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Improving Self-Care of Informal Caregivers of Adults with Heart Failure, United States, 2019-2024 (ICPSR 39524)

Released/updated on: 2026-01-20
Geographic coverage: United States
Time period: 2019-01-01--2024-12-31

This randomized controlled trial tested the efficacy of a virtual support health coaching intervention compared to a health information control group in improving self-care, decreasing stress, and improving coping and health status of informal caregivers of adults with heart failure. A secondary aim was to estimate intervention cost and cost-effectiveness. An exploratory aim was to explore the effect of caregiver outcomes on patient outcomes.

Self-published

Evaluating a school-based social and material needs identification system to prevent youth violence involvement (ICPSR 236862)

Released/updated on: 2025-10-21
Geographic coverage: Michigan, United States
Time period: 2023-09-01--2024-06-30
The Pathways to Potential Success Coach Questionnaire is a cross-sectional survey of Success Coaches (case workers) working in Michigan K-12 public schools during the 2023-2024 school year. The questionnaire was designed and fielded for the study “Evaluating a school-based social and material needs identification system to prevent youth violence involvement.” (R01CE003536)The questionnaire includes five main sections: employment history, program implementation, student connections, family connections, and demographics. The program implementation, student connections, and family connections sections were repeated for each school that an individual success coach worked in during the school year.
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Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)

Released/updated on: 2024-02-14
Geographic coverage: United States, Texas, Massachusetts, Hawaii, California, Georgia, New York (state), Wisconsin
Time period: 2008-01-01--2009-12-31

This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.

The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.

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Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)

Released/updated on: 2024-02-14
Geographic coverage: Vermont, United States, Hawaii, California, New York (state), Maui, Arkansas, Michigan, Texas, Massachusetts, Georgia, Wisconsin, Boston
Time period: 2002-01-01--2002-12-31
This survey is one component of the evaluation of the Community Partnerships for Older Adults (CPOA) Program, an initiative of the Robert Wood Johnson Foundation aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private community partnerships. The survey interviewed a representative sample of older adults aged 50 and over in 13 communities that were awarded development grants by the program. Designed to obtain baseline data about each community's population and to provide information to target the CPOA's activities in the most effective way, the survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
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Evaluation of Better Jobs Better Care: Clinical Manager Survey, 2004-2007 [Iowa, North Carolina, Oregon, Pennsylvania, and Vermont] (ICPSR 29063)

Released/updated on: 2024-02-14
Geographic coverage: North Carolina, Oregon, Vermont, Iowa, United States, Pennsylvania
Time period: 2004-01-01--2007-12-31

Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, Better Jobs Better Care (BJBC) was a demonstration program that sought to bring about changes in public policy and management practice that would lead to improved recruitment and retention of high-quality paraprofessional direct care workers (DCW) in nursing homes as well as in home- and community-based settings. This was to be accomplished by implementing both policy and management practice goals. Policy goals included developing initiatives related to wages and benefits, incentives for job redesign, curriculum and credentialing, professional associations, and promotion of public awareness and policies. Practice goals involved interventions related to caregiving skill development, peer mentoring, team building, top management training, supervisor training, and provider-specific interventions. The program established demonstration projects in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont which enrolled long-term care establishments across the spectrum of long-term care settings: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers.

Conducted as part of the BJBC evaluation, which used a before-after design to assess the implementation of the interventions and their impact, this survey of the top clinical manager at each participating long-term care provider explored the establishments' organizational characteristics and management practices. One version of the survey was administered at the beginning of the demonstration (Time1), and a second version, toward the end of the demonstration (Time 2). Organizational characteristics covered by the survey include nonprofit/for-profit status, whether the establishment was free standing or part of a chain, number of competing establishments, whether the DCWs were unionized, and the type and amount of services provided. Management practices investigated by the survey include participation in care planning, communication about tasks, feedback, DCW training, management communication, organizational readiness for change, professional development, and work design practices. The survey also collected information about the racial and Hispanic origin composition of DCWs and patients/residents/clients.

