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Curated

Randomize Everyone: Creating Valid Instrumental Variables for Learning Health Care Systems [Methods Study], New Hampshire, 2016-2022 (ICPSR 39717)

Released/updated on: 2026-03-17
Geographic coverage: United States, New Hampshire
Time period: 2016-01-01--2022-12-31

Comparative effectiveness research, or CER, compares two or more treatments. In some CER studies, researchers use patient data from electronic health records, or EHRs, to compare treatments. But patient traits like age may affect doctors' and patients' choice of treatments, which can bias results. Using EHR systems to identify eligible patients and assign them to treatments by chance could improve results of CER studies that use EHR data.

In this study, the research team explored the views of patients, clinic staff, and clinicians, such as doctors or nurses, on doing CER studies in clinics. The team also tested software with a widely used EHR system. The software finds patients who qualify for a study. During a clinic visit, the software prompts doctors to invite patients to take part in the study. If patients agree, the software assigns patients by chance to a treatment.

Self-published

INEQUALITY, WELFARE, POLARIZATION AND SOCIAL MOBILITY IN SPAIN, 1750-1900. DATASET RESPUESTAS GENERALES FROM ENSENADA CADASTRE (Andalusia, Extremadura, Murcia and Castile La Mancha) (ICPSR 210123)

Released/updated on: 2024-11-02
Geographic coverage: Castile-La Mancha, Spain, Extremadura, Spain, Andalusia, Spain, Murcia, Spain
Time period: 1750-01-01--1759-01-01
At the beginning of the eighteenth century, Spain was a backward and politically weakened economy with respect to her European competitors. However, it still remained its American colonies maintaining its status as world power. The balance of the Bourbon politics during the eighteenth century is ambiguous. From a centripetal point of view, the reformist and centralist role of the enlightened state is reinforced looking for a higher administrative efficiency. In opposition to this point of view, we find a more peripheral view that highlights the lack of efficiency of the Bourbon state whose policies represent the origin of proto-national pressure groups – very homogeneous territorially – that conditioned the failure of the liberal state during the nineteenth century. After the Napoleonic Wars, Spain carried out important reforms that encouraged substantial changes in its institutions. From an economic point of view, the country experienced high growth rates that increased agrarian productivity and wages, improved terms of trade and made possible a significant growth of the industrial sector. It is within this transition to a nation-state and industrial society where this project is focused, studying globally the relationships that took place between inequality, welfare, polarisation and social mobility between 1750 and 1900.   The hypothesis of this project maintains that the growth and modernisation process of the Spanish economy, during its transition towards a market economy, was accompanied by an increase in inequality, social polarisation and social mobility. At the same time, we will analyse how the starting conditions at local level could have been important factors to explain this process. Until now, in spite of the advances in the research concerning the evolution of inequality/welfare in Spain during the eighteenth and nineteenth centuries, there is no integrated analysis of all these dimensions.   This project attempts to combine the historical work of compilation and analysis of primary archival sources from the eighteenth and nineteenth centuries with the economic, econometric and spatially geo-referenced analysis. We will use the information from the Ensenada Cadastre (c. 1750) using information like names, occupations and incomes from heads of households, the information from parish and civil records for the period 1840-1870 with information of names and occupations and the records of personal taxes for the period 1869-70 with information of names and incomes. Using this information, we can obtain three cross sectional analyses for a group of locations that allow a diachronic comparison in the different dimensions of personal and regional inequality and polarisation. We will also use the extensive local information of the General Answers of the Ensenada Cadastre to analyse the causes of the different evolution in the long term of the measures for regional and local welfare. Finally, we will carry out a prosopographic analysis of a subsample of households identifying in parish records the descendants of the heads of households from the eighteenth century and the evolution of their families until we link them with the records of the nineteenth century. This will allow us to establish more precise hypotheses about the dynamics of households during the three periods.
Curated
Partially restricted

Community Connections in Board and Care Homes Serving Chronically Ill Adults in Ten States, 1993-1994 (ICPSR 6783)

Released/updated on: 2024-02-14
Geographic coverage: Oregon, United States, Illinois, Oklahoma, Texas, Kentucky, California, Georgia, Florida, Arkansas, New Jersey
Time period: 1993-01-01--1994-12-31
This study examined the implementation of regulations for board and care homes, and investigated formal and informal connections between these facilities and community health and social service agencies. To this end, board and care home inspectors were interviewed about their inspection practices. Inspectors were queried about the types and numbers of board and care homes inspected, frequency of inspections, consistency of regulations across types of board and care homes, proportion of time spent for initial inspections and inspections of homes already licensed, percent of time spent in specific inspection activities, areas used to determine compliance, frequently reported problems, which deficiencies inspectors consider serious, the use of inspection teams, participation of other agencies or specialists, who sees the inspection reports (e.g., agencies, departments, individuals, the public), number of license renewals and revocations, percent of last 50 homes in total compliance, number of complaint investigations in the last three months, percent of complaint reports substantiated, number of unlicensed homes in the area and type of action taken, and number of homes with social service or community-based health agency arrangements. Other variables include inspector's age, gender, education, occupation, and salary range for the current position.
Curated
Partially restricted

National Survey of Rural Physicians, 1993 (ICPSR 6848)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1993-01-01--1993-12-31
The purpose of this survey was to examine various dimensions of physician availability in rural areas and their impact on access to care. Rural physicians provided information on the characteristics of their current practice setting, such as type of practice arrangement (solo practice, owner/part owner of group practice, employed by another physician or group of physicians, employed by a hospital, community or migrant health center, HMO, or the federal government, or some other arrangement), number of physician and nonphysician personnel in the practice, and number of patient visits. Respondents supplied the number of hours spent providing patient care and traveling to provide care during the most recent complete work week, percentage of time spent providing primary care services, and the usual fee for an office visit for the evaluation and management of an established patient that required a detailed examination, medical decision-making of moderate complexity, and 25 minutes of time face-to-face with the patient (CPT code 99214). Additional topics covered whether the practice had a contract with a preferred provider organization (PPO), a capitated managed care plan such as a health maintenance organization (HMO), or an independent practice association (IPA), and the percentage of the practice's revenue that came from Medicaid, PPOs for privately insured patients, IPAs or HMOs for privately insured patients, and Medicare. The physicians were also asked about plans to expand or reduce their practice, the amount of debt from medical education they carried when they first went to work for the rural practice, and whether working at a rural practice fulfilled a service obligation in exchange for some or all of the debt from their medical education. Respondents' opinions were sought on their practice, the community in which it was located, and on health care reform. Other information gathered by the survey included location of the practice, the year the respondent first went to work for the practice, and the respondent's primary specialty, board certification(s), hospital admitting privileges, marital status, income, race, and Hispanic origin.
Curated
Partially restricted

Community Tracking Study Household Survey, 1998-1999, and Followback Survey, 1998-2000: [United States] (ICPSR 3199)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--2000-12-31
This collection comprises the second round of the Community Tracking Study (CTS) Household Survey and the second round of the CTS Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the Household Survey (COMMUNITY TRACKING STUDY HOUSEHOLD SURVEY, 1996-1997, AND FOLLOWBACK SURVEY, 1997-1998: [UNITED STATES] (ICPSR 2524)), the second round of the Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. The purpose of the Followback Survey was to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to the health plans and other organizations (managed care organizations, third-party administrators, employer or union plans, and employers) that offered or administered the respondents' comprehensive private health insurance policies. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
Curated
Partially restricted

Community Tracking Study Physician Survey, 1998-1999: [United States] (ICPSR 3267)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1998-01-01--1999-12-31

This study comprises the second round of the physician survey component of the Community Tracking Study (CTS) sponsored by the Robert Wood Johnson Foundation. The CTS is a national study designed to track changes in the American health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first round of the physician survey (COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597)), the second round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, views on care management strategies, and various other aspects of physicians' practice of medicine. In addition, primary care physicians (PCPs) were asked to recommend courses of action in response to some vignettes of clinical presentations for which there was no prescribed method of treatment.

