Showing 1 – 7 of 7 results.
Curated
National Medical Expenditure Survey, 1987: Institutional Population Component, Facility Questionnaire Supplement [Public Use Tape 5] (ICPSR 9678)
Released/updated on: 1992-02-17
Geographic coverage: United States
The 1987 National Medical Expenditure Survey (NMES) Public Use Tape 5 contains data from the Facility Questionnaire Supplement, which was administered during Phase 3 (early 1988) of the Survey in Institutions, a major part of the Institutional Population Component of the NMES. The Facility Questionnaire Supplement (FQS) included questions on the existence of any special Alzheimer's units in nursing homes and characteristics of these units, such as their capacity and plans for future expansion. The FQS also included some questions on nursing homes that had been asked previously only of facilities for the mentally retarded. These questions included accreditation status of the facility and provision of training for residents.
Curated
People With Dementia as Witnesses to Emotional Events in Southern California, 2008-2009 (ICPSR 29042)
Released/updated on: 2015-04-16
Geographic coverage: United States, California
Time period: 2008-07-01--2009-10-01
This study sought evidence that a subset of people with dementia (PwD) have reliable memory for emotional events in their own lives, and that they differ from PwD whose memory for emotional life events is less reliable or unreliable in respect to their own disease stage, confabulation and neuropsychiatric behaviors, and awareness of their cognitive impairment. A cross-sectional study of 93 people with mild or moderate dementia (aged 55 and older) and a comparison group of 50 older adults was conducted. Memories of recent autobiographical events that had both positive and negative emotional content were elicited during a structured interview, designed for consistency with accepted forensic interviewing techniques. Accurate recollection of these events was independently verified by a non-demented informant, usually a family member. In addition, both members of the dyad were interviewed independently to assess other characteristics of people with dementia (PwD): demographics, depressive symptoms, functional and cognitive abilities, medications, health conditions, behaviors and characteristics of the dyadic relationship. Researchers also assessed PwD for disease stage, awareness of cognitive impairment, and episodic memory. A validated test of emotionally-influenced memory was administered to qualified participants to verify the novel structured interviewing assessment developed for this study. Two researchers conducted the study assessments during home visits. The data file contains 945 cases and 732 variables.
Curated
Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001 (ICPSR 3253)
Released/updated on: 2006-03-30
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-01
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Data were collected through randomized clinical trials at six sites: University of Alabama--Birmingham, the Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee--Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions studied included psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services. Although interventions varied by site, all sites collected the same data at the same time intervals. The impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization was assessed. Parts 1 through 5 contain screening data and a short mental status questionnaire. Parts 6 through 24 contain baseline data and cover activities of daily living, anxiety, and caregiver health and behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 25 and 26 contain tracking data and also include an examination of interventions.
Curated
Resources for Enhancing Alzheimer's Caregiver Health, 1996-2001, Baseline and Follow-Up Data (ICPSR 3678)
Released/updated on: 2006-09-26
Geographic coverage: United States, Tennessee, California, Alabama, Florida, Birmingham, Pennsylvania, Miami, Palo Alto, Massachusetts, Memphis, Philadelphia, Boston
Time period: 1996-09-01--2001-02-01
Resources for Enhancing Alzheimer's Caregiver Health (REACH) was established in 1995 to conduct social and behavioral research on interventions designed to enhance family caregiving, particularly in minority families, for persons with Alzheimer's Disease and related disorders. Baseline data (ICPSR 3253) were collected through randomized clinical trials at six sites: University of Alabama-Birmingham, The Research and Training Institute of the Hebrew Rehabilitation Center for Aged in Boston, University of Tennessee-Memphis, University of Miami, Veterans Affairs Palo Alto Health Care System and Stanford University, and Thomas Jefferson University in Philadelphia. Interventions such as psychoeducational support groups, behavioral skills training programs, family-based systems interventions, environmental modifications, and technological computer-based information and communication services varied by site. This collection contains baseline data along with follow-up data at 6-, 12-, and 18-month intervals from each site with focus on the impact of the various intervention strategies on psychological distress, health status, health practices, and health care utilization. Also included are follow-up batteries, transition batteries (placement, bereavement, discontinued), and data reporting missed visits. Parts 1 through 5 contain screening data and responses to a short mental status questionnaire. Parts 6 through 34 contain baseline data along with follow-up data at 6, 12, and 18-month intervals and cover activities of daily living, anxiety, and caregiver health and health behaviors along with sociodemographic information. Also included are care recipient medications and sociodemographic information. Parts 35 through 40 contain tracking data and also include an examination of interventions.