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Evaluation of Better Jobs Better Care: Direct Care Worker Survey, 2004-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 29064)

Released/updated on: 2024-02-14
Geographic coverage: North Carolina, Oregon, Vermont, Iowa, United States, Pennsylvania
Time period: 2004-01-01--2007-12-31

Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, Better Jobs Better Care (BJBC) was a demonstration program that sought to bring about changes in public policy and management practice that would lead to improved recruitment and retention of high-quality paraprofessional direct care workers (DCW) in nursing homes as well as in home- and community-based settings. This was to be accomplished by implementing both policy and management practice goals. Policy goals included developing initiatives related to wages and benefits, incentives for job redesign, curriculum and credentialing, professional associations, and promotion of public awareness and policies. Practice goals involved interventions related to caregiving skill development, peer mentoring, team building, top management training, supervisor training, and provider-specific interventions. The program established demonstration projects in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont which enrolled long-term care establishments across the spectrum of long-term care settings: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers.

Conducted as part of the BJBC evaluation, this survey interviewed DCWs at two points during the demonstration. The Time 1 interview was fielded as soon as establishments enrolled in the demonstration and provided a list of their DCWs (July 2004 to December 2006), and the Time 2 interviews were completed 12 to 28 months after the Time 1 interviews (April 2006 to June 2007). Both rounds of the survey used the same self-administered questionnaire which included questions about length of employment, job satisfaction, job rewards and problems, supervision, perceptions of quality of care, job confidence, training, intent to quit, and demographic characteristics. The survey also elicited recommendations for improving DCWs' jobs by asking the open-ended question "What is the single most important thing your employer could do to improve your job as a direct care worker?"

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Moving the Needle on College Student Basic Needs: National Community College Provost Perspectives, United States, 2020 (ICPSR 38833)

Released/updated on: 2023-07-25
Geographic coverage: United States
Time period: 2020-01-01--2020-12-31

Through the Holistic Measures of Student Success (HMSS) project, funded by the Educational Credit Management Corporation (ECMC) Foundation as part of their Basic Needs Initiative cohort, the researchers unpacked and explored how student success has traditionally been defined and measured within the community college sector and what new metrics and data collection processes can be developed to more holistically reflect the community college student experience. Therefore, this project aimed to (1) establish a shared understanding of current institutional practices in defining student success, and (2) measure the sector's openness to new approaches, especially those focused on students' basic needs.

To shed light on the challenges and opportunities associated with the collection and prioritization of a broader set of student success metrics, especially those focused on a more holistic set of student experiences and challenges like food and housing security, the research team surveyed community college provosts across the United States in fall 2020. The survey examined national provost perspectives on college priorities and influencing factors, traditional data collection practices, emerging data collection processes on student basic needs, and the role of data disaggregation for advancing equity.

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Generalist-Specialist Palliative Care Social Work Collaboration, Michigan, 2014-2015 (ICPSR 38000)

Released/updated on: 2021-05-17
Geographic coverage: United States, Michigan
Time period: 2014-01-01--2015-12-31

A social work advisory group recently proposed 41 generalist-level palliative social work activities applicable to any venue, including hospital-based social work, but this applicability has not been empirically tested. The researchers used critical realist grounded theory analysis of qualitative interviews to explore whether the activities proposed by the advisory group reflect inpatient social workers' perceptions of their generalist-level palliative activities when caring for patients alongside specialist-level palliative social workers. Fourteen Masters-educated social workers from six hospitals in the state of Michigan participated.

The research demonstrated that inpatient social workers find it challenging to engage in specific generalist-level palliative social work activities; provision of generalist-level palliative services is shaped by discharge planning duties, the consultation model, and the concentrated role of specialist-level palliative social workers. Competency in cultural and spiritual aspects of care could be lacking.

External data

Understanding the Role of Trauma and Violence Exposure on Justice-Involved LGBTQA and GNC Youth in Hennepin County, Minnesota, 2018 (ICPSR 37444)

Released/updated on: 2020-11-30
Geographic coverage: United States, Minnesota, Hennepin County
Time period: 2018-01-01--2018-12-31

The Hennepin County Department of Community Corrections and Rehabilitation Office of Policy, Planning and Evaluations surveyed 150 youth to examine the role of trauma and violence on justice-involved lesbian, gay, bisexual, transgender, questioning/unsure or asexual (LGBTQA) and gender non-conforming youth (GNC).

Youth were surveyed and administrative human services and juvenile justice data were also analyzed. The correctional staff were surveyed with an organizational self-assessment on employee perceptions of trauma-informed practices and policies. A subset of youth (N = 60) were interviewed using the Juvenile Victimization Questionnaire Revised Version 2 (JVQ-R2) and the Adverse Childhood Experiences (ACEs) tool to assess trauma and victimization.

This survey also collected demographic information as well as the participants' history of harassment, bullying, suspension, expulsion, housing arrangements, and foster care involvement.