Dataset 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site.

Dataset 4, the Physician Survey Summary File, contains site-level estimates and standard errors of the estimates for selected physician characteristics, e.g., the percentage of physicians who were foreign medical school graduates, the mean age of physicians, and the mean percentage of patient care practice revenue from Medicaid.

Curated
Partially restricted

Community Tracking Study Household Survey, 1996-1997, and Followback Survey, 1997-1998: [United States] (ICPSR 2524)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-07-01--1997-07-31, 1997-10-01--1998-08-31
This data collection comprises two components of the Community Tracking Study (CTS), the Household Survey and the Followback Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and their effects on care delivery and individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Household Survey was administered to households in the 60 CTS sites and to a supplemental national sample of households. At the beginning of each interview, a household informant was identified and queried about the composition of the household. With this information, individuals in the household were grouped into family insurance units (FIU). An FIU reflects family groupings typically used by insurance carriers. It includes an adult household member, his or her spouse, if any, and any dependent children 0-17 years of age (or 18-22 years of age if a full-time student). Family informants, selected from each FIU in the household, provided information on health insurance coverage, health care use, usual source of care, and the general health of all persons in the FIU. These informants also provided information on family income and out-of-pocket expenses for health care, as well as employment, race, and Hispanic origin for all adult FIU members. Each adult in the household, including the FIU informants, responded through a self-response module to questions regarding unmet health care needs, patient trust, satisfaction with physician choice, limitations in daily activities, smoking behaviors, and last doctor visit. In FIUs with more than one child under 18, only one child was randomly selected for inclusion in the survey. The family informant responded on behalf of the child regarding unmet needs and satisfaction with physician choice. The adult family member who took this child to his or her last doctor visit responded to questions about the visit. The Followback Survey was designed to obtain detailed information on private health insurance coverage reported in the Household Survey. It was administered to health plans and other organizations that offered or administered the comprehensive private health insurance policies covering Household Survey respondents in the 60 CTS sites. Information on private health insurance policies collected by the Followback Survey includes product type, gatekeeping, consumer cost sharing, provider payment methods, and coverage of mental health and/or substance abuse services.
Curated
Partially restricted

Community Tracking Study Physician Survey, 1996-1997: [United States] (ICPSR 2597)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 1996-08-01--1997-08-31
Sponsored by the Robert Wood Johnson Foundation, this survey is one component of the Community Tracking Study (CTS), a national study designed to track changes in the health care system and the effects of the changes on care delivery and on individuals. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The Physician Survey was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. Information gathered by the survey instrument includes physician supply and specialty distribution, practice arrangements and physician ownership of practices, sources of practice revenue, level and determinants of physician compensation, effects of care management strategies, and physicians' allocation of time, provision of charity care, career satisfaction, and perceptions of their ability to deliver care. For primary care physicians, the survey instrument also provided vignettes of various clinical presentations for which there was no prescribed method of treatment. These physicians were asked to indicate the percentage of patients for whom they would recommend the course of action specified in each particular vignette. Part 3, the Site and County Crosswalk Data File, describes which counties constitute each site. Part 4, the Physician Survey Summary File, contains site-level averages and percentages and standard errors of these estimates for selected attributes, e.g., the percentage of physicians who were foreign medical school graduates, average age of physicians, average percentage of patient care practice revenue from Medicaid, etc.
Curated
Partially restricted

Community Tracking Study Physician Survey, 2004-2005: [United States] (ICPSR 4584)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2004-01-01--2005-12-31
This is the fourth round of the physician survey component of the Community Tracking Study (CTS). The first round was conducted in 1996-1997 (ICPSR 2597), the second round in 1998-1999 (ICPSR 3267), and the third in 2000-2001 (ICPSR 3820). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the American health care system and their effects on people. As in the previous rounds, physicians were sampled in the 60 CTS sites: 51 metropolitan and 9 nonmetropolitan areas that were randomly selected to form the core of the CTS and to be representative of the nation as a whole. However, the fourth round lacks an independent supplemental national sample of physicians, which augmented the CTS site sample in the previous rounds. Information collected by the survey includes net income from the practice of medicine, year of birth, sex, race, Hispanic origin, year of graduation from medical school, specialty, board certification status, compensation model, patient mix (e.g., race/Hispanic origin of patients and percent with chronic conditions), career satisfaction, practice type, size, and ownership, percent of practice revenue from Medicare, Medicaid, or managed care, acceptance of new Medicaid and Medicare patients and, if applicable, reasons for not accepting them, use of information technology for care management, number of patient visits and hours worked in medically related activities during the last complete week of work, and the number of hours spent providing charity care in the last month. In addition, the survey elicited views on a number of issues such as patient-physician interactions, competition among practices, the influence of financial incentives on the quantity of services provided to patients, trends in the amount and quality of nursing support, one's ability to provide quality care and obtain needed services for patients, and the importance of various factors that may limit the quality of care. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the average percentage of patients with a formulary, and the percentage of physicians who said medical errors in hospitals are a minor problem.
Curated
Partially restricted

Community Tracking Study Household Survey, 2000-2001: [United States] (ICPSR 3764)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-12-31
This collection comprises the third round of the Community Tracking Study (CTS) Household Survey. The CTS, sponsored by the Robert Wood Johnson Foundation, is a national study designed to track changes in the health care system and the effects of those changes on people. Fifty-one metropolitan areas and nine nonmetropolitan areas were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the Household Survey (ICPSR 2524 and 3199), the third round was administered to households in the 60 CTS sites and to a supplemental national sample of households. Respondents provided information about household composition and demographic characteristics, health insurance coverage, use of health services, unmet health care needs, out-of-pocket expenses for health care, usual source of care, patient trust and satisfaction, last visit to a medical provider, health status and presence of chronic health conditions, risk behaviors and smoking, and employment, earnings, and income. A new set of sample design variables was added to the third round data for variance estimation by statistical software packages other than SUDAAN.
Curated
Partially restricted

Community Tracking Study Physician Survey, 2000-2001: [United States] (ICPSR 3820)

Released/updated on: 2024-02-14
Geographic coverage: United States
Time period: 2000-01-01--2001-12-31
This study comprises the third round of the physician survey component of the Community Tracking Study (CTS). Sponsored by the Robert Wood Johnson Foundation, the CTS is a large-scale investigation of changes in the health care system and their effects on people. Central to the design of the CTS is its community focus. Sixty sites (51 metropolitan areas and 9 nonmetropolitan areas) were randomly selected to form the core of the CTS and to be representative of the nation as a whole. As in the first two rounds of the physician survey, COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1996-1997: [UNITED STATES] (ICPSR 2597) and COMMUNITY TRACKING STUDY PHYSICIAN SURVEY, 1998-1999: [UNITED STATES] (ICPSR 3267), the third round was administered to physicians in the 60 CTS sites and to a supplemental national sample of physicians. The survey instrument collected information on physician supply and specialty distribution, practice arrangements and physician ownership of practices, physician time allocation, sources of practice revenue, level and determinants of physician compensation, provision of charity care, career satisfaction, physicians' perceptions of their ability to deliver care, effects of care management strategies, and various other aspects of physicians' practice of medicine. Part 3, the Site and County Crosswalk Data File, identifies the counties that constitute each CTS site. Part 4, Physician Survey Summary File, contains site-level estimates and standard errors for selected physician characteristics, e.g., the average age of physicians, the percentage of physicians who were either very or somewhat dissatisfied with their overall career in medicine, and the average percentage of patients with prescription coverage that included the use of a formulary.
Self-published

