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Chronic pain, which lasts for months or even years, can disturb people's daily lives and their relationships with others. Doctors want to measure how chronic pain affects people's lives so they can help their patients manage pain.

In this study, the research team wanted to measure two aspects of living with and managing chronic pain:

• Pain appraisal describes how people think about their pain. It measures how much people worry about their pain and how well they cope with pain or distract themselves from thinking about it.
• Pain-related self-efficacy describes how confident a person is that they can live well with pain.

The research team created two pools of questions, called item banks, to measure each of the two aspects of living with chronic pain. From these larger item banks, the team created and tested brief versions using two and six questions. These brief versions take people less time to finish than the full item banks.

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The TILDA Series data, including studies 34315, 38681, 37105, 37106, 38670, 38674, are currently unavailable at the request of the data producer due to concerns related to EU and Irish data privacy and data sharing rules. We are working to determine the best solution to continue to share these data with the research community. Individuals interested in obtaining TILDA data access at this time should reach out to the TILDA project directly (https://tilda.tcd.ie/data/accessing-data/).

The Irish Longitudinal Study on Ageing (TILDA) is a major inter-institutional initiative led by Trinity College Dublin which aims to produce a massive improvement in the quantity and quality of data, research and information relating to older people and ageing in Ireland. Eligible respondents for this study include individuals aged 50 and over and their spouses or partners of any age. The study involves interviews on a two yearly basis with a sample cohort of 8,504 people aged 50 and over (or their spouses/partners) and resident in Ireland, collecting detailed information on all aspects of their lives, including the economic (pensions, employment, living standards), health (physical, mental, service needs and usage) and social aspects (contact with friends and kin, formal and informal care, social participation). Both survey interviews and physical and biological measurements are utilized.

The second wave of TILDA interviews were undertaken between February 2012 and March 2013. Of the 8,504 interviewed in Wave 1, a second interview was obtained for 7,445 respondents. These consisted of the self, proxy and end-of-life interviews types. In addition to the returning respondents, 170 interviews were obtained from eligible household members who had chosen not to take part in Wave 1 or the new spouses/partners of existing respondents.

Demographic and background variables include age, sex, marital status, household composition, education, and employment.

The goals of this study were to test whether participants who engaged in an extreme ritual in a naturalistic setting would evidence signs of altered states of consciousness, to examine other physiological and affective effects of the ritual, and to determine whether these effects varied based on the role the individual performed within the ritual. A multi-method approach was used that utilized various psychological self-report measures, a measure of cognitive functioning, and a measure of physiological stress. The data collection took place at the "Dance of Souls," a ritual conducted on the last day of the annual Southwest Leather Conference in Phoenix, Arizona, in which participants received temporary piercings with hooks or weights attached to the piercings and danced to music provided by drummers.

The associated publication, Altered States of Consciousness during an Extreme Ritual, was used to accompany the data in this collection. Users are encouraged to consult the publication for additional information. The data collection includes one de-identified dataset with 164 variables for 83 cases. Demographic variables include sex, gender, pierced vs. non-pierced, and the role the participant played in the ceremony.

Objective

A significant number of patients with unexplained chest pain (UCP) have panic disorder (PD), and most individuals with panic disorder (PD) report poor sleep, including insomnia and nocturnal panic attacks (NPA). The objective of the study was to examine the impact of treatment for PD on sleep problems and to assess the influence of pre-treatment insomnia on post-treatment persistence of PD diagnosis and pain severity.

Methods

Secondary analyses were conducted on sleep data collected from 42 PD patients consulting emergency departments (ED) for UCP. In this quasi-experimental design, cohorts of participants were randomly assigned to one of four conditions: (1) seven sessions of cognitive-behavior therapy (CBT) for PD, (2) a one-session panic management intervention, (3) pharmacotherapy, or (4) usual care. Data from clinical interviews performed by trained assistants and from self-report questionnaires were collected before and after treatment. Results after treatment, 35 percent of participants still met the diagnostic criteria for insomnia, and 20 percent of the sample still reported NPA. The presence of insomnia was a predictor of post-treatment pain severity (B = 1.336, SE B = .483, p = .009), regardless of the severity of pre-treatment anxiety and depressive symptoms or of assignation to an active PD treatment.

Conclusions

Treatment for PD had a small effect on sleep, and residual sleep difficulties persisted after treatment. More importantly, the presence of insomnia was a significant predictor of persistent pain after treatment. The results highlight the importance of careful assessment of sleep before and during treatment for PD in UCP patients.

The TARGET (Targeted Interventions to Prevent Chronic Low Back Pain in High-Risk Patients) Trial was a primary care-based, multisite, cluster randomized, pragmatic trial comparing guideline-based care (GBC) to GBC + referral to Psychologically Informed Physical Therapy (PIPT) for patients presenting with acute lower back pain (LBP) and identified as high risk for persistent disabling symptoms. Chronic lower back pain (LBP) is defined as a response of "more than three months" to question 1, and a response of "half the days or more than half the days" in the past 6 months to question 2. See Appendix 1 for the LBP Questionnaire in the Protocol report.

Study sites included primary care clinics within each of four geographical regions in the United States, with clinics randomized to either GBC or GBC+PIPT. Acute LBP patients at all clinics were risk stratified (high, medium, low) using the STarT Back Tool. The primary outcomes were the presence of chronic LBP and LBP-related functional disability determined by the Oswestry Disability Index at 6 months. Secondary outcomes were LBP-related processes of health care and utilization of services over 12 months, determined through electronic medical records.

Study enrollment began in May 2016 and concluded in June 2018. The trial was powered to include at least 1,860 high-risk patients in the cluster-randomized controlled trial cohort. A prospective observational cohort of approximately 6,900 low and medium-risk acute LBP patients was enrolled concurrently.

This data collection contains a single data file with 223 variables and 9,730 cases. The number of respondents at each of the study locations were:

• Boston Medical Center: 997 respondents
• Intermountain Health (Salt Lake City): 2,094 respondents
• Johns Hopkins University (Baltimore): 1,615 respondents
• University of Pittsburg Medical Center: 5,024 respondents