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Health and Relationships Project, United States, 2014-2025 (ICPSR 37404)

Released/updated on: 2026-06-23
Geographic coverage: United States
Time period: 2014-10-01--2015-09-30, 2021-07-01--2023-01-31, 2024-09-01--2025-03-31

The Health and Relationship Project is a longitudinal study of both spouses in same-sex and different-sex marriages who were legally married and aged 35 to 65 at Time 1 of data collection (2014-2015). Time 2 data were collected in 2021-2022 and Time 3 data were collected in 2024-2025.

At each time, both spouses completed a baseline questionnaire and a daily diary questionnaire (which was completed for 10 consecutive days); both components were completed online and spouses were asked to complete the surveys separately. The baseline questionnaire asks participants about a number of topics related to marriage and health, including stress, health status and health behaviors, relationship quality, and how they have approached health problems in the past. The diary questionnaire asks participants a number of questions about the past 24 hours, including daily stress experiences, social interactions, and health behaviors.

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Stress in America, United States, 2007-2024 (ICPSR 37288)

Released/updated on: 2026-06-16
Geographic coverage: United States
Time period: 2007-01-01--2018-12-31, 2007-01-01--2007-12-31, 2008-01-01--2008-12-31, 2009-01-01--2009-12-31, 2010-01-01--2010-12-31, 2011-01-01--2011-12-31, 2012-01-01--2012-12-31, 2013-01-01--2013-12-31, 2014-01-01--2014-12-31, 2015-01-01--2015-12-31, 2016-01-01--2016-12-31, 2016-01-01--2016-12-31, 2017-01-01--2017-12-31, 2018-01-01--2018-12-31, 2019-01-01--2024-12-31, 2019-01-01--2019-12-31, 2020-01-01--2020-12-31, 2020-01-01--2020-12-31, 2020-01-01--2020-12-31, 2020-01-01--2020-12-31, 2021-01-01--2021-12-31, 2021-01-01--2021-12-31, 2022-01-01--2022-12-31, 2022-01-01--2022-12-31, 2023-01-01--2023-12-31, 2024-01-01--2024-12-31

Since 2007, the American Psychological Association (APA) has commissioned an annual nationwide survey as part of its Mind/Body Health campaign to examine the state of stress across the country and understand its impact. The Stress in America survey measures attitudes and perceptions of stress among the general public and identifies leading sources of stress, common behaviors used to manage stress and the impact of stress on our lives. The results of the survey draw attention to the serious physical and emotional implications of stress and the inextricable link between the mind and body.

From 2007 to 2024, the research has documented this connection among the general public as well as various sub-segments of the public. Each year, the Stress in America surveys aims to uncover different aspects of the stress/health connection via focusing on a particular topic and/or subgroup of the population. Below is a list of the focus of each of the Stress in America surveys.

  • 2007-2018 Cumulative Dataset
  • 2007 General Population
  • 2008 Gender and Stress
  • 2009 Parent Perceptions of Children's Stress
  • 2010 Health Impact of Stress on Children and Families
  • 2011 Our Health Risk
  • 2012 Missing the Health Care Connection
  • 2013 Are Teens Adopting Adults' Stress Habits
  • 2014 Paying With Our Health
  • 2015 The Impact of Discrimination
  • 2016 Coping with Change, Part 1
  • 2016 Coping with Change, Part 2: Technology and Social Media
  • 2017 The State of Our Nation
  • 2018 Stress and Generation Z
  • 2019-2024 Cumulative Dataset
  • 2019 Stress and Current Events
  • 2020 COVID Tracker Wave 1
  • 2020 COVID Tracker Wave 2
  • 2020 COVID Tracker Wave 3
  • 2020 A National Mental Health Crisis
  • 2021 Pandemic Anniversary Survey
  • 2021 Stress and Decision-Making During the Pandemic
  • 2022 Pandemic Anniversary Survey
  • 2022 Concerned for the Future, Beset by Inflation
  • 2023 A Nation Recovering From Collective Trauma
  • 2024 A Nation in Political Turmoil
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Toledo Adolescent Relationships Study (TARS): Wave 7, RAPID: The Coronavirus Pandemic: Predictors and Consequences of Compliance with Social Distancing Recommendations, United States, 2020 (ICPSR 38815)

Released/updated on: 2026-05-05
Geographic coverage: United States, Ohio, Toledo
Time period: 2020-06-05--2020-11-06

This study builds on a 20-year longitudinal investigation of the lives and relationship experiences of a large, diverse sample of young adult women and men interviewed first as adolescents. It focuses on the phenomenon of social distancing.

The COVID-19 survey (online) module and in-depth (phone) interviews with subsamples of compliant and less than compliant respondents has three specific aims: a) identify life course experiences and social influences associated with variability in compliance with social distancing recommendations, b) examine relationship-based dynamics and other contingencies (e.g., economic) linked to compliance decision-making, and particularly factors associated with 'derailments' after initially intending to comply with these guidelines, and c) assess consequences of social distancing for emotional and behavioral health and relationship functioning (e.g., depression, substance use, intimate partner conflict).

The Toledo Adolescent Relationships Study (TARS) includes six prior waves of data that were collected in 2001, 2002, 2004, 2006, 2011, and 2018 through 2020. Please see the ICPSR Series page for available studies.

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National Research Mentoring Network Studies, Phase II: Multi-Study Common Measures Data, United States, 2019-2024 (ICPSR 39676)

Released/updated on: 2026-03-10
Geographic coverage: United States
Time period: 2019-10-01--2024-12-31

The National Research Mentoring Network (NRMN), an initiative supported by the National Institutes of Health (NIH) Common Fund, was established to support the career development of individuals from diverse backgrounds in biomedical research, with a focus on mentorship and professional development. In its first phase (2014-2019), the NRMN built a network of mentors and mentees from a variety of disciplines, with over 10,000 individuals including more than 7,000 mentors and mentees engaged in research mentorship training or grantsmanship coaching. Phase II (launched in 2019) built on this foundation and focused on investigating longer-term outcomes and studying mentorship interventions. This phase reimagined the NRMN as a consortium consisting of one coordination center (the NRMN Coordination Center), a resource center (the NRMN Resource Center) and 11 independent research studies that focused on mentorship, career development, and professional networking. These studies shared a common goal of exploring how specific mentorship practices influence career outcomes for diverse groups in biomedical research.

The multi-study common measures dataset of NRMN contains data collected using common measures across 10 of the 11 independent research studies conducted under NRMN Phase II (2019-2024). Each study implemented mentorship and career development interventions specific to individuals from diverse backgrounds, career stages, and fields in biomedical research. While study designs and populations varied, all agreed to collect data using a set of community-identified common measures. The common measures dataset was compiled using codebooks and documentation provided by study teams. Where full survey instruments were unavailable, variables were mapped from available materials and cross-checked for consistency. This dataset supports research on mentorship, professional development, and career outcomes in biomedical research.

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Improving Self-Care of Informal Caregivers of Adults with Heart Failure, United States, 2019-2024 (ICPSR 39524)

Released/updated on: 2026-01-20
Geographic coverage: United States
Time period: 2019-01-01--2024-12-31

This randomized controlled trial tested the efficacy of a virtual support health coaching intervention compared to a health information control group in improving self-care, decreasing stress, and improving coping and health status of informal caregivers of adults with heart failure. A secondary aim was to estimate intervention cost and cost-effectiveness. An exploratory aim was to explore the effect of caregiver outcomes on patient outcomes.

