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Self-published

Pilot Study of a Novel Maintenance-Free Remote Wear Time Monitor for Cranial Remolding Orthoses (ICPSR 310131)

Released/updated on: 2026-08-18
Geographic coverage: Dallas, Texas, United States
Time period: 2025-06-24--2026-03-12

The study team has developed a novel Remote Temperature Monitoring (RTM) sensor which automatically uploads temperature data to the Cloud and integrates with both a clinician’s dashboard and an app on the caregiver’s cell phone to allow for real-time monitoring of CRO use.  This is the first study to attempt to validate the RTM sensor in a clinical setting.

Self-published

A systematic discourse analysis of how U.S. political leaders frame disability: Implications for students with disabilities (ICPSR 307656)

Released/updated on: 2026-07-06
Geographic coverage: United States
Time period: 2025-01-01--2025-12-31

This study examined how U.S. political leaders publicly framed disability during calendar year 2025, using a systematic discourse analysis of public statements and federal legislation. It also examined how this discourse was reflected in federal education policy, including statements by the Secretary of Education and education-related bills.

The study analyzed 121 public statements about people with disabilities made by White House and Cabinet officials, and 32 federal bills introduced in 2025 that could affect the rights, services, or educational opportunities of individuals with disabilities. Statements were identified through a two-stage process that combined a custom Python-based web-scraping tool, which extracted verbatim, attributed quotations from news articles, press releases, interview transcripts, official speeches, and social media posts using the OpenAI GPT-4 API, with manual verification searches conducted in ChatGPT Plus and Perplexity AI Pro. Federal bills were identified through Congress.gov. All statements were reviewed by the authors to confirm accuracy, attribution, and date. Each statement and bill was independently scored by two human coders and by GPT-4 using an author-developed four-point rubric grounded in the social and human rights models of disability, ranging from 1 (dehumanizing) to 4 (affirming).

The data contain one record per statement, including the speaker's name and title, date, verbatim quotation, source, context, an analysis of the framing, a score from 1 (dehumanizing) to 4 (affirming), and the rationale for the score. The bills data are available on the project website and are not included in this deposit.

The study was approved by the university Institutional Review Board (March 2025) and was preregistered on the Open Science Framework (https://osf.io/hbfe5/).

Curated
Restricted

Discontinuation of Disease Modifying Therapies (DMTs) in Multiple Sclerosis (MS), United States, 2017-2020 (ICPSR 39186)

Released/updated on: 2025-07-01
Geographic coverage: United States
Time period: 2017-01-01--2020-12-31
This study was a multicenter, randomized, controlled, rater-blinded, phase 4, non-inferiority trial. Individuals with multiple sclerosis of any subtype, 55 years or older, with no relapse within the past 5 years or new MRI lesion in the past 3 years while continuously taking an approved disease-modifying therapy were enrolled at 19 multiple sclerosis centers in the USA. Participants were randomly assigned (1:1 by site) with an interactive response technology system to either continue or discontinue disease-modifying therapy. Relapse assessors and MRI readers were masked to patient assignment; patients and treating investigators were not masked. The primary outcome was percentage of individuals with a new disease event, defined as a multiple sclerosis relapse or a new or expanding T2 brain MRI lesion, over 2 years. The study assessed whether discontinuation of disease-modifying therapy was non-inferior to continuation using a non-inferiority, intention-to-treat analysis of all randomly assigned patients, with a predefined non-inferiority margin of 8%.
Curated
Restricted

Targeted Interventions to Prevent Chronic Low Back Pain in High Risk Patients: A Multi-Site Pragmatic Randomized Controlled Trial (TARGET Trial), 4 U.S. cities, 2016-2019 (ICPSR 38145)

Released/updated on: 2021-10-07
Geographic coverage: Baltimore, United States, Massachusetts, Salt Lake City, Maryland, Utah, Pennsylvania, Boston, Pittsburgh
Time period: 2016-01-01--2019-12-31

The TARGET (Targeted Interventions to Prevent Chronic Low Back Pain in High-Risk Patients) Trial was a primary care-based, multisite, cluster randomized, pragmatic trial comparing guideline-based care (GBC) to GBC + referral to Psychologically Informed Physical Therapy (PIPT) for patients presenting with acute lower back pain (LBP) and identified as high risk for persistent disabling symptoms. Chronic lower back pain (LBP) is defined as a response of "more than three months" to question 1, and a response of "half the days or more than half the days" in the past 6 months to question 2. See Appendix 1 for the LBP Questionnaire in the Protocol report.

