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Showing 1 – 12 of 12 results.

Curated

Preserving Kidney Function in Children with Chronic Kidney Disease (PRESERVE), United States, 2009-2024 (ICPSR 39689)

Released/updated on: 2026-03-30

Geographic coverage: United States

Time period: 2009-01-01--2023-01-31, 2023-01-01--2024-12-31

The Preserving Kidney Function in Children With Chronic Kidney Disease (PRESERVE) study was designed to provide new knowledge to inform shared decision-making regarding blood pressure (BP) management for pediatric chronic kidney disease (CKD). PRESERVE compared the effectiveness of alternative strategies for monitoring and treating hypertension on preserving kidney function; expanded the National Patient-Centered Clinical Research Network (PCORnet) Common Data Model by adding pediatric- and kidney-specific variables and linking electronic health record data to other kidney disease databases; and assessed the lived experiences of patients related to BP management.

Participants were recruited from 15 clinical institutions across the United States. The research team analyzed electronic health record (EHR) data from 11,851 children with CKD and their caregivers to compare different ways to monitor and treat BP to preserve kidney function. In addition, a subset of patients and caregivers completed an online survey detailing patient-reported outcomes, such as fatigue, life satisfaction, pain levels, sleep disturbance, anxiety, and peer relationships (n=395).

Due to the risk of re-identification based on unique patterns in the individual-level PCORnet electronic health record (EHR) data, patient privacy regulations prohibit the public release of the individual-level data. This collection contains the code underlying the analysis; instructions, codesets, and output lists for the PCORnet queries; and the survey questionnaires for patients and family members.

Self-published

A pplication of Machine Learning Approaches to D evelop P redictive M odels for Diabetes and Hypertension among Bangladesh Adults (ICPSR 241544)

Released/updated on: 2026-01-12

AbstractIntroduction:With rapidurbanization, lifestyle changes, and an aging population, non-communicablediseases (NCDs),includinghypertension and diabetes,pose significant public health challenges inBangladesh andmanyotherlow-and middle-incomecountries. This studyusedmachine learning (ML)approachesto develop predictive models forhypertension and diabetesamong adultsin this country.Methods:BangladeshDemographic andHealthSurvey2022datawere analyzed. This isa nationallyrepresentative cross-sectional survey.Participantre classified as hypertensivewhen theirsystolic bloodpressurewas≥140mmHg, diastolicblood pressure was≥90mmHg, orif they usedantihypertensivemedication.They were classified asdiabetic if theirfasting plasma glucosewas≥7.0mmol/L orthey usedglucose-lowering drugs. Potential predictors included age, gender, education, wealth quintile,overweight/obesity,rural-urbanresidence, and divisionof residence.Descriptiveanalysis was conducted,andsix ML modelswere applied: artificialneuralnetwork (ANN),randomforest,adaptive boosting(AdaBoost),gradientboosting, XGBoost, andsupportvectormachine (SVM). Models’performancewasevaluated via accuracy,area under the curve (AUC), sensitivity, specificity, and F1-score. Featureimportance was assessed to rankrisk factors.Results:The study included13,847 adults, 55% of whom were females.Sensitivity was high across models(up to 0.96 for diabetes and 0.90 for hypertension). However, the overall specificity was low, particularlyfor diabetes (as low as 0.13 in XGBoost).Diabetes and hypertension had prevalence of 16.3% and 20.5%,respectively.The prevalence of both conditionsincreasedwith age, and the highest prevalencewas24.4%for diabetes and 43.3% for hypertensionamongindividuals aged 65 and older. Wealthier and urban residentsexperienced higher rates (diabetes: 24.9% among the richest compared to 9.9% among the poorest;hypertension: 23.3% in urban versus 19.2% in rural areas). Additionally, overweight/obesity was a strongpredictor for both conditions.For diabetes, AdaBoosthadthe highest AUC (0.699) and SVMhadthehighest accuracy (0.836); for hypertension, AdaBoosthad the greatestAUC (0.775) and accuracy (0.799).Hypertension topped diabetes predictors, while overweight/obesitywas the top predictorfor hypertension,followed by age and diabetes. Wealth and gender were moderately influential, with education andgeographic factors less so. Low specificity across models indicated challenges in identifying non-cases.Conclusion:This ML-driven analysisidentifiedthe bidirectional relationship ofhypertensionanddiabetesalong with several other predictors, includingoverweight/obesity,older age, and richer household wealthquintiles.Ourfindings underscore the need for integrated screening and lifestyle interventions targetinghigh-risk groups to mitigatefutureNCD burden.