2018 Ghana Health Facility Survey Abortion Knowledge (ICPSR 197801)

Released/updated on: 2024-01-26
Geographic coverage: Ghana
Time period: 2018-01-01--2018-12-31
These data come from a 2018 study conducted in Ghana that uses Abortion Incidence Complications Methodology (AICM) to explore abortion incidence nationally and within each of Ghana’s three ecological zones. As one of the two surveys used for this study, the nationally representative Health Facilities Survey (HFS) looks at health facilities that can potentially provide abortion and/or post-abortion care, except for community-based health planning and services facilities and non-governmental organizations (NGOs). HFS interviews were conducted with a senior member of the health facility staff who was knowledgeable about their facility’s provision of abortion and/or post-abortion abortion care, including obstetrician-gynecologists, general practitioners, physician’s assistants, nurses, midwives, and administrators.   Information collected from the HFS includes facility type, location, number of beds available, services offered (labor and delivery, PAC, and contraceptive counseling), equipment and methods available (including methods used to provide PAC and family planning methods), number of patients receiving abortions or post-abortion care, and respondent training, background, knowledge, and perceptions, among others. The general information module included questions on knowledge of abortion legality, perceptions surrounding unintended pregnancy, and recommendations for reducing unsafe abortion. The dataset available in this public release contains a subset of the variables from the nationally representative HFS dataset. To better correspond with the paper that explores knowledge of abortion legality among providers[2], we retained relevant variables from the dataset including respondent training and background, respondent knowledge of abortion legality in Ghana, respondent perceptions surrounding unintended pregnancy, respondent recommendations for reducing unsafe abortion, and facility characteristics and information
Curated
Simple Crosstabs

Tanzania Abortion Incidence Study, 2012-2014 (ICPSR 38812)

Released/updated on: 2023-07-05
Geographic coverage: Tanzania
Time period: 2012-01-01--2014-12-31

Unsafe abortions account for roughly 13 percent of maternal deaths worldwide. In addition, millions of women suffer nonfatal health consequences of unsafe abortion every year. Information on unsafe abortion can be instrumental in helping policy makers and program planners identify measures needed to improve maternal health. Insufficient information at the country level perpetuates the invisibility of the problem of unsafe abortion and results in governments giving it little priority in policy decisions, service delivery or program implementation.

This project was the first-ever national study of the incidence of induced abortion and health consequences of unsafe abortion in Tanzania. The three-year project aimed to:

  • Provide evidence on the incidence of induced abortion in Tanzania, at the national and regional levels and by women's place of residence and economic status
  • Document the incidence of abortion complications
  • Document the methods and providers used to perform abortions in Tanzania
Curated
Partially restricted
Simple Crosstabs

ASTHO Profile Survey of State and Territorial Public Health, United States, 2012 (ICPSR 37823)

Released/updated on: 2022-06-08
Geographic coverage: Puerto Rico, United States, Marshall Islands, Guam, Virgin Islands of the United States, Northern Mariana Islands, Palau, Micronesia (Federated States)
Time period: 2012-10-01--2013-05-01

The 2012 ASTHO Profile Survey is a survey conducted by the Association of State and Territorial Health Officials (ASTHO) to gather information on state, territorial, and freely associated state public health agencies (S/THAs) and their activities, structure, and resources. The survey aims to define the scope of state and territorial public health services, identify variations in practice among public health agencies, and contribute to the development of best practices in governmental public health. The 121-question instrument was disseminated electronically in October 2012 and completed by senior deputies at each S/THA. The survey closed in May 2013; the response rate was 96 percent among the 50 states and D.C., and 92 percent among all states, territories, and freely associated states.

Changes may be made to the dataset after it is archived. Please contact [email protected] to request the most updated datasets. Additional information on the study can be found by visiting the ASTHO Profile Survey website.

Curated
Restricted

Colorectal Cancer (CRC) Screening and Somali Men, Minnesota, 2016-2017 (ICPSR 38312)

Released/updated on: 2022-02-15
Geographic coverage: United States, Minnesota
Time period: 2016-01-01--2017-12-31

The rate of cancer screening is generally increasing in the United States. In Minnesota, the statewide average rate of screening for colorectal cancer (CRC) is 73 percent. However, screening completion is relatively low among Somali men; overall, only 27 percent of Somali immigrants have been screened for CRC. Factors contributing to this disparity have not been well researched.

The purpose of this pilot study was to employ focus group methodology to describe and advance understanding of the barriers and enablers associated with CRC screening among Somali men ages 50-74 in Minnesota. Three focus groups were conducted among 27 Somali men in Minnesota. A 9-question, semi-structured interview guide was used. The sessions were audio recorded, transcribed verbatim, and checked for accuracy by research staff prior to data analysis. Three research team members utilized the constant comparative method and NVivo to conduct data analysis.

Five barriers to CRC screening emerged from the analyses:

  1. Lack of knowledge
  2. Emotional barriers
  3. Acculturation
  4. Accountability
  5. Fatalistic beliefs

In addition, two factors enabling CRC screening and prevention emerged: the need for tailored interventions and preventive lifestyle behaviors. The insights gained from this research will assist in developing health promotion and education-focused interventions that encourage Somali immigrants in Minnesota and beyond to seek early detection screening for CRC.

Self-published

Measuring service quality and satisfaction among patients accessing healthcare from the Public University Hospitals in Ghana (ICPSR 115201)

Released/updated on: 2019-10-27
Geographic coverage: Kumasi, Ashanti, Ghana
Time period: 2018-09-12--2019-02-20
The increasing burden of healthcare systems in most developing countries affects access to quality healthcare. The state of Quality Assurance in the Public University Hospitals remains questionable in these countries. This study investigates the level of patient satisfaction and its service quality predictors among patients accessing healthcare from the Public University Hospitals in Ghana. An empirical assessment survey using a pre-tested service quality (SERVQUAL) measurement scale was conducted among 439 patients who attended two major Public University Hospitals in Ghana. Data were obtained from patients on the five dimensions of perceived service quality including tangibles, reliability, responsiveness, assurance and empathy. Data were analysed using Stata software. Descriptive statistics and linear regression analysis were performed to identify the most defining service quality dimension of patient satisfaction. The study indicates adequate level of service satisfaction among patients accessing healthcare from the public university hospitals in Ghana, although ‘responsiveness’ was low. Therefore, the   management team of these hospitals must not underestimate the crucial role of staff in inspiring trust and confidence in their clients.
Curated
Simple Crosstabs

Primary Care Audit Study for 10 States in the United States, 2012-2013, 2014 & 2016 (ICPSR 36785)

Released/updated on: 2018-10-10
Geographic coverage: Oregon, Montana, Iowa, United States, Illinois, Texas, Massachusetts, Georgia, Arkansas, New Jersey, Pennsylvania
Time period: 2012-01-01--2013-12-31, 2014-01-01--2014-12-31, 2016-01-01--2016-12-31

Coverage expansion under the Affordable Care Act (ACA) has important implications for access, and the value of coverage is dependent on the ability to access care. Most information about access to care comes from household or physician surveys.

