Terms of Use -- ICPSR 21600

Please read the terms of use below. If you agree to them, click on the "I Agree" button to proceed to download your data cart. If you do not agree, you can click on the "I Do Not Agree" button to return to the home page.

The University of North Carolina at Chapel Hill, Carolina Population Center National Longitudinal Study of Adolescent to Adult Health Data Use Agreement for the Use of Public-Use Data

I. Definitions

A. “The National Longitudinal Study of Adolescent to Adult Health” (hereinafter referred to as “Add Health”) is the program project undertaken by the Carolina Population Center of The University of North Carolina at Chapel Hill (hereafter referred to as “UNC-Chapel Hill”) under Grant No. P01-HD31921 from the Eunice Kennedy Shriver National Institute of Child Health and Human Development.

B. “Sensitive Data” includes any data from Add Health that might compromise the anonymity or privacy of respondents to that study. Because of the school-based study design, Add Health respondents (adolescents, parents, and schools) are at higher risk of deductive disclosure than randomly sampled individuals. Therefore, all data collected from Add Health are considered to be sensitive.

II. Obligations of the Data User

Data Files provided under this Agreement shall be held by the user in confidence and can be disclosed only in compliance with the terms of this Agreement.

The user shall abide by the terms of this Agreement, and agrees

A. That the Data Files will be used solely for statistical analyses: that no attempt will be made to identify specific individuals, families, households, schools, institutions, or geographic locations not provided by Add Health; and that no list of Sensitive Data at the individual or family level will be published or otherwise distributed.

B. That if the identity of any person, family, household, school, institution or geographic location should be discovered inadvertently, then

1. No use will be made of this knowledge;

2. Add Health will be advised of the incident within ten (10) business days of Investigator’s, Research Staff’s, or Institution’s discovery of the incident;

3. The information that would identify the person, family, household, school, or institution will be safeguarded or destroyed as requested by Add Health and a written certification of destruction provided to Add Health; and

4. No one else will be informed of the discovered identity.

C. To avoid inadvertent disclosure of persons, families, or households by using the following guidelines in the release of statistics derived from the Data Files.

1. In no table should all cases in any row or column be found in a single cell.

2. In no case should the total for a row or column of a cross-tabulation be fewer than ten (10).

3. In no case should a cell frequency of a cross-tabulation be fewer than ten (10) cases.

4. In no case should a quantity figure be based on fewer than ten (10) cases.

5. Data Files released should never permit disclosure when used in combination with other known data.

D. To include in each written report or other publication based on analysis of Sensitive Data from Add Health, the following statement

This research uses data from Add Health, a program project designed by J. Richard Udry, Peter S. Bearman, and Kathleen Mullan Harris, and funded by a grant P01-HD31921 from the Eunice Kennedy Shriver National Institute of Child Health and Human Development, with cooperative funding from 17 other agencies. Special acknowledgment is due Ronald R. Rindfuss and Barbara Entwisle for assistance in the original design. Persons interested in obtaining Data Files from Add Health should contact Add Health, The University of North Carolina at Chapel Hill, Carolina Population Center, Carolina Square, Suite 210, 123 W. Franklin Street, Chapel Hill, NC 27516 (addhealth_contracts@unc.edu). No direct support was received from grant P01-HD31921 for this analysis.

E. That all journal articles based on analysis of confidential Sensitive Data from Add Health receive a PubMed Central reference number (PMCID). Journal articles must be submitted to PubMed Central to receive a PMCID. The method of PubMed Central submission and Investigator responsibility for submission depend on the journal and journal publisher.

1. Some journals automatically submit published articles to PubMed Central. For a list of journals that submit articles to PubMed Central please visit the NIH website: http://publicaccess.nih.gov/submit_process_journals.htm

2. Some journal publishers may submit the articles to PubMed Central automatically or upon request by the author. For a list of journal publishers that submit articles to PubMed Central please visit the NIH website: http://publicaccess.nih.gov/select_deposit_publishers.htm#b

3. If neither the journal nor the journal publisher will submit the article to PubMed Central, the Investigator will be responsible to submit the final peer-reviewed manuscript to PubMed Central via the NIH Manuscript Submission System (NIHMS). For detailed instructions on the process of submitting a journal article to PubMed Central, please see the NIH website: http://publicaccess.nih.gov/submit_process.htm

(If you have any problems with this process, please contact the NIHMS or PubMed help desk.)

ICPSR further asks that authors of publications based on ICPSR data send copies of their published works or publication references to ICPSR for inclusion in a database of related publications.

In addition, the user acknowledges that the original collector of the data, ICPSR, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses.

By continuing past this point to the data retrieval process, you signify your agreement to comply with the above-stated requirements and give your assurance that the use of statistical data obtained from ICPSR and/or its Special Topic Archives will conform to widely-accepted standards of practice and legal restrictions that are intended to protect the confidentiality of research subjects.

