Midlife in the United States: Core Sample Mortality Data, 1995-2025 (ICPSR 37237)
In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of over 7,000 Americans aged 25 to 74 (ICPSR 2760). The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health.
With support from the National Institute on Aging, an initial follow-up of the original Midlife Development in the United States (MIDUS) samples was conducted in 2004 (MIDUS 2). The daily stress and cognitive functioning projects were repeated at MIDUS 2; in addition the protocol was expanded to include biomarkers and neuroscience. In 2005, a baseline sample of 592 African Americans from Milwaukee was added to MIDUS to examine health issues in minority populations.
In 2013, a third wave (MIDUS 3) of survey data was collected on longitudinal participants. Data collection for this follow-up wave largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., economic recession experiences, optimism and coping, stressful life events, and caregiving). A third wave of cognitive functioning data and a second wave of the Milwaukee sample were also collected. Data collection for the daily diary, biomarkers, and neuroscience is ongoing. This dataset includes mortality information for all known MIDUS decedents (N=2,822) from the Core National and Milwaukee samples as of December 2025.
Midlife in the United States (MIDUS Refresher 2): Cognitive Project, 2022-2025 (ICPSR 39815)
The MIDUS Refresher sample is the second wave of the Midlife in the United States (MIDUS) study. The MIDUS study seeks to understand how factors in the lives of American adults such as working conditions, relationships, health, finances, personal outlooks and individual choices impact health and well-being as individuals age from early adulthood to later life. This second wave of the study with the refresher sample also sought to shed light on how U.S. adults have been impacted by the COVID-19 pandemic and how these experiences are linked with their health, broadly defined.
In 2022-2025, the second wave of cognitive assessments were carried out on the MIDUS Refresher participants who had completed the MIDUS Refresher 2 survey interview. The first part of the assessments consists of the Brief Test of Adult Cognition via Telephone (BTACT) including seven subtests: word list recall immediate, word list recall delayed, backward digit span, number series, counting backward speed, category fluency, and an attention switching reaction time task. The second part consists of the Montreal Cognitive Assessment (MoCA-BLIND), which is newly introduced at the Refresher 2. It is an adapted version of the original MoCA, a rapid screening instrument for mild cognitive dysfunction, and tests seven cognitive domains: attention and concentration, memory, language, conceptual thinking, calculations, and orientation.
National Dementia Workforce Study (NDWS): Assisted Living Staff, Wave 2 (2025) (ICPSR 251473)
National Dementia Workforce Study (NDWS): Nursing Home Staff, Wave 2 (2025) (ICPSR 251478)
National Dementia Workforce Study (NDWS): Community Clinicians, Wave 1 Final (2024-2025) (ICPSR 232121)
Midlife in the United States (MIDUS 3): Milwaukee African American Sample, 2016-2017 (ICPSR 37120)
In 2005, 592 African Americans from Milwaukee were added to the MIDUS sample to examine health issues in minority populations (for more details, see Midlife in the United States (MIDUS 2): Milwaukee African American Sample [ICPSR #22840]). Respondents were interviewed in their homes using a Computer Assisted Personal Interview (CAPI) survey protocol and asked to complete and return a Self-Administered Questionnaire (SAQ). Afterwards these individuals were eligible for participation in the same research protocol as the national MIDUS 2 sample, including cognitive, daily stress, biomarker, and neuroscience projects.
With support from the National Institute on Aging, a second wave of survey data collection on the Milwaukee sample was begun in 2016. The survey consisted of a 2.5 hour CAPI interview followed by a 45-page mailed SAQ. CAPI survey data was collected for 389 individuals, realizing a 78 percent response rate, adjusted for mortality and other eligibility criteria. Data collection for this follow-up wave largely repeated baseline assessments, with additional questions in selected areas (e.g., economic recession experiences, childhood experience with race, etc.). Following successful completion of the CAPI and SAQ protocols, individuals were eligible for participation in cognitive, daily stress, biomarker, and neuroscience projects.
Current Population Surveys: Uniform October Files, 1968-1990 (ICPSR 6126)
Gentrification Decadal Dataset, United States, 1970-2019 (ICPSR 250783)
Health and Relationships Project, United States, 2014-2025 (ICPSR 37404)
The Health and Relationship Project is a longitudinal study of both spouses in same-sex and different-sex marriages who were legally married and aged 35 to 65 at Time 1 of data collection (2014-2015). Time 2 data were collected in 2021-2022 and Time 3 data were collected in 2024-2025.
At each time, both spouses completed a baseline questionnaire and a daily diary questionnaire (which was completed for 10 consecutive days); both components were completed online and spouses were asked to complete the surveys separately. The baseline questionnaire asks participants about a number of topics related to marriage and health, including stress, health status and health behaviors, relationship quality, and how they have approached health problems in the past. The diary questionnaire asks participants a number of questions about the past 24 hours, including daily stress experiences, social interactions, and health behaviors.
Women’s Social Ties and Psychosocial Well-Being in a Resource-Limited Patriarchal Setting, Mozambique, 2023-24 (ICPSR 249990)
Stress in America, United States, 2007-2024 (ICPSR 37288)
Since 2007, the American Psychological Association (APA) has commissioned an annual nationwide survey as part of its Mind/Body Health campaign to examine the state of stress across the country and understand its impact. The Stress in America survey measures attitudes and perceptions of stress among the general public and identifies leading sources of stress, common behaviors used to manage stress and the impact of stress on our lives. The results of the survey draw attention to the serious physical and emotional implications of stress and the inextricable link between the mind and body.