The current data collection was gathered as a part of the Primary Care Audit Study for 10 States in the United States, 2012-2013, 2014 and 2016 to assess variation in access to primary care using a methodology that was applied across different types of states (Arkansas, Georgia, Illinois, Iowa, Massachusetts, Montana, New Jersey, Oregon, Pennsylvania, and Texas) at baseline and over-time. The project was broken up into three phases: before the ACA (2012-2013), during the launch of ACA coverage provisions such as the Medicaid fee bump and ACA marketplaces (2014), and after the full ACA implementation (2016). Insurance types in the study included commercial coverage, Medicaid, uninsured, and, in 2014 and 2016, plans purchased on the ACA market place.

The audit-level file, featured in part one of the collection, includes all completed calls and provides information from multiple dimensions (appointment availability, wait times, simulated patients' demographics, cost information, etc.).

The office-level file, featured in part two of the collection, covers all eligible offices and their characteristics (e.g., size, insurance acceptability, cost information, etc.) collected from the screening phase.

Demographic variables include simulated caller number, race, gender, and age.

Curated
Simple Crosstabs

National Survey of Adolescents, 2004: Uganda (ICPSR 22411)

Released/updated on: 2018-07-09
Geographic coverage: Africa, Uganda, Sub-Saharan Africa
Time period: 2004-02-01--2004-07-31
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The Ugandan portion was administered between February and July 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 7,106 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. This process collected 6,659 individual interviews with adolescents. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired up by gender.
Curated
Simple Crosstabs

Eurobarometer 80.2: Climate Change, Agriculture, Healthcare, and Physical Activity, November-December 2013 (ICPSR 36627)

Released/updated on: 2017-05-12
Geographic coverage: Cyprus, Portugal, Malta, Greece, Netherlands, Sweden, Great Britain, Austria, Latvia, Luxembourg, Ireland, Poland, Slovenia, Slovakia, France, Bulgaria, Lithuania, Croatia, Romania, Hungary, Northern Ireland, Spain, Czech Republic, Belgium, European Union, Finland, Denmark, Italy, Germany, Estonia
Time period: 2013-11-02--2013-12-02

The Eurobarometer series is a unique cross-national and cross-temporal survey program conducted on behalf of the European Commission. These surveys regularly monitor public opinion in the European Union (EU) member countries and consist of standard modules and special topic modules. The standard modules address attitudes towards European unification, institutions and policies, measurements for general socio-political orientations, as well as respondent and household demographics. The special topic modules address such topics as agriculture, education, natural environment and resources, public health, public safety and crime, and science and technology.

This round of Eurobarometer surveys covered the following special topics: (1) Climate Change, (2) Agriculture, (3) Healthcare, and (4) Physical Activity. Respondents' opinions were collected regarding how serious an issue they considered climate change, who within the EU is responsible for addressing it, and what personal actions they have taken to fight climate change. Respondents were also questioned about the importance of agriculture in the EU, their opinions on agricultural policies such as the Common Agricultural Policy (CAP), the role of farmers in the EU, and the labeling of the place of origin for meat and dairy products. Additional questions were asked regarding patient safety, the quality of health care in the respondent's country compared to other countries, information sources used to assess the quality of hospitals, if the respondent or a family member had a surgical procedure, and whether the respondent or a family member experienced an adverse event when receiving health care. Lastly, respondents were queried about their level of physical activity, including how often and how vigorously they participated in activities, their opinions of exercise, how much time they spend sitting on an average day, any issues that prevent them from being physically active, and whether they volunteer in sporting activities.

Demographic and other background information collected includes age, gender, nationality, marital status, occupation, age when stopped full-time education, household composition, ownership of various goods, difficulties in paying bills, level in society, and Internet use. In addition, country-specific data includes type and size of locality, region of residence, and language of interview (select countries).

Curated
Simple Crosstabs

Ghana Population, Consumption and Environment (PCE) Survey, 2002 (ICPSR 34830)

Released/updated on: 2016-07-05
Geographic coverage: Africa, Ghana, Global
Time period: 2002-01-01--2002-12-31
The Ghana Population, Consumption, and Environment Survey (or Ghana-PCE Survey) was conducted in 2002 in collaboration with investigators at the University of Science and Technology (Kumasi) and the University of Cape Coast. The survey was designed to examine the social and demographic processes that are closely linked to health and environmental health risks, and how these in turn influence local thinking about environmental issues. The 2002 Ghana-PCE Survey collected information on women's birth histories (birth dataset), occupations and events over the respondent's lifetime (men's and women's calendar datasets), and the health of respondents' children who were at or under 6 years of age (children dataset). Additionally, information was collected on the availability of services such as electricity and drinking water, economic conditions, and perceived necessity of developmental programs (community dataset), as well as the availability of services such as waste disposal, the size of households, and the materials used in construction of houses (household dataset). Respondents' were also asked about voting behavior, community organization membership, public health practices, knowledge of illnesses in children, prevention and treatment of diseases, family planning, and environmental attitudes and awareness (individual dataset). Demographic information collected includes age, sex, occupation, birth region, languages spoken, ethnicity, marital status, residence ownership, religion, and education.
Curated
Simple Crosstabs

CBS News Blitz Poll, May #2, 2014 (ICPSR 36199)

Released/updated on: 2015-12-14
Geographic coverage: United States
Time period: 2014-05-01--2014-05-31
This poll, the last of two fielded in May 2014, is part of a continuing series of monthly surveys that solicits public opinion on a range of political and social issues. This poll focused on Veterans Administration (VA) medical facilities. Respondents were asked about their overall opinions of VA, of VA medical facilities, and of how Barack Obama has handled problems at VA medical facilities. Further questions asked who should be held responsible for VA medical facilities problems, and whether Eric Shinseki should resign the Secretary of Veteran Affairs. Demographic information includes sex, age, race, marital status, education level, household income, veteran status, political party affiliation, numbers of cell phones owned, and state of residency.
Curated
Simple Crosstabs

Afrobarometer Round 5: The Quality of Democracy and Governance in Côte d'Ivoire, 2013 (ICPSR 35542)

Released/updated on: 2015-10-23
Geographic coverage: Africa, Ivory Coast, Global, Sub-Saharan Africa
Time period: 2013-03-11--2013-03-26
The Afrobarometer is a comparative series of public attitude surveys that collects and disseminates data regarding Africans' views on democracy, governance, the economy, civil society, and related issues. This particular data collection was concerned with the attitudes and opinions of the citizens of Côte d'Ivoire, and includes a number of questions about reconciliation, international relations, and development, designed specifically for the Côte d'Ivoire survey. The data are collected from a nationally representative sample in face-to-face interviews in the language of the respondent's choice. Standard topics for the Afrobarometer include attitudes toward and evaluations of democracy, governance and economic conditions, political participation, national identity, and social capital. In addition, Round 5 surveys include special modules on taxation; gender issues; crime, conflict and insecurity; globalization; and social service delivery. The surveys also collect a large set of socio-demographic indicators such as age, gender, education level, poverty level, language and ethnicity, and religious affiliation, as well as political party affiliation. Afrobarometer Round 5 surveys were implemented in 35 countries.
External data

Testing and Counseling for HIV: A Multi-site Study (ICPSR 35925)

Released/updated on: 2015-06-03
Geographic coverage: United States
This project collects data based on interviews with health providers, with clients of testing services, and with non-users of services towards testing and disclosure for HIV, as well as on observations at study sites. Data are collected at health facilities to investigate the factors that hinder or facilitate uptake testing and counseling (T&C) for HIV in different settings.
Curated
Simple Crosstabs

Afrobarometer Round 5: The Quality of Democracy and Governance in Liberia, 2012 (ICPSR 35552)

