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Discontinuation of Disease Modifying Therapies (DMTs) in Multiple Sclerosis (MS), United States, 2017-2020 (ICPSR 39186)

Released/updated on: 2025-07-01
Geographic coverage: United States
Time period: 2017-01-01--2020-12-31
This study was a multicenter, randomized, controlled, rater-blinded, phase 4, non-inferiority trial. Individuals with multiple sclerosis of any subtype, 55 years or older, with no relapse within the past 5 years or new MRI lesion in the past 3 years while continuously taking an approved disease-modifying therapy were enrolled at 19 multiple sclerosis centers in the USA. Participants were randomly assigned (1:1 by site) with an interactive response technology system to either continue or discontinue disease-modifying therapy. Relapse assessors and MRI readers were masked to patient assignment; patients and treating investigators were not masked. The primary outcome was percentage of individuals with a new disease event, defined as a multiple sclerosis relapse or a new or expanding T2 brain MRI lesion, over 2 years. The study assessed whether discontinuation of disease-modifying therapy was non-inferior to continuation using a non-inferiority, intention-to-treat analysis of all randomly assigned patients, with a predefined non-inferiority margin of 8%.
Curated
Simple Crosstabs

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2019 (ICPSR 38821)

Released/updated on: 2023-12-11
Geographic coverage: Detroit, Indiana, United States, Alabama, Birmingham, Michigan, Pennsylvania, Baltimore, Massachusetts, State College, Maryland, Boston, Indianapolis
Time period: 1999-01-01--2019-12-31

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly) was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study.

This collection integrates data from two previous collections (ICPSR 4248 and ICPSR 36036) and fills in gaps that existed in these two collections. In addition, this collection features composite scores for constructs like memory, reasoning speed, Short Form Health Survey (SF-36), Social Determinants of Health (SDOH), as well as data from the National Death Index and state driving records.

Please read the collection notes for important analysis details.

Curated
Simple Crosstabs

Midlife in the United States (MIDUS 1) National Study of Daily Experiences (NSDE), 1996-1997 (ICPSR 3725)

Released/updated on: 2023-01-25
Geographic coverage: United States
Time period: 1996-03-01--1997-03-31
The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the MacAuthur Foundation National Survey of Midlife in the United States (MIDUS). The purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. Although previous daily diary research has advanced understanding of daily stress processes, there are important limitations in these studies that are addressed in the NSDE. First, previous studies in this area have relied on small and often unrepresentative samples that limit the ability to generalize findings. For this reason, the NSDE uses a large national sample of adults in the United States. Second, previous studies of individual differences in exposure and reactivity to daily events have typically examined only one source of variability, such as personality, to the exclusion of others. The NSDE corrects this problem by utilizing the data collected in the larger MIDUS survey on a wide array of sociodemographic and psychosocial variables to study the determinants of exposure and reactivity to daily stress. Third, previous studies have failed to investigate the role of genetics in both exposure and reactivity to daily stressors. The NSDE has a subsample of identical and fraternal same-sex twin pairs in order to explore this issue. The twins were selected if twin pairs had high self-reported certainty of zygosity, had completed the MIDUS interview and questionnaires, and had mailed in their cheek cell samples. A wide range of information was obtained using the daily telephone interview. Conducting interviews for an entire year provided information about seasonal variation in daily experiences. Respondents completed an average of 7.2 of the 8 interviews resulting in a total of 10,397 days of interviews. Data collection consisted of 40 separate "flights" of interviews with each flight representing the eight-day sequence of interviews from approximately 33 respondents. The entire interview was CATI programmed, which enabled researchers to incorporate skip patterns and open ended probe questions as well as to keypunch data during the interview, allowing data cleaning throughout the data collection. Demographic information includes gender and age.
Curated
Simple Crosstabs

Midlife in the United States (MIDUS 3): Daily Diary Project, 2017-2019 (ICPSR 38529)

Released/updated on: 2022-09-22
Geographic coverage: United States
Time period: 2017-01-01--2019-12-31
The National Study of Daily Experiences (NSDE) is one of the in-depth studies that are part of the Midlife in the United States (MIDUS) longitudinal study of health and well-being. Known within the MIDUS study as the Daily Diary Project (2), the purpose of the NSDE is to examine the day-to-day lives, particularly the daily stressful experiences, of a subsample of MIDUS respondents. The primary aims of the MIDUS 3 Daily Diary project were to: (1) describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood; (2) examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors; (3) investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and (4) explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood. During 2017-2019, the Daily Diary project collected data on a subsample of the MIDUS 3 survey sample, including cases from the MIDUS Milwaukee sample. A total of 1,236 respondents completed Daily Diary interviews. A subset of these respondents provided 4-days worth of saliva samples that provided data on cortisol and alpha amylase.
Curated
Simple Crosstabs

Midlife in the United States (MIDUS Refresher 1): Daily Diary Project, 2012-2014 (ICPSR 37083)

Released/updated on: 2020-12-14
Geographic coverage: United States
Time period: 2012-10-01--2014-11-30

The MIDUS Refresher Daily Diary Project (aka National Study of Daily Experiences or NSDE) contains data from 782 respondents. The purpose of the Daily Stress Project was to examine how sociodemographic factors, health status, personality characteristics, and genetic endowment modify patterns of change in exposure to day-to-day life stressors as well as physical and emotional reactivity to these stressors.