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Northwestern Juvenile Project (Cook County, Illinois), Follow-up 6, 2004-2008 (ICPSR 36983)

Released/updated on: 2019-04-04
Geographic coverage: United States, Chicago, Illinois
Time period: 2004-01-01--2008-12-31

This study contains data from the sixth follow-up interview of the Northwestern Juvenile Project (NJP), a longitudinal assessment of alcohol, drug, or mental service treatment needs of juvenile detainees. The sixth follow-up occurred approximately 8 years after the baseline interview and focused on studying the development and persistence of psychiatric disorders, related predictive variables, patterns of drug use, and other risk behaviors.

The project's aims included studying (1) development and persistence of alcohol, drug, and mental disorders and (2) pathways and patterns of risky behaviors. Changes in disorders over time were studied (including onset, remission, and recurrence), comorbidity, associated functional impairments, and the risk and protective factors related to these disorders and impairments. This study addressed patterns and sequences of the development of drug use and related variables, focusing on gender differences, racial/ethnic differences, the antecedents of these risky behaviors (risk and protective factors), and how these behaviors were interrelated.

The original sample included 1829 randomly selected youth, 1172 males and 657 females, then 10 to 18 years old, enrolled in the study as they entered the Cook County Juvenile Temporary Detention Center from 1995 to 1998. Among the sample were 1005 African Americans, 524 Hispanics, and 296 non-Hispanic white respondents. Participants were tracked from the time they left detention. All participants were eligible for the sixth follow-up interview. Re-interviews were conducted regardless of where respondents were living when their follow-up interview was due: in the community, correctional settings, or by telephone if they lived farther than two hours from Chicago.

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Expanding Use of the Social Reactions Questionnaire among Diverse Women, Denver, Colorado, 2013-2016 (ICPSR 36776)

Released/updated on: 2018-09-19
Geographic coverage: United States, Colorado, Denver
Time period: 2013-01-01--2016-12-31

These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.

The Social Reactions Questionnaire (SRQ) is a widely used instrument designed to measure perceptions of social reactions. Studies using the SRQ have generally asked women to report on social reactions from "other persons told about the assault," without specifying which persons. The purpose of this study was to test a modified version of the SRQ that asked women to report separately on social reactions from criminal justice personnel, community-based providers, and informal supports. The researchers sought to examine changes in social reactions longitudinally as well as the impact of social reactions on criminal justice engagement and post-traumatic distress among diverse women following a recent sexual assault. The study included testing hypotheses about the inter-relationships among social reactions, victim well-being (e.g., psychological distress), and criminal justice variables (e.g., victim engagement with prosecution). Addressing the dearth of longitudinal research on social reactions, this study examined causal links among variables. In particular, researchers tested hypotheses about changes in social reactions over time in relation to criminal justice cases and victims' post-traumatic reactions.

The data included as part of this collection includes one SPSS data file (2_1-Data_Quantiative-Variables-Updated-20180611.sav) with 3,310 variables for 228 cases. Demographic variables included: respondent's age, race, ethnicity, country of origin, sexual orientation, marital status, education level, employment status, income source, economic level, religion, household characteristics, and group identity. The data also contain transcripts of qualitative interviews and one SPSS qualitative coding dataset (file7-2_4_Data_Open_ended_Codes_from_Transcripts.sav) with 19 variables and 225 cases, which are not included in this fast track release.

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Multi-State Study of Meeting Domestic Violence Survivors' Needs Through Non-Residential Services and Supports, 2010 (ICPSR 33243)

Released/updated on: 2016-12-02
Geographic coverage: United States, Illinois, Massachusetts, Alabama, Washington
Time period: 2010-04-01--2010-12-31

These data are part of NACJD's Fast Track Release and are distributed as they there received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except of the removal of direct identifiers. Users should refer to the accompany readme file for a brief description of the files available with this collections and consult the investigator(s) if further information is needed.

This study examined services and supports provided by domestic violence programs. It had four main goals:

  • Learn more about what domestic violence survivors want when they come to programs for supportive services, the extent to which survivors have had their service expectations met, and survivors' assessment of immediate outcomes associated with the services they receive.
  • Learn more about how survivors' experiences, needs and immediate outcomes vary across demographic and domestic violence program characteristics.
  • Identify multi-level factors associated with survivors' positive service experiences.
  • Develop recommendations for domestic violence programs across the country for how they might improve their services.

