Adolescent Health and Development in Context (AHDC) Study, Franklin County, Ohio, Wave 1, 2014-2016 (ICPSR 39045)
American Health Values Survey (AHVS): Sentinel Communities Segmentation, 5 American communities, 2016-2017 (ICPSR 37910)
The American Health Values Survey (AHVS) was conducted by the National Opinion Research Center (NORC) at the University of Chicago in order to develop a typology of Americans based on their health values and beliefs. The survey, of more than 10,000 adults from five individual communities, examined values and beliefs related to health at both the individual as well as societal levels. The community surveys sought to compare differences between the local typologies, but also to investigate any similarities with national typology groups. The survey assessed the importance of health in:
- day-to-day personal life (i.e. the amount of effort spent on disease prevention as well as appropriate seeking of medical care);
- equity, the value placed on the opportunity to succeed generally in life as well as on health equity;
- social solidarity, the importance of taking into account the needs of others as well as personal needs;
- health care disparities, views about how easy/hard it is for African Americans, Latinos and low-income Americans to get quality health care;
- and, the importance of the social determinants of health.
In addition, the survey also explored views about how active government should be in health; collective efficacy, the ease of affecting positive community change by working with others; and health-related civic engagement e.g. the support of health charities and organizations working on health issues.
There are public-use and restricted-use versions of the data provided for each of the five sentinel communities participating in this study. Although each site differs on the number of respondents as listed below, each data file contains the same 143 variables for each site and version of the data. The only difference between the public-use versus restricted-use versions of the data is the variable ZIP, which was MASKED in the public-use version.
- DS1 and DS2 - Baltimore, Maryland: 2,139
- DS3 and DS4 - Maricopa County, Arizona: 2,247
- DS5 and DS6 - Stockton, California: 2,127
- DS7 and DS8 - Mobile, Alabama: 1,821
- DS9 and DS10 - North Central counties in Nebraska: 2,846
American Health Values Survey II, [United States], 2019-2020 (ICPSR 38818)
The Robert Wood Johnson Foundation (RWJF) has a vision to build a Culture of Health (CoH) by making health a shared national priority, one valued and advanced by multiple stakeholders across all sectors of society. This vision embraces a very broadly integrated and comprehensive approach to health, one where well-being lies at the center of every aspect of American life. In 2014, the RWJF commissioned NORC at the University of Chicago to plan and conduct the first American Health Values Survey (AHVS) to understand the extent to which United States adults held views consistent with this vision. The idea was to explore which types of United States adults were more supportive and less supportive of the goal and what the differences were between the more and less supportive groups. To aid in the understanding of these differences, NORC developed a typology of United States adults based on their values and beliefs related to the CoH vision.
Using a large-scale national survey fielded in late 2015 and early 2016, NORC identified six major segments of the population of adults in the United States based on their differing health values and beliefs and developed detailed profiles of each segment that described their pattern of values and beliefs as well as their demographic, political and other characteristics. NORC subsequently replicated the typology development work in five RWJF Sentinel Communities across the nation and also developed a typology of rural America. The same segments, or similar ones, were common across various geographic areas of the United States. Four years have since passed, in which changes occurred in the country. RWJF in 2019 commissioned NORC to conduct a second national, cross-sectional survey (AHVS II) in late 2019 and early 2020.
American Health Values Survey, [United States], 2015-2016 (ICPSR 37403)
ASTHO Forces of Change Survey, United States, 2017 (ICPSR 37223)
The Forces of Change Survey is an annual survey completed by the state and territorial health agencies that comprise the membership of the Association of State and Territorial Health Officials (ASTHO). ASTHO is the national nonprofit organization representing public health agencies in the United States, the U.S. territories and freely associated states, and the District of Columbia, and the over 100,000 public health professionals these agencies employ. The Forces of Change Survey primarily focuses on emergent and rapidly changing trends. The data collected sought to determine the current climate at state and territorial health agencies as it related to budget, workforce, accreditation, and special interest topics. The 2017 Forces of Change Survey examined the following topics:
- Health agency resources
- Activities related to the Zika virus
- Opioid epidemic response
- Communicating the value of public health
- Efforts to advance health equity
The web-based survey, fielded by ASTHO in May of 2017, was administered to state and territorial health agencies through their senior deputies. A total of 52 health agencies responded (from 46 states, Washington, D.C., and five territories and freely associated states). Data included as part of this collection includes one dataset with 122 variables for 52 cases.