Study sites included primary care clinics within each of four geographical regions in the United States, with clinics randomized to either GBC or GBC+PIPT. Acute LBP patients at all clinics were risk stratified (high, medium, low) using the STarT Back Tool. The primary outcomes were the presence of chronic LBP and LBP-related functional disability determined by the Oswestry Disability Index at 6 months. Secondary outcomes were LBP-related processes of health care and utilization of services over 12 months, determined through electronic medical records.

Study enrollment began in May 2016 and concluded in June 2018. The trial was powered to include at least 1,860 high-risk patients in the cluster-randomized controlled trial cohort. A prospective observational cohort of approximately 6,900 low and medium-risk acute LBP patients was enrolled concurrently.

This data collection contains a single data file with 223 variables and 9,730 cases. The number of respondents at each of the study locations were:

  • Boston Medical Center: 997 respondents
  • Intermountain Health (Salt Lake City): 2,094 respondents
  • Johns Hopkins University (Baltimore): 1,615 respondents
  • University of Pittsburg Medical Center: 5,024 respondents
Curated
Restricted

Boston Rehabilitative Impairment Study of the Elderly (Boston RISE), 2009-2015 (ICPSR 37045)

Released/updated on: 2021-01-28
Geographic coverage: Massachusetts, Boston
Time period: 2009-01-01--2015-12-31
The Boston Rehabilitative Impairment Study of the Elderly (Boston RISE) was a prospective cohort study of older primary care patients, aged 65 years and older, who were at risk for declining mobility and disability at baseline. The study was designed to investigate which combinations of neuromuscular impairments are most responsible for mobility decline and disability over 2 years of follow up. Through additional funding, Boston RISE continued to collect follow up data on the Late Life Function and Disability Instrument (LLFDI) and mobility-related and healthcare utilization outcomes over the phone as part of a 2-year extension. Several ancillary measures were also collected throughout the course of the study.
Curated
Partially restricted

Child Care and Children with Special Needs: Challenges for Low Income Families, Maine, United States, 2002-2005 (ICPSR 27001)

Released/updated on: 2018-08-06
Geographic coverage: United States, Maine
Time period: 2002-01-01--2005-12-31

This project was a mixed-method, multi-level study of low income families of children with special needs and the system which served them, focusing primarily on child care, employment, and balancing work and family. This approach included an analysis of existing national and state-level data sets, statewide surveys of parents and child care providers, and a field study to look at these issues at the local level in three selected communities in the state of Maine: Portland, Lewiston/Auburn, and Presque Isle. While the primary focus was on access to child care, this project also looked at the related issues of welfare reform, the impact of work force participation on having a child with special needs, and the issue of coordination of early intervention services with the child care system. The goal was to understand better the issues facing low income families with special needs children across the programs and policies affecting their employment, access to child care, and meeting the special needs of their children. In the first year of the study, qualitative research was conducted to learn directly from parents about their experiences. In the second and third years, a field study of three communities was conducted as well as statewide surveys and analysis of national data bases to supplement the data collected in the first year. This data collection is comprised of the two quantitative data files produced during the second and third years of the study which are described in more detail below.

Child Care Provider Survey: The Child Care Provider Survey was a statewide survey of child care providers selected at random from the list of licensed providers in Maine given by the state licensing agency. Questions focused on the perspective of child care providers on the issues of access and inclusion that parents raised.

Parent Survey: The Parent Survey was a statewide survey of parents and children aged 0-18 years with diagnosed special needs (enrolled in Maine Care - Katie Beckett and Title V eligibility groups - and Child Development Services early intervention caseloads). Questions focused on child care utilization and work experiences in relation to children with special needs.

Researchers interested in information about the qualitative data should contact the Child Care and Children with Special Needs Project Web site.

