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Self-published

“I don’t like to take advantage”: How disabled adults get by with limited community resources in rural America (ICPSR 225082)

Released/updated on: 2025-06-23
Time period: 2022-01-01--2024-12-01
People with disabilities face barriers to accessing resources and supports they need to live independently in their communities. These barriers are amplified in rural communities where access to transportation, healthcare, personal care supports, food, and internet/communication technology can be limited. This study aims to better understand not only the limitations that rural people with disabilities face when trying to access community resources but also the strategies and solutions they employ to navigate these limitations. Using photo-elicitation interviews, the research team interviewed 12 rural community members with disabilities. We used thematic analysis to identify three core themes related to rural resource access. First, people with disabilities in rural areas described limited access to resources, particularly access to transportation which in turn limited their ability to access other services. Secondly, reliance on social capital and disability organizations emerged as critical sources of support that individuals leveraged to navigate their limited access to community resources. Finally, while social capital and community-based organizations are critical supports, systemic barriers continue to limit access to rural community resources impacting individuals access to care and quality of life. Increased community living supports and funding for community-based organizations in rural communities is critical to ensure that people with disabilities in all communities across the country have access to the resource they need to live independently in their communities.
Self-published

Transportation Patterns of Adults With Travel-Limiting Disabilities in Rural and Urban America (ICPSR 207768)

Released/updated on: 2024-07-08
Geographic coverage: United States
Time period: 2017-01-01--2017-12-30
Lack of transportation is a significant barrier to community participation for many disabled adults. Living in a rural area introduces additional transportation barriers, such as having to travel long distances to access services or socialize, and limited public transit options. While the importance of transportation access is clear, the mix of different transportation options used by people with disabilities to participate in their communities is less understood, particularly among those who do not or cannot drive. This study used 2017 data from the National Household Travel Survey to explore transportation behaviors among disabled adults in rural and urban areas. Several geographic differences emerged among non-drivers. Rural non-drivers were less likely to take any trip, particularly for social activities, and reported using less public transportation or walking/rolling than urban non-drivers. Overall, disabled rural adults reported lower odds of giving up driving, even after controlling for socio-demographic and health characteristics.
Curated

Six-State Survey of Elderly Dual Enrollees in Medicare and Medicaid, 1999 (ICPSR 3240)

Released/updated on: 2024-02-14
Geographic coverage: Iowa, United States, Massachusetts, Georgia, New Jersey, Wisconsin, Washington
Time period: 1999-01-01--1999-12-31
This survey, conducted in Georgia, Iowa, Massachusetts, New Jersey, Washington, and Wisconsin, examined access to health care among elderly dual enrollees in Medicare and Medicaid. Respondents provided information about their health status, unmet needs for care, care availability, care utilization, quality of care, and difficulty in activities related to personal care and independent living. Additionally, the survey questioned respondents about private health insurance coverage, out-of-pocket expenses for prescribed medicines and medical bills as a whole, delays in getting health care caused by money problems, and concerns with neighborhood crime and violence at home. Background variables include sex, age (two age groups), race, Hispanic origin, education, home ownership, income, and work status at age 65.
Curated
Simple Crosstabs

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2019 (ICPSR 38821)

Released/updated on: 2023-12-11
Geographic coverage: Detroit, Indiana, United States, Alabama, Birmingham, Michigan, Pennsylvania, Baltimore, Massachusetts, State College, Maryland, Boston, Indianapolis
Time period: 1999-01-01--2019-12-31

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly) was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study.

This collection integrates data from two previous collections (ICPSR 4248 and ICPSR 36036) and fills in gaps that existed in these two collections. In addition, this collection features composite scores for constructs like memory, reasoning speed, Short Form Health Survey (SF-36), Social Determinants of Health (SDOH), as well as data from the National Death Index and state driving records.

Please read the collection notes for important analysis details.

