CBS News/New York Times National Survey, March #1, 2011 (ICPSR 33487)
CBS News/New York Times Women's Health Poll, May 1997 (ICPSR 4490)
Community Hospital Program (CHP) Access Impact Evaluation Surveys, 1978-1979, 1981 (ICPSR 8245)
Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)
Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)
Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)
Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)
Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)
Connecticut Health Care Survey, 2012-2013 (ICPSR 35475)
Detroit Area Study, 1999: Life and Death Decision Making (ICPSR 4121)
For this survey, respondents from three counties in the Detroit, Michigan, area were queried about their health, satisfaction with their health care, end of life decisions, policies about life and death decisions, and experiences with life and death decisions. The first set of questions asked respondents to rate their own health and to indicate whether they had seen a health care professional in the past five years as well as what type of health professional they had seen. They were also asked whether or not they trust the health care provider's judgment on medical decisions and whether they felt that a doctor or family members would follow the respondent's instructions for life sustaining procedures. The survey also explored how satisfied respondents were with the amount of time they spent with their doctor and the doctor's response to questions as well as their honesty and concern for their patient. Additional questions asked respondents how concerned HMO's are with costs and patient health and what their opinions were on how much money is spent on medical technology and care for terminally ill patients. Another set of questions sought respondent's opinions on terminating a patient's life support in a variety of different situations, including the treatment of critically ill infants. The survey also asked whether respondents or their family had ever experienced an end-of-life decision, whether they have discussed end-of-life decisions, and what types of methods they would consider. Respondents were also asked about their attitudes on the death penalty, abortion in certain situations, physician assisted suicide and the 1998 proposal to legalize physician assisted suicide. Background information includes marital status, employment, political orientation, and income.
Do Older Adults Know Their Spouses' End-of-Life Treatment Preferences? (ICPSR 25701)
Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)
The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.
At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.
Health Tracking Physician Survey, 2008 [United States] (ICPSR 27202)
Impact of the Internet and Advertising on Patients and Physicians, 2000-2001: [United States] (ICPSR 3994)
Los Angeles Metropolitan Area Surveys [LAMAS] 6, 1973 (ICPSR 36615)
The Los Angeles Metropolitan Area Studies [LAMAS] 6, 1973 collection reflects data gathered in 1973 as part of the Los Angeles Metropolitan Area Studies (LAMAS). The LAMAS, beginning in the spring of 1970, are a shared-time omnibus survey of Los Angeles County community members, usually repeated twice annually. The LAMAS were conducted ten times between 1970 and 1976 in an effort to develop a set of standard community profile measures appropriate for use in the planning and evaluation of public policy.
The LAMAS instruments, indexes, and scales used to track the development and course of social indicators (including social, psychological, health, and economic variables) and the impact of public policy on the community. Questions in this year of the LAMAS cover respondents' attitudes toward the following topics: air pollution, health care services in the community, local government politics, police relations, recreation and leisure time. In addition, participating researchers were given the option of submitting questions to be asked in addition to the core items. These additional question topics include: sleep habits, the true self, impact of computers, job seeking behavior, and mental health and psychological factors.
Demographic variables in this collection include sex, age, race, ethnicity, education, occupation, income, religion, marital status, birth place, and housing type.
National Study of Internal Medicine, Physician Practice Study, Phase III, 1981 (ICPSR 8301)
National Study of Physician Organizations (NSPO3), United States, 2012-2013 (ICPSR 38587)
Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States] (ICPSR 22482)
Preventing Ethical Disasters in the Practice of Medicine, United States, 2008-2016 (ICPSR 38314)
Researchers researched and analyzed 280 cases of serious wrongdoing in medicine involving three kinds of violations: improper prescribing of controlled substances (IPCS), sexual abuse of patients (SAP), and unnecessary invasive procedures (UIP). They focused on these three types of wrongdoing because each is traumatizing to patients, causing physical and emotional harm, financial loss, and sometimes death. They are often the cause of major disciplinary actions by medical boards.
The methodological approach involved identifying potential cases of serious wrongdoing through systematic literature reviews of court records, medical boards reports, newspaper articles, and online materials for each case. Using a detailed codebook, researchers performed descriptive coding of the literature and used a criminal law framework to identify the salient individual and environmental factors that predicted motive, means, and opportunity (MMO) for each case. Within each of the three types of wrongdoing, they identified typologies of cases using qualitative analysis.
Finally, researchers held a working group meeting with experts to reach a consensus on how findings can inform medical education, policies, and oversight practices to reduce the rates and the duration of serious wrongdoing.
Promoting Shared Decision-Making About Colorectal Cancer Testing for Older Adults (PRIMED) Study, Maine and Massachusetts, 2019-2022 (ICPSR 39523)
As people age, medical decisions become more complex, including conversations about cancer screening. For patients aged 76-85, the United States Preventive Services Task Force (USPSTF) advises clinicians that decisions about colorectal cancer (CRC) screening should be individualized based on overall health and prior screening history (C recommendation). However, studies find that many older adults are not well-informed about, nor meaningfully engaged in, decisions about whether to continue CRC screening. Shared decision making (SDM) has been shown to improve the quality of decisions about initiating cancer screening but little is known about its effectiveness for decisions about stopping interventions. This study addresses a gap in the understanding of how to support clinicians and older patients in making good decisions about whether to continue CRC screening or not.
The researchers conducted a comparative effectiveness trial that randomly assigned clinicians at participating academic and community practices to one of two different decision support strategies. The first strategy (Registry arm) took a population health management (PHM) approach and used a patient registry to identify and track use of CRC screening among older adults for each clinician. The second strategy enhanced the registry by adding a multi-faceted SDM training program for clinicians (SDM Skills arm). The researchers enrolled patients of participating primary care providers (PCPs), aged 76-85, who are due or overdue for CRC screening, and survey them shortly after an office visit to determine the impact of the two strategies on outcomes of importance to patients. The study randomly assigned about 60 participating PCPs to the SDM skills or Registry arms, and enroll about 500 of their eligible patients.