Curated
Restricted

Functional Independence in Children at a Pediatric Clinic in Guanajuato, Mexico, 2004-2013 (ICPSR 37068)

Released/updated on: 2018-07-09
Geographic coverage: Mexico, Guanajuato
Time period: 2004-01-26--2013-05-13

This study sought to evaluate the functional independence in children at a Centers for Pediatric Rehabilitation Teleton (CRIT) facility in Guanajuato, Mexico through the use of the WeeFIM Instrument (0-3 Module). The dataset in this collection was generated in May 2013 from electronic health records for secondary analysis of de-identified data. The goal of CRIT, that this research sought to evaluate, was to improve social integration for children with disabilities in Mexico through comprehensive rehabilitation services, including physical therapy, occupational therapy, neurotherapy, speech therapy, physical and rehabilitation medicine, psychology, social integration, and school for parents.

The collection includes one dataset (35 variables, 5,993 cases). Demographic variables included in the collection: Age, gender, and city of residence.

Curated
Simple Crosstabs

Spinal Cord Injury Rehabilitation Study, United States, 2007-2010 (ICPSR 36724)

Released/updated on: 2018-05-03
Geographic coverage: New York City, North Carolina, District of Columbia, Charlotte, United States, Chicago, Atlanta, Illinois, Colorado, Denver, Georgia, New York (state)
Time period: 2007-01-01--2010-12-31
The SCIRehab study collected data about 1,376 people with spinal cord injury across 7 disciplines at 6 facilities in the United States between 2007 and 2009 and followed for one year (until 2010). The 7 disciplines included in the study are Physical Therapy, and Occupational Therapy, Psychology, Therapeutic Recreation, Social Work, Nursing, and Speech Language Pathology. These data include information gathered during 462,455 timed rehabilitation interventions in 282,999 treatment sessions provided by 1,094 clinicians. This study seeks to understand the relationship between rehabilitation and outcomes and used practice-based evidence methods to relate the details of the rehabilitation process to outcomes after controlling for individual demographic and injury characteristics. The 13 key outcomes include function and residence at discharge, 6 months and 1 year post injury, rehospitalization in the first year, 4 dimensions of societal participation, work or school attendance, depression, presence of pressure ulcers, and life satisfaction at 6 months and 1 year post injury.
Curated
Simple Crosstabs

Wheelchair Tiedown and Occupant Restraint System (WTORS) Activity in Paratransit Vehicles, 2012 (ICPSR 36970)

Released/updated on: 2017-12-20
Time period: 2012-01-01--2013-12-31
The purpose of this study was to characterize wheelchair tiedown and occupant restraint system (WTORS) usage on paratransit vehicles. A retrospective review of on-board video monitoring recordings of trips by passengers seated in Wheeled Mobility Devices (WhMDs) was conducted. Data was collected from March through October, 2012. The study was conducted using two paratransit vehicles within one metropolitan area. Along with general information about the WhMDs and other equipment used by the passengers, details of the passengers' access and use of the vehicle were recorded. Details of WTORS usage including number of tiedowns and restraints used, attachment points to the WhMD and the vehicle floor, and any improper usage were recorded. Instability of the WhMD and incidents observed while the vehicle was in motion, along with contributing factors, were recorded and described.
Curated
Partially restricted
Simple Crosstabs

Language Development of Non-verbal Children Age 3 Years through 7 Years, 2007 to 2012 [Kansas City Metro Area] (ICPSR 36472)

Released/updated on: 2016-10-25
Geographic coverage: Kansas City (Kansas), Kansas
Time period: 2007-01-01--2012-12-31

The Language Development of Non-verbal Children Age 3 Years through 7 Years in the Kansas Metro Area is one of the three projects in the Communication of People with MR, 2006 to 2012 Series, which focuses on identifying participant variables that predict success in increasing communication skills of individual with intellectual disabilities. Data for Dataset 1 of this study were collected to illustrate how acquisition of symbolic communication using Voice Output Communication Aid (VOCA) affects the development of successful communication exchanges. For the data collection of Dataset 1, children were recruited by contacting school districts in and near the Kansas City metropolitan area, specifically, in Topeka, Kansas, and Wichita, Kansas. Teachers and speech-language pathologists were asked to nominate any children meeting specific criteria. The 93 children who were enrolled were administered the Mullen Scales of Early Learning and the Preschool Language Scale. A structured play assessment was also administered.

Subsequently, data for Dataset 2 was collected to analyze and compare 19 Spanish-speaking children to the original sample. Both data files contain the results of Complexity of Communication Scale, a measure developed by the Communication of People with MR project.

