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Juvenile Residential Facility Census, 2022 [United States] (ICPSR 39418)

Released/updated on: 2026-07-16
Geographic coverage: Puerto Rico, United States, Virgin Islands of the United States
Time period: 2022-10-26--2022-10-26

The Juvenile Residential Facility Census (JRFC), which is conducted biennially, collects basic information on juvenile residential facility characteristics, including security, capacity and crowding, injuries and deaths in custody, and facility ownership and operation. The JRFC also includes questions about facility type (such as detention center, training school, ranch, or group home) and residential services provided by the facility (such as independent living, foster care, or other arrangements), and detailed questions about mental health, substance abuse, and educational services provided to young persons.

In 2022, the JRFC was divided into seven sections:

  1. General facility information
  2. Mental health services
  3. Educational services
  4. Substance abuse services
  5. Events in the 30 days prior to the census reference date
  6. Deaths in the year prior to the census reference date
  7. Space shared with other facilities

Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; the JRFC gathers this information and offers a portrait of the nation's juvenile facilities. The census reference date was the fourth Wednesday in October (October 26, 2022).

Curated

Assessing Washington State's Models to Increase Use of Medications for Opioid Use Disorder: Hub and Spoke and Low-Barrier Opioid Treatment Networks, 2015-2022 (ICPSR 39817)

Released/updated on: 2026-04-13
Geographic coverage: United States, Washington
Time period: 2015-07-01--2022-12-31

MOUD remains an underutilized evidence-based practice with potential to reduce opioid use disorder (OUD) and save lives. Washington State expanded its Hub & Spoke (H&S) model for OUD medication treatment (MOUD: buprenorphine, methadone, naltrexone) by funding additional networks and developing a low-barrier, Opioid Treatment Network (OTN) model. The Washington H&S model was designed as a flexible approach incorporating primary care and substance use treatment programs, referral organizations, nurse care managers and care navigators. The OTN model offers MOUD induction in non-traditional settings (e.g., emergency departments, jails) with connections to community partners who will offer MOUD maintenance.

This study examined the implementation and effectiveness of the H&S and OTN models for increasing MOUD treatment and improving outcomes for people with OUD. Washington's H&S and OTN interventions were funded through federal STR/SOR opioid response grants, and the expanded H&S networks were funded through the state. The study, Hub and Spoke Opioid Treatment Networks: 2nd Generation Approaches to Improve Medication Treatment for Opioid Use Disorders (R01DA0561067), and its supplement (R01DA0561067S1) was part of NIH's HEAL initiative, and built on an earlier study (R33DA045851). All three studies were supported by the National Institute on Drug Abuse.

Expanding Access to Low-Barrier Opioid Use Disorder Treatment in Non-Traditional Settings: Washington's Opioid Treatment Network

  • Increasing utilization of medications that treat opioid use disorders (MOUD) remains an essential strategy to curb the opioid crisis nationwide, especially among rural areas where access can present challenges. Washington State expanded access to MOUD through its opioid treatment networks (OTN), which provide low-barrier access to MOUD in non-traditional settings with an emphasis on buprenorphine and rural locations. The study examined changes in buprenorphine utilization between Medicaid beneficiaries who initiated treatment at OTNs compared to individuals outside OTN facilities and by rural-urban residence.

Differential Changes in Use of Medications for Opioid Use Disorder by Race-Ethnicity: Effects of a Hub-and-Spoke Model

  • This study assessed whether delivery of opioid use disorder (OUD) treatment through a hub and spoke (HS) model is associated with better adherence to psychotropic medication treatment, compared to usual treatment. Washington State's HS model required each network to include at least one mental health program, so it was hypothesized that it would improve psychotropic medication adherence for people with both a mental health disorder (MHD) and an OUD.

Treatment for Comorbid Mental Health Disorders Among Patients Treated for Opioid Disorder: The Role of a Hub and Spoke Intervention

  • The research team examined, separately for different racial-ethnic groups, whether use of medications for opioid use disorder (MOUD) increased more among people treated in a hub-and-spoke care model than among people treated in a non-hub-and-spoke model.
Self-published

National Neighborhood Data Archive (NaNDA): Healthcare Services by Census Tract and ZCTA, United States, 1990-2022 (ICPSR 209050)

Released/updated on: 2026-03-31
Time period: 1990-01-01--2022-12-31

This dataset contains measures of the number and density of health care services per United States Census Tract or ZIP Code Tabulation Area (ZCTA) from 1990 through 2022. The dataset includes four separate files for four different geographic areas (GIS shapefiles from the United States Census Bureau).

Curated

Governance of Learning Activities in Learning Healthcare Systems [Methods Study], United States, 2016-2021 (ICPSR 39711)

Released/updated on: 2026-03-23
Geographic coverage: United States
Time period: 2016-01-01--2021-12-31

A learning health system, or LHS, is a health system that constantly looks for new ways to improve patient care. At an LHS, doctors and other hospital staff use learning activities to improve care, put what they've learned into practice, and share findings with other hospitals. Activities may include doing studies that compare treatments to see which one works better for which patients.

Governance refers to the way LHSs oversee learning activities. Governance includes people, committees, and policies that regulate learning activities. Including patients as partners in governance helps make sure learning activities address what's important to patients and protect patients' rights and interests. But LHSs don't always include patients in governance.

In this study, the research team wanted to learn how LHSs include patient partners in governance. The team interviewed patients and health system leaders to answer this question.

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Randomize Everyone: Creating Valid Instrumental Variables for Learning Health Care Systems [Methods Study], New Hampshire, 2016-2022 (ICPSR 39717)

Released/updated on: 2026-03-17
Geographic coverage: United States, New Hampshire
Time period: 2016-01-01--2022-12-31

Comparative effectiveness research, or CER, compares two or more treatments. In some CER studies, researchers use patient data from electronic health records, or EHRs, to compare treatments. But patient traits like age may affect doctors' and patients' choice of treatments, which can bias results. Using EHR systems to identify eligible patients and assign them to treatments by chance could improve results of CER studies that use EHR data.

In this study, the research team explored the views of patients, clinic staff, and clinicians, such as doctors or nurses, on doing CER studies in clinics. The team also tested software with a widely used EHR system. The software finds patients who qualify for a study. During a clinic visit, the software prompts doctors to invite patients to take part in the study. If patients agree, the software assigns patients by chance to a treatment.

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Evaluating the Comparative Effectiveness of Telemedicine in Primary Care: Learning from the COVID-19 Pandemic, New York, 2021 (ICPSR 39346)

Released/updated on: 2025-07-01
Geographic coverage: New York City, United States, New York (state)
Time period: 2021-01-01--2021-12-31

During the COVID-19 pandemic, telemedicine emerged as the primary method of providing outpatient care in many regions with shelter-in-place and social distancing policies. This study aimed understand the impact of this rapid and widespread transition from in-person to remote visits on disparities in access to primary care, especially in chronic disease where ongoing communication between providers and patients is essential.

