Interdisciplinary National Study Investigating Genetics and Health Testing at Work (INSIGHT@Work): Genetic Counselor Perspectives, United States, 2020-2025 (ICPSR 39648)
Version Date: Apr 16, 2026 View help for published
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Charles Lee, The Jackson Laboratory for Genomic Medicine;
J. Scott Roberts, University of Michigan. School of Public Health
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https://doi.org/10.3886/ICPSR39648.v1
Version V1
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This research was supported by a grant from the National Human Genome Research Institute of the National Institutes of Health (R01HG010679). This project was conducted as part of the multi-aim R01 and led by Charles Lee and J. Scott Roberts. The project explores stakeholders' perspectives on key characteristics for implementation of workplace genetic testing (wGT).
The project had three specific aims and a supplementary aim:
- Aim 1: Examine employers' perspectives through a landscape analysis to ascertain the prevalence and distribution of wGT among US companies
- Aim 2: Investigate employees' views and perceptions of the benefits, risks, and limitations of wGT through (a) a national survey of working adults and (b) a survey of individuals working at a large US healthcare system who were offered wGT by their employer
- Aim 3: Conduct a modified Delphi process with multiple surveys and a deliberative workshop among key stakeholders and distill the finding of Aims 1 and 2 to inform a normative assessment of wGT.
- Supplement: Examine genetic counselors' perspectives on and experiences with wGT using semi-structured interviews and a national survey
This study, led by Wendy Uhlmann, examined the supplementary aim.
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Additional information about the Interdisciplinary National Study Investigating Genetics and Health Testing at Work (INSIGHT@Work) Study can be found on the study website.
Study Purpose View help for Study Purpose
The aim of this study was to examine genetic counselors' perspectives on and experiences with workplace genetic testing (wGT) using semi-structured interviews and a national survey.
Study Design View help for Study Design
The study team used semi-structured interviews and a national survey.
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