ABC News 9/11 Anniversary Poll, September 2006 (ICPSR 4665)
ABC News Media Poll, January 1997 (ICPSR 2171)
ABC News Personal Liberty Poll, April 1995 (ICPSR 3842)
ABC News Privacy and Harassment Poll, June 1994 (ICPSR 3845)
ABC News/Washington Post Monthly Poll #1, January 2006 (ICPSR 4654)
ABC News/Washington Post Poll, December 2006 (ICPSR 22165)
ABC News/Washington Post Poll, July 2007 (ICPSR 24589)
ABC News/Washington Post Poll, June 2005 (ICPSR 4328)
Access to Justice in Ontario, 1985-1988 (ICPSR 9729)
Building Data Registries with Privacy and Confidentiality for Patient-Centered Outcomes Research (PCOR) [Methods Study], 2020 (ICPSR 39579)
Researchers can use patient health data to compare treatments. But these data may include information, like names or social security numbers, that could identify patients. Researchers use different methods to remove such information and protect patients' privacy. Some methods work well to protect privacy but may make data less useful for research. Other methods don't protect privacy well enough.
Current methods for protecting privacy don't work well when:
- The number of patients in the data set is smaller than the number of data fields, such as patient traits or health conditions, and data are updated many times
- Patients' health and treatments are measured at more than one point in time
- Data are displayed as a graph to better capture some types of content
In this study, the research team created three new methods. The team wanted to see if the new methods better protect patient privacy but also make sure data remain useful for research.
To access the methods and software, please visit the AIMS Group at Emory University.
CBS News Monthly Poll #2, April 2002 (ICPSR 3693)
CBS News Monthly Poll #2, March 2004 (ICPSR 4016)
CBS News Monthly Poll #2, May 2006 (ICPSR 4617)
CBS News/New York Times Poll, November 2013 (ICPSR 36063)
CBS News Poll, January 2014 (ICPSR 36194)
CBS News Poll, July 2013 (ICPSR 36058)
CBS News Poll, June 2013 (ICPSR 36057)
Compendium of State Privacy and Security Legislation, United States, 2002-2015 (ICPSR 37826)
Euro-barometer 36.0: Regional Identity and Perceptions of the Third World, Fall 1991 (ICPSR 9771)
Eurobarometer 45.1: European Union Rights, Sun Exposure, Work Safety, and Privacy Issues, April-May 1996 (ICPSR 6749)
Eurobarometer 46.1: Modern Biotechnology, Privacy on Computer Networks, and the Common European Currency, October-November 1996 (ICPSR 6940)
Eurobarometer 60.0: Consumer Rights, Data Protection, Education Through Sport, Product Safety, E-Commerce, Attitudes Towards People With Disabilities, and the Euro, September 2003 (ICPSR 3951)
Eurobarometer 65.4: Discrimination in the EU, Organized Crime, Medical Research, Vehicle Intelligence Systems, and Humanitarian Aid, June-July 2006 (ICPSR 21442)
Eurobarometer 74.3: The European Parliament, Energy Supply, Data Protection and Electronic Identity, Chemical Labeling and Rare Diseases, November-December 2010 (ICPSR 34264)
The Eurobarometer series is a unique cross-national and cross-temporal survey program conducted on behalf of the European Commission. These surveys regularly monitor public opinion in the European Union (EU) member countries and consist of standard modules and special topic modules. The standard modules address attitudes towards European unification, institutions and policies, measurements for general socio-political orientations, as well as respondent and household demographics. The special topic modules address such topics as agriculture, education, natural environment and resources, public health, public safety and crime, and science and technology.
This round of Eurobarometer surveys diverged from the Standard Eurobarometer measures and queried respondents on the following major areas of focus: (1) the European Parliament (EP), (2) energy supply, (3) data protection and electronic identity, (4) chemical labeling, and (5) rare diseases. For the first major area of focus, the European Parliament, respondents were asked about their knowledge and opinion of the EP, whether the EP should play a more important or less important role, which policies should be given priority by the EP, and which values should be defended by the EP. For the second major area of focus, energy supply, respondents were queried about what goals should be prioritized in energy policies, what energy policies should be adopted, and whether or not there should be a communal European Union (EU) energy policy. Additionally, respondents were asked whether they believed it was in their country's energy security interest to assist other EU member states facing energy supply problems, as well as whether they believed it was desirable that their country provide assistance to other EU member states in the name of European solidarity. For the third major area of focus, questions address activities one performs on the Internet, opinions about types of information and data considered to be personal, types of information disclosed on social networking and online shopping sites and the risks, and measures taken to protect one's identity. Opinions were also collected on how personal information and data are acquired, treated, stored and protected by public and private organizations. For the fourth major area of focus, chemical labeling, respondents were asked about their use and perception of chemical products in various circumstances, how they determine whether or not a chemical product is hazardous, what the proper handling of chemical products is, where respondents find information about the potential dangers of chemical products, who to trust for information about chemical product safety, and whether or not they could correctly identify chemical product warning labels. For the fifth major area of focus, rare diseases, respondents were interviewed about what they believe rare diseases are, whether or not they knew or heard of someone with a rare disease, what society should do about rare diseases, what specific policy responses to rare diseases should be implemented by national health services and the EU as a whole, as well as whether or not they had heard of certain rare diseases.