Self-published

Association between ambulance clinicians’ well-being and occupational and patient safety in prehospital emergency care in Finland and Sweden: a cross-sectional study (ICPSR 241500)

Released/updated on: 2025-12-21
Geographic coverage: Sweden, Finland
The aim this study was to describe and compare how ambulance clinicians’ reduced well-being is linked to the nature and characteristics of the occupational, patient, and combined safety incidents in Finnish and Swedish prehospital emergency care. A cross-sectional design was employed, data were collected through a questionnaire. Finnish (n=84) and Swedish (n=68) ambulance clinicians reported one safety incident in occupational and/or patient safety, and evaluated reduced well-being one month before the incident. Validated instruments (n=6) were used for a self-evaluation of the well-being challenges. Data were analyzed statistically with SPSS ®. Stress was the most common well-being challenge, experienced by 44% of ACs one month before the safety incident. Well-being challenges were distributed equally, excluding fatigue, which was more common among Finnish (29%) than Swedish ACs (9%) (p=0.004). Reduced well-being was most often linked to occupational safety (57%). Patient safety and combined incidents had a minor role. Most of the safety incidents (70%) were evaluated as moderate or high severity. Overall, acontribution to well-being was considered low. Ambulance Clinicians have different kinds of and multiple well-being challenges that can contribute to occupational and patient safety incidents in prehospital emergency care in Finland and Sweden. Organizational prevention and support are needed.
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Effects of Mindfulness-Based Stress Reduction in Correctional Officers: A Biopsychosocial Approach, Kentucky, 2018-2020 (ICPSR 39132)

Released/updated on: 2025-12-02
Geographic coverage: Kentucky
Time period: 2018-01-01--2020-12-31
The goal of the study was to explore whether a mindfulness-based stress reduction program (MBSR) was effective in reducing multiple measures of stress including biological, psychological, and sociological measures. This study includes correctional officers from 7 adult correctional institutions in Kentucky. All data were collected in person between 2018 and 2020. Data includes measures of biological stress, psychological measures such as perceived stress, mental health measures such as PHQ-9 and PCL-5, job outcomes including Maslach's job burnout, and stressors including violent and traumatic events experienced while on the job.
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Providing Support During the COVID-19 Pandemic for Surveys to Track Mindsets and Their Impact in the Crisis, United States, 2020 (ICPSR 39315)

Released/updated on: 2025-10-07
Geographic coverage: Puerto Rico, United States
The aim of this study was to capture the longitudinal/cultural patterning and causal effects of four core mindsets that were expected to shape social, psychological, and physiological outcomes during the COVID-19 pandemic: a) mindsets about the capability of the body to fight off or recover from COVID-19 (Is my body capable or incapable of handling a disease like COVID-19?); b) mindsets about the social impact of individual health (How do my actions influence the health of others? Will improvements/declines in my personal health affect my family, my neighborhood, my country, the world?); c) mindsets about the nature of the COVID-19 pandemic (Is the pandemic a catastrophe, manageable, or an opportunity?); and d) mindsets about the nature of stress (Is stress enhancing or debilitating?). The research team aimed to explore these topics by (a) conducting a series of surveys to track mindsets and their causes and consequences for health as they change over time, (b) designing and disseminating interventions to shape more adaptive mindsets; and (c) collecting physiological measures of stress and immune functioning, a key mechanism linking mindsets with physical, mental, and social health.
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Army Study to Assess Risk and Resilience in Servicemembers (STARRS) (ICPSR 35197)

Released/updated on: 2025-10-01
Geographic coverage: United States
Time period: 2011-01-01--2024-12-31

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April 29, 2025: STARRS - Longitudinal Study Wave 4 (LSW4) data released

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The Army Study to Assess Risk and Resilience in Servicemembers (STARRS) is an extensive study of mental health risk and resilience among military personnel. Army STARRS consists of eight separate but integrated epidemiologic and neurobiologic studies. Survey data for three of the Army STARRS study components are available via Secure Dissemination or via the ICPSR Virtual Data Enclave: New Soldier Study (NSS); All Army Study (AAS) and Pre-Post Deployment Study (PPDS). Also available are data for the STARRS-Longitudinal Study (STARRS-LS), which are follow-up surveys conducted with Army STARRS participants from AAS, NSS and PPDS studies. Lastly, baseline administrative data from the Army/Department of Defense (DoD) and blood sample flags for Soldiers who had blood drawn as a part of their participation in NSS or PPDS are available.

The AAS component of Army STARRS assesses soldiers' psychological and physical health, events encountered during training, combat, and non-combat operations, and life and work experiences across all phases of Army service. The AAS data includes data on soldiers' psychological resilience, mental health, and risk for self-harm.

The NSS data are drawn from new soldiers who have just entered the Army. The data contain information on soldier health, personal characteristics, and prior experiences. Results from a series of neurocognitive tests are also included in the NSS data.

The PPDS data are drawn from active duty soldiers who were interviewed at four points in time: 3-4 months prior to deployment to Afghanistan; within 1-2 weeks after return from deployment; 1-3 months after return from deployment; and 9-12 months after return from deployment. The PPDS data contain information on soldiers' psychological resilience, mental health, deployment experiences, and risk for self-harm.

The STARRS-LS data are from multiple follow-up interviews with individuals who previously participated in the AAS, NSS and PPDS study components of Army STARRS. STARRS-LS data contain follow-up information on soldiers' and veterans' physical and mental health, resilience and risk for self-harm, military and employment status, deployment experience, and personal characteristics as they move through their Army careers and after they leave the Army.

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Vietnam Era Twin Study of Aging (VETSA), United States, 2002-2019 (ICPSR 38836)

Released/updated on: 2025-09-25
Geographic coverage: United States
Time period: 2002-01-01--2019-12-31

The Vietnam Era Twin Study of Aging (VETSA) projects began in 2002 with the goal of understanding risk and protective factors, including genetics, for cognitive and brain aging starting in midlife. This NIH funded longitudinal study has completed three waves of data collection (2002-2008; 2008-2014, 2015-2020) following the same group of non-patient, community dwelling male veteran twins from when they were average age 56 to average age 68. A fourth wave of data collection began in October 2021. Although the men are American veterans, this is not a VA sample. This is a nation-wide sample with participants flown into sister data collection sites at either University of California San Diego or Boston University.

The VETSA study encompasses multiple linked grants and data collections with two studies funded continuously since 2002--The VETSA Longitudinal Twin Study of Cognition and Aging and The VETSA Longitudinal MRI Twin Study of Aging. Because of the broad interests of the investigators, while study data focus most heavily on in-person cognitive testing, a wide array of psychosocial, demographic, medical history, physical functioning, and personality measures were also collected. While some measures were only collected at baseline, the majority are repeated at every data collection.

At each wave of data collection, participants completed a lengthy psychosocial questionnaire at home then came to the testing site for a full day (~8 hrs) of in-person testing. Participants were housed for either 2 nights if only part of VETSA aging or 3 nights if they qualified for the MRI data collection.

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Study of Women's Health Across the Nation (SWAN), 2001-2003: Visit 05 Dataset (ICPSR 30501)

Released/updated on: 2025-08-05
Geographic coverage: Inkster, Hackensack, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2001-03-01--2003-02-15
The Study of Women's Health Across the Nation (SWAN), is a multisite longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological, and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers, and women learn how mid-life experiences affect health and quality of life during aging. The data include questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2001 and 2003, 2,617 of the 3,302 women that joined SWAN were seen for their fifth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis, and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Adverse Effects of Corrections Work and a Total Worker Health Program to Enhance Well-Being, Oregon, 2021-2023 (ICPSR 39289)

Released/updated on: 2025-07-28
Geographic coverage: Oregon, United States
Time period: 2021-01-01--2023-12-31
This study sought to understand whether programs that promote mindfulness combined with more typical health and safety components can uniquely benefit corrections professionals. The data includes variables related to demographics, work history, mindfulness, mood states, perceived stress, health behaviors, work-life balance, and other occupational factors such as perceptions of the workplace.
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Study of Women's Health Across the Nation (SWAN), 2003-2005: Visit 07 Dataset (ICPSR 31901)

Released/updated on: 2025-07-10
Geographic coverage: Inkster, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2003-05-15--2005-01-31
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2003 and 2005, 2,327 of the 3,302 women that joined SWAN were seen for their seventh follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Though the New Jersey site was still part of the study, data was not collected from this site for the seventh visit. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Study of Women's Health Across the Nation (SWAN), 2002-2004: Visit 06 Dataset (ICPSR 31181)