Colorectal Cancer (CRC) Screening and Somali Men, Minnesota, 2016-2017 (ICPSR 38312)
The rate of cancer screening is generally increasing in the United States. In Minnesota, the statewide average rate of screening for colorectal cancer (CRC) is 73 percent. However, screening completion is relatively low among Somali men; overall, only 27 percent of Somali immigrants have been screened for CRC. Factors contributing to this disparity have not been well researched.
The purpose of this pilot study was to employ focus group methodology to describe and advance understanding of the barriers and enablers associated with CRC screening among Somali men ages 50-74 in Minnesota. Three focus groups were conducted among 27 Somali men in Minnesota. A 9-question, semi-structured interview guide was used. The sessions were audio recorded, transcribed verbatim, and checked for accuracy by research staff prior to data analysis. Three research team members utilized the constant comparative method and NVivo to conduct data analysis.
Five barriers to CRC screening emerged from the analyses:
- Lack of knowledge
- Emotional barriers
- Acculturation
- Accountability
- Fatalistic beliefs
In addition, two factors enabling CRC screening and prevention emerged: the need for tailored interventions and preventive lifestyle behaviors. The insights gained from this research will assist in developing health promotion and education-focused interventions that encourage Somali immigrants in Minnesota and beyond to seek early detection screening for CRC.
COVID-19 and the Experiences of Populations at Greater Risk: Wave 3, United States, 2020-2021 (ICPSR 38734)
In the context of COVID-19, RAND and RWJF partnered again to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low to moderate-income backgrounds.
The questions in this COVID-19 survey focused specifically on experiences related to the pandemic (e.g., financial, physical, emotional), how respondents viewed the disproportionate impacts of the pandemic, whether and how respondents' views and priorities regarding health actions and investments are changing (including the roles of government and the private sector), and how general values about such issues as freedom and racism may be related to pandemic views and response expectations. The study is a longitudinal study, which collected data in four waves. The study also included 2 populations: A sample of populations at greater risk, and a general population sample. This study included the results for Wave 2 for populations at greater risk. The questions in the surveys were largely similar across all four waves.
Demographic info includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.
COVID-19 and the Experiences of Populations at Greater Risk: Wave 4, United States, 2020-2021 (ICPSR 38735)
In the context of COVID-19, RAND and the Robert Wood Johnson Foundation (RWJF) partnered again to build from the National Survey of Health Attitudes to implement a longitudinal survey to understand how health views and values have been affected by the experience of the pandemic, with particular focus on populations deemed vulnerable or underserved, including people of color and those from low to moderate-income backgrounds.
The questions in this COVID-19 survey focused specifically on experiences related to the pandemic (e.g., financial, physical, emotional), how respondents viewed the disproportionate impacts of the pandemic, whether and how respondents' views and priorities regarding health actions and investments are changing (including the roles of government and the private sector), and how general values about such issues as freedom and racism may be related to pandemic views and response expectations. Some questions used in the NSHA are fielded in this COVID-19 survey while others are newly used from other COVID-19 surveys or newly developed for this effort. The study is a longitudinal study, collecting data in four waves. The study also included 2 populations: A sample of populations at greater risk, and a general population sample. This study includes the results for Wave 4 for populations at greater risk. The questions in the surveys were largely similar across all four waves.
Demographic info includes sex, marital status, household size, race and ethnicity, family income, employment status, age, and census region.
Detroit Metro Area Communities Study (DMACS) Wave 12, Michigan, 2021 (ICPSR 38199)
Detroit Metro Area Communities Study (DMACS) Wave 13, Michigan, 2021 (ICPSR 38252)
The Detroit Metro Area Communities Study (DMACS) is a panel survey of Detroit residents aged 18 and older. The original panel of respondents was drawn from an address-based probability sample of all occupied Detroit households in 2016 and has since been refreshed through additional address-based sampling annually. The 13th survey wave, collected between June 2, 2021 and July 9, 2021, invited 2,713 previously-enrolled panelists to participate in a self-administered or interviewer-administered survey. Topics include experience with COVID-19; COVID-19 vaccine receipt, attitudes and trust; employment and economic precarity; neighborhood satisfaction; neighborhood blight; housing repair; as well as crime, safety and policing.
Developing a Timely Opioid Overdose Detection Tool through a Tribally Engaged Approach, United States, 2022-2024 (ICPSR 39278)
The data files from this project are not available through NAHDAP/ICPSR. For information about accessing the data from this project, please contact the Principal Investigator.
Feedback from Tribal communities were gathered about a future Tribally specific near real-time opioid overdose monitoring dashboard. A questionnaire about an example dashboard with questions about overdose information, Narcan usage, and feedback about the dashboard's uses were included.