From 2007 to 2024, the research has documented this connection among the general public as well as various sub-segments of the public. Each year, the Stress in America surveys aims to uncover different aspects of the stress/health connection via focusing on a particular topic and/or subgroup of the population. Below is a list of the focus of each of the Stress in America surveys.
- 2007-2018 Cumulative Dataset
- 2007 General Population
- 2008 Gender and Stress
- 2009 Parent Perceptions of Children's Stress
- 2010 Health Impact of Stress on Children and Families
- 2011 Our Health Risk
- 2012 Missing the Health Care Connection
- 2013 Are Teens Adopting Adults' Stress Habits
- 2014 Paying With Our Health
- 2015 The Impact of Discrimination
- 2016 Coping with Change, Part 1
- 2016 Coping with Change, Part 2: Technology and Social Media
- 2017 The State of Our Nation
- 2018 Stress and Generation Z
- 2019-2024 Cumulative Dataset
- 2019 Stress and Current Events
- 2020 COVID Tracker Wave 1
- 2020 COVID Tracker Wave 2
- 2020 COVID Tracker Wave 3
- 2020 A National Mental Health Crisis
- 2021 Pandemic Anniversary Survey
- 2021 Stress and Decision-Making During the Pandemic
- 2022 Pandemic Anniversary Survey
- 2022 Concerned for the Future, Beset by Inflation
- 2023 A Nation Recovering From Collective Trauma
- 2024 A Nation in Political Turmoil
Current Population Survey: Annual Social and Economic Supplement (ASEC), United States, 2024 (ICPSR 39841)
The Annual Social and Economic (ASEC) 2024 Supplement is part of the Current Population Survey (CPS) Series. The CPS is a source of official Government statistics on employment and unemployment. The Census Bureau conducts the ASEC (known as the Annual Demographic File prior to 2003) over a three-month period, in February, March, and April, with most of the data collected in the month of March. The ASEC uses two sets of survey questions, the basic CPS and a set of supplemental questions.
The CPS, administered monthly, is a labor force survey providing current estimates of the economic status and activities of the population of the United States. Specifically, the CPS provides estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage, and salaried employees, and estimates of total unemployment.
In addition to the basic CPS questions, respondents were asked questions from the ASEC, which provides supplemental data on poverty, geographic mobility/migration, and work experience. Comprehensive work experience information was given on the employment status, occupation, and industry of persons aged 15 and over. Additional data for persons aged 15 and older were available concerning weeks worked and hours per week worked, reason not working full-time, total income and supplemental income components. Demographic variables include age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, occupation, and income. Data on employment and income refer to the previous calendar year, although demographic data refer to the time of the survey.
The occupation and industry information variables in this data collection can help the data users identify individuals who worked in arts and culture related fields. The occupations are listed in a category entitled "Arts, Design, Entertainment, Sports, and Media Occupations," which includes professions such as artists, designers, actors, musicians, and writers (see Appendix B of the User's Guide for further category details). Industries related to the arts and culture are in the "Arts, Entertainment, and Recreation" category (see Appendix A of the User's Guide for further category details). For example, using the occupation and industry information variables from the ASEC help data users to obtain statistics about people in artists' occupations that receive supplemental income, live public housing, or are full-time students.
The ASEC data provided by the Census Bureau are distributed in a hierarchical file structure, with three record types present: Household, Family, and Person. The ASEC is designed to be a multistage stratified sample of housing units, where the hierarchical file structure can be thought of as a person within a family within a household unit. Here the main unit of analysis is the household unit.
Consumer Expenditure Survey, 1991: Interview Survey, Detailed Expenditure Files (ICPSR 6262)
The ongoing Consumer Expenditure Survey (CE) provides a continuous flow of information on the buying habits of American consumers and also furnishes data to support periodic revisions of the Consumer Price Index. The survey consists of two separate components:
- A quarterly Interview Survey in which each consumer unit in the sample is interviewed every three months over a 15-month period, and
- A Diary Survey completed by the sample consumer units for two consecutive one-week periods.
The Interview Survey was designed to collect data on major items of expense, household characteristics, and income. The expenditures covered by the survey are those that respondents can recall fairly accurately for three months or longer. In general, these expenditures include relatively large purchases, such as those for property, or expenditures that occur on a fairly regular basis, such as rent, utilities, or insurance premiums. Excluded are nonprescription drugs, household supplies, and personal care items. Including global estimates on spending for food, it is estimated that about 90 to 95 percent of expenditures are covered in the Interview Survey.
The Detailed Expenditure Files that comprise this data collection were created from all the major expenditure sections of the Interview Survey questionnaires. These files contain more detailed expenditure records than those found in the Interview Survey data tapes. In addition, the Detailed Expenditure Files include family characteristics (FMLY) files and income and member characteristics (MEMB) files identical to those found in the Interview Survey.