Curated
Restricted

Stakeholder Views on Intellectual Disability Research Ethics, New York, 2013 (ICPSR 38311)

Released/updated on: 2022-03-30
Geographic coverage: United States, Syracuse, New York (state)
Time period: 2013-07-01--2013-11-24

Adults with intellectual disabilities (ID) face significant physical and mental health disparities. Ethical challenges may discourage their inclusion in research and hinder scientific advancements to reduce these health disparities. Five core groups are adults with ID, individuals who provide informal support to adults with ID, individuals who provide services to adults with ID, ID researchers, and Institutional Review Board (IRB) members. Little is known about these stakeholders' opinions on how to ethically include adults with ID in research. Increasing this knowledge base, especially by inviting input from groups whose opinions are rarely examined, is critical to helping the scientific community devise and deploy sensitive and responsive practices and encouraging research to reduce pressing disparities.

The research's long-term goal is to encourage science that is sensitive to the ethical and social dimensions of research with adults with ID and more inclusive of this population. The research's aim was to qualitatively study the views of adults with ID, persons who provide informal support to adults with ID, and persons who provide services to adults with ID on the participation of adults with ID in self-report research. The focus on self-report research that aims to study the thoughts and experiences of adults with intellectual disability reflects the field's increased emphasis on direct representation in such research and the less clear risks this research may bear.

Curated
Simple Crosstabs

Survey of Low Income Aged and Disabled, United States, 1973-1974 (ICPSR 7661)

Released/updated on: 2018-11-19
Geographic coverage: United States
Time period: 1973-01-01--1974-12-31
This data collection contains the results of the Survey of Low Income Aged and Disabled (SLIAD), conducted in 1973-1974 in order to collect demographic and socioeconomic data necessary for assessing the effect of the Supplemental Security Income (SSI) program on potential recipients. After January 1, 1974, SSI replaced the state-administered welfare programs of Old Age Assistance (OAA), Aid to the Blind (AB), and Aid to the Permanently and Totally Disabled (APTD) and was meant to improve the economic well-being of the adult poor. A national sample of about 18,000 low-income aged, blind, and/or disabled adults was interviewed in 1973, and reinterviewed in 1974, after SSI was implemented. The 1974 re-interviews were conducted only with persons successfully interviewed in 1973. No new cases were added to replace first-year losses, nor were cases dropped because they no longer met SSI eligibility. Part 1 contains data gathered from a sample made up of aged and disabled persons who received OAA, AB, and/or APTD payments in 1973. Part 2 contains data gathered from a sample of low-income aged and disabled people in the general population (generated from Current Population Survey samples). The United States Census Bureau conducted the interviews and collected the data. The 1973 survey placed great emphasis on financial matters. Each respondent was asked to report income received in the preceding month and year by each of three general classes of persons in the household. The questionnaire listed more than 15 income sources including payments and awards from almost every transfer program possible, earnings from jobs and businesses, gifts, and dividends. The financial section of the questionnaire also included items aimed at establishing the value of owned property, savings and investments, the amount of indebtedness, and the amount spent for food, shelter, and other recurring household expenditures. For the most part, the remainder of the questionnaire concerned (1) household composition, (2) personal history, (3) health, health care, and the capacity for self-maintenance, (4) standard of living, as represented by housing, diet, travel, and recreation, (5) factors that might affect the relation between income and standard of living (e.g., personal preference, physical capacity, and access), and (6) attitudinal response to these conditions, circumstances, and types of status. The 1974 survey was similar in that it asked almost all of the earlier income and asset questions, but added a section on SSI payments. It also collected more detail on household living expenses. It did not repeat the biographical section or the inventory of health conditions from the 1973 survey, but did contain new questions on a spouses' funeral expenses as well as the respondent's experience with SSI.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, July 2009 (ICPSR 35423)

Released/updated on: 2015-10-23
Geographic coverage: United States
Time period: 2009-06-01--2009-07-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2009 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about independent living communities, health care and health status, and general feelings. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, August 2009 (ICPSR 35424)

