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The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2008 was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study. This collection includes the data from the tenth year of the study as well as a comprehensive analytical dataset, incorporating data from the previous collections (data from previous waves of the study as well as participant demographic data can be found in ICPSR 4248). A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly) was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study.

This collection integrates data from two previous collections (ICPSR 4248 and ICPSR 36036) and fills in gaps that existed in these two collections. In addition, this collection features composite scores for constructs like memory, reasoning speed, Short Form Health Survey (SF-36), Social Determinants of Health (SDOH), as well as data from the National Death Index and state driving records.

Please read the collection notes for important analysis details.

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

Drawing on the principles of Whole Person Dementia Assessment (Mast, 2011) and Appelbaum and Grisso's (1988) decision-making model, this project developed a tool, the Lichtenberg Financial Decision Rating Scale (LFDRS). The conceptual model for the LFDRS questionnaire integrates the measurement of contextual variables with financial capacity assessment. The purpose of the study was to establish reliability and validity of the LFDRS and to collect data on normative financial decision-making by older adults.

The researchers posited that as financial exploitation of older adults increases, investigation and prosecution of these cases remains difficult for criminal justice professionals who must balance protection of older adults with their right to autonomy; and that both under and over-protection of older adults can lead to damaging consequences. The project goal was to develop a set of new financial decision-making screening and comprehensive measures for criminal justice professionals and non-criminal justice professionals to aid in detecting and prosecuting financial exploitation of older adults. The LFDRS (described above) is meant to be used by mental health professionals, specially trained in assessment of older adults. In addition, the researchers developed a 10-item screening tool, the Lichtenberg Financial Decision Screening Scale or Short Scale (LFDSS), that was tested by multiple professionals working in diverse settings (e.g., APS workers, elder law attorneys, law enforcement personnel).

Family members are another group that are often aware of an older adult's vulnerability to financial exploitation and therefore, the researchers developed the Lichtenberg Financial Decision Rating Scale -- Family and Friends version (LFDRS - Family and Friends also known as the LFDRS Informant) to allow concerned professionals to interview confidantes of older adults to help measure financial capacity of a loved one. This tool may be particularly useful for Adult Protective Services to interview multiple people regarding their concerns about an older adult.

The collection contains 3 SPSS data files:

• LFDRS-Data-for-ICPSR.sav (200 cases, 109 variables)
• LFDRS_Informant-Data-for-ICPSR.sav (150 cases, 45 variables)
• LFDSS_Screener-Data-for-ICPSR.sav (213 cases, 24 variables)

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

Financial elder exploitation (FE) is an increasing problem for vulnerable elders exploited by opportunists and for the social service and criminal justice system designed to protect them. This study systematically investigated both objective and subjective measures of social support and isolation, along with common risk factors mentioned in FE theories, including dependency, physical health, depression, cognition, and demographic characteristics. Researchers collected data on individual difference variables with an emphasis on cognitive factors and data on contextual factors using an individually administered survey approach. The framework for this project was derived from known factors for FE, predicted protective factors for FE, and conceptual approaches from the child mistreatment literature on risk and resilience.

The study includes 1 SPSS data file with 216 cases and 297 variables.

The Longitudinal Study of American Youth (LSAY) is a project that was funded by the National Science Foundation in 1985 and was designed to examine the development of: (1) student attitudes toward and achievement in science, (2) student attitudes toward and achievement in mathematics, and (3) student interest in and plans for a career in science, mathematics, or engineering, during middle school, high school, and the first four years post-high school. The relative influence parents, home, teachers, school, peers, media, and selected informal learning experiences had on these developmental patterns was considered as well.

The older LSAY cohort, Cohort One, consisted of a national sample of 2,829 tenth-grade students in public high schools throughout the United States. These students were followed for an initial period of seven years, ending four years after high school in 1994. Cohort Two, consisted of a national sample of 3,116 seventh-grade students in public schools that served as feeder schools to the same high schools in which the older cohort was enrolled. These students were followed for an initial period of seven years, concluding with a telephone interview approximately one year after the end of high school in 1994.

Beginning in the fall of 1987, the LSAY collected a wide array of information including: (1) a science achievement test and a mathematics achievement test each fall, (2) an attitudinal and experience questionnaire at the beginning and end of each school year, (3) reports about education and experience from all science and math teachers in each school, (4) reports on classroom practice by each science and math teacher serving a LSAY student, (5) an annual 25-minute telephone interview with one parent of each student, and (6) extensive school-level information from the principal of each study school.