The newly developed or expanded telemedicine programs varied widely, raising questions about the effect of these differences on uptake of telemedicine among different patient populations and on patient-centered outcomes. Leveraging a natural experiment approach, this study examined rapidly changing telemedicine and in-person models of care during and after the COVID-19 crisis to determine whether certain patients could safely choose to continue telemedicine or telemedicine-supplemented care, rather than return to in-person care.

Curated

Developing a Timely Opioid Overdose Detection Tool through a Tribally Engaged Approach, United States, 2022-2024 (ICPSR 39278)

Released/updated on: 2024-12-11
Geographic coverage: United States
Time period: 2022-09-30--2024-09-29

The data files from this project are not available through NAHDAP/ICPSR. For information about accessing the data from this project, please contact the Principal Investigator.

Feedback from Tribal communities were gathered about a future Tribally specific near real-time opioid overdose monitoring dashboard. A questionnaire about an example dashboard with questions about overdose information, Narcan usage, and feedback about the dashboard's uses were included.

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Integrated Smoking Cessation Treatment for Smokers with Serious Mental Illnesses, Massachusetts, 2017-2020 (ICPSR 39152)

Released/updated on: 2024-10-03
Geographic coverage: United States, Massachusetts, Boston
Time period: 2017-01-01--2020-12-31

In the United States, tobacco smoking is associated with significant morbidity and premature mortality for individuals with serious mental illness (SMI) (e.g., schizophrenia, post-traumatic stress disorder, bipolar disorder, major depressive disorder). While many smokers with SMI wish to quit smoking, few are offered advice or treatments with demonstrated effectiveness in reducing tobacco dependence, primarily medication-assisted treatments. The overall aim of this randomized controlled trial was to test the effects of provider education (PE) (i.e. provider-level educational intervention focused on evidence-based smoking cessation treatment for those with SMI) and community health worker (CHW) support on the provision and utilization of smoking cessation treatment to those with SMI, and cessation rates for adults with SMI who smoke or use tobacco over a 2-year period. The objectives of this trial were to:

  1. Examine whether an intervention combining PE and CHW support would increase prescriber provision of advice and assistance to quit smoking, and improve tobacco cessation rates in smokers with SMI compared to usual care/treatment as usual (TAU) and compared to PE-only treatment
  2. Determine the effect of the combined PE+CHW intervention on patient-reported overall health compared to TAU and PE-only treatment

Eligible individuals were recruited from two outpatient psychiatric service providers in the Boston, Massachusetts metropolitan area. Clinics where individuals received services were randomized into either the TAU condition or into the PE condition, where health care providers would receive additional education on first-line medications used to treat tobacco use disorder. Within clinics in the PE arm, individuals were further randomized into the community health worker (CHW) support condition (PE+CHW), where CHWs would assist participants with smoking cessation care access and provide community outreach and education, or no CHW support (PE-only). Enrolled participants (n=1,010) completed surveys on smoking/tobacco use at 3 timepoints: study baseline, 1 year post-randomization, and 2 years post-randomization.

A mixed-methods evaluation of the trial was also conducted post-intervention, using an interactive convergent design. The aims of the evaluation were to identify barriers and facilitators to effective implementation; examine how primary care providers differed by performance and engagement level, and how experiences with the intervention compared across these groups; and identify anticipated barriers to implementing the intervention as discussed by stakeholders. Quantitative outcome and visit data from the trial were used in the evaluation. For the evaluation's qualitative component, interviews were conducted with purposively sampled community health workers, smoker participants, primary care providers, and other stakeholders in policy, payor, and clinical administration. Please note that the qualitative evaluation data are not available for this collection.

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Comparing Ways to Monitor Patients with COVID-19 at Home (COVID Watch), New Jersey, Pennsylvania, Delaware, 2020-2021 (ICPSR 38951)

Released/updated on: 2024-10-02
Geographic coverage: United States, Delaware, New Jersey, Pennsylvania
Time period: 2020-03-01--2021-11-30

The University of Pennsylvania Health System (Penn Medicine) developed COVID Watch, an automated text message-based, remote monitoring program with 24/7 clinical support. Remote outpatient monitoring of patients with COVID-19 became needed because patients with SARS-CoV-2 infection can decline rapidly and unpredictably, and because of their own limited capacity to manage acute symptoms and concerns about staff safety, office-based outpatient practices often redirect patients with confirmed or suspected COVID-19 to hospitals. As a result, emergency departments (EDs) and hospitals became overwhelmed during surge periods of high community incidence rates and prevalence. Remote monitoring has the potential to facilitate ED- and hospital-level care for patients who require it while supporting access to care for patients who can safely remain at home.

This study compared outcomes for patients enrolled in COVID Watch with those of patients who were eligible to enroll but received usual care, with the hypothesis that enrollment in COVID Watch was associated with reduced mortality. The present research examined whether patients with COVID-19 who were enrolled in COVID Watch experienced better health outcomes compared with usual care (Aim 1) and whether augmenting COVID Watch with at-home monitoring of SpO2 (blood-oxygen saturation) improves patient outcomes (Aim 2).

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Simple Crosstabs

Health Reform Monitoring Survey, United States, June 2022 (ICPSR 38774)

Released/updated on: 2024-08-08
Geographic coverage: United States
Time period: 2022-06-01--2022-07-31
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 21st round of the survey (June 2022) include self-reported health status, health insurance coverage, access to health care, disability, COVID-19, awareness of the Medicaid continuous coverage requirement, past-due medical debt, unfair treatment in health care settings, food security, and access to transportation. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race and ethnicity, United States citizenship, housing type, home ownership, internet access, income, and employment status.
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Juvenile Residential Facility Census, 2020 [United States] (ICPSR 38914)

Released/updated on: 2024-07-15
Geographic coverage: United States
Time period: 2020-10-28--2020-10-28

The Juvenile Residential Facility Census (JRFC), which is conducted biennially, collects basic information on juvenile residential facility characteristics, including security, capacity and crowding, injuries and deaths in custody, and facility ownership and operation. The JRFC also includes questions about facility type (such as detention center, training school, ranch, or group home) and residential services provided by the facility (such as independent living, foster care, or other arrangements), and detailed questions about mental health, substance abuse, and educational services provided to young persons.

In 2020, the JRFC was divided into eight sections:

  1. General facility information
  2. Mental health services
  3. Educational services
  4. Substance abuse services
  5. Events in the 30 days prior to the census reference date
  6. Deaths in the year prior to the census reference date
  7. Space shared with other facilities
  8. Coronavirus pandemic (COVID-19)

Congress requires the Office of Juvenile Justice and Delinquency Prevention (OJJDP) to report annually on the number of deaths of juveniles in custody; the JRFC gathers this information and offers a portrait of the nation's juvenile facilities. The census reference date was the fourth Wednesday in October (October 28, 2020).