The primary aims were:

  1. To describe how the links between multiple aspects of daily stressors (e.g., frequency, content, severity) and daily physical and emotional well-being change over ten years during adulthood;
  2. To examine how sociodemographic factors and personality characteristics influence change in both exposure to as well as changes in physical and emotional reactivity to daily stressors;
  3. To investigate how exposure and reactivity to daily stressors correlate with physiological indicators of physical health and predict changes in global health reports; and
  4. To explore the relative genetic and environmental influences mediating change in exposure and physical and emotional reactivity to daily stressors throughout adulthood.

The Daily Diary study is comprised of a subsample of the MIDUS (Midlife in the United States) Refresher, a national survey of nearly 3,600 Americans (aged 25 to 75) conducted during 2011-2014. The MIDUS Refresher survey was designed to replenish the original MIDUS 1 baseline cohort and allow the examination of period effects on health (mental and physical) related to the economic recession by comparing the pre-recession MIDUS 1 sample with the post-recession MIDUS Refresher sample. Guiding hypotheses, at the most general level, were that behavioral and psychosocial factors are consequential for health (physical and mental).

Demographic variables in this collection include sex and age.

Curated
Simple Crosstabs

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2008 (ICPSR 36036)

Released/updated on: 2015-07-29
Geographic coverage: Detroit, Baltimore, Indiana, United States, State College, Alabama, Maryland, Birmingham, Michigan, Pennsylvania, Boston, Indianapolis
Time period: 1999-01-01--2008-12-31

The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2008 was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Senior Life (formerly Hebrew Rehabilitation Center for the Aged) in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and Wayne State University (Detroit). Data in this study are drawn from measures of cognitively demanding daily activities performed by participants who received a variety of cognitive interventions. Measures included both cognitive functioning (memory, inductive reasoning, speed processing, and general knowledge) and daily functioning (everyday problem solving, observations of daily living, complex reaction time, and general functional ability). Secondary to these measures, the study also includes data on health care and service utilization, driving habits, and mobility. Data were collected at the start of the study (baseline) as well as one, two, three, five, and ten years into the study. This collection includes the data from the tenth year of the study as well as a comprehensive analytical dataset, incorporating data from the previous collections (data from previous waves of the study as well as participant demographic data can be found in ICPSR 4248). A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

Curated
Simple Crosstabs

A Survey of the Arts in Everyday Life 2002 (ICPSR 35242)

Released/updated on: 2015-05-27
Geographic coverage: United States, Chicago, Illinois
Time period: 2001-01-01--2001-12-31

A Survey of the Arts in Everyday Life 2002 examined the involvement of Chicago-area individuals in "informal" arts activities, such as acting in community theater, singing in a church choir, writing poetry at the local library, or painting portraits in a home studio. This survey was a significant component in the larger study "Informal Arts: Finding Cohesion, Capacity and Other Cultural Benefits in Unexpected Places," which was a two and a half year study of the informal arts in Chicago undertaken by Columbia College Chicago's Center for Arts Policy. The research was undertaken by Principal Investigator Alaka Wali Ph.D., ethnographers Rebecca Severson M.A. and Mario Longoni M.A., the survey statistician Kevin Karpiak, and dedicated interns and professional volunteers. Elena Marcheschi J.D. took on the overall responsibilities of Project Director. This survey is used frequently to reinforce and expand on ethnographic findings drawn from a series of case studies and at large fieldwork. The University of Illinois Survey Lab assisted in the survey design. As part of the strategy to triangulate the data sources, the survey instrument was designed to test researchers' findings and to gather additional data on areas such as participants' depth of involvement in civic life. The questionnaire contained 67 questions divided into broad topical areas such as organizational dynamics, networks, resources and barriers, and visibility of arts, in addition to demographics. The sampling goal was to get a census of all the participants at each case study location at a given moment in time. Most of the questionnaires were mailed to participants. Other questionnaires were either hand-delivered or emailed. During August 2001, 165 of the 310 recipients completed and returned the survey. Partial funding for this study was provided by the John D. and Catherine T. MacArthur Foundation, the Rockefeller Foundation, the National Endowment for the Arts, the Illinois Arts Council, the Richard H. Driehaus Foundation, the Urban Institute/Arts and Culture Indicators in Community Building Project (ACIP), and Columbia College Chicago.

