Tsogolo La Thanzi 3 (TLT-3), Malawi, 2019 [Healthy Futures] (ICPSR 39882)
Tsogolo La Thanzi (TLT) is a decade-long population-based cohort study of young women and men from Balaka, Malawi. Tsogolo La Thanzi means "Health Futures" in Chichewa, Malawi's most widely spoken language. TLT has followed young adults (ages 15-25 at enrollment, 15-35 inclusive) as they navigate relationships and childbearing within the context of a generalized AIDS epidemic. TLT enrolled more than 3000 individuals and collected 11 waves of data, covering a 10-year period (2009-2019) that spans massive changes in the HIV treatment context in Malawi as well as the ages of peak incidence and peak fertility for female respondents.
This particular study contains the data collected from an additional survey referred to as Tsogolo La Thanzi 3 (TLT-3), fielded in 2019, following the release of ten waves of data collected between 2009 and 2015. Unlike the past where the sample included male partners, this third round of data collection focused solely on women.
TLT-3 covered many of the same topics found in the original TLT multi-wave project such as: relationships, religion, HIV/AIDS, pregnancy, marriage, sexually transmitted diseases, and future expectations.
Additionally, modules specific to TLT-3 included: kinship, mental health, and trust in clinics. These data can be used cross-sectionally or can be merged with previous waves to facilitate analyses of a full ten years of social change in Balaka township and across the life course.
Midlife in the United States (MIDUS Refresher 2): Milwaukee African American Sample, 2023-2024 (ICPSR 39583)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the original MIDUS Milwaukee 1 survey that was designed to increase the number of racial minorities in 2005. The MIDUS Milwaukee Refresher survey employed the same comprehensive assessments (demographic, psycho-social, and physical and mental health) as those on the existing MIDUS sample, with additional questions about the effect of the Great Recession in 2008-09.
In 2023-2024, the second wave of survey data was collected from 327 longitudinal Refresher Milwaukee participants, including the questions (1) repeated from the Refresher 1, (2) new impacts of the COVID-19 pandemic replacing the questions related to the Great Recession in the Refresher 1, and (3) the additional questions in selected areas (e.g., AD8, IADL, family history of dementia). This new longitudinal MIDUS Refresher Milwaukee data allow examination of period effects on health and well-being related to the COVID-19 pandemic by comparing the pre-pandemic MIDUS Refresher Milwaukee 1 data with the post-pandemic MIDUS Refresher Milwaukee 2 data. Further, the longitudinal MIDUS Refresher datasets (wave 1 and wave 2) allow investigation of the two major macro-level historic events, the Great Recession and the COVID-19 pandemic, on health and well-being.
Midlife in the United States (MIDUS Refresher 1), 2011-2014 (ICPSR 36532)
In 2011-2014, the MIDUS Refresher study recruited a national probability sample of 3,577 adults, aged 25 to 74, designed to replenish the original MIDUS 1 baseline cohort and paralleling the five decadal age groups of the MIDUS 1 baseline survey [ICPSR 2760]. The MIDUS Refresher survey employed the same comprehensive assessments as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09.
The MIDUS Refresher collection is split into two datasets: Aggregate Data and Coded Text Data. The Coded Text Dataset provides coded responses to open-ended question items in the Aggregate Dataset. The survey data collection (Project 1) [MIDUS, ICPSR 2760] consisted of a 30-minute phone interview followed by two 50-page mailed self-administered questionnaires. Survey data were collected on demographic, psycho-social, and physical and mental health information. This new crosssectional MIDUS sample allows the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. A further objective of the MIDUS Refresher sample was to strengthen cross-project analyses in MIDUS by increasing the sample sizes available for testing hypotheses dealing with the interplay of key factors (e.g., socioeconomic status, gender, psychosocial factors, biological factors) in mid- and laterlife health. To that end, the MIDUS Refresher sample followed the same multi-disciplinary protocol established in the main MIDUS sample, in that after completing the survey protocol respondents were asked to complete a cognitive assessment by phone (Project 3) [MIDUS 3, ICPSR 36346] and later became eligible to participate in daily diary assessments (Project 2) [MIDUS 2, ICPSR 4652] biomarker assessments (Project 4) [MIDUS 2: Biomarker Project, ICPSR 29282] and neuroscience assessments (Project 5) [MIDUS 2: Neuroscience Project, ICPSR 28683].
