or the inventory of health conditions from the 1973 survey, but did contain new questions on a spouses' funeral expenses as well as the respondent's experience with SSI.
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Simple Crosstabs

Survey of Midlife in Japan (MIDJA), April-September 2008 (ICPSR 30822)

Released/updated on: 2018-03-09
Geographic coverage: Tokyo, Japan, Global
Time period: 2008-04-01--2008-09-30
The MIDJA study is a probability sample of Japanese adults (N = 1,027) aged 30 to 79 from the Tokyo metropolitan area. Survey data were collected on sociodemographic characteristics (age, gender, marital status, educational status), psychosocial characteristics (e.g., independence/interdependence, personality traits, sense of control, goal orientations, social support, family obligation, social responsibility), mental health (depression, anxiety, well-being, life satisfaction), and physical health (chronic conditions, health symptoms, functional limitations, health behaviors). These measures parallel those in a national longitudinal sample of midlife Americans known as MIDUS (ICPSR 4652: MIDUS II and ICPSR 2760: MIDUS I). The central objective is to compare the Japanese sample (MIDJA) with the United States sample (MIDUS) to test the hypothesis that the construct of interdependence predicts well-being and health in Japan, whereas the construct of independence predicts well-being and health in the United States. Cultural influences on age differences in health and well-being are also of interest.
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Simple Crosstabs

Swedish Adoption/Twin Study on Aging (SATSA), 1984, 1987, 1990, 1993, 2004, 2007, and 2010 (ICPSR 3843)

Released/updated on: 2015-05-13
Geographic coverage: Sweden, Global
Time period: 1984-01-01--2010-01-01
The Swedish Adoption/Twin Study on Aging (SATSA) was designed to study the origins of individual differences in aging and the environmental and genetic factors that are involved. SATSA began in 1984, and six additional waves were conducted in 1987, 1990, 1993, 2004, 2007, and 2010. The questionnaire was initially sent to all twins from the Swedish Twin Registry who were separated at an early age and raised apart; the survey was also administered to a control sample of twins who were raised together. The respondents were surveyed on items that included health status, how they were raised, work environment, alcohol consumption, and dietary and smoking habits, as well as questions about personality and attitudes; this information comprised the first component. The second component was collected from a subsample composed of 150 pairs of twins raised apart and 150 pairs of twins raised together. This subsample participated in seven waves of in-person testing, which included a health examination, structured interviews, and tests on functional capacity, cognitive abilities, and memory. The data are represented according to questionnaire and time number, and correspond to each wave/year: Questionnaire 1 and In-Person Testing Time 1 were in 1984; Questionnaire 2 and In-Person Testing Time 2 were in 1987; Questionnaire 3 and In-Person Testing Time 3 were in 1990; Questionnaire 4 and In-Person Testing Time 4 were in 1993; Questionnaire 5 was in 2003; In-Person Testing Time 5 was in 2004; Questionnaire 6 and In-Person Testing Time 6 were in 2007; In-Person Testing Time 7 was in 2010. The Administrative and Cognitive datasets include data from all years/waves. The Smell Survey dataset only includes data from 1990. No years were specified for the Contact measures and Separation measures datasets. Demographic and background information includes age, sex, education, family history, household composition and employment.
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United States National Health Measurement Study, 2005-2006 (ICPSR 23263)