Data were collected during a nine month period from 1,467 survivors (Survivor Survey Data) from 90 domestic violence programs in four states: Alabama, Illinois, Massachusetts, and Washington. The states were chosen to maximize geographical, population, rural/urban and economic diversity. Programs were also selected (Program Survey Data) for participation by major national culturally-specific institutes and organizations, to help ensure diversity of the survivor and program samples. In addition, 10 focus groups were conducted with a total of 73 domestic violence survivors, with a focus on marginalized groups.

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National Health Interview Survey: Longitudinal Study of Aging, 70 Years and Over, 1984-1990 (ICPSR 8719)

Released/updated on: 2011-08-18
Geographic coverage: United States
Time period: 1984-01-01--1990-12-31
This study, commonly known as the Longitudinal Study of Aging (LSOA), was conducted by the National Center for Health Statistics (NCHS) in collaboration with the National Institute on Aging (NIA) and designed to (1) provide mortality rates by demographic, social, economic, and health characteristics that are not available from the vital statistics system, (2) measure change in the functional status and living arrangements of older people, and (3) provide measures of health care use. It was also designed to describe the continuum from functionally independent living in the community through dependence, possible institutionalization, and finally death. The LSOA is an extension of the National Health Interview Survey (NHIS) of 1984, following its sample of 16,148 noninstitutionalized elderly people (55 years and over) living in the United States, with a special focus on those who were 70 years and over in 1984. This release of the LSOA contains data on those respondents who had been 70 years and older at the time of their 1984 interviews. The data include 1986, 1988, and 1990 reinterviews, National Death Index matches from 1984-1989, and 1987 interviews with contact persons named by decedents, as well as selected variables from the 1984 NHIS core questionnaire and its two supplements, Health Insurance and the Supplement on Aging (SOA). Two Medicare files are also included: Part 2, Medicare Hospital Records, and Part 3, Other Medicare Use Records (which covers home health care, hospice, and outpatient use). Links also are provided to allow merging of additional variables from the NATIONAL HEALTH INTERVIEW SURVEY, 1984 (ICPSR 8659).
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National Health Interview Survey, 1984 (ICPSR 8659)

Released/updated on: 2011-04-19
Geographic coverage: United States
Time period: 1984-01-01--1984-12-31
The basic purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. There are five types of records in this core survey, each in a separate data file. The variables in the Household File (Part 1) include type of living quarters, size of family, region, and type of sampling area. The Person File (Part 2) includes sex, age, race, marital status, veteran status, and education. These variables are found in the Condition, Doctor Visit, and Hospital Episode Files as well. The Person File also supplies data on height, weight, bed days, doctor visits, hospital stays, years at residence, and region variables. The Condition (Part 3), Doctor Visit (Part 4), and Hospital Episode (Part 5) Files contain information on each reported acute or chronic condition, doctor visit, or hospitalization, respectively. A sixth, seventh, and eighth file have been provided. The Health Insurance Supplement File (Part6) contains information on the type of health insurance held by each respondent from the Person file. Parts 7-8 comprise the Supplement on Aging (SOA) Files divided into Condition and Person Public Use Files respectively, and contain data on a subset of the NHIS population, those aged 55 and over. These files contain the same Condition and Person variables as Parts 2-3 but are supplemented by questions pertaining specifically to the subpopulation of older respondents. These additional variables cover family relationships and support, community and social support, occupation and retirement, nursing home stays, help with care, health opinions, and other health-related and social information about middle-aged and older people.
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Evaluation of Better Jobs, Better Care: Frontline Supervisor Survey, 2005-2007 [Iowa, North Carolina, Oregon, Pennsylvania, Vermont] (ICPSR 23000)

Released/updated on: 2008-09-26
Geographic coverage: North Carolina, Oregon, Vermont, Iowa, United States, Pennsylvania
Time period: 2005-01-01--2007-12-31

In long-term care, frontline supervisors play a central role in direct care workers' (DCW) job quality and turnover and are critical to the implementation of management changes. To better understand supervisors' perceptions of management practices, the quality of supervision, and the effect on DCW turnover and job quality, the Office of the Assistant Secretary for Planning and Evaluation in the United States Department of Health and Human Services contracted with Pennsylvania State University to conduct this survey of supervisors participating in the Better Jobs, Better Care (BJBC) demonstration. Funded by the Robert Wood Johnson Foundation and The Atlantic Philanthropies, the BJBC demonstration -- which took place in Iowa, North Carolina, Oregon, Pennsylvania, and Vermont -- tested innovative policy and practice models designed to improve the quality of DCW jobs in an effort to improve recruitment and retention of these workers and strengthen capacity to meet future demand for long-term care.

