“I don’t like to take advantage”: How disabled adults get by with limited community resources in rural America (ICPSR 225082)
Transportation Patterns of Adults With Travel-Limiting Disabilities in Rural and Urban America (ICPSR 207768)
Six-State Survey of Elderly Dual Enrollees in Medicare and Medicaid, 1999 (ICPSR 3240)
Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2019 (ICPSR 38821)
ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly) was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study.
This collection integrates data from two previous collections (ICPSR 4248 and ICPSR 36036) and fills in gaps that existed in these two collections. In addition, this collection features composite scores for constructs like memory, reasoning speed, Short Form Health Survey (SF-36), Social Determinants of Health (SDOH), as well as data from the National Death Index and state driving records.
Please read the collection notes for important analysis details.
Stakeholder Views on Intellectual Disability Research Ethics, New York, 2013 (ICPSR 38311)
Adults with intellectual disabilities (ID) face significant physical and mental health disparities. Ethical challenges may discourage their inclusion in research and hinder scientific advancements to reduce these health disparities. Five core groups are adults with ID, individuals who provide informal support to adults with ID, individuals who provide services to adults with ID, ID researchers, and Institutional Review Board (IRB) members. Little is known about these stakeholders' opinions on how to ethically include adults with ID in research. Increasing this knowledge base, especially by inviting input from groups whose opinions are rarely examined, is critical to helping the scientific community devise and deploy sensitive and responsive practices and encouraging research to reduce pressing disparities.
The research's long-term goal is to encourage science that is sensitive to the ethical and social dimensions of research with adults with ID and more inclusive of this population. The research's aim was to qualitatively study the views of adults with ID, persons who provide informal support to adults with ID, and persons who provide services to adults with ID on the participation of adults with ID in self-report research. The focus on self-report research that aims to study the thoughts and experiences of adults with intellectual disability reflects the field's increased emphasis on direct representation in such research and the less clear risks this research may bear.
Survey of Low Income Aged and Disabled, United States, 1973-1974 (ICPSR 7661)
Survey of Consumer Attitudes and Behavior, July 2009 (ICPSR 35423)
Survey of Consumer Attitudes and Behavior, August 2009 (ICPSR 35424)
Survey of Consumer Attitudes and Behavior, November 2009 (ICPSR 35427)
Survey of Consumer Attitudes and Behavior, February 2010 (ICPSR 35430)
Survey of Consumer Attitudes and Behavior, December 2009 (ICPSR 35428)
Survey of Consumer Attitudes and Behavior, January 2010 (ICPSR 35429)
Survey of Consumer Attitudes and Behavior, March 2010 (ICPSR 35431)
Survey of Consumer Attitudes and Behavior, April 2010 (ICPSR 35432)
Survey of Consumer Attitudes and Behavior, May 2010 (ICPSR 35433)
Survey of Consumer Attitudes and Behavior, June 2010 (ICPSR 35434)
Survey of Consumer Attitudes and Behavior, July 2010 (ICPSR 35435)
Survey of Consumer Attitudes and Behavior, November 2010 (ICPSR 35439)
Survey of Consumer Attitudes and Behavior, September 2010 (ICPSR 35437)
Survey of Consumer Attitudes and Behavior, December 2010 (ICPSR 35440)
Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2008 (ICPSR 36036)
The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.
ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2008 was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study. This collection includes the data from the tenth year of the study as well as a comprehensive analytical dataset, incorporating data from the previous collections (data from previous waves of the study as well as participant demographic data can be found in ICPSR 4248). A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.
Survey of Consumer Attitudes and Behavior, January 2011 (ICPSR 35441)
Daily In-Home Activity Metrics from the Intelligent Systems for Assessing Aging Changes (ISAAC), Portland, Oregon, 2011 (ICPSR 35063)
National Health Interview Survey: Longitudinal Study of Aging, 70 Years and Over, 1984-1990 (ICPSR 8719)
RAND Center for Population Health and Health Disparities (CPHHD) Data Core Series: Disability, 2000 [United States] (ICPSR 27862)
Crime During the Transition to Adulthood: How Youth Fare As They Leave Out-of-Home Care in Illinois, Iowa, and Wisconsin, 2002-2007 (ICPSR 27062)
Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)
The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.
ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.