Curated
Partially restricted
Simple Crosstabs

Young Children with Physical Disabilities, 2007 to 2012 [Seattle, Washington] (ICPSR 36516)

Released/updated on: 2016-10-25
Geographic coverage: Seattle, Washington
Time period: 2007-01-01--2012-12-31

The Young Children with Physical Disabilities Seattle, Washington study is one of the three projects in the Communication of People with MR, 2006 to 2012 Series, which focuses on identifying participant variables that predict success in increasing communication skills of individual with intellectual disabilities. The study data were collected to show that triadic eye gaze for joint attention can be established in very young children with moderate or severe motor impairments.

Dataset 1 contains 48 cases. Most cases include data on results of the Complexity of Communication Scale, a measure developed by the Communication of People with MR project. In addition, Dataset 1 contains data on a Functional Assessment, the Bayley Scales of Infant and Toddler Development, the Mullen Scales of Early Learning and the Communication and Symbolic Behavior Scales.

Dataset 2 contains data on Triadic Eye Gaze and Coordinated Joint Attention. Participants for Dataset 2 were convenience sampled from birth-to-three centers in Seattle, Washington. There were 18 participants, children with severe physical disabilities between 10 and 24 months of age, who were randomly assigned to one of two groups: (a) an experimental treatment group ( n = 9) or (b) a control group ( n = 9).

Curated

American Community Survey (ACS): Public Use Microdata Sample (PUMS), 2009 (ICPSR 33802)

Released/updated on: 2013-04-04
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2008-11-01--2009-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program, and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States and Puerto Rico. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, United States citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure was built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

American Community Survey (ACS): Public Use Microdata Sample (PUMS), 2008 (ICPSR 29263)

Released/updated on: 2011-11-08
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2007-11-01--2008-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program, and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States and Puerto Rico. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, United States citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure was built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

RAND Center for Population Health and Health Disparities (CPHHD) Data Core Series: Disability, 2000 [United States] (ICPSR 27862)

Released/updated on: 2011-05-13
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, New York, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2000-01-01--2000-12-31
The RAND Center for Population Health and Health Disparities (CPHHD) Data Core Series is composed of a wide selection of analytical measures, encompassing a variety of domains, all derived from a number of disparate data sources. The CPHHD Data Core's central focus is on geographic measures for census tracts, counties, and Metropolitan Statistical Areas (MSAs) from two distinct geo-reference points, 1990 and 2000. The current study, Disability, contains cross-sectional data from the year 2000. Based on the Decennial Census Special Table Series published by the Administration on Aging, this study contains a large number of disability measures categorized by age (55+), type of disability (sensory, learning, employment, and self-care), and poverty status.
Curated

National Health Interview Survey, 2007 (ICPSR 27201)

Released/updated on: 2010-08-26
Geographic coverage: United States
Time period: 2007-01-01--2007-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2007 NHIS contains the Household, Family, Person, Sample Adult, and Sample Child files from the basic module. Each record in Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Part 2, Family Level, is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, Part 3, Person Level, provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for Part 4, Sample Adult, regarding respiratory conditions, use of nasal spray, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity in addition to questions regarding stroke, diabetes, arthritis, and weight control. Part 5, Sample Child, provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD), as well as responses to the SDQ, the Strengths and Difficulties questionnaire on child mental health. The 2007 data contain the Child Conditions - Limitation of Activity and Health Status (CHS), Child Health Care Access and Utilization (CAU), Child Mental Health Brief (CMB), Child Mental Health Services (CMS) and Child Influenza Immunization (CFI) sections. Part 6, Injury/Poison Episode, is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. Part 7, Injury/Poison Episode Verbatim, contains edited narrative text descriptions of the injury or poisoning, provided by the respondent. Part 8, Adult Complementary and Alternative Medicine, and Part 9, Child Complementary and Alternative Medicine, provide information regarding the use of 17 nonconventional health care practices, including acupuncture, movement therapies, and relaxation techniques, for sample adults and sample children, respectively. Supplemental Sample Child, Part 10, and Supplemental Sample Child Alternative Medicine, Part 11, are supplemental files for the 2007 data release. These files provide dummy records to fill in the missing information for Part 5, Sample Child, and Part 9, Child Complementary and Alternative Medicine. Part 12, Paradata, does not contain health related information, but rather data which are related to the interview process, including measures of time, contact-ability, and cooperation. RAT_CAT3 Update, Part 13, corrects an error in the 2007 Family Level variable RAT_CAT3.
Curated