Nationally Representative Behavioral Risk Factor Surveillance System (BRFSS) Cognitive Decline and Caregiver Datasets, 2019-2022 (ICPSR 244591)
Current Population Survey: Annual Social and Economic Supplement (ASEC), United States, 2025 (ICPSR 39824)
The Annual Social and Economic (ASEC) 2025 Supplement is part of the Current Population Survey (CPS) Series. The CPS is a source of official Government statistics on employment and unemployment. The Census Bureau conducts the ASEC (known as the Annual Demographic File prior to 2003) over a three-month period, in February, March, and April, with most of the data collected in the month of March. The ASEC uses two sets of survey questions, the basic CPS and a set of supplemental questions.
The CPS, administered monthly, is a labor force survey providing current estimates of the economic status and activities of the population of the United States. Specifically, the CPS provides estimates of total employment (both farm and nonfarm), nonfarm self-employed persons, domestics, and unpaid helpers in nonfarm family enterprises, wage, and salaried employees, and estimates of total unemployment.
In addition to the basic CPS questions, respondents were asked questions from the ASEC, which provides supplemental data on poverty, geographic mobility/migration, and work experience. Comprehensive work experience information was given on the employment status, occupation, and industry of persons aged 15 and over. Additional data for persons aged 15 and older were available concerning weeks worked and hours per week worked, reason not working full-time, total income and supplemental income components. Demographic variables include age, sex, race, Hispanic origin, marital status, veteran status, educational attainment, occupation, and income. Data on employment and income refer to the previous calendar year, although demographic data refer to the time of the survey.
The occupation and industry information variables in this data collection can help the data users identify individuals who worked in arts and culture related fields. The occupations are listed in a category entitled "Arts, Design, Entertainment, Sports, and Media Occupations," which includes professions such as artists, designers, actors, musicians, and writers (see Appendix B of the User's Guide for further category details). Industries related to the arts and culture are in the "Arts, Entertainment, and Recreation" category (see Appendix A of the User's Guide for further category details). For example, using the occupation and industry information variables from the ASEC help data users to obtain statistics about people in artists' occupations that receive supplemental income, live public housing, or are full-time students.
The ASEC data provided by the Census Bureau are distributed in a hierarchical file structure, with three record types present: Household, Family, and Person. The ASEC is designed to be a multistage stratified sample of housing units, where the hierarchical file structure can be thought of as a person within a family within a household unit. Here the main unit of analysis is the household unit.
National Poll on Healthy Aging (NPHA), [United States], August 2024 (ICPSR 248488)
National Longitudinal Study of the Class of 1972 (ICPSR 8085)
This longitudinal data collection supplies information on the educational, vocational, and personal development of young people who were high school seniors in 1972 and examines the kinds of factors -- personal, familial, social, institutional, and cultural -- that may affect that development. The collection provides a broad spectrum of information on each student and covers areas such as ability, socioeconomic status, home background, community environment, ethnicity, significant others, current activity at time of survey, educational attainment, school experiences, school performance, work status, work performance and satisfaction, goal orientations, marriage and the family, and military experience.
Data collected in the base-year (1972) focus on factors relating to the student's personal/family background, education and work experiences, plans, aspirations, attitudes, and opinions. The first follow-up, which was conducted in 1973, offers information on the respondent's activity state (education, work, etc.), socioeconomic status, work and educational experience since leaving high school, future plans, and expectations. The second follow-up (1974) probes respondents on similar measures but is augmented by additional variables pertaining to work and education. The third follow-up (1976) contains additional items on graduate school application and entry, job supervision, sex roles, sex and race biases, and a subjective rating of high school experiences. The fourth follow-up (1979) offers data similar to the other follow-ups but includes some variables that were modified to elicit unique information. For the fifth follow-up, the sample members averaged 32 years of age and had been out of high school for 14 years. In addition to covering the same subject areas as the previous surveys, this follow-up includes additional questions on marital history, divorce, child support, and economic relationships in modern families.
Part 1 of this collection contains base-year data as well as data collected during four subsequent follow-ups undertaken in 1973, 1974, 1976, and 1979, while Part 11 contains fifth follow-up data for 1986. Part 2, the School File, contains information obtained from the respondent's high school and also from high school counselors. Data are available on school organization and enrollment, course offerings, special services and programs, library and other resources, time scheduling, and grading systems. Counselor information is supplied on work loads, counseling practices and facilities, experience with student financial aid programs, age, ethnicity, training, and experience. A supplementary School District Census File, Part 3, contains 1970 Census data tabulated by school district boundaries. In addition, the collection includes a FICE Code File and a CEEB Institutional Data Base File that can be used in conjunction with the student file to supply contextual information about respondents' colleges. The Institutional Data Base File offers data for colleges and universities on items such as enrollment, income and revenues, expenses, tuition and fees, and median student scores on standardized tests. Parts 7, 8, 9 and 10 contain transcript data from each postsecondary institution reported by sample members in the first through fourth follow-up surveys. Data are available for several types of postsecondary institutions, ranging from short-term vocational or occupational programs through major universities with graduate programs and professional schools. Data in these four rectangular files -- Student, Transcript, Term, and Course Files -- are organized to be used in combination hierarchically. Information is available on terms of attendance, fields of study, specific courses taken, and grades and credits earned. The Fifth Follow-Up Teaching Supplement (Parts 12) surveyed those members of the original 1972 sample who had obtained teaching certificates and/or who had teaching experience. Respondents were asked questions about their qualifications, experience, and attitudes toward teaching.