Released/updated on: 2015-10-05
Geographic coverage: United States
Time period: 2009-07-01--2009-08-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2009 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Also explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. Respondents were asked about health care, independent living communities, general feelings, and their familiarity with historical figures and phrases. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, November 2009 (ICPSR 35427)

Released/updated on: 2015-09-24
Geographic coverage: United States
Time period: 2009-10-01--2009-11-30
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2009 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Also explored in this survey were respondents' types of savings and financial investments, loan use, family income, retirement planning, mortgages, and debt. Respondents were asked about health care, independent living communities, and general feelings. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, February 2010 (ICPSR 35430)

Released/updated on: 2015-09-24
Geographic coverage: United States
Time period: 2010-01-01--2010-02-28
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about health care, general feelings, world events, and independent living communities. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, December 2009 (ICPSR 35428)

Released/updated on: 2015-09-22
Geographic coverage: United States
Time period: 2009-11-01--2009-12-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2009 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, computers, and other durables. Also explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. Respondents were asked about health care, independent living communities, general feelings, and their political ideology. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information includes ethnic origin, citizenship, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, January 2010 (ICPSR 35429)

Released/updated on: 2015-09-22
Geographic coverage: United States
Time period: 2010-01-01--2010-01-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about health care, general feelings, and independent living communities. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information includes ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, March 2010 (ICPSR 35431)

Released/updated on: 2015-09-15
Geographic coverage: United States
Time period: 2010-02-01--2010-03-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about political affiliation, health care, general feelings, and opinions on independent living communities. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, April 2010 (ICPSR 35432)

Released/updated on: 2015-09-15
Geographic coverage: United States
Time period: 2010-03-01--2010-04-30
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about independent living communities, leisure, political affiliation, and general feelings. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, May 2010 (ICPSR 35433)

Released/updated on: 2015-09-15
Geographic coverage: United States
Time period: 2010-04-01--2010-05-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about independent living communities, leisure, political affiliation, and general feelings. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, June 2010 (ICPSR 35434)

Released/updated on: 2015-09-14
Geographic coverage: United States
Time period: 2010-05-01--2010-06-30
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about financial and health literacy; adult and online education; and technology use in health, finances, travel, and communication. Additional questions on independent living communities and general feelings were asked. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, July 2010 (ICPSR 35435)

Released/updated on: 2015-09-03
Geographic coverage: United States
Time period: 2010-06-01--2010-07-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about health care, general feelings, and independent living communities. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, November 2010 (ICPSR 35439)

Released/updated on: 2015-08-28
Geographic coverage: United States
Time period: 2010-10-01--2010-11-30
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, and retirement planning. This survey also asked respondents about political affiliation, health care, general feelings, and opinions on independent living communities. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, September 2010 (ICPSR 35437)

Released/updated on: 2015-08-20
Geographic coverage: United States
Time period: 2010-08-01--2010-09-30
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Explored in this survey were respondents' types of savings and financial investments, loan use, family income, retirement planning, and debt. This survey also asked respondents about political affiliation, health care, general feelings, and opinions on independent living communities. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, December 2010 (ICPSR 35440)

Released/updated on: 2015-08-17
Geographic coverage: United States
Time period: 2010-11-01--2010-12-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2010 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Also explored in this survey were respondents' types of savings and financial investments, loan use, family income, retirement planning, opinions on independent living communities, and general feelings. Other topics in this series typically include ownership, lease, and use of automobiles, respondents' use of personal computers at home and in the office, and respondents' familiarity with and use of the Internet. Demographic information include ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2008 (ICPSR 36036)

Released/updated on: 2015-07-29
Geographic coverage: Detroit, Baltimore, Indiana, United States, State College, Alabama, Maryland, Birmingham, Michigan, Pennsylvania, Boston, Indianapolis
Time period: 1999-01-01--2008-12-31

