Improving Self-Care of Informal Caregivers of Adults with Heart Failure, United States, 2019-2024 (ICPSR 39524)
This randomized controlled trial tested the efficacy of a virtual support health coaching intervention compared to a health information control group in improving self-care, decreasing stress, and improving coping and health status of informal caregivers of adults with heart failure. A secondary aim was to estimate intervention cost and cost-effectiveness. An exploratory aim was to explore the effect of caregiver outcomes on patient outcomes.
Evaluating a school-based social and material needs identification system to prevent youth violence involvement (ICPSR 236862)
Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)
This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.
The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)
Evaluation of Better Jobs Better Care: Clinical Manager Survey, 2004-2007 [Iowa, North Carolina, Oregon, Pennsylvania, and Vermont] (ICPSR 29063)
Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, Better Jobs Better Care (BJBC) was a demonstration program that sought to bring about changes in public policy and management practice that would lead to improved recruitment and retention of high-quality paraprofessional direct care workers (DCW) in nursing homes as well as in home- and community-based settings. This was to be accomplished by implementing both policy and management practice goals. Policy goals included developing initiatives related to wages and benefits, incentives for job redesign, curriculum and credentialing, professional associations, and promotion of public awareness and policies. Practice goals involved interventions related to caregiving skill development, peer mentoring, team building, top management training, supervisor training, and provider-specific interventions. The program established demonstration projects in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont which enrolled long-term care establishments across the spectrum of long-term care settings: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers.
Conducted as part of the BJBC evaluation, which used a before-after design to assess the implementation of the interventions and their impact, this survey of the top clinical manager at each participating long-term care provider explored the establishments' organizational characteristics and management practices. One version of the survey was administered at the beginning of the demonstration (Time1), and a second version, toward the end of the demonstration (Time 2). Organizational characteristics covered by the survey include nonprofit/for-profit status, whether the establishment was free standing or part of a chain, number of competing establishments, whether the DCWs were unionized, and the type and amount of services provided. Management practices investigated by the survey include participation in care planning, communication about tasks, feedback, DCW training, management communication, organizational readiness for change, professional development, and work design practices. The survey also collected information about the racial and Hispanic origin composition of DCWs and patients/residents/clients.
Evaluation of Better Jobs Better Care: Direct Care Worker Survey, 2004-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 29064)
Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, Better Jobs Better Care (BJBC) was a demonstration program that sought to bring about changes in public policy and management practice that would lead to improved recruitment and retention of high-quality paraprofessional direct care workers (DCW) in nursing homes as well as in home- and community-based settings. This was to be accomplished by implementing both policy and management practice goals. Policy goals included developing initiatives related to wages and benefits, incentives for job redesign, curriculum and credentialing, professional associations, and promotion of public awareness and policies. Practice goals involved interventions related to caregiving skill development, peer mentoring, team building, top management training, supervisor training, and provider-specific interventions. The program established demonstration projects in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont which enrolled long-term care establishments across the spectrum of long-term care settings: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers.
Conducted as part of the BJBC evaluation, this survey interviewed DCWs at two points during the demonstration. The Time 1 interview was fielded as soon as establishments enrolled in the demonstration and provided a list of their DCWs (July 2004 to December 2006), and the Time 2 interviews were completed 12 to 28 months after the Time 1 interviews (April 2006 to June 2007). Both rounds of the survey used the same self-administered questionnaire which included questions about length of employment, job satisfaction, job rewards and problems, supervision, perceptions of quality of care, job confidence, training, intent to quit, and demographic characteristics. The survey also elicited recommendations for improving DCWs' jobs by asking the open-ended question "What is the single most important thing your employer could do to improve your job as a direct care worker?"
Moving the Needle on College Student Basic Needs: National Community College Provost Perspectives, United States, 2020 (ICPSR 38833)
Through the Holistic Measures of Student Success (HMSS) project, funded by the Educational Credit Management Corporation (ECMC) Foundation as part of their Basic Needs Initiative cohort, the researchers unpacked and explored how student success has traditionally been defined and measured within the community college sector and what new metrics and data collection processes can be developed to more holistically reflect the community college student experience. Therefore, this project aimed to (1) establish a shared understanding of current institutional practices in defining student success, and (2) measure the sector's openness to new approaches, especially those focused on students' basic needs.