Released/updated on: 2009-06-23
Geographic coverage: United States
Time period: 2005-06-01--2006-08-01
The National Health Measurement Study (NHMS) surveyed older United States adults with a suite of health-related quality of life (HRQoL) indices to allow comparison and cross-calibration of these instruments. The design oversampled African Americans and older individuals to allow subgroup analyses. Several preference-weighted indices measuring self-reported generic HRQoL are used widely in population surveys and clinical studies in the United States and around the world. These indices are used to evaluate individual and population health. Because they have been developed using econometric methods to elicit utility weights for their scoring systems, they are generally accepted for use in cost-effectiveness analyses of health interventions. Each index uses a multidimensional representation of health, but each index covers the dimensions of health (e.g., physical function, mental function, social function, pain, other symptoms, etc.) differently, and uses questionnaires with different psychometric properties. Each index is scored so that perfect health is represented as 1.0 and dead is represented as 0.0, but they are known to have different scaling properties. Rarely have two or more of these instruments been included in a population survey, so there have been few opportunities to directly compare how they describe and measure health using multi-instrument data. In this study, respondents indicated whether they had been diagnosed with coronary heart disease, stroke, diabetes, arthritis, eye disease, sleep disorder, chronic respiratory disease, clinical depression or anxiety disorder, gastrointestinal ulcer, thyroid disorder, and/or severe chronic back pain. Census tract is not identified, however race composition, education levels, economic factors, and urbanicity of each respondent's census tract of residence are included as contextual variables. Demographic, socioeconomic, and additional health data were elicited. Respondents are characterized by census region of residence, age, gender, marital status, race, ethnicity, education, household income and assets, health insurance, weight, height, smoking status, psychological well-being scales, and everyday and lifetime discrimination items. The data were de-identified, and extensive documentation was developed. The NHMS collected data on 3,844 adults in the continental United States (1,641 males and 2,203 females, 1,086 African Americans).
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Well Elderly 2, Los Angeles, California, 2004-2008 (ICPSR 33641)

Released/updated on: 2013-05-28
Geographic coverage: United States, Los Angeles, California
Time period: 2004-11-01--2008-10-01
Older people are at risk for health decline and loss of independence. Lifestyle interventions offer potential for reducing such negative outcomes. The Well Elderly study attempts to determine the effectiveness and cost-effectiveness of a preventive lifestyle-based occupational therapy intervention, administered in a variety of community-based sites, in improving mental and physical well-being and cognitive functioning in ethnically diverse older people. Participants included 460 men and women aged 60 - 95 years recruited from 21 sites in the greater Los Angeles metropolitan area. For six months elders in one group received the Well Elderly Intervention, while elders in the other group remained untreated for the first six months and received the intervention during the second six-month phase. Following receipt of the intervention, subjects in both groups remained untreated for respective twelve month spans. The manualized intervention consisted of small group and individual sessions led by a licensed occupational therapist. Typically, each group had six to eight members, all recruited from the same site and treated by the same intervener. Monthly community outings were scheduled to facilitate direct experience with intervention content such as the use of public transportation. An assessment battery (including questionnaires, cognitive tests, and biomarker samples) measured potential mediating variables as well as outcome variables and was administered at study baseline and at subsequent six-month intervals. In addition, at baseline a set of background and control variables were measured. At the end of each assessment session (questionnaires and cognitive tests), subjects provided salivary samples. The Samples were assayed for cortisol, dehydroepiandrosterone, and alpha amylase. Assessment of health-related quality of life, life satisfaction, and depression was based on self-rated questionnaires. Cognitive tests were conducted individually. Perceived physical health and aspects of mental well-being were measured, as were depressive symptoms, and life satisfaction. Variable categories include, health survey, stressful events, feelings, connections, attitudes, supports, beliefs, issues, activities, and demographics i.e. respondents age, sex, race, education level, employment, and income.
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World Health Organization Collaborative Study on Social and Health Aspects of Aging in Bahrain, Egypt, Jordan, and Tunisia, 1991 (ICPSR 6250)

Released/updated on: 2006-03-30
Geographic coverage: Egypt, Jordan, Tunisia, Bahrain, Global
These data were gathered to provide information on the elderly in Bahrain, Egypt, Jordan, and Tunisia. Questions were asked regarding demographic characteristics (age, race, sex, marital status, religion, number of children and siblings, education), economic resources (employment status of respondent and of respondent's spouse, main income source, other income sources, whether house was owned), health (current health status, accidents and/or injuries affecting daily activities, number of times respondent saw a health professional in the previous month, number of days in hospital, nursing home, or rehabilitation center in the previous month, medications currently used, usage of any devices to assist in getting around), activities of daily living, living habits (smoking or drinking), social activities (club membership, whether respondent had a confidant), housing (satisfaction with current living conditions, accessibility to quarters, safety), and mental state of the respondent.