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Protecting the Mental and Physical Well-Being of Frontline Healthcare Workers During COVID-19, United States, 2021-2022 (ICPSR 38816)

Released/updated on: 2024-05-15
Geographic coverage: United States
Time period: 2021-03-01--2022-07-31
This study sought to test whether Stress First Aid Sites (SFA) improves the well-being of health care workers (HCWs) compared with care as usual for HCWs who deliver care in hospital and ambulatory health center settings. Researchers conducted interviews with site leadership, site champions, and HCWs to describe the experiences of HCWs receiving the training, as well as to understand the resources available in usual care and how SFA was implemented.
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Integrating Patient-Centered Exercise Coaching into Primary Care to Reduce Fragility Fracture (WISE), Pennsylvania, 2016-2021 (ICPSR 38919)

Released/updated on: 2024-04-04
Geographic coverage: United States, Pennsylvania
Time period: 2016-09-01--2021-12-17

Using a pragmatic trial design to limit exclusions, the investigators conducted a 36-month multi-center randomized effectiveness trial to compare the impact of an enhanced usual care (control) intervention, with exercise coaching (exercise), on fragility fractures and serious fall-related injuries (FF/SFRI) in patients with a previous fragility fracture. Specifically, the investigators examined the impact of the intervention on social loneliness, physical function, and bone strength. 1,139 individuals over 65 with a history of fragility fractures and/or osteoporosis were recruited over two years across three regions of Pennsylvania and randomized into either the enhanced usual care control group or exercise with coaching treatment group, where in-person exercise activities were led by trained volunteers.

Dataset (DS) 1 contains the following data used for analysis: participant characteristics at baseline by study group (referred to as Table 5 in the documentation), intervention participant characteristics at baseline based on exercise session type (referred to as Table 6), cumulative incidences of first serious fall-related injury compared by study group (referred to as Figure 3), cumulative incidence for first serious fall-related injury by age, gender, race, and osteoporosis medication (referred to as Table 8 and Figure 4), and cumulative incidence for first series fall-related injury by tertile of average intervention sessions per month (referred to as Figure 5). Other datasets used for analysis are fall injury data (DS2), monthly workout sessions data (DS3), secondary outcomes data (DS4, referred to as Table 7), and adverse events data (DS5, referred to as Table 9). DS6 includes markers designating before and after the start of the COVID-19 pandemic (March 11, 2020), allowing for analyses of participants who experienced fall-related injuries relative to COVID-19.

Datasets labeled "Miscellaneous" were not used in any analysis. These datasets contain extra measures from screening (DS7), baseline assessments (DS8), 4-month check-in visits (DS9), participant's distance to study site (DS10), coaching check-ins for weeks 1-12 (DS11), exercise sessions by month (DS12), adverse events (DS13), and end of study information (DS14).

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Local Health Department Infrastructure Study, 1999-2000: [United States] (ICPSR 3185)

Released/updated on: 2024-02-14
Time period: 1999-01-01--2000-12-31
The purpose of this survey was to address the paucity of current data on the United States' local public health infrastructure and to advance understanding of the many ways local public health agencies contribute to keeping the nation's population and environment healthy. The survey collected information on local health department (LHD) characteristics (e.g., type of jurisdiction served, office to which the LHD reported directly, total expenditures, and sources of the LHD's total budget), priority program areas, and public health services provided directly or through contracts with others. Additional data cover LHD workforce composition, staffing needs, workforce training, and partnerships and collaborations with other groups and organizations, such as state or federal agencies, hospitals, HMOs, community health centers, universities, community-based organizations, professional associations, faith communities/churches, and business/private corporations. LHDs also reported on completion of community health assessments and development of community health improvement plans.
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North Dakota Health Insurance Survey, 1998 (ICPSR 3313)

Released/updated on: 2024-02-14
Geographic coverage: United States, Grand Forks, North Dakota
Time period: 1998-01-01--1998-12-31
The objectives of this survey were (1) to determine who the uninsured were in North Dakota, (2) to show how the 1997 flood affected Grand Forks and other Red River Valley residents, (3) to provide information to help government and private industry respond to the needs of disaster survivors, and (4) to update the results of the 1993 health care survey conducted under the State Initiatives in Health Care Reform Program (ROBERT WOOD JOHNSON FOUNDATION EMPLOYER HEALTH INSURANCE SURVEY, 1993 [ICPSR 6908] and ROBERT WOOD JOHNSON FOUNDATION FAMILY HEALTH INSURANCE SURVEY, 1993 [ICPSR 6894]). The interview collected information on household composition, health insurance status for each member of the household, impact of the flood, and demographic characteristics such as employment status, age, sex, and income. All households with at least one uninsured individual were administered a needs assessment module to collect more detailed information on health care coverage, utilization, and needs, as well as additional demographic information. Data are presented at the person level and the "family insurance unit" (FIU) level, a grouping typically used by insurance carriers. A FIU comprises an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age, or 18-22 years of age if unmarried full-time students.
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Springfield [Massachusetts] Study of Populations with Disabilities, 1993-1997 (ICPSR 2623)

Released/updated on: 2024-02-14
Geographic coverage: United States, Massachusetts, Springfield
This two-wave longitudinal survey of persons with disabilities in Springfield, Massachusetts, had four research objectives: (1) to determine levels of formal and informal service use among people with disabilities in Springfield, (2) to determine the prevalence and consequences of unmet needs for assistance with activities of daily living (ADLs) and instrumental activities of daily living (IADLs), (3) to test the hypothesis that residents reporting unmet needs for assistance with daily living activities at baseline would have higher levels of emergency room use and hospitalization over the follow-up period than respondents not reporting such needs, and (4) to assess respondents' satisfaction with access to and quality of their health care and health care providers. Conducted in 1993-1994 and 1996-1997, the survey gathered information on health, health service utilization, satisfaction with health services, assistance with ADLs (eating, dressing, bathing, toileting, transferring in and out of bed/chair, and moving around indoors) and IADLs (preparing meals, shopping for groceries and household supplies, housekeeping, transportation, and financial management), social and physical activity, social support, health care coverage, and sociodemographic characteristics such as income, year of birth, marital status, race, Hispanic origin, religion, education, and employment.
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Integrated Public Health Surveys, 2010-2011 (ICPSR 33822)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2010-01-01--2011-12-31

This collection comprises a single data file which was produced as part of the data harmonization efforts of the Robert Wood Johnson Foundation and the United States Centers for Disease Control and Prevention. The file contains merged data from five sources:

  1. 2010 National Profile of Local Health Departments, a survey of local health departments conducted by the National Association of County and City Health Officials (NACCHO).

  2. 2011 National Profile Survey of Local Boards of Health, a survey of local boards of health conducted by the National Association of Local Boards of Health (NALBOH).

  3. 2010 State and Territorial Public Health Survey, a survey of state and United States territory health departments conducted by the Association of State and Territorial Health Officials (ASTHO).

  4. 2011 County Health Rankings, a compilation of county-level health measures and within-state county health rankings produced by the University of Wisconsin Population Health Institute.

  5. 2010 Census Demographic Profile Summary File, a series of tables with housing and population data from the 2010 Census.

