PRO-TECT: Electronic Patient Reporting of Symptoms During Outpatient Cancer Treatment, United States, 2017-2022 (ICPSR 39449)
Patients treated for metastatic cancer, or cancer that has spread to another part of the body, often have symptoms from cancer and its treatment. They may feel tired, depressed, or nauseated. They may find it hard to do their usual activities. Better symptom tracking may help improve patients' care. For example, symptom tracking could quickly alert doctors when a patient may need a different medicine. In this study, the research team compared use of a weekly electronic symptom tracking system versus usual care for patients with cancer. Patients receiving usual care could report their symptoms to their care team during regular clinic visits. The research team wanted to see if the tracking system helped patients live longer, have better quality of life, or go to the hospital or emergency room less often. The aims of this study were as follows:
- Determine whether integrating electronic patient-reported outcomes (ePRO) in cancer care improves patient-centered outcomes;
- Elicit perspectives about benefit burden tradeoffs for integrating patient-reported outcomes into clinical workflow; and
- Identify barriers, facilitators, and strategies used by practices to integrate patient-reported outcomes into clinical workflow.
A total of 1,191 patients were enrolled from 52 U.S.-based community oncology practices. Randomization into intervention and control conditions occurred at the site level. Data collected as part of this study included patient clinical information; weekly symptom surveys, quality of life surveys, and cancer care surveys completed by patients; feedback on the ePRO intervention from patients, clinical research associates, nurses, and physicians; and symptom alerts sent to nursing staff. Please note that while qualitative data were collected as part of this study, they are not available.
Research and Evaluation in Justice Systems, Multi Jurisdiction Research on Automated Reporting Systems: Kiosk Supervision, 2012-2015 [United States] (ICPSR 36311)
These data are part of NACJD's Fast Track Release and are distributed as they were received from the data depositor. The files have been zipped by NACJD for release, but not checked or processed except for the removal of direct identifiers. Users should refer to the accompanying readme file for a brief description of the files available with this collection and consult the investigator(s) if further information is needed.
The Multi-jurisdiction Research on Kiosk Supervision examined the prevalence of kiosk reporting, implementation experience of agencies using it, and outcomes and costs associated with its use. A telephone screener survey of 492 community supervision agencies nationally in 2012 identified 21 agencies currently using kiosk reporting, agencies that formerly used it, and those that considered but decided against using kiosk reporting. Telephone interviews with 30 agencies and site visits with five agencies measured the benefits and limitations of kiosk reporting and the issues for adopting and implementing kiosk reporting systems. This information served as the basis for a guidebook on kiosk reporting developed for community supervision agencies.
Two outcome studies assessed the effectiveness of kiosk reporting for low-risk clients on public safety outcomes, relative to traditional face-to-face officer reporting and another electronic reporting approach. These studies analyzed administrative data from two large community supervision agencies, which used separate quasi-experimental designs for each site. At one of the sites, two separate designs and datasets were used to compare kiosk reporting and traditional face-to-face officer reporting on outcomes over a 6-month period. At the other site, clients assigned to kiosk supervision were compared to clients assigned to telephone reporting with interactive voice response (IVR) over a 6-month period.