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The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains four major sections: the main survey, demographic data, diagnostic data, and state, county, and tract FIPS data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The second part contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The third part focuses on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

The fourth part contains respondents' state, county, and tract FIPS data.

This randomized controlled trial evaluated a culturally appropriate intervention to improve the recognition and treatment of depression among Asian and Latino American primary care patients at Massachusetts General Hospital (MGH), using a culturally focused psychiatric (CFP) consultation with a team of mental health providers who were bilingual/bicultural, trained in culturally competent techniques, and familiar with the cultures and languages of the patients served. Targeted minority patients who screened positive for clinical depression were eligible to participate in the trial. The intervention patients were offered the CFP consultation at baseline and, if eligible, received the CFP patient toolkit as part of their treatment. The toolkit provided psychoeducation and tools for managing depression as well as information on community resources. The usual care patients were offered standard referrals to MGH mental health resources.

Questionnaires were administered to the patients at screening, baseline, two-week follow-up, and six month follow-up. The screening questionnaires included the two-item Public Health Questionnaire (PHQ-2) and demographic questions. Assessment measures administered to the intervention patients at baseline included the Mini International Neuropsychiatric Interview (MINI), Quick Inventory of Depressive Symptomatology-Self Rated Scale (QIDS-SR 16), Global Assessment of Functioning (GAF), Schwartz Outcome Scale (SOS-10), and a demographic questionnaire and resource utilization questionnaire. At six month follow-up, the intervention arm was administered a resource utilization questionnaire, patient satisfaction questionnaire (Treatment Satisfaction Scale), qualitative interview, and the QIDS-SR 16 and SOS-10. The SOS-10 was also administered to the intervention patients at two-week follow-up. In the usual care arm, the QIDS-SR 16 and resource utilization questionnaire was administered at baseline and six months, the qualitative interview at six months, and the demographic questionnaire at baseline or six-months. There was no two-week assessment for the usual care patients. Electronic medical record review was used for both arms at baseline and six months, as needed. In addition, qualitative interviews were conducted with project and practice staff at the end of the study.

The data file includes the responses to the questionnaires and variables describing the CFP consultation assessment (DSM-IV Axis I, II, III, IV, and V diagnoses), treatment recommendations made to the patients' primary care physicians (PCPs) after the CFP consultation, and study staff contacts with the patients' PCPs and mental health providers. ICPSR did not receive the data from the qualitative interviews or electronic medical record reviews.

The National Comorbidity Survey Replication Adolescent Supplement (NCS-A) was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders in the child and adolescent years of life among adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders.

The core NCS-A interview schedule was an adaptation of the World Health Organization Composite International Diagnostic Interview (CIDI). NCS-A also administered the non-verbal subtest (Matrices subtest) of the Kaufman Brief Intelligence Test (K-BIT).

In addition to interviewing adolescents, information was collected from a parent or a parent surrogate to obtain an additional perspective on the adolescent's mental health and its correlates. Information from parents focused on the five adolescent disorders for which previous methodological research has most consistently shown that parental reports are important for making diagnoses: attention-deficit/hyperactivity disorder, conduct disorder, oppositional defiant disorder, major depressive episode, and dysthymic disorder.

Demographic information collected by NCS-A includes age, citizenship status, country of birth, criminal history, ethnicity, grandparents' country of birth, language(s) spoken in the home, parents' country of birth, race, religion, and sex.

The data collection contains six data files: (1) data for the adolescent household and school respondents; (2) data for the parents who responded to the long self-administered questionnaire; (3) data for the parents who responded to both the long self-administered questionnaire and short telephone interview; (4) diagnostic variables derived from the data collected from the adolescents and parents; (5) K-BIT scores normed to the NCS-A adolescent sample; and (6) raw K-BIT data.