IPUMS Contextual Determinants of Health (CDOH) Gender Measure: Abortion Access by State, United States, 2009-2022 (ICPSR 38852)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Gender measures in this release include state-level abortion access, which reports the proportion of a state's females aged 15-44 who reside in counties with an abortion provider by year and month from 2009-2022. To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
IPUMS Contextual Determinants of Health (CDOH) Gender Measure: Domestic Violence Gun Ownership by State, United States, 1991-2020 (ICPSR 38851)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Gender measures in this release include state-level domestic violence and gun ownership, which denotes whether a state has a law that prohibits domestic violence offenders from owning firearms above and beyond federal law. To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
IPUMS Contextual Determinants of Health (CDOH) Gender Measure: Earnings Ratio by State, United States, 2015-2022 (ICPSR 38850)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts by state or county for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons as well as women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Gender measures in this release include the state-level earnings ratio, which compares the median earnings of full-time wage and salary workers identifying as male to the median earnings of full-time wage and salary workers identifying as female in a given state in a given year. To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
IPUMS Contextual Determinants of Health (CDOH) Gender Measure: Paid Family Medical Leave by State, United States, 2004-2023 (ICPSR 38847)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Gender measures in this release include state-level paid family and medical leave, which denotes whether a state has a law that guarantees paid family and medical leave for employees. To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
IPUMS Contextual Determinants of Health (CDOH) Gender Measure: Poverty Ratio by State, United States, 2015-2023 (ICPSR 38848)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Gender measures in this release include the state-level poverty ratio, which compares the proportion of females living in poverty to the proportion of males living in poverty in a given state in a given year. To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
IPUMS Contextual Determinants of Health (CDOH) Politics Measure: Presidential Election Results by County, United States, 2000-2020 (ICPSR 39236)
The IPUMS Contextual Determinants of Health (CDOH) data series provides access to measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Politics measures in this release include county-level presidential election results from 2000-2020, indicating the proportion of votes cast for the Democratic candidate or the Republican candidate in each presidential election. To work with the IPUMS CDOH data, researchers will need to use the variable MATCH_ID to merge the data in DS1 with NCHAT surveys within the virtual data enclave (VDE).
IPUMS Contextual Determinants of Health (CDOH) Politics Measure: Presidential Election Results by State, United States, 1976-2020 (ICPSR 38854)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Politics measures in this release include the state presidential election results, which is the proportion of votes cast for the Democratic candidate or the Republican candidate in the respective presidential election. To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
IPUMS Contextual Determinants of Health (CDOH) Race and Ethnicity Measure: Residential Segregation - Index of Dissimilarity Inequity by County, United States, 2005-2022 (ICPSR 39242)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2000 to 2020.
The Race and Ethnicity measures in this release are indicators of residential segregation, which measures the physical separation of population groups into different areas (i.e., neighborhoods) in a geographic unit (i.e., a county or city). The index of dissimilarity is a measure of evenness and measures the proportion of a group's population that must move so that each sub-county geographic unit in a county has the same proportion of that group as the county. Census tracts are used as the sub-county geographic unit because census tracts nest within counties.
IPUMS Contextual Determinants of Health (CDOH) Sexual and Gender Minority Measure: Proportion Identifying as LGBTQ by State, United States, 2021-2022 (ICPSR 38853)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Sexual and Gender measures in this release include the proportion of a state's population identifying as LGBTQ+ in the U.S. Census Bureau's Household Pulse Survey, Phases 3.2 (07/21/2021-10/11/2021), 3.3 (12/01/2021-02/07/2022), 3.4 (03/02/2022-05/09/2022), and 3.5 (06/01/2022-08/08/2022). To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
Methods for the Design and Conduct of Subgroup Analysis in Observational Studies [Methods Study], United States, 2019-2022 (ICPSR 39737)
One goal of comparative effectiveness research is to find out which treatments work best for different groups of patients. For example, treatments may work differently for patients with only one health problem than for those with more than one health problem.
In observational studies, researchers look at health outcomes when patients and their doctors choose the treatments. These studies often use data from electronic health records, or EHRs. Researchers can apply propensity score, or PS, methods to look at different groups of patients. With PS methods, researchers create groups of patients with similar traits who had different treatments. But PS methods require researchers to have data on all patient traits that could affect how well the treatment works. With EHR data, data on some patient traits, like health problems, may be missing. Using current PS methods in observational studies may lead to biased results.