Produced by matching data from the last four sources to the NACCHO data, the data file contains one case for each of the 2,107 local health departments (LHD) that responded to the NACCHO survey. Each LHD's record in the file includes the ASTHO data for its state health department and the NALBOH data for its local board of health (LBH), if it had a LBH and the LBH responded to the NALBOH survey. (If a LHD had multiple LBHs, then the first one in the NALBOH data was matched to the LHD). In addition, county (or county equivalent)-level data from the County Health Rankings and Census Demographic Profile Summary File were matched to the records of the 1,535 LHDs represented in the data file with a jurisdiction covering a single county or county equivalent.

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Associated Press Poll on the Health Care Overhaul, by Stanford University With the Robert Wood Johnson Foundation, October-November 2009 [United States] (ICPSR 30421)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2009-01-01--2009-12-31
This poll was intended to measure public opinion about the proposed health care overhaul that was being considered by the United States Congress while the survey was in the field. It measured support and opposition to certain general goals for the overhaul, as well as support and opposition to specific policy proposals. Other topics investigated by the survey include health status, health insurance status, health care system experience, general perceptions of the health care system, political ideology, and approval/disapproval of the Obama Administration's performance. Demographic characteristics covered by the survey include marital status, employment status, year of birth, home tenure, religion, religiosity, race, Hispanic origin, and income.
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Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults, 2008 [United States] (ICPSR 27181)

Released/updated on: 2024-02-14
Geographic coverage: United States, Texas, Massachusetts, Hawaii, California, Georgia, New York (state), Wisconsin
Time period: 2008-01-01--2009-12-31

This is the second round of the Community Partnerships for Older Adults (CPFOA) Program Survey of Older Adults. Like the first round, which was fielded in 2002 and released as ICPSR 4301 (Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002), the second round was conducted as part of the evaluation of the CPFOA Program, an initiative of the Robert Wood Johnson Foundation (RWJF) aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private partnerships. The 2002 survey was conducted in the 13 communities in which partnerships received development grants from RWJF, and, in 2008, the survey was repeated in the eight of them in which partnerships received implementation grants from the Foundation. The goal of the survey was to improve understanding of the characteristics of older adults, their knowledge and perceptions about issues related to long-term care, and their use of long-term care services and support. In addition, the data collected by the survey enabled the communities to target the partnership's activities in the most effective way.

The second round was based on the 2002 survey instrument. Changes to the instrument were minimized so that the data from the 2002 and 2008 rounds would be comparable. The instrument was modified to delete questions that had low item response in 2002, to add questions requested by the partnerships, to add questions for decision-makers, or to modify questions that were outdated. As in 2002, the 2008 survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.

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Memphis New Mothers Study, 1990-1994 (ICPSR 6782)

Released/updated on: 2024-02-14
Geographic coverage: United States, Tennessee, Memphis
Time period: 1990-06-01--1994-04-30
This study was a randomized trial that tested the effectiveness of home visitation by nurses as a means of enhancing the health and well-being of socially disadvantaged women and their first-born children. Low-income, pregnant women bearing first babies were randomly assigned to four treatment groups: (1) subjects that received free transportation to prenatal care, (2) subjects that received transportation to prenatal care and developmental screening for the children, (3) subjects that received transportation to prenatal care and developmental screening, plus prenatal home visits by nurses, and (4) subjects that received transportation to prenatal care, developmental screening, prenatal home visits, and postnatal home visits by nurses. Assessments of the women covered health-related behaviors, mother's care-giving environment, child's health and development, levels of social support, mother's psychological resources, personal life-course development, and costs of health care. Variables measuring health-related behaviors included the use of cigarettes and illegal drugs and the presence of sexually-transmitted diseases. The mother's care-giving environment and the child's health and development were evaluated by the Bavolek adult-adolescent parenting interview score, the Caldwell home observation scale, the Bayley mental development index, the Achenbach child behavioral problems inventory, and other indices. Levels of social support were evaluated by the amount of support expected to be received from a boyfriend or husband and the mother's mother. Assessments of maternal psychological resources included the Pearlin mastery scale, the Shipley IQ score, and the Bandura self-efficacy score. Personal life-course development was assessed by the respondents' educational and occupational achievements, and the numbers of subsequent pregnancies and children. Variables measuring the effect of the program on the cost of health care include number of hospital emergency room visits, number of hospitalizations, total length of stay, number of well-child and ill-child doctor visits, and use of community social services. Other variables provide information on age at birth, pre-pregnancy weight, birth weight and gender, race, employment status, income, housing density, and education.
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Trends in Hospital and Health Personnel in the United States and Canada, 1968-1991 (ICPSR 6243)

Released/updated on: 2024-02-14
Geographic coverage: Canada, United States, Global
Time period: 1968-01-01--1991-12-31
The major objective of this study was to develop a new data resource for crossnational comparisons of health care systems. To that end, the project compiled data from the United States and Canada to compare the number of health personnel per capita in these two countries. The collection comprises three data files: one file with data from the United States and two files with Canadian data. Part 1, the United States file (named the HWKXTRCT file by the principal investigators), contains records of respondents employed in health industries and occupations extracted from the United States Bureau of the Census Current Population Survey Annual Demographic (March) Files for 1968 through 1992. Variables in Part 1 include age, educational attainment, race, sex, ethnic origin, wage or salary income, self-employment income, health industry group and occupation, and labor force status during the last week. This file also includes recoded variables generated by the principal investigators, such as annualized hours worked in principal employment, and wages adjusted to 1991 United States dollars. The two Canadian files, Parts 4 and 7, contain custom tabulations generated from the 1971 and 1986 Censuses of Canada. These tabulations give the number of persons in Canada employed for 1-19, 20-29, 30-34, 35-39, 40-44, 45-49, and 50+ hours per week by sex, occupation, industry, and the number of weeks worked during the previous year.
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Community Partnerships for Older Adults (CPOA) Program Survey of Older Adults, 2002 [United States] (ICPSR 4301)

Released/updated on: 2024-02-14
Geographic coverage: Vermont, United States, Hawaii, California, New York (state), Maui, Arkansas, Michigan, Texas, Massachusetts, Georgia, Wisconsin, Boston
Time period: 2002-01-01--2002-12-31
This survey is one component of the evaluation of the Community Partnerships for Older Adults (CPOA) Program, an initiative of the Robert Wood Johnson Foundation aimed at promoting improvements in the organization and delivery of long-term care and supportive services for older adults through local public-private community partnerships. The survey interviewed a representative sample of older adults aged 50 and over in 13 communities that were awarded development grants by the program. Designed to obtain baseline data about each community's population and to provide information to target the CPOA's activities in the most effective way, the survey interviewed respondents about supportive and long-term care services for older adults in their communities, including the availability, use of, and quality of the services and sources of information about them. Respondents were asked if they expected to stay in their community, if their homes needed repairs or modifications to improve their ability to live in them, how important it was to be able to live in their own home as they grew older, the age at which they thought they would need help to continue living in their own home, and the age at which they thought they could no longer live at home because of health problems. The survey also collected information on health status, problems with activities of everyday life, health insurance coverage and long-term care insurance, hospital stays, living arrangements, social activities, support from family and friends, access to transportation, and demographic characteristics.
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National Survey of Small and Medium-Sized Physician Practices (NSSMPP), 2007-2009 (ICPSR 36113)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2007-01-01--2009-12-31

Funded by the Robert Wood Johnson Foundation, the National Study of Small and Medium-sized Physician Practices (NSSMPP) was designed to provide information about physician practices with 1-19 physicians. The survey focused on the use of information technology and care management processes for four major chronic illnesses: asthma, congestive heart failure, depression, and diabetes. Other topics covered by the survey include practice type, size, ownership and the breakdown of patients by race and Hispanic origin; clinical preventative services and health promotion; health insurance plan activities in preventative care and care for patients with chronic illness; performance reporting and incentives; revenue sources and compensation methods; and organizational culture.