Curated
Resources for Enhancing Alzheimer's Caregiver Health (REACH II), 2001-2004 (ICPSR 4354)
Released/updated on: 2006-10-27
Geographic coverage: Palo Alto, United States, Tennessee, Memphis, California, Alabama, Florida, Birmingham, Philadelphia, Pennsylvania, Miami
Time period: 2001-01-01--2004-01-01
Built upon the findings of RESOURCES FOR ENHANCING ALZHEIMER'S CAREGIVER HEALTH, 1996-2001, BASELINE AND FOLLOW-UP DATA [ICPSR 3678], REACH II designed and tested a single multi-component intervention among family caregivers of persons with Alzheimer's disease or related disorders. The overall objectives were (1) to identify and reduce modifiable risk factors among diverse family caregivers of patients with Alzheimer's Disease or a related disorder, (2) to enhance the quality of care provided to the care recipients, and (3) to enhance the well-being of the caregivers. REACH II is the first project to simultaneously test a comprehensive caregiver intervention in three distinct racial/ethnic groups: Hispanic/Latino, Black/African-American, and White/Caucasian. The intervention was based on a risk-appraisal approach in which five areas of risk--depression, burden, self-care, social support, and patient problem behaviors--that are central to caregiver well-being and quality of life were matched to corresponding intervention components. These components included education, skills to manage troublesome care-recipient behaviors, social support, cognitive strategies for reframing negative emotional responses, and strategies for enhancing healthy behaviors and managing stress. Consistent with this approach, the primary outcome was a multivariate quality of life indicator that assessed caregiver depression, burden, self-care, social support, and patient problem behaviors. Two hallmarks of caregiver intervention studies--caregiver clinical depression and patient institutionalization--were assessed as secondary outcomes. The dataset names listed in this collection include the shortened name of the form administered.
Curated
Study of Dementia in Swedish Twins, 1990-1999 (ICPSR 25963)
Released/updated on: 2010-06-04
Geographic coverage: Sweden, Global
Time period: 1990-05-01--1999-03-01
The Study of Dementia in Swedish Twins was designed to study the relative influence of genetic and environmental factors for Alzheimer's disease and other types of dementia and to test the role of specific environmental exposures that might constitute risk or protective factors for dementia. The first seven years of the Study of Dementia in Swedish Twins was based on the population from the SWEDISH ADOPTION/TWIN STUDY OF AGING (SATSA), 1984, 1987, 1990, and 1993 (ICPSR 3843). SATSA consists of a subset of 3,838 same-sex twins from the population-based Swedish Twin Registry; however, the baseline sample for the Study of Dementia in Swedish Twins consists of 2,394 individuals who were alive and born in 1935 or earlier. The Study of Dementia in Swedish Twins data cover background information (sex, zygosity, rearing status, ages at each data collection point, age at death), cognitive screening (which took place in conjunction with each SATSA wave of data collection), clinical dementia diagnoses for those who received a complete dementia workup (both baseline and longitudinal), cognitive test results (both baseline and longitudinal), medical history and medical risk factors (medical examination; blood pressure; laboratory results; history of neurologic, coronary, mental, and other diseases; smell test; history of head injury, anaesthesia, fevers, medications, dietary history with respect to fish, raw meat, and acidic foods prepared in aluminum pans), residential, occupational, and leisure activities history (including exposure related to welding, hairdressing, agriculture, medical settings, painting and other sources of organic solvents, crystal, carbon monoxide, radiation, raw meat and game; participation in contact sports; antiperspirant containing aluminum; history of smoking; history of use of alcohol), family history of dementia, and APOE genotype. SATSA is archived separately at ICPSR, see ICPSR 3843. The SATSA and the Study of Dementia in Swedish Twins files contain a common ID number that can be used to create a crosswalk between the files.
Curated
Wisconsin Longitudinal Study, 1957-2022 (ICPSR 6163)
Released/updated on: 2006-04-06
Geographic coverage: United States, Wisconsin
Time period: 1957-01-01--2022-01-01
The Wisconsin Longitudinal Study (WLS) is a long-term study of a random sample of 10,317 men and women who graduated from Wisconsin high schools in 1957. The WLS provides an opportunity to study the life course, intergenerational transfers and relationships, family functioning, physical and mental health and well-being, and morbidity and mortality from late adolescence through 2025. WLS data also cover social background, youthful aspirations, schooling, military service, labor market experiences, family characteristics and events, social participation, psychological characteristics and retirement.
Survey data were collected from the original respondents (the graduates) in 1957, 1964, 1975, 1992, 2004, 2011, 2020 and 2022; from their parents in 1957 and 1964; from a selected sibling in 1977, 1994, 2005, 2011, 2020 and 2022; from the spouse of the original respondent in 2004; and from the spouse of the selected sibling in 2006.
The collection of cognitive function data among graduates and siblings under the ILIAD study (MPIS: Sanjay Asthana, Michal Engelman, and Pamela Herd) began in 2020 to measure risk and resilience of Alzheimer's disease and related dementia (ADRD) as the cohort reaches their 80s. Data from 2020 and 2022 have been released, and 2025 and 2027 wave releases are forthcoming.
The WLS also has extensive administrative linkages, including with the 1940 and 1950 census, Social Security records, voting participation, and Medicare claims data.