National Health Interview Survey, 2008 (ICPSR 27341)

Released/updated on: 2010-08-26
Geographic coverage: United States
Time period: 2008-01-01--2008-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2008 NHIS contains the Household, Family, Person, Sample Adult, and Sample Child files from the basic module. Each record in Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Part 2, Family Level, is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, Part 3, Person Level, provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for Part 4, Sample Adult, regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. Additionally, questions regarding oral health, asthma, balance, cancer screening, heart disease, HPV, immunization, and vision were fielded. Part 5, Sample Child, provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, Attention Deficit Hyperactivity Disorder (ADHD), oral health, asthma, indoor tanning, HPV, immunization, mental health, and vision. Part 6, Injury/Poison Episode, is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. Part 7, Injury/Poison Episode Verbatim, contains edited narrative text descriptions of the injury or poisoning, provided by the respondent. Part 8, Paradata, does not contain health related information, but rather data which are related to the interview process, including measures of time, contact-ability, and cooperation.
Curated

National Health Interview Survey, 2006 (ICPSR 20681)

Released/updated on: 2010-08-26
Geographic coverage: United States
Time period: 2006-01-01--2006-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2006 NHIS contains the Household, Family, Person, Sample Adult, and Sample Child files from the basic module. Each record in Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Part 2, Family Level, is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, Part 3, Personl Level, provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for Part 4, Sample Adult, regarding respiratory conditions, use of nasal spray, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity in addition to questions regarding stroke, diabetes, arthritis, and weight control. Part 5, Sample Child, provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD), as well as responses to the SDQ, the Strengths and Difficulties questionnaire on child mental health. The 2006 data contain the Child Mental Health Brief (CMB), Child Mental Health Services (CMS) and Child Influenza Immunization (CFI) sections. Part 6, Injury/Poison Episode, is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. Part 7, Injury/Poison Episode Verbatim, contains edited narrative text descriptions of the injury or poisoning, provided by the respondent. Imputed income files for 2006 are now available through the NCHS Web site.
Curated

National Health Interview Survey, 2009 (ICPSR 28721)

Released/updated on: 2010-08-26
Geographic coverage: United States
Time period: 2009-01-01--2009-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2009 NHIS contains the Household, Family, Person, Sample Adult, and Sample Child files from the basic module. Each record in Part 1, Household Level, contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. Part 2, Family Level, is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, Part 3, Person Level, provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are variables related to doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for Part 4, Sample Adult Level, regarding respiratory conditions, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. Part 5, Sample Child Level, provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Part 6, Injury/Poison Episode, is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. Part 7, Injury/Poison Episode Verbatim, contains edited narrative text descriptions of the injury or poisoning, provided by the respondent. Part 8, Disability Questions Tests 2008/2009, provides information pertaining to four key areas of disability: Vision, hearing, mobility, and cognintive functioning. The data for Part 8 were collected over the span of five calendar quarters from October 2008 through the end of 2009. Part 9, Paradata, does not contain health related information, but rather data which are related to the interview process, including measures of time, contact-ability, and cooperation.
Curated

American Community Survey (ACS): Three-Year Public Use Microdata Sample (PUMS), 2005-2007 (ICPSR 25042)

Released/updated on: 2010-02-04
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2005-11-01--2007-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program, and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States and Puerto Rico. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, United States citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure was built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

American Community Survey (ACS): Public Use Microdata Sample (PUMS), 2007 (ICPSR 24503)

Released/updated on: 2010-02-01
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2006-11-01--2007-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program, and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States and Puerto Rico. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, United States citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure was built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

American Community Survey (ACS): Public Use Microdata Sample (PUMS), 2003 (ICPSR 4117)

Released/updated on: 2009-12-01
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2002-11-01--2003-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, United States citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure was built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

American Community Survey (ACS): Public Use Microdata Sample (PUMS), 2006 (ICPSR 22101)

