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Showing 1 – 22 of 22 results.
Curated

CBS News/New York Times National Survey, March #1, 2011 (ICPSR 33487)

Released/updated on: 2012-05-25
Geographic coverage: United States
This poll, fielded March 2-7, 2011, is a part of a continuing series of monthly surveys that solicits public opinion on a range of political and social issues. Respondents were asked whether they were satisfied with the quality of health care they receive, whether they thought that doctors make too much money, where they usually receive their basic health care, and whether their doctor is in a small private practice or a group practice. Opinions were gathered on the quality of the respondent's drinking water, how concerned they were about contamination of soil and water in their community, the importance for the United States to develop an alternative to oil, whether using nuclear energy, renewable energy, natural gas, and coal to generate electricity was a good idea, whether there is too much federal regulation of the natural gas industry, the industrial disposal of contaminated water and the hydraulic fracturing industry, and whether they thought hydraulic fracturing was safe. Respondents were also asked how important they thought it was for girls to have the same amount of opportunities in high school sports as boys, how much they knew about Title IX and whether its impact has been positive, and whether they favor programs that make special efforts for minorities to get ahead. Respondents were queried on program cuts and raising taxes to reduce government spending and the federal budget deficit, whether American corporations pay their fair share of income taxes, whether taxes on corporate profits should be increased, and whether all companies should pay the same income tax rate. Additional topics included race relations, gender relations, and the September 11, 2001 terrorist attacks. Demographic information includes sex, age, race, marital status, education level, household income, employment status, religious preference, type of residential area (e.g., urban or rural), political party affiliation, political philosophy, voter registration status, and whether respondents thought of themselves as born-again Christians.
Curated

CBS News/New York Times Women's Health Poll, May 1997 (ICPSR 4490)

Released/updated on: 2008-05-30
Geographic coverage: United States
This special topic poll, fielded May 19-22, 1997, is part of a continuing series of monthly surveys that solicit public opinion on the presidency and on a range of other political and social issues. The focus of this data collection was men's and women's health issues. Respondents were asked about health-related topics such as what they thought was the leading cause of death for women, the perceived differences in men's and women's health and their interactions with their doctors, what they thought were the most serious diseases or medical problems facing the country, and whether they thought the federal government spends more money researching health problems as they relate to men or more money researching health problems as they relate to women. Female respondents were polled on whether a doctor had ever discussed mammograms with them, whether they ever had a mammogram, how trustworthy, safe, and painful mammograms were, at which age women should begin getting mammograms, and how often they conducted breast self-examinations. All respondents were asked whether they tried alternative medicine, whether they had considered trying alternative medicine, and whether they would choose alternative medicine instead of traditional medicine. A series of questions were asked about the type of interactions respondents had with their doctors such as whether respondents felt intimidated by their doctors, how comfortable respondents felt asking their doctors a lot of questions, whether respondents thought their doctors spoke down to them, and whether respondents usually call their doctors by their first name. Respondent's views were also sought on other topics such as the respondent's state of health, menopause, and hormone replacement therapy. Demographic variables included sex, age, race, education level, employment status, presence of children and teenagers in the household, household income, marital status, political party affiliation, political philosophy, type of residential area (e.g., urban or rural), and religious preference.
Curated

Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1978-01-01--1979-01-01
This data collection evaluates group medical practices and the ways in which they affect both access to and use of medical services. Group practices, sponsored by the Robert Wood Johnson Foundation Community Hospital Program (CHP), were selected for use in this assessment. The data were collected by the Center for Health Administration Studies at the University of Chicago, with the assistance of Chilton Research Services. Two surveys were conducted for the study: a baseline survey in 1978-1979 and a follow-up in 1981. Community residents and CHP patients in 12 communities were interviewed. Demographic and medical care data were collected for selected individuals and families in the survey areas. Data on regular sources of medical care for individuals include the type of organization used, type of practice, accessibility, frequency of visits, types of health care professionals seen, cost, and satisfaction. Also in the collection are data on perceived health, episodes of illness (including symptoms, duration, disability days, and doctors consulted), use of preventive health care services, and insurance coverage. Demographic data for individuals and families include age, sex, race, educational attainment, employment, and income. Of the 198 files in this collection, 88 are "raw" data files and 110 are frequencies. The data files consist of four types. The first type are Sample Person files. These contain the responses of group practice patients and community members. The second type are Doctor Episode files, which record doctors and episodes of illness. Family files make up the third type of file, and consist of family members' responses to the survey. Analysis files, linking patient and doctor data, are the fourth type of file. The SPSS frequency files correspond to the data files: two per file for the Sample Person files, and one per file for the remaining three types of files.
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Partially restricted

Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-01, 1997-10-01--1998-08-01
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Partially restricted

Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-01-01
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Partially restricted

Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
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Partially restricted

Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-01-01
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
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Partially restricted

Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2004-01-01--2005-01-01
This is the fourth round of the physician survey component of the Community Tracking Study (CTS). The first round was conducted in 1996-1997 (ICPSR 2597), the second round in 1998-1999 (ICPSR 3267), and the third in 2000-2001 (ICPSR 3820). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the American health care system and their effects on people. As in the previous rounds, physicians were sampled in the 60 CTS sites: 51 metropolitan and 9 nonmetropolitan areas that were randomly selected to form the core of the CTS and to be representative of the nation as a whole. However, the fourth round lacks an independent supplemental national sample of physicians, which augmented the CTS site sample in the previous rounds. Information collected by the survey includes net income from the practice of medicine, year of birth, sex, race, Hispanic origin, year of graduation from medical school, specialty, board certification status, compensation model, patient mix (e.g., race/Hispanic origin of patients and percent with chronic conditions), career satisfaction, practice type, size, and ownership, percent of practice revenue from Medicare, Medicaid, or managed care, acceptance of new Medicaid and Medicare patients and, if applicable, reasons for not accepting them, use of information technology for care management, number of patient visits and hours worked in medically related activities during the last complete week of work, and the number of hours spent providing charity care in the last month. In addition, the survey elicited views on a number of issues such as patient-physician interactions, competition among practices, the influence of financial incentives on the quantity of services provided to patients, trends in the amount and quality of nursing support, one's ability to provide quality care and obtain needed services for patients, and the importance of various factors that may limit the quality of care. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the average percentage of patients with a formulary, and the percentage of physicians who said medical errors in hospitals are a minor problem.
Curated
Simple Crosstabs

Connecticut Health Care Survey, 2012-2013 (ICPSR 35475)

Released/updated on: 2014-11-05
Geographic coverage: United States, Connecticut
Time period: 2012-06-01--2013-02-01
The Connecticut Health Care Survey was a statewide, random-digit dial telephone survey conducted from June 2012 to February 2013. The goal of the survey was to gather health-related experiences, information, and perspectives from Connecticut residents about themselves and children within their households. The survey provides state-level data on the health and health care of Connecticut residents, including health insurance coverage, access and sources of care, continuity of care, health status, and patient-provider experience and communication. Demographic variables include gender, age, race/ethnicity, and health reference group.
Curated

Detroit Area Study, 1999: Life and Death Decision Making (ICPSR 4121)

Released/updated on: 2009-09-02
Geographic coverage: Detroit, United States, Michigan

For this survey, respondents from three counties in the Detroit, Michigan, area were queried about their health, satisfaction with their health care, end of life decisions, policies about life and death decisions, and experiences with life and death decisions. The first set of questions asked respondents to rate their own health and to indicate whether they had seen a health care professional in the past five years as well as what type of health professional they had seen. They were also asked whether or not they trust the health care provider's judgment on medical decisions and whether they felt that a doctor or family members would follow the respondent's instructions for life sustaining procedures. The survey also explored how satisfied respondents were with the amount of time they spent with their doctor and the doctor's response to questions as well as their honesty and concern for their patient. Additional questions asked respondents how concerned HMO's are with costs and patient health and what their opinions were on how much money is spent on medical technology and care for terminally ill patients. Another set of questions sought respondent's opinions on terminating a patient's life support in a variety of different situations, including the treatment of critically ill infants. The survey also asked whether respondents or their family had ever experienced an end-of-life decision, whether they have discussed end-of-life decisions, and what types of methods they would consider. Respondents were also asked about their attitudes on the death penalty, abortion in certain situations, physician assisted suicide and the 1998 proposal to legalize physician assisted suicide. Background information includes marital status, employment, political orientation, and income.