Puerto Rican Elder: Health Conditions (PREHCO) Project, 2021-2024 (ICPSR 39091)
These are the third and fourth waves of the PREHCO project (Puerto Rican Elder Health Conditions study) and have been developed between 2021 and 2024 as a collaboration between the University of Alabama at Birmingham and the University of Puerto Rico. The project began as a cross-sectional study of the non-institutionalized population aged 60 years or older in Puerto Rico. These waves followed the survivors of the original participants at the beginning of the fieldwork and aimed to examine the predictors of cognitive decline, disability, and mortality. The fourth wave of this study extends the follow-up of PREHCO to between 21 and 22 years after the initial data collection and aims to examine the predictors of cognitive decline, disability, and mortality.
PREHCO was designed as a study comparable to the Multicenter Project on Health and Well-being of Older Adults in Latin America and the Caribbean (SABE) developed by the Pan American Health Organization (PAHO) in several cities in Latin America, and with some studies carried out in the United States, mainly the Health and Retirement Study (HRS).
For this purpose, a questionnaire was designed that included sections on health conditions, physical and mental disability, functionality, use of medicines, health needs and social services, access to and use of health services, abuse, migration, housing conditions, patterns of help from family, community and public and government agencies, and others.
Since its inception, PREHCO has been funded with federal funds from the National Institute on Aging (NIA). Initially it was a project between the University of Wisconsin-Madison and the University of Puerto Rico from 2000-2009.
National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2025 [Public Use] (ICPSR 21600)
Downloads of Add Health require submission of the following information, which is shared with the original producer of Add Health: supervisor name, supervisor email, and reason for download. A Data Guide for this study is available as a web page and for download.
The National Longitudinal Study of Adolescent to Adult Health (Add Health), 1994-2018 [Public Use] is a longitudinal study of a nationally representative sample of U.S. adolescents in grades 7 through 12 during the 1994-1995 school year. The Add Health cohort was followed into young adulthood with four in-home interviews, the most recent conducted in 2008 when the sample was aged 24-32. Add Health combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with contextual data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.
Add Health Wave I data collection took place between September 1994 and December 1995, and included both an in-school questionnaire and in-home interview. The in-school questionnaire was administered to more than 90,000 students in grades 7 through 12, and gathered information on social and demographic characteristics of adolescent respondents, education and occupation of parents, household structure, expectations for the future, self-esteem, health status, risk behaviors, friendships, and school-year extracurricular activities. All students listed on a sample school's roster were eligible for selection into the core in-home interview sample. In-home interviews included topics such as health status, health-facility utilization, nutrition, peer networks, decision-making processes, family composition and dynamics, educational aspirations and expectations, employment experience, romantic and sexual partnerships, substance use, and criminal activities. A parent, preferably the resident mother, of each adolescent respondent interviewed in Wave I was also asked to complete an interviewer-assisted questionnaire covering topics such as inheritable health conditions, marriages and marriage-like relationships, neighborhood characteristics, involvement in volunteer, civic, and school activities, health-affecting behaviors, education and employment, household income and economic assistance, parent-adolescent communication and interaction, parent's familiarity with the adolescent's friends and friends' parents.
Add Health data collection recommenced for Wave II from April to August 1996, and included almost 15,000 follow-up in-home interviews with adolescents from Wave I. Interview questions were generally similar to Wave I, but also included questions about sun exposure and more detailed nutrition questions. Respondents were asked to report their height and weight during the course of the interview, and were also weighed and measured by the interviewer.
From August 2001 to April 2002, Wave III data were collected through in-home interviews with 15,170 Wave I respondents (now 18 to 26 years old), as well as interviews with their partners. Respondents were administered survey questions designed to obtain information about family, relationships, sexual experiences, childbearing, and educational histories, labor force involvement, civic participation, religion and spirituality, mental health, health insurance, illness, delinquency and violence, gambling, substance abuse, and involvement with the criminal justice system. High School Transcript Release Forms were also collected at Wave III, and these data comprise the Education Data component of the Add Health study.
Wave IV in-home interviews were conducted in 2008 and 2009 when the original Wave I respondents were 24 to 32 years old. Longitudinal survey data were collected on the social, economic, psychological, and health circumstances of respondents, as well as longitudinal geographic data. Survey questions were expanded on educational transitions, economic status and financial resources and strains, sleep patterns and sleep quality, eating habits and nutrition, illnesses and medications, physical activities, emotional content and quality of current or most recent romantic/cohabiting/marriage relationships, and maltreatment during childhood by caregivers. Dates and circumstances of key life events occurring in young adulthood were also recorded, including a complete marriage and cohabitation history, full pregnancy and fertility histories from both men and women, an educational history of dates of degrees and school attendance, contact with the criminal justice system, military service, and various employment events, including the date of first and current jobs, with respective information on occupation, industry, wages, hours, and benefits. Finally, physical measurements and biospecimens were also collected at Wave IV, and included anthropometric measures of weight, height and waist circumference, cardiovascular measures such as systolic blood pressure, diastolic blood pressure, and pulse, metabolic measures from dried blood spots assayed for lipids, glucose, and glycosylated hemoglobin (HbA1c), measures of inflammation and immune function, including High sensitivity C-reactive protein (hsCRP) and Epstein-Barr virus (EBV).