In this study, the research team created new guidance for using PS methods with EHR data to look at the effects of treatment in different groups of patients. The team also created and tested new PS methods to make groups of patients with similar traits.
National Officer-Involved Homicide Database (NOIHD), United States, 2000-2017 (ICPSR 38315)
National Survey of Health Attitudes, [United States], 2015 (ICPSR 37405)
Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.
The National Survey of Health Attitudes is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.
National Survey of Health Attitudes, [United States], 2018 (ICPSR 37633)
Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.
The National Survey of Health Attitudes is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.
This study includes the results from the 2018 RWJF National Survey of Health Attitudes. This 2018 survey is considered the second wave, the first wave of the survey was conducted in 2015 (ICPSR 37405). In 2018, the study team fielded an updated version that included many of the same questions but added some new constructs that were of interest as part of the larger Culture of Health effort. This study complements the overview of the 2015 survey described in the RAND report Development of the Robert Wood Johnson Foundation National Survey of Health Attitudes (Carman et al., 2016).
National Survey of Health Attitudes, [United States], 2023 (ICPSR 39205)
Since 2013, the Robert Wood Johnson Foundation (RWJF) has led the development of a pioneering national action framework to advance a "culture that enables all in our diverse society to lead healthier lives now and for generations to come." Accomplishing these principles requires a national paradigm shift from a traditionally disease and health care-centric view of health toward one that focuses on well-being. Recognizing that paradigm shifts require intentional actions, RWJF worked with RAND researchers to design an actionable path to fulfill the Culture of Health (CoH) vision. A central piece of this work is the development of measures to assess constructs underlying a CoH.
The National Survey of Health Attitudes (NSHA) is a survey that RWJF and RAND analysts developed and conducted as part of the foundation's CoH strategic framework. The foundation undertook this survey to measure key constructs that could not be measured in other data sources. Thus, the survey was not meant to capture the full action framework that informs CoH, but rather just selected measure areas. The questions in this survey primarily addressed the action area: making health a shared value. The survey covers a variety of topics, including views regarding what factors influence health, such as the notion of health interdependence (peer, family, neighborhood, and workplace drivers of health), values related to national and community investment for health and well-being; behaviors around health and well-being, including civic engagement on behalf of health, and the role of community engagement and sense of community in relation to health attitudes and values.
This study includes the results from the 2023 RWJF National Survey of Health Attitudes. The 2023 survey is the third wave of the NSHA. The first wave was conducted in 2015 (ICPSR 37405) and the second wave in 2018 (ICPSR 37633). The 2023 report complements the overview of the 2015 survey described in the RAND report Development of the Robert Wood Johnson Foundation National Survey of Health Attitudes (Carman et al., 2016), and its subsequent topline 2018 Survey of National Health Attitudes: Description and Top-Line Summary (Carman et al., 2019) and is organized similarly for consistency. A companion set of longitudinal surveys during the COVID-19 pandemic was fielded between 2020 and 2021 and is further described in four top-line reports, COVID-19 and the Experiences of Populations at Greater Risk (Carman et al., 2020-2021).
The questions in the 2023 survey uniquely capture aspects of American mindset about health, health equity, structural racism, and wellbeing in ways that are not present in other surveys. This version of the NSHA can be viewed in three main sections: (1) individual health experiences, perspectives, and knowledge (making health a shared value); (2) health equity perspectives; and (3) community wellbeing, including climate views and barriers to community engagement. Insights from the surveys referenced above, including this one, have established a baseline and set of cross-sectional pulse checks on where the American public is regarding their recognition of social determinants of health, their understanding of health inequities including structural racism, their willingness to address those inequities and their indication of who in society should be responsible for solving health inequities.
New Causal Inference Methods for Cluster Randomized Trials with Post-Randomization Selection Bias [Methods Study], United States, 2019-2023 (ICPSR 39742)
Cluster randomized trials, or CRTs, are studies that compare treatments across different groups of patients, or clusters. An example of a cluster is people who receive care at one clinic.
To reduce bias in CRT results, researchers assign clusters by chance to different treatments. But what happens after they assign treatment can lead to differences across clusters and bias the results. For example, patients who visit clinics assigned to a treatment may be older than patients who visit clinics not assigned to that treatment. Current statistical methods for analyzing data from CRTs don't work well to account for these differences.
In this study, the research team developed new methods to account for differences across clusters after treatment assignment.
Peer-Driven Intervention to Seek, Test, and Treat Heterosexuals at High Risk for HIV, New York City, 2011-2016 (ICPSR 39781)
This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.