Self-published

Patient-, Provider-, and Health Facility Dataset on Hypertension Management in Ghana (ICPSR 206321)

Released/updated on: 2024-06-21

Geographic coverage: Ghana

Time period: 2022-04-01--2022-06-30

This dataset contains data on patients with hypertension recruited in Ghana, healthcare providers who manage patients with hypertension, and health facility indicators of facility readiness for hypertension management such as availability of basic equipment, medications, and laboratory consummables.

Curated

Partially restricted

Aligning Forces for Quality Evaluation: Consumer Survey Round 1, 2007-2008 and 2010 (ICPSR 35259)

Released/updated on: 2024-02-14

Geographic coverage: United States

Time period: 2007-06-01--2008-08-31, 2010-01-01--2010-05-31

This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, the Robert Wood Johnson Foundation's signature effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses -- diabetes, hypertension, heart disease, asthma and depression -- in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization.

Self-published

Mindfulness practice improves health behavior and lowers blood pressure in hypertension (ICPSR 131103)

Released/updated on: 2021-01-29

Geographic coverage: Los Angeles, California, United States

Time period: 2017-01-01--2018-12-31

HTN affects nearly 50% of U.S. adults and is the leading modifiable cardiovascular risk factor. A healthy diet and exercise can improve BP control, but adherence low to these interventions is low. We tested whether a Mindful Awareness Program (MAP) could improve BP and lifestyle behaviors associated with HTN and compared to a Health Promotion Program (HPP). Adults with BP >120/80 were randomized to MAP or HPP. Outcome measurements of BP, self-reported diet, and exercise were analyzed with intent-to-treat group comparisons using repeated measures linear mixed models. This study included adults (MAP n=20, HPP n=16) with BP of >120/80, mean age of 60.8±11.5 years. There was a MAP-HPP between-group difference in interactions of time-by-systolic BP (p=0.005) and time-by-diastolic BP (p=0.003). The twelve-week SBP reduction for MAP was 19 mmHg (138±15mmHg–119±6mmHg) compared to 7mmHg (134±18mmHg–127±22mmHg) for HPP. MAP showed a DBP 12mmHg reduction (89±11mmHg–77±7 mmHg) and HPP showed 1mmHg reduction (81±16 mmHg–80±18 mmHg). The MAP group showed a greater reduction in BP at the end of 12 weeks compared to the HPP group. Mediational analysis of the MAP group showed the total effect of mindfulness practice minutes on SBP with indirect effect (ab) of -.057 was significant, resulting in a 40% lower SBP for total effect (c) compared to direct (c') effect alone. The mediational model suggests mindfulness practice has a modest positive influence on lifestyle behavior change, which partially explains the greater reduction in BP by the MAP group. Our findings suggest mindfulness practice may improve BP control in adults with HTN.

Curated

Partially restricted

Simple Crosstabs

Aligning Forces for Quality Evaluation: Consumer Survey Round 2, 2011-2012 (ICPSR 37220)

Released/updated on: 2019-10-14

Geographic coverage: United States

Time period: 2011-01-01--2012-12-31

This survey was conducted as part of the evaluation of the Aligning Forces for Quality (AF4Q) initiative, which is the Robert Wood Johnson Foundation's effort to lift the overall quality of health care in 17 targeted communities, reduce racial and ethnic disparities, and provide models of national reform. The survey was administered to adults with one or more of five chronic illnesses, diabetes, hypertension, heart disease, asthma and depression, in the AF4Q communities and a national sample residing in non-AF4Q communities to provide a basis for comparison between the AF4Q communities and the rest of the United States. Survey questions focused on patient activation; consumer knowledge of publicly available performance reports that highlight quality differences among physicians, hospitals, and health plans; the ability to be an effective consumer in the context of a physician visit; patient knowledge about her/his illness; skills and willingness to self-manage one's illness; the impact of insurance and payment models; and the relationship between out-of-pocket costs and health care utilization. In 2011 the AF4Q evaluation team contracted with RTI International (RTI) to conduct the Aligning Forces for Quality Consumer Survey 2.0 (AF4Q 2.0).

Curated

Partially restricted

Sacramento Area Latino Study on Aging (SALSA Study), 1996-2008: Neuroclinical Exam Data (ICPSR 29322)

Released/updated on: 2017-02-23

Geographic coverage: Sacramento, United States, California

Time period: 1996-01-01--2008-12-31

The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical, and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social, and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status. This study contains the neuroclinical exam data from the SALSA project. Demographic information includes age given at follow-up visits, country of birth, language, religion, marital status, educational level, occupation, household income, and size of household.