Frontline supervisors were interviewed from the four types of facilities and agencies that participated in the demonstration: skilled nursing facilities, assisted living facilities, home care agencies, and adult day service providers. The survey explored the supervisors' job responsibilities, formal training, job satisfaction, and thoughts about quitting. It investigated the culture of the organizations in which the supervisors worked, probed for problems with the supervisors' jobs, assessed how rewarding the supervisors felt their jobs were, inquired as to whether the supervisors felt respected by their clients, DCWs, and managers, gauged the supervisors' assessments of the overall competency level of the DCWs in their organizations, and explored the supervisors' beliefs about managerial support for the BJBC project, how well the BJBC programs were executed, and whether the overall impact of the project was positive.

In addition, the respondents were queried about management practices (e.g., rotation of assignments to different services or units, mechanisms to handle employee concerns, and approaches used to handle poor performance or negative behaviors among employees). They were also asked about DCW training, mentoring, and career ladder programs, DCW participation in patient/resident/client care plans, and communication among DCWs and between DCWs and their supervisors. Respondents were also asked what was the most important thing that their employer could do both to improve the jobs of DCWs and to improve their own ability to do their jobs as supervisors of DCWs. Additional information collected by the survey includes the supervisors' age, sex, race, Hispanic origin, educational attainment, nursing degree or license (LPN, RN, Diploma RN, BSN, MSN, or Advanced Practice Nurse), wages, and health insurance coverage.

This collection comprises three data files: (1) Supervisor Identification Instrument Data, (2) Supervisor Survey Data, and (3) Clinical Managers Who Are Also Supervisors Data. The first file contains information collected by the Supervisor Identification Instrument that was submitted to the clinical manager at each BJBC provider organization. This instrument instructed clinical managers to name all of the supervisors in their organization and to indicate which supervisory responsibilities each one performed. The second data file contains the responses to the Supervisor Survey questionnaire.The third data file contains the responses of clinical managers who also functioned as supervisors in their organization. These clinical managers responded to the same questions in the Supervisor Survey questionnaire, except for ten questions that were worded somewhat differently.

Curated

National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 2, 1997 (ICPSR 3526)

Released/updated on: 2007-03-01
Geographic coverage: United States
Time period: 1997-01-01--1997-12-31
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (ICPSR 2563), serves as the baseline for this study. LSOA II Wave 2 interviews were conducted with a total of 7,998 respondents who were interviewed at baseline and consists of 7,060 survivor interviews and 998 decedent interviews. LSOA II Wave 2 is comprised of two data files, the Survivor Data (Part 1) and the Decedent Data (Part 2). The Survivor Data contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including NATIONAL HEALTH INTERVIEW SURVEY, 1994 (ICPSR 6724) core questionnaire, NATIONAL HEALTH INTERVIEW SURVEY, 1994: FAMILY RESOURCES INCOME AND ASSETS SUPPLEMENT (ICPSR 2656), and NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, DISABILITY OUTCOME SUPPLEMENT (ICPSR 2539). Wave 2 questions examined migration, convalescent home utilization, persistent symptomatic conditions such as pain in legs, swelling in feet, etc., nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins and aspirin, and detailed questions on home health care utilization. In addition a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent Data (Part 2) information was gathered from a family member or close relative regarding sample persons (N = 938) who were deceased at the time of Wave 2 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, and health care use and health insurance.
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National Health Interview Survey, 1994: Second Supplement on Aging (ICPSR 2563)

Released/updated on: 2007-02-12
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31
The National Health Interview Survey, 1994: Second Supplement on Aging (SOA II), conducted approximately 10 years after the original SOA (see NATIONAL HEALTH INTERVIEW SURVEY, 1984 [ICPSR 8659], Parts 6 and 7), had four specific aims. The first was to provide a replication of the first SOA to determine whether changes had occurred in the level of disability among older persons between 1984 and the mid-1990s. The second aim was to elicit information on the causes and correlates of changes in health and functioning in older Americans, including background demographic characteristics, health behaviors, and attitudes, pre-existing illness, and social and environmental support. The third was to describe the sequence and consequences of health events, including utilization of health care and services for assisted community living, on the physiological consequences of disability such as pain and fatigue, on social consequences such as changes in social activities, living arrangements, social support, and use of community services, and on the deployment of assisted living strategies and accessibility of technological and environmental adaptations. The final aim was to serve as the baseline for another national longitudinal study focusing on older Americans, the SECOND LONGITUDINAL STUDY OF AGING (LSOA II) (for the first LSOA see NATIONAL HEALTH INTERVIEW SURVEY: LONGITUDINAL STUDY OF AGING, 70 YEARS AND OVER, 1984-1990 [ICPSR 8719]).
Curated