Wave V data collection took place from 2016 to 2018, when the original Wave I respondents were 33 to 43 years old. For the first time, a mixed mode survey design was used. In addition, several experiments were embedded in early phases of the data collection to test response to various treatments. A similar range of data was collected on social, environmental, economic, behavioral, and health circumstances of respondents, with the addition of retrospective child health and socio-economic status questions. Physical measurements and biospecimens were again collected at Wave V, and included most of the same measures as at Wave IV.
The overall goal of Wave VI was to better understand life course trajectories, determinants, and consequences of critical dimensions of aging, health, and health disparities among U.S. early midlife adults. Data collection took place from 2022 to 2025, with participants between the ages of 39 and 51, with an average age of 44. Beyond longitudinal survey measures, newly added questions included those on cumulative stress, discrimination, despair, work-life balance, memory, physical limitations, and caregiving. Continuing from previous waves, home exams collected physical measurements and biospecimens with most of the same measures as Wave V.
State Policy & Politics Database, United States (ICPSR 246713)
Midlife in the United States (MIDUS Refresher 2), 2022-2024 (ICPSR 39670)
In 2011-2014, the MIDUS Refresher study recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the age groups of the MIDUS 1 baseline survey in 1995. The MIDUS Refresher survey employed the same comprehensive assessments as existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09. Survey data were collected on demographic, psychosocial, and health and well-being information.
In 2022-2024, the second wave of survey data (MIDUS Refresher 2) was collected on longitudinal participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher 1 data with the post-pandemic MIDUS Refresher 2 data. Further, the longitudinal MIDUS Refresher datasets (Wave 1 and Wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being across various population groups in the U.S.
Behavioral Risk Factor Surveillance System (BRFSS) for Dementia Researchers, 2015-2024 (ICPSR 154421)
National Education Longitudinal Study, 1988 (ICPSR 9389)
National Elder Mistreatment Study: 8-Year Follow-up of Victims and Matched Non-Victims, United States, 2015-2018 (ICPSR 37275)
The purpose of the completed project was to follow the first National Elder Mistreatment Study (NEMS), which provided prevalence estimates, with a second study of a subset of the same participants to measure the effects of elder abuse in terms of (1) health and mental health outcomes and (2) criminal justice system participation and satisfaction, as well as to specify additional predictors of these effects. Data were collected from 774 older adults 8 years following their participation in Wave I of the NEMS. This represented the results of contacting every locatable participant who reported psychological, physical, or sexual (but not financial) abuse at Wave I (achieved subsample n = 183 of the original 753 Wave I victims) and a comparison sample of 591 randomly selected Wave I non-victims from the remaining 2,149 working phone numbers of the original 5,024 non-victims (at Wave I). As mentioned, financial abuse classification at Wave I was not used to identify the victim subgroup prior to sampling, however retrospective analysis indicated that the two aforementioned sampling groups (every working phone number of Wave I victims of psychological, physical, and sexual abuse AND every working phone number of the 2,149 comparison Wave I participants) accounted for all but 7 financial abuse victims identified as such at Wave I (i.e., no other financial abuse victims at Wave I could have possibly been re-contacted). The cooperation rate (upon contact), for Wave I victims of psychological, physical, or sexual abuse was 66 percent; the cooperation rate of comparison Wave I participants was 57 percent. (Note: it had originally been proposed to conduct propensity matching once the sample of Wave I victims was re-contacted, however by conserving funds during this first phase, the study was able to expand from propensity matching to random selection of a much larger group of over 2,149, for a final derived sample of 774.)
Midlife in the United States (MIDUS Refresher 2): Milwaukee African American Sample, 2023-2024 (ICPSR 39583)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the original MIDUS Milwaukee 1 survey that was designed to increase the number of racial minorities in 2005. The MIDUS Milwaukee Refresher survey employed the same comprehensive assessments (demographic, psycho-social, and physical and mental health) as those on the existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09.
In 2023-2024, the second wave of survey data was collected from 327 longitudinal Refresher Milwaukee participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS Refresher Milwaukee data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher Milwaukee 1 data with the post-pandemic MIDUS Refresher Milwaukee 2 data. Further, the longitudinal MIDUS Refresher datasets (wave 1 and wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being.
Guatemalan Survey of Family Health (EGSF), 1995 (ICPSR 2344)
The Guatemalan Survey of Family Health (EGSF) was undertaken to investigate the health of children under the age of five and women during pregnancy and childbirth residing in 60 communities within the departments (geopolitical units) of Chimaltenango, Suchitepequez, Totonicapan, and Jalapa in Guatemala. Data were collected at the household, individual, and community levels to gain an in-depth understanding of the way residents in these rural populations think about their health, treatment, and family relations.
Data at the household level (Parts 1-5, 90-92) provide information on household members, relation to household head, age, education, and language used.
The individual-level data (Parts 6-37) describe the respondent's background, marital/relationship history, social ties and social support, and economic status, along with health beliefs, a complete birth history, knowledge and use of contraception, health problems and treatment during the last two pregnancies, and anthropometry on mothers and children. Extensive data were gathered regarding the health problems and treatment for each of the two youngest children born since January 1990, with particular focus on diarrhea and respiratory infections.
