Multilevel Influences on HIV and Substance Use in a YMSM Cohort (RADAR), Chicago Metropolitan Area, 2015-2020 (ICPSR 37603)
The National Institute on Drug Abuse (NIDA) funded RADAR in 2014 to collect multilevel, longitudinal data and biospecimens from an ethnically and racially diverse cohort of young, sexual and gender minorities (SGM; e.g., men who have sex with men (MSM), transgender women, gender non-conforming individuals) who were assigned male at birth (AMAB) (current core cohort n=1,113). The primary objective of this study is to apply a multilevel perspective to a syndemic of health issues associated with human immunodeficiency virus (HIV) in this population. The multilevel design focuses on individual, dyadic (i.e., sexual and romantic relationships), network (i.e., social, drug, and sexual connections) and biologic factors that may be associated with HIV. The cohort contains both HIV-negative and HIV-positive individuals, which allows for the development of a repository of biospecimens and HIV sequence data from both pre-infection and post-infection visits that will help facilitate future projects evaluating substance use, HIV risk, and pathogenesis.
A multiple cohort, accelerated longitudinal design was utilized by initially enrolling two existing SGM cohorts and then expanded through the use of convenience and snowball sampling methods. Enrollment criteria varied slightly based on the recruitment method, but overall inclusion criteria required participants to be AMAB, between 16 and 29 years of age, report having had sex with a man in the prior year or identify as a SGM, live in the Chicago metropolitan area, and be an English speaker. Study recruitment opened in February 2015. Participants are followed through the developmental period of late adolescence to early adulthood, which is a critical period of initiation and acceleration of sexual behavior and substance use. Study visits occur every six months.
IPUMS Contextual Determinants of Health (CDOH) Sexual and Gender Minority Measure: Same-Sex Households by County, United States, 2020 (ICPSR 39237)
The IPUMS Contextual Determinants of Health (CDOH) data series provides access to measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
Sexual and Gender Minority measures in this release include county-level summary data on the proportion of same-sex households in the United States, as reported in the 2020 Decennial Census. To work with the IPUMS CDOH data, researchers will need to use the variable MATCH_ID to merge the data in DS1 with NCHAT surveys within the virtual data enclave (VDE).
Combined Generations Wave 1 and TransPop surveys, United States, 2016-2018 (ICPSR 38421)
This collection includes a combined dataset of the Generations study wave 1 (baseline) survey and the TransPop study transgender survey. The two studies have many overlapping variables, and they examined topics such as respondents' health outcomes and behaviors, experiences with discrimination, identity, and transition-related experiences. Data from these studies were merged to allow for analysis of the combined LGBT populations. This dataset has also been reweighted to be representative of these populations.
The complete Generations study data (baseline, wave 2, and wave 3 survey data) can be found under study number 37166, and the complete TransPop study data (transgender and cisgender survey data) can be found under study number 37938. For detailed information on the Generations and TransPop studies, including related publications, please refer to their respective DSDR/ICPSR study pages.
Community Health Center: Core Data Project, 2001-2002 [United States] (ICPSR 21520)
IPUMS Contextual Determinants of Health (CDOH) Sexual and Gender Minority Measure: Proportion Identifying as LGBTQ by State, United States, 2021-2022 (ICPSR 38853)
The IPUMS Contextual Determinants of Health (CDOH) data series includes measures of disparities, policies, and counts, by state or county, for historically marginalized populations in the United States including Black, Asian, Hispanic/Latina/o/e/x, and LGBTQ+ persons, and women.
The IPUMS CDOH data are made available through ICPSR/DSDR for merging with the National Couples' Health and Time Study (NCHAT), United States, 2020-2021 (ICPSR 38417) by approved restricted data researchers. All other researchers can access the IPUMS CDOH data via the IPUMS CDOH website.
Unlike other IPUMS products, the CDOH data are organized into multiple categories related to Race and Ethnicity, Sexual and Gender Minority, Gender, and Politics. The CDOH measures were created from a wide variety of data sources (e.g., IPUMS NHGIS, the Census Bureau, the Bureau of Labor Statistics, the Movement Advancement Project, and Myers Abortion Facility Database). Measures are currently available for states or counties from approximately 2015 to 2020.
