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Promoting Shared Decision-Making About Colorectal Cancer Testing for Older Adults (PRIMED) Study, Maine and Massachusetts, 2019-2022 (ICPSR 39523)

Released/updated on: 2026-04-30

Geographic coverage: United States, Massachusetts, Maine

Time period: 2019-01-01--2022-12-31

As people age, medical decisions become more complex, including conversations about cancer screening. For patients aged 76-85, the United States Preventive Services Task Force (USPSTF) advises clinicians that decisions about colorectal cancer (CRC) screening should be individualized based on overall health and prior screening history (C recommendation). However, studies find that many older adults are not well-informed about, nor meaningfully engaged in, decisions about whether to continue CRC screening. Shared decision making (SDM) has been shown to improve the quality of decisions about initiating cancer screening but little is known about its effectiveness for decisions about stopping interventions. This study addresses a gap in the understanding of how to support clinicians and older patients in making good decisions about whether to continue CRC screening or not.

The researchers conducted a comparative effectiveness trial that randomly assigned clinicians at participating academic and community practices to one of two different decision support strategies. The first strategy (Registry arm) took a population health management (PHM) approach and used a patient registry to identify and track use of CRC screening among older adults for each clinician. The second strategy enhanced the registry by adding a multi-faceted SDM training program for clinicians (SDM Skills arm). The researchers enrolled patients of participating primary care providers (PCPs), aged 76-85, who are due or overdue for CRC screening, and survey them shortly after an office visit to determine the impact of the two strategies on outcomes of importance to patients. The study randomly assigned about 60 participating PCPs to the SDM skills or Registry arms, and enroll about 500 of their eligible patients.

Curated

Health Information National Trends Survey (HINTS), 2007 (ICPSR 25262)

Released/updated on: 2009-06-23

Geographic coverage: United States

Time period: 2007-01-01--2007-12-31

The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. The 2007 HINTS survey is the third in an ongoing biannual series and provides information on the changing patterns, needs, and behavior in seeking and supplying cancer information and explores how cancer risks are perceived. Respondents were asked about the ways in which they obtained health information, their use of health care services, their views about medical information and research, and their beliefs about cancer. A series of questions specifically addressed cervical cancer, colon cancer, and the Human Papillomavirus (HPV). Information was also collected on physical and mental health status, diet, physical activity, sun exposure, history of cancer, tobacco use, and whether respondents had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, number of people living in the household, ownership of residence, and whether respondents were born in the United States.

Curated

Health Information National Trends Survey (HINTS), 2003 (ICPSR 24382)

Released/updated on: 2009-03-27

Geographic coverage: United States

Time period: 2003-01-01--2003-12-31

The Health Information National Trends Survey (HINTS) collects nationally representative data about the American public's access to and use of cancer-related information. This data collection consists of the 2003 survey which focused on the changing patterns, needs, and behavior in seeking and supplying cancer information, and explored how cancer risks are perceived. A series of questions specifically addressed colon and breast cancer and respondents' familiarity with cancer screening procedures such as mammogram, colonoscopy, and the PSA test. Information was also gathered on physical and mental health status, smoking history, how often respondents ate fruits and vegetables, and whether they had health insurance. Demographic variables include sex, age, race, education level, employment status, marital status, household income, type of residential area (e.g., urban or rural), and whether respondents had children under the age of 18.