The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2008 was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study. This collection includes the data from the tenth year of the study as well as a comprehensive analytical dataset, incorporating data from the previous collections (data from previous waves of the study as well as participant demographic data can be found in ICPSR 4248). A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

Curated
Simple Crosstabs

Survey of Consumer Attitudes and Behavior, January 2011 (ICPSR 35441)

Released/updated on: 2015-05-19
Geographic coverage: United States
Time period: 2011-01-01--2011-01-31
The Survey of Consumer Attitudes and Behavior series (also known as the Surveys of Consumers) was undertaken to measure changes in consumer attitudes and expectations, to understand why such changes occur, and to evaluate how they relate to consumer decisions to save, borrow, or make discretionary purchases. The data regularly include the Index of Consumer Sentiment, the Index of Current Economic Conditions, and the Index of Consumer Expectations. Since the 1940s, these surveys have been produced quarterly through 1977 and monthly thereafter. The surveys conducted in 2011 focused on topics such as evaluations and expectations about personal finances, employment, price changes, and the national business situation. Opinions were collected regarding respondents' appraisals of present market conditions for purchasing houses, automobiles, and other durables. Also explored in this survey, were respondents' types of savings and financial investments, loan use, family income, and retirement planning. Additional topics included information on gas prices, health care security, senior living conditions, personal feelings, and use of email or the Internet. Demographic information includes ethnic origin, sex, age, marital status, and education.
Curated
Simple Crosstabs

Daily In-Home Activity Metrics from the Intelligent Systems for Assessing Aging Changes (ISAAC), Portland, Oregon, 2011 (ICPSR 35063)

Released/updated on: 2014-06-18
Geographic coverage: Oregon, United States, Portland (Oregon)
Time period: 2011-01-01--2011-12-31
The ISAAC study developed methods of continuously assessing behaviors of seniors living independently in the community, with the ultimate goal of identifying trends in behavior and activity measures that would be predictive of a later transition to Mild Cognitive Impairment. Homes of participants were instrumented with wireless motion and door sensors, which captured movements throughout the home as they occurred. Participants were monitored continuously for about three years. Participants were also evaluated annually with a full clinical and neuropsychological battery of tests. Algorithms were developed to derive measures of motor activity (median walking speed, number of walks along a chosen path in the home, time spent out of the home, number of room transitions), measures of computer use (number of computer sessions and total time spent on the computer), and measures of nighttime activity (sleep latency, total time in bed, number of bathroom visits at night, motion in bed at night, etc.).
Curated

National Health Interview Survey: Longitudinal Study of Aging, 70 Years and Over, 1984-1990 (ICPSR 8719)

Released/updated on: 2011-08-18
Geographic coverage: United States
Time period: 1984-01-01--1990-12-31
This study, commonly known as the Longitudinal Study of Aging (LSOA), was conducted by the National Center for Health Statistics (NCHS) in collaboration with the National Institute on Aging (NIA) and designed to (1) provide mortality rates by demographic, social, economic, and health characteristics that are not available from the vital statistics system, (2) measure change in the functional status and living arrangements of older people, and (3) provide measures of health care use. It was also designed to describe the continuum from functionally independent living in the community through dependence, possible institutionalization, and finally death. The LSOA is an extension of the National Health Interview Survey (NHIS) of 1984, following its sample of 16,148 noninstitutionalized elderly people (55 years and over) living in the United States, with a special focus on those who were 70 years and over in 1984. This release of the LSOA contains data on those respondents who had been 70 years and older at the time of their 1984 interviews. The data include 1986, 1988, and 1990 reinterviews, National Death Index matches from 1984-1989, and 1987 interviews with contact persons named by decedents, as well as selected variables from the 1984 NHIS core questionnaire and its two supplements, Health Insurance and the Supplement on Aging (SOA). Two Medicare files are also included: Part 2, Medicare Hospital Records, and Part 3, Other Medicare Use Records (which covers home health care, hospice, and outpatient use). Links also are provided to allow merging of additional variables from the NATIONAL HEALTH INTERVIEW SURVEY, 1984 (ICPSR 8659).
Curated

