Focus Groups on Public Attitudes about Genomic Expansion Study (PAGES), United States, 2017 (ICPSR 38458)

Version Date: Jun 14, 2022

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Principal Investigator(s):
Megan Allyse, Mayo Clinic

Series:

https://doi.org/10.3886/ICPSR38458.v1

Version V1

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Summary

The Focus Groups on Public Attitudes about Genomic Expansion (PAGES) study conducted focus groups comprised of members of the public in order to examine public opinions about the expansion of genomic technologies. Each focus group followed a moderator guide that contained two scenarios for discussion: one describing germline gene editing and the other somatic gene editing for the treatment of disease in humans. Participants were asked to describe their understanding of gene editing technologies and their own beliefs on their appropriate application in the clinic.

Citation

Allyse, Megan. Focus Groups on Public Attitudes about Genomic Expansion Study (PAGES), United States, 2017. Inter-university Consortium for Political and Social Research [distributor], 2022-06-14. https://doi.org/10.3886/ICPSR38458.v1

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Funding

Mayo Clinic Survey Research Center, Mayo Clinic Center for Individualized Medicine

Subject Terms

Geographic Coverage

Restrictions

This data collection may not be used for any purpose other than statistical reporting and analysis. Use of these data to learn the identity of any person or establishment is prohibited. To protect respondent privacy, this data collection is restricted from general dissemination. To obtain these files, researchers must agree to the terms and conditions of a Restricted Data Use Agreement in accordance with existing ICPSR servicing policies.

Distributor(s)

Inter-university Consortium for Political and Social Research
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Time Period(s)

2017-03-01 -- 2017-03-22

Date of Collection

2017-03-01 -- 2017-03-22
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Study Purpose

The purpose of this study is to develop and refine a survey instrument. This survey instrument will be used in a focus groups to inform the development of the survey content and approach.

Time Method

Cross-sectional

Universe

A total of 50 participants in the upper Midwest participated in 6 focus groups.

Data Type(s)

Mode of Data Collection

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Original Release Date

2022-06-14

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Notes

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