Released/updated on: 2008-12-19
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2005-11-01--2006-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program, and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States and Puerto Rico. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, United States citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure was built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

The Survey of Health, Ageing and Retirement in Europe (SHARE) -- Israel, 2005-2006 (ICPSR 22160)

Released/updated on: 2008-11-21
Geographic coverage: Israel, Global
Time period: 2005-01-01--2006-12-31

The Survey of Health, Ageing and Retirement in Europe (SHARE) is a multidisciplinary and cross-national database of micro data on health, socio-economic status and social and family networks of individuals aged 50 or over which was designed after the role models of the United States Health and Retirement Study (HRS) and the English Longitudinal Study of Ageing (ELSA).

SHARE-Israel was added to the collection during 2005 and 2006 and required a complex adaptation of the SHARE survey instruments for implementation in Israel. In order to access the three major population groups that make up Israeli society, veteran Jewish-Israelis, Arab-Israelis and new immigrants from the former Soviet Union after 1989, it was necessary to translate the CAPI questionnaire and the drop off questionnaire into Hebrew, Arabic and Russian.

Data collected include health variables (e.g., self-reported health, physical functioning, cognitive functioning, health behavior, use of health care facilities), psychological variables (e.g., psychological health, well-being, life satisfaction), economic variables such as (current work activity, job characteristics, opportunities to work past retirement age, sources and composition of current income, wealth and consumption, housing, education), and social support variables (e.g., assistance within families, transfers of income and assets, social networks, volunteer activities).

Two physical performance measures were also employed. The first was grip strength, the respondent's maximum handgrip strength measured by means of a dynamometer. The second physical performance measure was walking speed, which was asked only of persons aged 75 and older. This physical measurement involved asking the respondent to walk a certain distance and measuring the time it took for the respondent to complete the task.

Unique to SHARE-Israel were questions in the drop-off questionnaire regarding trauma. Respondents were asked about difficult life events that they had experienced and the degree to which they were affected by them. The events were drawn from the following areas (1) having personally suffered injury in war, in a terrorist attack, a grave illness or accident, (2) having witnessed injury or death in war, in a terrorist attack, and/or in an accident or crime, (3) having been a victim of crime, abuse, sexual harassment and/or severe economic adversity, (4) having had a close person injured or lost due to war, a terrorist attack, accident or grave illness, (5) loss of spouse and/or offspring, and (6) having provided or received long term care due to functional disability. A separate inventory chronicled respondents' exposure to the Holocaust.

Also included in the drop-off questionnaire were questions regarding pension reform: which addressed respondents' awareness of the legislated delay in the age of eligibility for retirement pension in Israel, (for men, age 67 and for women, age 64). It also inquired about implications of the change in pension age, information regarding personal plans for employment or retirement in light of the change, and sources of income that would be used to bridge the period between retirement and receipt of pension, if early retirement was contemplated. Full details regarding SHARE can be located at the SHARE Web site.

Curated

American Community Survey (ACS): Public Use Microdata Sample (PUMS), 2004 (ICPSR 4370)

Released/updated on: 2008-10-14
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2003-11-01--2004-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, United States citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure was built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

American Community Survey (ACS): Public Use Microdata Sample (PUMS), 2005 (ICPSR 4587)

Released/updated on: 2008-05-02
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New York (state), New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2004-11-01--2005-12-31
The American Community Survey (ACS) is a part of the Decennial Census Program, and is designed to produce critical information about the characteristics of local communities. The ACS publishes social, housing, and economic characteristics for demographic groups covering a broad spectrum of geographic areas in the United States and Puerto Rico. Every year the ACS supports the release of single-year estimates for geographic areas with populations of 65,000 or more. Demographic variables include sex, age, relationship, households by type, race, and Hispanic origin. Social characteristics variables include school enrollment, educational attainment, marital status, fertility, grandparents caring for children, veteran status, disability status, residence one year ago, place of birth, U.S. citizenship status, year of entry, world region of birth of foreign born, language spoken at home, and ancestry. Variables focusing on economic characteristics include employment status, commuting to work, occupation, industry, class of worker, income and benefits, and poverty status. Variables focusing on housing characteristics include occupancy, units in structure, year structure built, number of rooms, number of bedrooms, housing tenure, year householder moved into unit, vehicles available, house heating fuel, utility costs, occupants per room, housing value, and mortgage status. The American Community Survey is conducted under the authority of Title 13, United States Code, Sections 141 and 193, and response is mandatory.
Curated