NSSMPP was also designed to assist the RWJF-funded Aligning Forces for Quality (AF4Q) project by providing baseline data about small and medium sized practices in the AF4Q sites. AF4Q was a national program that aimed to lift the quality of health care in 16 targeted communities, reduce racial and ethnic disparities in those communities and provide models for national reform.

NSSMPP built on two previous studies -- the National Study of Physician Organizations and the Management of Chronic Illness (NSPO), 2000-2001 (ICPSR 4455) and the National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007 (ICPSR 29801) -- which collected information about medical groups and independent practice associations (IPAs) with 20 or more physicians.

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National Profile of Local Health Departments, 2008 (ICPSR 26962)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2008-01-01--2008-12-31
Conducted by the National Association of County and City Health Officials (NACCHO), the purpose of this survey of local health departments (LHDs) was to advance and support the development of a database for LHDs to describe and understand their structure, function, and capacities. Each LHD in the United States received a questionnaire with a set of core questions. In addition, some of the LHDs received one of three randomly assigned modules of supplemental questions. The core questions covered jurisdictional information, governance, funding, workforce (staffing levels, occupations employed, top executive education and licensure, and percentages of staff by gender, race, and Hispanic origin), LHD activities, health disparities, and community health assessment and planning. The surveyed LHD activities include immunization, screening for diseases and conditions, treatment for communicable diseases, maternal and child health, epidemiology and surveillance activities, and regulation, inspection and/or licensing activities. Topics covered by Module 1 include awareness and use of NACCHO's operational definition of a functional local health department, familiarity with a voluntary national accreditation program (VNAP) for state and local health departments, LHD promotional activities, use of the logo and tagline that NACCHO developed for local governmental public health, and characteristics of LHD Web sites. Module 2 examined human resources, awareness and use of core competencies related to public health, interaction with academic institutions, internal agency strategic planning, sharing of resources with other LHDs, and information technology. Finally, Module 3 asked about community health assessment and health improvement planning, essential services and activities, land use planning, policy-making and advocacy, partnership and collaboration with other organizations, and access to health care services.
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National Profile of Local Health Departments, 2013 (ICPSR 34990)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2013-01-01--2013-12-31
Conducted by the National Association of County and City Health Officials (NACCHO), the purpose of this survey of local health departments (LHDs) was to advance and support the development of a database for LHDs to describe and understand their structure, function, and capacities. A core set of questions was submitted to every LHD. In addition, some LHDs received one of two randomly assigned modules of supplemental questions. The core questions covered governance, funding, workforce (staffing levels, occupations employed, top executive education and licensure), LHD activities, community health assessment and health improvement planning, use of the Community Guide of Preventive Services, and policy-making and advocacy. The surveyed LHD activities include immunization, screening for diseases and conditions, treatment for communicable diseases, maternal and child health, epidemiology and surveillance activities, population-based primary prevention activities, and regulation, inspection and/or licensing activities. Topics covered by Module 1 included quality improvement, accreditation through the Public Health Accreditation Board, sharing of resources across LHDs, human resources issues, partnerships and collaboration with other organizations in the community, practice-based research, health impact assessments, use of the County Health Rankings reports, and collaboration with public health institutes. Module 2 examined emergency preparedness, public health informatics, access to health care services, and health disparities.
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National Profile of Local Health Departments, 2010 (ICPSR 32922)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2010-01-01--2010-12-31
Conducted by the National Association of County and City Health Officials (NACCHO), the purpose of this survey of local health departments (LHDs) was to advance and support the development of a database for LHDs to describe and understand their structure, function, and capacities. A core set of questions was submitted to every LHD. In addition, some LHDs received one of two randomly assigned modules of supplemental questions. The core questions covered governance, funding, workforce (staffing levels, occupations employed, top executive education and licensure, and percentages of staff by race and Hispanic origin), LHD activities, and community health assessment and health improvement planning. The surveyed LHD activities include immunization, screening for diseases and conditions, treatment for communicable diseases, maternal and child health, epidemiology and surveillance activities, population-based primary prevention activities, and regulation, inspection and/or licensing activities. Topics covered by Module 1 included quality improvement, familiarity with a voluntary national accreditation program for state and local health departments, sharing of resources with other LHDs, emergency preparedness, and information technology. Module 2 examined human resources, policy-making and advocacy, access to health care services, practice-based research, health impact assessments, public health and law, and use of public health reports.
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Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-12-31
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--1999-12-31

This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.

Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.

Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.