Geriatric Home Care Utilization: San Francisco, 1968-1975 (ICPSR 7853)

Released/updated on: 2006-03-30
Geographic coverage: San Francisco, United States, California
Time period: 1968-01-01--1975-12-31
This data collection reported on geriatric clients served by San Francisco Home Health Services, Inc. (SFHHS) between 1968 and 1975. The study was designed to document and analyze the natural history of home care service use from entry to exit, noting what types of users were in a home care agency's program and how intensively services were utilized. The study also identified outcome categories useful for response to public policy questions on the effectiveness of various service types in meeting geriatric needs. Also examined was the relationship of home care use to nursing home entry, and to the need for other services. In Part 1, data for 2,435 clients were gathered from case records at SFHHS. Variables used in the analysis include entry characteristics (e.g, age, sex, condition, living arrangement, and contextual variables such as referral source, prior source of care, and payment type), duration, intensity, and type of service utilization, as well as discharge or exit status. Some of these are calculated variables derived from each case's accumulated monthly service records (found in their raw form in Part 2). Part 2 contains 35,729 client monthly service records, which are distributed as raw data as received from SFHHS. Variables include billing date, pay plan, and frequency and intensity of assistance.
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National Medical Expenditure Survey, 1987: Household Survey I, Population and Home Health Providers (ICPSR 9339)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1987-01-01--1987-12-31
This data collection contains two data files derived from information gathered in the initial screening and Round 1 interviews of the Household Survey component of the 1987 NATIONAL MEDICAL EXPENDITURE SURVEY (NMES). The Person File contains data on each person sampled in the first round of the Household Survey. Data are included on each sampled person's self-reported coverage under private health insurance and public programs such as Medicaid, Medicare, and CAMPUS/CAMPVA. In addition, data describe difficulties and help with activities of daily living such as bathing, dressing, eating, toileting, handling money, walking, shopping, preparation of meals, light housekeeping, and the use of telephones and transportation. For persons with difficulties in activities of daily living, there is also information on prior nursing home institutionalization and the use of special equipment, adult day care, senior centers, home-delivered and congregate meals, special transportation, and telephone assurance. The Person File covers a broad range of personal background variables: age, sex, race, ethnicity, Hispanic ancestry, marital status, family relationships, educational status, employment status, occupation, industry, wages and salary, length of time at work, characteristics of the workplace, union membership, and military service. The Home Health Provider File contains data (as reported by the Household Survey respondents) on each provider of formal or informal services who came to the home of a person in the Household Survey sample within a month of the Round 1 interview. Information in the Home Health Provider File includes date of the provider's last visit, length of stay in the home, type of services rendered, provider's place of work, provider's medical specialty, if any, and whether or not the provider was a relative of the person receiving help.
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National Medical Expenditure Survey, 1987: Household Survey, Long-Term Care Supplement [Public Use Tape 10] (ICPSR 9675)

Released/updated on: 2006-01-18
Geographic coverage: United States
Time period: 1987-01-01--1988-12-31
The Long-Term Care (LTC) Supplement contains data on the functional status of persons responding to Rounds 1 and 4 of the Household Survey of the 1987 National Medical Expenditure Survey (NMES). The series of questions on functional status includes items on Activities of Daily Living (ADL) and instrumental ADL (IADL), continence, and use of special equipment. For those persons having at least one ADL or IADL difficulty, questions were asked about use of community services such as adult day care, senior centers, home-delivered and congregate meals, special transportation, and telephone assurance. Information was also sought on prior nursing home stays, and financial help from someone outside of the household. The Demographics and Sampling Weights file contains person-level data for individuals who responded for their entire period of NMES eligibility (Rounds 1, 2, 3, and 4). Each record contains person identifiers, selected characteristics including age, sex, race/ethnicity, and census region, dates of interview, a response-per-round indicator for the LTC Supplements, imputation flags for ADL/IADL, and sampling weight variables. The LTC Supplement population represented in File 2 is a subset of persons in File 1. File 2 is composed of separate records for LTC data collected during Round 1 (N=33,971) and during Round 4 (N=33,986).
Curated