Released/updated on: 2025-06-30
Geographic coverage: Inkster, Hackensack, Contra Costa County, Alameda County, United States, Chicago, Ypsilanti, California, New Jersey, Michigan, Pennsylvania, Illinois, Massachusetts, Los Angeles, Boston, Pittsburgh
Time period: 2002-03-15--2004-02-15
The Study of Women's Health Across the Nation (SWAN), is a multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. The study examines the physical, biological, psychological and social changes during this transitional period. The goal of SWAN's research is to help scientists, health care providers and women learn how mid-life experiences affect health and quality of life during aging. Data were collected about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. The study began in 1994. Between 2002 and 2004, 2,448 of the 3,302 women that joined SWAN were seen for their sixth follow-up visit. The research centers are located in the following communities: Ypsilanti and Inkster, MI (University of Michigan); Boston, MA (Massachusetts General Hospital); Chicago, IL (Rush Presbyterian-St. Luke's Medical Center); Alameda and Contra Costa County, CA (University of California-Davis and Kaiser Permanente); Los Angeles, CA (University of California-Los Angeles); Hackensack, NJ (Hackensack University Medical Center); and Pittsburgh, PA (University of Pittsburgh). SWAN participants represent five racial/ethnic groups and a variety of backgrounds and cultures. Demographic and background information includes age, language of interview, marital status, household composition, and employment.
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Baby's First Years (BFY), New York City, New Orleans, Omaha, and Twin Cities, 2018-2023 (ICPSR 37871)

Released/updated on: 2025-01-30
Geographic coverage: New York City, Omaha, Minneapolis, United States, St. Paul, Louisiana, New Orleans, Minnesota, New York (state), Nebraska
Time period: 2018-05-01--2019-06-30, 2019-07-01--2020-06-30, 2020-07-01--2021-06-30, 2021-07-01--2022-06-30, 2022-07-01--2023-08-16

The overall goal of the Baby's First Years study is to assess the causal role played by household income in affecting children's early cognitive, socio-emotional, and brain development. Recent advances in developmental neuroscience suggest that experiences early in life have profound and enduring impacts on the developing brain. Family economic resources shape the nature of many of these experiences, yet the extent to which they affect children's development is unknown. The Baby's First Years project is the first randomized controlled trial to provide estimates of the causal impacts of unconditional cash gifts on the cognitive, socio-emotional, and brain development of infants and young children in low-income U.S. families.

Specifically, 1,000 recruited mothers of infants with incomes below the federal poverty line from four diverse U.S. communities are receiving monthly cash gift payments by debit card. Mothers were initially told the gifts would last for the first 40 months of their child's life, but we have secured funding to continue the payments for three additional years (i.e., for a total of 76 months). Parents in the high cash gift group (n=400 in the study sample) are receiving a cash gift of $333 per month ($4,000 per year), while parents in the low cash gift group (n=600) are receiving a nominal monthly gift payment of $20 ($240 per year), also for 76 months.

In order to measure the impacts of the unconditional cash gift income on children's cognitive and behavioral development, we are assessing high and low cash gift group differences at ages 4, 6, and 8 (and, for a subset of measures, we capture interim development at ages 1, 2, and 3) in measures of cognitive, language, memory, self-regulation, and socio-emotional development. In order to understand the processes by which child impacts emerge, we are measuring a host of family process measures summarized in our pre-registration chart. Our data collection points are referred to as: "baseline", "age 1", "age 2," "age 3", "age 4", "age 6", and "age 8".

Additional information on the project, survey design, sample, variables, and COVID-19 pandemic adjustments are available from:

  • The User Guides for Baseline, Age 1, Age 2, Age 3, and Age 4, which are included under the "Data and Documentation" tab
  • The project's website: babysfirstyears.com

The researchers request that all peer-reviewed papers using BFY Data:

  • be submitted to PubMed https://publicaccess.nih.gov immediately upon acceptance for publication
  • include the following citation to the data in their bibliography:

Citation

Magnuson, Katherine A., Kimberly Noble, Greg J. Duncan, Nathan A. Fox, Lisa A. Gennetian, Hirokazu Yoshikawa, and Sarah Halpern-Meekin. Baby's First Years (BFY), New York City, New Orleans, Omaha, and Twin Cities, 2018-2023. ICPSR37871-v8. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], YYYY-MM-DD. http://doi.org/10.3886/ICPSR37871.v8

  • and include the following in their acknowledgements:

Acknowledgement

This research uses data from the Baby's First Years study. Research reported in this publication was supported by the Eunice Kennedy Shriver National Institute of Child Health and Human Development of the National Institutes of Health under Award Number R01HD087384 and 2R01HD087384. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. This research was additionally supported by the US Department of Health and Human Services, Administration for Children and Families, Office of Planning, Research and Evaluation; Office of Behavioral and Social Sciences Research-Office of the Director, National Institutes of Health; Andrew and Julie Klingenstein Family Fund; Annie E. Casey Foundation; Arnold Ventures; Arrow Impact; BCBS of Louisiana Foundation; Bezos Family Foundation, Bill and Melinda Gates Foundation; Bill Hammack and Janice Parmelee, Brady Education Fund; Chan Zuckerberg Initiative (Silicon Valley Community Foundation); Charles and Lynn Schusterman Family Philanthropies; Child Welfare Fund; Esther A. and Joseph Klingenstein Fund; Ford Foundation; Greater New Orleans Foundation; Heising-Simons Foundation; Holland Foundation; Jacobs Foundation; JPB Foundation; J-PAL North America; Lozier Foundation; New York City Mayor's Office for Economic Opportunity; Perigee Fund; Robin Hood Foundation; Robert Wood Johnson Foundation; Russell Sage Foundation; Sherwood Foundation; Valhalla Foundation; Weitz Family Foundation; W.K. Kellogg Foundation; and three anonymous donors.

Principal Investigators

Katherine Magnuson, PhD; University of Wisconsin-Madison, lead PI social and behavioral science

Kimberly Noble, MD, PhD; Teachers College, Columbia University, lead PI neuroscience

In alphabetical order:

Greg Duncan, PhD; University of California, Irvine

Nathan A. Fox, PhD; University of Maryland

Lisa A. Gennetian, PhD; Duke University Sanford School of Public Policy

Hirokazu Yoshikawa, PhD; New York University

Principal Investigators of Qualitative Substudy

Sarah Halpern-Meekin, PhD; University of Wisconsin-Madison

Katherine Magnuson, PhD; University of Wisconsin-Madison

Study Management

Lauren Meyer, Teachers College, Columbia University; National Project Director

Andrea Karsh, University of California, Irvine; Administrative Director

Matthew Maury, Duke University, Production and Retention Management

Study Co-Investigators

Sarah Black, PhD; University of New Orleans

William Fifer, PhD; Sackler Institute for Developmental Psychobiology, Columbia University Medical Center

Michael Georgieff, MD; University of Minnesota

Joseph Isler, PhD; Columbia University Medical Center

Debra Karhson, PhD; University of New Orleans

Alicia Kunin-Batson, PhD, University of Minnesota

Connie Lamm, PhD; University of Arkansas

Dennis Molfese, PhD; University of Nebraska, Lincoln

Victoria Molfese, PhD; University of Nebraska, Lincoln

Jennifer Mize Nelson, PhD; University of Nebraska, Lincoln

Timothy Nelson, PhD; University of Nebraska, Lincoln

Sonya Troller-Renfree, PhD; Teachers College, Columbia University

Study Data Collectors

The Survey Research Center, Institute for Social Research, University of Michigan, Ann Arbor, is responsible for recruitment and baseline, age-1, age-2, and age-3 data collection waves. Starting at age-4 through age-8, SRC is responsible for tracking families and assisting site-based staff in locating families. SRC data collection operations are overseen by: Stephanie Chardoul, Director of Survey Research Operations and Piotr Dworak, Senior Survey Specialist, Survey Research Operations.