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Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-31, 1997-10-01--1998-08-31
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
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Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-08-01--1997-08-31
Sponsored by the Robert Wood Johnson Foundation, this survey is one component of the Community Tracking Study (CTS), a national study designed to track changes in the health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Physician Survey was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. Information gathered by the survey instrument includes physician supply and specialty distribution, practice arrangements and physician ownership of practices, sources of practice revenue, level and determinants of physician compensation, effects of care management strategies, and physicians' allocation of time, provision of charity care, career satisfaction, and perceptions of their ability to deliver care. For primary care physicians, the survey instrument also provided vignettes of various clinical presentations for which there was no prescribed method of treatment. These physicians were asked to indicate the percentage of patients for whom they would recommend the course of action specified in each particular vignette. Part 3, the Site and County Crosswalk Data File, describes which counties constitute each site. Part 4, the Physician Survey Summary File, contains site-level averages and percentages and standard errors of these estimates for selected attributes, e.g., the percentage of physicians who were foreign medical school graduates, average age of physicians, average percentage of patient care practice revenue from Medicaid, etc.
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Practice Patterns of Young Physicians, 1997: [75 Largest Metropolitan Statistical Areas in the United States] (ICPSR 2829)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1997-01-01--1997-12-31
This survey reinterviewed a subsample of physicians who responded to the survey PRACTICE PATTERNS OF YOUNG PHYSICIANS, 1991: [UNITED STATES] (ICPSR 6145). Respondents answered questions about their practice arrangements, such as the number of different medical practices that they worked in during the past month, the number of hours spent providing patient care, and the number of patients seen in the past week. They also described the characteristics of their main practice in terms of type of practice setting, practice ownership, number of physicians, percentage of revenues from patients covered by Medicaid and Medicare, share of Medicaid and Medicare revenues from managed care organizations, percentage of patients with no health insurance coverage, and percentage of Black and Hispanic patients. Other information covered whether the practice had a formal mechanism for reviewing clinical practice decisions, whether it had contracted to provide care through a Preferred Provider Organization (PPO), Health Maintenance Organization (HMO), or Independent Practice Arrangement (IPA), whether it was joined with one or more physician practices or was purchased by an insurance company in the past two years, percentage of revenues from PPO, HMO, and IPA arrangements, and whether there were personal financial incentives that favored reducing or expanding services to patients. Additionally, respondents were asked whether contracts or other communications received from insurance plans implied that continued participation in the plans depended upon costs associated with their clinical decisions, or implied that they should not tell patients about restrictions on coverage for medically accepted testing, treatment, or referral options. Other questions probed respondents' career satisfaction, ethical beliefs regarding the practice of medicine, and freedom to practice medicine as they saw fit. The survey also gathered information on determinants of physician compensation, medical specialty, income, marital status, spouse's occupation, and the number of children living with the respondent.
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Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2004-01-01--2005-12-31
This is the fourth round of the physician survey component of the Community Tracking Study (CTS). The first round was conducted in 1996-1997 (ICPSR 2597), the second round in 1998-1999 (ICPSR 3267), and the third in 2000-2001 (ICPSR 3820). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the American health care system and their effects on people. As in the previous rounds, physicians were sampled in the 60 CTS sites: 51 metropolitan and 9 nonmetropolitan areas that were randomly selected to form the core of the CTS and to be representative of the nation as a whole. However, the fourth round lacks an independent supplemental national sample of physicians, which augmented the CTS site sample in the previous rounds. Information collected by the survey includes net income from the practice of medicine, year of birth, sex, race, Hispanic origin, year of graduation from medical school, specialty, board certification status, compensation model, patient mix (e.g., race/Hispanic origin of patients and percent with chronic conditions), career satisfaction, practice type, size, and ownership, percent of practice revenue from Medicare, Medicaid, or managed care, acceptance of new Medicaid and Medicare patients and, if applicable, reasons for not accepting them, use of information technology for care management, number of patient visits and hours worked in medically related activities during the last complete week of work, and the number of hours spent providing charity care in the last month. In addition, the survey elicited views on a number of issues such as patient-physician interactions, competition among practices, the influence of financial incentives on the quantity of services provided to patients, trends in the amount and quality of nursing support, one's ability to provide quality care and obtain needed services for patients, and the importance of various factors that may limit the quality of care. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the average percentage of patients with a formulary, and the percentage of physicians who said medical errors in hospitals are a minor problem.
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Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-12-31
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
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Community Tracking Study Physician Survey, 2000-2001: [United States] (ICPSR 3820)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-12-31
This study comprises the third round of the physician survey component of the Community Tracking Study (CTS). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the health care system and their effects on people. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the physician survey, COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597) and COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1998-1999: [UNITED STATES] (ICPSR 3267), the third round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, effects of care management strategies, and various other aspects of physicians' practice of medicine. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the percentage of physicians who were either very or somewhat dissatisfied with their overall career in medicine, and the average percentage of patients with prescription coverage that included the use of a formulary.
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Early Intervention Colorado (EI-CO) Participant Characteristics, Service Use, and Patient-Reported Outcomes, Colorado, 2017-2021 (ICPSR 37320)

Released/updated on: 2023-11-28
Geographic coverage: United States, Colorado
Time period: 2017-01-01--2021-12-31

The Individuals with Disabilities Education Act authorizes states to create early intervention (EI) programming to provide developmental and therapeutic services to infants and toddlers with a developmental condition; EI programs are mandated to report on child and family outcomes for purposes of accountability and quality improvement. For both purposes, there is critical need for research evidence on the adequacy of EI services. The researchers for this study partnered with a large urban EI program in Colorado that had recently transitioned to electronic data capture and was implementing a statewide initiative to facilitate function-focused care with individual families and paired collected electronic patient-reported outcomes (e-PRO) data with EI administrative data on child and family characteristics and service use to more fully examine EI service adequacy relative to patient-important outcomes.

This study collected information from Young Children's Participation and Environment Measure (YC-PEM e-PRO) on home, environment, and community participation, involvement, and desired change. Measurements were also collected from the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT e-PRO) on mobility, social cognitive, and daily activities domains. The Child Outcomes Summary (COS) was used to capture functional performance related to having positive social relationships, acquiring and using knowledge and skills, and taking appropriate action to meet needs. Early Intervention Service Use measured EI intensity, whether child received specific services including physical therapy (PT), occupational therapy (OT), speech therapy (ST), psychology, or developmental intervention (DI), and the total number of service hours received within each discipline. Demographic variables include reasons child received EI services, number of developmental delay conditions, age, race, and ethnicity; as well as caregiver's education, employment, number of children at home, income, and insurance type.

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Behavioral Risk Factor Surveillance System (BRFSS), United States, 2017 (ICPSR 37989)

Released/updated on: 2023-07-10
Geographic coverage: District of Columbia, Puerto Rico, United States, Guam
Time period: 2017-01-01--2017-12-31

The Behavioral Risk Factor Surveillance System (BRFSS) is a system of health-related telephone surveys that collect state data about U.S. residents regarding their health-related risk behaviors, chronic health conditions, and use of preventive services. Established in 1984 with 15 states, BRFSS now collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year.

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Tanzania Abortion Incidence Study, 2012-2014 (ICPSR 38812)

Released/updated on: 2023-07-05
Geographic coverage: Tanzania
Time period: 2012-01-01--2014-12-31

Unsafe abortions account for roughly 13 percent of maternal deaths worldwide. In addition, millions of women suffer nonfatal health consequences of unsafe abortion every year. Information on unsafe abortion can be instrumental in helping policy makers and program planners identify measures needed to improve maternal health. Insufficient information at the country level perpetuates the invisibility of the problem of unsafe abortion and results in governments giving it little priority in policy decisions, service delivery or program implementation.