Curated

Restricted

Collaborative National Network Examining Comparative Effectiveness Trials (CoNNECT) in 12 U.S. States, August 2010-July 2012 (ICPSR 34672)

Released/updated on: 2013-09-08

Geographic coverage: North Carolina, Vermont, United States, Minnesota, New York (state), Arkansas, New Jersey, Pennsylvania, Illinois, Texas, Colorado, Missouri, Virginia

Time period: 2010-08-01--2012-07-31

Purpose. The CoNNECT Project enables comparative effectiveness research on mental health, behavioral health, and substance use in primary care. CoNNECT tracked two main elements: (1) the number of patients identified with a comorbid mental health and physical health diagnosis; (2) the number of patients who initiate treatment secondary to a mental health diagnosis. CoNNECT created the capacity to build a base for mental health in primary care comparative effectiveness research using electronic connectivity to generate retrospective and in time prospective clinical data.

Data Access. CoNNECT data are not available from ICPSR. The data from this study are hosted at DARTNet.

Curated

Partially restricted

Simple Crosstabs

Sacramento Area Latino Study on Aging (SALSA Study), 1996-2008: Demographic Data (ICPSR 34483)

Released/updated on: 2012-12-11

Geographic coverage: Sacramento, United States, California

Time period: 1996-01-01--2008-12-31

This study contains demographic variables for the the Sacramento Area Latino Study on Aging (SALSA) Series and can be used with ICPSR studies 22760, 29321, 29322, 29323. Demographic variables include gender, primary language, country of origin, state of birth, cause of death, 2000 census tract codes, birth date, date of death, and age given at follow-up visits.

About SALSA: The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical, and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social, and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status.

Curated

National Health Interview Survey, 1974: Hypertension Supplement (ICPSR 9796)

Released/updated on: 2010-11-29

Geographic coverage: United States

Time period: 1974-01-01--1974-12-31

The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Provided with this Hypertension Supplement are variables from the 1974 core Person File (see HEALTH INTERVIEW SURVEY, 1974 [ICPSR 8339]) including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The variables unique to the Hypertension Supplement File (Part 1) include items on blood pressure history, weight control issues, doctor visits, salt use, medicines prescribed and/or used, side effects of medicine, number of bed days in the last year, whether the respondent's condition was covered by insurance, the last time the respondent had an electrocardiogram, chest x-ray, or diabetes check, and smoking, stroke, and cardiac histories.

Curated

Partially restricted

Sacramento Area Latino Study on Aging (SALSA Study), 1996-2008 (ICPSR 22760)

Released/updated on: 2009-06-29

Geographic coverage: Sacramento, United States, California

Time period: 1996-01-01--2008-12-31

The Sacramento Area Latino Study on Aging (SALSA Study) project tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. The SALSA project aimed to assess cognitive, physical and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. The study explored the effects that cultural, nutritional, social and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status. Demographic information includes age given at follow-up visits, country of birth, language, religion, marital status, educational level, occupation, household income, and size of household.

Curated

Primary Care Judgments of Nurses and Physicians, 1976-1978: Clinical Simulation Test -- Hypertension Data (ICPSR 7732)

Released/updated on: 2006-01-18

Geographic coverage: United States

Time period: 1976-01-01--1978-12-31

This data collection contains four files of the Clinical Simulation Test for Hypertension (CST:HYP), an instrument developed by the Primary Care Judgements of Nurses and Physicians Research Project to empirically assess the clinical judgements of physicians and nurses in relation to essential hypertension in the period 1976-1978. The purpose of the study was to measure the clinical judgments of health professionals in relation to those of a panel of eight national experts in the specific area of hypertension. The instrument simulates the clinical processes from presentation of the chief complaint of a 46-year-old Caucasian male with essential hypertension through diagnoses and treatment. The Clinical Simulation Test (Part 1) was given to 173 respondents who were divided into six groups: family practice physicians, nurse practitioners with master's degrees, certified nurse practitioners, public health nurses, pre-medical students, and nursing students. The test contains 11 sections and three diagnostic tests. Eight of the test sections required the respondents to choose from among a list of possible treatment options. Three sections were open-ended and required respondents to identify relevant patient data or to list patient problems. During the process, respondents chose appropriate procedures from among a wide range of possible choices. Items also include an evaluation of the test instrument by the respondents, a proficiency scale which is scored by means of a computer program (Part 2), and the responses of eight experts used for the purpose of test instrument validation (Parts 3 and 4). Demographic items specify age, sex, education, professional preparation, residency program, specialty, position, and disease management experience of respondents. See the related collection, PRIMARY CARE JUDGMENTS OF NURSES AND PHYSICIANS, 1976-1978: CLINICAL SIMULATION TEST--CHRONIC OBSTRUCTIVE PULMONARY DISEASE DATA (ICPSR 7731).