Curated
Simple Crosstabs

Swedish Adoption/Twin Study on Aging (SATSA), 1984, 1987, 1990, 1993, 2004, 2007, and 2010 (ICPSR 3843)

Released/updated on: 2015-05-13
Geographic coverage: Sweden, Global
Time period: 1984-01-01--2010-12-31
The Swedish Adoption/Twin Study on Aging (SATSA) was designed to study the origins of individual differences in aging and the environmental and genetic factors that are involved. SATSA began in 1984, and six additional waves were conducted in 1987, 1990, 1993, 2004, 2007, and 2010. The questionnaire was initially sent to all twins from the Swedish Twin Registry who were separated at an early age and raised apart; the survey was also administered to a control sample of twins who were raised together. The respondents were surveyed on items that included health status, how they were raised, work environment, alcohol consumption, and dietary and smoking habits, as well as questions about personality and attitudes; this information comprised the first component. The second component was collected from a subsample composed of 150 pairs of twins raised apart and 150 pairs of twins raised together. This subsample participated in seven waves of in-person testing, which included a health examination, structured interviews, and tests on functional capacity, cognitive abilities, and memory. The data are represented according to questionnaire and time number, and correspond to each wave/year: Questionnaire 1 and In-Person Testing Time 1 were in 1984; Questionnaire 2 and In-Person Testing Time 2 were in 1987; Questionnaire 3 and In-Person Testing Time 3 were in 1990; Questionnaire 4 and In-Person Testing Time 4 were in 1993; Questionnaire 5 was in 2003; In-Person Testing Time 5 was in 2004; Questionnaire 6 and In-Person Testing Time 6 were in 2007; In-Person Testing Time 7 was in 2010. The Administrative and Cognitive datasets include data from all years/waves. The Smell Survey dataset only includes data from 1990. No years were specified for the Contact measures and Separation measures datasets. Demographic and background information includes age, sex, education, family history, household composition and employment.
Curated
Simple Crosstabs

American Time Use Survey (ATUS), 2011 (ICPSR 34453)

Released/updated on: 2014-10-22
Geographic coverage: United States
Time period: 2011-01-01--2011-12-31
The American Time Use Survey (ATUS) collects information on how people living in the United States spend their time. Data collected in this study measured the amount of time that people spent doing various activities in 2011, such as paid work, child care, religious activities, volunteering, and socializing. Respondents were interviewed only once about how they spent their time on the previous day, where they were, and whom they were with. Part 1, Activity File, includes additional information on activities in which respondents participated, including the location of each activity and the total time spent on secondary child care. Part 2, Call History File, gives information about each call attempt. Part 3, Case History File, contains information about the interview process. Part 4, ATUS-CPS File, contains demographic and occupational data on respondents and members of their household collected during their participation in the Current Population Survey (CPS). Part 5, Respondent File, contains demographic information about respondents. Part 6, Roster File, contains information about household members and non-household children under the age of 18. Part 7, Eldercare Roster File, file contains information about people for whom ATUS respondents provided care. Part 8, Activity Summary File, contains a summary of the total amount of time they spent doing each activity that day. Part 9, Replicate Weight File, contains miscellaneous ATUS weights. Part 10, Who File, includes codes that indicate who was present during each activity. Part 11, ATUS Leave Module Respondent File, contain information related to wage and salary workers' access to paid and unpaid leave and the ability to adjust their work schedules and locations instead of taking leave or because they didn't have access to leave. Part 12, ATUS Leave Module Replicate Weights File, contains weights for Part 11, ATUS Leave Module Respondent File.
Curated
Simple Crosstabs

PACARDO: Data on Drug Use and Behavior in School-Aged Children and Teenagers in Panama, Central America, and the Dominican Republic, 1999-2000 (ICPSR 34829)

Released/updated on: 2014-08-05
Geographic coverage: Central America, Nicaragua, El Salvador, Panama, Dominican Republic, Guatemala, Honduras, Costa Rica
Time period: 1999-01-01--2000-12-31
The PACARDO study, concatenated to combine Panamá (PA), Centroamérica (CA), and República Dominicana (RDO), was a multi-national collaborative epidemiological research study whose primary objective was to record and describe self-reported drug use and behavior patterns among school-aged youths in Latin America. During 1999-2000, anonymous self-administered questionnaires on drug involvement and related behaviors were administered to a cross-sectional, nationally representative sample that included a total of 12,797 students in the following seven countries: Costa Rica (n = 1,702), the Dominican Republic (n = 2,023), El Salvador (n = 1,628), Guatemala (n = 2,530), Honduras (n = 1,752), Nicaragua (n = 1,419), and Panama (n = 1,743). Estimates for exposure opportunity and actual use of alcohol, tobacco, inhalants, marijuana, cocaine (crack / cocoa paste), amphetamines and methamphetamines, tranquilizers, ecstasy, and heroin were assessed via responses about questions on age of first chance to try each drug, and first use.
Curated
Simple Crosstabs