Released/updated on: 2015-03-12
Geographic coverage: Liberia, Africa, Global, Sub-Saharan Africa
Time period: 2012-06-25--2012-07-25
The Afrobarometer is a comparative series of public attitude surveys that collects and disseminates data regarding Africans' views on democracy, governance, the economy, civil society, and related issues. This particular data collection was concerned with the attitudes and opinions of the citizens of Liberia, and includes a number of questions related to campaigns, conflict, resolution, and other "country-specific topics" designed specifically for the Liberia survey. The data are collected from nationally representative samples in face-to-face interviews in the language of the respondent's choice. Standard topics for the Afrobarometer include attitudes toward and evaluations of democracy, governance and economic conditions, political participation, national identity, and social capital. In addition, Round 5 surveys included special modules on taxation; gender issues; crime, conflict and insecurity; globalization; and social service delivery. The surveys also collect a large set of socio-demographic indicators such as age, gender, education level, poverty level, language and ethnicity, and religious affiliation, as well as political party affiliation. Afrobarometer Round 5 surveys were implemented in 35 countries.
Curated
Simple Crosstabs

Afrobarometer Round 5: The Quality of Democracy and Governance in Ghana, 2012 (ICPSR 35548)

Released/updated on: 2015-03-02
Geographic coverage: Africa, Ghana, Global, Sub-Saharan Africa
Time period: 2012-05-08--2012-05-27
The Afrobarometer is a comparative series of public attitude surveys that collects and disseminates data regarding Africans' views on democracy, governance, the economy, civil society, and related issues. The data are collected from nationally representative samples in face-to-face interviews in the language of the respondent's choice. Standard topics for the Afrobarometer include attitudes toward and evaluations of democracy, governance and economic conditions, political participation, national identity, and social capital. In addition, Round 5 surveys included special modules on taxation; gender issues; crime, conflict and insecurity; globalization; and social service delivery. The surveys also collect a large set of socio-demographic indicators such as age, gender, education level, poverty level, language and ethnicity, and religious affiliation, as well as political party affiliation. Afrobarometer Round 5 surveys were implemented in 35 countries. This particular data collection was concerned with the attitudes and opinions of the citizens of Ghana, and also includes a number of "country-specific questions," many of which are oil-related, designed specifically for the Ghana survey.
Curated
Simple Crosstabs

Puerto Rican Elderly: Health Conditions (PREHCO) Project, 2002-2003, 2006-2007 (ICPSR 34596)

Released/updated on: 2013-09-13
Geographic coverage: Puerto Rico, United States
Time period: 2002-01-01--2007-12-31
The Puerto Rican Elderly: Health Conditions (PREHCO) study investigates issues affecting the elderly (individuals over 60 years of age) population in Puerto Rico: health status, housing arrangements, functional status, transfers, labor history, migration, income, childhood characteristics, health insurance, use of health services, marital history, mistreat, sexuality, etc. It is an island-wide, longitudinal sample survey of target individuals and their spouses with two waves of data collection: 2002-2003 and 2006-2007.
Curated
Simple Crosstabs

Behavioral Risk Factor Surveillance System (BRFSS), 2003 (ICPSR 34085)

Released/updated on: 2013-08-05
Geographic coverage: Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, Kansas, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland
Time period: 2003-01-01--2003-12-31
The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodologic assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies.
Curated

Behavioral Risk Factor Surveillance System (BRFSS) Asthma Call-Back Survey, 2009 (ICPSR 34300)

Released/updated on: 2012-08-09
Geographic coverage: North Carolina, Oregon, Vermont, Puerto Rico, Indiana, United States, Oklahoma, Maine, Utah, Washington, Nebraska, West Virginia, Massachusetts, North Dakota, Wisconsin, Arizona, Nevada, District of Columbia, Rhode Island, Montana, Hawaii, California, Kansas, Florida, New York (state), New Jersey, Michigan, Iowa, New Mexico, Illinois, Texas, Connecticut, New Hampshire, Louisiana, Ohio, Georgia, Virginia, Maryland
Time period: 2009-01-01--2009-12-31

Asthma is one of the nation's most common and costly chronic conditions, affecting over 38 million Americans at some time in their lives. Managing asthma requires a long term, multifaceted approach, including patient education, behavior changes, asthma trigger avoidance, pharmacological therapy, and frequent medical follow-up. This study provides asthma data available at the state and local level to direct and evaluate interventions undertaken by asthma control programs located in the state health departments. Improved tracking for asthma is critical for planning and evaluating efforts to reduce the health burden from the disease.

The Behavioral Risk Factor Surveillance System (BRFSS) is a state-based system of health surveys that collects information on health risk behaviors, preventive health practices, and health care access primarily related to chronic disease and injury. For many states, the BRFSS is the only available source of timely, accurate data on health-related behaviors. BRFSS was established in 1984 by the Centers for Disease Control and Prevention (CDC); currently data are collected monthly in all 50 states, the District of Columbia, Puerto Rico, the United States Virgin Islands, and Guam. More than 350,000 adults are interviewed each year, making the BRFSS the largest telephone health survey in the world. States use BRFSS data to identify emerging health problems, establish and track health objectives, and develop and evaluate public health policies and programs. The BRFSS is a cross-sectional telephone survey conducted by state health departments with technical and methodological assistance provided by CDC. States conduct monthly telephone surveillance using a standardized questionnaire to determine the distribution of risk behaviors and health practices among adults. Responses are forwarded to CDC, where the monthly data are aggregated for each state, returned with standard tabulations, and published at the year's end by each state. The BRFSS questionnaire was developed jointly by CDC's Behavioral Surveillance Branch (BSB) and the states. Data derived from the questionnaire provide health departments, public health officials, and policymakers with necessary behavioral information. When combined with mortality and morbidity statistics, these data enable public health officials to establish policies and priorities and to initiate and assess health promotion strategies. Demographic variables include race, age, sex, education level, marital status, employment status, and income level.

Curated
Partially restricted

Health Tracking Household Survey, 2010 [United States] (ICPSR 34141)

Released/updated on: 2012-08-09
Geographic coverage: United States
Time period: 2010-04-01--2011-03-31

This is the second survey in the Health Tracking Household Survey (HTHS) series, the successor to the Community Tracking Study (CTS) Household Surveys. The CTS Household Surveys were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216), and the first HTHS survey was conducted in 2007 (ICPSR 26001). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the previous surveys, this survey collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, and adult chronic conditions. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.

At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, usual source of care, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.

External data

Area Health Resources Files (ICPSR 34043)

Released/updated on: 2012-05-15
Geographic coverage: United States
The Area Resource File (ARF) is a health resource information database containing more than 6,000 variables for each of the nation's counties. ARF contains information on health facilities, health professions, measures of resource scarcity, health status, economic activity, health training programs, and socioeconomic and environmental characteristics.
External data

Healthcare Cost and Utilization Project (HCUP) (ICPSR 33982)

Released/updated on: 2012-05-10
Geographic coverage: United States
The Healthcare Cost and Utilization Project (HCUP, pronounced "H-CUP") is a family of healthcare databases and related software tools and products developed through a Federal-State-Industry partnership and sponsored by the Agency for Healthcare Research and Quality (AHRQ). HCUP databases bring together the data collection efforts of state data organizations, private data organizations, and the federal government to create a national information resource of patient-level health care data. HCUP includes the largest collection of longitudinal hospital care dta in the United States, with all-payer, encounter-level information beginning in 1988. These databases enable research on a broad range of health policy issues, including cost and quality of health services, medical practice patterns, access to health care programs, and outcomes of treatments at the national, state, and local market levels.
Curated
Partially restricted

Stigma and Tuberculosis in Haitian Populations: A cross-national study of the impact of stigma on patient experience and clinical outcomes in Haiti and the United States, 2003-2008 (ICPSR 30521)

