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Curated

Concerns of Police Survivors, 1986: [United States] (ICPSR 9327)

Released/updated on: 2006-01-12
Geographic coverage: United States
Time period: 1982-11-01--1986-02-01
This data collection was designed to assess the impact of line-of-duty deaths of law enforcement officers on their family members in terms of the psychological, emotional, and financial effects. To assess the impact of the traumatic event, a wide variety of clinical and psychiatric measures of psychological disorder were employed. The data are stored in two files. Included in the first file are variables concerning the respondent's personal characteristics such as age, sex, ethnic origin, marital status, educational level, relationship to deceased officer, and employment. Also included are experiences and emotional reactions to the death of the officer and clinical symptoms of psychological distress. The file also offers information on the deceased officer's demographic characteristics such as age at time of death, sex, ethnic origin, educational level, number of times married, and number of years in law enforcement, as well as the date and time of the incident. The second file contains variables on the respondent's relationship with friends and relatives before and after the traumatic event, behavioral changes of survivors' children following the death, financial impacts on survivors, and satisfaction with treatment and responses received from police departments.
Curated
Simple Crosstabs

Korean General Social Survey (KGSS), 2009 (ICPSR 34665)

Released/updated on: 2013-12-05
Geographic coverage: South Korea, Asia, Global
Time period: 2009-06-01--2009-08-01
The Korean General Social Survey (KGSS) is the South Korean version of the General Social Survey (GSS), closely replicating the original GSS of the National Opinion Research Center at the University of Chicago. Each round of the KGSS typically includes the topical module surveys of the International Social Survey Programme (ISSP), and/or the East Asian Social Survey (EASS), an international survey network of four GSS-type surveys from countries in East Asia (including China, Japan, Taiwan, and South Korea). Respondents were asked for their opinions on Korean society, politics and reunification, economic issues, social equity and inequality, and suicide. Additional questions were asked about the everyday life, household, family, education, occupation, and mental health of the respondents. Demographic information includes age, sex, education level, household income, employment status, religious preference, political party affiliation, and political philosophy.
Curated

NORC Amalgam Survey, December 1973 (ICPSR 7556)

Released/updated on: 2011-02-17
This data collection contains the results of a 1973 amalgam survey -- several individuals pooled resources to share the cost of launching it -- which was conducted by the National Opinion Research Center (NORC) at the University of Chicago. In this survey, 1,489 individuals from across the United States responded to 125 questions on a wide variety of subjects, including political and social attitudes, political party preferences, and political and social participation. One section of the survey dealt with the importance of various aspects of the respondent's life (e.g., family, job, social activities, and local, state, and national affairs) and the respondent's opinion on the importance of such social issues as marijuana, poverty, rights of criminals, government's role, school integration, pornography, medical care, neighborhood integration, defense spending, income equalization, use of troops to contain communism, government help to Blacks, spying on radicals, inflation, and government spending. In addition, respondents commented on feelings of personal efficacy, feelings about groups, confidence in institutions, views of political party candidates, jury duty experience, attitudes toward retirement and death, and family relationships (in particular, an inquiry into the relationship between brothers). The collection also includes demographic data on the respondent and his or her family (including some information about male respondents' brothers), e.g., marital status, labor force status, occupation, prestige of occupation, vote in the presidential elections of 1968 and 1972, vote in local and state elections, political party affiliation, grandparent nativity, ethnicity, education, religion, respondent's family composition at age 15, number of members in current household, siblings of male respondent, age, sex, income, and race. In addition, the survey included a methodological experiment to determine the effects of the instrument and the coders on the survey results. Specifically, the survey contained question wording experiments using questions on attitudes toward government involvement with social problems and political party affiliation. A further experiment tested the accuracy of respondent-coded occupation.
Curated
Partially restricted

Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment (SUPPORT) and Hospitalized Elderly Longitudinal Project (HELP), 1989-1997 (ICPSR 2957)