IntUne Mass Survey Wave 2, 2009 (ICPSR 34272)

Released/updated on: 2013-04-22
Geographic coverage: Hungary, United Kingdom, Portugal, Global, Spain, Greece, Austria, Belgium, Denmark, Poland, Italy, Slovenia, Slovakia, France, Serbia, Bulgaria, Germany, Estonia
Time period: 2009-01-01--2009-12-31
IntUne is an integrated project on the theme of European citizenship financed by the European Union, within the scope of the Sixth Framework Programme and is coordinated by the University of Siena. It involves 29 European Institutions and over 100 scholars across Eastern and Western Europe. The mass survey was conducted in 2009 in 16 European Union Member States; Austria, Belgium, Bulgaria, Denmark, Estonia, France, Germany, Greece, Hungary, Italy, Poland, Portugal, Slovakia Republic, Slovenia, Spain, and the United Kingdom, as well as 1 non-European Union Member State, Serbia. It aims at studying the changes in the scope, nature, and characteristics of citizenship that result from the process of the deepening and enlargement of the European Union. This survey focuses on how integration and disintegration processes, at both the national and European level, affect three major dimensions of citizenship: identity, representation, and scope of good governance. Respondents were polled on their interest in politics, their opinion of the general economic situation, and how satisfied they are with the way democracy works in their respective countries. Societal questions addressed whether or not respondents believe most people can be trusted, and how much influence one person has on politics. Opinions were gathered concerning the benefits of being a member of the European Union, the addition of Serbia to the European Union, and whether or not Serbia would benefit from European Union membership. Demographic variables include age, sex, education, current employment status, marital status, and religious affiliation.
Curated

American Time Use Survey (ATUS), 2009 (ICPSR 30902)

Released/updated on: 2012-11-02
Geographic coverage: United States
Time period: 2009-01-01--2009-12-31
The American Time Use Survey (ATUS) collects information on how people living in the United States spend their time. Data collected in this study measured the amount of time that people spent doing various activities in 2009, such as paid work, child care, religious activities, volunteering, and socializing. Respondents were interviewed only once about how they spent their time on the previous day, where they were, and whom they were with. Part 1, Activity File, includes additional information on activities in which respondents participated, including the location of each activity and the total time spent on secondary child care. Part 2, Call History File, gives information about each call attempt. Part 3, Case History File, contains information about the interview process. Part 4, ATUS-CPS 2009 File, contains demographic and occupational data on respondents and members of their household collected during their participation in the Current Population Survey (CPS). Part 5, Respondent File, contains demographic information about respondents. Part 6, Roster File, contains information about household members and non-household children under the age of 18. Part 7, Activity Summary File, contains a summary of the total amount of time they spent doing each activity that day. Part 8, Trips File, provides information about the number, duration, and purpose of overnight trips away from home for two or more nights in a row in a given reference month. Part 9, ATUS 2009 Replicate Weights File, contains base weights, replicate base weights, and replicate final weights for each case that was selected to be interviewed for the ATUS. Part 10, Who File, includes data on who was present during each activity. Demographic variables include sex, age, race, ethnicity, marital status, education level, income, employment status, occupation, citizenship status, country of origin, labor union membership of household members, and household composition.
Curated

American Time Use Survey (ATUS), 2010 (ICPSR 30901)

Released/updated on: 2012-10-02
Geographic coverage: United States
Time period: 2010-01-01--2010-12-31
The American Time Use Survey (ATUS) collects information on how people living in the United States spend their time. Data collected in this study measured the amount of time that people spent doing various activities in 2010, such as paid work, child care, religious activities, volunteering, and socializing. Respondents were interviewed only once about how they spent their time on the previous day, where they were, and whom they were with. Part 1, Activity File, includes additional information on activities in which respondents participated, including the location of each activity and the total time spent on secondary child care. Part 2, Call History File, gives information about each call attempt. Part 3, Case History File, contains information about the interview process. Part 4, ATUS-CPS 2010 File, contains demographic and occupational data on respondents and members of their household collected during their participation in the Current Population Survey (CPS). Part 5, Respondent File, contains demographic information about respondents. Part 6, Roster File, contains information about household members and non-household children under the age of 18. Part 7, Activity Summary File, contains a summary of the total amount of time they spent doing each activity that day. Part 8, Trips File, provides information about the number, duration, and purpose of overnight trips away from home for two or more nights in a row in a given reference month. Part 9, ATUS 2010 Replicate Weights File, contains base weights, replicate base weights, and replicate final weights for each case that was selected to be interviewed for the ATUS. Part 10, Who File, includes data on who was present during each activity. Demographic variables include sex, age, race, ethnicity, marital status, education level, income, employment status, occupation, citizenship status, country of origin, labor union membership of household members, and household composition.
Curated