RAND Center for Population Health and Health Disparities (CPHHD) Data Core Series: Disability, 2000 [United States] (ICPSR 27862)

Released/updated on: 2011-05-13
Geographic coverage: North Carolina, Indiana, Wyoming, Utah, Arizona, Montana, Kentucky, California, Kansas, Florida, Delaware, Pennsylvania, Mississippi, Iowa, Illinois, Texas, Connecticut, Georgia, Virginia, Maryland, Idaho, Oregon, Vermont, Puerto Rico, United States, Oklahoma, Tennessee, Maine, Alabama, Arkansas, Washington, South Carolina, Nebraska, West Virginia, Massachusetts, Colorado, Missouri, Alaska, North Dakota, Wisconsin, Nevada, New York, District of Columbia, Rhode Island, South Dakota, Hawaii, Minnesota, New Jersey, Michigan, New Mexico, New Hampshire, Louisiana, Ohio
Time period: 2000-01-01--2000-12-31
The RAND Center for Population Health and Health Disparities (CPHHD) Data Core Series is composed of a wide selection of analytical measures, encompassing a variety of domains, all derived from a number of disparate data sources. The CPHHD Data Core's central focus is on geographic measures for census tracts, counties, and Metropolitan Statistical Areas (MSAs) from two distinct geo-reference points, 1990 and 2000. The current study, Disability, contains cross-sectional data from the year 2000. Based on the Decennial Census Special Table Series published by the Administration on Aging, this study contains a large number of disability measures categorized by age (55+), type of disability (sensory, learning, employment, and self-care), and poverty status.
Curated
Partially restricted

Crime During the Transition to Adulthood: How Youth Fare As They Leave Out-of-Home Care in Illinois, Iowa, and Wisconsin, 2002-2007 (ICPSR 27062)

Released/updated on: 2010-12-14
Geographic coverage: Iowa, United States, Illinois, Wisconsin
Time period: 2002-05-01--2007-08-31
The purpose of the study was to examine criminal behavior and criminal justice system involvement among youth making the transition from out-of-home care to independent adulthood. The study collected data from two sources: (1) survey data from the Midwest Study of the Adult Functioning of Former Foster Youth (Midwest Study), and (2) official arrest data. The Midwest Study was a longitudinal panel study that was part of a collaborative effort of the state public child welfare agencies in Illinois, Iowa, and Wisconsin, Chapin Hall at the University of Chicago, and the University of Washington. The participating states funded and/or operated the full range of services supported by the Chafee Foster Care Independence Program. The Midwest Study survey data were collected directly from the youth in the sample every two years over three waves, between May 2002 and January 2007. A total of 732 respondents participated in at least one of the in-person interviews over the three waves. This data collection includes some variables that were directly measured from the original Midwest Study survey instrument and other variables that were computed or derived from variables in the original data for purposes of the current study. To supplement the survey data, the research team accessed official arrest data from each state for this study. Researchers obtained data on all criminal arrests that occurred between the respondents' Wave 1 interview and August 31, 2007, a date by which all of the study participants were at least 21 years old. The study contains a total of 85 variables including indicator variables, demographic and background variables, delinquency and crime variables, out-of-home care experiences variables, and social bonds variables.
Curated

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)

Released/updated on: 2010-06-30
Geographic coverage: Indiana, United States, Massachusetts, Alabama, Florida, Maryland, Michigan
Time period: 1999-01-01--2001-12-31

The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

Curated

National Health Interview Survey, 1994: Second Longitudinal Study on Aging, Wave 2, 1997 (ICPSR 3526)