Released/updated on: 2012-05-09
Geographic coverage: Haiti, United States, Florida, Tampa
Time period: 2003-01-01--2008-12-31
Tuberculosis (TB) is a public health problem of global magnitude. In the United States its victims are primarily the poor, foreign immigrants, and persons with AIDS. Efforts to control the disease are severely handicapped by the effects of social stigma and further compounded by issues of race, social class, ethnic stereotypes, immigrant status, and HIV coinfection. The study investigated the social dynamics of stigma in relation to TB in two populations particularly affected by all of these issues, Haitians in the United States and in Haiti. The theoretical framework of the study was cultural epidemiology, which combines quantitative and qualitative measures to study experience, meaning, and behavior in subpopulations of interest. The study design enabled important comparisons across national settings that highlight the differential effects of political-economic context, differences in stigma dynamics for active disease compared to latent infection, and measured the impact of stigma on adherence to preventive therapy. Study components included an ethnography of TB stigma, a cross-cultural epidemiologic study, and a community trial of adherence to preventive therapy. Study sites were South Florida, United States, and Leogane, Haiti. The study aimed to investigate: (1) differences in the degree and components of stigma across different sociocultural settings and comparison groups (community members, health care providers, patients); (2) differential stigma effects in a public vs. private, culturally competent clinic; (3) correlates of TB-related stigma; and (4) the influence of perceived stigma on adherence to latent tuberculosis therapy. Data were collected between 2003-2006 in three phases: Phase I Ethnographic Research; Phase II Cultural Epidemiologic Study; and Phase III Adherence Study. A total of 768 persons were interviewed, including 408 women (53 percent) and 360 men (47 percent). All study aims were completed with the exception of No. 2, which was not possible due to the closure of the Haitian Community Clinic in South Florida. The study consists of data from community, patient, and provider interviews. Demographic variables include sex, age, primary language, education level, employment status, marital status, and religion.
Curated
Partially restricted

Practice Patterns of Young Physicians, 1987: [United States] (ICPSR 9277)

Released/updated on: 2012-01-11
Geographic coverage: United States
Time period: 1987-04-09--1987-11-21

This study investigated the factors that influenced the career decisions of young physicians and the characteristics of their practices. The collection has five datasets: Public-Use Version of the Young Physicians Survey (Dataset 1), Socioeconomic Monitoring System Study (Dataset 2), ZIP Code Data (Dataset 3), Verbatim Responses to the Open-Ended Questions (Dataset 4), and Restricted-Use Version of the Young Physicians Survey (Dataset 5).

The Public-Use Version of the Young Physicians Survey comprises responses from the Young Physicians Survey (YPS), plus merged data from the American Medical Association (AMA) Masterfile and the Association of American Medical Colleges' Student and Applicant Information Management System (SAIMS) database. The YPS interviewed physicians below 40 years of age who recently completed graduate medical training and were in their early years of practice. These physicians were queried about their graduate medical training, perceptions of the medical profession, current practice arrangements, career decisions, family background, patient care activities, and current income and expenses. To obtain information on current practice arrangements, respondents were questioned about the practices they worked in, including who owned the practices, the number of physicians in each practice, specialties or subspecialties practiced, usual fees for selected services, percentages of revenues from HMOs, PPOs, and IPAs, and percentages of patients who were Medicare patients, had no health insurance coverage, or were poor, Black, Hispanic, severely physically disabled, or chronically mentally ill. Questions on career decisions asked respondents about factors that influenced their career choices, such as reasons for working in multiple practices, reasons for leaving past practices, and reasons for deciding in favor of or against self-employment. Information on family background elicited by the survey includes the respondent's race, marital status, and educational debt, parents' income class and education, number of children living in the respondent's home, and whether the respondent's spouse or parents were physicians. Questions on patient care activities included questions on the number of hours spent providing uncompensated health care to the poor, and the number of hours spent with patients in a variety of settings, such as the office, emergency rooms, hospital outpatient clinics, and operating rooms. Information from the AMA Masterfile and the SAIMS database includes board certification status, AMA membership, school and year of graduation, Medical College Admission Test scores, primary undergraduate institution, most recent grade point averages, place of birth, number of acceptances to United States medical schools, parents' occupations, preferred medical specialty, and preferred practice setting.

Dataset 2 comprises responses from the AMA's Socioeconomic Monitoring System (SMS), a semiannual survey of nonfederal physicians that collected data on topics similar to those in the YPS, such as practice ownership, hours spent seeing patients in various settings, income, expenses, and opinions on practice procedures. The SMS data can be used for comparative analyses of young, prime, and senior physicians.

The ZIP Code Data contain estimates for the composition of the population residing in the ZIP code areas of the YPS respondents' main practices. This includes estimates of the size of each ZIP code area population, as well as its components with respect to gender, age, race, Hispanic ethnicity, and income. Also included are estimates of the number of physicians and their composition with respect to age, sex, practice type, and specialty.

Dataset 4 contains verbatim responses to open-ended questions asked in the YPS.

The Restricted-Use Version of the Young Physicians Survey is the same as the Public-Use Version of the Young Physicians Survey, except for some variables that were restricted from general dissemination for reasons of confidentiality. The restricted-use version includes the restricted variables, but the public-use version does not.

Curated

Border Contraceptive Access Study, El Paso, Texas 2005-2008 (ICPSR 32561)

Released/updated on: 2011-11-07
Geographic coverage: El Paso, Ciudad Juarez, United States, Texas, Mexico, Chihuahua
Time period: 2005-01-01--2008-12-31

Oral contraceptive (OC) users living in El Paso, Texas were interviewed to assess motivations for patronizing a United States clinic or a Mexican pharmacy with over-the-counter (OTC) pills and to determine which women were likely to use the OTC option. The experiences of OC users who obtained their contraception from Mexican pharmacies were compared with those of women who obtained their pills from family planning clinics in El Paso, Texas, where eligible low-income women often pay nothing. 532 clinic users and 514 pharmacy users were surveyed about background characteristics, motivations for choosing their oral contraception source, and satisfaction with this source. For more information, please see the Border Contraceptive Access Study website.

Curated
Partially restricted

Health Tracking Household Survey, 2007 [United States] (ICPSR 26001)

Released/updated on: 2011-04-15
Geographic coverage: United States
Time period: 2007-01-01--2007-12-31

The 2007 Health Tracking Household Survey (HTHS) is the successor to the Community Tracking Study (CTS) Household Surveys which were conducted in 1996-1997 (ICPSR 2524), 1998-1999 (ICPSR 3199), 2000-2001 (ICPSR 3764), and 2003 (ICPSR 4216). Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care.

At the beginning of the interview, a household informant provided information about the composition of the household which was used to group the household members into family insurance units (FIU). Each FIU comprised an adult household member, his or her spouse or domestic partner (same sex and other unmarried partners), if any, and any dependent children 0-17 years of age or 18-22 years of age if a full-time student (even if living outside the household). In each FIU in the household, a FIU informant provided information on insurance coverage, health care use, usual source of care, and general health status of all FIU members. This informant also provided information on family income as well as employment, earnings, employer-offered insurance plans, and race/ethnicity for all adult FIU members. Moreover, every adult in each FIU (including the FIU informant) responded through a self-response module to questions that could not be answered reliably by proxy respondents, such as questions about unmet needs, assessments of the quality of care, consumer engagement, satisfaction with physician choice, use of health information, health care shopping, and detailed health questions. The FIU informants responded on behalf of children regarding unmet needs, satisfaction with physician choice, and use of health care information.