The Sexual and Gender measures in this release include the proportion of a state's population identifying as LGBTQ+ in the U.S. Census Bureau's Household Pulse Survey, Phases 3.2 (07/21/2021-10/11/2021), 3.3 (12/01/2021-02/07/2022), 3.4 (03/02/2022-05/09/2022), and 3.5 (06/01/2022-08/08/2022). To work with the IPUMS CDOH data, researchers will need to first merge the NCHAT data to DS1 (MATCH ID and State FIPS Data). This merged file can then be linked to the IPUMS CDOH datafile (DS2) using the STATEFIPS variable.
Lay Conceptions of Sexual Orientation Groups: United States Convenience Samples, 2012 (ICPSR 38131)
Generations: A Study of the Life and Health of LGB People in a Changing Society, United States, 2016-2019 (ICPSR 37166)
The Generations study is a five-year study designed to examine health and well-being across three generations of lesbians, gay men, and bisexuals (LGB). The study explored identity, stress, health outcomes, and health care and services utilization among LGBs in three generations of adults who came of age during different historical contexts. This collection includes baseline, wave 1, and wave 2 data collected as part of the Generations study.
The study aimed to assess whether younger cohorts of LGBs differed from older cohorts in how they viewed their LGB identity and experienced stress related to prejudice and everyday forms of discrimination, as well as whether patterns of resilience differed between different LGB cohorts. Additionally, the study sought to examine how differences in stress experience affected mental health and well-being, including depressive and anxiety symptoms, substance and alcohol use, suicide ideation and behavior, and how younger LGBs utilized LGB-oriented social and health services, relative to older cohorts.
In wave 2, respondents were re-interviewed approximately one year after completion of the baseline (wave 1) survey. Only respondents who participated in the original sample of participants were surveyed at wave 2 (i.e., the enhancement oversample was not included in the longitudinal design of this study).
In wave 3, respondents were re-interviewed approximately one year after the completion of the wave 2 survey.
Demographic variables collected as part of this study include questions related to age, education, race, ethnicity, sexual identity, gender identity, income, employment, and religiosity.
Survey of Chicago African Americans, 1997 (ICPSR 38165)
Harvard T.H. Chan School of Public Health/National Public Radio/Robert Wood Johnson Foundation: Discrimination in the United States Survey, 2017 (ICPSR 38387)
This catalog record includes detailed variable-level descriptions, enabling data discovery and comparison. The data are not archived at ICPSR. Users should consult the data owners (via the Roper Center for Public Opinion Research) directly for details on obtaining the data.
This collection includes variable-level metadata of the 2017 Discrimination in the United States Survey, a survey from Harvard T.H. Chan School of Public Health/Robert Wood Johnson Foundation/National Public Radio conducted by Social Science Research Solutions (SSRS). Topics covered in this survey include:
- Belief in discrimination against racial/ethnic minorities
- Discrimination against men/women
- Discrimination against lesbian/gay/bisexual people
- Discrimination against transgender people
- Biggest problem with discrimination against lesbian/gay/bisexual/transgender/queer (LGBTQ) people
- Live on tribal lands
- Local/tribal government
- Discrimination based on race
- Discrimination based on gender
- Discrimination based on being part of the LGBTQ community
- Reasons for avoiding seeking health care
- Experiences with discrimination
- Discrimination resulting in fewer employment opportunities
- Discrimination resulting in unequal pay
- Discrimination resulting in fewer chances for quality education
- Encouraged to/discouraged from applying to college
- Predominant groups living in respondent's area
- Not feeling/being welcomed in neighborhood due to race
- Not feeling/being welcomed in neighborhood due to being part of LGBTQ community
- Considered moving to another area because of discrimination
- Comparing respondent's area to others
- Police using unnecessary force based on race/ethnicity
- Avoiding activities to avoid discrimination from police
- Experiences caused by racial discrimination
- Experiences caused by gender discrimination
- Experiences caused by discrimination against LGBTQ community
- Local police force does/does not reflect racial/ethnic background of community
- Contacted by political representatives about voting/supporting cause
- Registered to vote
- Vote in 2016 presidential election
- Physical health status
- Mental health status
- Disability
- Chronic illness
- Veterans Administration
- Indian Health Services
- Seeking health care
- Insurance coverage
The data and documentation files for this survey are available through the Roper Center for Public Opinion Research [Roper #31114655]. Frequencies and summary statistics for the 235 variables from this survey are available through the ICPSR social science variable database and can be accessed from the Variables tab.