Robert Wood Johnson Foundation Supportive Services Program in Senior Housing, Tenant Characteristics and Service Use, 1990-1991: [United States] (ICPSR 6013)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1990-05-01--1991-10-31
These data describe tenants of subsidized elderly housing who used services provided by the Robert Wood Johnson Foundation Supportive Services Program in Senior Housing (RWJF SSPSH), and document use of these services. Services provided by the RWJF SSPSH program included housekeeping, transportation, meals, running errands, assistance with forms, personal care, and home health care. Three types of data comprise this collection: (1) participant information taken at first service delivery (Part 1), (2) administrative logs describing services delivered to each client (Parts 2-7), and (3) information on each site participating in the program (Part 8). Information about the participants includes age, gender, living arrangements, monthly income, health status, ability to do light and heavy tasks, and ability to do personal tasks. Information on service delivery includes the type and amount of each service delivered, whether the tenant paid for the service, how the service was funded, and the quarter in which the service was delivered. Site information includes subsidy type, building start date, type of location (urban, suburban, or rural), and whether the site had a full- or part-time service coordinator.
Curated

Robert Wood Johnson Foundation Supportive Services for Older Persons Program, 1988-1991: [United States] (ICPSR 9946)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1988-01-01--1991-12-31
This data collection was undertaken to evaluate a Robert Wood Johnson Foundation-funded program that provided nontraditional health and health-related services to the elderly. These services included housekeeping, home maintenance/repair, yard work, snow removal, meal preparation/home-delivered meals, health insurance claims assistance, health education, private-duty nursing, and other caregiver services. The collection comprises data from four sources: (1) administrative data collected upon each client's entry into the program (Intake File, Part 1), (2) administrative data describing the services provided to each client (Service Encounter Files, Parts 2-6), (3) data from a survey of the clients of the program (Client Survey, Part 7), and (4) data from a survey of low-income clients of the program who received help from the state Administration on Aging (AOA) (AOA Client Survey, Part 8). The Intake File includes information on living arrangements, household income, date of birth, health status, activity limitations, and whether assistance with household and personal chores was provided by friends, relatives, or organizations. Service Encounter Files contain data on the cost and type of each service rendered by the program. The Client Survey and the AOA Client Survey assess the impact of the program on the quality of clients' lives. Clients were queried regarding their use of program services, the impacts of the services used, and their use of services from alternative suppliers.
Curated

National Senior Citizens Survey, 1968 (ICPSR 7626)

Released/updated on: 2005-11-04
Geographic coverage: United States
Time period: 1968-01-01--1968-12-31
This data collection contains the responses to a 1968 National Senior Citizens Survey of 3,996 noninstitutionalized persons 65 years of age and older in a national sample of the continental United States. The primary emphasis of the survey was to determine the impact of environmental attributes on some aspects of aging, primarily life satisfaction, social relationships, and knowledge and use of services. Also of interest were the interrelationships among environment, social relationships, and morale. Administered with personal interviews, the survey focused on characteristics of the respondent's residential environment (e.g., physical characteristics of home and neighborhood, value of property, and work/retirement status), social relationships (e.g., organization memberships, family relationships, and number of activities involved in), morale (e.g., self-concept, stated happiest time of life, attitudes about the state of the world), and health (e.g., number of doctor visits in past year, number of times health status interfered with activities, and self rating of physical health). General demographic characteristics are also included.
Curated

National Health Interview Survey On Disability, 1995: Phase II, Child Followback (ICPSR 2577)

Released/updated on: 1999-04-30
Geographic coverage: United States
Time period: 1995-01-01--1995-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1995 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1995 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Child Followback file includes questions on services needed by the child, the impact of the child's disability on the family, child care, and emotional and psychological adjustment. This file can be linked to the 1995 NHIS core data (ICPSR 2533). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1995: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1995: ACCESS TO CARE SUPPLEMENT (ICPSR 2525), and NATIONAL HEALTH INTERVIEW SURVEY, 1995: HEALTH INSURANCE SUPPLEMENT (ICPSR 2530).
Curated

National Health Interview Survey on Disability, 1995: Phase II, Adult Followback (ICPSR 2578)