This project was the first-ever national study of the incidence of induced abortion and health consequences of unsafe abortion in Tanzania. The three-year project aimed to:

  • Provide evidence on the incidence of induced abortion in Tanzania, at the national and regional levels and by women's place of residence and economic status
  • Document the incidence of abortion complications
  • Document the methods and providers used to perform abortions in Tanzania
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China Longitudinal Aging Social Survey (CLASS) 2016-2018 (ICPSR 191983)

Released/updated on: 2023-05-27
Geographic coverage: China
The China Longitudinal Aging Social Survey (CLASS) is a nationwide, continuous large-scale social survey project. By regularly and systematically collecting social and economic background data of the elderly population in China, it grasps various issues and challenges faced by the elderly in the aging process, evaluates the actual effects of various social policy measures in improving the quality of life of the elderly, and provides important theoretical and factual basis for solving aging problems in China.
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Health Reform Monitoring Survey, United States, April 2021 (ICPSR 38526)

Released/updated on: 2023-04-12
Geographic coverage: United States
Time period: 2021-04-01--2021-04-30
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered by the 20th round of the survey (April 2021) include self-reported health status, health insurance coverage, access to health care, awareness of Marketplace and Medicaid coverage options, use of public benefits, telehealth, COVID-19 vaccine attitudes, forgone care because of the COVID-19 pandemic, and unfair treatment in health care settings. Additional information collected by the survey includes age, gender, sexual orientation, marital status, education, race and ethnicity, United States citizenship, housing type, home ownership, internet access, income, and employment status.
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National Drug Abuse Treatment System Survey, Waves V-IX, [United States], 2000-2017 (ICPSR 38420)

Released/updated on: 2023-03-22
Geographic coverage: United States
Time period: 2000-01-01--2000-12-31, 2005-01-01--2005-12-31, 2011-01-01--2011-12-31, 2014-01-01--2014-12-31, 2017-01-01--2017-12-31

The National Drug Abuse Treatment System Survey (NDATSS) is a longitudinal program of research into organizational structures, operating characteristics, and treatment practices of outpatient drug treatment programs in the United States. This is done through interviews with program directors and clinical supervisors. In some publications, this research is referred to as the Outpatient Drug Abuse Treatment Studies (ODATS). Data in this collection include Wave V, Wave VI, Wave VII, Wave VIII, and Wave IX.

NDATSS includes four prior waves of data collection from substance abuse treatment programs surveyed in 1984, 1988, 1990, and 1995. Waves II through IV can be found at ICPSR here.

Wave I is not planned for public release because it had a significantly different sample design than the other waves.

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Omnibus Study, Spring 1973 (ICPSR 7453)

Released/updated on: 2023-03-13
Geographic coverage: United States
This study was sponsored by the Survey Research Center at the University of Michigan for researchers who needed data on national samples but only required part of an interview. The survey covered the following major topics: economic situation, quality of life, governmental service agencies, income tax, and background questions. In the economic section, respondents were asked how they viewed their own and the country's economic situations in comparison to the previous year, and what their expectations were for the next 12 months. Questions referred to personal finances, employment, price changes, and the national business situation. The economic variables are also included in SURVEY OF CONSUMER ATTITUDES AND BEHAVIOR, SPRING 1973 (ICPSR 7475). The second section focused on respondents' life satisfaction. General questions about quality of life were followed by a more extensive inquiry into specific aspects of respondents' lives: financial security, freedom, independence, safety, religious fulfillment, perceptions of pressure, and adaptability. The third section focused on respondents' experience with and attitudes toward various governmental agencies, particularly in the areas of health, welfare, and employment. Government service agencies at the local, county, state, and national levels were taken into consideration. The fourth section posed a series of questions about income taxes, tax rates, income tax withholding, and income tax refunds in 1973 as compared to 1972. The survey probed the extent to which people were aware of a change in tax law that had resulted in too much money having been withheld in 1972. Respondents were also asked what they did, or intended to do, with the extra refunds received in the spring of 1973. Demographic information includes sex, age, ethnicity, level of education, marital status, employment status, occupation, family income, home and car ownership, and multiple residences, if applicable.
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A Qualitative Assessment of Post-Partum Screening After Gestational Diabetes, St. Louis, 2017-2018 (ICPSR 38543)

Released/updated on: 2023-02-27
Geographic coverage: United States, Missouri, St. Louis
Time period: 2017-05-02--2018-04-13

This study is a qualitative examination via in-depth interviews and focus groups of barriers and facilitators to receiving postpartum diabetes screenings. The target population is women aged 18-40 who had a history of gestational diabetes within the prior 10 years and received Medicaid during pregnancy. Perspectives from patients, health care providers, and health care staff were solicited for the study. Overall, the goal was to learn about the patient, provider, and staff experience after a pregnancy complicated by gestational diabetes in order to understand how health centers may better support patients receiving recommended follow-up screenings and preventing postpartum type 2 diabetes.

All healthcare providers and staff were recruited from federally qualified health centers (FQHCs) in Missouri and provided care for women during and after pregnancies with gestational diabetes. Patients were recruited via health care centers or other community sites in the St. Louis metropolitan area. Interview and focus group questions assessed understanding and education provided around gestational diabetes diagnosis and postpartum screening/prevention, as well as prominent barriers and facilitators to gestational diabetes management, postpartum diabetes screening, and diabetes prevention.

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National Study of Physician Organizations (NSPO3), United States, 2012-2013 (ICPSR 38587)

Released/updated on: 2023-01-31
Geographic coverage: United States
Time period: 2012-01-01--2013-11-30
The National Study of Physician Organizations was designed to improve understanding of evidence-based care management processes (CMPs) as they relate to physician organizations (POs), that is, independent practice associations (IPAs) and medical groups. This survey, the third NSPO survey of IPAs and medical groups (NSPO2), examined over 2000 physician organizations of all sizes. As in prior surveys, NSPO3 collected demographic information about the following practices and assesses: (1) use of clinical information technology; (2) use of care management processes to improve the quality of care for four chronic conditions (asthma, congestive heart failure, depression, and diabetes); (3) provision of clinical preventive services and health promotion; (4) exposure to external performance incentives such as pay for performance and public reporting; (5) payer mix, forms of compensation from health plans, and forms of compensation paid by the practice to its physicians; (6) organizational culture. In addition, NSPO3 asked about participation or intended participation in Accountable Care Organizations (ACOs).
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Study to Promote Innovation in Rural Integrated Telepsychiatry (SPIRIT), Arkansas, Michigan, and Washington, 2016-2020 (ICPSR 38542)

Released/updated on: 2022-12-14
Geographic coverage: United States, Arkansas, Washington, Michigan
Time period: 2016-01-01--2020-12-31

This study addressed whether it is better to expand the scope of collaborative care programs to treat patients with more complex psychiatric disorders or to facilitate successful referrals to specialty mental health care. The primary objective of this study is to compare Telepsychiatry Collaborative Care (TCC) and Telepsychiatry Enhanced Referral (TER) from the patient and provider perspective. The secondary objective is to determine whether patients not engaging and responding to TER, improve with Phone-Psychiatry Enhanced Referral (PER). There are four specific aims.

Aim #1: To quantitatively compare the treatment experience, engagement, self-reported clinical outcomes, and recovery-oriented outcomes of patients initially randomized to TCC and TER.

Aim #2: For the subset of patients randomized to TER who do not engage in treatment and are still symptomatic at 6 months, quantitatively compare treatment experience, treatment engagement, self-reported clinical outcomes and recovery-oriented outcomes of patients randomized to continued-TER or PER.

Aim #3: To gain an in-depth understanding of patients' and providers' treatment experience, qualitatively compare those randomized to TCC, TER and PER.

Aim #4: To examine treatment heterogeneity among subgroups of patients randomized to TCC and TER based on race/ethnicity, age and clinical severity.