Anti-LGBTQ Hate Crimes in Miami-Dade County, Florida, 2005-2019 (ICPSR 37933)
Understanding the Role of Trauma and Violence Exposure on Justice-Involved LGBTQA and GNC Youth in Hennepin County, Minnesota, 2018 (ICPSR 37444)
The Hennepin County Department of Community Corrections and Rehabilitation Office of Policy, Planning and Evaluations surveyed 150 youth to examine the role of trauma and violence on justice-involved lesbian, gay, bisexual, transgender, questioning/unsure or asexual (LGBTQA) and gender non-conforming youth (GNC).
Youth were surveyed and administrative human services and juvenile justice data were also analyzed. The correctional staff were surveyed with an organizational self-assessment on employee perceptions of trauma-informed practices and policies. A subset of youth (N = 60) were interviewed using the Juvenile Victimization Questionnaire Revised Version 2 (JVQ-R2) and the Adverse Childhood Experiences (ACEs) tool to assess trauma and victimization.
This survey also collected demographic information as well as the participants' history of harassment, bullying, suspension, expulsion, housing arrangements, and foster care involvement.
ANES 2016 Time Series Study (ICPSR 36824)
This study is part of the American National Election Study (ANES), a time-series collection of national surveys fielded continuously since 1948. The American National Election Studies are designed to present data on Americans' social backgrounds, enduring political predispositions, social and political values, perceptions and evaluations of groups and candidates, opinions on questions of public policy, and participation in political life. As with all Time Series studies conducted during years of presidential elections, respondents were interviewed during the two months preceding the November election (Pre-election interview), and then re-interviewed during the two months following the election (Post-election interview). Like its predecessors, the 2016 ANES was divided between questions necessary for tracking long-term trends and questions necessary to understand the particular political moment of 2016. The study maintains and extends the ANES time-series 'core' by collecting data on Americans' basic political beliefs, allegiances, and behaviors, which are so critical to a general understanding of politics that they are monitored at every election, no matter the nature of the specific campaign or the broader setting. This 2016 ANES study features a dual-mode design with both traditional face-to-face interviewing (n=1,181) and surveys conducted on the Internet (n=3,090), and a total sample size of 4,271. In addition to content on electoral participation, voting behavior, and public opinion, the 2016 ANES Time Series Study contains questions about areas such as media exposure, cognitive style, and values and predispositions. Several items first measured on the 2012 ANES study were again asked, including "Big Five" personality traits using the Ten Item Personality Inventory (TIPI), and skin tone observations made by interviewers in the face-to-face study. For the first time, ANES has collected supplemental data directly from respondents' Facebook accounts. The post-election interview also included Module 5 from the Comparative Study of Electorial Systems (CSES), exploring themes in populism, perceptions on elites, corruption, and attitudes towards representative democracy. Face-to-face interviews were conducted by trained interviewers using computer assisted personal interviewing (CAPI) software on laptop computers. During a portion of the face-to-face interview, the respondent answered certain sensitive questions on the laptop computer directly, without the interviewer's participation (known as computer assisted self-interviewing (CASI)). Internet questionnaires could be completed anywhere the respondent had access to the Internet, on a computer or on a mobile device. Respondents were only eligible to compete the survey in the mode for which they were sampled. Demographic variables include respondent age, education level, political affiliation, race/ethnicity, marital status, and family composition.
ANES 2012 Time Series Study (ICPSR 35157)
How Couples Meet and Stay Together (HCMST), Wave 1 2009, Wave 2 2010, Wave 3 2011, Wave 4 2013, Wave 5 2015, United States (ICPSR 30103)
How Couples Meet and Stay Together (HCMST) surveyed how Americans met their spouses and romantic partners, and compared traditional to non-traditional couples. This collection covers data that was gathered over five waves. During the first wave, respondents were asked about their relationship status, including the gender, ethnicity, and race of their current partner, as well as the level of education of their parents. They were also asked about their living arrangements with their partner, the country, state, and city the respondent and/or the respondent's partner resided in most from birth to age 16, and whether the couple attended the same high school/college/university, or grew up in the same town. Information was collected on the legal status of the relationship, the city/state where the partnership was legalized, and how many times the respondent had previously been married. Additionally, respondents were asked about how often they visited with relatives, which gender they were most attracted to, their earned income in 2008, and the length of their current relationship. Finally, respondents were asked to recall how, when, and where they met their partner, how their parents felt about their partner, and to describe the perceived quality of their relationship. The second wave followed up with respondents one year after Wave 1. Information was collected on respondents' changes, if any, in marital status, relationship status, living arrangements, and reasons for separation where applicable. The third wave followed up with respondents one year after the second wave, and collected information on respondents' relationships reported in the first two waves, again including any changes in the status of the relationship and reasons for separation. The fourth wave followed up with respondents two years after Wave 3. In addition to information on relationship status and reasons for separation, Wave 4 includes the subjective level of attractiveness for the respondent and their partner. Wave 5 collected updated data on respondents' changes, if any, in marital status, relationship status, and reasons for separation where applicable. Information about respondents' sexual orientations, sex frequencies, and attitudes towards sexual monogamy were also collected. Demographic information includes age, race/ethnicity, gender, level of education, household composition, religion, political party affiliation, and household income.