The community data (Parts 41-60) supply information gathered from three knowledgeable individuals called "key informants" about occupations in the community, crops grown, wages, utilities and community services, and the history of the community. Parts 61-89 contain information regarding Health Posts (health care centers) through interviews conducted with key informants, doctors (Parts 72-80), and other health service providers (Parts 81-89), including traditional providers such as curers, midwives, and bone setters, regarding their practices, patients, referrals, fees, payment, and the use of specific treatments.
NDWS: Scope of Practice Regulations Data for Nurse Practitioners and Physician Assistants (ICPSR 239045)
National Social Life, Health, and Aging Project (NSHAP): Round 4, [United States], 2021-2023 (ICPSR 39511)
The National Social Life, Health and Aging Project (NSHAP) is a population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. It is designed to provide health providers, policy makers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships.
The study team collected data for Round 4 of this study from 2021 through 2023 and covered the following subjects: bereavement, caregiving, elder mistreatment, employment, functional health, health behaviors, mental and physical health, cognitive function, neighborhood information, sexual interest and activity, social activity, and familial and friend support.
Vietnam Era Twin Study of Aging (VETSA), United States, 2002-2019 (ICPSR 38836)
The Vietnam Era Twin Study of Aging (VETSA) projects began in 2002 with the goal of understanding risk and protective factors, including genetics, for cognitive and brain aging starting in midlife. This NIH funded longitudinal study has completed three waves of data collection (2002-2008; 2008-2014, 2015-2020) following the same group of non-patient, community dwelling male veteran twins from when they were average age 56 to average age 68. A fourth wave of data collection began in October 2021. Although the men are American veterans, this is not a VA sample. This is a nation-wide sample with participants flown into sister data collection sites at either University of California San Diego or Boston University.
The VETSA study encompasses multiple linked grants and data collections with two studies funded continuously since 2002--The VETSA Longitudinal Twin Study of Cognition and Aging and The VETSA Longitudinal MRI Twin Study of Aging. Because of the broad interests of the investigators, while study data focus most heavily on in-person cognitive testing, a wide array of psychosocial, demographic, medical history, physical functioning, and personality measures were also collected. While some measures were only collected at baseline, the majority are repeated at every data collection.
At each wave of data collection, participants completed a lengthy psychosocial questionnaire at home then came to the testing site for a full day (~8 hrs) of in-person testing. Participants were housed for either 2 nights if only part of VETSA aging or 3 nights if they qualified for the MRI data collection.
National Dementia Workforce Study (NDWS): Nursing Home Staff, Wave 1 (2024-2025) (ICPSR 234042)
National Dementia Workforce Study (NDWS): Assisted Living Staff, Wave 1 (2024-2025) (ICPSR 229523)
Midlife in the United States (MIDUS Refresher 1), 2011-2014 (ICPSR 36532)
In 2011-2014, the MIDUS Refresher study recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey [ICPSR 2760]. The MIDUS Refresher survey employed the same comprehensive assessments as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09.
The MIDUS Refresher collection is split into two datasets: Aggregate Data and Coded Text Data. The Coded Text Dataset provides coded responses to open-ended question items in the Aggregate Dataset. The survey data collection (Project 1) [MIDUS, ICPSR 2760] consisted of a 30-minute phone interview followed by two 50-page mailed self-administered questionnaires. Survey data were collected on demographic, psycho-social, and physical and mental health information. This new crosssectional MIDUS sample allows the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. A further objective of the MIDUS Refresher sample was to strengthen cross-project analyses in MIDUS by increasing the sample sizes available for testing hypotheses dealing with the interplay of key factors (e.g., socioeconomic status, gender, psychosocial factors, biological factors) in mid- and laterlife health. To that end, the MIDUS Refresher sample followed the same multi-disciplinary protocol established in the main MIDUS sample, in that after completing the survey protocol respondents were asked to complete a cognitive assessment by phone (Project 3) [MIDUS 3, ICPSR 36346] and later became eligible to participate in daily diary assessments (Project 2) [MIDUS 2, ICPSR 4652] biomarker assessments (Project 4) [MIDUS 2: Biomarker Project, ICPSR 29282] and neuroscience assessments (Project 5) [MIDUS 2: Neuroscience Project, ICPSR 28683].
The MIDUS Refresher was funded by the National Institute on Aging as two separate but related efforts: The MIDUS Refresher younger decades (MRY), was fielded in November, 2011, and recruited over 2,100 new participants aged 25 to 54; Funding was later added for the MIDUS Refresher older decades (MRO), which was fielded in June, 2013 and recruited over 1,400 new participants aged 55 to 74.
Demographic variables include age, sex, gender, race, religion, and marital status.
Midlife in the United States (MIDUS Refresher 1): Milwaukee African American Sample, 2012-2013 (ICPSR 36722)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the Midlife Development in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840). This sample was also designed to increase the number of racial minorities included in the broader MIDUS study. The MIDUS Milwaukee Refresher survey employed the same assessments (demographic, psycho-social, and physical and mental health) as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09. A sample of African Americans from Milwaukee County, Wisconsin, was stratified by age, gender, and income.