Curated

National Hospital Discharge Survey, 2008 (ICPSR 30182)

Released/updated on: 2011-02-01
Geographic coverage: United States
Time period: 2008-01-01--2008-12-31
The 2008 National Hospital Discharge Survey (NHDS) collects medical and demographic information annually from a sample of hospital discharge records. Variables include patients' demographic characteristics (sex, age, race, marital status), date of discharge, source and type of admission, status at discharge, final diagnoses, surgical and nonsurgical procedures, dates of surgeries, and sources of payment. Information on hospital characteristics such as bed size, ownership, and region of the country is also included. The medical information is coded using the INTERNATIONAL CLASSIFICATION OF DISEASES, 9TH REVISION, CLINICAL MODIFICATION (ICD-9-CM).
Curated

National Survey of Ambulatory Surgery: 1994, 1995, 1996, and 2006 (ICPSR 27461)

Released/updated on: 2011-01-18
Geographic coverage: United States
Time period: 1994-01-01--1994-12-31, 1995-01-01--1995-12-31, 1996-01-01--1996-12-31, 2006-01-01--2006-12-31
The National Survey of Ambulatory Surgery (NSAS) was first conducted during the years 1994, 1995, and 1996 in response to the dramatic increase in the number of ambulatory surgery centers during the 1980's and early 1990's. The purpose of the first three years of the NSAS was to collect data on ambulatory (outpatient) surgery procedures performed in hospitals and free-standing ambulatory surgery centers in the United States. General demographic data pertaining to age, sex, and race were collected. Additionally, the 1994-1996 NSAS collected data on hospital diagnoses, outpatient procedures, the type of anesthesia used during the aforementioned outpatient procedures, and the payment methods for the procedures. Following a ten year hiatus, the NSAS was once again conducted in 2006. This iteration of the survey expands on the previous years' data collections. Like the 1994-1996 NSAS, the 2006 NSAS collected general demographic information on age and sex along with data on hospital diagnoses, outpatient procedures, and the type of anesthesia used during outpatient procedures. The 2006 NSAS collected additional data on patient symptoms, types of insurance, various time measures related to the medical procedures, and multiple measures pertaining to the status and health of the patients.
Curated

National Health Interview Survey, 1974: Medical Care Supplement (ICPSR 9797)

Released/updated on: 2010-11-29
Geographic coverage: United States
Time period: 1974-01-01--1974-12-31
The purpose of the National Health Interview Survey (NHIS) is to obtain information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the types of health services people receive. The 1974 Medical Care Supplement File provides variables from the core Person File (see HEALTH INTERVIEW SURVEY, 1974 [ICPSR 8339]) including sex, age, race, marital status, veteran status, education, income, industry and occupation codes, and limits on activity. The variables unique to this Medical Care Supplement (Part 1) include items on type of doctor visits (private vs. group practice), place of care, number of doctor visits in the last 12 months, type of doctor usually seen, payment source for doctor bills, problems getting care in the past year, and type of medical services received in the last twelve months.
Curated

Eurobarometer 67.3: Health Care Service, Undeclared Work, EU Relations With Its Neighbor Countries, and Development Aid, May-June 2007 (ICPSR 21521)

Released/updated on: 2010-06-29
Geographic coverage: Cyprus, Portugal, Global, Malta, Greece, Netherlands, Sweden, Austria, Latvia, Luxembourg, Ireland, Poland, Slovenia, Slovakia, France, Bulgaria, Lithuania, Croatia, Romania, Hungary, Europe, United Kingdom, Spain, Czech Republic, Turkey, Belgium, Finland, Denmark, Italy, Germany, Estonia
Time period: 2007-05-25--2007-06-27
This round of Eurobarometer surveys diverged from the Standard Eurobarometer measure and queried respondents on (1) health, long term care, and the dependent elderly (2) undeclared work, (3) the European Union's (EU) relationship with neighboring countries, and development aid, and (4) euro coins. For the first special topic, respondents were asked to assess their health status, life expectancy, whether they have significant impairment in participating in certain activities of daily living, and their experience with health care services, including access and cost. In addition, respondents were asked to identify persons in need of long term care, to provide their opinion and experiences in the planning and provision of long term care for the elderly, including the health care costs, and to evaluate the risk that dependent elders are being exposed to abuse and need for future personal care requirements. The second special topic, undeclared work, respondents were asked to identify their knowledge of persons who work without declaring income to tax or social security institutions, and the characteristics and reasons of those who would most likely do so. Respondents also evaluated the risk of being detected in not declaring income for which supplementary bills or fines may be issued, and sanctions expected to be implemented by authorities in response to a certain amount of income that is undeclared. The survey also queried respondents about services and goods acquired from an individual or group associated with undeclared work, and undeclared payment received from their employer and portion of gross yearly income this comprises, and their opinion about these practices. In addition, respondents identified the type and frequency of undeclared work in which they participated, amount of income received for this work, and the reasons this work was completed and for whom, and consequences in working undeclared. In addition, respondents assessed the legitimacy of certain behaviors pertaining to public and private economic transactions. As the next special topic, the survey examines respondents' knowledge of which countries currently plan to join the EU, which countries neighbor the EU, the European Neighborhood policy, and obtaining information about developmental aid. Pertaining to this policy, respondents were asked to assess the relationship between the EU and neighboring countries, and the importance of issues which would affect this relationship, including providing economic assistance. Respondents provided their opinion in regard to developmental aid the EU provides to the poor, the efficiency of providing aid through each member state or the European Commission, which donor provides the most aid to developing countries, and priorities for the EU in disbursing developmental aid. For the final special topic, respondents were asked about their knowledge of the sides of euro coins, to identify the genuineness and value of particular coins, to describe their experiences in accepting a fake, or a non-euro coin or coin-like object, and their opinion in regard to the national sides of the coins which differ among each country in the EU. Demographic and other background information includes respondent's age, estimate of life expectancy, gender, nationality, origin of birth (personal and parental), marital status, left-to-right political self-placement, occupation, age when stopped full-time education, household composition, ownership of a fixed or a mobile telephone and other durable goods, type and size of locality, region of residence, and language of interview (select countries). Respondents were also queried about their family size, including the number of children birthed, ages of their mother and father, and the housing situation for their child or parent, including distance from respondent. The survey also collected information such as the job sector in which the respondent currently works, number employed by respondent's employer, gross income, and hours worked per week at formal employment.
Curated

National Hospital Discharge Survey, 2007 (ICPSR 28162)

Released/updated on: 2010-05-19
Geographic coverage: United States
Time period: 2007-01-01--2007-12-31
The 2007 National Hospital Discharge Survey (NHDS) collects medical and demographic information annually from a sample of hospital discharge records. Variables include patients' demographic characteristics (sex, age, race, marital status), dates of admission and discharge, source and type of admission, status at discharge, final diagnoses, surgical and nonsurgical procedures, dates of surgeries, and sources of payment. Information on hospital characteristics such as bed size, ownership, and region of the country is also included. The medical information is coded using the INTERNATIONAL CLASSIFICATION OF DISEASES, 9TH REVISION, CLINICAL MODIFICATION (ICD-9-CM).
Curated

Inventory of Long-Term Care Places, 1986 (ICPSR 9169)

Released/updated on: 2009-12-22
Geographic coverage: United States
Time period: 1986-01-01--1986-12-31
The purpose of this data collection was to provide a current sampling frame for two portions--nursing and related-care homes and facilities for the mentally retarded--of the Institutional Population Component of the 1987 National Medical Expenditure Survey. Data include type of ownership of facility, number of beds, age group served, types of persons served, and descriptions of facilities (i.e., skilled nursing home, intermediate care facility, licensed but not certified nursing home, long-term care wing/unit of a licensed hospital, related care facility, and foster home).
Curated