National Health Interview Survey, 2005 (ICPSR 4606)

Released/updated on: 2006-12-21
Geographic coverage: United States
Time period: 2005-01-01--2005-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2005 NHIS contains the Household, Family, Person, Sample Adult and Sample Child files from the basic module. Each record in the Household-level File (Part 1) contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. The Family-level File (Part 2) is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, the Person-level File (Part 3) provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for the Sample Adult File (Part 4) regarding respiratory conditions, use of nasal spray, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. The Sample Child File (Part 5) provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD) as well as responses to the SDQ-EX, which is the extended version of the Strengths and Difficulties questionnaire on child mental health. The 2005 data contain the Child Mental Health Brief (CMB), Child Mental Health Services (CMS) and Child Influenza Immunization (CFI) sections. The Injury/Poison Episode File (Part 6) is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. The Injury/Poison Episode Verbatim File (Part 7) contains edited narrative text descriptions of the injury or poisoning, provided by the respondent. The Sample Adult Cancer File (Part 8) has been added in 2005 and examines diet and nutrition, physical activity, tobacco use, cancer screening, genetic testing, and family history. Imputed income files for 2005 are now available through the NCHS Web site at www.cdc.gov/nhis.
Curated

National Health Interview Survey, 2004 (ICPSR 4349)

Released/updated on: 2006-05-04
Geographic coverage: United States
Time period: 2004-01-01--2004-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Implementation of a redesigned NHIS, consisting of a basic module, a periodic module, and a topical module, began in 1997 (see NATIONAL HEALTH INTERVIEW SURVEY, 1997 [ICPSR 2954]). The 2004 NHIS contains the Household, Family, Person, Sample Adult and Sample Child files from the basic module. Each record in the Household-level File (Part 1) contains data on type of living quarters, number of families in the household responding and not responding, and the month and year of the interview for each sampling unit. The Family-level File (Part 2) is made up of reconstructed variables from the person-level data of the basic module and includes information on sex, age, race, marital status, Hispanic origin, education, veteran status, family income, family size, major activities, health status, activity limits, and employment status, along with industry and occupation. As part of the basic module, the Person-level File (Part 3) provides information on all family members with respect to health status, limitation of daily activities, cognitive impairment, and health conditions. Also included are data on years at current residence, region variables, height, weight, bed days, doctor visits, hospital stays, and health care access and utilization. A randomly-selected adult in each family was interviewed for the Sample Adult File (Part 4) regarding respiratory conditions, use of nasal spray, renal conditions, AIDS, joint symptoms, health status, limitation of daily activities, and behaviors such as smoking, alcohol consumption, and physical activity. The Sample Child File (Part 5) provides information from an adult in the household on medical conditions of one child in the household, such as respiratory problems, seizures, allergies, and use of special equipment like hearing aids, braces, or wheelchairs. Also included are variables regarding child behavior, the use of mental health services, and Attention Deficit Hyperactivity Disorder (ADHD) as well as responses to the SDQ-EX, which is the extended version of Strengths and Difficulties questionnaire on child mental health. Several changes have occurred in the 2004 NHIS. The Child Immunization Section (CIM) has been dropped. Also new in 2004, questionnaires have been provided in both English and Spanish. The Injury/Poison Episode File (Part 6) is an episode-based file that contains information about the external cause and nature of the injury or poisoning episode and what the person was doing at the time of the injury or poisoning episode, in addition to the date and place of occurrence. The Injury/Poison Episode Verbatim File (Part 7) contains edited narrative text descriptions of the injury or poisoning provided by the respondent. Imputed income files for 2004 are now available through the NCHS Web site at www.cdc.gov/nhis.
Curated

Evaluation of Violence Against Women With Physical Disabilities in Michigan, 2000-2001 (ICPSR 3414)