Please read the terms of use below. If you agree to them, click on the "I Agree" button to proceed. If you do not agree, you can click on the "I Do Not Agree" button to return to the home page.

ICPSR adheres to the principles of the CoreTrustSeal Core Trustworthy Data Repositories Requirements, which, in part, require the data consumer to comply with access regulations and applicable licenses imposed both by law and by the data repository, and to conform to codes of conduct that are generally accepted in higher education and scientific research for the exchange and proper use of knowledge and information.

These data are distributed under the following terms of use, which are governed by ICPSR. By continuing past this point to the data retrieval process, you signify your agreement to comply with the requirements stated below:

Privacy of RESEARCH SUBJECTS

Any intentional identification of a RESEARCH SUBJECT (whether an individual or an organization) or unauthorized disclosure of his or her confidential information violates the PROMISE OF CONFIDENTIALITY given to the providers of the information. Therefore, users of data agree:

To use these datasets solely for research or statistical purposes and not for investigation of specific RESEARCH SUBJECTS, except when identification is authorized in writing by ICPSR (icpsr-help@umich.edu )
To make no use of the identity of any RESEARCH SUBJECT discovered inadvertently, and to advise ICPSR of any such discovery (icpsr-help@umich.edu )

Redistribution of Data

You agree not to redistribute data or other materials without the written agreement of ICPSR, unless:

You serve as the OFFICIAL or DESIGNATED REPRESENTATIVE at an ICPSR MEMBER INSTITUTION and are assisting AUTHORIZED USERS with obtaining data, or
You are collaborating with other AUTHORIZED USERS to analyze the data for research or instructional purposes.

When sharing data or other materials in these approved ways, you must include all accompanying files with the data, including terms of use. More information on permission to redistribute data can be found on the ICPSR Web site.

Prohibition on Sharing with Countries of Concern

By accessing ICPSR Membership-sponsored data, you acknowledge and represent, in accordance with the Final Rule implementing Executive Order 14117 issued by the U.S. Department of Justice, that:

You are not located in China, Hong Kong, Macau, Russia, Iran, North Korea, Venezuela, or Cuba; and
You will not provide access to any data that are part of ICPSR to any person located in such countries unless ICPSR approves such access in writing.

You agree that if you are not able to comply with this section, you will not access ICPSR Membership-sponsored data and you will immediately notify ICPSR at icpsr-help@umich.edu.

If you are unsure whether or not you are downloading ICPSR Membership-sponsored data, or if you have any related questions, please contact us at icpsr-help@umich.edu.

Name/Address Sharing With the Original Data Producer

You agree that by downloading these data, ICPSR may provide your name, email, and organizational affiliation to both the original producer of these data and the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). The data producer and NICHD may use this information to conduct internal analyses of the types of individuals using the data and to contact you to provide information regarding updates to the data, opportunities for user workshops/conferences, or other data-related communications.

Citing Data

You agree to reference the recommended bibliographic citation in any publication that employs resources provided by ICPSR. Authors of publications based on ICPSR data are required to send citations of their published works to ICPSR for inclusion in a database of related publications (bibliography@icpsr.umich.edu) .

Disclaimer

You acknowledge that the original collector of the data, ICPSR, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses.

Violations

If ICPSR determines that the terms of this agreement have been violated, ICPSR will act according to our policy on terms of use violations. Sanctions can include:

ICPSR may revoke the existing agreement, demand the return of the data in question, and deny all future access to ICPSR data.
The violation may be reported to the Research Integrity Officer, Institutional Review Board, or Human Subjects Review Committee of the user's institution. A range of sanctions are available to institutions including revocation of tenure and termination.
If the confidentiality of human subjects has been violated, the case may be reported to the Federal Office for Human Research Protections. This may result in an investigation of the user's institution, which can result in institution-wide sanctions including the suspension of all research grants.
A court may award the payment of damages to any individual(s)/organization(s) harmed by the breach of the agreement.

Definitions

authorized user: A faculty member, staff member, or student at a member institution
ICPSR: Inter-university Consortium for Political and Social Research
member institution: An institutional member of ICPSR
Official/Designated Representative: An individual appointed to represent a university's interests in ICPSR. This individual is also charged with providing user support to campus users.
promise of confidentiality: A promise to a respondent or research participant that the information the respondent provides will not be disseminated without the permission of the respondent; that the fact that the respondent participated in the study will not be disclosed; and that disseminated information will include no linkages to the identity of the respondent. Such a promise encompasses traditional notions of both confidentiality and anonymity. Names and other identifying information regarding respondents, proxies, or other persons on whom the respondent or proxy provides information, are presumed to be confidential.
research subject: A person or organization observed for purposes of research. Also called a respondent. A respondent is generally a survey respondent or informant, experimental or observational subject, focus group participant, or any other person providing information to a study or on whose behalf a proxy provides information.