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Curated

Chronic Illness and Caregiving, 2000: [United States] (ICPSR 3402)

Released/updated on: 2024-02-14
Geographic coverage: United States
The objective of this survey, which interviewed individuals from the general public, chronically ill persons, and informal caregivers, was threefold: (1) to assess public awareness of chronic care issues and the level of support for chronic care policy initiatives, (2) to examine experiences and needs of chronically ill Americans concerning health care and other assistance, and (3) to evaluate experiences and needs of informal caregivers. Questions to the general public addressed awareness of the availability of supportive and housing services for the chronically ill, knowledge about coverage for long-term care, concerns about the future of the chronic care delivery system, support for policy initiatives such as tax credits for the chronically ill and caregivers, and support for a policy that would ensure pharmaceutical coverage in Medicare. Chronically ill interviewees responded to questions about access to and experience with chronic care and other health care services, experiences with and needs for clinical services coordination, experiences with and needs for social supports and interventions, and adjustment skills and knowledge (e.g., what were their needs for learning how to live with chronic conditions). Questions for informal caregivers focused on experiences with caregiving (e.g., for whom they provided care, how many hours they devoted to caregiving per week, and living arrangements), balance between caregiving and other areas of their lives, experiences with and needs for respite care, and availability of social supports for caregivers.
Curated
Partially restricted

Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)

Released/updated on: 2024-02-14
Geographic coverage: United States, Texas, Massachusetts, Hawaii, California, Georgia, New York (state), Wisconsin
Time period: 2008-01-01--2009-01-01

This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.

The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.

Curated
Partially restricted

Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)

Released/updated on: 2024-02-14
Geographic coverage: Vermont, United States, Hawaii, California, New York (state), Maui, Arkansas, Michigan, Texas, Massachusetts, Georgia, Wisconsin, Boston
This survey is one component of the evaluation of the Community Partnerships for Older Adults (CPOA) Program, an initiative of the Robert Wood Johnson Foundation aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private community partnerships. The survey interviewed a representative sample of older adults aged 50 and over in 13 communities that were awarded development grants by the program. Designed to obtain baseline data about each community's population and to provide information to target the CPOA's activities in the most effective way, the survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
Curated
Partially restricted

Evaluation of the Partnership for Long-Term Care (PLTC) [California, Connecticut, Indiana, and New York]: Surveys of PLTC/non-PLTC Insurers, Purchasers/Nonpurchasers of PLTC Insurance, and Purchasers of non-PLTC Insurance, 1995-1996 (ICPSR 2466)

Released/updated on: 2024-02-14
Geographic coverage: Indiana, United States, Connecticut, California, New York (state)
Time period: 1995-01-01--1996-01-01
These surveys were conducted to evaluate the Partnership for Long-Term Care (PLTC), a project in which the Robert Wood Johnson Foundation awarded grants to four states -- California, Connecticut, Indiana, and New York -- to work with private insurers to create long-term care insurance policies that were more affordable and provided better protection against impoverishment than those generally available. PLTC policies combine private long-term care insurance with special Medicaid eligibility standards that protect assets of the insured once private insurance benefits are exhausted. Four parts constitute this collection. Parts 1 and 2 consist of data from a survey of PLTC insurers and of non-PLTC insurers, respectively. Both of these surveys gathered information on marketing methods, underwriting procedures, case management, sales, views on the PLTC, and reasons for participating or not participating in the PLTC. Part 3 comprises data from a survey of purchasers and nonpurchasers of PLTC policies, which included questions about health status, insurance coverage, opinions on long-term care insurance, financial planning for long-term care, income, assets, and demographic and social characteristics, such as sex, date of birth, education, race, Hispanic origin, marital status, household size, number of living children, and employment. Part 4 contains data from a survey of Californians who purchased non-PLTC long-term care insurance before and after the implementation of the PLTC in California. This survey covered the same topics as the survey of purchasers/nonpurchasers of PLTC insurance.
Curated
Partially restricted

National Evaluation Database for the Partnership for Long-Term Care (PLTC) [California, Connecticut, and Indiana], 1992-1998 (ICPSR 2844)