The Epidemiologic Catchment Area (ECA) program of research was initiated in response to the 1977 report of the President's Commission on Mental Health. The purpose was to collect data on the prevalence and incidence of mental disorders and on the use of and need for services by the mentally ill. Independent research teams at five universities (Yale University, Johns Hopkins University, Washington University, Duke University, and University of California at Los Angeles), in collaboration with the National Institute for Mental Health, conducted the studies with a core of common questions and sample characteristics. The sites were areas that had previously been designated as Community Mental Health Center catchment areas: New Haven, Connecticut, Baltimore, Maryland, St. Louis, Missouri, Durham, North Carolina, and Los Angeles, California. Each site sampled over 3,000 community residents and 500 residents of institutions, yielding 20,861 respondents overall. The longitudinal ECA design incorporated two waves of personal interviews administered one year apart and a brief telephone interview in between (for the household sample). The diagnostic interview used in the ECA was the NIMH Diagnostic Interview Schedule (DIS), Version III (with the exception of the Yale Wave I survey, which used Version II). Diagnoses were categorized according to the DIAGNOSTIC AND STATISTICAL MANUAL OF MENTAL DISORDERS, 3rd Edition (DSM-III). Diagnoses derived from the DIS include manic episode, dysthymia, bipolar disorder, single episode major depression, recurrent major depression, atypical bipolar disorder, alcohol abuse or dependence, drug abuse or dependence, schizophrenia, schizophreniform, obsessive compulsive disorder, phobia, somatization, panic, antisocial personality, and anorexia nervosa. The DIS uses the Mini-Mental State Examination (MMSE), which measures cognitive functioning, as an indirect measure of the DSM-III Organic Mental Disorders. In the ECA survey, this diagnosis is called cognitive impairment.

This collection features data from 17,327 participants across 2,005 variables. Data from the Los Angeles, California, Catchment (UCLA) are not included. Baseline data (Wave 1) and Wave 2 data were linked to the National Death Index through 2007, which includes primary and contributing causes of death, International Classification of Disease (ICD) codes, and nature of injury variables.

The National Survey of American Life Adolescent Supplement (NSAL-A), 2001-2004, was designed to estimate the lifetime-to-date and current prevalence, age-of-onset distributions, course, and comorbidity of DSM-IV disorders among African American and Caribbean adolescents in the United States; to identify risk and protective factors for the onset and persistence of these disorders; to describe patterns and correlates of service use for these disorders; and to lay the groundwork for subsequent follow-up studies that can be used to identify early expressions of adult mental disorders. In addition and similar to the NSAL adult dataset (Collaborative Psychiatric Epidemiology Surveys (CPES), 2001-2003 [United States] (ICPSR 20240)), the adolescent dataset contains detailed measures of health; social conditions; stressors; distress; racial identity; subjective, neighborhood conditions; activities and school; media; and social and psychological protective and risk factors. Numerous variables from the adult dataset have been merged into the adolescent dataset, as the NSAL adult and adolescent respondents reside in the same households. Some of these variables apply to the entire household (i.e. region, urbanicity, and family income), while others apply specifically to the NSAL adult respondent living in the adolescent's household (i.e. adult years of education, adult marital status, and adult nativity [foreign-born vs. US born]). The immigration measures were asked of Caribbean black adult respondents only. No comparable measures assess the immigration and generational status of the Caribbean black adolescent respondents. The adult dataset measures are merged into the adolescent dataset to assist in approximating these measures for adolescent respondents. The NSAL adolescent dataset also includes variables for other non-core and experimental disorders. These include tobacco use/nicotine dependence, premenstrual syndrome, minor depression, recurrent brief depression, hypomania, and hypomania sub-threshold. Demographic variables include age, race and ethnicity, ancestry or national origins, height, weight, marital status, income, and education level.

The NCS-2 was a re-interview of 5,001 individuals who participated in the Baseline (NCS-1). The study was conducted a decade after the initial baseline survey. The aim was to collect information about changes in mental disorders, substance use disorders, and the predictors and consequences of these changes over the ten years between the two surveys. The collection contains three major sections: the main survey, demographic data, and diagnostic data.