The data is being released in two parts: part one is available for public use and part two is available for restricted use. The public use data contains Waves 1-5, including the addition of nine variables collecting information such as race, household income, whether the respondent was born outside of the United States, zip code relative to rural area, and respondents' living arrangements between birth and 16 years of age. The restricted use data contains Waves 1-3, and differs from the public use data by including FIPS codes for state of marriage and state of residence, town or city where the respondent was raised, and qualitative variables revised by the Principal Investigator (Waves 1-5), consisting of respondent's answers to how they first met their partner, the quality of their relationship in their own words, why they broke up if applicable and if they have an open relationship.
American National Election Study: 2016 Pilot Study (ICPSR 36390)
These data are being released as a preliminary version to facilitate early access to the study for research purposes. This collection has not been fully processed by ICPSR at this time, and data are released in the format provided by the principal investigators. As the study is processed and given enhanced features by ICPSR in the future, users will be able to download the updated versions of the study. Please report any data errors or problems to user support, and we will work with you to resolve any data-related issues.
The American National Election Study (ANES): 2016 Pilot Study sought to test new instrumentation under consideration for potential inclusion in the ANES 2016 Time Series Study, as well as future ANES studies. Much of the content is based on proposals from the ANES user community submitted through the Online Commons page, found on the ANES home page. The survey included questions about preferences in the presidential primary, stereotyping, the economy, discrimination, race and racial consciousness, police use of force, and numerous policy issues, such as immigration law, health insurance, and federal spending. It was conducted on the Internet using the YouGov panel, an international market research firm that administers polls that collect information about politics, public affairs, products, brands, as well as other topics of general interest.
Virginia Transgender Health Initiative Study (THIS), 2005-2006 (ICPSR 31721)
The Simon Poll: Spring 2015 [Illinois Statewide] (ICPSR 100115)
SETUPS: Voting Behavior: The 2012 Election (ICPSR 34808)
Voting Behavior: The 2012 Election is an instructional module designed to offer students the opportunity to analyze a dataset drawn from the 2012 American National Election Study (ANES). This instructional module is part of the SETUPS (Supplementary Empirical Teaching Units in Political Science) series and is featured online.
Civil Union Study 2000-2002, United States (ICPSR 31241)
ANES 2010 Panel Recontact Study (ICPSR 35155)
California Special Election Exit Poll and Phone Survey, 2003 (ICPSR 35084)
Dynamics of Retail Methamphetamine Markets in New York City, 2007-2009 (ICPSR 29821)
Social Justice Sexuality Project: 2010 National Survey, including Puerto Rico (ICPSR 34363)
The Social Justice Sexuality Project (SJS) is one of the largest national surveys of Black, Latina/o, Asian and Pacific Islander, and multiracial lesbian, gay, bisexual, and transgender (LGBT) people. With over 5,000 respondents, the final sample includes respondents from all 50 states; Washington, DC, and Puerto Rico; in rural and suburban areas, in addition to large urban areas; and from a variety of ages, racial/ethnic identities, sexual orientations, and gender identities. The purpose of the SJS Project is to document and celebrate the experiences of lesbian, gay, bisexual and transgender (LGBT) people of color. All too often, when we think about LGBT people of color, it's from a perspective of pathology. In contrast, the SJS Project is designed and dedicated to describing a more dynamic experience. It's a knowledge-based study that investigates the sociopolitical experiences of this population around five themes: racial and sexual identity; spirituality and religion; mental and physical health; family formations and dynamics; civic and community engagement. Demographic variables include: race/ethnicity, sexual orientation, gender identity, age, education, religion, household, income, height, weight, location, birthplace, and political affiliation.
Additional information about the SJS Project can be found on the Social Justice Sexuality Project Web site.