In 2006, the NSF funded a proposal to re-contact the original LSAY students (then in their mid-30's) to resume data collection to determine their educational and occupational outcomes. Through an extensive tracking activity which involved: (1) online tracking, (2) newsletter mailing, (3) calls to parents and other relatives, (4) use of alternative online search methods, and (5) questionnaire mailing, more than 95 percent of the original sample of 5,945 LSAY students were located or accounted for. In addition to re-contacting the students, the proposal defined a new eligible sample of approximately 5,000 students and these young adults were asked to complete a survey in 2007. A second survey was conducted in the fall of 2008 that sought to gather updated information about occupational and education outcomes and to measure the civic scientific literacy of these young adults, in which to date more than 3,200 participants have responded. A third survey was conducted in the fall of 2009 that sought to gather updated information about occupational and education outcomes and to measure the participants' use of selected informal science education resources, in which to date more than 3,200 participants have responded. A fourth survey was conducted in the fall of 2010 that sought to gather updated information about occupational and education outcomes, as well as provided questions about the participants' interactions with their children, in which to date more than 3,200 participants have responded. Finally, a fifth survey was conducted in the fall of 2011 that sought to gather updated information about education outcomes and included an expanded occupation battery for all participants, as well as an expanded spousal information battery for all participants. The 2011 questionnaire also included items about the 2011 Fukushima incident in Japan along with attitudinal items about nuclear power and global climate change. To date approximately 3,200 participants responded to the 2011 survey.

There were no surveys conducted in 2012 or 2013. Beginning in 2014 the LSAY was funded by the National Institute on Aging for five years. This data release adds the 2017 data to the previous data release that included data through 2016.

The public release data files include information collected from the national probability sample students, their parents, and the science and mathematics teachers in the students' schools. The data covers the initial seven years, beginning in the fall of 1987, as well as the data collected in the 2007, 2008, 2009, 2010, 2011, 2014, 2015, 2016, and 2017 questionnaires.

Part 1: LSAY Merged Cohort (Base File) contains student and parent data from both cohorts of the LSAY from 1987-1994 and student follow-up data from 2007-2011 and 2014-2017. Additionally, Parts 2 - 5 contain information gathered from two teacher background questionnaires and two principal questionnaires from 1987-1994.

In 1994/1995, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. A description of the study and findings from it are available at the MIDUS website.

With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples (core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)) was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). The purpose of the Cognitive Project was to determine how cognition is related to overall mental and physical health. Specific goals were: (1) to characterize the nature and range of midlife cognitive performance, relative to those younger and older, across multiple domains in a nationally representative sample (MIDUS); and (2) to examine the relationship between biopsychosocial factors (e.g., SES, health status, health-promoting behaviors, metabolic and cardiovascular biomarkers, depression, personality, control beliefs, stressful life events) and individual differences in cognitive functioning.

The development of a cognitive battery for the second wave of testing of the Midlife Development in the United States (MIDUS) study provided an opportunity to examine the cognitive performance of young, middle-aged and older adults from a wide range of education levels in a large-scale, national sample. As part of the Cognitive Project of the MIDUS II the Brief Test of Adult Cognition by Telephone (BTACT) (Lachman & Tun, 2008; Tun & Lachman, 2006) was administered. More information about the BTACT can be found at the Brandeis website. The BTACT represents the first comprehensive cognitive battery, including measures of speed and reaction time, to be administered by telephone to a national sample across the adult years and into later life. With a response rate of over 86 percent for the cognitive testing component of the MIDUS II, a cognitive data set of unprecedented range in terms of age, gender, socioeconomic status (SES), education, and geographic diversity was produced.

The Neuroscience study is Project 5 of the MIDUS longitudinal study, a national survey of more than 7,000 Americans (aged 25 to 74) begun in 1994. The purpose of the larger study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples [core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)] was conducted in 2004-2006.

The Neuroscience Project of MIDUS 2 contains data from 331 respondents. These respondents include two distinct subsamples, all of whom completed both the Project 1 Survey and the Project 4 biomarker assessment at University of Wisconsin-Madison: (1) longitudinal (n = 223) and (2) Milwaukee (n = 108). The Milwaukee group contained individuals who participated in the baseline MIDUS Milwaukee study, initiated in 2005.