Contact

To contact the study investigators, email them at [email protected]

Website: babysfirstyears.com

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Americans' Changing Lives: Waves I, II, III, IV, V, and VI, 1986, 1989, 1994, 2002, 2011, and 2021 (ICPSR 4690)

Released/updated on: 2024-12-12
Geographic coverage: United States
Time period: 1986-01-01--2021-12-31

The Americans' Changing Lives (ACL) survey series is an ongoing, nationally representative, longitudinal study focusing especially on differences between Black and White Americans in middle and late life. These data constitute the first, second, third, fourth, fifth, and sixth waves in a panel survey covering a wide range of sociological, psychological, mental, and physical health items. Wave I of the study began in 1986 with a nation face-to-face survey of 3,617 adults ages 25 and up, with Black Americans and people aged 60 and over over-sampled at twice the rate of the others. Wave II constitutes face-to-face re-interviews in 1989 of those still alive. Survivors have been re-interviewed by telephone, and when necessary face-to-face, in 1994 (Wave III), 2001/02 (Wave IV), 2011 (Wave V), and 2019/21 (Wave VI).

Please note that for Wave VI, the majority of data collection occurred in 2019, with only a small subset (n=39) of participants surveyed in 2021.

ACL was designed and sought to investigate the following: (1) The ways in which a wide range of activities and social relationships that people engage in are broadly "productive," (2) how individuals adapt to acute life events and chronic stresses that threaten the maintenance of health, effective functioning, and productive activity, and (3) sociocultural variations in the nature, meaning, determinants, and consequences of productive activity and relationships. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning.

Demographic information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.

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Examining the Role of Physiological and Psychological Responses to Critical Incidents in Prisons in the Development of Mental Health Problems among Correctional Officers, Minnesota, 2018-2020 (ICPSR 38803)

Released/updated on: 2024-12-10
Geographic coverage: United States, Minnesota
Time period: 2018-01-01--2020-12-31

This study sought to better understand the long-term implications of critical incident exposure on mental health outcomes among correctional officers. To accomplish this objective, the research team compiled a longitudinal dataset comprised of three types of assessments. First, to assess mental health outcomes as well as subjective appraisals of psychological stress, the researchers surveyed correctional officers at three waves of data collection, spaced approximately six months apart. These surveys included questions related to demographics, work assignments, perceptions of workplace danger, work-family conflict, social support, and work-related psychological stress. In addition, the wave 1 and wave 3 surveys included items from psychometrically validated measures of mental health problems--posttraumatic stress disorder (PTSD), depression, and anxiety. Second, to assess changes in physiological stress over the study period, the research team collected salivary biomarkers Cortisol and Alpha-Amylase during each wave of data collection. Third, the researchers compiled objective indicators of critical incident exposure (e.g. disciplinary data and detailed incident reports) rather than relying on subjective assessments. The compiled dataset allowed for not only the direct association between critical incident exposure and mental health problems, but also indirect pathways that included psychological stress and physiological stress. The resulting dataset consists of 488 officers employed at three correctional institutions across Minnesota.

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National Survey of Health Attitudes, [United States], 2023 (ICPSR 39205)

Released/updated on: 2024-12-05
Geographic coverage: United States
Time period: 2023-11-27--2023-12-19

Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.

The National Survey of Health Attitudes (NSHA) is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.

This study includes the results from the 2023 RWJF National Survey of Health Attitudes. The 2023 survey is the third wave of the NSHA. The first wave was conducted in 2015 (ICPSR 37405) and the second wave in 2018 (ICPSR 37633). The 2023 report complements the overview of the 2015 survey described in the RAND report Development of the Robert Wood Johnson Foundation National Survey of Health Attitudes (Carman et al., 2016), and its subsequent topline 2018 Survey of National Health Attitudes: Description and Top-Line Summary (Carman et al., 2019) and is organized similarly for consistency. A companion set of longitudinal surveys during the COVID-19 pandemic was fielded between 2020 and 2021 and is further described in four top-line reports, COVID-19 and the Experiences of Populations at Greater Risk (Carman et al., 2020-2021).

The questions in the 2023 survey uniquely capture aspects of American mindset about health, health equity, structural racism, and wellbeing in ways that are not present in other surveys. This version of the NSHA can be viewed in three main sections: (1) individual health experiences, perspectives, and knowledge (making health a shared value); (2) health equity perspectives; and (3) community wellbeing, including climate views and barriers to community engagement. Insights from the surveys referenced above, including this one, have established a baseline and set of cross-sectional pulse checks on where the American public is regarding their recognition of social determinants of health, their understanding of health inequities including structural racism, their willingness to address those inequities and their indication of who in society should be responsible for solving health inequities.

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HERO Registry: Creating and Using a Community Registry to Understand the Experiences of Healthcare Workers and Their Communities during COVID-19, United States, 2020-2022 (ICPSR 39153)

Released/updated on: 2024-12-03
Geographic coverage: United States
Time period: 2020-01-01--2022-12-31

To study the impact of COVID-19 pandemic on frontline healthcare workers in the United States over time, the Healthcare Worker Exposure Response and Outcomes (HERO) Registry was created in 2020 to form a virtual research community of healthcare workers (and later, their family members and community members). The registry was intended for healthcare workers interested in completing research studies related to the COVID-19 pandemic and its impacts on their lives. Observational data were collected at various timepoints between April 2020 and September 2022 via web-based questionnaires available on the HERO Registry online portal.

This collection contains 39 sets of data from over 50,000 HERO Registry members. Datasets represent separate surveys with distinct survey designs and sampling criteria. Surveys focused on health history, workplace experiences, COVID-19 exposure, social support, mental health, and the respondents' willingness to remain in or leave the healthcare field. Datasets 24 through 39 represent "hot topics" such as vaccines, vaccine willingness and uptake, childcare and school arrangements, and staffing shortages. Datasets for registry administration, respondent demographics, and survey eligibility criteria are also included.

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Oregon Youth Study Wave 29, 2011-2013 (ICPSR 38454)

Released/updated on: 2024-12-02
Geographic coverage: Oregon, United States
Time period: 2011-01-01--2013-12-31
The original Oregon Youth Study began 1983. The goal was to examine the etiology of antisocial behaviors in boys, with a view to designing preventive interventions within the context of the family and the school. This longitudinal study has expanded over the past few decades into an intergenerational study, retaining the original young men and including their partners and children. Wave 29 of the Oregon Youth Study targets males aged 37-38.
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Oregon Youth Study Wave 27, 2010-2011 (ICPSR 38453)

Released/updated on: 2024-11-26
Geographic coverage: Oregon, United States
Time period: 2010-01-01--2011-12-31
The original Oregon Youth Study began 1983. The goal was to examine the etiology of antisocial behaviors in boys, with a view to designing preventive interventions within the context of the family and the school. This longitudinal study has expanded over the past few decades into an intergenerational study, retaining the original young men and including their partners and children. Wave 27 of the Oregon Youth Study targets males aged 36-37.
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Intern Health Study (ICPSR 129225)

Released/updated on: 2024-10-23
Geographic coverage: United States
Time period: 2007-04-01--2024-07-01
The Intern Health Study is an NIH-funded longitudinal cohort study that assesses stress and mood in medical interns at institutions around the US, enrolling 1500 to 3000 new interns each year. We are hopeful that data collected in this study will further understanding of the psychological, genetic, and program factors involved in the development of depression under stress, and make a real change in the residency experience.
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Medical Student Stress Management Behaviors (ICPSR 208892)

Released/updated on: 2024-09-04
Geographic coverage: Southern California, United States, United States
Data examining the various stress management methods employed by preclinical medical students (first and second-year students) at a single institution in Southern California.
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Combined Generations Wave 1 and TransPop surveys, United States, 2016-2018 (ICPSR 38421)

Released/updated on: 2024-08-29
Geographic coverage: United States
Time period: 2016-01-01--2018-12-31

This collection includes a combined dataset of the Generations study wave 1 (baseline) survey and the TransPop study transgender survey. The two studies have many overlapping variables, and they examined topics such as respondents' health outcomes and behaviors, experiences with discrimination, identity, and transition-related experiences. Data from these studies were merged to allow for analysis of the combined LGBT populations. This dataset has also been reweighted to be representative of these populations.