Released/updated on: 1999-04-26
Geographic coverage: United States
Time period: 1995-01-01--1995-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1995 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1995 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Adult Followback file includes questions on housing and long-term care services, transportation, social activity, work history/employment, vocational rehabilitation, assistive devices and technologies, health insurance, assistance with key activities, self-direction, family structure, relationships, living arrangements, conditions and impairments, health opinions and behaviors, community services, and proxy status. This file can be linked to the 1995 NHIS core data (ICPSR 2533). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1995: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1995: ACCESS TO CARE SUPPLEMENT (ICPSR 2525), and NATIONAL HEALTH INTERVIEW SURVEY, 1995: HEALTH INSURANCE SUPPLEMENT (ICPSR 2530).
Curated

National Health Interview Survey on Disability, 1994: Phase II, Child Followback (ICPSR 2567)

Released/updated on: 1998-12-10
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance between medical, administrative, and social issues involved in disability measurement. The 1994 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1994 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Child Followback file includes questions on services needed by the child, the impact of the child's disability on the family, child care, and emotional and psychological adjustment. This file can be linked to the 1994 NHIS core data (ICPSR 6724). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1994: ACCESS TO CARE SUPPLEMENT (ICPSR 6874), and NATIONAL HEALTH INTERVIEW SURVEY, 1994: HEALTH INSURANCE SUPPLEMENT (ICPSR 6873).
Curated

National Health Interview Survey on Disability, 1994: Phase II, Adult Followback (ICPSR 2568)

Released/updated on: 1998-12-07
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The National Health Interview Survey on Disability (NHIS-D), first administered in 1994, was designed to collect data that can be used to understand disability and develop public policy. Another goal of this survey was to find a balance among medical, administrative, and social issues involved in disability measurement. The 1994 NHIS-D was conducted in two phases. Phase I was administered at the same time as the 1994 NHIS core. The Phase I Disability questionnaire elicited information on disability and was used as a screening device for Phase II. Phase II has two parts, a Child file and an Adult file. The Adult Followback file includes questions on housing and long-term care services, transportation, social activity, work history/employment, vocational rehabilitation, assistive devices and technologies, health insurance, assistance with key activities, other services, self-direction, family structure, relationships, living arrangements, conditions and impairments, health opinions and behaviors, community services, and proxy status. This file can be linked to the 1994 NHIS core data (ICPSR 6724). In addition, it can be linked to NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, PERSON AND CONDITION DATA (ICPSR 2562), NATIONAL HEALTH INTERVIEW SURVEY, 1994: ACCESS TO CARE SUPPLEMENT (ICPSR 6874), and NATIONAL HEALTH INTERVIEW SURVEY, 1994: HEALTH INSURANCE SUPPLEMENT (ICPSR 6873).
Curated

National Survey of the Aged, 1975 (ICPSR 7945)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1975-01-01--1975-12-31
This survey was conducted during the spring and summer of 1975 under a grant from the Administration on Aging and with supplemental funding from the Social Security Administration. It surveyed noninstitutionalized Americans aged 65 and older with a special focus on developing national estimates of the economic needs and social concerns of the elderly. The survey attempted to describe the aged population and to indicate the degree of health, financial independence, and familial support of 2,143 older Americans. Also studied were the work status of respondents, their past and present attitudes toward work, their desire for gainful employment, their income and assets, their evaluation of their own financial status, and their reported use of health and welfare services. The data collection comprises three files. Part 1 contains the general survey, Part 2 is a survey of proxy respondents, and Part 3 supplies information on persons who could not complete an interview.
Curated

Cost of Providing Transportation and In-home Services to the Elderly, 1982-1983 (ICPSR 8309)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1982-01-01--1983-12-31
This data collection contains the results of a survey conducted to examine the costs of providing (1) transportation and (2) in-home services to the elderly in the United States in 1982-1983. Both parts of the study examined the costs of administrative, professional, and clerical staff, including wages paid, number of full- and part-time staff, and fringe benefits, and office expenses, such as the cost of office machines, equipment, supplies, and furniture. Insurance and taxes paid were also investigated, as were accounting, advertising, and legal counsel costs. The transportation services section of the study classified agencies providing the services studied by type, e.g., private for-profit, private non-profit, public, and other. This portion of the study also determined vehicle descriptions, revenue by source, and hours that service was provided. The in-home services section of the study examined several types of services offered, e.g., nursing care, therapy, personal care, housekeeping, physician visits, nutrition and social service counseling, and companionship. This section also classified agencies providing services by type, e.g., government-based public health, government-based social services, private non-profit, and private for-profit.
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