Curated

Do Older Adults Know Their Spouses' End-of-Life Treatment Preferences? (ICPSR 25701)

Released/updated on: 2009-06-23
Geographic coverage: United States
When terminally ill patients become mentally incapacitated, their surrogates often make treatment decisions in collaboration with health care providers. The authors examined how surrogates' errors in reporting their spouses' preferences are affected by their gender, status as durable power of attorney for health care (DPAHC), whether they and their spouses discussed end-of-life preferences, and their spouses' health status. Structural equation models were applied to data from married couples in their mid-60s from the 2004 wave of the Wisconsin Longitudinal Study. Surrogates reported their spouses' preferences incorrectly 13 percent and 26 percent of the time in end-of-life scenarios involving cognitive impairment and physical pain, respectively. Surrogates projected their own preferences onto their spouses'. Similar patterns emerged regardless of surrogate gender and status as DPAHC, marital discussions about end-of-life preferences, or spousal health status. Implications for the process of surrogate decision-making and for future research are discussed.
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Partially restricted

Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)

Released/updated on: 2011-04-15
Geographic coverage: United States

The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.

At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.

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Health Tracking Physician Survey, 2008 [United States] (ICPSR 27202)

Released/updated on: 2010-08-17
Geographic coverage: United States
The 2008 Health Tracking Physician Survey (HTPS) is the successor to the Community Tracking Study (CTS) Physician Surveys which were conducted in 1996-1997 (ICPSR 2597), 1998-1999 (ICPSR 3267), 2000-2001 (ICPSR 3820), and 2004-2005 (ICPSR 4584). Unlike the previous surveys, HTPS does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTPS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Administered to a nationally representative sample of United States physicians providing direct patient care, HTPS collected information on physician characteristics and specialty distribution; career satisfaction; practice arrangements and ownership; financial interest in medical equipment and hospitals; and physician time allocation, including hours worked, number of office visits, time spent communicating with patients via e-mail and telephone, and provision of charity care. The survey also collected information about the racial and Hispanic-origin composition of patients; percent of patients with chronic conditions; percent of patients with a language barrier; use of interpreter services; sources of practice revenue; level and determinants of physician compensation; use of health information technology; physicians' perception of their ability to deliver care; effects of disease management programs and formal practice guidelines; extent of care coordination; malpractice concerns; and various other aspects of physicians' practice of medicine.
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Partially restricted

Impact of the Internet and Advertising on Patients and Physicians, 2000-2001: [United States] (ICPSR 3994)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-01-01
This study investigated public reactions and physicians' views on the effects of direct-to-consumer advertising (DTCA) of prescription medications and health information on the Internet. To this end, separate surveys of the general public (Part 1) and physicians (Part 2) were conducted. The Survey of the Public collected data on demographics, health status, health insurance coverage, perceived quality of medical care, sources of medical information, and attitudes toward and experience with DTCAs and health information on the Internet. Respondents who had seen a DTCA or health information on the Internet in the past 12 months, perceived it as personally relevant, and discussed it with their physician were asked about the last time they had done this, e.g., whether they scheduled the doctor visit specifically because they wanted to discuss information they got from the Internet, whether, during or after the visit, the doctor diagnosed them with the disease or medical condition that a DTCA related to, and whether or not their physician ordered a test, changed their medication or treatment, or referred them to a specialist when they talked about a DCTA during the visit. Similarly, the Survey of Physicians explored the most recent occasion when physicians talked to a patient about information the patient found on the Internet or obtained from a DTCA. Physicians expressed their views on the impact of this information on health outcomes, health service utilization, and the physician-patient relationship. Additional topics covered by the Survey of Physicians included the role physicians played in their patients' health care decisions and role they would like to play in these decisions, physicians' use of the Internet for purposes related to the practice of medicine, and physicians' practice profiles, income, age, race, and Hispanic origin. The data from the Survey of Physicians include variables from the American Medical Association's (AMA) master files such as sex, type of medical specialty, and year of graduation from medical school.
Curated
Simple Crosstabs

Los Angeles Metropolitan Area Surveys [LAMAS] 6, 1973 (ICPSR 36615)

Released/updated on: 2017-10-30
Geographic coverage: United States, Los Angeles, California

The Los Angeles Metropolitan Area Studies [LAMAS] 6, 1973 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Studies (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.

The LAMAS instruments, indexes, and scales used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this year of the LAMAS cover respondents' attitudes toward the following topics: air pollution, health care services in the community, local government politics, police relations, recreation and leisure time. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: sleep habits, the true self, impact of computers, job seeking behavior, and mental health and psychological factors.

Demographic variables in this collection include sex, age, race, ethnicity, education, occupation, income, religion, marital status, birth place, and housing type.