The purpose of the Neuroscience Project was to examine the central circuitry associated with individual differences in affective style that represent a continuum from vulnerability to resilience, and characterize some of the peripheral consequences of these central profiles for biological systems that may be relevant to health. The primary aims were to: (1) characterize individual differences in both emotional reactivity and emotional recovery using psychophysiological measures such as corrugator electromyography and eyeblink startle magnitude, (2) characterize individual differences in brain morphology, in particular amygdala and hippocampal volume, using structural magnetic resonance imaging (MRI), (3) characterize individual differences in activity within the neural circuitry of emotion regulation using both electroencephalography and fMRI, and (4) test the ability of the central indices in this project to predict the comprehensive array of health, cognitive, psychological, social, and life challenge factors assessed in the other MIDUS projects.

To probe individual differences in emotional reactivity and recovery (a key component of regulation) the Neuroscience Project examined both psychophysiological and fMRI measures during the presentation of emotional (positive and negative) and neutral pictures, and these same measures during a post-picture period. The logic of this strategy is that continued activation during the recovery period following a negative stimulus is indicative of poor automatic emotion regulation. Respondents in the Neuroscience Project are a representative subsample of the MIDUS (Midlife in the United States) survey.

National respondents in the Neuroscience Project are a representative subsample of the MIDUS 2 survey sample (#4652).

The raw neuro-imaging data are not available through NACDA/ICPSR; please see the README file for more information about how to obtain them.

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.

In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 [ICPSR 2760]. The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included siblings of the main sample respondents and a national sample of twin pairs), and its creative use of in-depth assessments in key areas (e.g. daily diary of stressful experiences [ICPSR 3725] and cognitive functioning [ICPSR 3596]) on a subset of participants. A detailed description of the study and findings generated by it are available at: http://www.midus.wisc.edu.

With support from the National Institute on Aging, a follow-up of the original Midlife Development in the United States (MIDUS) sample was conducted in 2004 (MIDUS 2 [ICPSR 4652]). The daily stress and cognitive functioning projects were repeated and expanded at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience.

In 2013 a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas such as economic recession experiences. Cognitive functioning data were also collected at the same time, while data collection for the daily diary, biomarker, and neuroscience projects commenced in 2017.

Data in this collection are related to MIDUS 3 [ICPSR 36346]. Data collection for the MIDUS 3 largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., economic recession experiences, optimism and coping, stressful life events, and caregiving).

In 2013-2014, a second wave of cognitive assessments (Project 3) were carried out on individuals who had recently completed the MIDUS 3 phone survey (Project 1). This assessment, known as the Brief Test of Adult Cognition via Telephone (BTACT), was carried out approximately 9 years after the first wave of cognitive data collection was completed in 2004-2005. MIDUS 3 BTACT data were collected from 2,693 MIDUS 3 participants. Further, a second wave of cognitive assessments were also carried out on respondents to the MIDUS Milwaukee Wave 2 survey that was conducted in 2016-2017. BTACT data were collected from 330 Milwaukee respondents. Finally, BTACT data was collected in 2017 from another 268 respondents (called the Refielding sample) who did not complete this project during the M3 field period. This M3 BTACT dataset contains a total of 3,291 respondents. More details on the fielding of these cases can be found in the MIDUS field reports for the M3 survey [ICPSR 36346] and the Milwaukee 2 survey [ICPSR 37120].

The dataset includes 245 variables and 3,291 cases. Demographic variables in this collection include sex and age.

From 2004-2009, an initial follow-up of the original Midlife Development in the United States samples (MIDUS 2) was conducted with expansion of the protocol to include Neuroscience Project data collection and a sample of Black Americans from Milwaukee, WI. The MIDUS Neuroscience Project performed a second follow-up from 2017-2022 of the MIDUS Main and Milwaukee samples (MIDUS 3) on a subsample of those who completed the MIDUS 3 Survey and Biomarker Projects.

The goal was to examine indices of brain aging, function, and structure with a focus on the brain circuitry associated with individual differences in affective style, and to characterize the peripheral consequences of these central profiles for biological systems that may be relevant to health. The primary aims were to: (1) characterize individual differences in emotional reactivity, recovery, and sustaining processes using corrugator and zygomatic electromyography and eyeblink startle magnitude, (2) characterize individual differences in brain morphology and connectivity using structural magnetic resonance imaging (MRI) and diffusion weighted imaging (DWI) (3) characterize individual differences in functional activity within the neural circuitry of emotion using task and resting state fMRI, (4) calculate brain age, and (5) test the ability of these indices to predict the comprehensive array of health, wellbeing, cognitive, psychological, social, and life challenge factors assessed in other MIDUS projects. To probe individual differences in emotional processes, psychophysiological and fMRI measures of emotional responses to the presentation of negative, positive, and neutral pictures, and these same measures during a post-picture period were examined.