The MIDUS Refresher was funded by the National Institute on Aging as two separate but related efforts: The MIDUS Refresher younger decades (MRY), was fielded in November, 2011, and recruited over 2,100 new participants aged 25 to 54; Funding was later added for the MIDUS Refresher older decades (MRO), which was fielded in June, 2013 and recruited over 1,400 new participants aged 55 to 74.
Demographic variables include age, sex, gender, race, religion, and marital status.
Midlife in the United States (MIDUS Refresher 1): Milwaukee African American Sample, 2012-2013 (ICPSR 36722)
In 2012-2013, the MIDUS Milwaukee Refresher study recruited a sample of 508 Milwaukee African American adults, aged 25 to 64, designed to replenish the Midlife Development in the United States (MIDUS 2): Milwaukee African American Sample, 2005-2006 (ICPSR 22840). This sample was also designed to increase the number of racial minorities included in the broader MIDUS study. The MIDUS Milwaukee Refresher survey employed the same assessments (demographic, psycho-social, and physical and mental health) as those assembled on the existing MIDUS sample, but with additional questions about the effect of the economic recession of 2008-09. A sample of African Americans from Milwaukee County, Wisconsin, was stratified by age, gender, and income.
Area probability sampling methods were used to identify potential respondents. Field interviewers screened households to determine if they contained any African American adults. There was additional screening to achieve an appropriate age/gender distribution in a manner similar to what was done for the original MIDUS sample (Midlife in the United States (MIDUS 1), 1995-1996 [ICPSR 2760]). Milwaukee respondents were interviewed in their homes using a 2.5-hour Computer Assisted Personal Interview (CAPI) protocol and afterwards asked to complete a self-administered questionnaire (SAQ). All measures paralleled those used in the larger MIDUS samples. In addition to successful completion of the survey, participants were asked to complete a cognitive assessment by phone. Some respondents were eligible to participate in additional MIDUS projects: daily diary assessments, biomarker assessments, and neuroscience assessments.
Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)
East Asian Social Survey (EASS), Cross-National Survey Data Sets: Families in East Asia, 2006 (ICPSR 34606)
The East Asian Social Survey (EASS) is a biennial social survey project that serves as a cross-national network of the following four General Social Survey type surveys in East Asia: Chinese General Social Survey (CGSS), Japanese General Social Survey (JGSS), Korean General Social Survey (KGSS), Taiwan Social Change Survey (TSCS), and comparatively examines diverse aspects of social life in these regions. Survey information in this module focuses on family dynamics and includes demographic variables such as the number of family members, the number of younger and older siblings, the number of sons and daughters, and whether family members are alive or deceased. Respondents were also queried about specific information pertaining to family members and children not co-residing with them, such as, sex and birth order, age, marital status, residence status, contact frequency, employment status, and relation to the respondent.
Other information collected includes attitudes toward financial support from family members and how frequently financial and personal support was provided. Questions also include opinions regarding household chores, lifestyle preferences, health of respondent and parents, as well as family obligations. Quality of life questions addressed how satisfied respondents were as well as overall marital happiness. Demographic information specific to the respondent and their spouse includes age, sex, marital status, education, employment status and hours worked, occupation, earnings and income, religion, class, size of community, and region.
East Asian Social Survey (EASS), Cross-National Survey Data Sets: Families in East Asia, 2016-2018 (ICPSR 38171)
The East Asian Social Survey (EASS) is a biennial social survey project that serves as a cross-national network of the following four General Social Survey type surveys in East Asia: the Chinese General Social Survey (CGSS), the Japanese General Social Survey (JGSS), the Korean General Social Survey (KGSS), and the Taiwan Social Change Survey (TSCS), and comparatively examines diverse aspects of social life in these regions. Since its 1st module survey in 2006, EASS produces and disseminates its module survey datasets and this is the harmonized data for the 6th module survey, called 'Families in East Asia'.
Survey information in this module is the same topic as the first module of the EASS 2006, and it focuses on family dynamics and relations. Respondents were asked about details of their family members; such as, the number of family members, age, sex, birth order, marital status, employment status, whether they co-resides with and whether they are alive or deceased. Other information collected includes contact frequency, intergenerational support exchanges, and attitudes toward financial support from family members. Questions also include opinions regarding household chores, lifestyle preferences, health of respondent and parents, as well as family obligations. Demographic and other background information includes age, sex, marital status, religion, years of education completed, employment status, income, and household size and composition.