The complete Generations study data (baseline, wave 2, and wave 3 survey data) can be found under study number 37166, and the complete TransPop study data (transgender and cisgender survey data) can be found under study number 37938. For detailed information on the Generations and TransPop studies, including related publications, please refer to their respective DSDR/ICPSR study pages.

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Adolescent Health and Development in Context (AHDC) Study, Franklin County, Ohio, Wave 1, 2014-2016 (ICPSR 39045)

Released/updated on: 2024-07-23
Geographic coverage: United States, Columbus (Ohio), Ohio
Time period: 2014-01-01--2016-12-31
The overarching objective of the Adolescent Health and Development in Context (AHDC) Project is to collect multilevel, multi-contextual data on a large sample of 1,405 youth ages 11 to 17 years in Franklin County, Ohio. The study emphasizes the interplay of social, psychological, and biological processes in shaping youth developmental outcomes such as risk behavior and victimization, mental and physical health, and educational outcomes. The study employs a prospective cohort design in which the data on youth and caregivers were collected at two time-points, approximately one year apart. The Wave 1 field period began in spring 2014 and was completed in summer 2016. Wave 2 was conducted between January and December 2016. Within each wave, participant data were collected over a weeklong period. An Entrance Survey with both a focal youth and his or her caregiver was followed by a seven-day smartphone-based Global Positioning System (GPS) tracking and EMA data collection period (EMA Week), and a final Exit Survey at the end of the week.
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Defining Impact of Stress and Traumatic Events on Corrections Officers, Oregon, 2018-2020 (ICPSR 38442)

Released/updated on: 2024-06-13
Geographic coverage: Oregon, United States, Portland (Oregon)
Time period: 2018-01-01--2020-12-31

Correctional officers (CO's) have high stress levels affecting their well-being and work performance. The longer-term adverse consequences of stress have been well documented. However, the immediate impacts of stress on CO's neurocognitive function have not been assessed (or among other law enforcement groups). Functional magnetic resonance imaging (fMRI) can measure ability to attend to relevant information when making decisions, especially when the context is emotionally charged. This study will use technology to understand the impact of CO's stress on their neurocognitive and physiological function.

The study builds on research from the National Institute for Occupational Safety and Health (NIOSH)-funded Oregon Healthy Workforce Center that established an index of chronic stress among more than 1330 Oregon CO's. Researchers will perform a prospective 18-month observational study among CO's from two facilities (n=400) to relate their stress levels to work characteristics, work performance and economic costs. Researchers will identify a sub-cohort of higher/lower stress CO's (total n=60) and compare their fMRI findings; researchers will measure their biomarkers to develop predictive indices of fMRI findings and chronic stress levels. The overarching goal is to understand and effectively reduce chronic stress among corrections officers (COs).

The study attempts to ask the following questions:

  1. How did stress levels among COs relate to work contributors of stress and work performance?
  2. What were the relationships between fMRI, biomarker tests and stress in higher and lower stress sub-cohorts?
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Protecting the Mental and Physical Well-Being of Frontline Healthcare Workers During COVID-19, United States, 2021-2022 (ICPSR 38816)

Released/updated on: 2024-05-15
Geographic coverage: United States
Time period: 2021-03-01--2022-07-31
This study sought to test whether Stress First Aid Sites (SFA) improves the well-being of health care workers (HCWs) compared with care as usual for HCWs who deliver care in hospital and ambulatory health center settings. Researchers conducted interviews with site leadership, site champions, and HCWs to describe the experiences of HCWs receiving the training, as well as to understand the resources available in usual care and how SFA was implemented.
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The Impact of Mindfulness-Based Resilience Training on Stress-Related Biological, Behavioral, and Health-Related Outcomes in Law Enforcement Officers, Wisconsin, 2018-2019 (ICPSR 38293)

Released/updated on: 2024-04-25
Geographic coverage: United States, Dane County, Wisconsin
Time period: 2018-03-01--2019-12-31

This mixed-methods randomized controlled trial study, conducted in collaboration with three Dane County (Wisconsin) law enforcement agencies, compared the effects of an 8-week mindfulness training (MT) program relative to a waitlist control (WLC) group on biological, behavioral, and self-report measures of stress and stress-related health outcomes. Across a two-year data collection period, the research team randomly assigned 114 sworn law enforcement officers to MT or WLC groups. Across three timepoints (baseline, post-program, and 3-month follow-up), researchers assessed the impact of MT on perceived stress (Aim 1), physical and mental health outcomes including behaviorally assessed and self-reported sleep quality, cardiovascular risk factors, and symptoms of PTSD, anxiety, and depression (Aim 2), and stress-related biological and behavioral markers (Aim 3), including cortisol output and a behavioral assay of hippocampus function. Data collected as part of this study include quantitative measures obtained during laboratory visits and a week of field data collection, as well as optional semi-structured qualitative interview data.

This collection currently contains the following file types available in zipped package format. Excluding changes made for confidentiality purposes, files have been released as they were received by ICPSR:

  • Summary data: Master data file (nij_masterfile.csv) containing demographics, summed scores from self-report questionnaires, behavioral markers, biomarkers, and mindfulness practice logs; Fitbit activity, heart rate, and sleep data (nij_fitbitSummary.csv); saliva sample collection data (nij_salivaCollectionNotes.csv, nij_salivaQCSpreadsheet.xlsx, nij_salivaryCortCleaned.csv, nij_salivaryCortProcessed.csv, nij_salivaryCortRaw.csv); work event log data (nij_workEventsRaw.xlsx)
  • Raw behavioral data files: for all timepoints, affective go/no-go task data (agnRaw) and mnemonic similarity task data (mstRaw)
  • Summary behavioral data files (agnSummary): for all timepoints, affective go/no-go task data
  • Raw Fitbit data files (fitbitRaw): activity/steps, heart rate, and sleep data for all timepoints
  • Scripts: R, Python, and bash scripts, with readme files, that were used in biomarker and behavioral marker data cleaning/analysis

Qualitative interview data and documentation are not available at this time.

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Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012 (ICPSR 36029)

Released/updated on: 2024-02-14
Geographic coverage: Orange County, California
Time period: 2011-01-01--2012-12-31
More than 12 percent of all United States births each year are preterm. To improve the care of these infants, which have an increased risk of serious developmental and chronic health problems, the Estrellita team created a mobile phone application to monitor premature infants and their caregivers. This app allows caregivers to better understand the infant care process and to more easily interact with clinicians about themselves and the care of their infants. Caregivers used the Estrellita app to record their own stress levels and mood and their infants' observations of daily living (ODL) such as baby fussiness, diapering, weight, and bonding activities with the babies. In addition, the app allowed the caregivers to track clinical appointments, review the ODL data, and send and receive text messages from clinicians.
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Mental and Substance Use Disorders Prevalence Study (MDPS), United States, 2020-2022 (ICPSR 38953)