Released/updated on: 2024-02-14
Geographic coverage: Indiana, United States, Connecticut, California
Time period: 1992-01-01--1998-01-01
These data were collected to evaluate the Partnership for Long-Term Care (PLTC), a project in which the Robert Wood Johnson Foundation awarded grants to four states -- California, Connecticut, Indiana, and New York -- to work with private insurers to create long-term care insurance policies that were more affordable and provided better protection against impoverishment than those generally available. PLTC policies combine private long-term care insurance with special Medicaid eligibility standards that protect assets of the insured once private insurance benefits are exhausted. This collection was extracted from a database compiled from data submitted by three of the PLTC states: California, Connecticut, and Indiana (New York refused participation). It comprises seven parts, which can be linked together using common identifying variables. Part 1, Insured, describes the characteristics of each issued policy and includes variables covering the effective policy date, policy type, elimination periods, maximum benefits, inflation protection mode, and annualized premium, as well as the year of birth, sex, marital status, and state of residence of the insured. Each insured person is represented by one or more records: one record for the initial PLTC policy, plus a separate record for each change to the policy, if any. Part 2, Changes, consists of policy change records used to update the policies in Part 1. Assessments for benefits are recorded in Part 3. This file includes variables on the assessment date, whether the insured met policy criteria at the time of the assessment, disability date, deficiencies in activities of daily living, and MSQ and Folstein test scores. Parts 4-6 describe service payments and utilization: reporting period (quarter), type of service received by the insured, service amount billed, days of service rendered, and amount of remaining benefits (dollars and days). Part 7 contains information on persons denied application to PLTC policies, including date of denial, type and amount of coverage sought, reason for denial, and the sex, year of birth, and marital status of the applicant.
Curated

Survey of Consumer Attitudes and Behavior, Summer 1963 (ICPSR 3622)

Released/updated on: 1992-02-16
Geographic coverage: United States
This survey of consumer attitudes and expectations includes detailed information on old age insurance and private pension plans and their effect on the functioning of the economy, as well as information on the respondents' actual and expected family size. Questions were asked to help determine how pension plans influenced the attitudes and behavior of people long before their retirement. Open-ended questions were asked concerning evaluations and expectations about price changes, employment, recession, and the national business situation. Additional variables probe respondents' buying intentions for a house, automobiles, appliances, and other consumer durables, as well as respondents' appraisals of present market conditions for purchasing these items. Other variables probe respondents' opinions on a proposed government tax reduction and its effect on business conditions or employment, their own financial status relative to the previous year, and the Cold War between the former Soviet Union and the West. Data are also provided on respondents' house maintenance, total liquid assets, and savings and investments. Demographic variables provide information on age, sex, race, marital status, religion, education, occupation, and family income.
Curated
Simple Crosstabs

Survey of Long-Term Care Awareness and Planning, 2014 [United States] (ICPSR 36969)

Released/updated on: 2017-12-21
Geographic coverage: United States

The Survey of Long-Term Care Awareness and Planning was designed to measure the attitudes of Americans ages 40-70 towards long-term care (LTC), retirement planning, and insurance policy preferences. Few people have private LTC insurance, and Medicare does not cover LTC. Many older adults pay for LTC out of their income and personal savings until they are poor enough to qualify for Medicaid. Others, to avoid exhausting their financial resources and relying on Medicaid, depend on unpaid family support or go without needed services. The Survey of Long-Term Care Awareness and Planning collected data on LTC in order to help inform federal policy in this area.

The survey collected respondents' current health information, willingness to take risks, plans for disability care, retirement preparation, and insurance coverage. Part of the survey was a discrete choice experiment (DCE) or conjoint analysis designed to elicit respondent preferences on specific features of LTC insurance. This section included choices on daily benefit, benefit period, deductible period, health requirements, type of insurer, monthly premium, and voluntary or universal. Respondents were also asked about the types of investments they had, where they received health information, opinions on the US healthcare system, whether they had been diagnosed with specific health conditions, willingness to make lifestyle changes due to a disability, concerns about long-term disability care, and opinions on who should be responsible for the costs of LTC. Demographic information collected includes age, education, household size, race, gender, income, marital status, and region.

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