Northern California Community Study, 1977 (ICPSR 7744)

Released/updated on: 2011-10-17
Geographic coverage: San Francisco, United States, California
Time period: 1977-01-01--1978-12-31
The Northern California Community Study investigated the effects of urbanism on social networks and social attitudes. To do so, the study explored the relationship between characteristics and perceptions of neighborhoods, and the acquaintance patterns, social activities, and psychological attitudes of residents of particular neighborhoods in the San Francisco area in 1977. The study focused on the nonminority population. Part 1 (Respondent File) includes information obtained in personal interviews with 1,050 persons living in 50 communities in northern California. Included in this file are two general categories of variables--those describing the respondents' experiences in their neighborhoods and locales, and those recording the respondents' psychological states and feelings of well-being. Part 2 (Name File) contains information about 19,417 persons identified by the survey respondents in Part 1 as being part of their (respondents') social networks. Variables include whether the named individuals lived in the respondents' neighborhoods, and the types of relationships, interactions, and things in common that the respondents had with the individuals they named. Part 3 (Community File) contains a data record prepared for each tract of the sampling frame. The data in the Community file are summary counts for each tract's total population, total household population, total housing units, and selected demographic information, such as the percentage of Black population, percent residing in group quarters, and mean family income. The file also contains opinions gathered from the survey respondents about each community, e.g., ratings of local services, fear of crime, and the effect of the water shortage.
Curated

Detroit Area Study, 1985: Life Events in Everyday Experience (ICPSR 6414)

Released/updated on: 2010-08-20
Geographic coverage: Detroit, United States, Michigan
Time period: 1985-01-01--1985-12-31

The 1985 Detroit Area Study surveyed life events of respondents. Questions addressed alcohol and drug use, emotional state, incidents of depression and fear, stress caused by children and work, and respondent's general health. Information on the respondent's family background was also collected, with specific emphases on children, parenting, and marriage. Gender comparison questions were posed to explore in detail issues such as the benefits/responsibilities of marriage, marriage roles and careers, and division of housework tasks. The survey also included items on the respondent's financial situation, social life, social support network, and demographic characteristics such as age, race, sex, education, religion, and income.

Curated

Advanced Cognitive Training for Independent and Vital Elderly (ACTIVE), United States, 1999-2001 (ICPSR 4248)

Released/updated on: 2010-06-30
Geographic coverage: Indiana, United States, Massachusetts, Alabama, Florida, Maryland, Michigan
Time period: 1999-01-01--2001-12-31

The data producers have recompiled the ACTIVE data into a new study which is available as of December 2023, ICPSR 38821; data users should plan to use study 38821 instead.

ACTIVE (Advanced Cognitive Training for Independent and Vital Elderly), 1999-2001 [United States] was a multisite randomized controlled trial conducted at six field sites with New England Research Institutes (NERI) as the coordinating center. The field sites included the University of Alabama at Birmingham, Hebrew Rehabilitation Center for the Aged in Boston, Indiana University, Johns Hopkins University in Baltimore, Pennsylvania State University, and the University of Florida/Wayne State University (Detroit). The primary aim of the trial was to test the effects of three distinct cognitive interventions -- previously found to be successful in improving elders' performance on basic measures of cognition under laboratory or small-scale field conditions -- on measures of cognitively demanding daily activities. Trainings consisted of an initial series of ten group sessions followed by four-session booster trainings at one and three years. The three cognitive interventions focused on memory, executive reasoning, and speed of processing. The design included a no-contact control group. Participants were assessed at baseline, immediately after training, and annually thereafter. A total of 2,832 older adults were enrolled in the trial, and 2,802 were included in the analytical sample. Twenty-six percent of the participants were African American.

Curated

Detroit Area Study, 2003: Information and Values in Today's Society (ICPSR 22630)

Released/updated on: 2008-09-26
Geographic coverage: Detroit, United States, Michigan
Time period: 2003-01-01--2003-12-31

For this survey, respondents from three counties in the Detroit, Michigan, area were queried about how they received and used information in their daily lives and how they viewed other people, groups, and institutions. Respondents were asked about their activities during the previous 12 months, the work they did, and about some things they or someone in their household may have experienced because of their race, ethnicity, or religion. Respondents were also asked for their opinions about American news coverage, helping children grow up, and what the aims of this country should be for the next ten years. In addition, questions addressed respondents' feelings and thoughts during the past 12 months about world events and the terrorist attacks on September 11, 2001. Demographic information includes age, sex, marital status, income, education, national origin, employment status, and household composition.