Demographic and other background information collected includes age, gender, nationality, marital status and parental relations, left-right political self-placement, occupation, age when stopped full-time education, household composition, ownership of a fixed or a mobile telephone, difficulties in paying bills, level in society, and Internet use. In addition, country-specific data includes type and size of locality, region of residence, and language of interview (select countries).
Eurobarometer 79.1: E-Communications in the Household and Corruption, February-March 2013 (ICPSR 35083)
The Eurobarometer series is a unique cross-national and cross-temporal survey program conducted on behalf of the European Commission. These surveys regularly monitor public opinion in the European Union (EU) member countries and consist of standard modules and special topic modules. The standard modules address attitudes towards European unification, institutions and policies, measurements for general socio-political orientations, as well as respondent and household demographics. The special topic modules address such topics as agriculture, education, natural environment and resources, public health, public safety and crime, and science and technology.
This round of Eurobarometer surveys covers the following special topics: (1) E-Communications, and (2) Corruption. In regard to the E-Communications, respondents were queried about goods they own such as television, music player, DVD player, computer, household and mobile telephone. They were also asked about internet access and its use for phone calls, quality of their mobile network service as well as the cost and utility. In regard to corruption, respondents were asked if they were required to make an extra payment, gift or donation to a hospital or hospital staff for care. Opinions were collected on the degree of acceptable gift giving, scope of corruption in the country, change in corruption over the last three years, which groups are involved in widespread corruption and knowledge of case corruption and bribes for services.
Demographic and other background information collected includes age, gender, nationality, marital status, occupation, age when stopped full-time education, household composition, ownership of a fixed or a mobile telephone and other goods, difficulties in paying bills, level in society, and Internet use. In addition, country-specific data includes type and size of locality, region of residence, and language of interview (select countries).
Eurobarometer 83.1: Europeans in 2015, Data Protection and the Internet, February-March 2015 (ICPSR 36665)
The Eurobarometer series is a unique cross-national and cross-temporal survey program conducted on behalf of the European Commission. These surveys regularly monitor public opinion in the European Union (EU) member countries and consist of standard modules and special topic modules. The standard modules address attitudes towards European unification, institutions and policies, measurements for general socio-political orientations, as well as respondent and household demographics. The special topic modules address such topics as agriculture, education, natural environment and resources, public health, public safety and crime, and science and technology.
This round of Eurobarometer surveys covers the following special topics: (1) Europeans in 2015 and (2) Data Protection and the Internet. Regarding these two topics, respondents were asked about their Internet activity, personal data disclosure, online data disclosure reasons, government data collection revelations, online data disclosure risks, social web privacy, and data protection complaints. In addition, respondents were asked their opinions on the economic situation in their countries, how much they trusted certain institutions, and how often they discuss political matters with friends or relatives.
Demographic and other background information collected includes age, gender, nationality, language, marital status, occupation, age when stopped full-time education, household composition, ownership of durable goods, difficulties in paying bills, self-assessed social class, and Internet use. In addition, country-specific data includes type and size of locality, region of residence, and language of interview (select countries).
General Social Survey, 1972-2010 [Cumulative File] (ICPSR 31521)
General Social Survey, 1972-2012 [Cumulative File] (ICPSR 34802)
General Social Survey, 1972-2014 [Cumulative File] (ICPSR 36319)
General Social Survey, 1972-2016 [Cumulative File] (ICPSR 36797)
Geoprivacy Attitudes and Personal Location Masking Strategies of Internet Users, California, 2017-2018 (ICPSR 37870)
The Impact of Social Media Characteristics and Customer Attitude on EWOM : Empirical Study in Jordan Banking Sector (ICPSR 133441)
Improving Methods for Linking Secondary Data Sources for Comparative Effectiveness Research (CER)/Patient-Centered Outcomes Research (PCOR) [Methods Study], United States, 2008-2019 (ICPSR 39614)
Researchers often combine patient health data from different sources, such as claims and health records. These data contain personal information, such as names and social security numbers.
In this study, the research team wanted to learn patients' views on sharing and combining health data for research. The team surveyed patients about their views on
- Sharing health and personal data, such as social security numbers
- Benefits and risks of data sharing
- Ways to help patients feel comfortable sharing health data
Incremental Privacy-Preserving Record Linkage (iPPRL) to Reduce Barriers to Data Sharing and Improve Data Quality [Methods Study], Colorado, 2011-2022 (ICPSR 39738)
Researchers often have trouble collecting complete information on patient health, as patients may receive care at different places. Linking patient records from different places may help researchers get a more complete picture.
One way to link records is through personal information, such as names and birth dates. But this method increases risks to patient privacy. Another way, known as privacy-preserving record linkage, or PPRL, masks personal information. But current PPRL methods only work when linking entire sets of patient data, including data that have already been shared and linked. Linking entire data sets takes a long time. Also, sharing the same records multiple times increases data privacy risks.
In this study, the research team developed and tested a new PPRL method called incremental PPRL. This method links only new or updated data rather than re-linking entire data sets.
Roper Center for Public Opinion Research (ICPSR 167)
Survey of Consumer Attitudes and Behavior, June 2010 (ICPSR 35434)
Survey of Consumer Attitudes and Behavior, May 2004 (ICPSR 35361)
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter.
The surveys conducted in 2004 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, computers, and other durables. Also explored in this survey, were respondents' types of savings and financial investments, loan use, family income, and retirement planning.
Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information includes ethnic origin, sex, age, marital status, and education.