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Development and Evaluation of a Patient-Centered Approach to Assess Quality of Care: Patient-Reported Outcomes-Based Performance Measures (PRO-PMs) [Methods Study], 6 U.S. States, 2016-2020 (ICPSR 39628)
Released/updated on: 2025-12-11
Geographic coverage: North Carolina, United States, Texas, Connecticut, Minnesota, California, Florida
Time period: 2016-01-01--2020-01-01
Patient-reported outcome measures, or PROMs, ask patients how they feel and what activities they can do in daily life. Patients receiving cancer treatment, such as chemotherapy, often have side effects. PROMs can help cancer centers know if patients are getting high-quality care that helps manage their side effects.
In this study, the research team wanted to
- Learn from patients and clinicians, like doctors and nurses, what side effects are important to track during chemotherapy
- Create PROMs that can measure important side effects of chemotherapy
The research team also wanted to test the PROMs to see
- If patients find them easy to complete
- If the PROMs can detect differences in how well cancer centers control patients' treatment side effects