Curated

Euro-Barometer 37.2: Elderly Europeans, April-May 1992 (ICPSR 9958)

Released/updated on: 2008-06-04
Geographic coverage: United Kingdom, Portugal, Global, Spain, Greece, Netherlands, Belgium, Luxembourg, Ireland, Denmark, Italy, France, Germany
Time period: 1992-04-20--1992-05-19
This round of Euro-Barometer surveys queried respondents on standard Euro-Barometer measures such as public awareness of and attitudes toward the Common Market and the European Community (EC), and also focused on the elderly and their activities, finances, and health care. Respondents were asked what sorts of things in life were of interest to them, whether they were treated with more respect as they grew older, the extent to which they agreed with several popular conceptions about being older, and whether they felt as though they were treated as second-class citizens by public institutions, certain professions, service providers, or their families. Other questions queried respondents about the amount of free time they had in their daily routines, what activities they had pursued during the past week, how often they saw their families, how much contact they had with young people and whether they would like to have more, and how often they felt lonely. Respondents were also asked whether they were members of voluntary organizations or charity groups and whether they would join a political party formed to further the interests of the elderly. Financial questions included whether the respondent preferred a pension for the elderly to spend as they wished or reduced prices and concessions for the elderly, how they would describe their current financial situation, whether their financial situation was secure, and what made them feel financially secure or insecure. Respondents were also asked a series of health-related questions, including whether they had any long-standing illness, disability, or infirmity that limited their activities in any way, whether anyone gave them regular help or assistance with personal care or household tasks, who gave this care, and whom they would turn to should they need extra help or assistance. Demographic and other background information was gathered on life satisfaction, number of people residing in the home, size of locality, home ownership, and region of residence, as well as the respondent's age, sex, marital status, number of children, education, employment status, occupation, work sector, age of retirement or expected age of retirement, religiosity, subjective social class, and left-right political self-placement.
Curated
Partially restricted

The 500 Family Study [1998-2000: United States] (ICPSR 4549)

Released/updated on: 2008-06-03
Geographic coverage: United States
Time period: 1998-02-01--2000-06-01

The 500 Family Study was designed to obtain in-depth information on middle class, dual-career families living in the United States. To understand the complex dynamics of today's families and the strategies they use to balance the demands of work and family, over 500 families from 8 cities across the United States were studied. To address different issues facing parents with older and younger children, families with adolescents and families with kindergartners were included in the sample. Working mothers and fathers are now splitting their time between their responsibilities to their family, and to their respective occupations. This study of 500 families explores how work affects the lives and well-being of parents and their children.

The study's data allows researchers to explore a broad range of questions:

  • How do dual-career families manage and organize their resources and time between family and work?
  • How do work conditions, including characteristics of the job and workplace environment, affect the quality of relationships among household members?
  • How do dual career parents manage the moral and social development and learning experiences of their children?
  • How do the work-related responsibilities of working parents affect their child's moral, social, and educational development?
  • What effect is consumerism and technology having on how working families direct the moral and social development of their children?
  • What do parents believe is their role regarding the child-care of their children and how they should fulfill that role both in terms of time and in the allocation of economic and social resources? What are some of the resources in the community that parents use to supervise their children?
  • How do families regard the "free time" of adolescents and how they allocate adolescent "free time" in maintenance of the household?
  • What is the quality of relationships among family members?

To obtain a detailed picture of work and family life, mothers, fathers, and their children were asked to complete a series of instruments including surveys, in-depth interviews, and time diaries. These instruments were designed to provide information about work, marriage, child care and parental supervision, management of household tasks, time allocations, coping strategies, and psychological well-being.

The four datasets associated with this data collection are summarized below:

  1. The Cortisol Data contains information for a subsample of families that elected to participate in a study of psychological stress. Parents and teenagers who agreed to participate completed an additional two days of ESM data collection. The health survey that was administered reported on a variety of health and lifestyle issues that might affect cortisol (stress hormone) levels such as medication use, consumption of caffeine and alcohol, use of nicotine, timing of menstrual cycle, pregnancy, presence of chronic illness, and respondent's height and weight. Additionally, parents reported on the health of the children (teenagers and kindergartners) participating in the study.
  2. The Experience Sampling Method (ESM) Data contains a variety of information related to how individuals spend their time, who they spent it with, and what activities they were engaged in over the course of a typical week. Respondents wore programmed wrist watches that emitted signals (beeps) throughout the day. When possible, family members were placed on identical signaling schedules to provide information on a range of family activities. At the time of each beep, participants were asked to complete a self-report form which asked them to answer a number of open-ended questions about their location, activities, who they were with, and psychological states. Several Likert and semantic-differential scales were used to assess participants' psychological states.
  3. The Parent Data contains basic demographic information from respondents as well as detailed information about parents' occupation job duties, income, work schedule, benefits (e.g., medical care, flexible work schedules, and family leave), and the consequences of their jobs (e.g. long hours, job stress, having to work weekends). Additionally, the data contain information about the extent to which parents experienced work-family conflict and what changes might help with better balance of the demands of work and family (e.g., more flexible work hours, more help from spouses with household and child care responsibilities, improved child care, and after-school care arrangements). Parental attitudes toward traditional arrangements, how household tasks were actually divided among family members, and how often the family paid for services (e.g., cleaning, yard work, meal preparation) were also captured. The data also contain information about how children are socialized in families with two working parents. Topics about the frequency with which parents engaged in various activities with their children (e.g., talking, eating meals together, attending religious services), how frequently parents monitored their teenager's activities, and how often they talked with their teenager about school activities, plans for college, career plans, friendships, and peer pressure.
  4. The Adolescent Data contains data for sixth through twelfth graders, which focuses on family relationships and experiences, school experiences, paid work, psychological well-being and behavioral problems, and plans for the future (e.g., college, career, and marriage -- including expectations regarding spouses' sharing of responsibility for child care, cooking, chores, and paid work). To allow for comparison of parents' and adolescents' responses to similar questions, several items appear in both the adolescent and parent data. These items include the frequency with which parents and adolescents discuss school events, college and career plans, participation in religious and other activities, gender role attitudes and the division of household tasks within the family, and items measuring depression, stress, and anxiety.

Qualitative Data -- Interviews The main purpose of the interviews was to explore topics addressed in the parent and adolescent surveys in greater detail. Parent interviews were designed to examine how working parents cope with the demands of work and family life. Adolescent interviews touched on similar themes but altered questions to gauge the adolescent's perceptions of their parents work and family lives. Kindergartner interviews were brief and focused on children's after-school and child care arrangements and time spent with parents.

Curated

National Survey of Children's Health, 2003 (ICPSR 4691)

Released/updated on: 2007-05-24
Geographic coverage: United States
Time period: 2003-01-01--2003-12-31

The National Survey of Children's Health, funded by the Maternal and Child Health Bureau (MCHB), is a module of the State and Local Area Integrated Telephone Survey (SLAITS) that is conducted by the National Center for Health Statistics (NCHS) at the Centers for Disease Control and Prevention (CDC).

The survey was conducted to assess how well each state, and the nation as a whole, met MCHB's strategic plan goals and national performance measures. These goals include providing national leadership for maternal and child health, promoting an environment that supports maternal and child health, eliminating health barriers and disparities, improving the health infrastructure and systems of care, assuring quality care, working with states and communities to plan and implement policies and programs to improve the social, emotional, and physical environment, and acquiring the best available evidence to develop and promote guidelines and practices to assure a social, emotional, and physical environment that supports the health and well-being of women and children.

The National Survey of Children's Health (NSCH) was designed to produce national- and state-specific prevalence estimates for a variety of physical, emotional, and behavioral health indicators and measures of children's experiences with the health care system. Respondents were asked an extensive battery of questions about the family, including parental health, stress and coping behaviors, family activities, and parental concerns about their children, as well as their perceptions of the child's neighborhood.

Demographic information includes race, gender, family income, and education level.

Curated

Center for Research on Social Reality [Spain] Survey, May 1995: Old Age (ICPSR 6969)

Released/updated on: 1998-01-13
Geographic coverage: Europe, Global, Spain
Time period: 1995-05-15--1995-05-20
This data collection is part of a series of nationwide surveys conducted from October 1990 to June 1996 in Spain. The questionnaires for each of these surveys consisted of three sections. The first section collected information on respondents' attitudes regarding personal, national, and international issues, and included questions on respondents' level of life satisfaction and frequency of visits with relatives, neighbors, and friends. The second section contained a topical module of questions that varied from survey to survey, with this survey's topic focusing on old age. The survey gauged attitudes regarding old age and the elderly, and investigated actual circumstances of elderly life in Spain, such as living arrangements, daily levels of physical activity, amount of health problems experienced during the past two weeks, consumption of tobacco and alcohol, frequency of sexual relations, retirement status and age at retirement, leisure activities, and use of social services. Questions in the third section of the questionnaire elicited socioeconomic information, such as respondent's sex, age, marital status, size of household, occupation, education, religion, religiosity, place of birth, and income.
Curated

Quality of Canadian Life: Social Change in Canada, 1977 (ICPSR 7879)