Released/updated on: 2024-02-12
Geographic coverage: United States
Time period: 2019-10-01--2022-10-31
The Mental and Substance Use Disorders Prevalence Study (MDPS) is a pilot program designed to estimate the prevalence of specific mental and substance use disorders among U.S. adults 18-65 years of age. The MDPS is also designed to estimate the percentage of individuals with these specific mental and substance use disorders who receive treatment. The study is funded by SAMHSA. To estimate the prevalence of specific mental and substance use disorders, the MDPS design addresses two gaps in prior general population survey efforts: (1) the exclusion of institutionalized populations at high risk for disorders, and (2) the reliance on nonclinical or screening scales to estimate mental and substance use disorders. The specific disorders of interest measured in the MDPS are past 12-month and lifetime schizophrenia spectrum disorders (defined as including schizophrenia, schizoaffective disorder, or schizophreniform), past 12-month bipolar I disorder, major depressive disorder (MDD), generalized anxiety disorder (GAD), posttraumatic stress disorder (PTSD), obsessive-compulsive disorder, anorexia nervosa, and past 12-month alcohol, opioid, cannabis, stimulant, and sedative/hypnotic/anxiolytic use disorders. The MDPS sample included individuals residing in the residential household population and in three non-household populations: state/federal prisons, state psychiatric hospitals, and homeless shelters. The MDPS also utilizes the Structured Clinical Interview for DSM-5 (SCID-5; First et al., 2015), delivered by trained mental health clinicians, which is the gold standard for mental and substance use disorder diagnostic assessment. The MDPS was a cooperative agreement between RTI International and Substance Abuse and Mental Health Services Administration (SAMHSA).
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Longitudinal Examination of Victimization Experiences of Latinos (LEVEL): Extending the Bias Victimization Study, San Diego, CA, Galveston, TX, Houston, TX, Boston, MA, 2019-2020 (ICPSR 38228)

Released/updated on: 2023-10-11
Geographic coverage: San Diego, United States, Texas, Massachusetts, California, Boston, Houston, Galveston
Time period: 2019-10-01--2020-09-30

The Longitudinal Examination of Victimization Experiences of Latinos (LEVEL) study surveyed Latino adults from four major cities across the United States to evaluate the past-year incidence and prevalence of bias or hate motivated victimization. This study is a follow-up to the Understanding and Measuring Bias Victimization Against Latinos study, ICPSR 37598, that was conducted in 2018-2019. The hope of this follow-up study, in conjunction with the original study "Wave 1", is to provide greater context into bias victimization by breaking apart the diverse nature of Latinx communities in regards to immigration status, language use, origin, acculturation, and enculturation.

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Altering Administrative Segregation for Inmates and Staff: A Mixed-Methods Analysis of the Effects of Living and Working in Restrictive Housing, Arizona, 2017-2019 (ICPSR 37851)

Released/updated on: 2023-06-15
Geographic coverage: United States, Arizona
Time period: 2017-01-01--2019-12-31

The Arizona Working and Living in Prison (AZWLP) project examined the impact of living and working in restrictive status housing, with a particular focus on the impact of restrictive housing on prisoner and staff well-being. The prisoner data represents three waves of data: baseline (within 3 weeks of placement in permanent housing), six months, and twelve months across medium, close, and maximum security custody levels. The critical measure of well-being is the Symptom Checklist-90 Revised (SCL-90-R). Prisoners were assessed at all three time points to determine whether placement in maximum custody impacted well-being as compared to placements in close or medium custody.

The staff data represents cross-sectional data of staff working in medium, close, and maximum security custody levels and asked staff to report on the emotional and physical impacts of the job, psychosomatic symptoms, organizational commitment, and social support.

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Link for Schools: A System to Prevent Violence and Its Adverse Impacts, Cedar Rapids, Iowa, 2017-2021 (ICPSR 38301)

Released/updated on: 2023-03-16
Geographic coverage: Iowa, United States, Cedar Rapids
Time period: 2017-08-01--2021-05-31

The Link for Schools project was a longitudinal study evaluating the implementation and administration of a school-based violence prevention program, Link for Schools (also referred to as Link), in a high-risk school district in Cedar Rapids, Iowa. Study populations consisted of school staff and community members who participated in a two-tiered training program aimed at preventing and intervening with violence, and a sample of children in grades 1-8 who attended a school where the program was implemented. Study procedures took place during three academic years, starting in 2017 and ending in 2020.

The Link program was built upon the principles of trauma-informed care (TIC) and psychological first aid (PFA) based in motivational interviewing to identify and intervene on mental health and behavioral precursors of violence, and to mitigate the immediate impacts of violence among exposed youth. TIC training for the entire school community served as the first tier of support, then a safety net of staff trained in PFA and screening for non-specific stress and referral (referred to as Link interventionists) served as a second tier. Students whose needs exceeded the existing school resources were directly referred to appropriate care.

This collection contains the following data types:

  • Case management records for each encounter interventionists had with students during the study time period (DS1) and linkages to other supports (DS2)
  • Pre- and post-program survey data from school staff (DS4, DS7)
  • Post-training survey data from school staff or parents who completed trauma-informed care (TIC) training (DS3), and staff who completed Link interventionist trainings (DS5, DS6)
  • Costs of program administration, implementation, and training to estimate cost effectiveness (DS8)
  • Student administrative records shared by the school district to determine initial eligibility for the intervention and track outcomes related to disciplinary action (DS9)
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Development and Implementation of a Digital Ecosystem to Improve Opioid Overdose Reporting, Tracking, and Prevention across Texas, 2020 (ICPSR 38495)

Released/updated on: 2023-01-26
Geographic coverage: United States, Texas
Time period: 2020-01-01--2020-12-31

This study includes 19 interview transcripts. The overall intent of the interviews was to gather information that could be used to develop and improve a single reporting website for overdose tracking and naloxone distribution metrics that would generate monthly reports to the State of Texas. The goal of this study was to develop and implement a digital ecosystem to improve opioid overdose reporting, tracking, and prevention across Texas. The study also aimed to understand the relationship between substance use behavior, stress response, and social support structures during the COVID-19 pandemic.

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Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)

Released/updated on: 2023-01-25
Geographic coverage: United States
Time period: 1996-03-01--1997-03-31
The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the MacAuthur Foundation National Survey of Midlife in the United States (MIDUS). The purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. Although previous daily diary research has advanced understanding of daily stress processes, there are important limitations in these studies that are addressed in the NSDE. First, previous studies in this area have relied on small and often unrepresentative samples that limit the ability to generalize findings. For this reason, the NSDE uses a large national sample of adults in the United States. Second, previous studies of individual differences in exposure and reactivity to daily events have typically examined only one source of variability, such as personality, to the exclusion of others. The NSDE corrects this problem by utilizing the data collected in the larger MIDUS survey on a wide array of sociodemographic and psychosocial variables to study the determinants of exposure and reactivity to daily stress. Third, previous studies have failed to investigate the role of genetics in both exposure and reactivity to daily stressors. The NSDE has a subsample of identical and fraternal same-sex twin pairs in order to explore this issue. The twins were selected if twin pairs had high self-reported certainty of zygosity, had completed the MIDUS interview and questionnaires, and had mailed in their cheek cell samples. A wide range of information was obtained using the daily telephone interview. Conducting interviews for an entire year provided information about seasonal variation in daily experiences. Respondents completed an average of 7.2 of the 8 interviews resulting in a total of 10,397 days of interviews. Data collection consisted of 40 separate "flights" of interviews with each flight representing the eight-day sequence of interviews from approximately 33 respondents. The entire interview was CATI programmed, which enabled researchers to incorporate skip patterns and open ended probe questions as well as to keypunch data during the interview, allowing data cleaning throughout the data collection. Demographic information includes gender and age.
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Generations: A Study of the Life and Health of LGB People in a Changing Society, United States, 2016-2019 (ICPSR 37166)

Released/updated on: 2023-01-05
Geographic coverage: United States
Time period: 2016-01-01--2017-12-31, 2017-01-01--2018-12-31, 2018-01-01--2019-12-31

The Generations study is a five-year study designed to examine health and well-being across three generations of lesbians, gay men, and bisexuals (LGB). The study explored identity, stress, health outcomes, and health care and services utilization among LGBs in three generations of adults who came of age during different historical contexts. This collection includes baseline, wave 1, and wave 2 data collected as part of the Generations study.

The study aimed to assess whether younger cohorts of LGBs differed from older cohorts in how they viewed their LGB identity and experienced stress related to prejudice and everyday forms of discrimination, as well as whether patterns of resilience differed between different LGB cohorts. Additionally, the study sought to examine how differences in stress experience affected mental health and well-being, including depressive and anxiety symptoms, substance and alcohol use, suicide ideation and behavior, and how younger LGBs utilized LGB-oriented social and health services, relative to older cohorts.