Midlife in the United States (MIDUS 2), 2004-2006 (ICPSR 4652)
In 1995-1996, the MacArthur Midlife Research Network carried out a national survey of 7,108 Americans aged 25 to 74 (MIDLIFE IN THE UNITED STATES (MIDUS), 1995-1996 [ICPSR 2760]). The purpose of the study was to investigate the role of behavioral, psychological, and social factors in understanding age-related differences in physical and mental health. The study was innovative for its broad scientific scope, its diverse samples (which included twins and the siblings of main sample respondents), and its creative use of in-depth assessments in key areas (e.g., daily stress and cognitive functioning). A description of the study and findings from it are available at http://www.midus.wisc.edu. With support from the National Institute on Aging, a longitudinal follow-up of the original MIDUS samples: core sample (N = 3,487), metropolitan over-samples (N = 757), twins (N = 925 complete pairs), and siblings (N = 950), was conducted in 2004-2006. Guiding hypotheses for it, at the most general level, were that behavioral and psychosocial factors are consequential for physical and mental health. MIDUS 2 respondents were aged 35 to 86. Data collection largely repeated baseline assessments (e.g., phone interview and extensive self-administered questionnaire), with additional questions in selected areas (e.g., cognitive functioning, optimism and coping, stressful life events, and caregiving). To add refinements to MIDUS 2, an African American sample (N = 592) was recruited from Milwaukee, Wisconsin, who participated in a personal interview and completed a questionnaire paralleling the above assessments. Survey data for the Milwaukee sample are available in a separate project [ICPSR 22840]. Also administered was a modified form of the mail questionnaire, via telephone, to respondents who did not complete a self-administered questionnaire.
Midlife in the United States (MIDUS 1), 1995-1996 (ICPSR 2760)
The Midlife in the United States (MIDUS) is a collaborative, interdisciplinary investigation of patterns, predictors, and consequences of midlife development in the areas of physical health, psychological well-being, and social responsibility. A description of the study and findings from it are available at http://www.midus.wisc.edu.
The first wave of the MIDUS study (MIDUS 1 or M1) collected survey data from a total of 7,108 participants. The baseline sample was comprised of individuals from four subsamples: (1) a national RDD (random digit dialing) sample (n=3,487); (2) oversamples from five metropolitan areas in the U.S. (n=757); (3) siblings of individuals from the RDD sample (n=950); and (4) a national RDD sample of twin pairs (n=1,914). All eligible participants were non-institutionalized, English-speaking adults in the coterminous United States, aged 25 to 74.
Data from the samples were collected primarily in 1995/96. The survey (Project 1) dataset contains responses from a 30-minute Phone interview and two 50-page Self-Administered Questionnaire (SAQ) instruments. Of the 7,108 respondents who completed the Phone interview, 6,325 also completed the SAQ.
This updated version of the study is comprised of three primary datasets:
Dataset 1, Main, Siblings, and Twin Data, contains responses from the main survey of 7,108 respondents. Respondents were asked to provide extensive information on their physical and mental health throughout their adult lives, and to assess the ways in which their lifestyles, including relationships and work-related demands, contributed to the conditions experienced. Those queried were asked to describe their histories of physical ailments, including heart-related conditions and cancer, as well as the treatment and/or lifestyle changes they went through as a result. A series of questions addressed alcohol, tobacco, and illegal drug use, and focused on history of use, regularity of use, attempts to quit, and how the use of those substances affected respondents' physical and mental well-being. Additional questions addressed respondents' sense of control over their health, their awareness of changes in their medical conditions, commitment to regular exercise and a healthy diet, experience with menopause, the decision-making process used to deal with health concerns, experiences with nontraditional remedies or therapies, and history of attending support groups. Respondents were asked to compare their overall well-being with that of their peers and to describe social, physical, and emotional characteristics typical of adults in their 20's, 40's, and 60's. Information on the work histories of respondents and their significant others was also elicited, with items covering the nature of their occupations, work-related physical and emotional demands, and how their personal health had correlated to their jobs. An additional series of questions focusing on childhood queried respondents regarding the presence/absence of their parents, religion, rules/punishments, love/affection, physical/verbal abuse, and the quality of their relationships with their parents and siblings. Respondents were also asked to consider their personal feelings of accomplishment, desire to learn, sense of control over their lives, interests, and hopes for the future.