Released/updated on: 1992-02-16
Geographic coverage: Canada, Global
Time period: 1977-01-01--1977-12-31
The Quality of Life Project was a five-year research program that began in 1976 and was officially titled "Social Change in Canada: Trends in Attitudes, Values, and Perceptions." The survey data for the project were collected through the Survey Research Centre at the Institute for Behavioural Research, York University, Ontario. The project's overall purpose was to develop time series measures of the perceived quality of life and of other subjective social indicators for Canada and its major regions. Three national surveys took place in the years 1977, 1979, and 1981, each including more than 3,000 respondents. A panel of about 2,000 respondents was followed through the three sets of interviews. In 1977 and 1981, the data were gathered in sample surveys of not only the general public of Canada but also selected Canadian decision-makers (top business executives, politicians, civil servants, and trade union leaders) to provide for comparisons between the two groups. This data collection contains the 1977 data, designed to measure each respondent's descriptions of, attitudes about, and satisfaction with a variety of domains of everyday life. They include: neighborhood/city/town/county of residence, life as a whole, Canadian and provincial governments, work and housework, personal finances, housing, life goals and values, personal alienation and efficacy, leisure activities and spare time, education, health and physical condition, friendships, marriage and romantic relationships, children, current Canadian political and social issues, and the news media. Background information and interviewer's observational data are also included.
Curated

Productive Americans: Working and Planning, 1965 (ICPSR 7438)

Released/updated on: 1992-02-16
Time period: 1965-01-01--1965-12-31
This study focused on the total economic effort of families, the outside constraints and inner desires that affected that effort, and the attitudes and views that might have an impact on the quantity and the efficiency of work. Information was obtained about the extent to which families worked, planned ahead, accepted change, avoided risk, and kept a realizable set of goals. Respondents were asked about the kinds of work they did, their level of job satisfaction, their desire and opportunity to work more hours, their job history and any plans for changing to another type of job, and their plans for future retirement or present experience if already retired. Questions also elicited information about aspirations for the education of children, arrangements for child care and household help, frequency of meals taken in restaurants, type of residence occupied, and plans to move, if any. Data are provided on family history, including information about college attended by both head and wife, places in which the family lived in the past, and perceptions of personal efficacy. Income questions included amount of money earned, amount received from investments, and amount from transfer income. Demographic information on household head covers age, sex, race, marital status, religious affiliation, and political party membership. Data on family composition are also available.
Curated

Soviet Interview Project, 1979-1985 (ICPSR 8694)

Released/updated on: 1992-02-16
Geographic coverage: United States, Global
Time period: 1979-01-01--1985-12-31
This survey was undertaken to study everyday life in the Soviet Union by conducting highly-structured interviews with a probability sample of eligible Soviet emigrants in the United States. An interdisciplinary research team constructed a questionnaire with the expectation that the results would contribute not only to Sovietology, but to general theories in a number of academic disciplines, especially political science, economics, and sociology. Respondents were asked to comment on topics such as: crime, culture and the arts, education, ethnicity (or nationality), family life, fertility, friends, health and diet, housing, income and earnings, language practices, mass media, military experience, political and social opinions, politics, participation in organizations, religion, satisfaction, standard of living, and work. To insure that "normal" life experiences would be described, respondents were asked to define and discuss their last normal period in the USSR. Since applying to emigrate usually brings marked changes in Soviet citizens' lives, respondents reported the month and year in which they applied to emigrate, whether plans to emigrate had significantly changed their lives even before that date, and if so, specified the month and year in which their lives changed. Interviewers then made certain that all descriptions of day-to-day life in the Soviet Union referred to the period before the question of emigration became a significant issue for respondents.
Curated

ICPSR Instructional Subset: Quality of American Life, 1971 (ICPSR 7516)

Released/updated on: 1992-02-16
Geographic coverage: United States
Time period: 1971-01-01--1971-12-31
This study contains an instructional subset of the survey data gathered in the study QUALITY OF AMERICAN LIFE, 1971 (ICPSR 3508), collected from a nationwide probability sample of 2,164 persons 18 years of age and older. The survey was designed to measure respondents' perceptions of their socio-psychological condition, their needs and expectations from life, and the degree to which these needs were satisfied. For instructional purposes, this subset contains 80 variables, presented in their raw, unweighted form, for use with the subset's codebook, which gives seven basic pieces of information about each of the variables. In some cases the variables from the original study have been recoded for ease of analysis by students. The questions included in this instructional subset are representative of the major areas of the original, longer survey. The first several variables establish the respondent's social role. These background variables include education received, sex, age, marital status, religious preference, and occupational group. Next, several variables deal with the respondent's place of residence and attitudes toward that residence. Information on the length of time in the community and in the particular dwelling are followed by questions about the respondent's views toward the neighborhood. The study also asks the respondent for views regarding the adequacy of government activity. In a third section of the subset the respondent is asked to choose between a number of pairs of adjectives as best describing his or her life. In the last section of the study the respondent is asked questions regarding the sources of satisfaction in his or her life, including religion, government, and organizational memberships.
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