Released/updated on: 2020-02-20
Geographic coverage: United States
Time period: 1989-01-01--1997-01-01
The objective of the SUPPORT and HELP projects was to improve decision-making in order to address the growing national concern over the loss of control that patients have near the end of life and to reduce the frequency of a mechanical, painful, and prolonged process of dying. SUPPORT comprised a two-year prospective observational study (Phase I) followed by a two-year controlled clinical trial (Phase II). Phase I of SUPPORT collected data from patients accessioned during 1989-1991 to characterize the care, treatment preferences, and patterns of decision-making among critically ill patients. It also served as a preliminary step for devising an intervention strategy for improving critically-ill patients' care and for the construction of statistical models for predicting patient prognosis and functional status. An intervention was implemented in Phase II of SUPPORT, which accessioned patients during 1992-1994. The Phase II intervention provided physicians with accurate predictive information on future functional ability, survival probability to six months, and patients' preferences for end-of-life care. Additionally, a skilled nurse was provided as part of the intervention to elicit patient preferences, provide prognoses, enhance understanding, enable palliative care, and facilitate advance planning. The intervention was expected to increase communication, resulting in earlier decisions to have orders against resuscitation, decrease time that patients spent in undesirable states (e.g., in the Intensive Care Unit, on a ventilator, and in a coma), increase physician understanding of patients' preferences for care, decrease patient pain, and decrease hospital resource use. Data collection in both phases of SUPPORT consisted of questionnaires administered to patients, their surrogates, and physicians, plus chart reviews for abstracting clinical, treatment, and decision information. Phase II also collected information regarding the implementation of the intervention, such as patient-specific logs maintained by nurses assigned to patients as part of the intervention. SUPPORT patients were followed for six months after inclusion in the study. Those who did not die within six months or were lost to follow-up were matched against the National Death Index to identify deaths through 1997. The HELP study was conducted in 1993 concomitantly with Phase II of SUPPORT and collected data to characterize the care, treatment preferences, and patterns of decision-making among hospitalized patients who were at least 80 years old. HELP data were also intended for use in adapting existing mortality and functional status models of elderly hospitalized patients. Data collection methods of HELP were essentially the same as those of SUPPORT. HELP patients were followed for 12 months after inclusion in the study. Patients who did not die within one year or were lost to follow-up were matched against the National Death Index to identify deaths through 1997.
Curated

The Vermont Study on Aid-in-Dying, 2016-2018 (ICPSR 37209)

Released/updated on: 2019-04-29
Geographic coverage: Vermont
Time period: 2016-07-01--2018-06-01

Legislative support for physician aid-in-dying (PAD) in the US has risen steadily in recent years. In May 2013, Vermont became the fourth state to legalize PAD, through the "Patient Choice and Control at End of Life" Act (Act 39). The law authorized physicians to prescribe a lethal dose of medication to a mentally competent, terminally ill, adult patient for the purpose of ending the patient's life. With ongoing legislative activities in many other states, these laws are expected to spread nationally. This shifting legislative climate raises questions about how societies respond to changes in the sociocultural and biopolitical organization of death. While social scientists have examined the social and political forces that shape 'right to die' movements and counter-movements, sanctioning the right to die is only the first step in institutionalizing PAD as a new cultural and medical practice. What happens once these rights are legally authorized?

The purpose of this study was to learn about how people in Vermont have been affected by Act 39. This 2-year ethnographic study (July 2016-June 2018) addressed the following overarching research questions:

  1. How do ordinary people understand, access, experience, and contest the 'right to die' through PAD once it has been granted?
  2. How do healthcare providers and policy stakeholders accommodate or resist PAD as a new end-of-life practice?
  3. How does PAD affect the cultural landscape of care for the dying in the US?

Due to the recent enactment of Act 39, and Vermont's small size and the geographic proximity of key institutions, Vermont offered an ideal setting to explore these questions and document emergent responses to a new socio-legal phenomenon across multiple sites. By tracing the social life of Act 39 from the Vermont State House to the institutions, experts, and ordinary people responsible for managing death, this study yielded valuable information about the broad sociocultural consequences of legalizing PAD, including unintended consequences, that will be relevant to US policymakers, clinicians, patients, and families.

This collection includes semi-structured interviews with seriously ill Vermont patients, survivors of people who have used Act 39, healthcare providers and administrators, activists, and legislators, as well as participant observation in settings in which PAD is likely to be discussed. Participants were asked about their personal and professional backgrounds, attitudes on death and the legalization of PAD, understandings of the physician's role and responsibilities regarding end-of-life care, and interactions between healthcare providers, patients, and caregivers about PAD. The age, gender, and race of the participants are also provided.

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