Released/updated on: 2007-03-01
Geographic coverage: United States
Time period: 1997-01-01--1997-12-31
The Second Longitudinal Study of Aging (LSOA II) is a collaborative effort of the National Center for Health Statistics (NCHS) and the National Institute on Aging (NIA). The NATIONAL HEALTH INTERVIEW SURVEY, 1994: SECOND SUPPLEMENT ON AGING (ICPSR 2563), serves as the baseline for this study. LSOA II Wave 2 interviews were conducted with a total of 7,998 respondents who were interviewed at baseline and consists of 7,060 survivor interviews and 998 decedent interviews. LSOA II Wave 2 is comprised of two data files, the Survivor Data (Part 1) and the Decedent Data (Part 2). The Survivor Data contains one record for each sample person (N = 9,447) interviewed at baseline and includes information drawn from several additional sources, including NATIONAL HEALTH INTERVIEW SURVEY, 1994 (ICPSR 6724) core questionnaire, NATIONAL HEALTH INTERVIEW SURVEY, 1994: FAMILY RESOURCES INCOME AND ASSETS SUPPLEMENT (ICPSR 2656), and NATIONAL HEALTH INTERVIEW SURVEY ON DISABILITY, 1994: PHASE I, DISABILITY OUTCOME SUPPLEMENT (ICPSR 2539). Wave 2 questions examined migration, convalescent home utilization, persistent symptomatic conditions such as pain in legs, swelling in feet, etc., nutrition, influenza immunization, mammogram, prostate, and cholesterol screenings, routine use of vitamins and aspirin, and detailed questions on home health care utilization. In addition a random one-quarter sample of the follow-up respondents were chosen to complete the Childhood Health and Family Longevity Module. This section is similar to that administered during the 1996 Health and Retirement Survey (HRS). Variable SF3462 indicates whether the sample person answered the childhood module. For the Decedent Data (Part 2) information was gathered from a family member or close relative regarding sample persons (N = 938) who were deceased at the time of Wave 2 interviews. Questions focused on housing, long-term care, assistance with key activities, chronic conditions, cognitive functioning, and health care use and health insurance.
Curated

National Health Interview Survey, 1994: Second Supplement on Aging (ICPSR 2563)

Released/updated on: 2007-02-12
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31
The National Health Interview Survey, 1994: Second Supplement on Aging (SOA II), conducted approximately 10 years after the original SOA (see NATIONAL HEALTH INTERVIEW SURVEY, 1984 [ICPSR 8659], Parts 6 and 7), had four specific aims. The first was to provide a replication of the first SOA to determine whether changes had occurred in the level of disability among older persons between 1984 and the mid-1990s. The second aim was to elicit information on the causes and correlates of changes in health and functioning in older Americans, including background demographic characteristics, health behaviors, and attitudes, pre-existing illness, and social and environmental support. The third was to describe the sequence and consequences of health events, including utilization of health care and services for assisted community living, on the physiological consequences of disability such as pain and fatigue, on social consequences such as changes in social activities, living arrangements, social support, and use of community services, and on the deployment of assisted living strategies and accessibility of technological and environmental adaptations. The final aim was to serve as the baseline for another national longitudinal study focusing on older Americans, the SECOND LONGITUDINAL STUDY OF AGING (LSOA II) (for the first LSOA see NATIONAL HEALTH INTERVIEW SURVEY: LONGITUDINAL STUDY OF AGING, 70 YEARS AND OVER, 1984-1990 [ICPSR 8719]).
Curated

Alameda County [California] Health and Ways of Living Study, 1999 Panel (ICPSR 4432)

Released/updated on: 2006-11-16
Geographic coverage: United States, California
Time period: 1999-01-01--1999-12-31
This fifth wave of data, collected in 1999, provides follow-up with 2,123 respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. Part 2 of this collection contains mortality data including cause and year of death. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including 360 men and 530 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL (ICPSR 6838), collected information from 4,864 of the original respondents. The third and fourth waves, ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1994 and 1995 PANELS (ICPSR 3083), provided a follow-up of 2,729 original 1965 and 1974 respondents. The fourth wave is a follow-up to the 1994 panel and contains 2,569 cases.
Curated