To shed light on the challenges and opportunities associated with the collection and prioritization of a broader set of student success metrics, especially those focused on a more holistic set of student experiences and challenges like food and housing security, the research team surveyed community college provosts across the United States in fall 2020. The survey examined national provost perspectives on college priorities and influencing factors, traditional data collection practices, emerging data collection processes on student basic needs, and the role of data disaggregation for advancing equity.
Generalist-Specialist Palliative Care Social Work Collaboration, Michigan, 2014-2015 (ICPSR 38000)
A social work advisory group recently proposed 41 generalist-level palliative social work activities applicable to any venue, including hospital-based social work, but this applicability has not been empirically tested. The researchers used critical realist grounded theory analysis of qualitative interviews to explore whether the activities proposed by the advisory group reflect inpatient social workers' perceptions of their generalist-level palliative activities when caring for patients alongside specialist-level palliative social workers. Fourteen Masters-educated social workers from six hospitals in the state of Michigan participated.
The research demonstrated that inpatient social workers find it challenging to engage in specific generalist-level palliative social work activities; provision of generalist-level palliative services is shaped by discharge planning duties, the consultation model, and the concentrated role of specialist-level palliative social workers. Competency in cultural and spiritual aspects of care could be lacking.
Understanding the Role of Trauma and Violence Exposure on Justice-Involved LGBTQA and GNC Youth in Hennepin County, Minnesota, 2018 (ICPSR 37444)
The Hennepin County Department of Community Corrections and Rehabilitation Office of Policy, Planning and Evaluations surveyed 150 youth to examine the role of trauma and violence on justice-involved lesbian, gay, bisexual, transgender, questioning/unsure or asexual (LGBTQA) and gender non-conforming youth (GNC).
Youth were surveyed and administrative human services and juvenile justice data were also analyzed. The correctional staff were surveyed with an organizational self-assessment on employee perceptions of trauma-informed practices and policies. A subset of youth (N = 60) were interviewed using the Juvenile Victimization Questionnaire Revised Version 2 (JVQ-R2) and the Adverse Childhood Experiences (ACEs) tool to assess trauma and victimization.
This survey also collected demographic information as well as the participants' history of harassment, bullying, suspension, expulsion, housing arrangements, and foster care involvement.
Northwestern Juvenile Project (Cook County, Illinois), Follow-up 6, 2004-2008 (ICPSR 36983)
This study contains data from the sixth follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. The sixth follow-up occurred approximately 8 years after the baseline interview and focused on studying the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risk behaviors.
The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Changes in disorders over time were studied (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. This study addressed patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors were interrelated.
The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1005 African Americans, 524 Hispanics, and 296 non-Hispanic white respondents. Participants were tracked from the time they left detention. All participants were eligible for the sixth follow-up interview. Re-interviews were conducted regardless of where respondents were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.
Expanding Use of the Social Reactions Questionnaire among Diverse Women, Denver, Colorado, 2013-2016 (ICPSR 36776)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
The Social Reactions Questionnaire (SRQ) is a widely used instrument designed to measure perceptions of social reactions. Studies using the SRQ have generally asked women to report on social reactions from "other persons told about the assault," without specifying which persons. The purpose of this study was to test a modified version of the SRQ that asked women to report separately on social reactions from criminal justice personnel, community-based providers, and informal supports. The researchers sought to examine changes in social reactions longitudinally as well as the impact of social reactions on criminal justice engagement and post-traumatic distress among diverse women following a recent sexual assault. The study included testing hypotheses about the inter-relationships among social reactions, victim well-being (e.g., psychological distress), and criminal justice variables (e.g., victim engagement with prosecution). Addressing the dearth of longitudinal research on social reactions, this study examined causal links among variables. In particular, researchers tested hypotheses about changes in social reactions over time in relation to criminal justice cases and victims' post-traumatic reactions.
The data included as part of this collection includes one SPSS data file (2_1-Data_Quantiative-Variables-Updated-20180611.sav) with 3,310 variables for 228 cases. Demographic variables included: respondent's age, race, ethnicity, country of origin, sexual orientation, marital status, education level, employment status, income source, economic level, religion, household characteristics, and group identity. The data also contain transcripts of qualitative interviews and one SPSS qualitative coding dataset (file7-2_4_Data_Open_ended_Codes_from_Transcripts.sav) with 19 variables and 225 cases, which are not included in this fast track release.