Area probability sampling methods were used to identify potential respondents. Field interviewers screened households to determine if they contained any African American adults. There was additional screening to achieve an appropriate age/gender distribution in a manner similar to what was done for the original MIDUS sample (Midlife in the United States (MIDUS 1), 1995-1996 [ICPSR 2760]). Milwaukee respondents were interviewed in their homes using a 2.5-hour Computer Assisted Personal Interview (CAPI) protocol and afterwards asked to complete a self-administered questionnaire (SAQ). All measures paralleled those used in the larger MIDUS samples. In addition to successful completion of the survey, participants were asked to complete a cognitive assessment by phone. Some respondents were eligible to participate in additional MIDUS projects: daily diary assessments, biomarker assessments, and neuroscience assessments.
Midlife in the United States (MIDUS Refresher 1): Neuroscience Project, 2012-2016 (ICPSR 37094)
The MIDUS Refresher Neuroscience Project studied 138 participants from the Refresher sample. These respondents included two distinct subsamples, all of whom completed both the Survey Project and the Biomarker Project's assessment at the University of Wisconsin-Madison: the Main Refresher (n = 93) and Milwaukee Refresher (n = 45) samples.
The purpose of the Neuroscience Project is to examine the central circuitry associated with individual differences in affective style that represent a continuum from vulnerability to resilience, and to characterize the peripheral consequences of these central profiles for biological systems that may be relevant to health.
Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)
Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)
Residential Care Transition Module (RCTM), [United States], 2016-2021 (ICPSR 198382)
Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)
State Education Contextual Data Resource (S-ECDR) (ICPSR 233063)
Midlife in the United States (MIDUS 2): Biomarker Project, 2004-2009 (ICPSR 29282)
The Biomarker study is Project 4 of the Midlife in the United States (MIDUS) longitudinal study, a national survey of more than 7,000 Americans (aged 25 to 74) begun in 1994. The purpose of the larger study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. With support from the National Institute on Aging (NIA), a longitudinal follow-up of the original MIDUS samples [core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 957 pairs), and siblings (N = 950)] was conducted in 2004-2006. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental). A description of the study and findings from it are available on the MIDUS website.
The Biomarker Project (Project 4) of MIDUS 2 contains data from 1,255 respondents. These respondents include two distinct subsamples, all of whom completed the Project 1 Survey: (1) longitudinal survey sample (n = 1,054) and (2) Milwaukee sample (n = 201). The Milwaukee group contained individuals who participated in the baseline MIDUS Milwaukee study, initiated in 2005. The purpose of the Biomarker Project (Project 4) was to add comprehensive biological assessments on a subsample of MIDUS respondents, thus facilitating analyses that integrate behavioral and psychosocial factors with biology. The broad aim is to identify biopsychosocial pathways that contribute to diverse health outcomes. A further theme is to investigate protective roles that behavioral and psychosocial factors have in delaying morbidity and mortality, or in fostering resilience and recovery from health challenges once they occur. The research was not disease-specific, given that psychosocial factors have relevance across multiple health endpoints.
Biomarker data collection was carried out at three General Clinical Research Centers (at UCLA, University of Wisconsin, and Georgetown University). The biomarkers reflect functioning of the hypothalamic-pituitary-adrenal axis, the autonomic nervous system, the immune system, cardiovascular system, musculoskeletal system, antioxidants, and metabolic processes. Our specimens (fasting blood draw, 12-hour urine, saliva) allow for assessment of multiple indicators within these major systems. The protocol also included assessments by clinicians or trained staff, including vital signs, morphology, functional capacities, bone densitometry, medication usage, and a physical exam. Project staff obtained indicators of heart-rate variability, beat to beat blood pressure, respiration, and salivary cortisol assessments during an experimental protocol that included both a cognitive and orthostatic challenge. Finally, to augment the self-reported data collected in Project 1, participants completed a medical history, self-administered questionnaire, and self-reported sleep assessments. For respondents at one site (UW-Madison), objective sleep assessments were also obtained with an Actiwatch(R) activity monitor.
Robots for Older Adults: A Scoping Review (ICPSR 232302)
National Poll on Healthy Aging (NPHA), [United States], August 2023 (ICPSR 231516)
National Poll on Healthy Aging (NPHA), [United States], February 2024 (ICPSR 231517)
Midlife in the United States: Refresher Sample Mortality Data, 2012-2023 (ICPSR 38024)
In 2011-2014, the MIDUS recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 (M1) baseline cohort and paralleling the five decadal age groups of the M1 baseline survey (ICPSR 2760).
The MIDUS Refresher (MR1) survey included the same comprehensive assessments as those assembled on the original MIDUS Core sample (obtained via interview and self-administered questionnaire), but with additional questions about the effect of the economic recession of 2008-09.
In 2012-2013, the National MIDUS Refresher sample was augmented with a sample of 508 Milwaukee African American adults, aged 25 to 64. This sample was designed to increase the number of racial minorities included in the MIDUS study. The MIDUS Milwaukee Refresher survey also included the same assessments as those in the Milwaukee Core sample (ICPSR 22840) and employed a personal interview. This dataset includes all known decedents from the National (ICPSR 36532) and Milwaukee (ICPSR 36722) Refresher samples, and is current for NDI records through December, 2023.