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Reducing Barriers to Autism Care for Latino Children, Oregon, 2012-2013 (ICPSR 38525)

Released/updated on: 2022-09-27
Geographic coverage: Oregon, United States
Time period: 2012-01-01--2013-12-31

This collection includes qualitative data files from two parts of the same study that examined the barriers to autism care for Latino children in Oregon.

  • Part 1: The research team sought to describe community, family, and health care system barriers to diagnosing autism spectrum disorders (ASD) in Latino children. Five focus groups and four individual interviews were conducted with 33 parents of Latino children previously diagnosed with an ASD. Participants described Latino community perceptions of autism and barriers they experienced during the diagnostic process.
  • Part 2: The research team sought to assess the understanding and conceptualization of ASD in the Latino community to understand potential community barriers to early diagnosis. Five focus groups and four individual interviews were conducted with 30 parents of typically developing Latino children. Participants were asked structured questions concerning video vignettes that follow a Latina mother from the time she begins to worry about her 3-year-old son's behaviors to the time he receives an ASD diagnosis.
Self-published

Effects of the WHO's 8-step Wheelchair Service Delivery Process on Wheelchair Users in El Salvador: A Cohort Study, 2019 (ICPSR 173201)

Released/updated on: 2022-07-15
Geographic coverage: El Salvador
Time period: 2019-01-01--2019-11-30
The Effects of the WHO's 8-step Wheelchair Service Delivery Process on Wheelchair Users in El Salvador: A Cohort Study, 2019 includes data collected in El Salvador by the El Salvador University. The broad goal of this study was to contribute to the body of evidence investigating the outcomes related to providing manual wheelchairs according to the WHO 8-step service delivery process in less-resourced settings. The specific objectives were to test the hypotheses that wheelchair-related health, wheelchair skills, wheelchair use, poverty probability, and quality of life would improve; and that the number of wheelchair repairs required, adverse events, caregiver burden, and the level of assistance provided would decrease after the delivery of manual wheelchairs following the WHO 8-step wheelchair service delivery process.
The dataset includes age, gender, diagnosis/type of disability, type of assistive device (e.g., wheelchair), and use of an assistive device. Additionally, data collected include the following measures from structured questionnaires translated into Spanish which included the same predetermined questions to all participants in the same order, and in many cases, a standardized scoring system: ISWP Minimum Uniform Dataset (MUD) which included demographic, clinical and wheelchair-related questions, Wheelchair Skills Test Questionnaire (WST-Q), Wheelchair Maintenance Training Questionnaire (WMT-Q), Breakdowns and Adverse Consequences Questionnaire (BAC-Q), Poverty Probability Index (PPI) for El Salvador, WHO Quality of Life Questionnaire – Brief version (WHO QOL-BREF), and the MIT-Wheelchair-related Health Questionnaire.
Curated
Partially restricted
Simple Crosstabs

National Profile of Local Health Departments, [United States], 2019 (ICPSR 38046)

Released/updated on: 2022-07-11
Geographic coverage: United States
Time period: 2019-01-01--2019-12-31
Conducted by the National Association of County and City Health Officials (NACCHO), the purpose of this survey of local health departments (LHDs) was to advance and support the development of a database for LHDs to describe and understand their structure, function, and capacities. A core set of questions was submitted to every LHD. In addition, some LHDs received one of two randomly assigned modules of supplemental questions. The core questions covered governance, funding, workforce (staffing levels, occupations employed, top executive education and licensure), LHD activities, community health assessment and health improvement planning, accreditation through the Public Health Accreditation Board, and policy-making and advocacy. The surveyed LHD activities include immunization, screening for diseases and conditions, treatment for communicable diseases, maternal and child health, epidemiology and surveillance activities, population-based primary prevention activities, and regulation, inspection and/or licensing activities. Topics covered by Module 1 included LHD interaction with academic institutions, Partnerships and collaboration, Cross-jurisdictional sharing of services, Emergency preparedness, and Access to healthcare services. Module 2 examined additional issues related to jurisdiction and governance, community health assessment and planning, human resources issues, quality improvement, public health informatics, and use of the Community Guide of Preventive Services.
Curated
Partially restricted
Simple Crosstabs

ASTHO Profile Survey of State and Territorial Public Health, United States, 2012 (ICPSR 37823)

Released/updated on: 2022-06-08
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2012-10-01--2013-05-01

The 2012 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The 121-question instrument was disseminated electronically in October 2012 and completed by senior deputies at each S/THA. The survey closed in May 2013; the response rate was 96 percent among the 50 states and D.C., and 92 percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

Curated
Restricted

Optimizing Decision Making about Breast Reconstruction after Mastectomy: A Patient-Centered Approach, United States, 2017 (ICPSR 38415)

Released/updated on: 2022-04-21
Geographic coverage: United States
Time period: 2017-01-01--2017-12-31
Breast reconstruction after mastectomy is an important part of breast cancer treatment for many patients. Breast reconstruction can restore quality of life after mastectomy, but its complication risk is quite high. Many patients and surgeons lack knowledge of that risk, and reconstruction decisions often misalign with patient preferences about risk, appearance, and recovery. Although clinical decision tools exist for a variety of treatments, tools designed to support breast reconstruction decisions, particularly about type and timing of reconstruction, are lacking. The objective of this project was to develop and test a clinical decision tool that is risk stratified and reflective of patients' preferences and clinical needs. The study team conducted qualitative interviews with patients and clinicians exploring their decision-making process about breast reconstruction. The study team used this information about stakeholder needs and preferences to inform the development of a decision tool.
Curated

Harvard School of Public Health/WBUR/Blue Cross Blue Shield of Massachusetts Foundation/Robert Wood Johnson Foundation Poll: Sick in Massachusetts, 2012 (ICPSR 38377)

Released/updated on: 2022-03-09
Geographic coverage: United States, Massachusetts
Time period: 2012-01-01--2012-12-31

This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.

This collection includes variable-level metadata of Sick in Massachusetts, a survey from the Harvard School of Public Health, WBUR Boston National Public Radio, the Blue Cross Blue Shield Foundation of Massachusetts, and the Robert Wood Johnson Foundation, conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:

  • Quality of health care
  • Health insurance, insurance status, and care costs
  • Reasons for health care quality problems
  • Focus of doctor visits
  • Reasons for rising health care costs
  • Health care as good value
  • Agreement with doctor statements
  • Amount of doctors
  • Attending routine check-ups
  • Overnight stays in hospitals
  • Satisfaction with hospital care
  • Medical costs as reasonable
  • Description of hospital stay
  • Recent serious illness
  • Satisfaction with medical care
  • Interactions with health care professionals
  • Impact of medical costs on family
  • Receiving care every time it's needed
  • Being turned away for health care
  • Insurance premiums as financial problem
  • Out-of-pocket medical costs
  • Negotiating lower charges
  • Problems paying for insurance
  • Changing regular doctor
  • Personal financial situation

The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31092353]. Frequencies and summary statistics for the 162 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.

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