Multi-State Study of Meeting Domestic Violence Survivors' Needs Through Non-Residential Services and Supports, 2010 (ICPSR 33243)
These data are part of NACJD's Fast Track Release and are distributed as they there received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except of the removal of direct identifiers. Users should refer to the accompany readme file for a brief description of the files available with this collections and consult the investigator(s) if further information is needed.
This study examined services and supports provided by domestic violence programs. It had four main goals:
- Learn more about what domestic violence survivors want when they come to programs for supportive services, the extent to which survivors have had their service expectations met, and survivors' assessment of immediate outcomes associated with the services they receive.
- Learn more about how survivors' experiences, needs and immediate outcomes vary across demographic and domestic violence program characteristics.
- Identify multi-level factors associated with survivors' positive service experiences.
- Develop recommendations for domestic violence programs across the country for how they might improve their services.
Data were collected during a nine month period from 1,467 survivors (Survivor Survey Data) from 90 domestic violence programs in four states: Alabama, Illinois, Massachusetts, and Washington. The states were chosen to maximize geographical, population, rural/urban and economic diversity. Programs were also selected (Program Survey Data) for participation by major national culturally-specific institutes and organizations, to help ensure diversity of the survivor and program samples. In addition, 10 focus groups were conducted with a total of 73 domestic violence survivors, with a focus on marginalized groups.
National Health Interview Survey: Longitudinal Study of Aging, 70 Years and Over, 1984-1990 (ICPSR 8719)
National Health Interview Survey, 1984 (ICPSR 8659)
Evaluation of Better Jobs, Better Care: Frontline Supervisor Survey, 2005-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 23000)
In long-term care, frontline supervisors play a central role in direct care workers' (DCW) job quality and turnover and are critical to the implementation of management changes. To better understand supervisors' perceptions of management practices, the quality of supervision, and the effect on DCW turnover and job quality, the Office of the Assistant Secretary for Planning and Evaluation in the United States Department of Health and Human Services contracted with Pennsylvania State University to conduct this survey of supervisors participating in the Better Jobs, Better Care (BJBC) demonstration. Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, the BJBC demonstration -- which took place in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont -- tested innovative policy and practice models designed to improve the quality of DCW jobs in an effort to improve recruitment and retention of these workers and strengthen capacity to meet future demand for long-term care.
Frontline supervisors were interviewed from the four types of facilities and agencies that participated in the demonstration: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers. The survey explored the supervisors' job responsibilities, formal training, job satisfaction, and thoughts about quitting. It investigated the culture of the organizations in which the supervisors worked, probed for problems with the supervisors' jobs, assessed how rewarding the supervisors felt their jobs were, inquired as to whether the supervisors felt respected by their clients, DCWs, and managers, gauged the supervisors' assessments of the overall competency level of the DCWs in their organizations, and explored the supervisors' beliefs about managerial support for the BJBC project, how well the BJBC programs were executed, and whether the overall impact of the project was positive.
In addition, the respondents were queried about management practices (e.g., rotation of assignments to different services or units, mechanisms to handle employee concerns, and approaches used to handle poor performance or negative behaviors among employees). They were also asked about DCW training, mentoring, and career ladder programs, DCW participation in patient/resident/client care plans, and communication among DCWs and between DCWs and their supervisors. Respondents were also asked what was the most important thing that their employer could do both to improve the jobs of DCWs and to improve their own ability to do their jobs as supervisors of DCWs. Additional information collected by the survey includes the supervisors' age, sex, race, Hispanic origin, educational attainment, nursing degree or license (LPN, RN, Diploma RN, BSN, MSN, or Advanced Practice Nurse), wages, and health insurance coverage.
This collection comprises three data files: (1) Supervisor Identification Instrument Data, (2) Supervisor Survey Data, and (3) Clinical Managers Who Are Also Supervisors Data. The first file contains information collected by the Supervisor Identification Instrument that was submitted to the clinical manager at each BJBC provider organization. This instrument instructed clinical managers to name all of the supervisors in their organization and to indicate which supervisory responsibilities each one performed. The second data file contains the responses to the Supervisor Survey questionnaire.The third data file contains the responses of clinical managers who also functioned as supervisors in their organization. These clinical managers responded to the same questions in the Supervisor Survey questionnaire, except for ten questions that were worded somewhat differently.