This study is divided into BCAP1/2 and BCU (or BCAP3):
BCAP1/2
- Compares Respondent-driven sampling (RDS)and Venue-based sampling (VBS) recruitment in terms of numbers of new diagnosis of HIV+ and examines the effectiveness of peer-driven intervention (PDI) in heterosexuals at high risk (HHR). BCAP2 only includes those who tested HIV+ in BCAP1 who were included in recruitment but not in the main analyses. PDI involving structured intervention sessions including a computerized "CARE for Prevention" tool and HIV pre-test and post-test counseling, the opportunity to educate three peers on core education messages, and navigation for those HIV infected. If HIV-negative: total 3.5 hours of facilitated/computer intervention activities, plus peer education experiences; if HIV-positive: 5 hrs facilitated/computer activities, plus peer education experiences and six months of navigation.
BCU (or BCAP3)
- BCU is a supplement study to BCAP1/2 and tests an anonymous, single-session HIV testing intervention (ASTN) in the same high-risk area (HRA) in Brooklyn as BCAP1/2 and compare to CTTN in two phases: the Seek and Test phase (N=750), and Treat and Retain phase (N=65). The primary endpoint of the Seek and Test intervention phase is the relative yield (proportion of newly identified HIV infections) of the RDS-ASTN intervention. The study assesses the proportion of those newly diagnosed that engages in activities of the Treat and Retain part (i.e., feasibility). The primary endpoints for the Treat and Retain intervention phase are the proportion linked to care within three months (i.e., attending a care appointment and receiving CD4 and viral load tests) and time to the HIV care appointment.1 BCU2 only includes those who tested positive in BCU1 who were included in ST counseling sessions and blood collection but not included in TrR phase.
Puerto Rican Maternal and Infant Health Study (PRMIHS), 1994-1995 (ICPSR 36238)
Seek, Test, Treat and Retain Strategies Leveraging Mobile Health Technologies (Connect4Care), San Francisco, California, 2013-2015 (ICPSR 39783)
This study is part of the Seek, Test, Treat and Retain (STTR) Collaboration Project that involved over twenty studies in the fields of HIV and drug abuse. All studies were independently developed, but were chosen for the collaboration because they focused on one or more steps of the HIV treatment cascade: Seek, Test, Treat and Retain. As part of STTR Collaboration Project, the studies were grouped into Criminal Justice-related studies and Vulnerable Population-related studies. The data collected by these studies included twelve common domains (e.g., Demographic characteristics, Mental Health) in each of which a shared questionnaire or instrument was taken up by the studies and adapted to fit the study.
Connect4Care (C4C) was a single site, randomized year-long study of Short Message Service (SMS) primary care appointment reminders vs. SMS primary care appointment reminders plus thrice-weekly supportive, informational, and motivational SMS messages. Eligible consenting patients were allocated 1:1 to the two arms within strata defined by HIV diagnosis within the past 12 months (i.e. "newly diagnosed") vs. earlier.
Service Delivery Models to Reduce Maternal and Child Health Disparities (ICPSR 35899)
Stances Toward Anti-Racist Medical Education: A Qualitative Analysis of Critical Consciousness in First-Year Medical Students (ICPSR 169542)
Stroke Recovery in Underserved Populations 2005-2006 [United States] (ICPSR 36422)
The Stroke Recovery in Underserved Populations 2005-2006 study was created to address the National Institute on Aging (NIA) Request For Application entitled "Research on Mind-Body Interactions and Health" (RFA OD-03-008). It addressed the NIA interest in "the impact of optimism, happiness, or a positive attitude on well-being and health; and social functioning and health." The study examined how positive emotion (e.g., joy, gratitude, love, contentment) and social networks independently and interactively contribute to recovery of functional status after stroke within two underserved groups. The specific study aims were to:
- Examine recovery of functional status (motor and cognitive function), for White, African American and Hispanic persons with stroke discharged from rehabilitation facilities
- Examine the contributions of positive emotion and social networks on recovery of functional status (motor and cognitive function), for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities; and
- Examine the interaction between positive emotion and social networks on recovery of functional status (motor and cognitive function) for White, African American, and Hispanic persons with stroke discharged from rehabilitation facilities.
The data were collected by the IT Health Track at four time points: at admission and discharge from rehabilitation facility, and 80-180 days and 365-425 days after discharge. These data emphasize recovery of motor and cognitive functional status, positive emotion, and social networks
The dataset contains 226 variables and 1219 cases from 11 rehabilitation facilities across the United States.