Curated

National Study of Internal Medicine, Physician Practice Study, Phase III, 1981 (ICPSR 8301)

Released/updated on: 2006-01-12
Geographic coverage: United States
This data collection contains information on the practices of young internists in order to understand the determinants of different practice styles, especially the relationship between training and practice, and to compare the practices of four groups of physicians: (1) general internists with traditional residencies, (2) general internists who received their residency training in special primary care tracks, (3) family physicians, and (4) subspecialty internists. The study queried a national sample of residents and fellows who were in training during 1976-1977 about their current positions, activities, patients, physician-patient relationships, family backgrounds, and educational training histories. Patients of these doctors were also surveyed. Demographic characteristics, such as age, sex, race, educational level, work status, marital status, and income, were recorded for the patient respondents. Background information on physicians includes family, educational history, and income.
Curated
Simple Crosstabs

National Study of Physician Organizations (NSPO3), United States, 2012-2013 (ICPSR 38587)

Released/updated on: 2023-01-31
Geographic coverage: United States
Time period: 2012-01-01--2013-11-30
The National Study of Physician Organizations was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. This survey, the third NSPO survey of IPAs and medical groups (NSPO2), examined over 2000 physician organizations of all sizes. As in prior surveys, NSPO3 collected demographic information about the following practices and assesses: (1) use of clinical information technology; (2) use of care management processes to improve the quality of care for four chronic conditions (asthma, congestive heart failure, depression, and diabetes); (3) provision of clinical preventive services and health promotion; (4) exposure to external performance incentives such as pay for performance and public reporting; (5) payer mix, forms of compensation from health plans, and forms of compensation paid by the practice to its physicians; (6) organizational culture. In addition, NSPO3 asked about participation or intended participation in Accountable Care Organizations (ACOs).
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Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States] (ICPSR 22482)

Released/updated on: 2010-06-16
Geographic coverage: United States, New England
Time period: 2004-01-01--2006-01-01
The research study Positive Connections tested the Health Systems Navigation (HSN) model, an intervention linking near-peer interventionists with underserved HIV-infected individuals to assist them to become engaged and retained in HIV medical care through supportive services and facilitated referrals. Working with a core group of local AIDS service organizations to identify unstable and out-of-care HIV-positive individuals, the HSN will enroll and provide health system navigation to participants. The principal goal was to enhance the probability that individuals from historically underserved populations would become engaged and retained in high quality, culturally competent HIV care. The theoretical basis for this intervention included individual behavior change models, social and community networks, and provider cultural competence. This project also sought to improve the understanding and the measurement of health care access problems by seeking to determine which problems have indicators and which do not, and to identify steps that can be taken to develop a reliable access monitoring system. The concept of Health Systems Navigator has been developed by the Multicultural AIDS Coalition.
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Preventing Ethical Disasters in the Practice of Medicine, United States, 2008-2016 (ICPSR 38314)

Released/updated on: 2022-11-03
Geographic coverage: United States
Time period: 2008-01-01--2016-05-27

Researchers researched and analyzed 280 cases of serious wrongdoing in medicine involving three kinds of violations: improper prescribing of controlled substances (IPCS), sexual abuse of patients (SAP), and unnecessary invasive procedures (UIP). They focused on these three types of wrongdoing because each is traumatizing to patients, causing physical and emotional harm, financial loss, and sometimes death. They are often the cause of major disciplinary actions by medical boards.

The methodological approach involved identifying potential cases of serious wrongdoing through systematic literature reviews of court records, medical boards reports, newspaper articles, and online materials for each case. Using a detailed codebook, researchers performed descriptive coding of the literature and used a criminal law framework to identify the salient individual and environmental factors that predicted motive, means, and opportunity (MMO) for each case. Within each of the three types of wrongdoing, they identified typologies of cases using qualitative analysis.

Finally, researchers held a working group meeting with experts to reach a consensus on how findings can inform medical education, policies, and oversight practices to reduce the rates and the duration of serious wrongdoing.

Curated

Promoting Shared Decision-Making About Colorectal Cancer Testing for Older Adults (PRIMED) Study, Maine and Massachusetts, 2019-2022 (ICPSR 39523)

Released/updated on: 2026-04-30
Geographic coverage: United States, Massachusetts, Maine
Time period: 2019-01-01--2022-01-01

As people age, medical decisions become more complex, including conversations about cancer screening. For patients aged 76-85, the United States Preventive Services Task Force (USPSTF) advises clinicians that decisions about colorectal cancer (CRC) screening should be individualized based on overall health and prior screening history (C recommendation). However, studies find that many older adults are not well-informed about, nor meaningfully engaged in, decisions about whether to continue CRC screening. Shared decision making (SDM) has been shown to improve the quality of decisions about initiating cancer screening but little is known about its effectiveness for decisions about stopping interventions. This study addresses a gap in the understanding of how to support clinicians and older patients in making good decisions about whether to continue CRC screening or not.