Mass Marketing Elder Fraud Intervention, United States, 1999-2023 (ICPSR 39001)
Estimates suggest that up to 16% of American adults--approximately 40 million people--fall victim to mass marketing scams each year. Mass marketing scams include any attempts to fraudulently solicit money from consumers through mass communication methods, such as the internet, telephone, and mail. Complaints to consumer protection agencies have risen 240% in the past 10 years (Federal Trade Commission [FTC], 2013, 2023). According to conservative estimates from the most recent Consumer Sentinel Network Report (FTC, 2023), Americans reported more than $2.7 billion in direct losses from fraud in 2022. In addition to financial costs, consequences to victims include feelings of shame and embarrassment, loss of trust, depression, and, in the most severe cases, suicidal ideation. These consequences of fraud are particularly impactful for older adults who suffer higher losses per incident, on average (FTC, 2022) and face greater challenges recovering from losses after retirement. Research on elder mistreatment in general has shown that older victims consume 30% more mental health and substance abuse services and are hospitalized more often than non-victims.
These scams convince susceptible targets that they have won bogus sweepstakes, merchandise, free vacations, or lotteries, but they first need to pay money to claim their winnings. Based on data from one major investigation from 2011 to 2016, the United States Postal Inspection Service (USPIS) found that Americans sent $558 million in checks, credit card payments, and money orders through the mail in response to such scams (USPIS internal data). Overall, the USPIS estimates that 3% of U.S. adults--7.5 million Americans--have mailed a payment in response to mass marketing fraud and that 60%-70% of these individuals are revictimized by a similar solicitation or an entirely different offer. Given these figures, reducing the incidence of mass marketing fraud could save millions of dollars annually.
Although the FTC, the National Council on Aging, the Consumer Financial Protection Bureau, the Better Business Bureau, American Association of Retired Persons (AARP), and other agencies and organizations routinely disseminate fraud education and awareness materials, it is unclear how much of these materials reach the most vulnerable populations. Much of the content is available online, yet according to the Pew Research Center, only 75% of adults older than age 65 use the internet, and only 64% have home broadband. Printed materials are also disseminated at senior centers, libraries, legal service offices, and outreach events, but older adults who are socially isolated and most susceptible to fraud are unlikely to be reached through these venues.
To address gaps in intervention research, Research Triangle Institute (RTI) International and the University of Minnesota conducted the Mass Marketing Elder Fraud Intervention (MMEFI) Study with collaboration and support from the USPIS. This multiphase research project included a secondary analysis of USPIS administrative data on prior scams and a randomized controlled trial test of the efficacy of two variations of a mailed intervention for preventing revictimization by mail fraud. The overall objective was to provide specific policy recommendations to the USPIS and other consumer protection agencies regarding the effectiveness of a mailed intervention. The MMEFI Study had the following specific goals:
- Enhance knowledge and understanding of repeat victimization among older victims of mass marketing scams.
- Engage in rigorous testing of the efficacy of two versions of a fraud intervention strategy geared toward preventing repeat victimization among older victims of mass marketing scams.
- Assess victims' perceptions of the intervention and collect self-report data on experiences with other types of fraud by surveying individuals in the intervention study.
The Irish Longitudinal Study on Ageing (TILDA), Wave 4, 2016 (ICPSR 38670)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The fourth wave of TILDA interviews were undertaken between January and December 2016. A total of 5,713 participants completed the self-interview.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.
The Irish Longitudinal Study on Ageing (TILDA), Wave 5, 2018 (ICPSR 38674)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a one year basis with a sample cohort of residents of Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The fifth wave of TILDA interviews were undertaken between January and December 2018. A total of 4,978 participants completed the self-interview.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.
The Irish Longitudinal Study on Ageing (TILDA), COVID-19 Study, 2020 (ICPSR 38681)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) collects information on all aspects of health, economic and social circumstances from adults aged 50 years and over who reside in Ireland. Waves of data collection take place every two years. TILDA provides a comprehensive and accurate picture of the characteristics, needs and contributions of older persons in Ireland to inform and support improvements in policy and practice; advancements in technology and innovation; tailored education and training through an enhanced ageing research infrastructure; harmonisation with leading international research to ensure adoption of best policy and practice and comparability of results. TILDA is necessary to act as the foundation on which we can plan appropriate health, medical, social and economic policies for our older adults.
Participants were invited to complete the COVID Self Completion Questionnaire to capture their experiences during the COVID-19 pandemic. This data collection was planned in response to the pandemic and took place during the time when Wave 6 fieldwork was originally scheduled to take place.
The TILDA COVID-19 Study covers a range of aspects of the lives of adults aged 60 years and older during the first few months of the pandemic. As well as information on changes to normal day activities due to social-distancing and other restrictions on social interactions, we examine how these alterations to peoples' lives have impacted on their physical and mental wellbeing. The study also records peoples' exposure to the virus as well as that of their families and friends.
The Irish Longitudinal Study on Ageing (TILDA), Wave 3, 2014-2015 (ICPSR 37106)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The third wave of TILDA interviews were undertaken between March 2014 and October 2015. Of the 7,445 interviewed in Wave 2, a third interview was obtained for 6,874 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 28 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.
The Irish Longitudinal Study on Ageing (TILDA), Wave 2, 2012-2013 (ICPSR 37105)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).
The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.
The second wave of TILDA interviews were undertaken between February 2012 and March 2013. Of the 8,504 interviewed in Wave 1, a second interview was obtained for 7,445 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 170 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.
Demographic and background variables include age, sex, marital status, household composition, education, and employment.