The Datasets previously numbered 2 and 3 have been removed to avoid redundancies, and all datasets have been renumbered. Please refer to the readme file.
Dataset 2, Twin Screener Data, provides the first national sample of twin pairs ascertained randomly via the telephone.
Dataset 3, Coded Text Responses, describes how open-ended textual responses in the MIDUS 1 Computer-Assisted Telephone Interview (CATI) and Self-Administered Questionnaire (SAQ) were transformed into categorical numeric codes. These codes are included in a stand-alone dataset containing only those cases (N=3,950) that contained text data in their responses.
Online Analysis Only: Datasets 1, 2, and 3 were merged together by the SU_ID variable to form "Merged Data with Weights (Online Analysis Only)" (Dataset 4) for online analysis capabilities.
MIDUS also maintains a Colectica portal, which allows users to interact with variables across waves and create customized subsets. Registration is required.
Pittsburgh Youth Study Family Constructs, Pittsburgh, Pennsylvania, 1987-2001 (ICPSR 37355)
The Pittsburgh Youth Study (PYS) is part of the larger "Program of Research on the Causes and Correlates of Delinquency" initiated by the Office of Juvenile Justice and Delinquency Prevention in 1986. PYS aims to document the development of antisocial and delinquent behavior from childhood to early adulthood, the risk factors that impinge on that development, and help seeking and service provision of boys' behavior problems. The study also focuses on boys' development of alcohol and drug use, and internalizing problems.
PYS consists of three samples of boys who were in the first, fourth, and seventh grades in Pittsburgh, Pennsylvania public schools during the 1987-1988 academic year (called the youngest, middle, and oldest sample, respectively). Using a screening risk score that measured each boy's antisocial behavior, boys identified at the top 30 percent within each grade sample on the screening risk measure (n=~250), as well as an equal number of boys randomly selected from the remainder (n=~250), were selected for follow-up. Consequently, the final sample for the study consisted of 1,517 total students selected for follow-up. 506 of these students were in the oldest sample, 508 were in the middle sample, and 503 were in the youngest sample.
Assessments were conducted semiannually and then annually using multiple informants (i.e., boys, parents, teachers) between 1987 and 2010. The youngest sample was assessed from ages 6-19 and again at ages 25 and 28. The middle sample was assessed from ages 9-13 and again at age 23. The oldest sample was assessed from ages 13-25, with an additional assessment at age 35. Information has been collected on a broad range of risk and protective factors across multiple domains (e.g., individual, family, peer, school, neighborhood). Measures of conduct problems, substance use/abuse, criminal behavior, mental health problems have been collected.
This collection contains data and syntax files for family interaction constructs. The datasets include constructs on: relationships and communication with parents/caretakers; parental monitoring and caretaker supervision; counter-control by the child; family involvement, including getting along with siblings; persistence of discipline; physical punishment; caretaker anti-social attitudes; positive parenting; and quality time.
The family constructs were created by using the PYS raw data. The raw data are available at ICPSR in the following studies: Pittsburgh Youth Study Youngest Sample (1987 - 2001) [Pittsburgh, Pennsylvania], Pittsburgh Youth Study Middle Sample (1987 - 1991) [Pittsburgh, Pennsylvania] , and Pittsburgh Youth Study Oldest Sample (1987 - 2000) [Pittsburgh, Pennsylvania].
Family Exchanges Study Wave 2, Philadelphia, Pennsylvania, 2013 (ICPSR 37317)
The Family Exchanges Study (FESI) began in 2008 conducted by the Institute for Survey Research at Temple University. The original "target" or core sample was recruited from African American and White respondents aged 40-60 living in Philadelphia and the surrounding counties--Bucks, Chester, Delaware, and Montgomery. To be eligible for the study, respondents had to have at least one living parent and one living offspring over 18 years of age. Temple University sought to recruit the parents, spouse, and up to three offspring over 18 years of age into the study. All target, parent, and spouse surveys were conducted by telephone. Offspring were given the option of completing the survey by telephone or web.
For the Wave 2 data collection, the Survey Research Center at Pennsylvania State University attempted to contact all FESI respondents again, as well as collect updated information for spouses/romantic partners, parents, and up to 4 age-eligible offspring. The survey instruments were drawn largely from the first wave of data collection. This collection includes eight data files. These data files include five main study datasets: target, spouse, spouse without target, parent, and offspring. This collection also includes three diary datasets: target diary, parent diary, offspring diary. For each participant, there are data related to relationships with other family members, perceptions of family members, and views on key social issues. Demographic information includes gender, marital status, education level, religion, age, race, ethnicity, and employment status.