In wave 2, respondents were re-interviewed approximately one year after completion of the baseline (wave 1) survey. Only respondents who participated in the original sample of participants were surveyed at wave 2 (i.e., the enhancement oversample was not included in the longitudinal design of this study).

In wave 3, respondents were re-interviewed approximately one year after the completion of the wave 2 survey.

Demographic variables collected as part of this study include questions related to age, education, race, ethnicity, sexual identity, gender identity, income, employment, and religiosity.

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National Evaluation of the Safe Start Promising Approaches Initiative, 2006-2010 (ICPSR 34740)

Released/updated on: 2022-11-29
Geographic coverage: Oregon, Rhode Island, United States, Texas, Massachusetts, Ohio, California, Florida, New York (state), Michigan, Pennsylvania
Time period: 2006-01-01--2010-12-31
The Safe Start Promising Approaches for Children Exposed to Violence Initiative funded 15 sites to implement and evaluate programs to improve outcomes for children exposed to violence. RAND conducted the national evaluation of these programs, in collaboration with the sites and a national evaluation team, to focus on child-level outcomes. The dataset includes data gathered at the individual family-level at baseline, 6-, 12-, 18-, and 24-months. All families were engaged in experimental or quasi-experimental studies comparing the Safe Start intervention to enhanced services-as-usual, alternative services, a wait-list control group, or a comparable comparison group of families that did not receive Safe Start services. Data sources for the outcome evaluation were primary caregiver interviews, child interviews (for ages 3 and over), and family/child-level service utilization data provided by the Safe Start program staff.
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Midlife in the United States (MIDUS 3): Daily Diary Project, 2017-2019 (ICPSR 38529)

Released/updated on: 2022-09-22
Geographic coverage: United States
Time period: 2017-01-01--2019-12-31
The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the Midlife in the United States (MIDUS) longitudinal study of health and well-being. Known within the MIDUS study as the Daily Diary Project (2), the purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. The primary aims of the MIDUS 3 Daily Diary project were to: (1) describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood; (2) examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors; (3) investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and (4) explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood. During 2017-2019, the Daily Diary project collected data on a subsample of the MIDUS 3 survey sample, including cases from the MIDUS Milwaukee sample. A total of 1,236 respondents completed Daily Diary interviews. A subset of these respondents provided 4-days worth of saliva samples that provided data on cortisol and alpha amylase.
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Barriers to Psychological Help Seeking in Asian American Youth: A Qualitative Exploration in Schools, New York, 2015-2016 (ICPSR 38414)

Released/updated on: 2022-03-14
Geographic coverage: United States, New York (state)
Time period: 2015-01-01--2016-12-31

In contrast to the model-minority myth, which conceptualizes Asian American youth as more educationally successful, respectful of teachers, hardworking, and cooperative that other ethnic minority youth (Chang and Sue, 2003), research has demonstrated that Asian American youth are at an increased risk for depression and suicide than their White or Black counterparts (Sen, 2004). Specifically, Asian American females aged 15-24 have the highest rate of completed suicides (14.1%) compared to other racial and ethnic groups (e.g., White 9.3%, Black 3.3%, and Hispanic 7.4%). Asian males of the same age group have the second highest rate of suicide deaths (12.7%) compared to other racial/ethnic group males (e.g., White 17.5%, Black 6.7%, and Hispanic 10%) (CDC 2008). In addition to these specific mental health problems, these youth face additional culturally-specific concerns, including racial discrimination (Lee et al., 2009).

Despite such needs, Asian Americans underutilize traditional mental health services (Abe-Kim et al., 2007). Compared to youth (aged 18 or younger) from other racial or ethnic groups, Asian American youth are less likely than White, Black, or Hispanic children to actually receive mental health care (Ku and Matani, 2000). Additionally, research has demonstrated that Asian American youth also tend to underutilize mental health services in school settings (Amaral, Geierstanger, Soleimanpour, and Brindis, 2011; Anyon, Ong, and Whitaker, 2014; Walker, Kerns, Lyon, Bruns, and Cosgrove, 2010), despite the delivery of mental health services in schools seemingly overcoming certain structural barriers to seeking and obtaining mental health services, including transportation, insurance coverage, and cost (Cauce et al., 2002).

Using exploratory focus groups, this qualitative study sought to explore perceptions of barriers to seeking school-based mental health services among first- and second-generation Asian youth of immigrant origin (33 participants in 7 focus groups). The specific research questions were: What are the sources of stress that may contribute to mental health concerns among Asian and Asian American youth, and what are their perceptions of barriers to mental health service use?

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Texas Longitudinal Study of Adolescent Stress Resilience and Health, 2016-2019 (ICPSR 38180)

Released/updated on: 2022-01-20
Geographic coverage: United States, Texas
Time period: 2016-09-01--2019-05-31

Texas Longitudinal Study of Adolescent Stress Resilience and Health, 2016-2019 (TLSASR) is a multi-method study examining the effects of naturalistic stressors on adolescents as they enter and proceed through high school. This transitional period often presents adolescents with more and more complex sources of social and evaluative stress. Both stress levels and effectiveness of adolescents' responses can have consequences on their life course trajectories, including contributing to gender and racial/ethnic disparities in adult health and well-being. The TLSASR dataset aims to support researchers pursuing a deeper and more integrative understanding of this critical adolescent developmental period.

The study's data contain multiple waves of collection spanning the fall of 2016 to the spring of 2019. Informed by the biopsychosocial model of human development, the study integrates data from a range of sources and methods each wave/year. This included a survey battery assessing numerous psychological (e.g., stress, mental health, mindset), biological (e.g., height, weight, pubertal development), and contextual (e.g., school climate) factors, as well as daily in-school experience sampling, and daily salivary hormone levels for hormonal assessment. School records for each year are also included, as is an experimental manipulation testing the effects of a brief growth mindset intervention to promote improved stress resilience.

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National Survey of Health Attitudes, [United States], 2018 (ICPSR 37633)

Released/updated on: 2021-12-16
Geographic coverage: United States
Time period: 2018-07-11--2018-08-30

Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.

The National Survey of Health Attitudes is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.

This study includes the results from the 2018 RWJF National Survey of Health Attitudes. This 2018 survey is considered the second wave, the first wave of the survey was conducted in 2015 (ICPSR 37405). In 2018, the study team fielded an updated version that included many of the same questions but added some new constructs that were of interest as part of the larger Culture of Health effort. This study complements the overview of the 2015 survey described in the RAND report Development of the Robert Wood Johnson Foundation National Survey of Health Attitudes (Carman et al., 2016).

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National Survey of Health Attitudes, [United States], 2015 (ICPSR 37405)

Released/updated on: 2021-12-14
Geographic coverage: United States
Time period: 2015-03-13--2015-04-14

Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.

The National Survey of Health Attitudes is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.

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Rochester Intergenerational Study (RIGS), New York, United States, 1999-2019 (ICPSR 37920)

Released/updated on: 2021-10-26
Geographic coverage: United States, Rochester (New York), New York (state)
Time period: 1999-01-01--2019-12-31

The Rochester Intergenerational Study (RIGS), is an extension of the Rochester Youth Development Study (RYDS). RIGS investigates intergenerational continuity and discontinuity of drug use in a three-generation prospective design. The focal participant is the oldest biological child (G3) of the original participant in the RYDS study. The project contains developmental data collected since 1988 on the G2 parents and G1 grandparents; combining those data with the prospective data collected from 1999 to 2019 allows examination of how the parent's own developmental course influences their transition to adulthood and their behavior as parents which, in turn, can be used to explain the onset and development of the G3 child's drug use.

Variables included pertain to the parent's stressors, drug use and problem behaviors, prosocial bonds, peer networks, gang affiliation, family context, major family events, and parenting behaviors. G3 assessments include their general psychosocial development, with detailed information on the onset and course of their drug use, problem behaviors, school behavior, and prosocial behavior.