National Survey of Self-Care and Aging: Baseline, 1990-1991 (ICPSR 6718)

Released/updated on: 2006-06-22
Geographic coverage: United States
Time period: 1990-09-16--1991-01-25
The National Survey of Self-Care and Aging (NSSCA) was conducted during 1990 and 1991 to create a baseline database on the prevalence of self-care behaviors by noninstitutionalized older adults. Personal interviews were conducted with 3,485 individuals 65 years of age and older. Oversampling of the oldest old was employed to assure representation of those who were frail or difficult to reach. A proxy was substituted if the subject was hospitalized, too ill, or cognitively not able to respond. Questions were asked about the type and extent of self-care behaviors for activities of daily living, management of chronic conditions (through self-care activities, equipment use, and environmental modifications), medical self-care for acute conditions, and health promotion/disease preventions. Social support, health service utilization, and socio-demographic/economic variables were also included. A follow-up study was conducted in 1994 (see NATIONAL SURVEY OF SELF-CARE AND AGING: FOLLOW-UP, 1994 [ICPSR 2592]).
External data

Nihon University Japanese Longitudinal Study of Aging (NUJLSOA) (ICPSR 156)

Released/updated on: 2006-06-19
Geographic coverage: Japan, Global
The NUJLSOA is a longitudinal survey of a nationally representative sample of the population aged 65 and over in Japan. The first wave of data was collected in November 1999, the second in November 2001, and a third wave in November 2003. The study was designed primarily to investigate health status of the Japanese elderly and changes in health status over time. An additional aim was to investigate the impact of long-term care insurance system on the use of services by the Japanese elderly and to investigate the relationship between co-residence and the use of long term care. While the focus of the survey is health and health service utilization, other topics relevant to the aging experience are included such as intergenerational exchange, living arrangements, caregiving, and labor force participation.
Curated

Alameda County [California] Health and Ways of Living Study, 1994 and 1995 Panels (ICPSR 3083)

Released/updated on: 2006-03-06
Geographic coverage: United States, California
Time period: 1994-01-01--1994-12-31, 1995-01-01--1995-12-31
This collection provides a 30-year follow-up with respondents from Alameda County who were originally interviewed in 1965 for the first wave of the Health and Ways of Living Study. The purpose of the survey was to explore the influences of health practices and social relationships on the physical and mental health of a typical sample of the population. The first wave of the study, HEALTH AND WAYS OF LIVING STUDY, 1965 PANEL: [ALAMEDA COUNTY, CALIFORNIA] (ICPSR 6688), collected information for 6,928 respondents (including approximately 500 women aged 65 years and older) on chronic health conditions, health behaviors, social involvements, and psychological characteristics. The second wave, the 1974 panel (ALAMEDA COUNTY [CALIFORNIA] HEALTH AND WAYS OF LIVING STUDY, 1974 PANEL [ICPSR 6838]), collected information from 4,864 of the original respondents. The third and fourth waves (1994 and 1995 panels, respectively), provided in this collection, explore some new topics. The third wave provides a follow-up of 2,729 original 1965 and 1974 respondents and examines health behaviors such as alcohol consumption and smoking habits, along with social activities. Also included is information on health conditions such as diabetes, osteoporosis, hormone replacement, and mental illness. Another central topic investigated is activities of daily living (including self-care such as dressing, eating, and shopping), along with use of free time and level of involvement in social, recreational, religious, and environmental groups. The fourth wave is a follow-up to the 1994 panel, and contains 2,569 cases. This wave examines changes in functional abilities such as self-care activities, employment, involvement in community activities, visiting friends/family, and use of free time since 1994.
Curated

National Senior Citizens Survey, 1968 (ICPSR 7626)