In the main survey, respondents were asked about general physical and mental health. Questions focused on a variety of health issues, including limitations caused by respondents' health issues, substance use, childhood health, life-threatening illnesses, chronic conditions, medications taken in the past 12 months, level of functioning and symptoms experienced in the past 30 days, and any services used by the respondents since the (NCS-1). Additional questions focused on mental disorders including depression, bipolar disorder, specific and social phobias, generalized anxiety, intermittent explosive disorder, suicidality, post-traumatic stress disorder, neurasthenia, pre-menstrual dysphoric disorder, attention deficit/hyperactivity disorder, oppositional defiant disorder, conduct disorder, and separation anxiety. Respondents were also asked about their lives in general, with topics including employment, finances, marriage, children, their social lives, and stressful life events experienced in the past 12 months. Additionally, two personality assessments were included consisting of respondents' opinions on whether various true/false statements accurately described their personalities. Another focus of the main survey dealt with substance use and abuse, nonmedical use of prescription drugs, and polysubstance use. Interview questions in the NCS-2 Main Survey were customized to each respondent based on previous responses in the Baseline (NCS-1).

The middle section contains demographic and other background information including age, education, employment, household composition, household income, marital status, and region.

The last section of the collection focused on whether respondents met diagnostic criteria for psychological disorders asked about in the main survey.

Overview

The North Carolina Integrated Data for Researchers (NCIDR, pronounced "Insider") was funded to develop a robust research data warehouse for storing merged data from four different publicly-funded sources in North Carolina. Community Care of North Carolina maintains this unique database on behalf of the North Carolina Department of Health and Human Services, and facilitates requests for access to integrated behavioral health services data for research purposes. This expanded data set has great value to researchers in North Carolina and elsewhere. The NCIDR warehouse is a unique resource for obtaining the most complete picture of the health services delivered to people with severe mental illness in North Carolina. Few examples of such an integrated warehouse exist anywhere else, and NCIDR makes it possible for researchers and epidemiologists to conduct comparative effectiveness research related to people with these conditions.

The merged data sources include:

• Medicaid claims and enrollment data for nearly 1 million individuals with MH, DD and SA diagnoses.
• IPRS (Integrated Payment and Reporting System) -- covers primarily outpatient mental health services for people that do not qualify for Medicaid (approximately 250,000 individuals).
• HEARTS (Healthcare Enterprise Accounts Receivable Tracking System) -- documents services delivered by inpatient State Mental Health facilities (approximately 25,000 individuals).
• Piedmont Behavioral Health (Medicaid waiver) -- behavioral health encounter data from Medicaid's capitated arrangement in five counties (approximately 25,000 individuals).

Data are available for four state fiscal years, 2008 through 2011 (7/1/2007--6/30/2011). Each year has three data sets (claims, client, provider) in addition to multiple lookup tables with definitions. Population includes any Medicaid client with a claim that contains any MH, DD or SA (290xx through 319xx) diagnosis at least once in the four year time period, plus all clients appearing in the other 3 data sources. Requests will need to specify required time periods and clearly define the population being studied. Note that individuals dually enrolled with Medicare during months in which they are dually enrolled are excluded.

The data available for future use will include a claims file, a client file, a provider file and multiple lookup files. The claims file contains approximately 83 columns including 30 columns for diagnosis codes. The client file is approximately 78 columns which displays 12 columns each (one for each month in the SFY) for eligibility, enrollment, assigned network, primary care physician and dual status indicator. There are 5 columns in the Provider file. The lookup file will contain tables for every code that requires a description. The data will be parsed into individual state fiscal years.

Data Access

These data are not available from ICPSR. The process for requesting access to the integrated data is detailed on the NCIDR Web site, specifically the Request Process Overview page. Researchers interested in requesting access are strongly encouraged to contact the Director of Evaluation at [email protected] to discuss his/her intent to submit a Request Form. Some may also need to complete the Data Use Agreement if requesting data that are not completely de-identified.

Although IRB approval must be documented prior to release of data, NCIDR will accept applications with conditional IRB approval and researchers may discuss projects with the Director of Evaluation at any stage of development. A Research Oversight Committee (ROC) that includes stake holders from the NC Department of Health and Human Services (DHHS), the NC Division of Medical Assistance (DMA), the NC Division of State Operated Healthcare Facilities (DSOHF), the NC Division of Mental Health, Developmental Disabilities and Substance Abuse Services (DMHDDSAS), the NC Office of Rural Health and Community Care (ORHCC), the Community Care of North Carolina (CCNC) and other community partners will review research requests and grant approval when applicable. Once approved, please note that CCNC must charge a nominal fee of $3,000 to cover costs related to the preparation and transmission of files to the researcher (additional charges may apply depending on the specific programming needs).