The researchers conducted a comparative effectiveness trial that randomly assigned clinicians at participating academic and community practices to one of two different decision support strategies. The first strategy (Registry arm) took a population health management (PHM) approach and used a patient registry to identify and track use of CRC screening among older adults for each clinician. The second strategy enhanced the registry by adding a multi-faceted SDM training program for clinicians (SDM Skills arm). The researchers enrolled patients of participating primary care providers (PCPs), aged 76-85, who are due or overdue for CRC screening, and survey them shortly after an office visit to determine the impact of the two strategies on outcomes of importance to patients. The study randomly assigned about 60 participating PCPs to the SDM skills or Registry arms, and enroll about 500 of their eligible patients.

Curated

Public Health Impact of Direct-to-Consumer Advertising of Prescription Drugs, July 2001-January 2002: [United States] (ICPSR 3687)

Released/updated on: 2003-04-25
Geographic coverage: United States
Time period: 2001-07-09--2002-01-16
Using patient self-reports, this study addressed three major questions: (1) What sorts of conditions or problems are discussed during physician visits that include a discussion about a Direct to Consumer (DTC) Advertising drug? (2) What actions are taken by physicians, including additional tests and treatments, as a result of these visits? and, (3) Do outcomes of care differ according to whether the patient takes the DTCA drug that was discussed during the visit or some other drug? Survey questions focused on five main topics: health status and utilization, experience with DTC advertising, visits to doctor to discuss information, outcomes, and health insurance. Respondents were asked to describe their overall health, the estimated time since their last doctor visit, whether they currently took any prescription medications, and from what sources and how often they received medical information. Respondents were also questioned on whether they were familiar with prescription drug advertisements, in what media they had seen such advertisements, whether friends had ever mentioned such advertisements to them, whether those advertisements had provided useful information, and whether such advertisements had ever prompted them to speak to a doctor about taking a prescription drug. Respondents were also queried on the primary ailment about which they had spoken to their doctor, whether their doctor had ever prescribed a drug or drugs to treat that ailment, whether that drug was the same drug they had seen in advertisements, and whether they had filled and taken that prescription. Additional questions were asked of the respondents regarding the results of taking the prescribed drug, satisfaction with the drug's performance, whether they experienced any side effects from the drug, and whether the drug affected their ability to work. Those surveyed were also asked whether they had health insurance and whether that insurance paid in part or in full for their prescription drugs. Background information includes sex, age, race, marital status, employment status, education level, and income level.
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Partially restricted

Robert Wood Johnson Foundation Family Health Insurance Survey, 1993 (ICPSR 6894)

Released/updated on: 2005-06-22
Geographic coverage: Oregon, Vermont, New York, United States, New Mexico, Oklahoma, Colorado, Minnesota, Florida, North Dakota, Washington
Time period: 1993-01-01--1994-01-01
This survey investigated health insurance coverage, as well as access to and use of health services, in each of ten states. With the goal of remedying the previous lack of state-level data, the survey was conducted to aid in defining problems of insurance coverage and to analyze the impacts of states' policy options. The main unit of observation is the health insurance family, which includes the head, spouse, and their children up to age 18, or to age 23 if they were in school. Variables on health insurance coverage include the types of coverage respondents carried (Medicare, Medicaid, additional state or federal programs, and private policies), sources of private policy coverage, premiums paid for private policies, and number of months uninsured during the last year. Access to health care is measured by variables such as the type of usual health care provider, the amount of time it usually took to get to the doctor's office, and whether needed medical care was not received during the previous year. Variables on the utilization of health care include the number of overnight hospital stays, the number of visits to doctors, age at first DPT (diphtheria, whooping cough, and tetanus) shot, age at first oral polio immunization, and the number of months since the most recent breast exam and Pap smear. The survey also elicited self-reported health status and opinions on the health care system, gauged satisfaction/dissatisfaction with health services received, and gathered information on employment, income, education, migration, age, sex, marital status, race, Hispanic origin, and citizenship.