National Hospital Discharge Survey, 1979-2006: Multi-Year Public Use File (ICPSR 24281)

Released/updated on: 2009-01-28
Geographic coverage: United States
Time period: 1979-01-01--2006-12-31
The National Hospital Discharge Survey (NHDS) collects medical and demographic information annually from a sample of hospital discharge records. Variables include patients' demographic characteristics (sex, age, race, marital status), dates of admission and discharge, source and type of admission, status at discharge, final diagnoses, surgical and nonsurgical procedures, dates of surgeries, and sources of payment. Information on hospital characteristics such as bed size, ownership, and region of the country is also included. This collection includes data for non-newborns for 1979-1989 (Dataset 1), non-newborns for 1990-2006 (Dataset 2) and newborns for 1979-2006 (Dataset 3). The medical information is coded using the INTERNATIONAL CLASSIFICATION OF DISEASES, 9TH REVISION, CLINICAL MODIFICATION (ICD-9-CM). In addition, there are several Excel files that contain information needed to calculate relative standard errors (RSEs) and to compute utilization rates based on Census population estimates (POPs).
Curated

National Hospital Discharge Survey: 1979, 1980, and 1981 (ICPSR 8600)

Released/updated on: 2009-01-22
Geographic coverage: United States
Time period: 1978-01-01--1981-12-31
The National Hospital Discharge Survey provides data on the utilization of nonfederal short-stay hospitals. It is a continuous survey based on a sample of medical records of patients discharged from a national sample of these hospitals. The survey contains information on the patients' demographic characteristics (sex, date of birth, age, race, and marital status), dates of admission and discharge, discharge status, diagnoses, and surgery performed.
Curated

National Hospital Discharge Survey, 2006 (ICPSR 22745)

Released/updated on: 2008-10-23
Geographic coverage: United States
Time period: 2006-01-01--2006-12-31
The 2006 National Hospital Discharge Survey (NHDS) collects medical and demographic information annually from a sample of hospital discharge records. Variables include patients' demographic characteristics (sex, age, race, marital status), dates of admission and discharge, source and type of admission, status at discharge, final diagnoses, surgical and nonsurgical procedures, dates of surgeries, and sources of payment. Information on hospital characteristics such as bedsize, ownership, and region of the country is also included. The medical information is coded using the INTERNATIONAL CLASSIFICATION OF DISEASES, 9TH REVISION, CLINICAL MODIFICATION (ICD-9-CM).
Curated

National Survey of Adolescents, 2004: Burkina Faso (ICPSR 22408)

Released/updated on: 2008-07-24
Geographic coverage: Burkina Faso, Africa, Sub-Saharan Africa
Time period: 2004-04-01--2004-06-30
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The survey in Burkina Faso was administered between April and June 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 5,400 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. This process collected 6,489 individual interviews with adolescents. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired by gender.
Curated

National Survey of Adolescents, 2004: Ghana (ICPSR 22409)

Released/updated on: 2008-07-24
Geographic coverage: Africa, Ghana, Sub-Saharan Africa
Time period: 2004-01-01--2004-05-31
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, and economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The Ghanian portion was administered between January and May 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 9,445 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. This process collected 4,430 individual interviews with adolescents. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired up by gender.
Curated

National Survey of Adolescents, 2004: Malawi (ICPSR 22410)

Released/updated on: 2008-07-24
Geographic coverage: Malawi, Africa, Sub-Saharan Africa
Time period: 2004-03-01--2004-08-31
The National Survey Adolescents was launched in 2004 in four Sub-Saharan African countries--Burkina Faso, Ghana, Malawi, and Uganda--to provide detailed information on adolescent risk-taking and health-seeking behavior as related to HIV, STDs and unintended pregnancy. The study examined a range of factors (e.g., behavioral, sociocultural, economic) that could lead to increased vulnerability to risk. The study also encompassed knowledge of means of prevention, sources of trusted information and health care, and impediments to adolescents' abilities to apply their knowledge and take preventive action. The survey in Malawi was administered between March and June 2004 and again in August 2004. Using a two-stage stratified sample design that selected households from rural and urban clusters, 7,750 households were listed for initial screening. After an initial interview in each household, individual surveys were administered in person to adolescents between the ages of 12 and 19 who were de facto or de jure members of the household. However, during the initial data collection period this process collected only 3,448 individual interviews with adolescents. Consequently, in August 2004, researchers extended the surveys to additional clusters excluded during the first round of surveys bringing the total number of individuals to 4,879. Because of the sensitive nature of questions administered in the survey, informed consent forms were obtained from both parents/guardians and the respondents, and in all possible instances interviewers and respondents were paired up by gender.
Curated

National School Health Services Program Evaluation, 1981-1982 (ICPSR 8302)

Released/updated on: 2008-06-03
Geographic coverage: United States
Time period: 1981-01-01--1982-12-31
The National School Health Services Program Evaluation documents the nature and scope of a wide range of health services provided to school-age children by by nurse practitioners, school health nurses, physicians, and health aides. The information provided by this collection includes: (1) records of communications between educators, health professionals, and parents, (2) the type, severity, and disposition of problems treated at schools (plus referral sources and the types of health care professionals involved), (3) nurse practitioners' findings from medical histories and physical examinations of students, and (4) data on individual health care episodes at the schools, including unresolved problems. Information supplied by a survey of parents of children in participating schools includes data on health care sources and expenses for the child, plus data on specific medical problems and treatment. Basic demographic characteristics such as the sex and race of the child, parents' educational background, and family income are also provided.
Curated

National Hospital Discharge Survey, 2005 (ICPSR 20380)

Released/updated on: 2007-12-13
Geographic coverage: United States
Time period: 2005-01-01--2005-12-31
The 2005 National Hospital Discharge Survey (NHDS) collects medical and demographic information annually from a sample of hospital discharge records. Variables include patients' demographic characteristics (sex, age, race, marital status), dates of admission and discharge, source and type of admission, status at discharge, final diagnoses, surgical and nonsurgical procedures, dates of surgeries, and sources of payment. Information on hospital characteristics such as bedsize, ownership, and region of the country is also included. The medical information is coded using the INTERNATIONAL CLASSIFICATION OF DISEASES, 9TH REVISION, CLINICAL MODIFICATION (ICD-9-CM).
Curated
Partially restricted

Community Tracking Study Household Survey, 2003: [United States] (ICPSR 4216)

Released/updated on: 2007-12-03
Geographic coverage: United States
Time period: 2003-01-01--2004-12-31
This collection contains data and documentation for the fourth round of the Community Tracking Study (CTS) Household Survey. Sponsored by the Robert Wood Johnson Foundation, the CTS is a national study designed to track changes in the United States' health care system and their effects. The fourth round was administered to households in the 60 CTS sites: 51 metropolitan areas and nine nonmetropolitan areas which were randomly selected to form the core of the CTS and to be representative of the nation as a whole. The first round of the CTS Household Survey was conducted in 1996-1997 (ICPSR 2524), the second round in 1998-1999 (ICPSR 3199), and the third in 2000-2001 (ICPSR 3764). Respondents to the fourth round provided information about health insurance coverage, use of health services, unmet needs for health care, children's special health care needs, out-of-pocket medical costs, patient trust in physicians, sources of health information, attitudes about medical care, and satisfaction with health care and health plans. Health status, chronic conditions, and risk attitudes and smoking behavior were additional topics covered by the fourth round questionnaire. The data include variables on height and weight, employment, income, ethnicity, race, United States citizenship, household composition, and demographic characteristics.
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