Emotion-influenced memory was assessed at both the psychophysiological and imaging sessions: (1) Free recall of the presented affective pictures at the end of the psychophysiological session. (2) Memory and likeability ratings for neutral faces paired with the affective pictures in the imaging task. Finally, selected tasks from the CANTAB assessed affective biases and cognitive processes important for emotion regulation.

This survey of adult management tasks began in 1995 as part of a larger national project (MIDUS) to investigate the patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. Conducted in Boston, the survey was designed to examine how adults manage tasks in three domains of life -- work, family, and health. Further goals were to describe the subjective experience of goal attainment in midlife and to link it with objective measures of short-term longitudinal changes and cognitive functioning. During the national study, the Boston area was intentionally oversampled in order to create a subset to be used for in-depth study of management processes in midlife.

The Boston study began six months after the national study, and consisted of three interviews: a 30-minute phone interview followed by a 20-minute mail questionnaire (Time 1), a 90-minute in-person combination of cognitive tests, cortisol testing, photograph taking, and interview (Time 2), and a 30-minute phone interview (Time 3), conducted at six-month intervals. The focus was on projects related to family, work, and health that participants were working on during the period of the study. Each successive interview investigated participants' assessments of their progress in the present, recollection of six months in the past, and prediction six months into the future. Two waves of data collection were completed for this study. There were 151 respondents who participated in the first wave, 151 respondents who participated in both waves, and 26 additional respondents who participated in the second wave of data collection.

At Time 1, participants generated a list of two important family, work, and health tasks, then chose one of each as the most important in that domain. For each of the most important tasks, questions were asked about deadlines, whether participants were doing tasks because they had to do them, felt that they should do them, or chose to do them, and whether participants were doing tasks for themselves, others, or both. All six projects were ranked according to importance, and participants divided all their time into percentages spent on family, work, and health. The majority of questions on the mail questionnaire at Time 1 were taken from the Midlife Development Inventory (MIDI), the instrument created for the national study.

Respondents were asked to rate their control over health, to make assessments about present, past, and future health, to list any serious illnesses, and to indicate their physical health status. Study participants also rated their mental health, and discussed stressful life events in the last six months for self, spouse/significant other, parents, and children. Other questions focused on depression, mastery and constraints, community involvement, family, work, and life satisfaction. Scales used included the Ryff Well-Being Scales, the Eysenck Personality Inventory, the Staudinger and Baltes Wisdom Scale (1995), and the Ways of Coping Scale.

Time 2 was done in-person, and included a 50-minute series of cognitive tests followed by a 40-minute interview. The cognitive testing consisted of nine measures of cognitive ability completed in the following order: WAIS Forward Digit Span, WAIS Backward Digit Span, WAIS Vocabulary, counting backwards test, letter comparison test, dual-task test involving the counting backwards and letter comparison tests, WAIS Digit Symbol, Schaie-Thurston Letter Series, and Raven's Advanced Progressive Ma Matrices.

The Time 2 interview began with a series of questions asking about each of the family, work, and health tasks elicited from the participants in Time 1. Many questions were repeated from the MIDI including rating physical health, family life, work situation, and life overall, rating physical and mental health from poor to excellent, and a measure of stressful life events in the last six months for self, spouse/significant other, parents, and children. Participants were asked to rate how old they felt and how old they looked and to indicate their total yearly household income. Lastly, a series of open-ended questions asked about best and worst aspects of family, work, and health, how participants managed their daily life, the most challenging aspect of life and how it was managed, and what participants found most helpful in carrying out their daily life. Photographs were taken of participants at the conclusion of the interview.

Time 3 asked again about each of the most important family, work, and health tasks elicited from the participants in Time 1. Newly developed questions asked participants about ideas related to middle age, including when the participant believed middle age begins and ends, whether the participant was younger than, in, or older than middle age, the biggest changes in middle age, the best and worst aspects of middle age, whether the participant knew anyone who had had a "midlife crisis," and whether he or she would have or had had a midlife crisis. Participants were asked to rate how often they had problems and how often things went well with respect to a list of 26 domains, and how much stress and how much control they had in these domains. Lastly, participants were asked whether they had ever returned to a degree-oriented educational program after being out of school for five or more years, whether they were presently taking classes to further their education, and whether being a participant in the study had influenced the ways they thought about their family, work, and health projects.