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Detroit [Michigan] Neighborhood Health Study, 2008-2013 (ICPSR 37038)

Released/updated on: 2021-10-07
Geographic coverage: Detroit, United States, Michigan
Time period: 2008-01-01--2009-12-31, 2009-01-01--2010-12-31, 2010-01-01--2011-12-31, 2011-01-01--2012-12-31, 2013-01-01--2013-12-31

The Detroit Neighborhood Health Study (DNHS) is a prospective, representative longitudinal cohort study of predominantly African American adults living in Detroit, Michigan. The main purpose of the study was to determine the predictive effects of ecological stressors, such as income distribution and residential segregation, on the development of post-traumatic stress disorder (PTSD), substance use, and other psychological and behavioral outcomes. An additional purpose was to study the interrelationships between ecological stressors, exposure to potentially traumatic events (PTEs), PTSD, substance use, and immune function. The study team hypothesized that exposure to ecological stressors would influence the risk of PTE exposure, PTSD, substance use, other psychological outcomes, and the relationships between these factors.

The current collection includes data from all 5 waves of the study. Cohort participants were initially recruited in 2008 with a dual-frame probability design, using telephone numbers obtained from the U.S. Postal Service Delivery Sequence Files as well as a listed-assisted random-digit-dial frame. Individuals without listed landlines or telephones and individuals with only a cell phone listed were invited to participate through a postal mail effort. Participants completed a 40 minute, structured telephone interview annually between 2008-2012 to assess perceptions of participants' neighborhoods, mental and physical health status, social support, exposure to traumatic events, and alcohol and tobacco use. In addition, the study team completed a structured assessment of Detroit's 54 neighborhoods in order to describe the characteristics of respondents' neighborhoods. The assessment included information about the quality of housing exteriors; presence of graffiti, abandoned cars, alcohol and tobacco advertisements, and security warning signs; presence of vacant buildings; and street and traffic noise levels.

All survey participants were offered the opportunity to provide a blood specimen (venipuncture, blood spot, or saliva) for immune and inflammatory marker testing as well as genetic testing of DNA. Participants received an additional $25USD if they elected to give a sample. Informed consent was obtained at the beginning of each interview and again at specimen collection. However, these specimens are not included as part of this data collection.

For more information about the study, please visit the Detroit Neighborhood Health Study website.

Genotypic data from DNHS are available on the NIH database of Genotypes and Phenotypes (dbGaP).

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TransPop, United States, 2016-2018 (ICPSR 37938)

Released/updated on: 2021-06-23
Geographic coverage: United States
Time period: 2016-01-01--2018-12-31

The TransPop study is the first national probability sample of transgender individuals in the United States (it also includes a comparative cisgender sample). A primary goal of this study was to provide researchers with a representative sample of transgender people in the United States. The study examines a variety of health-relevant domains including health outcomes and health behaviors, experiences with interpersonal and institutional discrimination, identity, transition-related experiences, and basic demographic characteristics (age, race/ethnicity, religion, political party affiliation, marital status, employment, income, location, sex, gender, and education).

Co-investigators (in alphabetical order): Walter O. Bockting, Ph.D. (Columbia University); Jody L. Herman, Ph.D. (UCLA); Sari L. Reisner, Ph.D. (Harvard University and The Fenway Institute, Fenway Health).

Self-published

Samburu_cognition_expenditure_study (ICPSR 131841)

Released/updated on: 2021-02-06
Geographic coverage: Kenya
Time period: 2017-10-01--2018-09-30
The study was conducted in south-western Samburu County, Kenya between October 2017 and September 2018. Three survey rounds were completed. Interviews were conducted in-person at single village locations in each of five villages. Four tools were used in each interview: i) Raven's Progressive Matrices (standard adult, short-form), ii) complex span Working Memory Capacity task, iii) Discrete Choice Experiment, and iv) self-reported survey. All surveys were conducted in Samburu, with the aid of local enumerators.
Research design and associated tools used in the study were approved by the Washington State University Institutional Review Board (#16207) and the Kenyatta National Hospital-University of Nairobi Ethics and Research Committee (P613-10/2017). Oral consent was obtained from study participants.
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Midlife in the United States (MIDUS Refresher 1): Daily Diary Project, 2012-2014 (ICPSR 37083)

Released/updated on: 2020-12-14
Geographic coverage: United States
Time period: 2012-10-01--2014-11-30

The MIDUS Refresher Daily Diary Project (aka National Study of Daily Experiences or NSDE) contains data from 782 respondents. The purpose of the Daily Stress Project was to examine how sociodemographic factors, health status, personality characteristics, and genetic endowment modify patterns of change in exposure to day-to-day life stressors as well as physical and emotional reactivity to these stressors.

The primary aims were:

  1. To describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood;
  2. To examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors;
  3. To investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and
  4. To explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood.

The Daily Diary study is comprised of a subsample of the MIDUS (Midlife in the United States) Refresher, a national survey of nearly 3,600 Americans (aged 25 to 75) conducted during 2011-2014. The MIDUS Refresher survey was designed to replenish the original MIDUS 1 baseline cohort and allow the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental).

Demographic variables in this collection include sex and age.

Self-published

Feasibility and effectiveness of a workplace-adapted mindfulness-based programme to reduce stress in workers of a private sector logistics company: an exploratory mixed methods study (ICPSR 108743)

Released/updated on: 2020-02-26
Geographic coverage: Spain
There is a high prevalenceof stress in the logistics sector owing to very demanding, fast-paced and unpredictable tasks. Mindfulness-based programmes may reduce stress but require considerable practice. Our aim was to evaluate the feasibility and effectiveness of a shortened, workplace-adapted, mindfulness-based programme for the logistics sector (WA-MBP-LS) for the purpose of reducing stress.A non-blinded, non-randomized, two-arm, controlled trial was conducted. The WA-MBP-LS (n=32) consisted of 6weekly 90-minute mindfulness sessions. The control group (n=36) attended a psycho-educational seminar. The Perceived Stress Scale (PSS) and Five Facets of Mindfulness Questionnaire (FFMQ) were measured at pre-test, post-test and 6-month follow-up. Differences between groups were evaluated using mixed-effects models. Qualitative methods were used to analyse implementation issues. A 64.2% reduction was observed between initial volunteers and actual participants. Attrition at6-month follow-up was 45.6%. Participants attended a median of 5 sessions. Decreases in PSS favoured the WA-MBP-LS group at post-test and follow-up. FFMQ played a mediating role in PSS reductions. Barriers were disinterest, lack of programming, work overload and job unattended. Facilitators were curiosity, timing, company facilities and audio recordings.The WA-MBP-LS was feasible and effective to reduce stress, but more efforts to improve the practicalities of implementation would be desirable. 
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The Science of BDSM Data, Phoenix, Arizona, 2014 (ICPSR 37395)

Released/updated on: 2019-08-26
Geographic coverage: United States, Phoenix, Arizona
Time period: 2014-01-01--2014-12-31

The goals of this study were to test whether participants who engaged in an extreme ritual in a naturalistic setting would evidence signs of altered states of consciousness, to examine other physiological and affective effects of the ritual, and to determine whether these effects varied based on the role the individual performed within the ritual. A multi-method approach was used that utilized various psychological self-report measures, a measure of cognitive functioning, and a measure of physiological stress. The data collection took place at the "Dance of Souls," a ritual conducted on the last day of the annual Southwest Leather Conference in Phoenix, Arizona, in which participants received temporary piercings with hooks or weights attached to the piercings and danced to music provided by drummers.

The associated publication, Altered States of Consciousness during an Extreme Ritual, was used to accompany the data in this collection. Users are encouraged to consult the publication for additional information. The data collection includes one de-identified dataset with 164 variables for 83 cases. Demographic variables include sex, gender, pierced vs. non-pierced, and the role the participant played in the ceremony.

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