Released/updated on: 2005-11-04
Geographic coverage: United States
Time period: 1968-01-01--1968-12-31
This data collection contains the responses to a 1968 National Senior Citizens Survey of 3,996 noninstitutionalized persons 65 years of age and older in a national sample of the continental United States. The primary emphasis of the survey was to determine the impact of environmental attributes on some aspects of aging, primarily life satisfaction, social relationships, and knowledge and use of services. Also of interest were the interrelationships among environment, social relationships, and morale. Administered with personal interviews, the survey focused on characteristics of the respondent's residential environment (e.g., physical characteristics of home and neighborhood, value of property, and work/retirement status), social relationships (e.g., organization memberships, family relationships, and number of activities involved in), morale (e.g., self-concept, stated happiest time of life, attitudes about the state of the world), and health (e.g., number of doctor visits in past year, number of times health status interfered with activities, and self rating of physical health). General demographic characteristics are also included.
Curated

Detroit Area Old Age Study, 1966 (ICPSR 7669)

Released/updated on: 1992-02-16
Geographic coverage: Detroit, United States, Michigan
Time period: 1966-01-01--1966-12-31
This data collection contains information about health gathered in interviews with persons aged 65 and over living in the Detroit area (Wayne, Oakland, and Macomb counties as well as the city of Detroit) in 1966. The majority of questions concerned the respondent's physical health, e.g., illnesses, symptoms, history of medical care, type of medical care received currently, satisfaction with care, mental health, dental health, hospitalization costs, medicine costs, health insurance costs, welfare status, attitudes toward assistance and welfare programs, and past sources of payment for medical care and hospitalization other than insurance. Also asked were questions about income and personal finances, past and present employment and earnings, attitudes about retirement, cost of household utilities, amount paid in taxes, sources and history of financial assistance, and housing and living conditions. Other questions probed for place of birth and place where raised, daily activities, attitudes about surrounding area, number of times per week visiting or shopping in surrounding area in both the past and present, contact with family members, family history, family health history, attitudes about role in family, memberships, leisure activities, hobbies, presidential voting history, past and current political affiliation, and attitudes toward the federal government's response to social problems, as well as the respondent's race, education, number of children, marital status, and religious affiliation.
Curated

National Survey of the Aged [United States], 1962 (ICPSR 7687)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1962-01-01--1962-12-31
This data collection contains the results of a survey of the aged in the United States in 1962. The study gathered information on the health, economic status, living arrangements, and family relationships of persons aged 65 years and older. The emphasis of the survey was on the general physical capacity of older people, the relationship of physical capacity to economic conditions, employment and retirement patterns, housing, and family and social relationships. The survey was designed to produce national estimates of the needs of older persons. In particular, the services that facilitate continued independent living arrangements were examined. The survey was conducted by the National Opinion Research Center and was part of a three-nation study in Denmark, Great Britain, and the United States (see NATIONAL SURVEY OF THE AGED [UNITED STATES], 1957 [ICPSR 7686] and NATIONAL SURVEY OF THE AGED, 1975 [ICPSR 7945]). In personal interviews respondents who were currently employed (and those who were retired or housewives) were asked for employment details and occupational history, their attitudes about work and retirement, and descriptions of their physical health, with specific questions asked of both nonambulatory and housebound persons, (e.g., if they needed and/or received help with various personal care tasks, what specific illness kept them indoors, and who provided their in-home care). Respondents were also asked for information about their children and relatives (e.g., the amount of financial help received from them, the number of times each sibling and child visited, and the amount of time it would take each to make the trip to the respondent's dwelling) and their finances (e.g., living expenses, life insurance, value of property, amount of mortgage payment or rent, and amount and sources of income). Other questions concerned attitudes about aging (e.g., if respondents were satisfied with their life accomplishments, if they believed in an afterlife, and how often they experienced feelings of loneliness and isolation). The interviewers provided observational data about respondents (e.g., level of cooperation and alertness and ability to hear and see). Demographic data gathered include age, sex, marital status, relationship to head of household, number of persons in household, type of household, country of origin, age when arrived in the United States, last grade or year of school completed, religious preference, and if living on a farm.
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