The Midlife in the United States (MIDUS Refresher): Cognitive Project, 2011-2014 collection includes data collected as part of the MIDUS Refresher study. The MIDUS Refresher study (2011-2014, ICPSR 36532) recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey (ICPSR 2760). Participants in the MIDUS Refresher survey were recruited for the Brief Test of Adult Cognition via Telephone (BTACT) interview. All recruited participants who completed the initial telephone interview were invited to complete the questionnaires, and, whether or not they returned the questionnaires, were invited to participate in the Cognitive Interview. In addition to the national MIDUS Refresher sample, respondents to the MIDUS Milwaukee Refresher sample (see ICPSR 36722) were also eligible to participate in the BTACT interview. From February, 2012, through September, 2014, respondents completed the cognitive interview. For the Cognitive Project MIDUS Refresher BTACT data were collected from 2,763 MIDUS Refresher participants.

The BTACT is the first comprehensive cognitive battery--including measures of speed and reaction time--to be administered by telephone to a national sample across the adult years and into later life. It includes seven subtests: word list recall immediate, word list recall delayed, backward digit span, number series, counting backward speed task, category fluency, and an attention switching reaction time task. The Refresher cognitive project provides a rich data set to examine individual differences in cognitive functioning with a diverse national sample in terms of age, sex, socioeconomic status (income, education) and geographical region.

Demographic variables in this collection include sex and age

The MIDUS Refresher Neuroscience Project studied 138 participants from the Refresher sample. These respondents included two distinct subsamples, all of whom completed both the Survey Project and the Biomarker Project's assessment at the University of Wisconsin-Madison: the Main Refresher (n = 93) and Milwaukee Refresher (n = 45) samples.

The purpose of the Neuroscience Project is to examine the central circuitry associated with individual differences in affective style that represent a continuum from vulnerability to resilience, and to characterize the peripheral consequences of these central profiles for biological systems that may be relevant to health.

These are the third and fourth waves of the PREHCO project (Puerto Rican Elder Health Conditions study) and have been developed between 2021 and 2024 as a collaboration between the University of Alabama at Birmingham and the University of Puerto Rico. The project began as a cross-sectional study of the non-institutionalized population aged 60 years or older in Puerto Rico. These waves followed the survivors of the original participants at the beginning of the fieldwork and aimed to examine the predictors of cognitive decline, disability, and mortality. The fourth wave of this study extends the follow-up of PREHCO to between 21 and 22 years after the initial data collection and aims to examine the predictors of cognitive decline, disability, and mortality.

PREHCO was designed as a study comparable to the Multicenter Project on Health and Well-being of Older Adults in Latin America and the Caribbean (SABE) developed by the Pan American Health Organization (PAHO) in several cities in Latin America, and with some studies carried out in the United States, mainly the Health and Retirement Study (HRS).

For this purpose, a questionnaire was designed that included sections on health conditions, physical and mental disability, functionality, use of medicines, health needs and social services, access to and use of health services, abuse, migration, housing conditions, patterns of help from family, community and public and government agencies, and others.

Since its inception, PREHCO has been funded with federal funds from the National Institute on Aging (NIA). Initially it was a project between the University of Wisconsin-Madison and the University of Puerto Rico from 2000-2009.

The Vietnam Era Twin Study of Aging (VETSA) projects began in 2002 with the goal of understanding risk and protective factors, including genetics, for cognitive and brain aging starting in midlife. This NIH funded longitudinal study has completed three waves of data collection (2002-2008; 2008-2014, 2015-2020) following the same group of non-patient, community dwelling male veteran twins from when they were average age 56 to average age 68. A fourth wave of data collection began in October 2021. Although the men are American veterans, this is not a VA sample. This is a nation-wide sample with participants flown into sister data collection sites at either University of California San Diego or Boston University.

The VETSA study encompasses multiple linked grants and data collections with two studies funded continuously since 2002--The VETSA Longitudinal Twin Study of Cognition and Aging and The VETSA Longitudinal MRI Twin Study of Aging. Because of the broad interests of the investigators, while study data focus most heavily on in-person cognitive testing, a wide array of psychosocial, demographic, medical history, physical functioning, and personality measures were also collected. While some measures were only collected at baseline, the majority are repeated at every data collection.

At each wave of data collection, participants completed a lengthy psychosocial questionnaire at home then came to the testing site for a full day (~8 hrs) of in-person testing. Participants were housed for either 2 nights if only part of VETSA aging or 3 nights if they qualified for the MRI data collection.