Released/updated on: 2006-03-30
Geographic coverage: United States, Michigan
Time period: 2000-01-01--2001-12-31
In the past few years it has become alarmingly clear that women with disabilities are at an extremely high risk for emotional, sexual, and physical assault. The Developmental Disabilities Institute at Wayne State University, in collaboration with the United Cerebral Palsy Association in Michigan, conducted a one-year study to investigate the prevalence and correlates of, and service system capacity related to, domestic abuse among women with physical disabilities in Michigan. The study aimed to address the following research questions: (1) What is the prevalence of domestic violence among a sample of women with physical disabilities? (2) What potential factors for domestic violence exist among women with physical disabilities? and (3) What is the capacity of existing support programs (e.g., safe houses, shelters, and service agencies) to assist women with physical disabilities? The population for this study was women over the age of 18 who had physical disabilities. Consistent with the work of other researchers, physical disabilities in this study were defined as those disabilities that result in functional impairment, such as cerebral palsy, post-polio syndrome, spina bifida, amputation, rheumatic conditions, multiple sclerosis, spinal cord injury, traumatic brain injury, visual impairment, hearing impairment, and stroke. A sample of 177 women was recruited through several mechanisms. To address the question of domestic abuse prevalence, the women participating in the study were first asked to complete a brief questionnaire addressing demographic characteristics and their experience with domestic violence (Part 1, Screening Interview Data). Fifty-six percent (100) of the 177 women interviewed indicated a positive history of abuse at their initial screening. In order to address the second research question about the correlates of abuse, this subsample of 100 women was invited and encouraged to participate in the second phase of the research, which involved a more extensive interview (Part 2, Abuse Interview Data). The interview used was based on a protocol developed by Nosek (1995) that addressed demographic characteristics, social networks, and abuse history. Variables in Parts 1 and 2 include type of disability, type of personal assistance needed, and whether the respondent was ever physically, emotionally, or sexually abused. Part 2 also contains variables on sources of monthly income, who perpetrated the abuse, the abuser's gender, how long the victim knew the abuser, whether the victim sought assistance from a domestic violence program or shelter, and a description of the worst incident of physical abuse. Demographic variables in Parts 1 and 2 include ethnicity, age, employment status, and marital status.
Curated

Cooperative Institutional Research Program (CIRP) [United States]: Freshman Survey, 1980 (ICPSR 2414)

Released/updated on: 2002-10-11
Geographic coverage: United States
Time period: 1980-01-01--1980-12-31
The principal purposes of this national longitudinal study of the higher education system in the United States are to describe the characteristics of new college freshmen and to explore the effects of college on students. For each wave of this survey, each student completes a questionnaire during freshman orientation or registration that asks for information on academic skills and preparation, high school activities and experiences, educational and career plans, majors and careers, student values, and financing college. Other questions elicit demographic information, including sex, age, parental education and occupation, household income, race, religious preference, and state of birth. Specific questions asked of respondents in the 1980 survey included information regarding the BEOG (Basic Educational Opportunity Grant) and GSL (Guaranteed Student Loan) financial aid programs, students' number of brothers and sisters, whether students considered themselves born-again Christians, and whether students considered themselves physically handicapped.
Curated

Survey of Income and Program Participation (SIPP) 1984 Panel: Health-Wealth Merged File (ICPSR 8903)

Released/updated on: 1994-06-30
Geographic coverage: United States
Time period: 1984-01-01--1984-12-31
This data collection, which contains merged data from the topical modules for Waves III and IV of Survey of Income and Program Participation (SIPP), is especially useful for analyses on the older population. In addition to providing data on basic social and economic characteristics, sources of income, and participation in various cash and noncash transfer programs, the file also includes data on health conditions, physical limitations, health insurance coverage, pension coverage, assets and liabilities, housing conditions, costs, and energy use.
Curated

National Health Interview Survey, 1990: Assistive Devices Supplement (ICPSR 6139)

Released/updated on: 1993-12-18
Geographic coverage: United States
Time period: 1990-01-01--1990-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. The 1990 Assistive Devices Supplement includes variables from the core Person File (see NATIONAL HEALTH INTERVIEW SURVEY, 1990 [ICPSR 9839]), including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. Variables unique to this supplement include questions about braces, special equipment for getting around, such as crutches, canes, walkers, and wheelchairs, assistive devices for hearing and vision, artificial limbs, and communication aids. Additional questions covered where devices were used and how often, how they were paid for, whether or not the home was equipped with special devices and what those devices were, and any equipment the respondent needed but did not have.
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