Survey of Midlife in Japan (MIDJA), April-September 2008 (ICPSR 30822)
Simmons Longitudinal Study: Adaptation and Development Across the Lifespan [New England, United States], Preschool Data, Wave 1, 1977 (ICPSR 22800)
The Simmons Longitudinal Study (SLS) is a community-based study that has prospectively traced the life course of a single-aged cohort from childhood (age 5) to adulthood (age 26). Data were collected from multiple informants at seven major time points: age 5 (1977), age 6 (1978), age 9 (1980-1981), age 15 (1987), age 18 (1990), age 21 (1993-1994), and age 26 (1998). Since its inception in 1977, the SLS has utilized a multidisciplinary, multimethod approach, with the dual goals of: (1) tracing the development and course of academic difficulties, behavior problems, and psychopathology; and (2) identifying factors that promote health functioning from early childhood (age 5) to adulthood (age 26). The SLS has consistently emphasized the identification of modifiable social and environmental risk and protective factors that can be targeted directly in prevention and intervention programs. To date, SLS has published 50 journal articles and 9 book chapters. For this wave of the study, Wave 1, the original study group was comprised of every child who entered kindergarten in the fall of 1977 in one public school district in a northeastern town in the United States. Each child participated in state-mandated testing of health and development three months before the start of school. The mothers of respondents also completed questionnaires assessing demographics, health history, development, and behavior of their children.
Family Exchanges Study Wave 1, Philadelphia, Pennsylvania, 2008 (ICPSR 36360)
The Family Exchanges Study Wave 1 (FESI) was conducted in 2008 by the Institute for Survey Research at Temple University. The original 634 "target" or core sample was recruited from African American and White respondents aged 40-60 living in Philadelphia and the surrounding counties--Bucks, Chester, Delaware, and Montgomery. To be eligible for the study, respondents had to have at least one living parent and one living offspring over 18 years of age. Temple University sought to recruit the parents, spouse, and up to three offspring over 18 years of age into the study. All target, parent, and spouse surveys were conducted by telephone. Offspring were given the option of completing the survey by telephone or web. A total of 337 parents, 511 offspring (with another 80 by web and 1 listed as other for a total of 592), and 197 spouses were successfully recruited into the first wave of the study.
This collection includes four data files, one for each type of participant: target, spouse, parent, and offspring. For each of these participants, there are data related to relationships with other family members, perceptions of family members, and views on key social issues. Demographic information includes gender, marital status, education level, religion, age, race, ethnicity, and employment status.
National Family Research of Japan 2008 (ICPSR 36127)
Swedish Adoption/Twin Study on Aging (SATSA), 1984, 1987, 1990, 1993, 2004, 2007, and 2010 (ICPSR 3843)
Flint [Michigan] Adolescent Study (FAS): A Longitudinal Study of School Dropout and Substance Use, 1994-1997 (ICPSR 34598)
The Flint Adolescent Study (FAS) interviewed 850 ninth graders in the four public high schools of Flint, MI. The study was conducted in collaboration with the Projects for Urban and Regional Affairs and Flint Community Schools. The goal of the study was to explore the protective factors associated with school dropout and alcohol and substance use. The study followed the youths for four years beginning in the Fall of 1994. The sample reflected the overall student body in the Flint high schools. In order to study those students most at risk for leaving school before graduation, individuals with grade point averages of 3.0 and below were selected.
Interviews were conducted face-to-face with each student at the school or in a community location for students who were out of school. Each interview took about one hour to complete. At the end of the interview students were asked to complete the last section of the questionnaire by themselves which contains questions about their drug use and sexual behavior.
Information obtained from the youths includes: participation in church, school, and community organizations; social support and influence of family and friends; self esteem and psychological well being; delinquent and violent behaviors; alcohol and substance use; sex behavior and child bearing; school attitudes and performance; and family structure and relationships. The Youths were asked to complete a brief questionnaire at the end of the interview about their alcohol and substance use, and sexual behavior. In years 3 and 4 questions also asked about driving behavior, attachment style, stress, mentoring, and racial identity. Data was also collected about parental education and occupation.